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Nijmegen questionnaire

Douglas P Sladen, Matthew L Carlson, Brittany P Dowling, Amy P Olund, Kathryn Teece, Melissa D DeJong, Alyce Breneman, Ann Peterson, Charles W Beatty, Brian A Neff, Colin L Driscoll
OBJECTIVES/HYPOTHESIS: This study was designed to examine speech recognition and self-perceived health-related quality of life (HRQoL) received from cochlear implantation among a cohort of adults and children with a short duration of unilateral hearing loss greater than 6 months, but less than 2 years. STUDY DESIGN: Single-subject repeated measures prospective study. METHODS: This study assessed changes in speech recognition and self-perceived quality of life by prospectively analyzing data at the preoperative evaluation and at the 3-month and 6-month postactivation intervals...
October 12, 2016: Laryngoscope
Babette F van Esch, Peter Paul G van Benthem, Hester J van der Zaag-Loonen, Tjasse D Bruintjes
OBJECTIVE: There are no epidemiological studies quantifying the prevalence of second causes of dizziness in Ménière's disease (MD). Therefore, we aimed to quantify which dizziness-inducing causes are prevalent alongside MD. Moreover, we analyzed which second cause of dizziness was more common in a specific age group and if age was a risk factor. STUDY DESIGN: Retrospective cohort study. SETTING: Tertiary referral center. METHODS: Data were retrospectively obtained from all MD patients who visited our clinic between January 2000 and December 2013...
September 16, 2016: Otology & Neurotology
Talita le Roux, Bart Vinck, Iain Butler, Liebie Louw, Leone Nauta, Dani Schlesinger, De Wet Swanepoel
OBJECTIVE: To identify and describe predictors of health-related quality of life (HRQoL) outcomes for adult cochlear implant (CI) recipients in South Africa. DESIGN: A retrospective study of adult CI recipients was conducted and cross-sectional HRQoL outcome data were added at the time of data collection, using the Nijmegen Cochlear Implant Questionnaire (NCIQ). Twenty-two potential predictive factors were identified from the retrospective dataset, including demographic, hearing loss, CI and risk-related factors...
September 9, 2016: International Journal of Audiology
Richard Boulding, Rebecca Stacey, Rob Niven, Stephen J Fowler
Dysfunctional breathing is a term describing breathing disorders where chronic changes in breathing pattern result in dyspnoea and other symptoms in the absence or in excess of the magnitude of physiological respiratory or cardiac disease. We reviewed the literature and propose a classification system for the common dysfunctional breathing patterns described. The literature was searched using the terms: dysfunctional breathing, hyperventilation, Nijmegen questionnaire and thoraco-abdominal asynchrony. We have summarised the presentation, assessment and treatment of dysfunctional breathing, and propose that the following system be used for classification...
September 2016: European Respiratory Review: An Official Journal of the European Respiratory Society
Andishe Attarbaschi, Elisa Carraro, Oussama Abla, Shlomit Barzilai-Birenboim, Simon Bomken, Laurence Brugieres, Eva Bubanska, Birgit Burkhardt, Alan Ks Chiang, Monika Csoka, Alina Fedorova, Janez Jazbec, Edita Kabickova, Zdenka Krenova, Jelena Lazic, Jan Loeffen, Georg Mann, Felix Niggli, Natasha Miakova, Tomoo Osumi, Leila Ronceray, Anne Uyttebroeck, Denise Williams, Wilhelm Woessmann, Grazyna Wrobel, Marta Pillon
Children and adolescents with pre-existing conditions such as DNA repair defects or other primary immunodeficiencies have an increased risk of non-Hodgkin's lymphoma. However, large-scale data on patients with non-Hodgkin's lymphoma and their entire spectrum of pre-existing conditions are scarce. In a retrospective multi-national study performed by means of questionnaires sent out to the national study groups or centres, the two largest consortia in childhood non-Hodgkin's lymphoma, the European Intergroup for Childhood non-Hodgkin's lymphoma and the international Berlin-Frankfurt-Munster Study Group, identified 213 patients with non-Hodgkin's lymphoma and a pre-existing condition...
August 11, 2016: Haematologica
Hong Liu, Hong-Xiang Liu, Hou-Yong Kang, Zheng Gu, Su-Ling Hong
OBJECTIVE: Previous studies have shown that deaf children benefit considerably from cochlear implants. These improvements are found in areas such as speech perception, speech production, and audiology-verbal performance. Despite the increasing prevalence of cochlear implants in China, few studies have reported on health-related quality of life in children with cochlear implants. The main objective of this study was to explore health-related quality of life on children with cochlear implants in South-west China...
