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Nick Kontodimopoulos, Konstantia Damianou, Eleni Stamatopoulou, Anastasios Kalampokis, Ioannis Loukos
The aim of this study is to compare child and parent perceptions of health-related quality of life in Adolescent Idiopathic Scoliosis. The scoliosis-specific SRS-22 and the generic KIDSCREEN-52 were administered to newly diagnosed patients and the latter also to a parent. Strong correlations (r > 0.5, p < 0.001) were revealed between conceptually similar dimensions of the instruments. Parents' assessments of their child's HRQoL were generally higher than the children/adolescents; however score differences were small and insignificant...
June 2018: Journal of Orthopaedics
Catarina Garcia, Júlia Teles, Carlos Barrigas, Isabel Fragoso
PURPOSE: The purpose of this study was to analyze the relationship between biological maturation and health-related quality of life (HRQoL) in Portuguese children and adolescents of both sexes when the effect of chronological age (CA) and volume of physical activity (VPA) were removed. METHODS: HRQoL, biological maturation, CA, and VPA were assessed in 750 children and adolescents, 11-17 years old, from 3 schools in Lisbon, Portugal. The KIDSCREEN-52 was used to assess HRQoL...
March 3, 2018: Quality of Life Research
Ute Deutz, Nicole Heussen, Katharina Weigt-Usinger, Steffen Leiz, Christa Raabe, Tilman Polster, Steinbüchel Daniela, Christine Moll, Thomas Lücke, Ingeborg Krägeloh-Mann, Helmut Hollmann, Martin Häusler
This study investigated the effect of hippotherapy on gross motor function (Gross Motor Function Measure [GMFM]-66, GMFM dimension E and D) and quality of life (Child Health Questionnaire [CHQ 28], KIDSCREEN-27 parental versions) in children with bilateral spastic cerebral palsy. Seventy-three children (age: 9.1 ± 3.3 years; male = 44; GMFCS levels II = 27; III = 17; IV = 29) were randomized to an early ( n  = 35) or late ( n  = 38) treatment group. Data from 66 probands were available for further analysis...
February 27, 2018: Neuropediatrics
Priscila Caçola, Michael Killian
BACKGROUND AND AIMS: One of the major concerns for Developmental Coordination Disorder (DCD) are the mental and physical consequences of the condition, especially as they relate to quality of life factors. Here, we examined health-related quality of life (HRQOL) in children with DCD, determined the association between two standardized parent reports, and compared HRQOL of our sample with DCD with the normative sample of each assessment for typically developing (TD) children and a sample of children with chronic health conditions...
February 23, 2018: Research in Developmental Disabilities
So Hee Lee, Hee Sun Nam, Hak Beom Kim, Eun Ji Kim, Jin-Won Noh, Jeong-Ho Chae
Objective: The Sewol ferry disaster caused shock and grief in South Korea. The aim of this study was to identify the factors associated with symptoms of complicated grief (CG) among the surviving students 20 months after that disaster. Methods: This study was conducted using a cross-sectional design and a sample of 57 students who survived the Sewol ferry disaster. Data were collected using the following instruments: Inventory of Complicated Grief (ICG), the Lifetime Incidence of Traumatic Events-Child, the Child Report of Post-Traumatic Symptoms (CROPS), KIDSCREEN-27, Family Adaptability and Cohesion Evaluation Scales-III, the Peri-traumatic Dissociation-Post-traumatic Negative Beliefs-Post-traumatic Social Support scale, and the Strengths and Difficulties Questionnaire...
February 22, 2018: Psychiatry Investigation
Elien De Caluwé, Lize Verbeke, Marcel van Aken, Paul T van der Heijden, Barbara De Clercq
The inclusion of a dimensional trait model of personality pathology in DSM-5 creates new opportunities for research on developmental antecedents of personality pathology. The traits of this model can be measured with the Personality Inventory for DSM-5 (PID-5), initially developed for adults, but also demonstrating validity in adolescents. The present study adds to the growing body of literature on the psychometrics of the PID-5, by examining its structure, validity, and reliability in 187 psychiatric-referred late adolescents and emerging adults...
February 22, 2018: Journal of Personality Disorders
R Sommer, J Blömeke, M Bullinger, J Quitmann
PURPOSE: This study aimed to validate the disease-specific "quality of life in short stature youth (QoLISSY)-instrument" that assessesQuery the health-related quality of life (HrQoL) in German children and adolescents diagnosed as small for gestational age (SGA) in a patient and parent report. METHODS: The psychometric performance of the German version of the QoLISSY questionnaire was examined in terms of reliability and validity in 65 SGA families (17 child reports/64 parent reports) and compared to the psychometric performance of the original European QoLISSY dataset of over 200 children with growth hormone deficiency and idiopathic short stature (ISS)...
