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longitudinal study data quality control

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https://www.readbyqxmd.com/read/28920886/retinal-layer-segmentation-in-multiple-sclerosis-a-systematic-review-and-meta-analysis
#1
Axel Petzold, Laura J Balcer, Peter A Calabresi, Fiona Costello, Teresa C Frohman, Elliot M Frohman, Elena H Martinez-Lapiscina, Ari J Green, Randy Kardon, Olivier Outteryck, Friedemann Paul, Sven Schippling, Patrik Vermersch, Pablo Villoslada, Lisanne J Balk
BACKGROUND: Structural retinal imaging biomarkers are important for early recognition and monitoring of inflammation and neurodegeneration in multiple sclerosis. With the introduction of spectral domain optical coherence tomography (SD-OCT), supervised automated segmentation of individual retinal layers is possible. We aimed to investigate which retinal layers show atrophy associated with neurodegeneration in multiple sclerosis when measured with SD-OCT. METHODS: In this systematic review and meta-analysis, we searched for studies in which SD-OCT was used to look at the retina in people with multiple sclerosis with or without optic neuritis in PubMed, Web of Science, and Google Scholar between Nov 22, 1991, and April 19, 2016...
October 2017: Lancet Neurology
https://www.readbyqxmd.com/read/28916897/improvement-of-quality-of-life-and-psychological-distress-after-inpatient-cancer-rehabilitation-results-of-a%C3%A2-longitudinal-observational-study
#2
David Riedl, Johannes M Giesinger, Lisa M Wintner, Fanny L Loth, Gerhard Rumpold, Richard Greil, Alain Nickels, Thomas Licht, Bernhard Holzner
BACKGROUND: With the growing number of cancer survivors worldwide the need for high quality cancer rehabilitation after primary treatment is steadily increasing. The aim of the present study was to investigate change of psychological distress and health-related quality of life (HRQOL) during multidisciplinary inpatient cancer rehabilitation in a large sample of cancer survivors suffering from different cancer entities. METHODS: We analyzed data from routine HRQOL and distress monitoring at a cancer inpatient rehabilitation center...
September 15, 2017: Wiener Klinische Wochenschrift
https://www.readbyqxmd.com/read/28903804/beyond-the-dinner-table-who-s-having-breakfast-lunch-and-dinner-family-meals-and-which-meals-are-associated-with-better-diet-quality-and-bmi-in-pre-school-children
#3
Jerica M Berge, Kimberly P Truesdale, Nancy E Sherwood, Nathan Mitchell, William J Heerman, Shari Barkin, Donna Matheson, Carolyn E Levers-Landis, Simone A French
OBJECTIVE: Having frequent family dinners is associated with better diet quality in children; however, it is unknown whether the frequency of certain family meal types (i.e. dinner) is more strongly associated with better child weight and diet quality compared with other meal types (i.e. breakfast, lunch). Thus, the current study examined the frequency of eating breakfast, lunch or dinner family meals and associations with pre-school children's overall diet quality (HEI-2010) and BMI percentile...
September 14, 2017: Public Health Nutrition
https://www.readbyqxmd.com/read/28888358/prediction-of-self-stigma-in-early-psychosis-3-year-follow-up-of-the-randomized-controlled-trial-on-extended-early-intervention
#4
Ryan Wui Hang Ho, Wing Chung Chang, Vivian Wing Yan Kwong, Emily Sin Kei Lau, Gloria Hoi Kei Chan, Olivia Tsz Ting Jim, Christy Lai Ming Hui, Sherry Kit Wa Chan, Edwin Ho Ming Lee, Eric Yu Hai Chen
BACKGROUND: Self-stigma represents a major barrier to recovery in people with psychotic disorders but is understudied in early illness stage. Longitudinal investigation of prediction for self-stigma is scarce and none is conducted in early psychosis. We aimed to prospectively examine baseline predictors of self-stigma in early psychosis patients in the context of a 3-year follow-up of a randomized-controlled trial (RCT) comparing 1-year extension of early intervention (EI) with step-down psychiatric care for first-episode psychosis (FEP)...
