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longitudinal study data quality control

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https://www.readbyqxmd.com/read/29768372/technologies-for-participatory-medicine-and-health-promotion-in-the-elderly-population
#1
Laura Nieto-Riveiro, Betania Groba, M Carmen Miranda, Patricia Concheiro, Alejandro Pazos, Thais Pousada, Javier Pereira
INTRODUCTION: The progressive aging of the population is a socio-demographic phenomenon experienced by most countries in the world in recent decades, especially in Japan and in many European Union countries. During this process, so-called "geriatric syndromes" frequently occur. The focus of this study is the quality of life of the elderly in relation to these 3 factors: risk of falls, urinary incontinence, and insomnia. OBJECTIVE: The main purpose is to determine the impact of a multifactorial intervention program implemented with institutionalized elderly people...
May 2018: Medicine (Baltimore)
https://www.readbyqxmd.com/read/29765616/quantifying-the-burden-of-steroid-related-damage-in-sle-in-the-hopkins-lupus-cohort
#2
Julie E Davidson, Qinggong Fu, Sapna Rao, Laurence S Magder, Michelle Petri
Objective: Corticosteroids are a mainstay of SLE treatment; however, cumulative steroid exposure may lead to organ damage. This study aimed to quantify the risk of new diabetes, hypertension, cataracts, osteoporosis and avascular necrosis that is attributable to cumulative corticosteroid exposure in SLE. Methods: Using data from the Hopkins Lupus Cohort, a longitudinal study of lupus activity, organ damage and quality of life in patients with SLE, five matched case-control analyses nested within a prospectively enrolled SLE cohort were performed...
2018: Lupus Science & Medicine
https://www.readbyqxmd.com/read/29751372/self-efficacy-beliefs-faecal-incontinence-and-health-related-quality-of-life-in-patients-born-with-anorectal-malformations
#3
Caterina Grano, Mariana Fernandes, Silvia Bucci, Dalia Aminoff, Fabio Lucidi, Cristiano Violani
AIM: Anorectal malformations (ARM) are rare congenital colorectal anomalies with long lasting consequences, among which faecal incontinence is one of the most relevant since it may strongly affects patients' health-related quality of life (HRQoL). Although a growing body of literature supports the importance of self-efficacy in chronic disease health outcomes, only few studies have focused on self-efficacy in anorectal malformations and in faecal incontinence. The purpose of the present study is to examine the mediational role of self-efficacy in the path between faecal incontinence and health-related quality of life in patients born with in anorectal malformations...
May 11, 2018: Colorectal Disease: the Official Journal of the Association of Coloproctology of Great Britain and Ireland
https://www.readbyqxmd.com/read/29735751/job-strain-and-loss-of-healthy-life-years-between-ages-50-and-75-by-sex-and-occupational-position-analyses-of-64-934-individuals-from-four-prospective-cohort-studies
#4
Linda L Magnusson Hanson, Hugo Westerlund, Holendro S Chungkham, Jussi Vahtera, Naja H Rod, Kristina Alexanderson, Marcel Goldberg, Mika Kivimäki, Sari Stenholm, Loretta G Platts, Marie Zins, Jenny Head
OBJECTIVES: Poor psychosocial working conditions increase the likelihood of various types of morbidity and may substantially limit quality of life and possibilities to remain in paid work. To date, however, no studies to our knowledge have quantified the extent to which poor psychosocial working conditions reduce healthy or chronic disease-free life expectancy, which was the focus of this study. METHODS: Data were derived from four cohorts with repeat data: the Finnish Public Sector Study (Finland), GAZEL (France), the Swedish Longitudinal Occupational Survey of Health (Sweden) and Whitehall II (UK)...
