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https://www.readbyqxmd.com/read/28052822/applying-a-conceptual-framework-to-maximize-the-participation-of-diverse-populations-in-cancer-clinical-trials
#1
A Napoles, E Cook, T Ginossar, K D Knight, M E Ford
The underrepresentation of ethnically diverse populations in cancer clinical trials results in the inequitable distribution of the risks and benefits of this research. Using a case study approach, we apply a conceptual framework of factors associated with the participation of diverse population groups in cancer clinical trials developed by Dr. Jean Ford and colleagues to increase understanding of the specific strategies, and barriers and promoters addressed by these strategies, that resulted in marked success in accrual of racially and ethnically diverse populations in cancer clinical research...
2017: Advances in Cancer Research
https://www.readbyqxmd.com/read/28042922/patient-readmission-for-orthopedic-surgical-site-infection-an-hermeneutic-phenomenological-approach
#2
Lilian Machado Torres, Ruth Natalia Teresa Turrini, Miriam Aparecida Barbosa Merighi
AIM: To explore the individual experience of being readmitted for SSI resulting from orthopedic surgery. BACKGROUND: Surgical site infection has been a cause of concern worldwide and contributes to the greatest number of hospital readmission occurrences. Health professionals must understand the meaning of these readmissions for the individual, as an understanding of these exclusive experiences improve the quality of surgical care. DESIGN: Qualitative research based on the existential phenomenology of Martin Heidegger...
January 2, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/28031934/stories-of-experiences-of-care-for-growth-hormone-deficiency-the-crescere-project
#3
Maria G Marini, Paola Chesi, Laura Mazzanti, Laura Guazzarotti, Teresa D Toni, Maria C Salerno, Annunziata Officioso, Maria Parpagnoli, Cristina Angeletti, Maria F Faienza, Maria L Iezzi, Tommaso Aversa, Cinzia Sacchetti
AIMS: Growth hormone deficiency therapy is demanding for patients and caregivers. Teams engaged in the clinical management of growth hormone deficiency therapy need to know how families live with this condition, to provide an adequate support and prevent the risk of withdrawal from therapy. METHODS: Using Narrative Medicine, testimonies from patients, their parents and providers of care were collected from 11 Italian centers. Narrations were analyzed throughout an elaboration of recurring words and expressions...
March 2016: Future Science OA
https://www.readbyqxmd.com/read/28026980/addiction-related-stigma-and-discrimination-a-qualitative-study-in-treatment-centers-in-mexico-city
#4
Jazmín Mora-Ríos, Miriam Ortega-Ortega, Maria Elena Medina-Mora
: Social rejection of drug use is greater than that directed at other psychiatric conditions, like depression and anxiety, which may lead to social exclusion of substance users and prevent them from seeking and receiving treatment. OBJECTIVE: The objective of this study is to investigate the stigma and discrimination related to addiction in treatment centers in Mexico City. METHODS: Data are from a broad mixed methods study. The present study is a qualitative analysis of 35 in-depth interviews of drug users, family members, and providers, using guidelines for the exploration of experiences of stigma and discrimination related to substance abuse...
December 27, 2016: Substance Use & Misuse
https://www.readbyqxmd.com/read/28011658/which-types-of-anti-smoking-television-advertisements-work-better-in-taiwan
#5
Li-Ling Huang, Daniela B Friedman, Feng-Chang Lin, James F Thrasher
Research in high income countries suggests that anti-smoking television advertisements with emotionally evocative graphic messages or personal testimonials that depict serious consequences from smoking are the most effective. Research to determine the most effective smoking cessation messages for low- and middle-income countries is needed to inform campaign development in these countries. Fifty-four male Taiwanese smokers, aged 18-34, rated advertisements and participated in a focus group to evaluate eight antismoking television advertisements with contrasting messaging strategies...
December 23, 2016: Health Promotion International
https://www.readbyqxmd.com/read/28008653/altruistic-lying-in-an-alibi-corroboration-context-the-effects-of-liking-compliance-and-relationship-between-suspects-and-witnesses
#6
Stéphanie B Marion, Tara M Burke
Police investigators, judges, and jurors are often very skeptical of alibi witness testimony. To investigate when and why individuals lie for one another, we conducted two studies in which witnesses' support of a false alibi was observed. We varied the level of social pressure exerted on witnesses and the level of affinity between suspect-witness pairs. During a study session purportedly intended to investigate dyadic problem-solving ability, a mock theft was staged. When questioned, participants were provided the opportunity to either corroborate or refute a confederate's false alibi that the latter was with them when the theft occurred...
