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ethnic framework communication

Charlotte Tompkins, Karen Scanlon, Emma Scott, Emma Ream, Seeromanie Harding, Jo Armes
BACKGROUND: As the number of breast cancer survivors continues to rise, Western populations become more ethnically and socially diverse and healthcare resources become ever-more stretched, follow-up that focuses on monitoring for recurrence is no longer viable. New models of survivorship care need to ensure they support self-management and are culturally appropriate across diverse populations. This study explored experiences and expectations of a multi-ethnic sample of women with breast cancer regarding post-treatment care, in order to understand potential barriers to receiving care and inform new models of survivorship care...
August 18, 2016: BMC Health Services Research
Edwina A Brown, Hilary L Bekker, Sara N Davison, Jonathan Koffman, Jane O Schell
Historic migration and the ever-increasing current migration into Western countries have greatly changed the ethnic and cultural patterns of patient populations. Because health care beliefs of minority groups may follow their religion and country of origin, inevitable conflict can arise with decision making at the end of life. The principles of truth telling and patient autonomy are embedded in the framework of Anglo-American medical ethics. In contrast, in many parts of the world, the cultural norm is protection of the patient from the truth, decision making by the family, and a tradition of familial piety, where it is dishonorable not to do as much as possible for parents...
August 10, 2016: Clinical Journal of the American Society of Nephrology: CJASN
Sarah T Hawley, Arden M Morris
OBJECTIVE: Engaging patients in their health care through shared decision-making is a priority embraced by several national and international groups. Missing from these initiatives is an understanding of the challenges involved in engaging patients from diverse backgrounds in shared decision-making. In this commentary, we summarize some of the challenges and pose points for consideration regarding how to move toward more culturally appropriate shared decision-making. DISCUSSION: The past decade has seen repeated calls for health policies, research projects and interventions that more actively include patients in decision making...
July 4, 2016: Patient Education and Counseling
Tetine L Sentell, Todd B Seto, Malia M Young, May Vawer, Michelle L Quensell, Kathryn L Braun, Deborah A Taira
BACKGROUND: Potentially preventable hospitalizations (PPH) for heart failure (HF) and diabetes mellitus (DM) cost the United States over $14 billion annually. Studies about PPH typically lack patient perspectives, especially across diverse racial/ethnic groups with known PPH health disparities. METHODS: English-speaking individuals with a HF or DM-related PPH (n = 90) at the largest hospital in Hawai'i completed an in-person interview, including open-ended questions on precipitating factors to their PPH...
2016: BMC Health Services Research
Job G Godino, Gina Merchant, Gregory J Norman, Michael C Donohue, Simon J Marshall, James H Fowler, Karen J Calfas, Jeannie S Huang, Cheryl L Rock, William G Griswold, Anjali Gupta, Fredric Raab, B J Fogg, Thomas N Robinson, Kevin Patrick
BACKGROUND: Few weight loss interventions are evaluated for longer than a year, and even fewer employ social and mobile technologies commonly used among young adults. We assessed the efficacy of a 2 year, theory-based, weight loss intervention that was remotely and adaptively delivered via integrated user experiences with Facebook, mobile apps, text messaging, emails, a website, and technology-mediated communication with a health coach (the SMART intervention). METHODS: In this parallel-group, randomised, controlled trial, we enrolled overweight or obese college students (aged 18-35 years) from three universities in San Diego, CA, USA...
September 2016: Lancet Diabetes & Endocrinology
Matthew D Trujillo, Alonzo Plough
For generations, Americans' health has been unequally influenced by income, education, ethnicity, and geography. Health care systems have operated largely apart from each other and from community life. The definition of health has been the "absence of illness," rather than the recognition that all aspects of our lives should support health. Today, a growing number of communities, regions, and states are working to redefine what it means to get and stay healthy by addressing the multiple determinants of health...
September 2016: Social Science & Medicine
Margaret A Handley, Elizabeth Harleman, Enrique Gonzalez-Mendez, Naomi E Stotland, Priyanka Althavale, Lawrence Fisher, Diana Martinez, Jocelyn Ko, Isabel Sausjord, Christina Rios
BACKGROUND: One of the fastest growing risk groups for early onset of diabetes is women with a recent pregnancy complicated by gestational diabetes, and for this group, Latinas are the largest at-risk group in the USA. Although evidence-based interventions, such as the Diabetes Prevention Program (DPP), which focuses on low-cost changes in eating, physical activity and weight management can lower diabetes risk and delay onset, these programs have yet to be tailored to postpartum Latina women...