September 6, 2017: Schizophrenia Research
https://www.readbyqxmd.com/read/28882404/health-related-quality-of-life-following-radical-cystectomy-comparative-analysis-from-the-medicare-health-outcomes-study
#5
Brian R Winters, Jonathan L Wright, Sarah K Holt, Atreya Dash, John L Gore, George R Schade
PURPOSE: Health related quality of life (HRQOL) after radical cystectomy (RC) and ileal conduit is not well quantified at the population level. We evaluated HRQOL in patients with bladder cancer (BC) compared with non-cancer controls (NCC) and colorectal cancer (CRC) patients using SEER-Medicare Health Outcomes Survey (MHOS) data. MATERIALS AND METHODS: SEER-MHOS data (1998-2013) was used to identify patients with BC and CRC undergoing extirpative surgery with ileal conduit or colostomy creation...
September 4, 2017: Journal of Urology
https://www.readbyqxmd.com/read/28882134/a-conceptual-framework-for-patient-centered-fertility-treatment
#6
Elizabeth A Duthie, Alexandra Cooper, Joseph B Davis, Katherine D Schoyer, Jay Sandlow, Estil Y Strawn, Kathryn E Flynn
BACKGROUND: Patient-centered care is a pillar of quality health care and is important to patients experiencing infertility. In this study we used empirical, in-depth data on couples' experiences of infertility treatment decision making to inform and revise a conceptual framework for patient-centered fertility treatment that was developed based on health care professionals' conceptualizations of fertility treatment, covering effectiveness, burden, safety, and costs. METHODS: In this prospective, longitudinal mixed methods study, we collected data from both members (separately) of 37 couples who scheduled an initial consult with a reproductive specialist...
September 7, 2017: Reproductive Health
https://www.readbyqxmd.com/read/28877317/association-of-white-matter-structure-with-autism-spectrum-disorder-and-attention-deficit-hyperactivity-disorder
#7
Yuta Aoki, Yuliya N Yoncheva, Bosi Chen, Tanmay Nath, Dillon Sharp, Mariana Lazar, Pablo Velasco, Michael P Milham, Adriana Di Martino
Importance: Clinical overlap between autism spectrum disorder (ASD) and attention-deficit/hyperactivity disorder (ADHD) is increasingly appreciated, but the underlying brain mechanisms remain unknown to date. Objective: To examine associations between white matter organization and 2 commonly co-occurring neurodevelopmental conditions, ASD and ADHD, through both categorical and dimensional approaches. Design, Setting, and Participants: This investigation was a cross-sectional diffusion tensor imaging (DTI) study at an outpatient academic clinical and research center, the Department of Child and Adolescent Psychiatry at New York University Langone Medical Center...
September 6, 2017: JAMA Psychiatry
https://www.readbyqxmd.com/read/28874148/evaluating-a-dutch-cardiology-primary-care-plus-intervention-on-the-triple-aim-outcomes-study-design-of-a-practice-based-quantitative-and-qualitative-research
#8
Tessa C C Quanjel, Marieke D Spreeuwenberg, Jeroen N Struijs, Caroline A Baan, Dirk Ruwaard
BACKGROUND: In an attempt to deal with the pressures on the health-care system and to guarantee sustainability, changes are needed. This study focuses on a cardiology primary care plus intervention. Primary care plus (PC+) is a new health-care delivery model focused on substitution of specialist care in the hospital setting with specialist care in the primary care setting. The intervention consists of a cardiology PC+ centre in which cardiologists, supported by other health-care professionals, provide consultations in a primary care setting...
September 6, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28859696/a-systematic-review-of-evidence-for-fitness-to-drive-among-people-with-the-mental-health-conditions-of-schizophrenia-stress-anxiety-disorder-depression-personality-disorder-and-obsessive-compulsive-disorder
#9
Carolyn A Unsworth, Anne M Baker, Man H So, Priscilla Harries, Desmond O'Neill
BACKGROUND: Limited evidence exists regarding fitness-to-drive for people with the mental health conditions of schizophrenia, stress/anxiety disorder, depression, personality disorder and obsessive compulsive disorder (herein simply referred to as 'mental health conditions'). The aim of this paper was to systematically search and classify all published studies regarding driving for this population, and then critically appraise papers addressing assessment of fitness-to-drive where the focus was not on the impact of medication on driving...
August 31, 2017: BMC Psychiatry
https://www.readbyqxmd.com/read/28845694/self-regulation-of-weight-after-sleeve-gastrectomy
#10
Teresa Madeira, Isabel do Carmo, Henrique Bicha Castelo, Osvaldo Santos
Bariatric surgery is recognized as the most effective method for achieving relevant weight loss in subjects with severe obesity. However, there is insufficient knowledge about weight self-regulation and quality of motivation in these patients. The main goal of this study was to characterize the association between the percentage of excess weight loss (%EWL) and the motivation to manage weight, at least 1 year after sleeve gastrectomy (SG). This is an observational longitudinal retrospective study. All patients corresponding to predefined inclusion criteria who underwent SG from January 2008 to July 2010 at a main general hospital were invited...