May 7, 2018: Occupational and Environmental Medicine
https://www.readbyqxmd.com/read/29706755/racial-differences-in-data-quality-and-completeness-spinal-cord-injury-model-systems-experiences
#5
Yuying Chen, Hui-Yi Lin, Tung-Sung Tseng, Huacong Wen, Michael J DeVivo
Background: Among people with spinal cord injury (SCI), minorities experience a disproportionately higher burden of diseases. Knowledge of data quality by race/ethnicity will help better design racial health disparity research and understand potential errors/biases. Objective: To investigate racial/ethnic differences in response completeness in a longitudinal SCI database. Methods: This study included 7,507 participants (5,483 non-Hispanic whites, 1,414 non-Hispanic blacks, and 610 Hispanics) enrolled in the National SCI Database who returned for follow-up between 2001 and 2006 and were aged ≥18 years at follow-up...
2018: Topics in Spinal Cord Injury Rehabilitation
https://www.readbyqxmd.com/read/29691246/effectiveness-of-implementing-a-best-practice-primary-healthcare-model-for-low-back-pain-betterback-compared-with-current-routine-care-in-the-swedish-context-an-internal-pilot-study-informed-protocol-for-an-effectiveness-implementation-hybrid-type-2-trial
#6
Allan Abbott, Karin Schröder, Paul Enthoven, Per Nilsen, Birgitta Öberg
INTRODUCTION: Low back pain (LBP) is a major health problem commonly requiring healthcare. In Sweden, there is a call from healthcare practitioners (HCPs) for the development, implementation and evaluation of a best practice primary healthcare model for LBP. AIMS: (1) To improve and understand the mechanisms underlying changes in HCP confidence, attitudes and beliefs for providing best practice coherent primary healthcare for patients with LBP; (2) to improve and understand the mechanisms underlying illness beliefs, self-care enablement, pain, disability and quality of life in patients with LBP; and (3) to evaluate a multifaceted and sustained implementation strategy and the cost-effectiveness of the BetterBack☺ model of care (MOC) for LBP from the perspective of the Swedish primary healthcare context...
April 24, 2018: BMJ Open
https://www.readbyqxmd.com/read/29682908/tracking-disease-progression-non-invasively-in-duchenne-and-becker-muscular-dystrophies
#7
Pietro Spitali, Kristina Hettne, Roula Tsonaka, Mohammed Charrout, Janneke van den Bergen, Zaïda Koeks, Hermien E Kan, Melissa T Hooijmans, Andreas Roos, Volker Straub, Francesco Muntoni, Cristina Al-Khalili-Szigyarto, Marleen J A Koel-Simmelink, Charlotte E Teunissen, Hanns Lochmüller, Erik H Niks, Annemieke Aartsma-Rus
BACKGROUND: Analysis of muscle biopsies allowed to characterize the pathophysiological changes of Duchenne and Becker muscular dystrophies (D/BMD) leading to the clinical phenotype. Muscle tissue is often investigated during interventional dose finding studies to show in situ proof of concept and pharmacodynamics effect of the tested drug. Less invasive readouts are needed to objectively monitor patients' health status, muscle quality, and response to treatment. The identification of serum biomarkers correlating with clinical function and able to anticipate functional scales is particularly needed for personalized patient management and to support drug development programs...
April 16, 2018: Journal of Cachexia, Sarcopenia and Muscle
https://www.readbyqxmd.com/read/29680102/what-impact-does-venous-thromboembolism-and-bleeding-have-on-cancer-patients-quality-of-life
#8
Andrew J Lloyd, Sarah Dewilde, Simon Noble, Elisabeth Reimer, Agnes Y Y Lee
BACKGROUND: Venous thromboembolism (VTE) is common in cancer patients and its treatment is associated with a high risk of recurrent VTE (rVTE) and bleeding. OBJECTIVES: To analyze data from the Comparison of Acute Treatments in Cancer Hemostasis (CATCH) trial to describe the impact of rVTE and bleeding events on health-related quality of life. METHODS: The three-level EuroQol five-dimensional questionnaire (EQ-5D) data were collected monthly for up to 7 months in patients starting anticoagulation for newly diagnosed VTE...
