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Health literacy AND chronic kidney disease

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https://www.readbyqxmd.com/read/28355405/developing-educational-material-on-chronic-kidney-disease-using-best-practices-in-health-literacy
#1
Luanda Thaís Mendonça Santos, Marcus Gomes Bastos
Based in the precepts of Health Literacy (HL), an educational booklet "Do you know the Chronic Kidney Disease?" was written. It was used as a basic text for development of a Brazilian instrument for Assessment of Health Literacy (Teste de Avaliação de Letramento em Saúde or TALES). The guideline used to create the TALES obeyed four steps: systematization of content; creation and drawing of images by an expert designer; submission to a Committee of Experts on nephrology and linguistics; and editing and printing of the content...
March 2017: Jornal Brasileiro de Nefrologia: ʹorgão Oficial de Sociedades Brasileira e Latino-Americana de Nefrologia
https://www.readbyqxmd.com/read/28211108/evaluation-of-the-quality-and-health-literacy-demand-of-online-renal-diet-information
#2
K Lambert, J Mullan, K Mansfield, A Koukomous, L Mesiti
BACKGROUND: Dietary modification is critical in the self-management of chronic kidney disease. The present study describes the accuracy, quality and health literacy demand of renal diet information for adults with kidney disease obtained from the Internet and YouTube (www.youtube.com). METHODS: A comprehensive content analysis was undertaken in April and July 2015 of 254 eligible websites and 161 YouTube videos. The accuracy of the renal diet information was evaluated by comparing the key messages with relevant evidence-based guidelines for the dietary management of people with kidney disease...
February 16, 2017: Journal of Human Nutrition and Dietetics: the Official Journal of the British Dietetic Association
https://www.readbyqxmd.com/read/28182041/assessment-of-health-related-quality-of-life-and-its-determinants-in-patients-with-chronic-kidney-disease
#3
M Manavalan, A Majumdar, K T Harichandra Kumar, P S Priyamvada
Health-related quality of life is an important, yet neglected aspect of chronic kidney disease (CKD) care. We evaluated the quality of life and its determinants across CKD 3 to 5D using a kidney disease specific tool (Kidney Disease Quality of Life-SF™) in an underprivileged, predominantly rural population with high rates of illiteracy and unemployment. The scores of individual domains were summarized to three composite scores - physical composite summary (PCS), mental composite summary (MCS), and kidney disease component summary score (KDCS)(...
January 2017: Indian Journal of Nephrology
https://www.readbyqxmd.com/read/28121226/health-literacy-demand-of-printed-lifestyle-patient-information-materials-aimed-at-people-with-chronic-kidney-disease-are-materials-easy-to-understand-and-act-on-and-do-they-use-meaningful-visual-aids
#4
Suzanne Morony, Kirsten J McCaffery, Suzanne Kirkendall, Jesse Jansen, Angela C Webster
People with chronic kidney disease (CKD) need usable information on how to live well and slow disease progression. This information is complex, difficult to communicate, and changes during the course of the disease. We examined lifestyle-related printed CKD patient education materials focusing on actionability and visual aids. From a previous systematic review assessing readability of CKD patient information, we identified materials targeting nutrition, exercise, and self-management. We applied the Suitability Assessment of Materials (SAM) and Patient Education Materials Assessment Tool (PEMAT) to evaluate how easy materials were to understand (understandability) and act on (actionability)...
January 25, 2017: Journal of Health Communication
https://www.readbyqxmd.com/read/28011387/the-kidney-and-periodontal-disease-kapd-study-a-pilot-randomized-controlled-trial-testing-the-effect-of-non-surgical-periodontal-therapy-on-chronic-kidney-disease
#5
Vanessa Grubbs, Faviola Garcia, Bonnie L Jue, Eric Vittinghoff, Mark Ryder, David Lovett, Jacqueline Carrillo, Steven Offenbacher, Peter Ganz, Kirsten Bibbins-Domingo, Neil R Powe
INTRODUCTION: Chronic kidney disease (CKD) remains a prevalent public health problem that disproportionately affects minorities and the poor, despite intense efforts targeting traditional risk factors. Periodontal diseases are common bacterial plaque-induced inflammatory conditions that can respond to treatment and have been implicated as a CKD risk factor. However there is limited evidence that treatment of periodontal disease slows the progression of CKD. METHODS/DESIGN: We describe the protocol of the Kidney and Periodontal Disease (KAPD) study, a 12-month un-blinded, randomized, controlled pilot trial with two intent-to-treat treatment arms: 1...
