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https://www.readbyqxmd.com/read/29233800/participant-centric-initiatives-and-medical-research-scoping-review-protocol
#1
Victoria Coathup, Nao Hamakawa, Teresa Finlay, Jessica Bell, Jane Kaye, Kazuto Kato
BACKGROUND: Significant advances in digital technologies have meant that health care data can be collected, stored, transferred, and analyzed for research purposes more easily than ever before. Participant-centric initiatives (PCI) are defined as "tools, programs, and projects that empower participants to engage in the research process" using digital technologies and have the potential to provide a number of benefits to both participants and researchers, including the promotion of public trust in medical research, improved quality of research, increased recruitment and retention, and improved health care delivery...
December 12, 2017: JMIR Research Protocols
https://www.readbyqxmd.com/read/29231159/facet-joint-injections-for-non-specific-low-back-pain-a-feasibility-rct
#2
Saowarat Snidvongs, Rod S Taylor, Alia Ahmad, Simon Thomson, Manohar Sharma, Angela Farr, Deborah Fitzsimmons, Stephanie Poulton, Vivek Mehta, Richard Langford
BACKGROUND: Pain of lumbar facet-joint origin is a common cause of low back pain in adults and may lead to chronic pain and disability, with associated health and socioeconomic implications. The socioeconomic burden includes an inability to return to work resulting in loss of productivity in addition to direct and indirect health-care utilisation costs. Lumbar facet-joints are paired synovial joints between the superior and inferior articular processes of consecutive lumbar vertebrae and between the fifth lumbar vertebra and the sacrum...
December 2017: Health Technology Assessment: HTA
https://www.readbyqxmd.com/read/29230894/vouchers-for-primary-healthcare-services-in-an-ageing-world-the-perspectives-of-elderly-voucher-recipients-in-hong-kong
#3
Angel Hor-Yan Lai, Zoey Kuang, Carrie Ho-Kwan Yam, Shereen Ayub, Eng-Kiong Yeoh
Considering the ageing population in economically advanced regions across the world, measures are necessary to enhance the health of the older population as well as contain public healthcare spending. Hong Kong implements the Elderly Health Care Voucher Scheme (EHCVS), providing older people aged 65 or above an annual subsidy of visiting private healthcare service providers for chronic disease prevention and management. The services also aim at reallocating demand from the public to private sector as well as improve quality of services...
December 11, 2017: Health & Social Care in the Community
https://www.readbyqxmd.com/read/29229656/informing-future-research-for-carriage-of-multiresistant-gram-negative-bacteria-problems-with-recruiting-to-an-english-stool-sample-community-prevalence-study
#4
Donna M Lecky, Deborah Nakiboneka-Ssenabulya, Tom Nichols, Peter Hawkey, Kim Turner, Keun-Taik Chung, Mike Thomas, Helen Lucy Thomas, Li Xu McCrae, Sahida Shabir, Susan Manzoor, Adela Alvarez-Buylla, Steve Smith, Cliodna McNulty
OBJECTIVES: This study aims to highlight problems with recruiting to an English stool sample community prevalence study. It was part of a larger cross-sectional research to determine the risk factors for the presence of extended-spectrum beta-lactamase and carbapenemase-producing coliforms in stool samples of the asymptomatic general English population. SETTING: Four National Health Service primary care trusts (PCTs) of England representing a different section of the population of England: Newham PCT; Heart of Birmingham Teaching PCT; Shropshire County PCT; and Southampton City PCT...
December 10, 2017: BMJ Open
https://www.readbyqxmd.com/read/29226266/the-influence-of-race-and-ethnicity-on-becoming-a-human-subject-factors-associated-with-participation-in-research
#5
Mary A Garza, Sandra Crouse Quinn, Yan Li, Luciana Assini-Meytin, Erica T Casper, Craig S Fryer, James Butler, Natasha A Brown, Kevin H Kim, Stephen B Thomas
INRODUCTION: The purpose of this study was to explore factors associated with willingness of African Americans and Latinos to participate in biomedical and public health research and to delineate factors that influences the decision to become a human subject. METHODS: We present results from a 2010 random digit-dial telephone survey of 2,455 African American (N= 1,191) and Latino (N= 1,264) adults. We used standard measures to assess knowledge of research, terminology, informed consent procedures, previous participation in research, health care experiences, social support, risk perception, religiousness, and trust...
