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https://www.readbyqxmd.com/read/28803331/impact-of-monitoring-health-related-quality-of%C3%A2-life-in-clinical-practice-in-children-with-type-1-diabetes-mellitus
#1
Marta Murillo, Joan Bel, Jacobo Pérez, Raquel Corripio, Gemma Carreras, Xavier Herrero, Josep-Maria Mengibar, Dolors Rodriguez-Arjona, Ulrike Ravens-Sieberer, Hein Raat, Luis Rajmil
PURPOSE: To test whether the systematic monitoring of health-related quality of life (HRQOL) in clinical practice in Spanish pediatric patients with T1DM helps improve their daily life in a multicenter longitudinal study. METHODS: One hundred thirty-six patients participated, recruited from five centers in Barcelona, Spain (72 girls, mean age 13.4 years). Complete data were collected for 119 patients (85%). Pediatricians were randomly assigned to the HRQOL intervention (n = 70), or control group (n = 49)...
August 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28796983/the-quality-of-life-among-middle-school-adolescents-in-krakow
#2
Agnieszka Magiera, Agata Sowa, Ryszard Jacek, Agnieszka Pac
AIM: The aim of the study was to describe the quality of life of Polish adolescents living in a big city and to investigate whether there are differences in this respect between girls and boys. Moreover, we would like to compare the results concerning the quality of life of the screened adolescents from Krakow with those of their European peers. MATERIAL AND METHODS: The survey was carried out in 2013-2015 in 17 middle schools in Krakow based on anonymous auditorium questionnaires...
2017: Developmental Period Medicine
https://www.readbyqxmd.com/read/28795347/health-related-quality-of-life-in-individuals-with-down-syndrome-results-from-a-non-interventional-longitudinal-multi-national-study
#3
Diana Rofail, Daniel Froggatt, Rafael de la Torre, Jamie Edgin, Priya Kishnani, Renaud Touraine, Sarah Whitwham, Lisa Squassante, Omar Khwaja, Xavier Liogier D'Ardhuy
INTRODUCTION: To date, there is little research on health-related quality of life (HRQoL) in Down syndrome (DS), and existing research is variable with regard to reported HRQoL in DS. There are also no HRQoL measures developed specifically to be used with individuals with Down syndrome. METHODS: A multi-national, longitudinal, 24-week non-interventional study was conducted in adolescents and adults with DS. HRQoL was assessed (n = 90) using the parent-report KIDSCREEN-27 questionnaire...
August 9, 2017: Advances in Therapy
https://www.readbyqxmd.com/read/28738818/health-related-quality-of-life-and-pain-in-children-and-adolescents-a-school-survey
#4
Kristin Haraldstad, Knut-Andreas Christophersen, Sølvi Helseth
BACKGROUND: Pain problems are common in children and adolescents. Measures of health-related quality of life (HRQoL) can be used to assess children's subjective perspectives of pain experience and its impact on their life. The aims of the study were to describe HRQoL and the prevalence of pain in a nonclinical population of children and adolescents, and to analyze the relationships between HRQoL, pain, sex, and age in a sample of children and adolescents aged 8-18 years. METHODS: This cross-sectional study involved a cluster sample of 20 randomly selected schools drawn within a region of Norway...
July 24, 2017: BMC Pediatrics
https://www.readbyqxmd.com/read/28680560/health-related-quality-of-life-among-schoolchildren-aged-12-13%C3%A2-years-in-relation-to-food-hypersensitivity-phenotypes-a-population-based-study
#5
Åsa Strinnholm, Linnéa Hedman, Anna Winberg, Sven-Arne Jansson, Viveca Lindh, Eva Rönmark
BACKGROUND: While Health Related Quality of Life has been investigated among children with IgE-mediated food allergy, less is known about quality of life among children with other types of hypersensitivity to food. The aim of this study was to investigate Health Related Quality of Life (HRQL) in children with and without food hypersensitivity. Further, we compared HRQL between children with different phenotypes of food hypersensitivity. METHODS: In a large population-based cohort of schoolchildren in Northern Sweden, the parents of 2612 (96% of invited) completed a questionnaire...
