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https://www.readbyqxmd.com/read/28198945/rehabilitation-of-children-and-adolescents-with-myelomeningocele-the-daily-life-of-mothers-caregiversrehabilitation-of-children-and-adolescents-with-myelomeningocele-the-daily-life-of-mothers-caregivers
#1
Giselle Lima de Freitas, Roseni Rosângela de Sena, Josana Cristina Faleiros E Silva, Fabiana Faleiros Santana Castro
Objective: To analyze the daily routine of mothers-caregivers of children and adolescents with myelomeningocele at home. Method: Descriptive, exploratory, qualitative research. Data were collected with 16 mothers of children and adolescents with myelomeningocele by means of interviews and observation from May to August 2015, in municipalities of Minas Gerais, Brazil. The data were submitted to qualitative analysis. Results: The daily care routine of the mothers at home revealed two empirical categories: a) the impact of the birth on naturalization of care, and (b) changes in the routine of the mothers and women...
February 9, 2017: Revista Gaúcha de Enfermagem
https://www.readbyqxmd.com/read/28170406/youth-as-contested-sites-of-culture-the-intergenerational-acculturation-gap-amongst-new-migrant-communities-parental-and-young-adult-perspectives
#2
Andre M N Renzaho, Nidhi Dhingra, Nichole Georgeou
BACKGROUND: Immigration often results in changes in family dynamics, and within this process of dynamic relational adjustment youth can be conceptualised as contested sites of culture and associated intergenerational conflicts. This paper considers the experiences of migrant youth in Greater Western Sydney, New South Wales, Australia using conflict as a useful lens through which to view issues of migrant youth identity and their sense of social connectedness, belonging, and agency. The aim of this study was twofold: 1) to explore how migrant youth cope with acculturative stress and intergenerational conflicts, and 2) to better understand the systemic and family-related factors that facilitate positive settlement experiences for migrant youth...
2017: PloS One
https://www.readbyqxmd.com/read/28156540/family-camp-a-multi-disciplinary-intervention-for-brain-tumor-patients-and-families
#3
Mary Lovely, Abigail Levinson Marks, Amanda K LaMarre, Susan M Chang, Jennifer Clarke, Judy Patt, Emelia Barani
: 240 Background: The diagnosis of a brain tumor is a catastrophic life changing event that impacts the entire family. Patients and caregivers experience dramatic role changes, concern for their children, financial stress, and isolation. For many, the situation is overwhelming. A novel intervention to address these needs is "Family Camp". Our vision for camp was to provide respite to the entire family, decrease caregiver stress, improve family connections and promote a sense of understanding and connection with the community at large...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28098505/facilitating-and-hindering-factors-for-coping-with-the-experience-of-having-a-child-with-cancer-a-lebanese-perspective
#4
Myrna A A Doumit, May Naifeh Khoury
BACKGROUND: Families with a child with cancer face significant emotional and psychosocial stressors. The frequency of childhood cancer is increasing in Lebanon with more than 282 children diagnosed each year. This condition is reported to evoke a range of challenging emotions for parents, yet no studies have been conducted on the facilitating and hindering factors that affect Lebanese parents coping with a child with cancer. OBJECTIVES: The purpose of the study was to gain an in-depth understanding of factors facilitating and hindering coping methods of Lebanese parents with a child with cancer...
January 18, 2017: Journal of Psychosocial Oncology
https://www.readbyqxmd.com/read/28095824/community-based-health-care-is-an-essential-component-of-a-resilient-health-system-evidence-from-ebola-outbreak-in-liberia
#5
Kendra Siekmans, Salim Sohani, Tamba Boima, Florence Koffa, Luay Basil, Saïd Laaziz
BACKGROUND: Trained community health workers (CHW) enhance access to essential primary health care services in contexts where the health system lacks capacity to adequately deliver them. In Liberia, the Ebola outbreak further disrupted health system function. The objective of this study is to examine the value of a community-based health system in ensuring continued treatment of child illnesses during the outbreak and the role that CHWs had in Ebola prevention activities. METHODS: A descriptive observational study design used mixed methods to collect data from CHWs (structured survey, n = 60; focus group discussions, n = 16), government health facility workers and project staff...
