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Health literacy AND chronic kidney disease

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https://www.readbyqxmd.com/read/29212466/exploring-the-use-of-tablet-computer-based-electronic-data-capture-system-to-assess-patient-reported-measures-among-patients-with-chronic-kidney-disease-a-pilot-study
#1
Dorothy Wong, Shen Cao, Heather Ford, Candice Richardson, Dmitri Belenko, Evan Tang, Luca Ugenti, Eleanor Warsmann, Amanda Sissons, Yalinie Kulandaivelu, Nathaniel Edwards, Marta Novak, Madeline Li, Istvan Mucsi
BACKGROUND: Collecting patient reported outcome measures (PROMs) via computer-based electronic data capture system may improve feasibility and facilitate implementation in clinical care. We report our initial experience about the acceptability of touch-screen tablet computer-based, self-administered questionnaires among patients with chronic kidney disease (CKD), including stage 5 CKD treated with renal replacement therapies (RRT) (either dialysis or transplant). METHODS: We enrolled a convenience sample of patients with stage 4 and 5 CKD (including patients on dialysis or after kidney transplant) in a single-centre, cross-sectional pilot study...
December 6, 2017: BMC Nephrology
https://www.readbyqxmd.com/read/29167082/disparities-in-health-literacy-and-healthcare-utilization-among-adolescents-and-young-adults-with-chronic-or-end-stage-kidney-disease
#2
Robyn Levine, Karina Javalkar, Meaghan Nazareth, Richard A Faldowski, Maria Diaz-Gonzalez de Ferris, Sarah Cohen, Jessica Cuttance, Stephen R Hooper, Eniko Rak
PURPOSE: Low health literacy adversely affects health outcomes in adults with chronic kidney disease. The current study examined associations between limited/inadequate health literacy and health services utilization among adolescents and young adults (AYA) with chronic or end-stage kidney disease (CKD or ESKD). DESIGN AND METHODS: This was a retrospective cohort study that enrolled patients from both the pediatric- and adult-focused nephrology clinics of a major university hospital...
October 31, 2017: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/29165627/health-literacy-and-patient-outcomes-in-chronic-kidney-disease-a-systematic-review
#3
Dominic M Taylor, Simon Fraser, Chris Dudley, Gabriel C Oniscu, Charles Tomson, Rommel Ravanan, Paul Roderick
Background: Limited health literacy affects 25% of people with chronic kidney disease (CKD), and may reduce self-management skills resulting in poorer clinical outcomes. By disproportionately affecting people with low socio-economic status and non-white ethnicity, limited health literacy may promote health inequity. Methods: We performed a systematic review of quantitative studies of health literacy and clinical outcomes among adults with CKD. Results: A total of 29 studies (13 articles; 16 conference abstracts) were included...
November 20, 2017: Nephrology, Dialysis, Transplantation
https://www.readbyqxmd.com/read/29056159/should-we-recommend-renal-diet-related-apps-to-our-patients-an-evaluation-of-the-quality-and-health-literacy-demand-of-renal-diet-related-mobile-applications
#4
Kelly Lambert, Judy Mullan, Kylie Mansfield, Paris Owen
OBJECTIVE: Mobile phone applications (apps) are increasingly being used by patients with chronic kidney disease (CKD). We sought to describe the main purpose of commonly available renal diet apps and to quantify the accuracy of information, technical quality, and health literacy demand of renal diet apps. DESIGN: The design was content analysis. All eligible renal diet apps in the Australian Apple App Store, Google Play, Windows Phone, and Blackberry App World were evaluated...
November 2017: Journal of Renal Nutrition
https://www.readbyqxmd.com/read/28794290/e-learning-model-in-chronic-kidney-disease-management-a-controlled-clinical-trial
#5
Hamid Barahimi, Mitra Zolfaghari, Farid Abolhassani, Abass Rahimi Foroushani, Aeen Mohammadi, Farahnaz Rajaee
INTRODUCTION: Chronic kidney disease (CKD) is a challenging health problem. The present study examined impact of self-care education through e-learning on improving kidney function among individuals with CKD. MATERIALS AND METHODS: The studied population consisted of CKD patients receiving care at 10 centers for treating noncommunicable diseases in Tehran. Three centers were randomly selected and 39 patients with a glomerular filtration rate (GFR) less than 60 mL/min/1...
