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https://www.readbyqxmd.com/read/29578541/perspectives-on-narrative-medicine
#1
COMMENT
Amir-Seena Saberi-Movahed, Syed Waqar, Ahmad Salha
No abstract text is available yet for this article.
2018: International Journal of Chronic Obstructive Pulmonary Disease
https://www.readbyqxmd.com/read/29552699/a-storytelling-approach-insights-from-the-shambaa
#2
Camillo Lamanna
Narrative medicine explores the stories that patients tell; this paper, conversely, looks at some of the stories that patients are told. The paper starts by examining the 'story' told by the Shambaa people of Tanzania to explain the bubonic plague and contrasts this with the stories told by Ghanaian communities to explain lymphatic filariasis. By harnessing insights from memory studies, these stories' memorability is claimed to be due to their use mnemonic devices woven into stories. The paper suggests that stories can be unpatronising, informative, and appropriate vehicles for communicating medical information to all age groups across all cultures...
March 19, 2018: Journal of Medical Humanities
https://www.readbyqxmd.com/read/29552422/diabetes-empowerment-council-integrative-pilot-intervention-for-transitioning-young-adults-with-type-1-diabetes
#3
Marc J Weigensberg, Cheryl Vigen, Paola Sequeira, Donna Spruijt-Metz, Magaly Juarez, Daniella Florindez, Joseph Provisor, Anne Peters, Elizabeth A Pyatak
Background: The transition of young adults with type 1 diabetes (T1D) from pediatric to adult care is challenging and frequently accompanied by worsening of diabetes-related health. To date, there are no reports which prospectively assess the effects of theory-based psycho-behavioral interventions during the transition period neither on glycemic control nor on psychosocial factors that contribute to poor glycemic control. Therefore, the overall aim of this study was to develop and pilot test an integrative group intervention based on the underlying principles of self-determination theory (SDT), in young adults with T1D...
2018: Global Advances in Health and Medicine: Improving Healthcare Outcomes Worldwide
https://www.readbyqxmd.com/read/29540165/enhancing-second-order-empathy-in-medical-practice-by-supplementing-patients-narratives-with-certainties
#4
José María Ariso
Most scholars agree that empathy is one of the keys for medical education, but it is not yet clear precisely how this term should be defined. Currently, the predominant tendency in this area consists in considering empathy within the context of narrative medicine or, more specifically, within the interaction theory instead of the simulation theory of empathy. A significant development of the interaction theory is "second-order empathy". After describing the outlines of this kind of empathy, I suggest that the practitioner should also inquire about the patient's certainties - in Wittgenstein's sense - in order the better to enrich and understand her narrative...
March 14, 2018: BMC Medical Education
https://www.readbyqxmd.com/read/29531109/a-narrative-approach-to-healing-chronic-illness
#5
Thomas R Egnew
Many clinicians may feel poorly prepared to manage patient suffering resulting from the travails of chronic illness. This essay explores the thesis that chronically and terminally ill patients can be holistically healed by transcending the suffering occasioned by the degradations of their illnesses. Suffering is conveyed as a story and clinicians can encourage healing by co-constructing patients' illness stories. By addressing the inevitable existential conflicts uncovered in patients' narratives and helping them edit their stories to promote acceptance and meaning, suffering can be transcended...
March 2018: Annals of Family Medicine
https://www.readbyqxmd.com/read/29529988/on-the-shoulders-of-giants-the-story-behind-the-pioneers-of-nephrology-project
#6
EDITORIAL
Giorgina B Piccoli, Bernard G Jaar, Hayley Henderson
This editorial introduces a series of interviews with the pioneers of Nephrology. It's a story that speaks by itself, given the thousands of people that are now alive thanks to the remarkable advances in renal replacement therapies such as dialysis, and kidney transplantation but also the many scientific advances in our understanding of the pathophysiology and treatment of kidney diseases worldwide.The interviews that we have selected for this series are, however, not dealing with their achievements, and their success; they try to pass on to future generations the idea of how they were, why they were passionate, what they loved, and, not last, where they found poetry in our profession...
March 12, 2018: BMC Nephrology
https://www.readbyqxmd.com/read/29520559/life-for-patients-with-myelofibrosis-the-physical-emotional-and-financial-impact-collected-using-narrative-medicine-results-from-the-italian-back-to-life-project
#7
Francesca Palandri, Giulia Benevolo, Alessandra Iurlo, Elisabetta Abruzzese, Angelo M Carella, Chiara Paoli, Giuseppe A Palumbo, Massimiliano Bonifacio, Daniela Cilloni, Alessandro Andriani, Attilio Guarini, Diamante Turri, Elena Maria Elli, Antonietta Falcone, Barbara Anaclerico, Pellegrino Musto, Nicola Di Renzo, Mario Tiribelli, Renato Zambello, Caterina Spinosa, Alessandra Ricco, Letizia Raucci, Bruno Martino, Mario Annunziata, Silvia Pascale, Anna Marina Liberati, Giorgio La Nasa, Margherita Maffioli, Massimo Breccia, Novella Pugliese, Silvia Betti, Gianfranco Giglio, Antonietta Cappuccio, Luigi Reale
PURPOSE: Myelofibrosis (MF) is a chronic myeloproliferative neoplasm characterised by an aggressive clinical course, with disabling symptoms and reduced survival. Patients experience a severely impaired quality of life and their families face the upheaval of daily routines and high disease-related financial costs. The aim of this study was to investigate the perceptions of Italian patients and their caregivers about living with MF and the burden of illness associated with MF. METHODS: A quali-quantitative questionnaire and a prompted written narrative survey were administered to patients affected by primary or post-essential thrombocythemia/post-polycythaemia vera MF and their primary caregiver in 35 Italian haematological centres...
