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https://www.readbyqxmd.com/read/28608152/recovering-from-chronic-myeloid-leukemia-the-patients-perspective-seen-through-the-lens-of-narrative-medicine
#1
G Graffigna, I Cecchini, M Breccia, E Capochiani, R Della Seta, S Galimberti, A Melosi, F Simonetti, M Pizzuti, S F Capalbo, F Falzetti, P Mazza, N Di Renzo, L Mastrullo, D Rapezzi, E Orlandi, T Intermesoli, A Iurlo, E Pungolino, M Pacilli
PURPOSE: The main objective of this study is to gain a deeper understanding of how patients suffering from chronic myeloid leukemia (CML) cope with their illness. The study aims to reconstruct the subjective meaning-making process related to CML in order to gain insights into the impact the disease has on patients' emotions and everyday lives, as well as to explore the psychological impact of their being presented with the chance to suspend their therapy and recover from the disease. METHODS: Data were gathered from a qualitative study conducted in Italy on 158 Italian CML patients...
June 12, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28589307/cultivating-community-responsive-future-healthcare-professionals-using-service-learning-in-pre-health-humanities-education
#2
Casey Kayser
This essay argues that service-learning pedagogy is an important tool in pre-health humanities education that provides benefits to the community and produces more compassionate, culturally competent, and community-responsive future healthcare professionals. Further, beginning this approach at the baccalaureate level instills democratic and collaborative values at an earlier, crucial time in the career socialization process. The discussion focuses on learning outcomes and reciprocity between the university and community in a Medical Humanities course for junior and senior premedical students, an elective in the premedical curriculum...
June 7, 2017: Journal of Medical Humanities
https://www.readbyqxmd.com/read/28587492/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births
#3
Maria Giulia Marini, Paola Chesi, Martina Bruscagnin, Monica Ceccatelli, Elisabetta Ruzzon
The objective of the research was to understand the experience of families living a premature birth and to outline the current care plan in Italy. The survey was addressed to 150 parents of children born under the 34th week of pregnancy. Topics of the investigation were the implications on their family, social and working contexts, determined through a questionnaire enriched by a collection of narratives. Written testimonies were clustered through a Narrative Medicine method and matched with quantitative information...
June 7, 2017: Journal of Maternal-fetal & Neonatal Medicine
https://www.readbyqxmd.com/read/28501966/from-method-to-hermeneutics-which-epistemological-framework-for-narrative-medicine
#4
Camille Abettan
The past 10 years have seen considerable developments in the use of narrative in medicine, primarily through the emergence of the so-called narrative medicine. In this article, I question narrative medicine's self-understanding and contend that one of the most prominent issues is its lack of a clear epistemological framework. Drawing from Gadamer's work on hermeneutics, I first show that narrative medicine is deeply linked with the hermeneutical field of knowledge. Then I try to identify which claims can be legitimately expected from narrative medicine, and which ones cannot be...
May 13, 2017: Theoretical Medicine and Bioethics
https://www.readbyqxmd.com/read/28490362/different-perceptions-of-narrative-medicine-between-western-and-chinese-medicine-students
#5
Chien-Da Huang, Kuo-Chen Liao, Fu-Tsai Chung, Hsu-Min Tseng, Ji-Tseng Fang, Shu-Chung Lii, Han-Pin Kuo, San-Jou Yeh, Shih-Tseng Lee
BACKGROUND: Western medicine is an evidence-based science, whereas Chinese medicine is more of a healing art. To date, there has been no research that has examined whether students of Western and Chinese medicine differentially engage in, or benefit from, educational activities for narrative medicine. This study fills a gap in current literature with the aim of evaluating and comparing Western and Chinese Medicine students' perceptions of narrative medicine as an approach to learning empathy and professionalism...
May 10, 2017: BMC Medical Education
https://www.readbyqxmd.com/read/28425880/-narrative-medicine-an-optative-course-at-the-faculty-of-medicine-of-lisbon
#6
Maria Céu Machado, João Lobo Antunes
No abstract text is available yet for this article.
December 30, 2016: Acta Médica Portuguesa
https://www.readbyqxmd.com/read/28385880/can-narrative-medicine-education-contribute-to-the-delivery-of-compassionate-care-a-review-of-the-literature
#7
Sarah Barber, Carlos J Moreno-Leguizamon
No abstract text is available yet for this article.
