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https://www.readbyqxmd.com/read/27920283/what-can-we-do-for-people-with-drug-resistant-epilepsy-the-2016-wartenberg-lecture
#1
Jerome Engel
Treatment goals for epilepsy are no seizures, no side effects, as soon as possible, but these goals are too often unmet. Approximately 1 million people in the United States continue to have seizures despite adequate treatment with antiseizure drugs, representing 40% of those with epilepsy, and 80% of the cost of epilepsy. Drug-resistant epilepsy (DRE) can be associated with developmental delay in infants and young children, and severe disability and morbidity in older children and adults, as well as a mortality rate 5-10 times that of the general population...
December 6, 2016: Neurology
https://www.readbyqxmd.com/read/27896832/leaving-foster-or-residential-care-a-participatory-study-of-care-leavers-experiences-of-health-and-social-care-transitions
#2
K Liabo, C McKenna, A Ingold, H Roberts
BACKGROUND: Young people in residential or foster care experience multiple transitions around their 18(th) birthday without the long term and consistent support from their family of origin that most of their peers can expect. We report a mixed methods qualitative study of transitions across health and social care services for children leaving care, providing narratives of what young people described as positive, and what they and professionals think might be improved. METHODS: Data were collected in participatory meetings and individual interviews between young people and researchers (n = 24) and individual interviews with practitioners (n = 11)...
November 29, 2016: Child: Care, Health and Development
https://www.readbyqxmd.com/read/27894389/-qualitative-study-on-the-current-status-of-hospitalized-burn-children-s-quality-of-life
#3
R Q Lin, L Li, L Xu, Q Pan, J X Dai
Objective: To explore the current status of hospitalized burn children's quality of life, so as to lay foundation for carrying out the related intervention in future. Methods: Using qualitative research method, semi-structured interviews were conducted on 11 parents of burn children hospitalized in Department of Burns of Fujian Medical University Union Hospital from March to May 2016. Then the data were analyzed and concluded with phenomenological analysis method to refine the themes. Results: Parents' description about the current status of hospitalized burn children's quality of life could be summed up into four areas: physiology, psychology, social development, and family; and in six themes: obvious itching symptom, limited movement development, night terror and constant cry because of fear, reduced social game, negative attachment type, and parents under multiple pressures...
November 20, 2016: Zhonghua Shao Shang za Zhi, Zhonghua Shaoshang Zazhi, Chinese Journal of Burns
https://www.readbyqxmd.com/read/27870076/disaster-mental-health-and-positive-psychology-an-afterward-to-the-special-issue
#4
Steven M Southwick, Ritvij Satodiya, Robert H Pietrzak
The articles in this Special Issue are devoted to integrating the fields of disaster mental health and positive psychology. Their focus on resilience building, individual and community preparation, meaning making, and posttraumatic growth represents an important new development in disaster mental health. The overarching goal of this effort is to inform strategies to help both individuals-including children, adolescent, adult disaster survivors, and relief workers-and communities prepare for, respond to, recover from, and possibly even grow stronger in the face of adversity...
December 2016: Journal of Clinical Psychology
https://www.readbyqxmd.com/read/27847935/empowering-families-with-the-experience-of-mental-illness-a-presentation-of-the-polish-version-of-camille-training-package
#5
REVIEW
Izabela Tabak, Lidia Zabłocka-Żytka, Jan C Czabała
The paper presents the CAMILLE training package prepared in the EU program Empowerment of Children and Adolescents of Mentally Ill Parents through Training of Professionals working with children and adolescents. The training is designed for psychiatrists, psychologists, social workers, teachers and others working with children and adolescents where a parent experiences mental disorders. The project was realized on 4 stages: (1) pre-analyses (quality and quantity) with professionals, family members and people experiencing mental disorders, in regards to the needs, experiences and expectations in education of professionals working with families of parents with mental illness; (2) development of a new pan-European training program for specialists working with these families; (3) pre-pilot implementation and evaluation of the training; (4) preparing of the final version of the training and pilot implementation in 7 countries participating in the project, also in Poland...