August 1, 2017: Behavior Modification
https://www.readbyqxmd.com/read/28836033/predictability-and-inconsistencies-in-the-cognitive-outcome-of-early-treated-pku-patients
#11
Filippo Manti, Francesca Nardecchia, Sabrina Paci, Flavia Chiarotti, Claudia Carducci, Carla Carducci, Silvia Dalmazzone, Graziella Cefalo, Elisabetta Salvatici, Giuseppe Banderali, Vincenzo Leuzzi
Long-term cognitive outcome and treatment of adult early treated (ET)PKU patients is a main issue in PKU research. We questioned whether the intellectual development of ETPKU patients is stable and to what extent its variation may be predicted by the quality of metabolic control. The aims of the present longitudinal retrospective study were to assess in young adult ETPKU patients: i) the relationship between IQ and metabolic control during the first two decades of life; and ii) the intra- and interindividual variability in the developmental trajectory which cannot be predicted by the disease's biomarkers...
August 23, 2017: Journal of Inherited Metabolic Disease
https://www.readbyqxmd.com/read/28835221/quality-of-life-and-trust-among-young-people-with-narcolepsy-and-their-families-after-the-pandemrix%C3%A2-vaccination-protocol-for-a-case-control-study
#12
Karin Blomberg, Agneta Anderzén Carlsson, Lars Hagberg, Östen Jonsson, Lena Leissner, Mats H Eriksson
BACKGROUND: The extensive vaccination programme against swine flu resulted in an increased incidence of narcolepsy among children and adolescents. There is a need to explore if these young persons' experiences have affected their trust in healthcare, their willingness to participate in future prevention programmes, and their contacts with the healthcare system. The overall aim is to identify factors important for the life-situation of children and adolescents with narcolepsy and their families, and factors that correlate with trust in healthcare...
August 23, 2017: BMC Pediatrics
https://www.readbyqxmd.com/read/28830408/the-ktx360%C3%A2-study-a-multicenter-multisectoral-multimodal-telemedicine-based-follow-up-care-model-to-improve-care-and-reduce-health-care-costs-after-kidney-transplantation-in-children-and-adults
#13
L Pape, M de Zwaan, U Tegtbur, F Feldhaus, J K Wolff, L Schiffer, C Lerch, N Hellrung, V Kliem, G Lonnemann, H D Nolting, M Schiffer
BACKGROUND: Follow-up care after kidney transplantation is performed in transplant centers as well as in local nephrologist's practices in Germany. However, organized integrated care of these different sectors of the German health care system is missing. This organizational deficit as well as non-adherence of kidney recipients and longterm cardiovascular complications are major reasons for an impaired patient and graft survival. METHODS: The KTx360° study is supported by a grant from the Federal Joint Committee of the Federal Republic of Germany...
August 23, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28805254/does-fathers-and-mothers-rumination-predict-emotional-symptoms-in-their-children
#14
Lamprini Psychogiou, Nicholas J Moberly, Elizabeth Parry, Abigail Emma Russell, Selina Nath, Angeliki Kallitsoglou
OBJECTIVES: Although rumination can have a negative influence on the family environment and the quality of parent-child interactions, there is little research on the role of parental rumination in predicting adverse child outcomes over time. This longitudinal study examined whether mothers' and fathers' brooding rumination would each uniquely predict emotional symptoms in preschool children. METHODS: The initial sample consisted of 160 families (including 50 mothers with past depression, 33 fathers with past depression, and 7 fathers with current depression according to the Structural Clinical Interview for DSM-IV)...
August 14, 2017: British Journal of Clinical Psychology
https://www.readbyqxmd.com/read/28804983/a-longitudinal-study-of-the-profiles-of-psychological-thriving-resilience-and-loss-in-people-with-inflammatory-bowel-disease
#15
Fuschia M Sirois, Jameson K Hirsch
OBJECTIVES: Despite the toll of inflammatory bowel disease (IBD) on adjustment, many patients are resilient to the challenges associated with living with IBD, and successfully cope with their illness and thrive. Yet there is little research on why some individuals with IBD enter a trajectory of growth, while others may struggle to adapt. The aim of this study was to investigate the adjustment-related factors that distinguished thriving, resilience, and loss in people with IBD across personal growth, life satisfaction, and relationship quality domains...