2016: Implementation Science: IS
David Collister, Randall Russell, Josee Verdon, Monica Beaulieu, Adeera Levin
PURPOSE OF REVIEW: To summarize a jointly held symposium by the Canadian Society of Nephrology (CSN), the Canadian Association of Nephrology Administrators (CANA), and the Canadian Kidney Knowledge Translation and Generation Network (CANN-NET) entitled "Perspectives on Optimizing Care of Patients in Multidisciplinary Chronic Kidney Disease (CKD) Clinics" that was held on April 24, 2015, in Montreal, Quebec. SOURCES OF INFORMATION: The panel consisted of a variety of members from across Canada including a multidisciplinary CKD clinic patient (Randall Russell), nephrology fellow (Dr...
2016: Canadian Journal of Kidney Health and Disease
Alejandra Hurtado-de-Mendoza, Mark L Cabling, Tania Lobo, Chiranjeev Dash, Vanessa B Sheppard
Adjuvant hormone therapy contributes to reductions in recurrence and mortality for women with hormone receptor-positive breast cancer. However, adherence to hormone therapy is suboptimal. This is the first systematic literature review examining interventions aimed at improving hormone therapy adherence. Researchers followed the PRISMA guidelines. PubMed-Medline, CINAHL, PsychInfo, Ovid-Medline, and EMBASE were searched for behavioral interventions that aimed to enhance adherence to adjuvant hormone therapy in breast cancer survivors...
August 2016: Clinical Breast Cancer
Ryan P Theis, Jevetta C Stanford, J Robyn Goodman, Lisa L Duke, Elizabeth A Shenkman
BACKGROUND: With an increased emphasis on patient-centred outcomes and research, investigators seek to understand aspects of health care that are most important to patients. Such information is essential for developing report cards that present health-care quality information for consumers, which many states are adopting as a strategy to promote consumer choice. OBJECTIVE: This study examined the processes that women in Medicaid follow for selecting health plans and explored their definitions of 'good' and 'poor' quality health care...
April 28, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
Merle R Kataoka-Yahiro, Sandra McFarlane, Jeannette Koijane, Dongmei Li
Between 2013 and 2030, older adults 65 years and older of racial/ethnic populations in the U.S. is projected to increase by 123% in comparison to the Whites (Non-Hispanics). To meet this demand, training of ethnically diverse health staff in long-term care facilities in palliative and hospice care is imperative. The purpose of this study was to evaluate a palliative and hospice care training of staff in two nursing homes in Hawaii - (a) to evaluate knowledge and confidence over three time periods, and (b) to compare staff and family caregiver satisfaction at end of program...
March 29, 2016: American Journal of Hospice & Palliative Care
Nazleen Bharmal, Anna Aziza Lucas-Wright, Stefanie D Vassar, Felica Jones, Loretta Jones, Rebekah Wells, Jason Cienega, Arleen F Brown
BACKGROUND: Racial/ethnic minorities have a higher burden of stroke, but lower awareness and understanding of stroke and its risk factors. Our community-academic collaborative hosted a symposium in South Los Angeles to increase awareness about stroke, provide information on the Los Angeles Stroke Intervention and Research Program (SPIRP), and facilitate bidirectional communication between researchers and community stakeholders. OBJECTIVES: We discuss our partnered approach to increase stroke awareness, elicit community perspectives and perceptions about stroke prevention and research participation, and increase community involvement in research using a community engagement symposium (CES)...
2016: Progress in Community Health Partnerships: Research, Education, and Action
Monica E Peek, Fanny Y Lopez, H Sharif Williams, Lucy J Xu, Moira C McNulty, M Ellen Acree, John A Schneider
BACKGROUND: Enhancing patient-centered care and shared decision making (SDM) has become a national priority as a means of engaging patients in their care, improving treatment adherence, and enhancing health outcomes. Relatively little is known about the healthcare experiences or shared decision making among racial/ethnic minorities who also identify as being LGBT. The purpose of this paper is to understand how race, sexual orientation and gender identity can simultaneously influence SDM among African-American LGBT persons, and to propose a model of SDM between such patients and their healthcare providers...