July 2017: Iranian Journal of Kidney Diseases
https://www.readbyqxmd.com/read/28355405/developing-educational-material-on-chronic-kidney-disease-using-best-practices-in-health-literacy
#6
Luanda Thaís Mendonça Santos, Marcus Gomes Bastos
Based in the precepts of Health Literacy (HL), an educational booklet "Do you know the Chronic Kidney Disease?" was written. It was used as a basic text for development of a Brazilian instrument for Assessment of Health Literacy (Teste de Avaliação de Letramento em Saúde or TALES). The guideline used to create the TALES obeyed four steps: systematization of content; creation and drawing of images by an expert designer; submission to a Committee of Experts on nephrology and linguistics; and editing and printing of the content...
March 2017: Jornal Brasileiro de Nefrologia: ʹorgão Oficial de Sociedades Brasileira e Latino-Americana de Nefrologia
https://www.readbyqxmd.com/read/28211108/evaluation-of-the-quality-and-health-literacy-demand-of-online-renal-diet-information
#7
K Lambert, J Mullan, K Mansfield, A Koukomous, L Mesiti
BACKGROUND: Dietary modification is critical in the self-management of chronic kidney disease. The present study describes the accuracy, quality and health literacy demand of renal diet information for adults with kidney disease obtained from the Internet and YouTube (www.youtube.com). METHODS: A comprehensive content analysis was undertaken in April and July 2015 of 254 eligible websites and 161 YouTube videos. The accuracy of the renal diet information was evaluated by comparing the key messages with relevant evidence-based guidelines for the dietary management of people with kidney disease...
February 16, 2017: Journal of Human Nutrition and Dietetics: the Official Journal of the British Dietetic Association
https://www.readbyqxmd.com/read/28182041/assessment-of-health-related-quality-of-life-and-its-determinants-in-patients-with-chronic-kidney-disease
#8
M Manavalan, A Majumdar, K T Harichandra Kumar, P S Priyamvada
Health-related quality of life is an important, yet neglected aspect of chronic kidney disease (CKD) care. We evaluated the quality of life and its determinants across CKD 3 to 5D using a kidney disease specific tool (Kidney Disease Quality of Life-SF™) in an underprivileged, predominantly rural population with high rates of illiteracy and unemployment. The scores of individual domains were summarized to three composite scores - physical composite summary (PCS), mental composite summary (MCS), and kidney disease component summary score (KDCS)(...
January 2017: Indian Journal of Nephrology
https://www.readbyqxmd.com/read/28121226/health-literacy-demand-of-printed-lifestyle-patient-information-materials-aimed-at-people-with-chronic-kidney-disease-are-materials-easy-to-understand-and-act-on-and-do-they-use-meaningful-visual-aids
#9
REVIEW
Suzanne Morony, Kirsten J McCaffery, Suzanne Kirkendall, Jesse Jansen, Angela C Webster
People with chronic kidney disease (CKD) need usable information on how to live well and slow disease progression. This information is complex, difficult to communicate, and changes during the course of the disease. We examined lifestyle-related printed CKD patient education materials focusing on actionability and visual aids. From a previous systematic review assessing readability of CKD patient information, we identified materials targeting nutrition, exercise, and self-management. We applied the Suitability Assessment of Materials (SAM) and Patient Education Materials Assessment Tool (PEMAT) to evaluate how easy materials were to understand (understandability) and act on (actionability)...
February 2017: Journal of Health Communication
https://www.readbyqxmd.com/read/28011387/the-kidney-and-periodontal-disease-kapd-study-a-pilot-randomized-controlled-trial-testing-the-effect-of-non-surgical-periodontal-therapy-on-chronic-kidney-disease
#10
Vanessa Grubbs, Faviola Garcia, Bonnie L Jue, Eric Vittinghoff, Mark Ryder, David Lovett, Jacqueline Carrillo, Steven Offenbacher, Peter Ganz, Kirsten Bibbins-Domingo, Neil R Powe
INTRODUCTION: Chronic kidney disease (CKD) remains a prevalent public health problem that disproportionately affects minorities and the poor, despite intense efforts targeting traditional risk factors. Periodontal diseases are common bacterial plaque-induced inflammatory conditions that can respond to treatment and have been implicated as a CKD risk factor. However there is limited evidence that treatment of periodontal disease slows the progression of CKD. METHODS/DESIGN: We describe the protocol of the Kidney and Periodontal Disease (KAPD) study, a 12-month un-blinded, randomized, controlled pilot trial with two intent-to-treat treatment arms: 1...
