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https://www.readbyqxmd.com/read/28080182/multi-professional-perspectives-on-adolescent-and-young-adult-oncology-across-europe-an-e-delphi-survey
#1
Simon A Pini, Faith Gibson, Lorna A Fern, Sue J Morgan, Robert S Phillips, Dan P Stark
The aims of this article are to describe the ongoing development of adolescent and young adult (AYA) cancer services within the European Union (EU), and to develop consensus on key areas within the field. This survey used an e-Delphi design. An initial survey was distributed via email to professionals working in Europe. A snowball sampling technique was used to promote distribution. Consensus was sought over three rounds from October 2012 to April 2015. Consensus was defined as >80% agreement ("agree" or "strongly agree")...
January 12, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28051344/trends-in-cancer-mortality-among-adolescents-and-young-adults-in-brazil
#2
Nathalie Vieira Balmant, Rejane de Souza Reis, Marceli de Oliveira Santos, Julio Pinto Oliveira, Beatriz de Camargo
PURPOSE: Adolescents and young adults (AYA) with cancer comprise an intermediate age group between pediatric and adult oncology, and have a spectrum of different types of cancers. Survival among this group has not improved as much as in younger children with cancer. The aim of this study was evaluate the trends in cancer mortality of AYA aged 15-29 years in Brazil. METHODS: Data were extracted from the Atlas of Cancer Mortality databases from 1979 to 2013. Age-specific mortality rates were calculated based on the deaths from each type of cancer and the period via a direct method using the proposed world population age groups...
January 4, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28040718/promoting-the-shared-care-model-for-adolescent-and-young-adults-with-cancer-optimizing-referrals-and-care-coordination-with-primary-care-providers
#3
Karen E Kinahan, Sheetal Kircher, Jessica Altman, Alfred Rademaker, John M Salsman, Aarati Didwania, Bridget O'Brien, Alpa C Patel, Stacy D Sanford
BACKGROUND: The "shared-care model" for patients with cancer involves care coordination between primary care providers (PCPs) and oncologists, with the goal of optimizing survivorship care. However, a high proportion of adolescent and young adult (AYA) cancer survivors do not have a PCP. Study objectives were to increase the percentage of AYAs with a PCP documented in the electronic medical record (EMR) via the use of a best practice advisory (BPA) or "stopgap" intervention; to increase communication between providers by the number of routed clinic notes; and to assess oncology providers' attitudes/beliefs about the model and intervention...
January 2017: Journal of the National Comprehensive Cancer Network: JNCCN
https://www.readbyqxmd.com/read/27995449/cytoreductive-surgery-and-hyperthermic-intraperitoneal-chemoperfusion-in-adolescent-and-young-adults-with-peritoneal-metastases
#4
Mashaal Dhir, Lekshmi Ramalingam, Yongli Shuai, Sam Pakrafter, Heather L Jones, Melissa E Hogg, Amer H Zureikat, Matthew P Holtzman, Steven A Ahrendt, Nathan Bahary, James F Pingpank, Herbert J Zeh, David L Bartlett, Haroon A Choudry
BACKGROUND: Several studies suggest that young patients may derive less oncologic benefit from surgical resection of cancers compared with older patients. We hypothesized that young patients may have worse outcomes following cytoreductive surgery with hyperthermic intraperitoneal chemoperfusion (CRS/HIPEC) for peritoneal metastases. METHODS: Perioperative and oncologic outcomes in adolescent and young adults (AYA), defined as younger than age 40 years (n = 135), undergoing CRS/HIPEC between 2001 and 2015 were reviewed and compared with middle-aged adults, defined as aged 40-65 years (n = 684)...
December 19, 2016: Annals of Surgical Oncology
https://www.readbyqxmd.com/read/27983882/building-a-national-framework-for-adolescent-and-young-adult-hematology-and-oncology-and-transition-from-pediatric-to-adult-care-report-of-the-inaugural-meeting-of-the-ajet-working-group-of-the-german-society-for-pediatric-oncology-and-hematology
#5
Gabriele Escherich, Stefan Bielack, Stephan Maier, Ralf Braungart, Tim H Brümmendorf, Mathias Freund, Regine Grosse, Anette Hoferer, Rebecca Kampschulte, Barbara Koch, Melchior Lauten, Valeria Milani, Henning Ross, Freimut Schilling, Dieter Wöhrle, Holger Cario, Uta Dirksen
Adolescents and young adults (AYAs) with hemato-oncological problems constitute a heterogenous group with characteristic particularities, specific needs, and age-related clinical and unique psychosocial features. Strong collaboration between pediatric and adult hemato-oncology settings is essential to address their needs appropriately. This is not only true for patients who first become ill during adolescence or young adulthood, but equally so for people who contract hemato-oncological diseases congenitally or as younger children and who are now becoming old enough to leave the pediatric setting and have to transit into "adult" medical care...