April 6, 2017: Medical Humanities
https://www.readbyqxmd.com/read/28349619/bridging-the-discursive-gap-between-lay-and-medical-discourse-in-care-coordination
#8
Rod Sheaff, Joyce Halliday, Richard Byng, John Øvretveit, Mark Exworthy, Stephen Peckham, Sheena Asthana
For older people with multiple chronic co-morbidities, strategies to coordinate care depend heavily on information exchange. We analyse the information-sharing difficulties arising from differences between patients' oral narratives and medical sense-making; and whether a modified form of 'narrative medicine' might mitigate them. We systematically compared 66 general practice patients' own narratives of their health problems and care with the contents of their clinical records. Data were collected in England during 2012-13...
March 28, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/28323608/from-doctors-stories-to-doctors-stories-and-back-again
#9
Marcia Day Childress
Stories have always been central to medicine, but during the twentieth century bioscience all but eclipsed narrative's presence in medical practice. In Doctors' Stories, published in 1991, Kathryn Montgomery excavated medicine's narrative foundations and functions to reveal new possibilities for how to conceive and characterize medicine. Physicians' engagement with stories has since flourished, especially through the narrative medicine movement, although in the twenty-first century this has been challenged by the health care industry's business-minded and data-driven clinical systems...
March 1, 2017: AMA Journal of Ethics
https://www.readbyqxmd.com/read/28271258/illness-doula-adding-a-new-role-to-healthcare-practice
#10
Annie Robinson, Danielle Spencer, Brad Lewis
In this article, we explore the possibility of adding a new role to the clinical encounter: an illness doula. Even though research and education in medical humanities and narrative medicine have made improvements in humanizing healthcare, progress is slow and ongoing. There needs to be an intervention in the practice of healthcare now for people currently going through the system. An illness doula, like a birth doula, would facilitate and insure that attention is paid to the personal needs and desires of the patient in the present system...
March 7, 2017: Journal of Medical Humanities
https://www.readbyqxmd.com/read/28220317/role-of-narrative-based-medicine-in-proper-patient-assessment
#11
Giovanni Rosti
Improving patient-physician communication is an area of medicine that deserves greater attention. Narrative medicine can be considered as one tool that can aid in fostering better communication. Current medical practice is dominated by evidence-based medicine, and dictates what therapies the clinician will offer in a given circumstance, ideally supported by (evidence-based) guidelines. However, when taken alone it tends to decentralize the patient. There are many different approaches that can be used to understand the patient and what he or she is experiencing as a result of their illness...
April 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/28156647/implementing-innovative-learner-centered-methods-to-teach-oncology-fellows-how-to-face-difficult-conversations
#12
Matthew Reilley, Jennifer Leigh McQuade, Walter F Baile, Daniel E Epner
27 Background: Oncologists engage in emotionally charged conversations with patients and families about prognosis, goals of care, and end of life transitions. Many oncologists lack key skills for guiding patients through such conversations. Key skills include posing open ended questions to elicit the patient's perspective, using silence effectively, and responding to emotion with empathy. We previously described a communication skills curriculum for first year medical oncology fellows consisting of a series of one hour monthly seminars (Epner and Baile, Academic Medicine, 2014)...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28144901/investigating-public-trust-in-expert-knowledge-narrative-ethics-and-engagement
#13
Silvia Camporesi, Maria Vaccarella, Mark Davis
"Public Trust in Expert Knowledge: Narrative, Ethics, and Engagement" examines the social, cultural, and ethical ramifications of changing public trust in the expert biomedical knowledge systems of emergent and complex global societies. This symposium was conceived as an interdisciplinary project, drawing on bioethics, the social sciences, and the medical humanities. We settled on public trust as a topic for our work together because its problematization cuts across our fields and substantive research interests...
March 2017: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/28031934/stories-of-experiences-of-care-for-growth-hormone-deficiency-the-crescere-project
#14
Maria G Marini, Paola Chesi, Laura Mazzanti, Laura Guazzarotti, Teresa D Toni, Maria C Salerno, Annunziata Officioso, Maria Parpagnoli, Cristina Angeletti, Maria F Faienza, Maria L Iezzi, Tommaso Aversa, Cinzia Sacchetti
AIMS: Growth hormone deficiency therapy is demanding for patients and caregivers. Teams engaged in the clinical management of growth hormone deficiency therapy need to know how families live with this condition, to provide an adequate support and prevent the risk of withdrawal from therapy. METHODS: Using Narrative Medicine, testimonies from patients, their parents and providers of care were collected from 11 Italian centers. Narrations were analyzed throughout an elaboration of recurring words and expressions...