December 23, 2016: Behavioral Sciences & the Law
https://www.readbyqxmd.com/read/28007808/dangerous-liaisons-psychiatry-and-law-in-the-court-of-protection-expert-discourses-of-insight-and-compliance
#7
Paula Case
A finding that 'P' (as the person who is subject to Court of Protection proceedings is known) lacks mental capacity is the trigger for exposing them to decision-making by others and the powers of the Court of Protection (CoP) which, in the words of Justice Hedley, can be 'invasive and draconian' (Hedley J in PC v City of York Council cited in [2013] EWCA Civ 478 [13]). Whilst the law asserts the upper hand in the assessment of mental capacity for persons who come before the CoP, it is the discipline of psychiatry, which dominates expert witness testimony in these proceedings...
2016: Medical Law Review
https://www.readbyqxmd.com/read/28005251/investigating-trust-expertise-and-epistemic-injustice-in-chronic-pain
#8
Daniel Z Buchman, Anita Ho, Daniel S Goldberg
Trust is central to the therapeutic relationship, but the epistemic asymmetries between the expert healthcare provider and the patient make the patient, the trustor, vulnerable to the provider, the trustee. The narratives of pain sufferers provide helpful insights into the experience of pain at the juncture of trust, expert knowledge, and the therapeutic relationship. While stories of pain sufferers having their testimonies dismissed are well documented, pain sufferers continue to experience their testimonies as being epistemically downgraded...
December 22, 2016: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/28003386/a-proposed-model-for-assessing-defendant-competence-to-self-represent
#9
Mitzi M S White, Thomas G Gutheil
The increasing number of criminal defendants who are choosing to self-represent poses special challenges for legal systems with regard to the types of limits that should be placed on a defendant's basic human right to defend himself without the assistance of counsel. While courts strive to respect the dignity and autonomy of the defendant that are encompassed in this right, they also want to ensure that justice is delivered and the dignity of the courtroom is maintained. The Supreme Court of the United States, in its opinion in Indiana v...
December 2016: Journal of the American Academy of Psychiatry and the Law
https://www.readbyqxmd.com/read/27991827/bragging-on-facebook-the-interaction-of-content-source-and-focus-in-online-impression-formation
#10
Graham G Scott, Kirsty Ravenscroft
Warranting Theory proposes that third-party testimonials are more influential in online impression formation than target-authored statements. Individuals posting content on social media accurately convey their offline personality while endeavoring to present themselves in a positive light. In doing so, they may misjudge the psychological distance of the majority of viewers, who could view this positive self-presentation as bragging and form resultant negative impressions. In this study, we asked 136 participants to view the Facebook timelines of four female targets...
January 2017: Cyberpsychology, Behavior and Social Networking
https://www.readbyqxmd.com/read/27986091/from-early-detection-to-rehabilitation-in-the-community-reading-beyond-the-blog-testimonies-of-survivors-quality-of-life-and-prostate-cancer-representation
#11
Margareth Santos Zanchetta, Marguerite Cognet, Mary Rachel Lam-Kin-Teng, Marie Elisabeth Dumitriu, Lise Renaud, Jacques Rhéaume
BACKGROUND: Survivors' testimonies can reveal much about men's experiences of prostate cancer and impacts on their quality of life (QOL) during the clinical trajectory of the disease. These survivors' shared thoughts and views were hypothesized to reflect salient features of their lived social representation of prostate cancer. CONTEXT: We explored the content of testimonies posted by men to a public blog hosted by a French national prostate cancer patients' association...
December 16, 2016: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/27959969/redemptive-family-narratives-olga-lengyel-and-the-textuality-of-the-holocaust-in-memoriam-elie-wiesel
#12
Marius Turda
Memoirs written by Holocaust survivors and (in some cases) their testimonies retain a salience unmatched by other historical sources. This article discusses one such memoir, Olga Lengyel's Five Chimneys, alongside her 1998 testimony, aiming to engage with broader methodological issues relating to the history of the Holocaust, particularly those about memory, narrative and textuality. Through a detailed discussion of certain moments shaping Olga Lengyel's personal experience, both pre-and post-arrival in Auschwitz, the article captures the tensions and contradictions characterizing the harrowing story of one woman's loss of family in the Holocaust...
2016: Arch Mold
https://www.readbyqxmd.com/read/27932628/potential-effectiveness-of-pictorial-warning-labels-that-feature-the-images-and-personal-details-of-real-people
#13
Emily Brennan, Erin K Maloney, Yotam Ophir, Joseph N Cappella
INTRODUCTION: Pictorial warning labels (PWL) that use photographs and the personal details of real people whose health has been affected by smoking (testimonial PWL) provide factual information about the consequences of tobacco use. METHODS: Nine hundred and twenty-four adult current smokers participated in an online experiment that tested responses to four types of warning labels: (1) non-testimonial text warning labels (currently on packs in the United States); (2) non-testimonial PWL (previously proposed by the United States Food and Drug Administration); (3) image only testimonial PWL (created for study); (4) image + personal details testimonial PWL (created for study)...