April 2018: Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research
https://www.readbyqxmd.com/read/29674602/neuropsychological-performance-in-alcohol-dependent-patients-a-one-year-longitudinal-study
#9
Lucia Ioime, Riccardo Guglielmo, Giuseppe Fertonani Affini, Marianna Quatrale, Giovanni Martinotti, Antonino Callea, Evelina Savi, Luigi Janiri
Objective: Despite several studies that have highlighted the harmful effects of alcohol consumption on cognitive functions it remains unclear whether certain brain areas are more sensitive than others are or whether alcohol causes widespread cognitive deficit. Moreover, the role of continued abstinence has yet to be clarified regarding the quality of recovery on the different cognitive domains. The aim of this 1-year longitudinal study was to evaluate the recovery of cognitive deficits in the medium (6 months) and long term (12 months) after the interruption of drinking...
April 20, 2018: Psychiatry Investigation
https://www.readbyqxmd.com/read/29628376/childhood-predictors-of-lung-function-trajectories-and-future-copd-risk-a-prospective-cohort-study-from-the-first-to-the-sixth-decade-of-life
#10
Dinh S Bui, Caroline J Lodge, John A Burgess, Adrian J Lowe, Jennifer Perret, Minh Q Bui, Gayan Bowatte, Lyle Gurrin, David P Johns, Bruce R Thompson, Garun S Hamilton, Peter A Frith, Alan L James, Paul S Thomas, Deborah Jarvis, Cecilie Svanes, Melissa Russell, Stephen C Morrison, Iain Feather, Katrina J Allen, Richard Wood-Baker, John Hopper, Graham G Giles, Michael J Abramson, Eugene H Walters, Melanie C Matheson, Shyamali C Dharmage
BACKGROUND: Lifetime lung function is related to quality of life and longevity. Over the lifespan, individuals follow different lung function trajectories. Identification of these trajectories, their determinants, and outcomes is important, but no study has done this beyond the fourth decade. METHODS: We used six waves of the Tasmanian Longitudinal Health Study (TAHS) to model lung function trajectories measured at 7, 13, 18, 45, 50, and 53 years. We analysed pre-bronchodilator FEV1 z-scores at the six timepoints using group-based trajectory modelling to identify distinct subgroups of individuals whose measurements followed a similar pattern over time...
April 5, 2018: Lancet Respiratory Medicine
https://www.readbyqxmd.com/read/29622012/if-you-can-t-measure-it-you-can-t-change-it-a-longitudinal-study-on-improving-quality-of-care-in-hospitals-and-health-centers-in-rural-kenya
#11
Michael Marx, Christine Nitschke, Maureen Nafula, Mabel Nangami, Marc Brodowski, Irmgard Marx, Helen Prytherch, Charles Kandie, Irene Omogi, Friederike Paul-Fariborz, Joachim Szecsenyi
BACKGROUND: The Kenyan Ministry of Health- Department of Standards and Regulations sought to operationalize the Kenya Quality Assurance Model for Health. To this end an integrated quality management system based on validated indicators derived from the Kenya Quality Model for Health (KQMH) was developed and adapted to the area of Reproductive and Maternal and Neonatal Health, implemented and analysed. METHODS: An integrated quality management (QM) approach was developed based on European Practice Assessment (EPA) modified to the Kenyan context...
April 5, 2018: BMC Health Services Research
https://www.readbyqxmd.com/read/29621346/accuracy-of-rapid-diagnosis-of-talaromyces-marneffei-a-systematic-review-and-meta-analysis
#12
Chuanyi Ning, Jingzhen Lai, Wudi Wei, Bo Zhou, Jiegang Huang, Junjun Jiang, Bingyu Liang, Yanyan Liao, Ning Zang, Cunwei Cao, Hui Chen, Li Ye, Hao Liang
BACKGROUND: To examine the accuracy of Rapid Diagnosis of Talaromyces marneffei (RDTM) in order to improve diagnosis and treatment for clinical measures and reduce the mortality due to associated infections. METHODS: In this systematic review and meta-analysis, we screened PubMed, Ovid (Cochrane library) and Web of Science, Chinese database CNKI and Wanfang for articles published between 1956 and December, 2017. Data were taken from cross-sectional studies as well as from baseline measurements in longitudinal studies with clinical follow-up...
