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Health literacy AND chronic kidney disease

Meghan J Elliott, Sharon E Straus, Neesh Pannu, Sofia B Ahmed, Andreas Laupacis, George C Chong, David R Hillier, Kate T Huffman, Andrew C Lei, Berlene V Villanueva, Donna M Young, Helen Tam-Tham, Maoliosa Donald, Erin Lillie, Braden J Manns, Brenda R Hemmelgarn
BACKGROUND: Few studies have evaluated stakeholder engagement in chronic kidney disease (CKD) research prioritization. In this two-arm, parallel group randomized controlled trial, we sought to compare an in-person nominal group technique (NGT) approach with an online wiki-inspired alternative to determining the top 10 CKD research priorities, and to evaluate stakeholder engagement and satisfaction with each process. METHODS: Eligible participants included adults ≥18 years with access to a computer and Internet, high health literacy, and from one of the following stakeholder groups: patients with CKD not on dialysis, their caregivers, health care providers who care for patients with CKD, or CKD-related health policymakers...
2016: BMC Medical Informatics and Decision Making
Nikita Patel, Maria Ferris, Eniko Rak
INTRODUCTION: Adherence to treatment and dietary restrictions is important for health outcomes of patients with chronic/end-stage kidney disease and hypertension. The relationship of adherence with nutritional and health literacy in children, adolescents, and young adults is not well understood. The current study examined the relationship of health literacy, nutrition knowledge, nutrition knowledge-behavior concordance, and medication adherence in a sample of children and young people with chronic/end-stage kidney disease and hypertension...
2016: Preventing Chronic Disease
Delphine S Tuot, Yunnuo Zhu, Alexandra Velasquez, Juan Espinoza, C Damaris Mendez, Tanushree Banerjee, Chi-Yuan Hsu, Neil R Powe
BACKGROUND AND OBJECTIVES: Awareness of CKD is necessary for patient engagement and adherence to medical regimens. Having an accurate tool to assess awareness is important. Use of the National Health and Nutrition Examination Survey (NHANES) CKD awareness question "Have you ever been told by a doctor or other health professional that you had weak or failing kidneys (excluding kidney stones, bladder infections, or incontinence)?" produces surprisingly low measures of CKD awareness. We sought to compare the sensitivity and specificity of different questions ascertaining awareness of CKD and other health conditions...
September 7, 2016: Clinical Journal of the American Society of Nephrology: CJASN
Eniko C Rak, Stephen R Hooper, Michael J Belsante, Otis Burnett, Bradley Layton, David Tauer, Bradley Mantoo, Darren DeWalt, Maria E Ferris
BACKGROUND: Caregivers play a major role in the healthcare of pediatric patients, particularly during childhood and adolescence. This study examined the impact of caregivers' functional literacy on the health outcomes of adolescents with chronic kidney disease (CKD) or end-stage kidney disease (ESKD). METHODS: Caregiver-child dyads in a Southeastern US pediatric nephrology clinic participated in this cross-sectional study. We collected demographic information, data on caregivers' functional literacy skills (Wechsler Individual Achievement Test Word Reading Subtest) and child health outcomes (healthcare utilization and adherence)...
June 2016: Clinical Kidney Journal
Yu-Chi Chen, Polun Chang
Kidney disease is a common complication of chronic diseases among adult and elderly populations. As early-stage chronic kidney disease (CKD) is asymptomatic, CKD patients are frequently unaware of their condition and fail to implement requisite self-care in a timely fashion. Furthermore, the shortage of case-management manpower and difficulties in follow-up have led to high incidence rates for CKD worldwide. Integrative and continuous care is key to preventing CKD. How to implement this care effectively is a challenge...
April 2016: Hu Li za Zhi the Journal of Nursing
P J J Spauwen, R J H Martens, C D A Stehouwer, F R J Verhey, M T Schram, S J S Sep, C J H van der Kallen, P C Dagnelie, R M A Henry, N C Schaper, M P J van Boxtel
AIMS: To determine the association of verbal intelligence, a core constituent of health literacy, with diabetic complications and walking speed in people with Type 2 diabetes. METHODS: This study was performed in 228 people with Type 2 diabetes participating in the Maastricht Study, a population-based cohort study. We examined the cross-sectional associations of score on the vocabulary test of the Groningen Intelligence Test with: 1) determinants of diabetic complications (HbA1c , blood pressure and lipid level); 2) diabetic complications: chronic kidney disease, neuropathic pain, self-reported history of cardiovascular disease and carotid intima-media thickness; and 3) walking speed...