2016: Psychiatria Polska
https://www.readbyqxmd.com/read/27846124/effectiveness-and-experiences-of-families-and-support-workers-participating-in-peer-led-parenting-support-programs-delivered-as-home-visiting-programs-a-comprehensive-systematic-review
#6
Ailsa Munns, Robin Watts, Desley Hegney, Roz Walker
BACKGROUND: Designing child and family health services to meet the diverse needs of contemporary families is intended to minimize impacts of early disadvantage and subsequent lifelong health and social issues. Innovative programs to engage families with child and family support services have led to interest in the potential value of peer-led home visiting from parents in local communities. There is a range of benefits and challenges identified in a limited number of studies associated with home visiting peer support...
October 2016: JBI Database of Systematic Reviews and Implementation Reports
https://www.readbyqxmd.com/read/27832211/association-of-frontline-worker-provided-services-with-change-in-block-level-complementary-feeding-indicators-an-ecological-analysis-from-bihar-india
#7
Aritra Das, Sanchita Mahapatra, Guntur Sai Mala, Indrajit Chaudhuri, Tanmay Mahapatra
BACKGROUND: Insufficiencies in complementary feeding put infants and young children at increased risk of undernutrition. Till now, most Indian studies have looked at the individual level determinants of complementary feeding practices. We aimed to evaluate the association of frontline worker (FLW) provided nutritional counselling services, with change in community level indicators of complementary feeding practices among 9-11 month old children over time. METHODS: The study data was obtained from five rounds of 'Lot Quality Assurance Sampling' survey in eight districts of Bihar, an impoverished Indian state...
2016: PloS One
https://www.readbyqxmd.com/read/27807865/the-meaning-of-participation-for-children-in-malawi-insights-from-children-and-caregivers
#8
F Nelson, C Masulani-Mwale, E Richards, S Theobald, M Gladstone
BACKGROUND: Global rates of childhood disability are high and are estimated through tools that focus on impairment, functioning and activity. The International Classification of Functioning, Disability and Health has promoted a framework to define disability more broadly and to include participation. New outcome measures have now been created to assess participation of children with disabilities for use in research and clinical practice. In order to use these in other cultural contexts, the validity of concepts and tools developed should be evaluated prior to use...
November 2, 2016: Child: Care, Health and Development
https://www.readbyqxmd.com/read/27756450/barriers-and-facilitators-of-interventions-for-improving-antiretroviral-therapy-adherence-a-systematic-review-of-global-qualitative-evidence
#9
Qingyan Ma, Lai Sze Tso, Zachary C Rich, Brian J Hall, Rachel Beanland, Haochu Li, Mellanye Lackey, Fengyu Hu, Weiping Cai, Meg Doherty, Joseph D Tucker
INTRODUCTION: Qualitative research on antiretroviral therapy (ART) adherence interventions can provide a deeper understanding of intervention facilitators and barriers. This systematic review aims to synthesize qualitative evidence of interventions for improving ART adherence and to inform patient-centred policymaking. METHODS: We searched 19 databases to identify studies presenting primary qualitative data on the experiences, attitudes and acceptability of interventions to improve ART adherence among PLHIV and treatment providers...
2016: Journal of the International AIDS Society
https://www.readbyqxmd.com/read/27755554/assessing-program-coverage-of-two-approaches-to-distributing-a-complementary-feeding-supplement-to-infants-and-young-children-in-ghana
#10
Grant J Aaron, Nicholas Strutt, Nathaniel Amoh Boateng, Ernest Guevarra, Katja Siling, Alison Norris, Shibani Ghosh, Mercy Nyamikeh, Antoine Attiogbe, Richard Burns, Esi Foriwa, Yasuhiko Toride, Satoshi Kitamura, Kwaku Tano-Debrah, Daniel Sarpong, Mark Myatt
The work reported here assesses the coverage achieved by two sales-based approaches to distributing a complementary food supplement (KOKO Plus™) to infants and young children in Ghana. Delivery Model 1 was conducted in the Northern Region of Ghana and used a mixture of health extension workers (delivering behavior change communications and demand creation activities at primary healthcare centers and in the community) and petty traders recruited from among beneficiaries of a local microfinance initiative (responsible for the sale of the complementary food supplement at market stalls and house to house)...