September 2016: International Journal of Pediatric Otorhinolaryngology
Ilan J N Koppen, Sophie Kuizenga-Wessel, Peter L Lu, Marc A Benninga, Carlo Di Lorenzo, Victoria A Lane, Marc A Levitt, Richard J Wood, Desale Yacob
BACKGROUND: Children with intractable functional constipation (FC) may eventually require surgery, often guided by motility testing. However, there are no evidence-based guidelines for the surgical management of intractable FC in children. AIM: To assess the diagnostic and surgical approach of pediatric surgeons and pediatric gastroenterologists towards children with intractable FC. METHODS: A survey was administered to physicians attending an international conference held simultaneously in Columbus (Ohio, USA) and Nijmegen (the Netherlands)...
October 2016: Journal of Pediatric Surgery
Patrick D Hoek, Henk J Schers, Jan C M Hendriks, Kris C P Vissers, Jeroen G J Hasselaar
BACKGROUND: Expert consultation supports general practitioners (GPs) in delivering adequate palliative homecare. Insight into consultation practices from a GP's perspective is needed in order to shape consultation services to their wishes and needs. AIM: To explore palliative care consultation practices from a GP's perspective. DESIGN AND SETTING: Cross-sectional web-based survey among all GPs (n=235) in the region of Nijmegen, the Netherlands...
June 17, 2016: BMJ Supportive & Palliative Care
Hans Hendrik Karel Delye, Sebastian Arts, Wilfred Ary Borstlap, Laura Mirjam Blok, Jacques Jan Driessen, Jene Willem Meulstee, Thomas Jan Jaap Maal, Erik Jan van Lindert
INTRODUCTION: An evaluation of our first 111 consecutive cases of non-syndromic endoscopically assisted craniosynostosis surgery (EACS) followed by helmet therapy. METHODS: Retrospective analysis of a prospective registration database was performed. Age, duration of surgery, length of hospital stay, blood loss, transfusion rate, cephalic index and duration of helmet therapy were evaluated. An online questionnaire was used to evaluate the burden of the helmet therapy for the child and parents...
August 2016: Journal of Cranio-maxillo-facial Surgery
Carola J M Groenen, Marjan J Faber, Jan A M Kremer, Frank P H A Vandenbussche, Noortje T L van Duijnhoven
BACKGROUND: A personal health record (PHR) is an online application through which individuals can access, manage, and share their health information in a private, secure, and confidential environment. Personal health records empower patients, facilitate collaboration among healthcare professionals, and improve health outcomes. Given these anticipated positive effects, we want to implement a PHR, named MyPregn@ncy, in a Dutch maternity care setting and to evaluate its effects in routine care...
2016: Trials
Steffen Knopke, Stefan Gräbel, Ulrike Förster-Ruhrmann, Birgit Mazurek, Agnieszka J Szczepek, Heidi Olze
OBJECTIVES/HYPOTHESIS: The objective of this study was to evaluate the outcome of cochlear implantation in elderly patients (80 or older) with progressive bilateral deafening. The measured outcomes included the quality of life, speech understanding, tinnitus distress, stress level, anxiety, and depressiveness. STUDY DESIGN: Prospective cohort study. METHODS: Seventeen 80+ years (mean 82.9 ± 2.7 years) patients with progressive, postlingual, bilateral deafness were unilaterally implanted with multichannel cochlear implants...
April 14, 2016: Laryngoscope
Margreet S H Wortman, Peter L B J Lucassen, Hiske J van Ravesteijn, Hans Bor, Pim J J Assendelft, Cees Lucas, Tim C Olde Hartman
BACKGROUND: Patients repeatedly presenting with medically unexplained symptoms (MUS) to their GPs, suffer from their symptoms. Experts in the field suggest a multicomponent approach for these patients. Brief multimodal psychosomatic therapy (BMPT) is such an intervention. OBJECTIVES: To test the systematic identification of eligible patients, acceptability of BMPT and potential treatment effects of BMPT. METHODS: The participants in this randomized pilot trial, patients consulting their GPs more than once with MUS, were randomized to intervention [usual care (UC) and additional BMPT] or control condition (UC alone)...