February 17, 2018: Journal of Endocrinological Investigation
Elin Öst, Björn Frenckner, Margret Nisell, Carmen Mesas Burgos, Maria Öjmyr-Joelsson
PURPOSE: The aim of this study was to examine health-related quality of life (HRQoL) in children born with congenital diaphragmatic hernia (CDH). METHODS: Between 1993 and 2003, a total of 102 children born with CDH were treated at Astrid Lindgren Children's hospital in Stockholm. In 2012, long-term survivors (n = 77) were asked to participate in the present study, which resulted in a 46% (n = 35) response rate. The KIDSCREEN-52 questionnaire was used for measuring HRQoL and a detailed review of medical records was performed...
February 16, 2018: Pediatric Surgery International
Sofia Evaristo, Carla Moreira, Rute Santos, Luís Lopes, Sandra Abreu, César Agostinis-Sobrinho, José Oliveira-Santos, Jorge Mota
Background In adolescence there are several biological and physiological changes associated with overweight and obesity. Objective The purpose of this study was to analyze the associations between health-related quality of life (HRQoL) and body mass index (BMI) in adolescents. Methods This is a cross-sectional analysis of 957 Portuguese adolescents (446 girls and 511 boys) aged 12-18 years. A series of variables were collected: (a) HRQoL was assessed using the KIDSCREEN-10 questionnaire; (b) socioeconomic status (SES) was measured using the Family Affluence Scale; (c) body composition (weigh, height) were measured and BMI was calculated and, (d) pubertal stage was assessed with Tanner stages; (e) the 20-m shuttle-run was used to estimate cardiorespiratory fitness...
February 12, 2018: International Journal of Adolescent Medicine and Health
Beatriz Tosé Agathão, Michael Eduardo Reichenheim, Claudia Leite de Moraes
This study aimed to evaluate the perception of health related quality of life (HRQoL) of adolescent students. This is a cross-sectional study with 807 adolescents aged 10 to 17 years from two public schools of Niteroi and four private schools of Rio de Janeiro and São Gonçalo. Information on HRQoL was obtained by a reduced version of the Kidscreen questionnaire with 27 items. Student t tests were used to assess the perception of HRQoL stratified by type of school, gender, age and ownership of assets. We used linear regression models to evaluate HRQoL settings...
February 2018: Ciência & Saúde Coletiva
Elise Burger, Ruud Selles, Shelly van Nieuwkasteele, Gert Bessems, Virginie Pollet, Steven Hovius, Christianne van Nieuwenhoven
BACKGROUND: The purpose of this study is to develop a Dutch version of the Oxford Ankle and Foot Questionnaire for Children (OxAFQ-c) to allow evaluation of pediatric foot care. METHODS: The OxAFQ-c was translated into Dutch, according to the ISPOR-guidelines. Children with different foot and ankle complaints completed the OxAFQ-c at baseline, after two weeks, and after 4-6 months. Measurement properties were assessed in terms of reliability, responsiveness, and construct validity...
November 4, 2017: Foot and Ankle Surgery: Official Journal of the European Society of Foot and Ankle Surgeons
Joanna Mazur, Monika Szkultecka-Dębek, Anna Dzielska, Mariola Drozd, Agnieszka Małkowska-Szkutnik
Introduction: The Cantril Scale (CS) is a simple visual scale which makes it possible to assess general life satisfaction. The result may depend on the health, living, and studying conditions, and quality of social relations. The objective of this study is to identify key factors influencing the CS score in Polish adolescents. Material and methods: The survey comprised 1,423 parent-child pairs (54% girls; age range: 10-17; 67.3% urban inhabitants; 89.4% of parents were mothers)...
January 2018: Archives of Medical Science: AMS
Dorothea Dumuid, Carol Maher, Lucy K Lewis, Tyman E Stanford, Josep Antoni Martín Fernández, Julie Ratcliffe, Peter T Katzmarzyk, Tiago V Barreira, Jean-Philippe Chaput, Mikael Fogelholm, Gang Hu, José Maia, Olga L Sarmiento, Martyn Standage, Mark S Tremblay, Catrine Tudor-Locke, Timothy Olds
PURPOSE: Health-related quality of life has been related to physical activity, sedentary behavior, and sleep among children from developed nations. These relationships have rarely been assessed in developing nations, nor have behaviors been considered in their true context, as mutually exclusive and exhaustive parts of the movement behavior composition. This study aimed to explore whether children's health-related quality of life is related to their movement behavior composition and if the relationship differs according to human development index...