March 1, 2016: Diabetic Medicine: a Journal of the British Diabetic Association
Kelly Lambert, Judy Mullan, Kylie Mansfield, Maureen Lonergan
Inadequate health literacy in people with chronic kidney disease (CKD) is associated with poorer disease management and greater complications. There are limited data on the health literacy deficits of people with CKD. The aim of this study was to investigate the types and extent of health literacy deficits in patients with CKD using the multidimensional Health Literacy Management Scale (HeLMS) and to identify associations between patient characteristics and the domains of health literacy measured by the HeLMS...
2015: Journal of Health Communication
Delphine S Tuot, Alexandra Velasquez, Charles E McCulloch, Tanushree Banerjee, Yunnuo Zhu, Chi-yuan Hsu, Margaret Handley, Dean Schillinger, Neil R Powe
BACKGROUND: Chronic kidney disease (CKD) is common and is associated with excess mortality and morbidity. Better management could slow progression of disease, prevent metabolic complications, and reduce cardiovascular outcomes. Low patient awareness of CKD and ineffective patient-provider communication can impede such efforts. We developed provider and patient-directed interventions that harness health information technology to enhance provider recognition of CKD and delivery of guideline concordant care and augment patient understanding and engagement in CKD care...
2015: BMC Nephrology
Rachael C Walker, Kirsten Howard, Rachael L Morton, Suetonia C Palmer, Mark R Marshall, Allison Tong
BACKGROUND: Home dialysis can offer improved quality of life and economic benefits compared with facility dialysis. Yet the uptake of home dialysis remains low around the world, which may be partly due to patients' lack of knowledge and barriers to shared and informed decision-making. We aimed to describe patient and caregiver values, beliefs and experiences when considering home dialysis, to inform strategies to align policy and practice with patients' needs. METHODS: Semi-structured interviews with adult patients with chronic kidney disease Stage 4-5D (on dialysis <1 year) and their caregivers, recruited from three nephrology centres in New Zealand...
January 2016: Nephrology, Dialysis, Transplantation
Malinda Harrington
Poorly controlled co-morbidities associated with pediatric chronic kidney disease may be associated with low health literacy skills of caregivers. This article explores what is known about health literacy in the home management of patients with pediatric chronic kidney disease, and examines caregiver and child literacy as it relates to child health outcomes.
January 2015: Nephrology Nursing Journal: Journal of the American Nephrology Nurses' Association
Kerri L Cavanaugh, Chandra Y Osborn, Francesca Tentori, Russell L Rothman, Talat Alp Ikizler, Kenneth A Wallston
BACKGROUND: Health literacy is associated with important outcomes among patients with kidney disease, but widely used measures of health literacy can be burdensome. In an effort to make a practical assessment available, we compared the performance of the three-item brief health literacy screen (BHLS) to other widely used measures of health literacy among patients with end-stage renal disease (ESRD). METHODS: Adult hemodialysis patients (n = 150) from four urban dialysis facilities participated in a cross-sectional study from 2009 to 2012...
August 2015: Clinical Kidney Journal
Julie A Wright Nunes, Cheryl A M Anderson, Jane H Greene, Talat Alp Ikizler, Kerri L Cavanaugh
BACKGROUND: Reducing dietary sodium has potential to benefit patients with chronic kidney disease (CKD). Little research is available defining dietary sodium knowledge gaps in patients with pre-dialysis CKD. We designed a brief screening tool to rapidly identify patient knowledge gaps related to dietary sodium for patients with CKD not yet on dialysis. METHODS: A Short Sodium Knowledge Survey (SSKS) was developed and administered to patients with pre-dialysis CKD...
2015: BMC Nephrology
Candace D McNaughton, Kerri L Cavanaugh, Sunil Kripalani, Russell L Rothman, Kenneth A Wallston
BACKGROUND AND OBJECTIVE: Efficiency in scale design reduces respondent burden. A brief but reliable measure of numeracy may provide a useful research tool eligible for integration into large epidemiological studies or clinical trials. Our goal was to validate a 3-item version of the Subjective Numeracy Scale (SNS-3). DESIGN AND SETTING: We examined 7 separate cross-sectional data sets: patients in the emergency department (n = 208), clinic (n = 205), and hospital (n = 460; n = 2053) and patients with chronic kidney disease (n = 147), with diabetes (n = 318), and on hemodialysis (n = 143)...