January 17, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28089520/the-association-between-family-caregivers-involvement-in-managing-older-adults-medications-and-caregivers-information-seeking-behavior
#6
Marwa Noureldin, Matthew M Murawski, Holly L Mason, Gerald C Hyner, Kimberly S Plake
OBJECTIVES: 1) To explore the association between family caregivers' involvement in managing care recipients' medications and their information-seeking behavior related to caregiving; and 2) to examine the sources used by caregivers when seeking information. METHODS: A retrospective analysis of cross-sectional data from 2 national studies, the 2011 National Health and Aging Trends Study (NHATS) and its supplement, the National Study of Caregiving (NSOC), was conducted...
January 11, 2017: Journal of the American Pharmacists Association: JAPhA
https://www.readbyqxmd.com/read/28073351/exploring-neurodevelopmental-outcome-measures-used-in-children-with-cerebral-malaria-the-perspectives-of-caregivers-and-health-workers-in-malawi
#7
Emmie W Mbale, Terrie Taylor, Bernard Brabin, Macpherson Mallewa, Melissa Gladstone
BACKGROUND: Progress has been made in tackling malaria however there are still over 207 million cases worldwide, the majority in children. As survival rates improve, numbers of children with long-term neurodisabling sequelae are likely to increase. Most outcome studies in cerebral malaria (CM) have focused only on body function and structure and less on outcomes within the broader framework of the International Classification of Functioning and Disability (ICF). The aim of this study was to utilise qualitative methods to identify relevant clinical outcomes in CM to support formulation of a core outcome set relevant to CM and other acquired brain injuries for use in future clinical trials...
January 10, 2017: BMC Pediatrics
https://www.readbyqxmd.com/read/28068507/reducing-recurrence-of-bacterial-skin-infections-in-aboriginal-children-in-rural-communities-new-ways-of-thinking-new-ways-of-working
#8
Susan Thomas, Kristy Crooks, Kylie Taylor, Peter D Massey, Ruth Williams, Glenn Pearce
Reports from health workers, school staff and community members in rural NSW suggested that bacterial skin infections are a significant health issue for Aboriginal children and their families, affecting quality of life and contributing to poor school attendance. Current NSW treatment guidelines do not incorporate important sociocultural factors or ways of living in Aboriginal communities. The aim of this qualitative study was to gain a deeper understanding of the experience of parents and carers of Aboriginal children affected by skin infections and of other community members, health workers and school staff, and what actions have been considered successful or unsuccessful in reducing the recurrence of infection...
January 10, 2017: Australian Journal of Primary Health
https://www.readbyqxmd.com/read/28054164/are-different-professionals-ready-to-support-children-of-parents-with-mental-illness-evaluating-the-impact-of-a-pan-european-training-programme
#9
Giovanni Viganò, Marja Kaunonen, Peter Ryan, Wendy Simpson, Ian Dawson, Izabela Tabak, Norbert Scherbaum, Stefano Zanone Poma
A training package (pre-tested in a pilot phase) about supporting children who have parents with a mental illness and/or with substance misuse (COPMI) was developed and delivered to 131 different professionals from six different European Countries. A questionnaire about importance, awareness and competence on the issue (8 items on knowledge and 15 items on skills) was developed and completed by participants before and after the training. The training was evaluated by participants as generally very successful in terms of improving the importance, awareness and competence of their knowledge and skills, with a statistically significant difference in the pre-/post-analyses (no decreases occurred)...
January 4, 2017: Journal of Behavioral Health Services & Research
https://www.readbyqxmd.com/read/28044032/overcoming-challenges-to-care-in-the-juvenile-justice-system-a-case-study-and-commentary
#10
Rebekah J Savage, Jasmine M Reese, Stephenie Wallace, Timothy Wang, Traci Jester, Robert Lowe, LaKeshia Hyndman, Nefertiti Durant
Youth in the criminal justice system commonly suffer from multiple medical and psychological health problems. Because they likely live in lower socioeconomic environments, the medical care they receive through the justice system might be their only recent medical care and can result in the discovery of health problems or chronic illnesses that must be managed while in the system and beyond. We describe the case of an adolescent diagnosed with a serious chronic disease during his time in an urban detention center to illustrate how health workers and justice staff must use a team approach in caring for this vulnerable population of children...
