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Julia Quitmann, Anja Rohenkohl, Rachel Sommer, Monika Bullinger, Neuza Silva
BACKGROUND: In the context of health-related quality of life (HrQoL) assessment in pediatric short stature, the present study aimed to examine the levels of agreement/disagreement between parents' and children's reports of generic and condition-specific HrQoL, and to identify socio-demographic, clinical and psychosocial variables associated with the extent and direction of parent-child discrepancies. METHODS: This study was part of the retest phase of the QoLISSY project, which was a multicenter study conducted simultaneously in France, Germany, Spain, Sweden and UK...
October 21, 2016: Health and Quality of Life Outcomes
Salome Kornfeld, Martina Studer, Stephanie Winkelbeiner, Mária Regényi, Eugen Boltshauser, Maja Steinlin
AIM: Paediatric arterial ischaemic stroke can lead to reduced quality of life (QoL). It is important to identify predictors of QoL to support recovery. We examined long-term QoL after arterial ischaemic stroke concerning different variables. METHOD: Children registered in the Swiss Neuropediatric Stroke Registry and suffering from arterial ischaemic stroke between 2000 and 2008 were included. Two years post-stroke, assessments included intelligence quotient tests for cognitive impairment and modified Rankin Scale (mRS) for neurological impairment; 5 years post-stroke, the Kidscreen-27 was used for QoL, DSM-IV criteria screening was used for attention deficits, and the ABILHAND-Kids was used for manual motor skills...
October 21, 2016: Developmental Medicine and Child Neurology
Stephen Shannon, Gavin Breslin, Ben Fitzpatrick, Donncha Hanna, Deirdre Brennan
BACKGROUND: Kidscreen-27 was developed as part of a cross-cultural European Union-funded project to standardise the measurement of children's health-related quality of life. Yet, research has reported mixed evidence for the hypothesised 5-factor model, and no confirmatory factor analysis (CFA) has been conducted on the instrument with children of low socio-economic status (SES) across Ireland (Northern and Republic). METHOD: The data for this study were collected as part of a clustered randomised controlled trial...
October 18, 2016: Quality of Life Research
John Dotis, Antigoni Pavlaki, Nikoleta Printza, Stella Stabouli, Stamatia Antoniou, Chrysa Gkogka, Nikolaos Kontodimopoulos, Fotios Papachristou
BACKGROUND: Progressive chronic kidney disease (CKD), irrespective of the underlying etiology, affects the quality of life (QoL) of children due to the need for regular follow-up visits, a strict medication program and diet intake. METHODS: The Greek version of the KIDSCREEN-52 multidimensional questionnaire was used in children with CKD, renal transplantation (RT) and in a control group (CG) of healthy children. RESULTS: Fifty-five patients between 8 and 18 years, with CKD (n = 25), RT (n = 16) and with end-stage renal disease (ESRD) on peritoneal dialysis (PD) (n = 14) were included...
September 27, 2016: Pediatric Nephrology: Journal of the International Pediatric Nephrology Association
Viviane S Straatmann, Aldair J Oliveira, Mikael Rostila, Claudia S Lopes
BACKGROUND: Psychological well-being influences health behaviours differently in adolescent boys and girls. We evaluated the role of psychological well-being in early adolescence in the onset and persistence of insufficient physical activity and exceeding recommended screen time, depending on gender. METHODS: This work derives from a cohort study called Longitudinal Study of Adolescent Nutritional Assessment conducted among elementary school students from two public and four private schools in Rio de Janeiro, Brazil from 2010-2013...
2016: BMC Public Health
Anna Lena Sundell, Carl-Johan Törnhage, Agneta Marcusson
BACKGROUND: The current understanding on health-related quality of life (HRQoL) in young Swedish children with cleft lip and/or palate (CL/P) is sparse, and therefore, research on impact of CL/P on HRQoL in children is needed. AIMS: To investigate HRQoL in 5- and 10-year-old Swedish children with CL/P in comparison with non-cleft controls. Also to analyse whether there were any differences in HRQoL between children with cleft lip (with or without cleft palate, CL ± P) and cleft palate only (CP) and/or gender differences...