December 20, 2016: Contemporary Clinical Trials
https://www.readbyqxmd.com/read/27553026/a-randomized-controlled-trial-comparing-in-person-and-wiki-inspired-nominal-group-techniques-for-engaging-stakeholders-in-chronic-kidney-disease-research-prioritization
#6
Meghan J Elliott, Sharon E Straus, Neesh Pannu, Sofia B Ahmed, Andreas Laupacis, George C Chong, David R Hillier, Kate T Huffman, Andrew C Lei, Berlene V Villanueva, Donna M Young, Helen Tam-Tham, Maoliosa Donald, Erin Lillie, Braden J Manns, Brenda R Hemmelgarn
BACKGROUND: Few studies have evaluated stakeholder engagement in chronic kidney disease (CKD) research prioritization. In this two-arm, parallel group randomized controlled trial, we sought to compare an in-person nominal group technique (NGT) approach with an online wiki-inspired alternative to determining the top 10 CKD research priorities, and to evaluate stakeholder engagement and satisfaction with each process. METHODS: Eligible participants included adults ≥18 years with access to a computer and Internet, high health literacy, and from one of the following stakeholder groups: patients with CKD not on dialysis, their caregivers, health care providers who care for patients with CKD, or CKD-related health policymakers...
2016: BMC Medical Informatics and Decision Making
https://www.readbyqxmd.com/read/27490366/health-and-nutrition-literacy-and-adherence-to-treatment-in-children-adolescents-and-young-adults-with-chronic-kidney-disease-and-hypertension-north-carolina-2015
#7
Nikita Patel, Maria Ferris, Eniko Rak
INTRODUCTION: Adherence to treatment and dietary restrictions is important for health outcomes of patients with chronic/end-stage kidney disease and hypertension. The relationship of adherence with nutritional and health literacy in children, adolescents, and young adults is not well understood. The current study examined the relationship of health literacy, nutrition knowledge, nutrition knowledge-behavior concordance, and medication adherence in a sample of children and young people with chronic/end-stage kidney disease and hypertension...
August 4, 2016: Preventing Chronic Disease
https://www.readbyqxmd.com/read/27340288/variation-in-patients-awareness-of-ckd-according-to-how-they-are-asked
#8
Delphine S Tuot, Yunnuo Zhu, Alexandra Velasquez, Juan Espinoza, C Damaris Mendez, Tanushree Banerjee, Chi-Yuan Hsu, Neil R Powe
BACKGROUND AND OBJECTIVES: Awareness of CKD is necessary for patient engagement and adherence to medical regimens. Having an accurate tool to assess awareness is important. Use of the National Health and Nutrition Examination Survey (NHANES) CKD awareness question "Have you ever been told by a doctor or other health professional that you had weak or failing kidneys (excluding kidney stones, bladder infections, or incontinence)?" produces surprisingly low measures of CKD awareness. We sought to compare the sensitivity and specificity of different questions ascertaining awareness of CKD and other health conditions...
September 7, 2016: Clinical Journal of the American Society of Nephrology: CJASN
https://www.readbyqxmd.com/read/27274841/caregiver-word-reading-literacy-and-health-outcomes-among-children-treated-in-a-pediatric-nephrology-practice
#9
Eniko C Rak, Stephen R Hooper, Michael J Belsante, Otis Burnett, Bradley Layton, David Tauer, Bradley Mantoo, Darren DeWalt, Maria E Ferris
BACKGROUND: Caregivers play a major role in the healthcare of pediatric patients, particularly during childhood and adolescence. This study examined the impact of caregivers' functional literacy on the health outcomes of adolescents with chronic kidney disease (CKD) or end-stage kidney disease (ESKD). METHODS: Caregiver-child dyads in a Southeastern US pediatric nephrology clinic participated in this cross-sectional study. We collected demographic information, data on caregivers' functional literacy skills (Wechsler Individual Achievement Test Word Reading Subtest) and child health outcomes (healthcare utilization and adherence)...
June 2016: Clinical Kidney Journal
https://www.readbyqxmd.com/read/27026552/-using-ehealth-in-the-continuity-care-of-chronic-kidney-disease-opportunities-and-considerations
#10
Yu-Chi Chen, Polun Chang
Kidney disease is a common complication of chronic diseases among adult and elderly populations. As early-stage chronic kidney disease (CKD) is asymptomatic, CKD patients are frequently unaware of their condition and fail to implement requisite self-care in a timely fashion. Furthermore, the shortage of case-management manpower and difficulties in follow-up have led to high incidence rates for CKD worldwide. Integrative and continuous care is key to preventing CKD. How to implement this care effectively is a challenge...