January 2017: Pediatrics in Review
https://www.readbyqxmd.com/read/28027545/social-and-psychological-state-of-the-chornobyl-clean-up-workers-risk-factors-for-negative-changes
#11
V O Buzunov, K N Loganovsky, L I Krasnikova, M O Bomko, Yu M Belyaev, Zh S Yaroshenko, T Ye Domashevska
: It is generally recognized that the Chornobyl nuclear accident caused strong psychosocial stress affecting the entire population of Ukraine, primarily people involved in recovery operations. But what are the reasons? What is the struc ture of stressors? What are their social, medical and biological consequences, what are strategy and preventive meas ures? Issues that require special research and development. OBJECTIVE: To study social and psychological state of the Chornobyl cleanup workers 1986-1987, and to determine regularities of changes and dangerous risk factors...
December 2016: Problemy Radiat︠s︡iĭnoï Medyt︠s︡yny Ta Radiobiolohiï
https://www.readbyqxmd.com/read/27992780/using-a-logic-model-to-evaluate-the-kids-together-early-education-inclusion-program-for-children-with-disabilities-and-additional-needs
#12
Kathleen Clapham, Claire Manning, Kathryn Williams, Ginger O'Brien, Margaret Sutherland
: Despite clear evidence that learning and social opportunities for children with disabilities and special needs are more effective in inclusive not segregated settings, there are few known effective inclusion programs available to children with disabilities, their families or teachers in the early years within Australia. The Kids Together program was developed to support children with disabilities/additional needs aged 0-8 years attending mainstream early learning environments. Using a key worker transdisciplinary team model, the program aligns with the individualised package approach of the National Disability Insurance Scheme (NDIS)...
December 9, 2016: Evaluation and Program Planning
https://www.readbyqxmd.com/read/27982747/women-s-perception-of-adolescent-marijuana-use-in-a-hispanic-seasonal-farm-worker-community-a-qualitative-study
#13
Mariano Kanamori, Jessica Weissman, Mario De La Rosa, James Melton, Mariana Sanchez, Patria Rojas, Mary Jo Trekpa
We examined the perception of adolescent children's marijuana use and its consequences in the Hispanic seasonal farmworking community of South Florida via three focus groups with Hispanic adult female seasonal workers (n = 29). The women described how adolescents' marijuana use increased over the past five years. Social networks for marijuana use were reported near schools and bus stations. Although participants expressed concern over adolescent marijuana use and involvement in selling marijuana, they reported that their job demands preclude their ability to supervise their children...
December 16, 2016: Journal of Ethnicity in Substance Abuse
https://www.readbyqxmd.com/read/27958242/rural-posting-experience-requests-for-transfer-and-perspectives-about-critical-factors-for-staff-retention-among-primary-health-care-workers-in-urban-kano-nigeria
#14
U M Lawan, G T Amole, J H Khayi
BACKGROUND: Inadequate skilled manpower at rural posts is a serious impediment toward equitable and universal access to healthcare in Nigeria. OBJECTIVE: To examine the experiences of primary health care (PHC) workers on rural assignments, requests for transfer, and perspectives about critical factors for retention of healthcare workers at rural posts. MATERIALS AND METHODS: Using descriptive cross-sectional design, 262 PHC workers in Kano were studied...
January 2017: Nigerian Journal of Clinical Practice
https://www.readbyqxmd.com/read/27941109/assessing-acceptability-of-a-diagnostic-and-malaria-treatment-package-delivered-by-community-health-workers-in-malaria-endemic-settings-of-burkina-faso-nigeria-and-uganda
#15
Ayodele S Jegede, Frederick O Oshiname, Armande K Sanou, Jesca Nsungwa-Sabiiti, IkeOluwapo O Ajayi, Mohamadou Siribié, Chinenye Afonne, Luc Sermé, Catherine O Falade
BACKGROUND:  The efficacy of artemisinin-based combination therapy (ACT) and rectal artesunate for severe malaria in children is proven. However, acceptability of a package of interventions that included use of malaria rapid diagnostic tests (RDTs), ACTs, and rectal artesunate when provided by community health workers (CHWs) is uncertain. This study assessed acceptability of use of CHWs for case management of malaria using RDTs, ACTs, and rectal artesunate. METHODS:  The study was carried out in Burkina Faso, Nigeria, and Uganda in 2015 toward the end of an intervention using CHWs to provide diagnosis and treatment...
