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trust in health care researchers

Nadia Minian, Aliya Noormohamed, Laurie Zawertailo, Dolly Baliunas, Norman Giesbrecht, Bernard Le Foll, Jürgen Rehm, Andriy Samokhvalov, Peter L Selby
Plain English summary: The purpose of this paper is to describe a patient engagement event designed to create an educational workbook with smokers who drink alcohol at harmful levels. The goal was to create a workbook that combined scientific evidence with patients' values, preferences, and needs. Fourteen adult smokers who drink alcohol were invited to the Centre for Addiction and Mental Health (CAMH) to take part in a four-hour event to help design the workbook with the CAMH research team...
2018: Research Involvement and Engagement
L Jonker, S J Fisher
OBJECTIVES: Evidence supporting the notion that clinical research activity in itself is of benefit to organisations as a whole is inconclusive. In the recent past, a positive association between research activity and reduced mortality has been shown. This study aimed to ascertain if clinical research activity is associated with established organisational outcome measures. STUDY DESIGN: Retrospective cross-sectional study. METHODS: For 129 English National Health Service hospital Trusts, National Institute for Health Research study activity data, Summary Hospital-level Mortality Indicator (SHMI) scores and Care Quality Commission (CQC) ratings were collected...
February 10, 2018: Public Health
Cati G Brown-Johnson, Lindsay M Boeckman, Ashley H White, Andrea D Burbank, Sjonna Paulson, Laura A Beebe
BACKGROUND: Modern technology (ie, websites and social media) has significantly changed social mores in health information access and delivery. Although mass media campaigns for health intervention have proven effective and cost-effective in changing health behavior at a population scale, this is best studied in traditional media sources (ie, radio and television). Digital health interventions are options that use short message service/text messaging, social media, and internet technology...
February 12, 2018: JMIR Public Health and Surveillance
Jack K H Pun, E Angela Chan, Sophie Wang, Diana Slade
OBJECTIVE: To provide an integrative review of literature on health communication in East Asia and detail culturally-specific influences. METHODS: Using PRISMA model, search of PubMed, PsychInfo, Web of Knowledge, ERIC and CINAHL databases were conducted for studies between January 2000 and March 2017, using the terms 'clinician/health professional-patient', 'nurse/doctor-patient, 'communication' and 'Asia'. RESULTS: 38 studies were included: Mainland China, Hong Kong, Japan, South Korea, and Taiwan...
January 31, 2018: Patient Education and Counseling
José Granero-Molina, Tamara María Matarín Jiménez, Carmen Ramos Rodríguez, José Manuel Hernández-Padilla, Adelaida María Castro-Sánchez, Cayetano Fernández-Sola
The aim of this study is to describe and understand experiences related to social support for women with fibromyalgia who suffer from sexual dysfunction. An interpretive qualitative research methodology based on Gadamer's philosophical hermeneutics was used. Data collection included a focus group and in-depth interviews with 13 women who averaged 44.8 years of age and 14.3 years since being diagnosed with fibromyalgia. Data were analyzed using Fleming's method and two themes were identified: "searching for understanding in socio-family support" and "lack of formal support regarding fibromyalgia patient's sexuality...
March 2018: Clinical Nursing Research
Eva Guérin, Zachary M Ferraro, Kristi B Adamo, Denis Prud'homme
Engaging in recommended levels of physical activity during pregnancy can provide a host of physical and mental health benefits for the expecting mother and her child. However, methodological issues related to physical activity measurement have plagued many studies examining the effects of physical activity during this important life stage. Burgeoning support exists for the more widespread use of objective methods, and accelerometers specifically, for an accurate appraisal of maternal physical activity. In this commentary, we highlight discrepancies between activity estimates obtained via self-report and objective measures and describe the implications of erroneous measurement when making clinical recommendations and in conducting future physical activity and pregnancy research...
February 6, 2018: Maternal and Child Health Journal
J Swieton, R Hawes, S Avery, H Watson, Y Scott, M Lannon, J P Wallis
OBJECTIVES: The aim of this study is to improve practice in the management of major haemorrhage, particularly in red cell to plasma transfusion ratios. BACKGROUND: A review of the management of major haemorrhage in trauma in Newcastle Hospitals Trust in 2012-2013 showed good mortality outcomes but found that red cell : plasma transfusion ratios could be improved. Human factors techniques transferable from industry and the military were identified, and a package of interventions was implemented, including an intensive multidisciplinary team training programme and a new major haemorrhage prescription template...