February 2017: Contemporary Clinical Trials
https://www.readbyqxmd.com/read/27553026/a-randomized-controlled-trial-comparing-in-person-and-wiki-inspired-nominal-group-techniques-for-engaging-stakeholders-in-chronic-kidney-disease-research-prioritization
#11
RANDOMIZED CONTROLLED TRIAL
Meghan J Elliott, Sharon E Straus, Neesh Pannu, Sofia B Ahmed, Andreas Laupacis, George C Chong, David R Hillier, Kate T Huffman, Andrew C Lei, Berlene V Villanueva, Donna M Young, Helen Tam-Tham, Maoliosa Donald, Erin Lillie, Braden J Manns, Brenda R Hemmelgarn
BACKGROUND: Few studies have evaluated stakeholder engagement in chronic kidney disease (CKD) research prioritization. In this two-arm, parallel group randomized controlled trial, we sought to compare an in-person nominal group technique (NGT) approach with an online wiki-inspired alternative to determining the top 10 CKD research priorities, and to evaluate stakeholder engagement and satisfaction with each process. METHODS: Eligible participants included adults ≥18 years with access to a computer and Internet, high health literacy, and from one of the following stakeholder groups: patients with CKD not on dialysis, their caregivers, health care providers who care for patients with CKD, or CKD-related health policymakers...
August 24, 2016: BMC Medical Informatics and Decision Making
https://www.readbyqxmd.com/read/27490366/health-and-nutrition-literacy-and-adherence-to-treatment-in-children-adolescents-and-young-adults-with-chronic-kidney-disease-and-hypertension-north-carolina-2015
#12
Nikita Patel, Maria Ferris, Eniko Rak
INTRODUCTION: Adherence to treatment and dietary restrictions is important for health outcomes of patients with chronic/end-stage kidney disease and hypertension. The relationship of adherence with nutritional and health literacy in children, adolescents, and young adults is not well understood. The current study examined the relationship of health literacy, nutrition knowledge, nutrition knowledge-behavior concordance, and medication adherence in a sample of children and young people with chronic/end-stage kidney disease and hypertension...
August 4, 2016: Preventing Chronic Disease
https://www.readbyqxmd.com/read/27340288/variation-in-patients-awareness-of-ckd-according-to-how-they-are-asked
#13
Delphine S Tuot, Yunnuo Zhu, Alexandra Velasquez, Juan Espinoza, C Damaris Mendez, Tanushree Banerjee, Chi-Yuan Hsu, Neil R Powe
BACKGROUND AND OBJECTIVES: Awareness of CKD is necessary for patient engagement and adherence to medical regimens. Having an accurate tool to assess awareness is important. Use of the National Health and Nutrition Examination Survey (NHANES) CKD awareness question "Have you ever been told by a doctor or other health professional that you had weak or failing kidneys (excluding kidney stones, bladder infections, or incontinence)?" produces surprisingly low measures of CKD awareness. We sought to compare the sensitivity and specificity of different questions ascertaining awareness of CKD and other health conditions...
September 7, 2016: Clinical Journal of the American Society of Nephrology: CJASN
https://www.readbyqxmd.com/read/27274841/caregiver-word-reading-literacy-and-health-outcomes-among-children-treated-in-a-pediatric-nephrology-practice
#14
Eniko C Rak, Stephen R Hooper, Michael J Belsante, Otis Burnett, Bradley Layton, David Tauer, Bradley Mantoo, Darren DeWalt, Maria E Ferris
BACKGROUND: Caregivers play a major role in the healthcare of pediatric patients, particularly during childhood and adolescence. This study examined the impact of caregivers' functional literacy on the health outcomes of adolescents with chronic kidney disease (CKD) or end-stage kidney disease (ESKD). METHODS: Caregiver-child dyads in a Southeastern US pediatric nephrology clinic participated in this cross-sectional study. We collected demographic information, data on caregivers' functional literacy skills (Wechsler Individual Achievement Test Word Reading Subtest) and child health outcomes (healthcare utilization and adherence)...
June 2016: Clinical Kidney Journal
https://www.readbyqxmd.com/read/27026552/-using-ehealth-in-the-continuity-care-of-chronic-kidney-disease-opportunities-and-considerations
#15
Yu-Chi Chen, Polun Chang
Kidney disease is a common complication of chronic diseases among adult and elderly populations. As early-stage chronic kidney disease (CKD) is asymptomatic, CKD patients are frequently unaware of their condition and fail to implement requisite self-care in a timely fashion. Furthermore, the shortage of case-management manpower and difficulties in follow-up have led to high incidence rates for CKD worldwide. Integrative and continuous care is key to preventing CKD. How to implement this care effectively is a challenge...