2016: PloS One
https://www.readbyqxmd.com/read/27749804/immediate-and-late-response-to-intimate-partner-violence-intervention-in-the-pediatric-emergency-department-a-case-report
#11
Kimberly A Randell, Danica Harris, Jennifer Stallbaumer-Rouyer
Childhood exposure to intimate partner violence (IPV) results in numerous, lifelong, negative health outcomes, underscoring the American Academy of Pediatrics' recommendation for IPV screening and intervention in the pediatric health care setting. We report a case in which a mother denied IPV during routine IPV screening in a pediatric emergency department (ED). However, subsequent discussion with health care providers during the ED visit revealed IPV. The mother declined to meet with an IPV advocate because the abuser was texting repeatedly to ask about the duration of the ED visit...
October 4, 2016: Pediatric Emergency Care
https://www.readbyqxmd.com/read/27736897/adapting-agriculture-platforms-for-nutrition-a-case-study-of-a-participatory-video-based-agricultural-extension-platform-in-india
#12
Suneetha Kadiyala, Emily H Morgan, Shruthi Cyriac, Amy Margolies, Terry Roopnaraine
Successful integration of nutrition interventions into large-scale development programmes from nutrition-relevant sectors, such as agriculture, can address critical underlying determinants of undernutrition and enhance the coverage and effectiveness of on-going nutrition-specific activities. However, evidence on how this can be done is limited. This study examines the feasibility of delivering maternal, infant, and young child nutrition behaviour change communication through an innovative agricultural extension programme serving nutritionally vulnerable groups in rural India...
2016: PloS One
https://www.readbyqxmd.com/read/27736871/determinants-of-treatment-abandonment-in-childhood-cancer-results-from-a-global-survey
#13
Paola Friedrich, Catherine G Lam, Geetinder Kaur, Elena Itriago, Raul C Ribeiro, Ramandeep S Arora
BACKGROUND: Understanding and addressing treatment abandonment (TxA) is crucial for bridging the pediatric cancer survival gap between high-income (HIC) and low-and middle-income countries (LMC). In childhood cancer, TxA is defined as failure to start or complete curative cancer therapy and known to be a complex phenomenon. With rising interest on causes and consequences of TxA in LMC, this study aimed to establish the lay-of-the-land regarding determinants of TxA globally, perform and promote comparative research, and raise awareness on this subject...
2016: PloS One
https://www.readbyqxmd.com/read/27713834/loss-of-relational-continuity-of-care-in-schizophrenia-associations-with-patient-satisfaction-and-quality-of-care
#14
Rahil Sanatinia, Violet Cowan, Kirsten Barnicot, Krysia Zalewska, David Shiers, Stephen J Cooper, Mike J Crawford
BACKGROUND: Users of mental health service are concerned about changes in clinicians providing their care, but little is known about their impact. AIMS: To examine associations between changes in staff, and patient satisfaction and quality of care. METHOD: A national cross-sectional survey of 3379 people aged 18 or over treated in secondary care for schizophrenia or schizoaffective disorder. RESULTS: Nearly 41.9% reported at least one change in their key worker during the previous 12 months and 10...
September 2016: BJPsych Open
https://www.readbyqxmd.com/read/27698602/parents-attitudes-on-the-introduction-of-health-education-in-the-education-system
#15
Branko Kristo, Ljubica Cuk, Ivana Krzelj
INTRODUCTION: We explored parents' views on the introduction of HE into the educational system, as well as differences in the degree of agreement, depending on the gender of the respondents, the school which the children attend and children's age. PATIENTS AND METHODS: Examinees in this study were parents (N = 531) of children attending primary and secondary schools in the area of Municipality Livno. The study was conducted by using cross-sectional study and a special questionnaire was created assessing attitudes on the introduction of HE in the education system which contains 26 items...
