keyword
https://read.qxmd.com/read/33622943/reactions-to-and-explanations-for-the-birth-of-a-baby-with-albinism-a-qualitative-study-in-busoga-uganda
#1
JOURNAL ARTICLE
Julie Taylor, C Bradbury-Jones, Peter Ogik, Fazira Kawuma, Jane Betts, Patricia Lund
OBJECTIVES: Babies born with the genetic condition albinism lack pigment in their hair, skin and eyes due to compromised melanin production. This leads to poor vision and the risk of early death due to skin cancer. In Uganda, one of the least developed countries in the world, their lack of pigmentation makes them very different in appearance within their communities. Local explanations of albinism include links to witchcraft and the supernatural. We aimed to explore reactions to the birth of a baby with albinism in Uganda...
February 23, 2021: BMJ Open
https://read.qxmd.com/read/33413439/social-value-of-maintaining-baby-friendly-hospital-initiative-accreditation-in-australia-case-study
#2
JOURNAL ARTICLE
Andini Pramono, Julie Smith, Jane Desborough, Siobhan Bourke
BACKGROUND: Breastfeeding has positive impacts on the health, environment, and economic wealth of families and countries. The World Health Organization (WHO) launched the Baby Friendly Hospital Initiative (BFHI) in 1991 as a global program to incentivize maternity services to implement the Ten Steps to Successful Breastfeeding (Ten Steps). These were developed to ensure that maternity services remove barriers for mothers and families to successfully initiate breastfeeding and to continue breastfeeding through referral to community support after hospital discharge...
January 7, 2021: International Journal for Equity in Health
https://read.qxmd.com/read/28637644/does-attendance-at-a-specialist-antenatal-clinic-improve-clinical-outcomes-in-women-with-class-iii-obesity-compared-with-standard-care-a-retrospective-case-note-analysis
#3
COMPARATIVE STUDY
Fiona C Denison, Heather MacGregor, Laura I Stirrat, Kerrie Stevenson, Jane E Norman, Rebecca M Reynolds
OBJECTIVES: To determine whether attendance at a specialised multidisciplinary antenatal clinic for women with class III obesity (BMI >40 kg/m2 ) is associated with improved clinical outcomes compared with standard antenatal care. DESIGN: Retrospective cohort study using routinely collected data from electronic patient record. SETTING: Community and hospital based antenatal care. PARTICIPANTS: Women with a singleton pregnancy with class III obesity booked for antenatal care and delivered in one of two hospitals in NHS Lothian, Scotland, UK between 2008 and 2014...
June 21, 2017: BMJ Open
https://read.qxmd.com/read/21501282/birth-defect-rates-in-women-using-adalimumab-humira-%C3%A2-to-treat-immunologic-based-infertility-in-ivf-patients
#4
JOURNAL ARTICLE
Edward E Winger, Jane L Reed, Sherif Ashoush, Tarek El-Toukhy, Sapna Ahuja, Mohamed Taranissi
PROBLEM: This study compares the birth defect rate in women using preconception TNF-α inhibitor (Adalimumab) during an in vitro fertilization (IVF) cycle to a similar population of women not using these immunologic therapies. METHOD OF STUDY: One hundred subfertile women aged ≤38years experienced ongoing pregnancies of which 36 resulted in twin pregnancies (136 babies). These successful cycles were divided into two different treatment groups: group I comprised 31 cycles (23 ICSI) using preconception Adalimumab (Humira) with or without pre- or post-conception intravenous immunoglobulin (IVIG) (last dose of Humira given 65...
September 2011: American Journal of Reproductive Immunology: AJRI
https://read.qxmd.com/read/12740781/ethical-issues-concerning-cardiac-surgery-in-patients-with-syndromic-abnormalities
#5
REVIEW
Walter M Robinson, Jane W Newburger
Advances in surgical techniques, cardiac anesthesia, and pre- and postoperative care have made the surgical treatment of complex congenital cardiac disease available to an ever-increasing number of children, including those with a wide range of extracardiac anomalies. Over the past few decades cardiac surgery in infants and children with syndrome-associated physical and mental conditions has undergone a remarkable change, with previously held norms abandoned for new standards. The social, ethical, and clinical appropriateness of these changes has been the focus of much attention...
2003: Seminars in Thoracic and Cardiovascular Surgery. Pediatric Cardiac Surgery Annual
https://read.qxmd.com/read/11643930/introduction-to-the-baby-jane-doe-papers
#6
JOURNAL ARTICLE
Daniel M Fox
A conference was held at the State University of New York at Stony Brook in October 1984 to discuss the controversy concerning treatment of a newborn with severe congenital defects that became known as the Baby Jane Doe case. Fox provides some background information on the case to introduce a set of of six articles consisting of papers delivered at the conference. These articles deal with historical aspects of the treatment debate (Stanley J. Reiser), problems of clinical decision making (John M. Freeman), the legal issues involved (John A...
1986: Journal of Health Politics, Policy and Law
https://read.qxmd.com/read/10317455/baby-jane-doe-case-does-section-504-of-rehab-law-apply-to-hospitals
#7
JOURNAL ARTICLE
C Weissburg, J Guth
No abstract text is available yet for this article.
March 1984: Review—Federation of American Hospitals
https://read.qxmd.com/read/10310699/results-of-the-baby-jane-doe-court-cases-confidentiality-4-government-access-0
#8
JOURNAL ARTICLE
D Burda
No abstract text is available yet for this article.