April 2016: Hu Li za Zhi the Journal of Nursing
https://www.readbyqxmd.com/read/26926848/lower-verbal-intelligence-is-associated-with-diabetic-complications-and-slower-walking-speed-in-people-with-type-2-diabetes-the-maastricht-study
#11
P J J Spauwen, R J H Martens, C D A Stehouwer, F R J Verhey, M T Schram, S J S Sep, C J H van der Kallen, P C Dagnelie, R M A Henry, N C Schaper, M P J van Boxtel
AIMS: To determine the association of verbal intelligence, a core constituent of health literacy, with diabetic complications and walking speed in people with Type 2 diabetes. METHODS: This study was performed in 228 people with Type 2 diabetes participating in the Maastricht Study, a population-based cohort study. We examined the cross-sectional associations of score on the vocabulary test of the Groningen Intelligence Test with: 1) determinants of diabetic complications (HbA1c , blood pressure and lipid level); 2) diabetic complications: chronic kidney disease, neuropathic pain, self-reported history of cardiovascular disease and carotid intima-media thickness; and 3) walking speed...
December 2016: Diabetic Medicine: a Journal of the British Diabetic Association
https://www.readbyqxmd.com/read/26513027/a-cross-sectional-comparison-of-health-literacy-deficits-among-patients-with-chronic-kidney-disease
#12
Kelly Lambert, Judy Mullan, Kylie Mansfield, Maureen Lonergan
Inadequate health literacy in people with chronic kidney disease (CKD) is associated with poorer disease management and greater complications. There are limited data on the health literacy deficits of people with CKD. The aim of this study was to investigate the types and extent of health literacy deficits in patients with CKD using the multidimensional Health Literacy Management Scale (HeLMS) and to identify associations between patient characteristics and the domains of health literacy measured by the HeLMS...
2015: Journal of Health Communication
https://www.readbyqxmd.com/read/26494562/the-kidney-awareness-registry-and-education-kare-study-protocol-of-a-randomized-controlled-trial-to-enhance-provider-and-patient-engagement-with-chronic-kidney-disease
#13
RANDOMIZED CONTROLLED TRIAL
Delphine S Tuot, Alexandra Velasquez, Charles E McCulloch, Tanushree Banerjee, Yunnuo Zhu, Chi-yuan Hsu, Margaret Handley, Dean Schillinger, Neil R Powe
BACKGROUND: Chronic kidney disease (CKD) is common and is associated with excess mortality and morbidity. Better management could slow progression of disease, prevent metabolic complications, and reduce cardiovascular outcomes. Low patient awareness of CKD and ineffective patient-provider communication can impede such efforts. We developed provider and patient-directed interventions that harness health information technology to enhance provider recognition of CKD and delivery of guideline concordant care and augment patient understanding and engagement in CKD care...
October 22, 2015: BMC Nephrology
https://www.readbyqxmd.com/read/26346314/patient-and-caregiver-values-beliefs-and-experiences-when-considering-home-dialysis-as-a-treatment-option-a-semi-structured-interview-study
#14
Rachael C Walker, Kirsten Howard, Rachael L Morton, Suetonia C Palmer, Mark R Marshall, Allison Tong
BACKGROUND: Home dialysis can offer improved quality of life and economic benefits compared with facility dialysis. Yet the uptake of home dialysis remains low around the world, which may be partly due to patients' lack of knowledge and barriers to shared and informed decision-making. We aimed to describe patient and caregiver values, beliefs and experiences when considering home dialysis, to inform strategies to align policy and practice with patients' needs. METHODS: Semi-structured interviews with adult patients with chronic kidney disease Stage 4-5D (on dialysis <1 year) and their caregivers, recruited from three nephrology centres in New Zealand...
January 2016: Nephrology, Dialysis, Transplantation
https://www.readbyqxmd.com/read/26290918/health-literacy-in-children-with-chronic-kidney-disease-and-their-caregivers
#15
Malinda Harrington
Poorly controlled co-morbidities associated with pediatric chronic kidney disease may be associated with low health literacy skills of caregivers. This article explores what is known about health literacy in the home management of patients with pediatric chronic kidney disease, and examines caregiver and child literacy as it relates to child health outcomes.