September 2017: Contemporary Clinical Trials Communications
https://www.readbyqxmd.com/read/29225922/using-participatory-learning-action-pla-research-techniques-for-inter-stakeholder-dialogue-in-primary-healthcare-an-analysis-of-stakeholders-experiences
#6
T de Brún, M O'Reilly-de Brún, E Van Weel-Baumgarten, N Burns, C Dowrick, C Lionis, C O'Donnell, F S Mair, M Papadakaki, A Saridaki, W Spiegel, C Van Weel, M Van den Muijsenbergh, A MacFarlane
Plain English summary: It is important for health care workers to know the needs and expectations of their patients. Therefore, service users have to be involved in research. To achieve a meaningful dialogue between service users, healthcare workers and researchers, participatory methods are needed. This paper describes how the application of a specific participatory methodology, Participatory Learning and Action (PLA) can lead to such a meaningful dialogue. In PLA all stakeholders are regarded as equal partners and collaborators in research...
2017: Research Involvement and Engagement
https://www.readbyqxmd.com/read/29224988/linking-hiv-negative-youth-to-prevention-services-in-12-u-s-cities-barriers-and-facilitators-to-implementing-the-hiv-prevention-continuum
#7
Mimi Doll, J Dennis Fortenberry, Denise Roseland, Kathleen McAuliff, Craig M Wilson, Cherrie B Boyer
PURPOSE: Linkage of HIV-negative youth to prevention services is increasingly important with the development of effective pre-exposure prophylaxis that complements behavioral and other prevention-focused interventions. However, effective infrastructure for delivery of prevention services does not exist, leaving many programs to address HIV prevention without data to guide program development/implementation. The objective of this study was to provide a qualitative description of barriers and facilitators of linkage to prevention services among high-risk, HIV-negative youth...
December 7, 2017: Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine
https://www.readbyqxmd.com/read/29219085/perceptions-about-data-informed-decisions-an-assessment-of-information-use-in-high-hiv-prevalence-settings-in-south-africa
#8
Edward Nicol, Debbie Bradshaw, Jeannine Uwimana-Nicol, Lilian Dudley
BACKGROUND: Information-use is an integral component of a routine health information system and essential to influence policy-making, program actions and research. Despite an increased amount of routine data collected, planning and resource-allocation decisions made by health managers for managing HIV programs are often not based on data. This study investigated the use of information, and barriers to using routine data for monitoring the prevention of mother-to-child transmission of HIV (PMTCT) programs in two high HIV-prevalence districts in South Africa...
December 4, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/29216841/medical-overuse-and-quaternary-prevention-in-primary-care-a-qualitative-study-with-general-practitioners
#9
Kathrin Alber, Thomas Kuehlein, Angela Schedlbauer, Susann Schaffer
BACKGROUND: Medical overuse is a topic of growing interest in health care systems and especially in primary care. It comprises both over investigation and overtreatment. Quaternary prevention strategies aim at protecting patients from unnecessary or harmful medicine. The objective of this study was to gain a deeper understanding of relevant aspects of medical overuse in primary care from the perspective of German general practitioners (GPs). We focused on the scope, consequences and drivers of medical overuse and strategies to reduce it (=quaternary prevention)...
December 8, 2017: BMC Family Practice
https://www.readbyqxmd.com/read/29214581/newborn-screening-beyond-the-spot
#10
Tiina K Urv, Melissa A Parisi
The newborn screening paradigm of testing all newborns in the United States for treatable conditions within the first few hours of birth has proven to be a remarkable success story in the realm of public health by reducing neonatal and childhood morbidity and mortality. The Newborn Screening Saves Lives Act of 2007 and its successor, the Reauthorization Act of 2014, legislated the establishment of a Department of Health and Human Services Advisory Committee to make recommendations around newborn screening and a methodology to establish and add new conditions to a Recommended Uniform Screening Panel (RUSP) which currently includes 34 core conditions...
