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organ donation, hospice,

Andrea Lambert South, Jessica Elton
The free, open-access website called "Let's Get Together and Talk about Death", or Death over Dinner (DoD), provides resources for initiating end-of-life conversations with family and friends by taking the frightening-talking about death-and transforming it into the familiar-a conversation over dinner. This qualitative, descriptive study uses grounded theory and thematic analysis to answer the following research question: How do friend and family groups communicate about death and dying in DoD conversations? To answer this question, 52 dinner groups were recruited and conversations were conducted, which consisted of a facilitator and volunteers...
April 20, 2017: Behavioral Sciences
Robert L Fine, Zhiyong Yang, Christy Spivey, Bonnie Boardman, Maureen Courtney
Barriers to traditional advance care planning (ACP) and advance directive (AD) creation have limited the promise of ACP/AD for individuals and families, the healthcare team, and society. Our objectives were to determine the results of a digital ACP/AD through which consumers create, store, locate, and retrieve their ACP/AD at no charge and with minimal physician involvement, and the ACP/AD can be integrated into the electronic health record. The authors chose 900 users of MyDirectives, a digital ACP/AD tool, to achieve proportional representation of all 50 states by population size and then reviewed their responses...
July 2016: Proceedings of the Baylor University Medical Center
J Wale, A Arthur, C Faull
BACKGROUND: Only a minority of hospice patients eligible to donate tissue and organs choose to do so. Hospice care staff play a key role in discussions about donation, but their willingness to engage in these discussions and their understanding of issues around tissue and organ donation is poorly understood. AIMS: To (i) identify factors associated with the wish of hospice doctors, nurses and healthcare assistants to donate their own organs after death; (ii) survey the experience of discussing the subject with patients; (iii) determine staff members' knowledge of organ and tissue donation and (iv) identify factors associated with knowledge of organ and tissue donation...
March 2014: BMJ Supportive & Palliative Care
Suzie Gillon, Adam Hurlow, Clare Rayment, Hannah Zacharias, Rosemary Lennard
BACKGROUND: Corneal donation is a sight restoring procedure. Internationally demand exceeds supply. It is a tissue that palliative care patients may be able to donate, yet donation rates from this group are low. AIM: To explore the attitudes, knowledge, practice, and experience of corneal donation from hospice staff with direct clinical contact with patients. DESIGN: Anonymous paper questionnaire with fixed response and free text components...
October 2012: Palliative Medicine
Patricia Niday, Caitlyn Painter, Joyce Peak, Eileen Bennett, Mandy Wiley, Lee McCartt, Otto H P Teixeira
PURPOSE: To implement and evaluate a change in practice regarding the timing of introducing donation for inpatient hospice staff and families whereby scripted information about tissue/organ donation was given by the nurse upon admission as part of the normal admission process and then repeated at the time of death per usual protocol. METHODS: Data were collected from staff for 6 months (January to June 2006). The hospice staff agreed to complete a donor services comment log at the admission and at the death of each patient to relay any concerns with the change in practice rather than just writing down complaints as was the previous practice...
December 2007: Progress in Transplantation
Mary Callaway, Kathleen M Foley, Liliana De Lima, Stephen R Connor, Olivia Dix, Thomas Lynch, Michael Wright, David Clark
There are many palliative care developments in resource-poor regions of the world. Most of them are supported by third-party donors and grant makers. The funding necessary to cover essential palliative care services usually exceeds the financial means of many developing countries. Health care services may have to be complemented by nongovernmental organizations that are dependent on fund raising and voluntary donations from a variety of external sources. Coordinated action by international funding agencies is needed to ensure that the world's poorest people have access to essential medications and appropriate palliative care...
May 2007: Journal of Pain and Symptom Management
L Rolls, S Payne
The purpose of the study was to identify the location, range and type of childhood bereavement service provision in the UK. A questionnaire was mailed to 127 services who were either solely dedicated to childhood bereavement or who offered a service within the range of work of a host organization and for which there was a supporting organizational structure. Responses were received from 108 services (a response rate of 85%). The findings identified that 85% of childhood bereavement services are located in the voluntary sector; 14% are dedicated childhood bereavement services, while 86% are offered as part of a host organization...
July 2003: Palliative Medicine
Gregory W Rutecki
No abstract text is available yet for this article.
1994: Ethics & Medicine: a Christian Perspective on Issues in Bioethics
J Neigh
Since it opened its doors 20 years ago, the Talbot Hospice Foundation, located in Talbot County, Maryland, has grown to be one of the most highly respected service organizations in the county. A professional, non-medical staff of about five full-time employees manages some 800 volunteers who offer free hospice services to anyone in the community. It is dedicated to the concept that dying is not just a medical event, and that trained community lay people can play a significant role in providing practical and emotional support to their neighbors...
February 2001: Caring: National Association for Home Care Magazine
H A Stoyles
The nurse is never "too prepared" when caring for the multiple organ donor. Some the many complications encountered include tachycardia, hyper/hypotension, hyper/hypothermia, diabetes insipidus, critical fluid and electrolyte imbalances, and hypoxia these are a result of brain stem herniation where the medulla herniates into the foramen magnum eventually leading to decreased cardiac output, impaired gas exchange, and impaired tissue perfusion if managed inappropriately. The challenge is on! Drug and fluid resuscitation have firm limits and guidelines which are of great importance to retrieval and transplant teams, and most of all, the recipient of the optimally perfused organ...
June 1995: L' Axone
P S Arno
Community-based organizations in San Francisco have played a key role in providing social support services and public health information to those affected by acquired immune deficiency syndrome (AIDS). These services have helped minimize the economic impact of the epidemic by reducing the level and expense of hospitalization of AIDS patients. During fiscal year 1984-85, the three largest community-based groups in San Francisco provided more than 80,000 hours of social support and counseling services, responded to over 30,000 telephone inquiries and letters, and distributed nearly 250,000 pieces of literature...
November 1986: American Journal of Public Health
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