2017: Clinical and Translational Allergy
https://www.readbyqxmd.com/read/28676060/the-development-of-a-health-related-quality-of-life-instrument-for-young-people-with-narcolepsy-narqol-21
#6
John E Chaplin, Attila Szakács, Tove Hallböök, Niklas Darin
BACKGROUND: Narcolepsy is a lifelong sleep disorder with a prevalence of between 0.03% and 0.06% and onset at around puberty. It is associated with psychiatric comorbidities and cognitive difficulties. No valid and reliable condition-specific health-related quality-of-life (HrQoL) instrument has been developed for this population. METHODS: A questionnaire based on four mixed-gender age-defined focus group discussions and a patient panel analysis was administered to young people with narcolepsy and a control group...
July 4, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28656535/associations-between-health-related-quality-of-life-cardiorespiratory-fitness-muscle-strength-physical-activity-and-waist-circumference-in-10-year-old-children-the-ask-study
#7
John Roger Andersen, Gerd Karin Natvig, Eivind Aadland, Vegard Fusche Moe, Ronette L Kolotkin, Sigmund A Anderssen, Geir Kåre Resaland
PURPOSE: To examine the associations between cardiorespiratory fitness, muscle strength, physical activity and waist circumference with self-reported health-related quality of life (HRQoL) in children. METHODS: We conducted a cross-sectional analysis that included 1129 school children aged 10 years from 57 schools in Sogn and Fjordane County, Norway. The HRQoL outcome was assessed by the self-reported KIDSCREEN-27 questionnaire, which covers five life domains. Independent variables were cardiorespiratory fitness assessed by the Andersen intermittent field running test, handgrip strength measured by a hand dynamometer, explosive strength in the lower body using a standing broad jump test, physical activity (counts per minute) using an accelerometer and abdominal adiposity measured by waist circumference...
June 27, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28620875/predictors-of-health-related-quality-of-life-in-maltreated-children-and-adolescents
#8
Sabine Weber, Andreas Jud, Markus A Landolt, Lutz Goldbeck
PURPOSE: Research on the consequences of child maltreatment has primarily focused on behavior and mental health; the children's overall well-being has not received the same attention. A number of studies have investigated health-related quality of life (HRQoL) among victims of child maltreatment, but there is still a lack of knowledge about predictors of HRQoL in maltreated children and adolescents. This study seeks to bridge the gap by drawing data from the German multi-site study Child Abuse and Neglect Case-Management (CANMANAGE)...
June 15, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28529537/a-web-based-tool-for-automatic-data-collection-curation-and-visualization-of-complex-healthcare-survey-studies-including-social-network-analysis
#9
José Alberto Benítez, José Emilio Labra, Enedina Quiroga, Vicente Martín, Isaías García, Pilar Marqués-Sánchez, Carmen Benavides
There is a great concern nowadays regarding alcohol consumption and drug abuse, especially in young people. Analyzing the social environment where these adolescents are immersed, as well as a series of measures determining the alcohol abuse risk or personal situation and perception using a number of questionnaires like AUDIT, FAS, KIDSCREEN, and others, it is possible to gain insight into the current situation of a given individual regarding his/her consumption behavior. But this analysis, in order to be achieved, requires the use of tools that can ease the process of questionnaire creation, data gathering, curation and representation, and later analysis and visualization to the user...
2017: Computational and Mathematical Methods in Medicine
https://www.readbyqxmd.com/read/28484600/health-related-quality-of-life-and-psychopathological-distress-in-risk-taking-and-self-harming-adolescents-with-full-syndrome-subthreshold-and-without-borderline-personality-disorder-rethinking-the-clinical-cut-off
#10
Michael Kaess, Gloria Fischer-Waldschmidt, Franz Resch, Julian Koenig
BACKGROUND: Diagnostic standards do not acknowledge developmental specifics and differences in the clinical presentation of adolescents with borderline personality disorder (BPD). BPD is associated with severe impairments in health related quality of life (HRQoL) and increased psychopathological distress. Previously no study addressed differences in HRQoL and psychopathology in adolescents with subthreshold and full-syndrome BPD as well as adolescents at-risk for the development but no current BPD...