June 2016: Journal of General Internal Medicine
Susan Morrel-Samuels, Martica Bacallao, Shelli Brown, Meredith Bower, Marc Zimmerman
The purpose of the Youth Violence Prevention Centers (YVPC) Program at the Centers for Disease Control and Prevention is to reduce youth violence in defined high-risk communities through the implementation and evaluation of comprehensive, evidence based prevention strategies. Within this common framework, each YVPC varies in its structure and methods, however all engage communities in multiple ways. We explore aspects of community engagement employed by three centers that operate in very different contexts: a rural county in North Carolina; a suburban area of Denver, Colorado; and an urban setting in Flint, Michigan...
April 2016: Journal of Primary Prevention
Lana Sue I Ka'opua, Kevin Cassel, Bruce Shiramizu, Rebecca L Stotzer, Andrew Robles, Cathy Kapua, Malulani Orton, Cris Milne, Maddalynn Sesepasara
Anal cancer disproportionately burdens persons living with human immunodeficiency virus (PLHIV) regardless of natal sex, sexual orientation, gender expression, and ethnic identity. Culturally competent communications are recommended to address health disparities, with sociocultural relevance ensured through constituent dialogic processes. Results are presented from six provider focus groups conducted to inform the promotion/education component of a Hawai'i-based project on anal cancer screening tools. Krueger's focus group methodology guided discussion queries...
January 2016: Health Promotion Practice
Emina Hadziabdic, Christina Lundin, Katarina Hjelm
BACKGROUND: Elderly migrants who do not speak the official language of their host country have increased due to extensive international migration, and will further increase in the future. This entails major challenges to ensure good communication and avoid communication barriers that can be overcome by the use of adequate interpreter services. To our knowledge, there are no previous investigations on interpreting practices in multilingual elderly healthcare from different healthcare professionals' perspectives...
2015: BMC Health Services Research
John Christopher Sieverdes, Lynne S Nemeth, Gayenell S Magwood, Prabhakar K Baliga, Kenneth D Chavin, Brenda Brunner-Jackson, Sachin K Patel, Kenneth J Ruggiero, Frank A Treiber
BACKGROUND: There is a critical need to expand the pool of available kidneys for African Americans who are on the transplant wait-list due to the disproportionally lower availability of deceased donor kidneys compared with other races/ethnic groups. Encouraging living donation is one method to fill this need. Incorporating mHealth strategies may be a way to deliver educational and supportive services to African American transplant-eligible patients and improve reach to those living in remote areas or unable to attend traditional group-session-based programs...
2015: JMIR Research Protocols
Pauline Binder-Finnema, Pham T L Lien, Dinh T P Hoa, Mats Målqvist
BACKGROUND: Vietnam has achieved great improvements in maternal healthcare outcomes, but there is evidence of increasing inequity. Disadvantaged groups, predominantly ethnic minorities and people living in remote mountainous areas, do not gain access to maternal health improvements despite targeted efforts from policymakers. OBJECTIVE: This study identifies underlying structural barriers to equitable maternal health care in Nghe An province, Vietnam. Experiences of social inequity and limited access among child-bearing ethnic and minority women are explored in relation to barriers of care provision experienced by maternal health professionals to gain deeper understanding on health outcomes...
2015: Global Health Action
T N Muthivhi, M G Olmsted, H Park, M Sha, V Raju, T Mokoena, E M Bloch, E L Murphy, R Reddy
BACKGROUND AND OBJECTIVES: South Africa has a markedly skewed representation where the majority of blood (62%) is presently collected from an ethnically White minority. This study seeks to identify culturally specific factors affecting motivation of donors in South Africa. MATERIALS AND METHODS: We performed a qualitative study to evaluate motivators and deterrents to blood donation among Black South Africans. A total of 13 focus groups, comprising a total of 97 Black South Africans, stratified by age and geographic location were conducted...
August 2015: Transfusion Medicine
Lorna Sweeney, John A Owiti, Andrew Beharry, Kamaldeep Bhui, Jessica Gomes, Graham R Foster, Trisha Greenhalgh
BACKGROUND: Effective strategies are needed to provide screening and treatment for hepatitis B and C to immigrant groups in the UK at high risk of chronic infection. This study aimed to build an understanding of the knowledge, beliefs and attitudes towards these conditions and their management in a range of high-risk minority ethnic communities and health professionals, in order to inform the design of a screening and treatment programme in primary care. METHODS: Qualitative data collection consisted of three sequential phases- (i) semi-structured interviews with key informants (n = 17), (ii) focus groups with people from Chinese, Pakistani, Roma, Somali, and French- and English-speaking African communities (n = 95), and (iii) semi-structured interviews with general practitioners (n = 6)...
2015: BMC Health Services Research
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