December 15, 2016: Clinical Infectious Diseases: An Official Publication of the Infectious Diseases Society of America
https://www.readbyqxmd.com/read/27920283/what-can-we-do-for-people-with-drug-resistant-epilepsy-the-2016-wartenberg-lecture
#16
Jerome Engel
Treatment goals for epilepsy are no seizures, no side effects, as soon as possible, but these goals are too often unmet. Approximately 1 million people in the United States continue to have seizures despite adequate treatment with antiseizure drugs, representing 40% of those with epilepsy, and 80% of the cost of epilepsy. Drug-resistant epilepsy (DRE) can be associated with developmental delay in infants and young children, and severe disability and morbidity in older children and adults, as well as a mortality rate 5-10 times that of the general population...
December 6, 2016: Neurology
https://www.readbyqxmd.com/read/27896832/leaving-foster-or-residential-care-a-participatory-study-of-care-leavers-experiences-of-health-and-social-care-transitions
#17
K Liabo, C McKenna, A Ingold, H Roberts
BACKGROUND: Young people in residential or foster care experience multiple transitions around their 18(th) birthday without the long term and consistent support from their family of origin that most of their peers can expect. We report a mixed methods qualitative study of transitions across health and social care services for children leaving care, providing narratives of what young people described as positive, and what they and professionals think might be improved. METHODS: Data were collected in participatory meetings and individual interviews between young people and researchers (n = 24) and individual interviews with practitioners (n = 11)...
November 29, 2016: Child: Care, Health and Development
https://www.readbyqxmd.com/read/27894389/-qualitative-study-on-the-current-status-of-hospitalized-burn-children-s-quality-of-life
#18
R Q Lin, L Li, L Xu, Q Pan, J X Dai
Objective: To explore the current status of hospitalized burn children's quality of life, so as to lay foundation for carrying out the related intervention in future. Methods: Using qualitative research method, semi-structured interviews were conducted on 11 parents of burn children hospitalized in Department of Burns of Fujian Medical University Union Hospital from March to May 2016. Then the data were analyzed and concluded with phenomenological analysis method to refine the themes. Results: Parents' description about the current status of hospitalized burn children's quality of life could be summed up into four areas: physiology, psychology, social development, and family; and in six themes: obvious itching symptom, limited movement development, night terror and constant cry because of fear, reduced social game, negative attachment type, and parents under multiple pressures...
November 20, 2016: Zhonghua Shao Shang za Zhi, Zhonghua Shaoshang Zazhi, Chinese Journal of Burns
https://www.readbyqxmd.com/read/27870076/disaster-mental-health-and-positive-psychology-an-afterward-to-the-special-issue
#19
Steven M Southwick, Ritvij Satodiya, Robert H Pietrzak
The articles in this Special Issue are devoted to integrating the fields of disaster mental health and positive psychology. Their focus on resilience building, individual and community preparation, meaning making, and posttraumatic growth represents an important new development in disaster mental health. The overarching goal of this effort is to inform strategies to help both individuals-including children, adolescent, adult disaster survivors, and relief workers-and communities prepare for, respond to, recover from, and possibly even grow stronger in the face of adversity...
December 2016: Journal of Clinical Psychology
https://www.readbyqxmd.com/read/27847935/empowering-families-with-the-experience-of-mental-illness-a-presentation-of-the-polish-version-of-camille-training-package
#20
REVIEW
Izabela Tabak, Lidia Zabłocka-Żytka, Jan C Czabała
The paper presents the CAMILLE training package prepared in the EU program Empowerment of Children and Adolescents of Mentally Ill Parents through Training of Professionals working with children and adolescents. The training is designed for psychiatrists, psychologists, social workers, teachers and others working with children and adolescents where a parent experiences mental disorders. The project was realized on 4 stages: (1) pre-analyses (quality and quantity) with professionals, family members and people experiencing mental disorders, in regards to the needs, experiences and expectations in education of professionals working with families of parents with mental illness; (2) development of a new pan-European training program for specialists working with these families; (3) pre-pilot implementation and evaluation of the training; (4) preparing of the final version of the training and pilot implementation in 7 countries participating in the project, also in Poland...
2016: Psychiatria Polska
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