2017: Borderline Personality Disorder and Emotion Dysregulation
https://www.readbyqxmd.com/read/28427034/taxometric-analyses-and-predictive-accuracy-of-callous-unemotional-traits-regarding-quality-of-life-and-behavior-problems-in-non-conduct-disorder-diagnoses
#11
Pierre C M Herpers, Helen Klip, Nanda N J Rommelse, Mark J Taylor, Corina U Greven, Jan K Buitelaar
Callous-unemotional (CU) traits have mainly been studied in relation to conduct disorder (CD), but can also occur in other disorder groups. However, it is unclear whether there is a clinically relevant cut-off value of levels of CU traits in predicting reduced quality of life (QoL) and clinical symptoms, and whether CU traits better fit a categorical (taxonic) or dimensional model. Parents of 979 youths referred to a child and adolescent psychiatric clinic rated their child's CU traits on the Inventory of Callous-Unemotional traits (ICU), QoL on the Kidscreen-27, and clinical symptoms on the Child Behavior Checklist...
April 5, 2017: Psychiatry Research
https://www.readbyqxmd.com/read/28351351/the-influence-of-participation-in-target-shooting-sport-for-children-with-inattentive-hyperactive-and-impulsive-symptoms-a-controlled-study-of-best-practice
#12
Annegrete Gohr Månsson, Mette Elmose, Søren Dalsgaard, Kirsten K Roessler
BACKGROUND: Practising target-shooting sport requires focused attention and motoric steadiness. A previous non-controlled pilot study suggests that children with impairing symptoms of attention-deficit/hyperactivity disorder (ADHD) benefit from participating in target-shooting sport in local shooting associations, as rated by parents and teachers. This study aims at examining if, and to which extent, target-shooting sport reduces parent- and teacher-reported severity of inattentiveness, hyperactivity, and impulsivity in children with attention difficulties, and if, and to which extend, target-shooting sport improves the children's wellbeing and quality of life...
March 28, 2017: BMC Psychiatry
https://www.readbyqxmd.com/read/28345180/population-based-study-shows-that-teenage-girls-with-asthma-had-impaired-health-related-quality-of-life
#13
Linnea Hedman, Caroline Stridsman, Martin Andersson, Helena Backman, Sven-Arne Jansson, Eva Rönmark
AIM: This study examined the health-related quality of life (HRQoL) of teenagers with and without asthma, including the impact of their sex, allergic conditions, smoking, living conditions and physical activity. METHODS: The Obstructive Lung Disease in Northern Sweden (OLIN) studies recruited a cohort of schoolchildren in 2006. The parents of all children aged seven to eight years in three municipalities were invited to complete a questionnaire and 2585 (96%) participated...
March 27, 2017: Acta Paediatrica
https://www.readbyqxmd.com/read/28277094/quality-of-life-and-adolescents-communication-with-their-significant-others-mother-father-and-best-friend-the-mediating-effect-of-attachment-to-pets
#14
Ferran Marsa-Sambola, Joanne Williams, Janine Muldoon, Alistair Lawrence, Melanie Connor, Candace Currie
The relationship between adolescents' communication with their significant others (mother, father, and best friend) and quality of life (KIDSCREEN) was investigated in 2262 Scottish adolescent pet owners. The variable attachment to pets was also tested and assessed as a mediator of this relationship. A positive relationship between adolescents' communication with their significant other (mother, father, and best friend) and quality of life decreased when controlling for attachment to dogs. In cat owners, a positive relationship between communication with a best friend and quality of life decreased when controlling for attachment to cats...
February 20, 2017: Attachment & Human Development
https://www.readbyqxmd.com/read/28199002/validating-the-shortened-quality-of-life-in-childhood-epilepsy-questionnaire-qolce-55-in-a-sample-of-children-with-drug-resistant-epilepsy
#15
Lauryn Conway, Elysa Widjaja, Mary Lou Smith, Kathy N Speechley, Mark A Ferro
OBJECTIVE: The aim of this study was to validate the newly developed shortened Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55) in a sample of children with drug-resistant epilepsy. METHODS: Data came from 136 children enrolled in the Impact of Pediatric Epilepsy Surgery on Health-Related Quality of Life Study (PEPSQOL), a multicenter prospective cohort study. Confirmatory factor analysis was used to assess the higher-order factor structure of the QOLCE-55...
April 2017: Epilepsia
https://www.readbyqxmd.com/read/28196383/health-related-quality-of-life-of-children-adolescents-with-vertigo-retrospective-study-from-the-german-center-of-vertigo-and-balance-disorders
#16
Anna Deissler, Lucia Albers, Rüdiger von Kries, Raphael Weinberger, Thyra Langhagen, Lucia Gerstl, Florian Heinen, Klaus Jahn, A Sebastian Schröder
Purpose To assess the impact of vertigo on health-related quality of life (HrQoL) of children/adolescents and to assess if the impact on HrQoL varies by age group, gender, and type of vertigo diagnoses. Methods A retrospective analysis was performed on the clinical and HrQoL data of children and adolescents referred to the German Center of Vertigo and Balance Disorders (n = 32; male = 17; female = 15; age range: 8-18 years), using the KIDSCREEN-52 questionnaire. For each scale, means of the Z-scores with 95% confidence intervals of the study and norm sample were compared...