July 28, 2016: International Journal of Paediatric Dentistry
Electra González A, Vania Martínez N, Temistocles Molina G, Myriam George L, Rodrigo SepúLveda P, Ramiro Molina C, Carlos Hidalgo-Rasmussen
BACKGROUND: Health-related quality of life (HRQOL) refers to individuals' perception of their subjective well-being, considering various aspects of their life and the impact on their health. AIM: To analyze gender differences in the HRQOL of adolescent students in Chile, by age, type of school attended, and area of residence. MATERIAL AND METHODS: Analytical cross-sectional study conducted in a population of 5th and 12th grade students attending municipal, subsidized and private schools in 11 regions of the country...
March 2016: Revista Médica de Chile
Martin Offenbächer, Niko Kohls, Lynn Walker, Christiane Hermann, Boris Hügle, Natalie Jäger, Matthias Richter, Johannes-Peter Haas
Our objective was to translate the Functional Disability Inventory (FDI) into German, to evaluate its validity and to assess functional limitation in a large cohort of children and adolescents with juvenile fibromyalgia syndrome (jFMS). We administered several questions (e.g., sociodemographics, school-related issues) and questionnaires to 329 patients and one parent. The questionnaires included, among others, a German version of the FDI, the CHAQ (parent report), KIDSCREEN, tender point score (TPS), Depression Inventory for Children and Adolescents (DIKJ) and others...
October 2016: Rheumatology International
Gholamreza Zamani, Morteza Heidari, Reza Azizi Malamiri, Mahmoud Reza Ashrafi, Mahmoud Mohammadi, Reza Shervin Badv, Seyed Ahmad Hosseini, Soodeh Salehi, Amin Shahrokhi, Mostafa Qorbani, Mohammad Reza Fathi
We conducted a study to evaluate the quality of life in boys with Duchenne muscular dystrophy aged 8-18 years, compared with that in matched healthy controls. A total of 85 boys with Duchenne muscular dystrophy aged 8-18 years and 136 age, sex and living place matched healthy controls were included in this study. Patients and one of their parents separately completed the 27-item Persian version of KIDSCREEN questionnaire (child and adolescent version and parent version). From the children's perspective, the quality of life in patients was found to be lower in two subclasses: "physical activities and health" (p < 0...
July 2016: Neuromuscular Disorders: NMD
Elisabeth Jeppesen, Ingvar Bjelland, Sophie D Fosså, Jon H Loge, Alv A Dahl
PURPOSE: Health-related quality of life (HRQoL) in teenagers exposed to parental cancer has shown divergent results as an outcome measure. In this study we wanted to: 1) compare the HRQoL of teenagers exposed to parental cancer (CASES) with normative European HRQoL data (NORMs) measured close to parental diagnosis and treatment; 2) study changes in the HRQoL of CASES from baseline to follow-up; 3) explore sex differences in the HRQoL of CASES; and 4) explore eventual confounders of HRQoL of CASES at baseline...
June 2016: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
Helen Galloway, Emily Newman, Nicola Miller, Clare Yuill
OBJECTIVE: There are indicators that parental psychological factors may affect how parents evaluate their child's quality of life (QoL) when the child has a health condition. This study examined the impact of parents' perceived stress on parent and child ratings of the QoL of children with ADHD. METHOD: A cross-sectional sample of 45 matched parent-child dyads completed parallel versions of the KIDSCREEN-27. Children were 8 to 14 years with clinician diagnosed ADHD...
May 13, 2016: Journal of Attention Disorders
Claudia-Marcela Vélez, Luz-Helena Lugo-Agudelo, Gilma-Norela Hernández-Herrera, Héctor-Iván García-García
BACKGROUND: The family of KIDSCREEN instruments is the only one with trans-cultural adaptation and validation in Colombia. These validations have been performed from the classical test theory approach, which has evidenced satisfactory psychometric properties. The aim of this study was to evaluate psychometric properties of KIDSCREEN-27 children and parent-proxy versions, through Rasch analysis. METHODS: The participants in the present study were two different sets of populations, 321 kids with a mean age of 12...
2016: Health and Quality of Life Outcomes
Julia Hannah Quitmann, Monika Bullinger, Rachel Sommer, Anja Christine Rohenkohl, Neuza Maria Bernardino Da Silva
Short stature has been associated with psychosocial impairments, but whether treatments and achieved height impact on health-related quality of life (HrQoL) and psychological functioning of children/adolescents is still controversial. This study aimed to examine the effects of height deviation and treatment status on psychosocial adaptation outcomes and to identify clinical and psychosocial determinants of internalizing/externalizing problems in a large cohort of short statured children/adolescents from seven European countries...