2017: Advances in Experimental Medicine and Biology
https://www.readbyqxmd.com/read/29202089/the-role-of-risk-perception-in-willingness-to-respond-to-the-2014-2016-west-african-ebola-outbreak-a-qualitative-study-of-international-health-care-workers
#11
Stephanie Gee, Morten Skovdal
Background: The 2014-2016 West Africa Ebola Virus Disease (EVD) outbreak was an unprecedented public health event, and in addition to claiming over 11,000 lives, it resulted in the deaths of more healthcare workers than any outbreak in recent history. While a cadre of willing and able health workers is essential for an effective epidemic response, health workforce capacity in times of crisis may be significantly impacted by how risks are perceived by health staff. This study aimed to explore how risk perceptions influenced healthcare workers' willingness to respond during this outbreak...
2017: Global Health Research and Policy
https://www.readbyqxmd.com/read/29201589/designing-an-ict-self-management-service-suggestions-from-persons-with-type-2-diabetes
#12
Cecilia Gardsten, Christina Mörtberg, Kerstin Blomqvist
This paper reports the wishes and needs of people with type 2 diabetes (T2DM) for a future information and communication technology (ICT) self-management service to help manage their condition and their everyday life. Diabetes is a chronic disease affecting more and more people and placing increasing demands on health care. The self-management of diabetes includes instrumental and, decision-making skills and skills in managing daily activities, which may be supported by an ICT service. In this study we used a participatory design including two sessions of Future Workshop (FW) as part of a larger research project on the self-management of diabetes...
2017: Health and Technology
https://www.readbyqxmd.com/read/29196483/partners-at-care-transitions-pact-e-xploring-older-peoples-experiences-of-transitioning-from-hospital-to-home-in-the-uk-protocol-for-an-observation-and-interview-study-of-older-people-and-their-families-to-understand-patient-experience-and-involvement-in-care
#13
Natasha Kate Hardicre, Yvonne Birks, Jenni Murray, Laura Sheard, Lesley Hughes, Jane Heyhoe, Alison Cracknell, Rebecca Lawton
INTRODUCTION: Length of hospital inpatient stays have reduced. This benefits patients, who prefer to be at home, and hospitals, which can treat more people when stays are shorter. Patients may, however, leave hospital sicker, with ongoing care needs. The transition period from hospital to home can be risky, particularly for older patients with complex health and social needs. Improving patient experience, especially through greater patient involvement, may improve outcomes for patients and is a key indicator of care quality and safety...
December 1, 2017: BMJ Open
https://www.readbyqxmd.com/read/29190167/engaging-the-transgender-community-to-improve-medical-education-and-prioritize-healthcare-initiatives
#14
Emily J Noonan, Susan Sawning, Ryan Combs, Laura A Weingartner, Leslee J Martin, V Faye Jones, Amy Holthouser
Phenomenon: Transgender patients experience discrimination, limited access to care, and inadequate provider knowledge in healthcare settings. Medical education to address transgender-specific disparities is lacking. Research that engages transgender community members may help address health disparities by empowering patients, increasing trust, and informing medical curricula to increase competence. APPROACH: A 2015 Community Forum on Transgender Health Care was hosted at the University of Louisville School of Medicine, which included healthcare professionals and transgender community members to facilitate dialogue among mixed-participant groups using a World Café model...
November 30, 2017: Teaching and Learning in Medicine
https://www.readbyqxmd.com/read/29186163/development-and-validation-of-a-tool-to-assess-knowledge-and-attitudes-towards-generic-medicines-among-students-in-greece-the-attitude-towards-generics-attogen-questionnaire
#15
Philip J Domeyer, Vassilis Aletras, Fotios Anagnostopoulos, Vasiliki Katsari, Dimitris Niakas
INTRODUCTION: The use of generic medicines is a cost-effective policy, often dictated by fiscal restraints. To our knowledge, no fully validated tool exploring the students' knowledge and attitudes towards generic medicines exists. The aim of our study was to develop and validate a questionnaire exploring the knowledge and attitudes of M.Sc. in Health Care Management students and recent alumni's towards generic drugs in Greece. MATERIALS AND METHODS: The development of the questionnaire was a result of literature review and pilot-testing of its preliminary versions to researchers and students...