December 8, 2016: Nicotine & Tobacco Research: Official Journal of the Society for Research on Nicotine and Tobacco
https://www.readbyqxmd.com/read/27920585/medical-expert-testimony-as-conflict-of-interest-regarding-the-onset-of-rheumatoid-arthritis-following-trauma
#14
COMMENT
David D Sherry
No abstract text is available yet for this article.
2016: Open Access Rheumatology: Research and Reviews
https://www.readbyqxmd.com/read/27920164/epistemic-injustice-in-healthcare-encounters-evidence-from-chronic-fatigue-syndrome
#15
Charlotte Blease, Havi Carel, Keith Geraghty
Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) remains a controversial illness category. This paper surveys the state of knowledge and attitudes about this illness and proposes that epistemic concerns about the testimonial credibility of patients can be articulated using Miranda Fricker's concept of epistemic injustice. While there is consensus within mainstream medical guidelines that there is no known cause of CFS/ME, there is continued debate about how best to conceive of CFS/ME, including disagreement about how to interpret clinical studies of treatments...
December 5, 2016: Journal of Medical Ethics
https://www.readbyqxmd.com/read/27918466/evaluating-a-website-to-teach-children-safety-with-dogs-a-randomized-controlled-trial
#16
David C Schwebel, Peng Li, Leslie A McClure, Joan Severson
Dog bites represent a significant threat to child health. Theory-driven interventions scalable for broad dissemination are sparse. A website was developed to teach children dog safety via increased knowledge, improved cognitive skills in relevant domains, and increased perception of vulnerability to bites. A randomized controlled trial was conducted with 69 children aged 4-5 randomly assigned to use the dog safety website or a control transportation safety website for ~3 weeks. Assessment of dog safety knowledge and behavior plus skill in three relevant cognitive constructs (impulse control, noticing details, and perspective-taking) was conducted both at baseline and following website use...
December 2, 2016: International Journal of Environmental Research and Public Health
https://www.readbyqxmd.com/read/27914194/illness-narratives-of-people-who-are-homeless
#17
Cecilia Håkanson, Joakim Öhlén
Multiple illnesses are common in all homeless populations. While most previous studies have focused on experiences of mental illness, there is a scarcity of studies about experiences of bodily illness among people who are homeless. This study aimed to explore illness narratives of people who are homeless, and how homelessness as a social context shapes the experience of multiple and/or advancing somatic conditions. The design was a qualitative single-case study, using interpretive description. Data were generated through interviews, with nine participants who were homeless rough sleepers in Stockholm, Sweden, recruited while receiving care in a support home for homeless people with complex care needs...
2016: International Journal of Qualitative Studies on Health and Well-being
https://www.readbyqxmd.com/read/27903842/a-comprehensive-lifestyle-randomized-clinical-trial-design-and-initial-patient-experience
#18
Banu Arun, Taylor Austin, Gildy V Babiera, Karen Basen-Engquist, Cindy L Carmack, Alejandro Chaoul, Lorenzo Cohen, Lisa Connelly, Robin Haddad, Carol Harrison, Yisheng Li, Smitha Mallaiah, Raghuram Nagarathna, Patricia A Parker, George H Perkins, James M Reuben, Ya-Chen Tina Shih, Amy Spelman, Anil Sood, Peiying Yang, Sai-Ching J Yeung
BACKGROUND: Although epidemiological research demonstrates that there is an association between lifestyle factors and risk of breast cancer recurrence, progression of disease, and mortality, no comprehensive lifestyle change clinical trials have been conducted to determine if changing multiple risk factors leads to changes in biobehavioral processes and clinical outcomes in women with breast cancer. This article describes the design, feasibility, adherence to the intervention and data collection, and patient experience of a comprehensive lifestyle change clinical trial (CompLife)...
November 30, 2016: Integrative Cancer Therapies
https://www.readbyqxmd.com/read/27902523/who-cares-what-we-think-so-here-s-what-we-see-the-testimony-of-a-student-nurse
#19
Victoria Daughen
No abstract text is available yet for this article.
January 2017: Holistic Nursing Practice
https://www.readbyqxmd.com/read/27899446/-if-you-are-empathetic-you-care-about-both-animals-and-people-i-am-a-nurse-and-i-don-t-like-to-see-suffering-anywhere-findings-from-103-healthcare-professionals-on-attitudes-to-animal-experimentation
#20
Andrée Dignon
This report presents qualitative and quantitative data from 103 UK healthcare professionals describing attitudes to the current system of animal testing (to produce medicines and health interventions). To gather qualitative testimony, these healthcare professionals were organised into six separate focus groups (of 18, 17, 17, 15, 17 and 19 participants) where they were asked 'what is your opinion about the current system of animal testing?' The study focussed on attitudes to the current system rather than attitudes to animal testing in general...
November 28, 2016: Journal of Health Psychology
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