December 16, 2016: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/27863724/-which-approach-of-therapeutic-education-te-for-adolescents-and-young-adults-with-cancer-experience-from-the-te-working-group-of-go-aja
#6
Nadège Corradini, Loïc Dagorne, Marielle Retailleau, Françoise Rédini, Hélène Sudour-Bonnange, Leila Gofti-Laroche, Anne Le Rhun, Nathalie Gaspar
INTRODUCTION: Therapeutic education (TE) is a practice developed over 40 years at an international level to give people with chronic illness the skills necessary to help them better manage their disease. The lengthening survival time of cancer patients as well as changes in the patient-caregiver relationship have contributed to the development of TE in oncologic diseases. Every year in France, about 1900 adolescents and young adults (15-25 years old) are diagnosed with cancer which is the second leading cause of death in this age group...
December 2016: Bulletin du Cancer
https://www.readbyqxmd.com/read/27779446/a-comparison-of-extremity-thrombosis-rates-in-adolescent-and-young-adult-versus-younger-pediatric-oncology-patients-at-a-children-s-hospital
#7
James D Cooper, Aimee G Costello, Peter H Shaw
PURPOSE: To examine whether the rates of thrombosis in children (≤14 years of age) and adolescent/young adult (AYA) patients (15-22 years of age) with cancer is different. METHODS: We retrospectively studied the rates of thrombosis in children and AYA patients at the Children's Hospital of Pittsburgh during the years 2002-2010, using the tumor registry database. This list was then divided into two groups based on age at diagnosis. A review of ICD-9 codes from hospital billing records was then performed to identify patients who carried diagnoses of cancer (140...
October 25, 2016: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/27671919/improving-access-to-standardized-fertility-preservation-information-for-older-adolescents-and-young-adults-with-cancer-using-a-user-centered-approach-with-young-adult-patients-survivors-and-partners-to-refine-fertility-knowledge-transfer
#8
Seline Tam, Natasha Puri, Derek Stephens, Laura Mitchell, Meredith Giuliani, Janet Papadakos, Abha A Gupta
Adolescent and young adult (AYA) cancer patients under 40 should be made aware of their fertility risks and preservation options throughout their care. However, discussions on fertility preservation (FP) do not routinely occur. With a dearth of FP resources, oncology providers may lack knowledge around FP. Thus, informational needs can be unmet, leading to anxiety and distress in patients. Provision of pertinent and timely information can help patients cope better with their diagnosis. FP pamphlets were developed for men and women with cancer...
September 27, 2016: Journal of Cancer Education: the Official Journal of the American Association for Cancer Education
https://www.readbyqxmd.com/read/27606308/model-of-care-for-adolescents-and-young-adults-with-cancer-the-youth-project-in-milan
#9
Chiara Magni, Laura Veneroni, Matteo Silva, Michela Casanova, Stefano Chiaravalli, Maura Massimino, Carlo Alfredo Clerici, Andrea Ferrari
Adolescents and young adults (AYA) with cancer form a particular group of patients with unique characteristics, who inhabit a so-called "no man's land" between pediatric and adult services. In the last 10 years, the scientific oncology community has started to pay attention to these patients, implementing dedicated programs. A standardized model of care directed toward patients in this age range has yet to be developed and neither the pediatric nor the adult oncologic systems perfectly fit these patients' needs...
2016: Frontiers in Pediatrics
https://www.readbyqxmd.com/read/27595356/collaboration-and-networking
#10
O Husson, E Manten-Horst, W T A van der Graaf
Awareness of the need for collaboration across pediatric and adult cancer to care for adolescents and young adults (AYAs) arose from the recognition of the unique characteristics of AYAs with cancer. Neither pediatric nor adult oncology hospital departments are able to provide age-appropriate care single handedly. The best way to bridge the gap in care of AYA cancer patients is to centralize aspects of their care within dedicated AYA care programs, including the following essential components: provision of developmentally appropriate and multidisciplinary (supportive) care, availability of AYA inpatient and outpatient facilities and healthcare professional AYA expertise as collaboration between adult and pediatric departments...