2018: PloS One
https://www.readbyqxmd.com/read/29619135/satisfaction-of-patients-receiving-value-added-services-compared-to-traditional-counter-service-for-prescription-refills-in-malaysia
#13
Boon-Tiang Lau, Abdul-Rani Nurul-Nadiah-Auni, Siew-Yen Ng, Nie Shuen-Wong
Background: Patients' satisfaction is the key parameter to measure the quality of healthcare services. Value added-services (VAS) were introduced to improve the quality of medication deliveries and to reduce the waiting time at outpatient pharmacy. Objective: This study aimed to compare the satisfaction levels of patients receiving VAS and traditional counter service (TCS) for prescription refills in Port Dickson Hospital. Methods: A single-center, cross-sectional study was conducted in the outpatient pharmacy department of Port Dickson Hospital from 1 March to 30 June 2017...
January 2018: Pharmacy Practice
https://www.readbyqxmd.com/read/29618360/physical-activity-and-sedentary-behavior-in-preschoolers-a-longitudinal-assessment-of-trajectories-and-determinants
#14
Einat A Schmutz, Sarah R Haile, Claudia S Leeger-Aschmann, Tanja H Kakebeeke, Annina E Zysset, Nadine Messerli-Bürgy, Kerstin Stülb, Amar Arhab, Andrea H Meyer, Simone Munsch, Jardena J Puder, Oskar G Jenni, Susi Kriemler
BACKGROUND: Despite physical activity (PA) being recognized as a critically important factor for good physical and mental health already early in life and throughout the life course, prospective data on activity behavior during the preschool years remains scarce. This study examined trajectories and determinants of levels and change in total PA (TPA), moderate-to-vigorous PA (MVPA) and sedentary behavior (SB) in a representative sample of Swiss preschoolers. METHODS: Data were drawn from the Swiss Preschoolers' Health Study (SPLASHY), a multi-site prospective cohort study including 555 children (53% boys) aged 2-to-6 years at baseline...
April 4, 2018: International Journal of Behavioral Nutrition and Physical Activity
https://www.readbyqxmd.com/read/29617523/effects-of-sacubitril-valsartan-on-physical-and-social-activity-limitations-in-patients-with-heart-failure-a-secondary-analysis-of-the-paradigm-hf-trial
#15
Alvin Chandra, Eldrin F Lewis, Brian L Claggett, Akshay S Desai, Milton Packer, Michael R Zile, Karl Swedberg, Jean L Rouleau, Victor C Shi, Martin P Lefkowitz, Tzvetana Katova, John J V McMurray, Scott D Solomon
Importance: Health-related quality of life (HRQL) of patients with heart failure is markedly reduced compared with that in patients with other chronic diseases, demonstrating substantial limitations in physical and social activities. In the Prospective Comparison of ARNI With an ACE-Inhibitor to Determine Impact on Global Mortality and Morbidity in Heart Failure (PARADIGM-HF) trial, sacubitril/valsartan improved overall HRQL compared with enalapril, as determined by the Kansas City Cardiomyopathy Questionnaire (KCCQ)...
April 4, 2018: JAMA Cardiology
https://www.readbyqxmd.com/read/29615136/promoting-psychosocial-well-being-following-stroke-study-protocol-for-a-randomized-controlled-trial
#16
Marit Kirkevold, Line Kildal Bragstad, Berit A Bronken, Kari Kvigne, Randi Martinsen, Ellen Gabrielsen Hjelle, Gabriele Kitzmüller, Margrete Mangset, Sanne Angel, Lena Aadal, Siren Eriksen, Torgeir B Wyller, Unni Sveen
BACKGROUND: Stroke is a major public health threat globally. Psychosocial well-being may be affected following stroke. Depressive symptoms, anxiety, general psychological distress and social isolation are prevalent. Approximately one third report depressive symptoms and 20% report anxiety during the first months or years after the stroke. Psychosocial difficulties may impact significantly on long-term functioning and quality of life, reduce the effects of rehabilitation services and lead to higher mortality rates...