March 2016: Future Science OA
https://www.readbyqxmd.com/read/27884867/narrative-medicine-and-death-in-the-icu-word-clouds-as-a-visual-legacy
#15
Meredith Vanstone, Feli Toledo, France Clarke, Anne Boyle, Mita Giacomini, Marilyn Swinton, Lois Saunders, Melissa Shears, Nicole Zytaruk, Anne Woods, Trudy Rose, Tracey Hand-Breckenridge, Diane Heels-Ansdell, Shelley Anderson-White, Robert Sheppard, Deborah Cook
OBJECTIVE: The Word Cloud is a frequent wish in the 3 Wishes Project developed to nurture peace and ease the grieving process for dying critically ill patients. The objective was to examine whether Word Clouds can act as a heuristic approach to encourage a narrative orientation to medicine. Narrative medicine is an approach which can strengthen relationships, compassion and resilience. DESIGN: Word Clouds were created for 42 dying patients, and we interviewed 37 family members and 73 clinicians about their impact...
November 24, 2016: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/27874840/an-integrated-narrative-nursing-model-towards-a-new-healthcare-paradigm
#16
Giovanna Artioli, Chiara Foà, Chiara Taffurelli
In the traditional biomedical model of clinical practice, which assumes a medicine focused on disease, diseases are considered as biological or psycho-physiological universal entities. This explanation, although necessary, is not enough. Several authors have recently become interested in the use of narrative practices in the medical care setting, underlining the increasing importance of "a patient-centered approach", a "relationship -centered care" and "narrative medicine". Even in Nursing, the challenge was to combine two models that seemed incompatible: the Evidence-Based Nursing Model and the Narrative-Based Nursing Model...
November 22, 2016: Acta Bio-medica: Atenei Parmensis
https://www.readbyqxmd.com/read/27704238/my-mother-my-story
#17
Joanne Jacobson
This piece returns to the writer's memoir essays about her mother's chronic lung disease to examine the relationship between the act of caregiving and the act of writing. In arguing for important differences between the clinical, healing imperatives of narrative medicine and the primacy for the writer of self-reflection, personal need and career, the essay demonstrates how writing remains in many ways at odds with the obligations and the hopes of caregiving. At the same time, the essay argues that writing her mother's stories of illness holds the potential for both honor and mutuality-and can, in fact, constitute a form of caregiving...
March 2017: Journal of Medical Humanities
https://www.readbyqxmd.com/read/27662003/narrative-medicine-workshops-for-obstetrics-and-gynecology-residents-and-association-with-burnout-measures
#18
Abigail Ford Winkel, Nathalie Feldman, Haley Moss, Holli Jakalow, Julia Simon, Stephanie Blank
OBJECTIVE: To determine whether a workshop Narrative Medicine curriculum can improve burnout among obstetrics and gynecology residents. METHODS: A Narrative Medicine curriculum was conducted at three obstetrics and gynecology training programs. An explanatory research design examined correlation between Narrative Medicine attendance and changes in survey responses. Residents completed a pretest and 1-year posttest survey that included validated measures of burnout and empathy...
October 2016: Obstetrics and Gynecology
https://www.readbyqxmd.com/read/27632548/the-in-between-writer-howard-stein-phd-professor-emeritus-psycho-analytic-anthropologist-poet-educator-transdisciplinary-scholar
#19
Jo Marie Reilly
This commentary reflects the professional life story of a prolific and well-published poet, Howard Stein. An anthropologist by training, Howard's poetry is well known and well respected by family physicians. It is within family medicine that Howard found his professional home, and in his 45-plus-year career he has shared the value of "patient story"; the value of the doctor-patient relationship; and the art of listening deeply to self, colleagues, and patients. This commentary offers a tribute to Howard's professional life and his contributions to family and narrative medicine...
September 2016: Families, Systems & Health: the Journal of Collaborative Family Healthcare
https://www.readbyqxmd.com/read/27576519/narrative-medicine-in-a-hectic-schedule
#20
John W Murphy, Berkeley A Franz
The move to patient-centered medical practice is important for providing relevant and sustainable health care. Narrative medicine, for example, suggests that patients should be involved significantly in diagnosis and treatment. In order to understand the meaning of symptoms and interventions, therefore, physicians must enter the life worlds of patients. But physicians face high patient loads and limited time for extended consultations. In current medical practice, then, is narrative medicine possible? We argue that engaging patient perspectives in the medical visit does not necessarily require a lengthy interview...
December 2016: Medicine, Health Care, and Philosophy
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