2017: PloS One
https://www.readbyqxmd.com/read/29179937/suicide-in-prisons-an-international-study-of-prevalence-and-contributory-factors
#16
Seena Fazel, Taanvi Ramesh, Keith Hawton
BACKGROUND: Prison suicide rates, rate ratios, and associations with prison-related factors need clarification and updating. We examined prison suicide rates in countries where reliable information was available, associations with a range of prison-service and health-service related factors, how these rates compared with the general population, and changes over the past decade. METHODS: We collected data for prison suicides in 24 high-income countries in Europe, Australasia, and North America from their prison administrations for 2011-14 to calculate suicide rates and rate ratios compared with the general population...
December 2017: Lancet Psychiatry
https://www.readbyqxmd.com/read/29174128/intrauterine-insemination-with-ovarian-stimulation-versus-expectant-management-for-unexplained-infertility-tui-a-pragmatic-open-label-randomised-controlled-two-centre-trial
#17
Cynthia M Farquhar, Emily Liu, Sarah Armstrong, Nicola Arroll, Sarah Lensen, Julie Brown
BACKGROUND: Women with unexplained infertility are often offered intrauterine insemination (IUI) with ovarian stimulation as an alternative to in-vitro fertilisation (IVF). However, little evidence exists that IUI is an effective treatment. In 2013, the UK National Institute for Health and Care Excellence recommended that IUI should not be routinely offered for couples with unexplained infertility. METHODS: For this pragmatic, open-label, randomised, controlled, two-centre study, we enrolled women attending two fertility clinics in New Zealand with unexplained infertility and an unfavourable prognosis of natural conception...
November 23, 2017: Lancet
https://www.readbyqxmd.com/read/29172859/racial-ethnic-differences-in-cigarette-use-the-roles-of-mental-illness-and-health-care-access-utilization
#18
Celia C Lo, Fan Yang, William Ash-Houchen, Tyrone C Cheng
BACKGROUND: Empirical evidence supports a hypothesis that cigarettes may be used to cope with mental illness. Little research, however, addresses how race/ethnicity is linked to mental health and cigarette use. OBJECTIVES: This study applied the self-medication hypothesis. It asked whether mental status was associated, via health-care access/utilization, with the cigarette use outcomes of four racial/ethnic groups. It also tested whether race/ethnicity moderated any such associations...
November 27, 2017: Substance Use & Misuse
https://www.readbyqxmd.com/read/29170030/economic-incentives-for-hiv-testing-by-adolescents-in-zimbabwe-a-randomised-controlled-trial
#19
Katharina Kranzer, Victoria Simms, Tsitsi Bandason, Ethel Dauya, Grace McHugh, Shungu Munyati, Prosper Chonzi, Suba Dakshina, Hilda Mujuru, Helen A Weiss, Rashida A Ferrand
BACKGROUND: HIV testing is the important entry point for HIV care and prevention service, but uptake of HIV testing and thus coverage of antiretroviral therapy are much lower in older children and adolescents than in adults. We investigated the effect of economic incentives provided to caregivers of children aged 8-17 years on uptake of HIV testing and counselling in Harare, Zimbabwe. METHODS: This randomised controlled trial was nested within a household HIV prevalence survey of children aged 8-17 years in Harare...
November 20, 2017: Lancet HIV
https://www.readbyqxmd.com/read/29168910/parental-immunisation-needs-and-attitudes-survey-in-paediatric-hospital-clinics-and-community-maternal-and-child-health-centres-in-melbourne-australia
#20
Jessica C Costa-Pinto, Harold W Willaby, Julie Leask, Monsurul Hoq, Tibor Schuster, Alice Ghazarian, Jacinta O'Keefe, Margie H Danchin
AIM: Despite Australia's high vaccination rates, an estimated 3.3% of children are under-vaccinated due to vaccine refusal and the proportion of parents with concerns is unclear. Amongst Australian parents, we aimed to determine the prevalence of vaccine concerns, resources and health-care providers (HCPs) accessed and satisfaction with these resources in two different settings. We also aimed to identify relationships between the level of vaccine concern, socio-economic status and vaccine uptake...
November 23, 2017: Journal of Paediatrics and Child Health
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