January 23, 2018: Quality of Life Research
Nora Shields, Helen Leonard, Shannon Munteanu, Jennifer Bourke, Polly Lim, Nicholas F Taylor, Jenny Downs
AIM: To describe health-related quality of life of Australian children and adolescents with Down syndrome and compare it with norm-referenced data. METHOD: A cross-sectional survey was conducted with parents of 75 children and adolescents (43 males, 32 females) with Down syndrome aged 5 to 18 years (mean age 13y 2mo, SD 4y 8mo). The proxy-report KIDSCREEN-27 questionnaire was administered and five dimensions of health-related quality of life were measured. Data were analysed descriptively and compared with normative data...
January 23, 2018: Developmental Medicine and Child Neurology
C M Gómez-Henao, C I Herrera-Morales, R Ramírez-Giraldo, R Cardona-Villa
Vernal keratoconjunctivitis is one of the most serious ocular allergies that have the potential to induce large ocular morbidity and significant visual changes affecting the quality of life of these individuals. METHODOLOGY: This study was conducted in two phases. The first phase consisted of the clinical characterization of 32 patients from the Clinical Allergology center of the I.P.S. Universitaria from July 2014 to February 2015. A retrospective analysis of medical records was performed...
January 12, 2018: Allergologia et Immunopathologia
Christiane Otto, Anne-Catherine Haller, Fionna Klasen, Heike Hölling, Monika Bullinger, Ulrike Ravens-Sieberer
AIMS: Cross-sectional studies demonstrated associations of several sociodemographic and psychosocial factors with generic health-related quality of life (HRQoL) in children and adolescents. However, little is known about factors affecting the change in child and adolescent HRQoL over time. This study investigates potential psychosocial risk and protective factors of child and adolescent HRQoL based on longitudinal data of a German population-based study. METHODS: Data from the BELLA study gathered at three measurement points (baseline, 1-year and 2-year follow-ups) were investigated in n = 1,554 children and adolescents aged 11 to 17 years at baseline...
2017: PloS One
Rosa M Fuentes Chacón, M José Simón Saiz, Margarita Garrido Abejar, M Dolores Serrano Parra, M Elisa Larrañaga Rubio, Santiago Yubero Jiménez
AIM: To analyze, in a population of adolescents in school, the relationship between psychosomatic symptoms and the perception of health-related quality of life (HRQoL), differentiating by gender and age group. DESIGN: Transversal study. LOCATION: Five Secondary Schools. PARTICIPANTS: Eight hundred and forty four adolescents between the ages of 15 and 18 in secondary school. MAIN MEASUREMENTS: HRQoL using KIDSCREEN-52 and psychosomatic symptoms with the psychosomatic problems scale (PSP)...
December 4, 2017: Atencion Primaria
Tatiana Rehder Gonçalves, Mauro Felippe Felix Mediano, Rosely Sichieri, Diana Barbosa Cunha
STUDY DESIGN: Cross-sectional study OBJECTIVE.: To evaluate the association between back pain and health-related quality of life (HRQoL) among adolescents. SUMMARY OF BACKGROUND DATA: The prevalence of back pain has been increasing not only in the adult population but also among children and adolescents. The better knowledge about the association between back pain and health-related quality of life could facilitate the implementation of new intervention strategies on prevention and treatment of back pain...
December 5, 2017: Spine
Hilary Hoey, Karin Lange, T C Skinner, Henrik Mortensen, Peter Swift, Henk-Jan Aanstoot, Luis Castaňo, Fergus Cameron, Carine de Beaufort
BACKGROUND: Few diabetes-specific quality of life (QOL) tools are available for young children. OBJECTIVES: To design and evaluate, a new age-specific QOL questionnaire and its associations with treatment regimens and metabolic control. METHODS: Clinical, demographic data and centrally analyzed HbA1c were collected on 1133 children <11 years (girls 48%; mean ± SD age 8.0 ± 2.1 years; diabetes duration ≥1 year) from 18 centers (Europe, Japan, North America and Australia)...
November 22, 2017: Pediatric Diabetes
Konrad M Szymański, Rosalia Misseri, Benjamin Whittam, Jessica T Casey, David Y Yang, Sonia-Maria Raposo, Shelly J King, Martin Kaefer, Richard C Rink, Mark P Cain
Introduction: We aimed to develop and validate a self-reported QUAlity of Life Assessment in Spina bifida for Teenagers (QUALAS-T). Material and methods: We drafted a 46-question pilot instrument using a patient-centered comprehensive item generation/refinement process. A group of 13-17 years olds with spina bifida (SB) was recruited online via social media and in person at SB clinics (2013-2015). Healthy controls were recruited during routine pediatrician visits...
2017: Central European Journal of Urology
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