August 14, 2017: British Journal of Health Psychology
https://www.readbyqxmd.com/read/28803331/impact-of-monitoring-health-related-quality-of%C3%A2-life-in-clinical-practice-in-children-with-type-1-diabetes-mellitus
#16
Marta Murillo, Joan Bel, Jacobo Pérez, Raquel Corripio, Gemma Carreras, Xavier Herrero, Josep-Maria Mengibar, Dolors Rodriguez-Arjona, Ulrike Ravens-Sieberer, Hein Raat, Luis Rajmil
PURPOSE: To test whether the systematic monitoring of health-related quality of life (HRQOL) in clinical practice in Spanish pediatric patients with T1DM helps improve their daily life in a multicenter longitudinal study. METHODS: One hundred thirty-six patients participated, recruited from five centers in Barcelona, Spain (72 girls, mean age 13.4 years). Complete data were collected for 119 patients (85%). Pediatricians were randomly assigned to the HRQOL intervention (n = 70), or control group (n = 49)...
August 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28789789/differential-predictors-of-nighttime-and-daytime-sleep-complaints-in-older-adults-with-comorbid-insomnia-and-osteoarthritis-pain
#17
Hsin-Yi Jean Tang, Susan M McCurry, Kenneth C Pike, Michael Von Korff, Michael V Vitiello
OBJECTIVES: Osteoarthritis (OA) is extremely common in older adults, affecting 50% of people aged 65 or older, and more than half of older adults with OA complain of significantly disturbed sleep. This study compared predictors of nighttime sleep complaints and daytime sleep-related consequences as measured by the Insomnia Severity Index (ISI) and Pittsburgh Sleep Quality Index (PSQI) in older adults with comorbid OA pain and insomnia. METHODS: A secondary analysis of baseline data from a large longitudinal randomized controlled trial...
September 2017: Journal of Psychosomatic Research
https://www.readbyqxmd.com/read/28756414/work-related-risk-factors-for-specific-shoulder-disorders-a-systematic-review-and-meta-analysis
#18
REVIEW
Henk F van der Molen, Chiara Foresti, Joost G Daams, Monique H W Frings-Dresen, P Paul F M Kuijer
The objective of this systematic review and meta-analysis is to examine which work-related risk factors are associated with specific soft tissue shoulder disorders. We searched the electronic databases of Medline and Embase for articles published between 2009 and 24 March 2016 and included the references of a systematic review performed for the period before 2009. Primary cross-sectional and longitudinal studies were included when outcome data were described in terms of clinically assessed soft tissue shoulder disorders and at least two levels of work-related exposure were mentioned (exposed vs less or non-exposed)...
October 2017: Occupational and Environmental Medicine
https://www.readbyqxmd.com/read/28754184/malocclusions-in-young-children-does-breast-feeding-really-reduce-the-risk-a-systematic-review-and-meta-analysis
#19
REVIEW
Esma J Doğramacı, Giampiero Rossi-Fedele, Craig W Dreyer
BACKGROUND: Researchers have purported that breast-feeding can decrease the risk of malocclusions. The authors studied the relationship of breast-feeding on malocclusions in young children by means of conducting a systematic review of association (etiology). TYPES OF STUDIES REVIEWED: The authors used a 3-step search strategy, including electronic searches. They considered studies whose investigators included healthy children with primary dentition with a history of breast-feeding and in which the study investigators had assessed specific malocclusion outcomes to be eligible for inclusion in this review...
August 2017: Journal of the American Dental Association
https://www.readbyqxmd.com/read/28754116/how-is-disease-severity-associated-with-quality-of-life-in-psoriasis-patients-evidence-from-a-longitudinal-population-based-study-in-sweden
#20
Kirk Geale, Martin Henriksson, Marcus Schmitt-Egenolf
BACKGROUND: Assessing the impact of disease severity on generic quality of life (QOL) is a critical step in outcomes research and in the development of decision-analytic models structured around health states defined by clinical measures. While data from routine clinical practice found in healthcare registers are increasingly used for research, more attention should be paid to understanding the relationship between clinical measures of disease severity and QOL. The purpose of this work was therefore to investigate this relationship in psoriasis using a population-based dataset...
July 28, 2017: Health and Quality of Life Outcomes
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