January 2015: Nephrology Nursing Journal: Journal of the American Nephrology Nurses' Association
https://www.readbyqxmd.com/read/26251719/performance-of-a-brief-survey-to-assess-health-literacy-in-patients-receiving-hemodialysis
#16
Kerri L Cavanaugh, Chandra Y Osborn, Francesca Tentori, Russell L Rothman, Talat Alp Ikizler, Kenneth A Wallston
BACKGROUND: Health literacy is associated with important outcomes among patients with kidney disease, but widely used measures of health literacy can be burdensome. In an effort to make a practical assessment available, we compared the performance of the three-item brief health literacy screen (BHLS) to other widely used measures of health literacy among patients with end-stage renal disease (ESRD). METHODS: Adult hemodialysis patients (n = 150) from four urban dialysis facilities participated in a cross-sectional study from 2009 to 2012...
August 2015: Clinical Kidney Journal
https://www.readbyqxmd.com/read/25880876/results-of-a-novel-screening-tool-measuring-dietary-sodium-knowledge-in-patients-with-chronic-kidney-disease
#17
Julie A Wright Nunes, Cheryl A M Anderson, Jane H Greene, Talat Alp Ikizler, Kerri L Cavanaugh
BACKGROUND: Reducing dietary sodium has potential to benefit patients with chronic kidney disease (CKD). Little research is available defining dietary sodium knowledge gaps in patients with pre-dialysis CKD. We designed a brief screening tool to rapidly identify patient knowledge gaps related to dietary sodium for patients with CKD not yet on dialysis. METHODS: A Short Sodium Knowledge Survey (SSKS) was developed and administered to patients with pre-dialysis CKD...
2015: BMC Nephrology
https://www.readbyqxmd.com/read/25878195/validation-of-a-short-3-item-version-of-the-subjective-numeracy-scale
#18
Candace D McNaughton, Kerri L Cavanaugh, Sunil Kripalani, Russell L Rothman, Kenneth A Wallston
BACKGROUND AND OBJECTIVE: Efficiency in scale design reduces respondent burden. A brief but reliable measure of numeracy may provide a useful research tool eligible for integration into large epidemiological studies or clinical trials. Our goal was to validate a 3-item version of the Subjective Numeracy Scale (SNS-3). DESIGN AND SETTING: We examined 7 separate cross-sectional data sets: patients in the emergency department (n = 208), clinic (n = 205), and hospital (n = 460; n = 2053) and patients with chronic kidney disease (n = 147), with diabetes (n = 318), and on hemodialysis (n = 143)...
November 2015: Medical Decision Making: An International Journal of the Society for Medical Decision Making
https://www.readbyqxmd.com/read/25758805/applying-best-practices-to-designing-patient-education-for-patients-with-end-stage-renal-disease-pursuing-kidney-transplant
#19
REVIEW
Stacy L Skelton, Amy D Waterman, LaShara A Davis, John D Peipert, Anne F Fish
Despite the known benefits of kidney transplant, less than 30% of the 615 000 patients living with end-stage renal disease (ESRD) in the United States have received a transplant. More than 100 000 people are presently on the transplant waiting list. Although the shortage of kidneys for transplant remains a critical factor in explaining lower transplant rates, another important and modifiable factor is patients' lack of comprehensive education about transplant. The purpose of this article is to provide an overview of known best practices from the broader literature that can be used as an evidence base to design improved education for ESRD patients pursuing a kidney transplant...
March 2015: Progress in Transplantation
https://www.readbyqxmd.com/read/25662749/self-management-and-transition-among-adolescents-young-adults-with-chronic-or-end-stage-kidney-disease
#20
Maria E Ferris, Jessica R Cuttance, Karina Javalkar, Sarah E Cohen, Alexandra Phillips, Kristi Bickford, Keisha Gibson, M Ted Ferris, Karin True
BACKGROUND: Adolescents/young adults (AYA) with chronic kidney disease (CKD) or end-stage kidney disease (ESKD) are at risk for poor health outcomes related to self-management. To improve their health and quality of life, AYA must build self-management (for those in the pediatric- and adult-focused setting) and/or health care transition (HCT) skills (for those in the pediatric setting). METHODS: Self-management and/or HCT encompass a variety of domains that must be tailored to each individual...
2015: Blood Purification
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