November 2015: Medical Decision Making: An International Journal of the Society for Medical Decision Making
Stacy L Skelton, Amy D Waterman, LaShara A Davis, John D Peipert, Anne F Fish
Despite the known benefits of kidney transplant, less than 30% of the 615 000 patients living with end-stage renal disease (ESRD) in the United States have received a transplant. More than 100 000 people are presently on the transplant waiting list. Although the shortage of kidneys for transplant remains a critical factor in explaining lower transplant rates, another important and modifiable factor is patients' lack of comprehensive education about transplant. The purpose of this article is to provide an overview of known best practices from the broader literature that can be used as an evidence base to design improved education for ESRD patients pursuing a kidney transplant...
March 2015: Progress in Transplantation
Maria E Ferris, Jessica R Cuttance, Karina Javalkar, Sarah E Cohen, Alexandra Phillips, Kristi Bickford, Keisha Gibson, M Ted Ferris, Karin True
BACKGROUND: Adolescents/young adults (AYA) with chronic kidney disease (CKD) or end-stage kidney disease (ESKD) are at risk for poor health outcomes related to self-management. To improve their health and quality of life, AYA must build self-management (for those in the pediatric- and adult-focused setting) and/or health care transition (HCT) skills (for those in the pediatric setting). METHODS: Self-management and/or HCT encompass a variety of domains that must be tailored to each individual...
2015: Blood Purification
Radhika Devraj, Matthew Borrego, A Mary Vilay, Elisa J Gordon, Junvie Pailden, Bruce Horowitz
AIM: Low health literacy (HL) may contribute to poor self-management of chronic kidney disease (CKD) and poor kidney function. This study aimed to assess the relationship between HL and estimated glomerular filtration rate (eGFR). METHODS: A cross-sectional observational study was conducted among consecutive eligible adult patients with CKD stages 1-4 attending an outpatient nephrology clinic. HL was assessed using Newest Vital Sign (NVS). eGFR was estimated using the Modification of Diet in Renal Disease equation...
May 2015: Nephrology
Delphine S Tuot, Vanessa Grubbs
The US Health Care System provides a patchwork of services, known as the safety net, for the uninsured, underinsured, and indigent populations who would otherwise have little access to health care services. Individuals who rely on safety-net facilities are from racial/ethnic minority groups, have low socioeconomic status, and often have low health literacy and/or limited English proficiency. They shoulder a disproportionate burden of CKD in the United States and experience excess CKD-associated morbidity and mortality...
January 2015: Advances in Chronic Kidney Disease
M T Burke, J Kapojos, C Sammartino, N A Gray
BACKGROUND: Knowledge about kidney disease among the general population is poor but has not been assessed in the population selected for referral to nephrology care. AIM: This study aimed to determine patients' understanding of chronic kidney disease (CKD) when first presenting to a nephrology clinic. METHODS: Newly referred patients to a nephrology clinic were surveyed with open-ended questions about their understanding of CKD causes, symptoms and management...
November 2014: Internal Medicine Journal
Delphine S Tuot, Clarissa Jonas Diamantidis, Cynthia F Corbett, L Ebony Boulware, Chester H Fox, Donna H Harwood, Robert A Star, Krystyna E Rys-Sikora, Andrew Narva
The National Institute of Diabetes and Digestive and Kidney Diseases-supported Kidney Research National Dialogue asked the scientific community to formulate and prioritize research objectives that would enhance understanding of kidney function and disease and improve clinical outcomes. An engaged and growing group of investigators working in type 2 translation (from clinical evidence to implementation in the community) identified barriers to improving patient care in CKD and suggested research priorities to test translational strategies that have been effective for other chronic diseases...
October 7, 2014: Clinical Journal of the American Society of Nephrology: CJASN
Andrew P Gador-Whyte, John Wakerman, David Campbell, Sue Lenthall, Janet Struber, Alex Hope, Colin Watson
OBJECTIVE: To estimate the cost of completing all chronic care tasks recommended by the Central Australian Rural Practitioners Association Standard Treatment Manual (CARPA STM) for patients with type 2 diabetes and chronic kidney disease (CKD). DESIGN AND SETTING: The study was conducted at a health service in a remote Central Australian Aboriginal community between July 2010 and May 2011. The chronic care tasks required were ascertained from the CARPA STM. The clinic database was reviewed for data on disease prevalence and adherence to CARPA STM guidelines...
June 16, 2014: Medical Journal of Australia
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