July 24, 2016: Materia Socio-medica
https://www.readbyqxmd.com/read/27693071/role-of-pediatric-emergency-physicians-in-identifying-bullying
#16
Muhammad Waseem, Audrey Paul, Gerald Schwartz, Denis Pauzé, Paul Eakin, Isabel Barata, Doug Holtzman, Lee S Benjamin, Joseph L Wright, Amanda B Nickerson, Madeline Joseph
BACKGROUND: Bullying is an important public health issue with broad implications. Although this issue has been studied extensively, there is limited emergency medicine literature addressing bullying. The emergency department (ED) physician has a unique opportunity to identify children and adolescents that are victims of bullying, and make a difference in their lives. OBJECTIVE: Our aim is to discuss the role of the emergency physician (EP) in identifying patients who have been victims of bullying and how to provide effective management as well as referral for further resources...
September 29, 2016: Journal of Emergency Medicine
https://www.readbyqxmd.com/read/27685642/detecting-deception-in-children-a-meta-analysis
#17
Jennifer Gongola, Nicholas Scurich, Jodi A Quas
Although research reveals that children as young as 3 can use deception and will take steps to obscure truth, research concerning how well others detect children's deceptive efforts remains unclear. Yet adults regularly assess whether children are telling the truth in a variety of contexts, including at school, in the home, and in legal settings, particularly in investigations of maltreatment. We conducted a meta-analysis to synthesize extant research concerning adults' ability to detect deceptive statements produced by children...
September 29, 2016: Law and Human Behavior
https://www.readbyqxmd.com/read/27676925/r4p-regional-rehabilitation-network-for-children-in-auvergne-rh%C3%A3-ne-alpes-french-region
#18
Capucine de Lattre
The regional health network for children and teenagers with disabilities in Rhône-Alpes (R4P) was created in 2007 with the objective of the amelioration of the quality of care. The main projects of the R4P concern training, harmonization of care, communication and research. R4P, as a health network for children with disabilities has two particularities: first, it concerns all type of disabilities, considering that families encounter the same kind of difficulties. Secondly, it includes all types of professionals concerned by children with disabilities: health care professionals of hospital and ambulatory care, social workers, administrations, and education professionals...
September 2016: Annals of Physical and Rehabilitation Medicine
https://www.readbyqxmd.com/read/27668915/the-impact-of-mental-health-services-in-a-pediatric-emergency-department-the-implications-of-having-trained-psychiatric-professionals
#19
Sharon M Holder, Kenneth Rogers, Eunice Peterson, Robbie Shoenleben, Dawn Blackhurst
OBJECTIVES: This study assessed improvement in the emergency department (ED) length of stay and costs after implementation of an ED program which added board-certified psychiatrists and trained psychiatric social workers to the pediatric ED. METHODS: A retrospective medical record and administrative data review were conducted for all pediatric psychiatric visits of children aged 5 to 18 years who were seen and discharged from the Greenville Memorial Hospital ED between January 1, 2007, and June 31, 2013...
September 23, 2016: Pediatric Emergency Care
https://www.readbyqxmd.com/read/27649694/gender-issues-and-related-social-stigma-affecting-patients-with-a-disorder-of-sex-development-in-india
#20
Angela Ann Joseph, Bindu Kulshreshtha, Iram Shabir, Eunice Marumudi, Tony Sam George, Rajesh Sagar, Manju Mehta, Ariachery C Ammini
Children with disorders of sex development (DSD) manifest at birth with malformed genitalia or later with atypical pubertal development. Those born with malformed genitalia are often diagnosed at birth. However, in resource-poor countries like India, where not all births are supervised by healthcare workers, some of these children remain undiagnosed until puberty or even later. The aim of this study was to assess the gender issues and psychosocial problems of children with DSD. Participants included 205 children with DSD (103 with 46,XX DSD and 102 with 46,XY DSD)...
September 20, 2016: Archives of Sexual Behavior
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