February 2, 2018: Transfusion Medicine
Aaron L Leppin, Karen Schaepe, Jason Egginton, Sara Dick, Megan Branda, Lori Christiansen, Nicole M Burow, Charlene Gaw, Victor M Montori
BACKGROUND: Implementation of evidence-based programs (EBPs) for disease self-management and prevention is a policy priority. It is challenging to implement EBPs offered in community settings and to integrate them with healthcare. We sought to understand, categorize, and richly describe key challenges and opportunities related to integrating EBPs into routine primary care practice in the United States. METHODS: As part of a parent, participatory action research project, we conducted a mixed methods evaluation guided by the PRECEDE implementation planning model in an 11-county region of Southeast Minnesota...
January 31, 2018: BMC Health Services Research
Laurel Liang, Albina Cako, Robin Urquhart, Sharon E Straus, Walter P Wodchis, G Ross Baker, Anna R Gagliardi
OBJECTIVES: Patient engagement (PE) improves patient, organisation and health system outcomes, but most research is based on primary care. The primary purpose of this study was to describe the characteristics of published empirical research that evaluated PE in hospital health service improvement. DESIGN: Scoping review. METHODS: Five databases were searched from 2006 to September 2016. English language studies that evaluated patient or provider beliefs, participation in PE, influencing factors or impact were eligible...
January 30, 2018: BMJ Open
Theresa Jones, Lara Ho, Kelvin Koffa Kun, Penelope Milsom, John Shakpeh, Ruwan Ratnayake, Rene Loewenson
During the March 2014-January 2016 Ebola crisis in Liberia, Redemption Hospital lost 12 staff and became a holding facility for suspected cases, prompting violent hostility from the surrounding New Kru Town community, in the capital city Monrovia. Inpatient services were closed for 6 months, leaving the population without maternity care. In January 2015, Redemption reopened, but utilization was low, especially for deliveries. A key barrier was community trust in health workers which worsened during the epidemic...
January 31, 2018: Global Public Health
Stacey A Van Gelderen, Kelly A Krumwiede, Norma K Krumwiede, Candace Fenske
PURPOSE: To describe the application of the Community-Based Collaborative Action Research (CBCAR) framework to uplift rural community voices while conducting a community health needs assessment (CHNA) by formulating a partnership between a critical access hospital, public health agency, school of nursing, and community members to improve societal health of this rural community. METHOD: This prospective explorative study used the CBCAR framework in the design, collection, and analysis of the data...
January 1, 2018: Health Promotion Practice
Racha Fadlallah, Fadi El-Jardali, Nour Hemadi, Rami Z Morsi, Clara Abou Abou Samra, Ali Ahmad, Khurram Arif, Lama Hishi, Gladys Honein-AbouHaidar, Elie A Akl
BACKGROUND: Community-based health insurance (CBHI) has evolved as an alternative health financing mechanism to out of pocket payments in low- and middle-income countries (LMICs), particularly in areas where government or employer-based health insurance is minimal. This systematic review aimed to assess the barriers and facilitators to implementation, uptake and sustainability of CHBI schemes in LMICs. METHODS: We searched six electronic databases and grey literature...
January 29, 2018: International Journal for Equity in Health
Nomi Werbeloff, David P J Osborn, Rashmi Patel, Matthew Taylor, Robert Stewart, Matthew Broadbent, Joseph F Hayes
BACKGROUND: Electronic health records (EHRs) are widely used in mental health services. Case registers using EHRs from secondary mental healthcare have the potential to deliver large-scale projects evaluating mental health outcomes in real-world clinical populations. METHODS: We describe the Camden and Islington NHS Foundation Trust (C&I) Research Database which uses the Clinical Record Interactive Search (CRIS) tool to extract and de-identify routinely collected clinical information from a large UK provider of secondary mental healthcare, and demonstrate its capabilities to answer a clinical research question regarding time to diagnosis and treatment of bipolar disorder...