2016: Progress in Tumor Research
https://www.readbyqxmd.com/read/27554940/measuring-the-efficacy-of-a-project-for-adolescents-and-young-adults-with-cancer-a-study-from-the-milan-youth-project
#11
Andrea Ferrari, Matteo Silva, Laura Veneroni, Chiara Magni, Carlo Alfredo Clerici, Cristina Meazza, Monica Terenziani, Filippo Spreafico, Stefano Chiaravalli, Michela Casanova, Roberto Luksch, Serena Catania, Elisabetta Schiavello, Veronica Biassoni, Marta Podda, Luca Bergamaschi, Nadia Puma, Alice Indini, Tullio Proserpio, Maura Massimino
BACKGROUND: Various projects dedicated specifically to adolescents and young adults (AYA) with cancer have been developed in recent years. A critical aspect of such programs is the ability to demonstrate its value, and therefore how to measure desired outcomes. METHODS: A list of metrics to consider for demonstrating the advantages of an AYA program was identified and used to assess the activity of the Youth Project operating at the Pediatric Oncology Unit of the Istituto Nazionale Tumori in Milan...
August 24, 2016: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/27529573/a-review-of-the-oncology-patient-s-challenges-for-utilizing-fertility-preservation-services
#12
Dina M Flink, Jeanelle Sheeder, Laxmi A Kondapalli
PURPOSE: The American Society of Clinical Oncology issued practice guidelines in 2006 to provide critical information about fertility impact to adolescents and young adults (AYA) at the time of cancer diagnosis. Survivors continue to express concerns about their long-term reproductive health after cancer therapy even as treatment options for fertility preservation evolve. An underutilization of fertility preservation methods by cancer patients continues to persist. A review of the literature cites barriers and challenges that limit fertility information and preservation options for AYA cancer patients...
August 16, 2016: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/27486707/care-transitions-in-childhood-cancer-survivorship-providers-perspectives
#13
Mary S Mouw, Eleanor A Wertman, Clare Barrington, Jo Anne L Earp
PURPOSE: Most adolescent and young adult (AYA)-aged childhood cancer survivors develop physical and/or psychosocial sequelae; however, many do not receive long-term follow-up (LTF) critical for screening, prevention, and treatment of late effects. To develop a health services research agenda to optimize care models, we conducted qualitative research with LTF providers examining existing models, and successes and challenges in maintaining survivors' connections to care across their transition to adulthood...
August 3, 2016: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/27468960/chylous-ascites-associated-with-intestinal-obstruction-from-volvulus-due-to-petersen-s-hernia-report-of-a-case
#14
Yuichi Akama, Tetsuya Shimizu, Itsuo Fujita, Yoshikazu Kanazawa, Daisuke Kakinuma, Hitoshi Kanno, Aya Yamagishi, Hiroki Arai, Eiji Uchida
BACKGROUND: Chylous ascites is an uncommon finding which is usually associated with recent abdominal/oncologic or retroperitoneal surgery. It is not usually seen in cases of acute obstruction. CASE PRESENTATION: A patient who had previously undergone a laparoscopy-assisted distal gastrectomy with Roux-en-Y reconstruction for early gastric cancer presented with acute abdominal pain and epigastric fullness. Computed tomography suggested small bowel obstruction due to volvulus...
December 2016: Surgical Case Reports
https://www.readbyqxmd.com/read/27467314/nurse-perspectives-on-referrals-for-oncology-patients-to-reproductive-endocrinologists-results-of-a-learning-activity
#15
Susan T Vadaparampil, Juliette Christie, Meghan Bowman, Ivana Sehovic, Cathy D Meade, Clement K Gwede, Gwendolyn P Quinn
BACKGROUND: Although concern about future fertility for adolescents and young adults (AYAs) with cancer is high, referrals to reproductive endocrinologists (REI) are low. Oncology nurses are well positioned to facilitate these referrals but may lack the knowledge and training. This report describes a learning activity in the Educating Nurses about Reproductive Issues in Cancer Healthcare (ENRICH) program whereby oncology nurses interviewed REIs. METHOD: Participants were instructed to conduct an interview with an REI using a semistructured guide and provided a written report of the discussion...