March 8, 2018: Quality of Life Research
https://www.readbyqxmd.com/read/29508115/identity-bipolar-disorder-and-the-problem-of-self-narration-in-kay-redfield-jamison-s-an-unquiet-mind-and-ellen-forney-s-marbles
#8
Bethany Ober Mannon
The field of narrative medicine holds that personal narratives about illness have the potential to give illness meaning and to create order out of disparate facets of experience, thereby aiding a patient's treatment and resisting universalizing medical discourse. Two narratives of bipolar disorder, Kay Redfield Jamison's prose memoir An Unquiet Mind (1995) and Ellen Forney's graphic memoir Marbles (2012) challenge these ideas. These writers demonstrate that one result of bipolar disorder is a rupture to their sense of identity, making straightforward and verbal forms of narrative impossible...
March 6, 2018: Journal of Medical Humanities
https://www.readbyqxmd.com/read/29478920/teaching-and-assessing-professionalism-in-radiology-resources-and-scholarly-opportunities-to-contribute-to-required-expectations
#9
Aine Marie Kelly, Patricia B Mullan
Teaching and assessing trainees' professionalism now represents an explicit expectation for Accreditation Council Graduate Medical Education-accredited radiology programs. Challenges to meeting this expectation include variability in defining the construct of professionalism; limits of traditional teaching and assessment methods, used for competencies historically more prominent in medical education, for professionalism; and emerging expectations for credible and feasible professionalism teaching and assessment practices in the current context of health-care training and practice...
February 22, 2018: Academic Radiology
https://www.readbyqxmd.com/read/29429022/a-new-path-for-humanistic-medicine
#10
Juliette Ferry-Danini
According to recent approaches in the philosophy of medicine, biomedicine should be replaced or complemented by a humanistic medical model. Two humanistic approaches, narrative medicine and the phenomenology of medicine, have grown particularly popular in recent decades. This paper first suggests that these humanistic criticisms of biomedicine are insufficient. A central problem is that both approaches seem to offer a straw man definition of biomedicine. It then argues that the subsequent definition of humanism found in these approaches is problematically reduced to a compassionate or psychological understanding...
February 2018: Theoretical Medicine and Bioethics
https://www.readbyqxmd.com/read/29391786/narrative-medicine-to-improve-the-management-and-quality-of-life-of-patients-with-copd-the-first-experience-applying-parallel-chart-in-italy
#11
Paolo Banfi, Antonietta Cappuccio, Maura E Latella, Luigi Reale, Elisa Muscianisi, Maria Giulia Marini
Purpose: Poor adherence to therapy and the failure of current smoking cessation programs demonstrate that the current management of COPD can be improved, and it is necessary to educate physicians about new approaches for taking care of patients. Parallel chart is a narrative medicine tool that improves the doctor-patient relationship by asking physicians to write about their patients' lives, thereby encouraging reflective thoughts on care. Patients and methods: Between October 2015 and March 2016, 50 Italian pulmonologists were involved in the collection of parallel charts of anonymous patients with COPD...
2018: International Journal of Chronic Obstructive Pulmonary Disease
https://www.readbyqxmd.com/read/29368117/beyond-v40-31-narrative-phenomenology-of-wandering-in-autism-and-dementia
#12
Olga Solomon, Mary C Lawlor
Research on autism spectrum disorder (ASD) and on Alzheimer's Disease (AD) and other types of dementia describes a behaviour called 'wandering', a term that denotes movement through space lacking intention or exact destination, as when a person is disoriented or not self-aware. In the U.S., 'wandering' in both ASD and AD has been examined mostly from a management and prevention perspective. It prioritizes safety while primarily overlooking personal experiences of those who 'wander' and their families, thus limiting the range of potentially effective strategies to address this issue...
January 24, 2018: Culture, Medicine and Psychiatry
https://www.readbyqxmd.com/read/29362248/narrative-medicine-based-intervention-in-primary-care-to-reduce-polypharmacy-results-from-the-cluster-randomised-controlled-trial-multicare-agenda
#13
Ingmar Schäfer, Hanna Kaduszkiewicz, Christine Mellert, Christin Löffler, Achim Mortsiefer, Annette Ernst, Carl-Otto Stolzenbach, Birgitt Wiese, Heinz-Harald Abholz, Martin Scherer, Hendrik van den Bussche, Attila Altiner
OBJECTIVES: To determine if patient-centred communication leads to a reduction of the number of medications taken without reducing health-related quality of life. DESIGN: Two-arm cluster-randomised controlled trial. SETTING: 55 primary care practices in Hamburg, Düsseldorf and Rostock, Germany. PARTICIPANTS: 604 patients 65 to 84 years of age with at least three chronic conditions. INTERVENTIONS: Within the 12-month intervention, general practitioners (GPs) had three 30 min talks with each of their patients in addition to routine consultations...