July 1984: Journal
https://read.qxmd.com/read/10265234/court-of-appeals-denies-government-access-to-records-in-case-of-baby-jane-doe
#9
JOURNAL ARTICLE
M L Ahern
No abstract text is available yet for this article.
March 2, 1984: Health Law Vigil
https://read.qxmd.com/read/10264307/court-of-appeals-reviews-decision-denying-government-access-to-records-in-case-of-baby-jane-doe-aha-files-brief-in-support-of-hospital
#10
JOURNAL ARTICLE
L A Tomaselli, M L Ahern
No abstract text is available yet for this article.
December 23, 1983: Health Law Vigil
https://read.qxmd.com/read/10263113/the-case-of-baby-jane-doe
#11
JOURNAL ARTICLE
A Press, N Cooper, M Hager, L Howard
No abstract text is available yet for this article.
November 28, 1983: Newsweek
https://read.qxmd.com/read/6742262/the-case-of-baby-jane-doe-child-abuse-or-unlawful-federal-intervention
#12
JOURNAL ARTICLE
G J Annas
No abstract text is available yet for this article.
July 1984: American Journal of Public Health
https://read.qxmd.com/read/6370910/the-case-of-baby-jane-doe-1-spina-bifida-the-state-of-the-art-of-medical-management
#13
JOURNAL ARTICLE
A Gallo
No abstract text is available yet for this article.
February 1984: Hastings Center Report
https://read.qxmd.com/read/6237076/reporting-the-case-of-baby-jane-doe
#14
JOURNAL ARTICLE
K Kerr
No abstract text is available yet for this article.
August 1984: Hastings Center Report
https://read.qxmd.com/read/6232243/the-case-of-baby-jane-doe-2-baby-jane-doe-in-the-courts
#15
JOURNAL ARTICLE
B Steinbock
No abstract text is available yet for this article.
February 1984: Hastings Center Report
https://read.qxmd.com/read/3764495/principles-and-the-search-for-moral-certainty
#16
JOURNAL ARTICLE
L R Churchill, J J Simán
In medical ethics, principles have an important but frequently overextended role. The need for exact answers and moral formulae sometimes leads to the misuse of principles, such that they usurp the central place of persons and become ends in themselves. The Baby Jane Doe case is discussed as a prominent instance of both the proper uses and abuses of principles. A more fitting role for principles is described and illustrated, stressing the use of principles as tools of moral discernment and the time-laden character of moral judgments...
1986: Social Science & Medicine
https://read.qxmd.com/read/3745841/making-decisions-for-the-severely-handicapped-newborn
#17
JOURNAL ARTICLE
J M Freeman
Standard ethical approaches to decision-making which are based on rights, duties, obligations, beneficence, or best interests often seem inadequate or insufficient when applied to the individual infant, as in the case of Baby Jane Doe. A process approach which takes account of moral theory, but which allows tolerance, within limits, for a possible range of decisions, would appear to offer more reasonable decisions. However, any decision must be based on good facts and accurate prognosis. Pending the availability of medical records on Baby Jane Doe, judgment of the decisions made at Stony Brook must be suspended...
1986: Journal of Health Politics, Policy and Law
https://read.qxmd.com/read/3745840/baby-jane-doe-in-the-media
#18
JOURNAL ARTICLE
S Klaidman, T L Beauchamp
A review of national television, magazine, and newspaper coverage of the case of Baby Jane Doe indicates that most of it lacked perspective and context; stories were generally incomplete and often imprecise; reporting was sometimes inaccurate; and overall, inadequate attention was paid to the medical, legal, philosophical, and social implications of the case. Human-interest and political elements of the story were generally well covered. Even after taking account of the pressures and constraints of daily and weekly news reporting, we conclude that the print press and television could have done a better job without devoting more space or time to the story...
1986: Journal of Health Politics, Policy and Law
https://read.qxmd.com/read/3745839/the-antiabortion-movement-and-baby-jane-doe
#19
JOURNAL ARTICLE
C Paige, E B Karnofsky
In the early 1980s, the leadership of the antiabortion movement became involved in a campaign to establish legal rights to extraordinary medical care for seriously handicapped newborns. Armed with political contacts in the Reagan administration and Congress, and allied with advocates for the disabled, the antiabortion movement searched for a test case to guide through the courts. Antiabortion advocate Lawrence Washburn found such a case in Baby Jane Doe, who was being treated at Stony Brook Medical Center. The movement went on to amend the Child Abuse Act to include protections for handicapped newborns...
1986: Journal of Health Politics, Policy and Law
https://read.qxmd.com/read/3745838/civil-rights-and-regulatory-wrongs-the-reagan-administration-and-the-medical-treatment-of-handicapped-infants
#20
JOURNAL ARTICLE
L D Brown
Beginning in 1982 the Reagan administration tried to impose federal regulations (based on the civil rights approach of Section 504) on the medical treatment of handicapped newborns in the nation's hospitals. After issuing three sets of regulations, the administration found itself rebuffed by the courts and in ill repute with providers and parts of the public, especially after its widely publicized intervention in the case of Baby Jane Doe illustrated the pitfalls of federal regulation in complex medical decisions...
1986: Journal of Health Politics, Policy and Law
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