2016: PloS One
Mary E Gannotti, Mary Law, Amy F Bailes, Margaret E OʼNeil, Uzma Williams, Briano DiRezze
PURPOSE: A step toward advancing research about rehabilitation service associated with positive outcomes for children with cerebral palsy is consensus about a conceptual framework and measures. METHODS: A Delphi process was used to establish consensus among clinicians and researchers in North America. RESULTS: Directors of large pediatric rehabilitation centers, clinicians from large hospitals, and researchers with expertise in outcomes participated (N = 18)...
2016: Pediatric Physical Therapy
Cristina Nunes, Ángel Hernando, Ida Lemos, Lara Ayala-Nunes, Cristina Romero Oliva, Cecilia Montilla Coronado
The aim of this study was to analyse differences in quality of life (QOL) between Spanish and Portuguese immigrant and native adolescents. In total, 475 native and immigrant adolescents (52% boys) from Algarve (Portugal) and Huelva (Spain), aged between 12 and 17 years old, were assessed with the KIDSCREEN-52. QOL dimensions were not related to most academic variables, with the exception of number of school failures, Financial Resources and Social Support from Peers. Multivariate analysis of variance (MANOVA) was used to examine statistical differences in adolescents QOL...
April 2016: Ciência & Saúde Coletiva
John Roger Andersen, Gerd Karin Natvig, Kristin Haraldstad, Turid Skrede, Eivind Aadland, Geir Kåre Resaland
BACKGROUND: The Norwegian version of the Kidscreen-27, a measure of generic health-related quality of life, has not yet been validated. Thus, the aim of this study was to investigate the reliability and validity of the Norwegian Kidscreen-27, in 10 year-old children. METHODS: The Kidscreen-27 consists of five domains and was validated in a cross-sectional study of 1085 school children (52.5 % boys). In addition a subsample of 56 children also had repeated measures in order to study test-retest reliability...
2016: Health and Quality of Life Outcomes
Judith J Korterink, Lize E Ockeloen, Mirrian Hilbink, Marc A Benninga, Judith M Deckers-Kocken
OBJECTIVES: The aim of the present study was to compare effects of 10 weeks of yoga therapy (YT) and standard medical care (SMC) on abdominal pain and quality of life (QoL) in children with abdominal pain-related functional gastrointestinal disorders (AP-FGIDs). METHODS: Sixty-nine patients, ages 8 to 18 years, with AP-FGIDs, were randomized to SMC complemented with YT or SMC alone. YT is a mixture of yoga poses, meditation, and relaxation exercises and was given once a week in group sessions...
November 2016: Journal of Pediatric Gastroenterology and Nutrition
Snæfrídur T Egilson, Linda B Ólafsdóttir, Thóra Leósdóttir, Evald Saemundsen
Studies have shown parents to report lower quality of life for their children with autism spectrum disorder than children's self-report scores and the same applies for data on typically developing children. Our objectives were to: (1) explore how high-functioning children with autism spectrum disorder rate their quality of life compared with paired controls without autism spectrum disorder; (2) explore how parents of high-functioning children with autism spectrum disorder rate their children's quality of life compared with parents of paired controls; and (3) compare child self-reports of quality of life with their parent's proxy-reports for both groups of children...
April 5, 2016: Autism: the International Journal of Research and Practice
Daniela Jelenova, Jan Prasko, Marie Ociskova, Klara Latalova, Eva Karaskova, Radovan Hruby, Dana Kamaradova, Vladimir Mihal
BACKGROUND: Inflammatory bowel diseases (IBDs) in adolescents are chronic medical conditions with a substantial influence on the quality of life (QoL) of the families. METHODS: A total of 27 adolescents suffering from IBD, 39 healthy adolescents, and their parents were included in the cross-sectional study. The adolescents completed the questionnaires ADOR (parenting styles), KidScreen-10 (QoL), SAD (The Scale of Anxiety in Children), and CDI (Children's Depression Inventory)...
2016: Neuropsychiatric Disease and Treatment
Satoko Nezu, Hidemi Iwasaka, Keigo Saeki, Kenji Obayashi, Rika Ishizuka, Hideyo Goma, Yasuko Furuichi, Norio Kurumatani
No abstract text is available yet for this article.
March 31, 2016: Environmental Health and Preventive Medicine
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