April 3, 2018: BMC Psychology
https://www.readbyqxmd.com/read/29603553/health-related-quality-of-life-in-active-surveillance-and-radical-prostatectomy-for-low-risk-prostate-cancer-a-prospective-observational-study-harow
#17
Lena Ansmann, Nicola Winter, Nicole Ernstmann, Axel Heidenreich, Lothar Weissbach, Jan Herden
OBJECTIVES: To compare Health-related Quality of Life (HRQOL) between patients with localized Prostate Cancer (PCa) in the active surveillance (AS) group and the radical prostatectomy (RP) group, since evidence shows that both groups have similar oncological outcomes. Thus, comparative findings on the patients' HRQOL are becoming even more important to allow for informed treatment decision-making. PATIENTS AND METHODS: HAROW (Hormonal therapy, Active Surveillance, Radiation, Operation, Watchful Waiting) is a prospective, observational study designed to collect data for different treatment options for newly diagnosed patients with localised prostate cancer under real-life conditions...
March 30, 2018: BJU International
https://www.readbyqxmd.com/read/29595592/has-voluntary-public-health-accreditation-impacted-health-department-perceptions-and-activities-in-quality-improvement-and-performance-management
#18
Leslie M Beitsch, Jessica Kronstadt, Nathalie Robin, Carolyn Leep
CONTEXT: The Public Health Accreditation Board (PHAB) is now in its 10th year, making it an ideal time to study the impact of PHAB accreditation on local health departments (LHDs). OBJECTIVE: To examine whether applying for PHAB accreditation affects perceptions and activities regarding quality improvement (QI) and performance management (PM) within LHDs. DESIGN: Data from the National Association of County & City Health Officials' 2010, 2013, and 2016 National Profile of Local Health Departments and associated QI modules were linked to PHAB-applicant data collected in e-PHAB in a cross-sectional and longitudinal approach examining self-reported QI/PM activities...
May 2018: Journal of Public Health Management and Practice: JPHMP
https://www.readbyqxmd.com/read/29582403/medications-and-prescribing-patterns-as-factors-associated-with-hospitalizations-from-long-term-care-facilities-a-systematic-review
#19
REVIEW
Kate N Wang, J Simon Bell, Esa Y H Chen, Julia F M Gilmartin-Thomas, Jenni Ilomäki
BACKGROUND: Residents of long-term care facilities (LTCFs) are at high risk of hospitalization. Medications are a potentially modifiable risk factor for hospitalizations. OBJECTIVE: Our objective was to systematically review the association between medications or prescribing patterns and hospitalizations from LTCFs. METHODS: We searched MEDLINE, Embase, Cumulative Index to Nursing and Allied Health Literature (CINAHL) and International Pharmaceutical Abstracts (IPA) from inception to August 2017 for longitudinal studies reporting associations between medications or prescribing patterns and hospitalizations...
March 26, 2018: Drugs & Aging
https://www.readbyqxmd.com/read/29580886/physical-activity-and-sarcopenia-in-the-geriatric-population-a-systematic-review
#20
Szu-Ying Lee, Heng-Hsin Tung, Chieh-Yu Liu, Liang-Kung Chen
INTRODUCTION: Sarcopenia is an aging-related health problem in the geriatric population. Sarcopenia reduces muscle mass, muscle strength, and physical performance. Although physical activity is protective against sarcopenia for older adults, there are limited studies in this area. The purpose of this study was to integrate and analyze research on physical activity and sarcopenia in the geriatric population. METHODS: Studies that assess sarcopenia were searched across electronic databases that included Medline, PubMed, CINAHL, and Cochrane Database of Systematic Reviews...
May 2018: Journal of the American Medical Directors Association
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