August 1, 2016: Journal of Continuing Education in Nursing
https://www.readbyqxmd.com/read/27463688/transition-and-transfer-of-childhood-cancer-survivors-to-adult-care-a-national-survey-of-pediatric-oncologists
#16
Lisa B Kenney, Patrice Melvin, Laurie N Fishman, Joanne O'Sullivan-Oliveira, Gregory S Sawicki, Sonja Ziniel, Lisa Diller, Susan M Fernandes
BACKGROUND: Pediatric oncologists are responsible for ensuring that adolescent and young adult (AYA) childhood cancer survivors have the knowledge and skills necessary to manage their follow-up care in adult healthcare systems. PROCEDURES: To describe transition practices and barriers to transfer, we electronically surveyed U.S. Children's Oncology Group members: 507/1449 responded (35%) and 347/507 (68%) met eligibility criteria. RESULTS: Of 347 respondents, 50% are male, median years in practice 10 (range 5-22), 37% practice in freestanding children's hospitals...
February 2017: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/27441525/adolescents-and-young-adults-with-cancer-oncology-nurses-report-attitudes-and-barriers-to-discussing-fertility-preservation
#17
Alexandra Nobel Murray, Joan C Chrisler, Mark L Robbins
BACKGROUND: Fertility issues have been found to be an important topic for adolescents and young adults (AYAs) with cancer. Medical technology has made fertility preservation (FP) increasingly effective for postpubertal patients whose treatment course may inhibit their future ability to achieve biologic parenthood. Oncology providers' recommendations have been shown to vary, potentially affecting patients' decision-making processes regarding FP. OBJECTIVES: This study was designed to assess oncology nurses' recommendations for patients to consider FP options and to explore what patient-related factors may influence discussion of FP with AYAs with cancer...
August 1, 2016: Clinical Journal of Oncology Nursing
https://www.readbyqxmd.com/read/27435441/risk-factors-for-opioid-misuse-in-adolescents-and-young-adults-with-focus-on-oncology-setting
#18
Kelly R Peck, Jennifer Harman Ehrentraut, Doralina L Anghelescu
Prescription opioid use has increased in recent decades. Although opioids provide effective pain control, their use may be associated with the risk of misuse. Opioid misuse (OM) is prevalent among adolescents and young adults (AYAs). Opioids are necessary to treat cancer-related pain; however, oncology patients are not immune to medication misuse. Research examining OM among AYAs with cancer is scarce. This article examines the risk factors described in the general adult and adolescent medication abuse literature and aims to provide recommendations for practice in the AYA oncology population...
May 2016: Journal of Opioid Management
https://www.readbyqxmd.com/read/27413014/cancer-transitional-care-for-terminally-ill-cancer-patients-can-reduce-the-number-of-emergency-admissions-and-emergency-department-visits
#19
Naoki Shimada, Hiroto Ishiki, Satoru Iwase, Tsukuru Chiba, Noriko Fujiwara, Aya Watanabe, Junya Kinkawa, Masanori Nojima, Arinobu Tojo, Kohzoh Imai
BACKGROUND: Emergency admissions and emergency department visits (EAs/EDVs) have been used as quality indicators of home care in terminally ill cancer patients. We established a cancer transitional care (CTC) program to monitor and manage terminally ill cancer patients receiving care at home. The purpose of this study was to evaluate the effectiveness of CTC by the frequency of EAs/EDVs. METHODS: In a retrospective chart review, we identified 133 patients with cancer admitted to our department, of whom 56 met study eligibility criteria...
July 13, 2016: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/27241831/enrich-a-promising-oncology-nurse-training-program-to-implement-asco-clinical-practice-guidelines-on-fertility-for-aya-cancer-patients
#20
Susan T Vadaparampil, Clement K Gwede, Cathy Meade, Joanne Kelvin, Richard R Reich, Joyce Reinecke, Meghan Bowman, Ivana Sehovic, Gwendolyn P Quinn
OBJECTIVE: We describe the impact of ENRICH (Educating Nurses about Reproductive Issues in Cancer Healthcare), a web-based communication-skill-building curriculum for oncology nurses regarding AYA fertility and other reproductive health issues. METHODS: Participants completed an 8-week course that incorporated didactic content, case studies, and interactive learning. Each learner completed a pre- and post-test assessing knowledge and a 6-month follow-up survey assessing learner behaviors and institutional changes...
November 2016: Patient Education and Counseling
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