2018: PloS One
Marie-Clare Balaam, Gill Thomson
PROBLEM: The persistence of health inequalities in pregnancy and infancy amongst vulnerable/marginalised groups in the UK. BACKGROUND: During pregnancy and early motherhood some women experience severe and multiple psychosocial and economic disadvantages that negatively affect their wellbeing and make them at increased risk of poor maternal and infant health outcomes. AIM: To explore vulnerable/marginalised women's views and experiences of receiving targeted support from a specialist midwifery service and/or a charity...
January 19, 2018: Women and Birth: Journal of the Australian College of Midwives
Harry Hemingway, Folkert W Asselbergs, John Danesh, Richard Dobson, Nikolaos Maniadakis, Aldo Maggioni, Ghislaine Jm van Thiel, Maureen Cronin, Gunnar Brobert, Panos Vardas, Stefan D Anker, Diederick E Grobbee, Spiros Denaxas
Aims: Cohorts of millions of people's health records, whole genome sequencing, imaging, sensor, societal and publicly available data present a rapidly expanding digital trace of health. We aimed to critically review, for the first time, the challenges and potential of big data across early and late stages of translational cardiovascular disease research. Methods and results: We sought exemplars based on literature reviews and expertise across the BigData@Heart Consortium...
August 29, 2017: European Heart Journal
Dennis J Butler
INTRODUCTION: Medical educators have used resident-patient video recording to verify trainee competence in interpersonal and technical skills for 50 years. Although numerous authors acknowledge that video recording can compromise patient privacy and confidentiality, no summary of potential risks is available. METHOD: A scoping review of the literature on resident-patient video recording in medical education from the 1960s to the present was conducted. The review examined publications that addressed ethical, policy, procedural, or legal issues affecting patients' rights when video recording...
January 25, 2018: Families, Systems & Health: the Journal of Collaborative Family Healthcare
Duong Thi Thuy Doan, Tolib Mirzoev, Canh Chuong Nguyen, Ha Thi Thu Bui
BACKGROUND: Global progress in reducing maternal mortality requires improving access to maternal and child health services for the most vulnerable groups. This article reports results of implementation research that aimed to increase the acceptability of village-based ethnic minority midwives (EMMs) by local communities in Vietnam through implementing an integrated interventions package. METHODS: The study was carried out in 2 provinces in Vietnam, Dien Bien and Kon Tum...
March 2018: Journal of Public Health Management and Practice: JPHMP
Honghan Wu, Giulia Toti, Katherine I Morley, Zina M Ibrahim, Amos Folarin, Richard Jackson, Ismail Kartoglu, Asha Agrawal, Clive Stringer, Darren Gale, Genevieve Gorrell, Angus Roberts, Matthew Broadbent, Robert Stewart, Richard J B Dobson
Objective: Unlocking the data contained within both structured and unstructured components of electronic health records (EHRs) has the potential to provide a step change in data available for secondary research use, generation of actionable medical insights, hospital management, and trial recruitment. To achieve this, we implemented SemEHR, an open source semantic search and analytics tool for EHRs. Methods: SemEHR implements a generic information extraction (IE) and retrieval infrastructure by identifying contextualized mentions of a wide range of biomedical concepts within EHRs...
January 19, 2018: Journal of the American Medical Informatics Association: JAMIA
Kerstin Belqaid, Carol Tishelman, Ylva Orrevall, Eva Månsson-Brahme, Britt-Marie Bernhardson
Taste and smell alterations have been recognized as common symptoms in relation to various cancers. However, previous research suggests that patients do not receive sufficient support in managing taste and smell alterations. Therefore, the objective of this study is to investigate how persons with experience from lung cancer-related taste and smell alterations reason about resources and strategies offered and used to manage these symptoms. Data from semi-structured individual interviews with 13 women and four men were analyzed with qualitative content analysis...
2018: PloS One
Sherry Dahlke, Sarah Stahlke, Robin Coatsworth-Puspoky
The aim of the current study was to examine the nature of teamwork in care facilities and its impact on the effectiveness of care delivery to older adults and job satisfaction among health care workers. A focused ethnography was conducted at two care facilities where older adults reside. Analysis of interviews with 22 participants revealed perceptions of teamwork and understandings about facilitators of and barriers to effective teamwork. Participants indicated that team relationships impacted care provided and job satisfaction...
January 16, 2018: Journal of Gerontological Nursing
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