April 2016: Hu Li za Zhi the Journal of Nursing
https://www.readbyqxmd.com/read/26926848/lower-verbal-intelligence-is-associated-with-diabetic-complications-and-slower-walking-speed-in-people-with-type-2-diabetes-the-maastricht-study
#16
P J J Spauwen, R J H Martens, C D A Stehouwer, F R J Verhey, M T Schram, S J S Sep, C J H van der Kallen, P C Dagnelie, R M A Henry, N C Schaper, M P J van Boxtel
AIMS: To determine the association of verbal intelligence, a core constituent of health literacy, with diabetic complications and walking speed in people with Type 2 diabetes. METHODS: This study was performed in 228 people with Type 2 diabetes participating in the Maastricht Study, a population-based cohort study. We examined the cross-sectional associations of score on the vocabulary test of the Groningen Intelligence Test with: 1) determinants of diabetic complications (HbA1c , blood pressure and lipid level); 2) diabetic complications: chronic kidney disease, neuropathic pain, self-reported history of cardiovascular disease and carotid intima-media thickness; and 3) walking speed...
December 2016: Diabetic Medicine: a Journal of the British Diabetic Association
https://www.readbyqxmd.com/read/26513027/a-cross-sectional-comparison-of-health-literacy-deficits-among-patients-with-chronic-kidney-disease
#17
Kelly Lambert, Judy Mullan, Kylie Mansfield, Maureen Lonergan
Inadequate health literacy in people with chronic kidney disease (CKD) is associated with poorer disease management and greater complications. There are limited data on the health literacy deficits of people with CKD. The aim of this study was to investigate the types and extent of health literacy deficits in patients with CKD using the multidimensional Health Literacy Management Scale (HeLMS) and to identify associations between patient characteristics and the domains of health literacy measured by the HeLMS...
2015: Journal of Health Communication
https://www.readbyqxmd.com/read/26494562/the-kidney-awareness-registry-and-education-kare-study-protocol-of-a-randomized-controlled-trial-to-enhance-provider-and-patient-engagement-with-chronic-kidney-disease
#18
RANDOMIZED CONTROLLED TRIAL
Delphine S Tuot, Alexandra Velasquez, Charles E McCulloch, Tanushree Banerjee, Yunnuo Zhu, Chi-yuan Hsu, Margaret Handley, Dean Schillinger, Neil R Powe
BACKGROUND: Chronic kidney disease (CKD) is common and is associated with excess mortality and morbidity. Better management could slow progression of disease, prevent metabolic complications, and reduce cardiovascular outcomes. Low patient awareness of CKD and ineffective patient-provider communication can impede such efforts. We developed provider and patient-directed interventions that harness health information technology to enhance provider recognition of CKD and delivery of guideline concordant care and augment patient understanding and engagement in CKD care...
October 22, 2015: BMC Nephrology
https://www.readbyqxmd.com/read/26346314/patient-and-caregiver-values-beliefs-and-experiences-when-considering-home-dialysis-as-a-treatment-option-a-semi-structured-interview-study
#19
Rachael C Walker, Kirsten Howard, Rachael L Morton, Suetonia C Palmer, Mark R Marshall, Allison Tong
BACKGROUND: Home dialysis can offer improved quality of life and economic benefits compared with facility dialysis. Yet the uptake of home dialysis remains low around the world, which may be partly due to patients' lack of knowledge and barriers to shared and informed decision-making. We aimed to describe patient and caregiver values, beliefs and experiences when considering home dialysis, to inform strategies to align policy and practice with patients' needs. METHODS: Semi-structured interviews with adult patients with chronic kidney disease Stage 4-5D (on dialysis <1 year) and their caregivers, recruited from three nephrology centres in New Zealand...
January 2016: Nephrology, Dialysis, Transplantation
https://www.readbyqxmd.com/read/26290918/health-literacy-in-children-with-chronic-kidney-disease-and-their-caregivers
#20
Malinda Harrington
Poorly controlled co-morbidities associated with pediatric chronic kidney disease may be associated with low health literacy skills of caregivers. This article explores what is known about health literacy in the home management of patients with pediatric chronic kidney disease, and examines caregiver and child literacy as it relates to child health outcomes.
January 2015: Nephrology Nursing Journal: Journal of the American Nephrology Nurses' Association
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