January 23, 2018: BMJ Open
https://www.readbyqxmd.com/read/29261540/looking-back-to-move-forward-first-year-medical-students-meta-reflections-on-their-narrative-portfolio-writings
#14
Hetty Cunningham, Delphine Taylor, Urmi A Desai, Samuel C Quiah, Benjamin Kaplan, Lorraine Fei, Marina Catallozzi, Boyd Richards, Dorene F Balmer, Rita Charon
The day-to-day rigors of medical education often preclude learners from gaining a longitudinal perspective on who they are becoming. Furthermore, the current focus on competencies, coupled with concerning rates of trainee burnout and a decline in empathy, have fueled the search for pedagogic tools to foster students' reflective capacity. In response, many scholars have looked to the tradition of narrative medicine to foster "reflective spaces" wherein holistic professional identity construction can be supported...
December 19, 2017: Academic Medicine: Journal of the Association of American Medical Colleges
https://www.readbyqxmd.com/read/29190145/the-principles-and-practice-of-narrative-medicine-edited-by-rita-charon-sayantani-dasgupta-nellie-hermann-craig-irvine-eric-marcus-edgar-rivera-col%C3%A3-n-danielle-spencer-and-maura-spiegel
#15
https://www.readbyqxmd.com/read/29107529/learning-the-patient-s-story
#16
REVIEW
Sandra L Ragan, Elisa Kanter
OBJECTIVES: To provide a brief history on narrative medicine and highlight its importance in providing quality patient care. DATA SOURCES: Explains narrative medicine using published, peer-reviewed literature and highlights some of the literary, medical, sociological, and communication perspectives that contributed to the narrative medicine movement. CONCLUSION: A commitment to the patient-provider relationship and knowing the patient's story is a critical aspect in providing quality cancer care...
December 2017: Seminars in Oncology Nursing
https://www.readbyqxmd.com/read/29035184/the-art-of-healing-through-narrative-medicine-in-clinical-practice-a-reflection
#17
Aeman Muneeb, Hena Jawaid, Natasha Khalid, Asad Mian
The art of medicine has roots that lie deep in developing the biopsychosocial connection. Understanding a human body (both its physiology and pathology) along with components of emotional and spiritual cores can lead to provision of excellent medical care and better outcomes. The harmonization of psychosocial consequences of a biological disease is helpful not just for health care professionals but also for patients. Where it keeps the empathy and compassion alive and results in greater patient satisfaction, it also helps boost the physician's morale...
2017: Permanente Journal
https://www.readbyqxmd.com/read/29030783/the-head-the-heart-and-hysteria-in-jeanne-flore-s-tales-and-trials-of-love-c-1542
#18
Kelly Digby Peebles
This essay examines a challenge to common literary representations of female mental illness in the Early Modern period-the hysterical woman-in a collection of French short stories contemporary to Vesalius's De Fabrica: Jeanne Flore's Tales and Trials of Love (1542). Jeanne Flore's tales depict several mentally disturbed female protagonists, young women prone to paroxysms of madness and self-mutilation. This study maintains that while Tales and Trials of Love superficially participates in the literary tradition that grew out of those accepted social and medical beliefs, it also questions the long-accepted paradigm of female hysteria and points to a shift in the socio-medical climate...
October 14, 2017: Journal of Medical Humanities
https://www.readbyqxmd.com/read/28984353/care-maps-for-children-with-medical-complexity
#19
Sherri Adams, David Nicholas, Sanjay Mahant, Natalie Weiser, Ronik Kanani, Katherine Boydell, Eyal Cohen
AIM: Children with medical complexity require multiple providers and services to keep them well and at home. A care map is a patient/family-created diagram that pictorially maps out this complex web of services. This study explored what care maps mean for families and healthcare providers to inform potential for clinical use. METHOD: Parents (n=15) created care maps (hand drawn n=10 and computer-generated n=5) and participated in semi-structured interviews about the process of developing care maps and their perceived impact...
December 2017: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/28953826/reflecting-on-the-humanities-related-to-experiences-of-illness-with-a-creative-exploration-of-metaphoric-spaces
#20
Mohamud A Verjee
Every patient has a story to tell, and every experienced physician has a bank of stories to recall. A patient's visit is not chance but a search for a cure, amelioration of state, advice, guidance, a prescription, or for seeking reassurance, comfort, and in some circumstances, permission to "be well". From the simplest tale to the most complex, narratives abound. Sometimes, the most intimate information shared with the physician confidante, go dark and deep, with a yearning to "tell all" after a period of suppression...
September 2017: Psychiatria Danubina
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