April 2017: Neuropediatrics
https://www.readbyqxmd.com/read/28175989/predictors-of-health-related-quality-of-life-in-boys-with-duchenne-muscular-dystrophy-from-six-european-countries
#17
MULTICENTER STUDY
Christiane Otto, Birgit F Steffensen, Ann-Lisbeth Højberg, Claus Barkmann, Jes Rahbek, Ulrike Ravens-Sieberer, Annette Mahoney, Julia Vry, Kathrin Gramsch, Rachel Thompson, Sunil Rodger, Kate Bushby, Hanns Lochmüller, Janbernd Kirschner
Duchenne muscular dystrophy (DMD) is a progressive, genetically determined neuromuscular disease that affects males and leads to severe physical disability in early teenage years. Over the last decades, patient-reported outcomes such as Health-Related Quality of Life (HRQoL) gained great interest in clinical research. However, little is known about factors affecting HRQoL in boys with DMD. Data from the multi-center CARE-NMD project of boys with DMD from six European countries collected between 2011 and 2012 were analyzed (8-17 years old; n = 321)...
April 2017: Journal of Neurology
https://www.readbyqxmd.com/read/28130968/the-association-between-healthy-lifestyle-behaviors-and-health-related-quality-of-life-among-adolescents
#18
José J Muros, Federico Salvador Pérez, Félix Zurita Ortega, Vanesa M Gámez Sánchez, Emily Knox
OBJECTIVE: The aim of this research was to examine the association between body mass index, physical activity, adherence to the Mediterranean diet, and health-related quality of life in a sample of Spanish adolescents. METHOD: The study involved 456 adolescents aged between 11 and 14 years. They completed questionnaires on the Mediterranean diet (KIDMED), physical activity (Physical Activity Questionnaire for Older Children [PAQ-C]), and quality of life (KIDSCREEN-27)...
January 25, 2017: Jornal de Pediatria
https://www.readbyqxmd.com/read/28110883/predictors-of-parent-reported-quality-of-life-of-adolescents-with-cerebral-palsy-a-longitudinal-study
#19
Marion Rapp, Nora Eisemann, Catherine Arnaud, Virginie Ehlinger, Jérôme Fauconnier, Marco Marcelli, Susan I Michelsen, Malin Nystrand, Allan Colver, Ute Thyen
AIM: Parent-reporting is needed to examine Quality of Life (QoL) of children with cerebral palsy (CP) across all severities. This study examines whether QoL changes between childhood and adolescence, and what predicts adolescent QoL. METHOD: SPARCLE is a European cohort study of children with CP, randomly sampled from population databases. Of 818 8-12-year-olds joining the study, 594 (73%) were revisited as 13-17-year-olds. The subject of this report is the 551 (316 boys, 235 girls) where the same parent reported QoL on both occasions using KIDSCREEN-52 (transformed Rasch scale, mean 50, SD 10 per domain)...
March 2017: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/28086765/health-related-quality-of-life-hrqol-and-its-associated-factors-in-children-with-type-1-diabetes-mellitus-t1dm
#20
Marta Murillo, Joan Bel, Jacobo Pérez, Raquel Corripio, Gemma Carreras, Xavier Herrero, Josep-Maria Mengibar, Dolors Rodriguez-Arjona, Ulrike Ravens-Sieberer, Hein Raat, Luis Rajmil
BACKGROUND: The objective of the study was to describe the baseline health-related quality of life (HRQOL) in a cohort of children and adolescents with type 1 diabetes mellitus (T1DM), and analyze its associated clinical and sociodemographic factors, assessing HRQOL through internet. METHODS: This was a descriptive study of 136 patients with T1DM from 5 hospitals in Catalonia, Spain (72 girls, mean age 13.4 years (range 8-19). Inclusion criteria were more than 6 months from diagnosis, more than 8 years old and without cognitive problems...
January 13, 2017: BMC Pediatrics
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