August 2016: Family Practice
Yvette E Smulders, Alice van Zon, Inge Stegeman, Albert B Rinia, Gijsbert A Van Zanten, Robert J Stokroos, Nadia Hendrice, Rolien H Free, Bert Maat, Johan H M Frijns, Jeroen J Briaire, Emmanuel A M Mylanus, Wendy J Huinck, Adriana L Smit, Vedat Topsakal, Rinze A Tange, Wilko Grolman
IMPORTANCE: The cost of bilateral cochlear implantation (BCI) is usually not reimbursed by insurance companies because of a lack of well-designed studies reporting the benefits of a second cochlear implant. OBJECTIVE: To determine the benefits of simultaneous BCI compared with unilateral cochlear implantation (UCI) in adults with postlingual deafness. DESIGN, SETTING, AND PARTICIPANTS: A multicenter randomized clinical trial was performed...
March 2016: JAMA Otolaryngology—Head & Neck Surgery
G Morroy, W Van Der Hoek, Z D Nanver, P M Schneeberger, C P Bleeker-Rovers, J Van Der Velden, R A Coutinho
From 2007 to 2010, The Netherlands experienced a major Q fever outbreak with more than 4000 notifications. Previous studies suggested that Q fever patients could suffer long-term post-infection health impairments, especially fatigue. Our objective was to assess the Coxiella burnetii antibody prevalence and health status including fatigue, and assess their interrelationship in Herpen, a high-incidence village, 7 years after the outbreak began. In 2014, we invited all 2161 adult inhabitants for a questionnaire and a C...
April 2016: Epidemiology and Infection
Majid Ravanbakhsh, Moslem Nargesi, Hanieh Raji, Maryam Haddadzadeh Shoushtari
BACKGROUND: The aim of this study was to assess the validity and reliability of Nijmegen questionnaire (NQ) translated to Farsi for diagnosis of the hyperventilation syndrome (HVS) in patients with asthma. MATERIALS AND METHODS: The original version of NQ was translated to Farsi and then back-translated to English again to assess its agreement with the original version. To determine its cultural adaptation, a pilot study was carried out. The mean score of the questionnaire and the mean pressure of end tidal carbon dioxide (PETCO2) were compared in 100 asthmatic patients to determine the validity of the questionnaire...
2015: Tanaffos
Yvonne C M Rensen, Joukje M Oosterman, Jessica E van Damme, Sonja I A Griekspoor, Arie J Wester, Michael D Kopelman, Roy P C Kessels
OBJECTIVE: Even though the first awareness of confabulations is often based on observations, only questionnaires and structured interviews quantifying provoked confabulations are available. So far, no tools have been developed to measure spontaneous confabulation. This study describes and validates an observation scale for quantifying confabulation behavior, including spontaneous confabulations, in clinical practice. METHOD: An observation scale consisting of 20 items was developed, the Nijmegen-Venray Confabulation List-20 (NVCL-20)...
2015: Clinical Neuropsychologist
J W I van Nierop, W J Huinck, R J E Pennings, R J C Admiraal, E A M Mylanus, H P M Kunst
OBJECTIVE: To evaluate the benefit of cochlear implantation in patients with Pendred syndrome. DESIGN: Retrospective study. SETTING: Tertiary centre. PARTICIPANTS AND MAIN OUTCOME MEASURES: Speech perception was measured using a phonetically balanced word list at a sound pressure level of 65 dB. Post-operative phoneme scores at 12-month for adults and 36-month for children with Pendred syndrome were compared to scores of patients with an enlarged vestibular aqueduct (EVA) and a reference group with an unknown cause of hearing impairment...
August 2016: Clinical Otolaryngology
F Ottaviani, E Iacona, V Sykopetrites, A Schindler, F Mozzanica
The NCIQ is a quantifiable self-assessment health-related quality of life instrument specific for cochlear implant users. The aim of this study was to culturally adapt the NCIQ into Italian (I-NCIQ). A prospective instrument validation study was conducted. Cross-cultural adaptation and validation were accomplished. Cronbach α was used to test internal consistency in 51 CI users and in a control group composed by 38 post-lingual deaf adult on a waiting list for a CI. ICC test was used for test-retest reliability analysis...
August 2016: European Archives of Oto-rhino-laryngology
Natalie R Capretta, Aaron C Moberly
OBJECTIVES/HYPOTHESIS: Current postoperative clinical outcome measures for adults receiving cochlear implants (CIs) consist of testing speech recognition, primarily under quiet conditions. However, it is strongly suspected that results on these measures may not adequately reflect patients' quality of life (QOL) using their implants. This study aimed to evaluate whether QOL for CI users depends on speech recognition performance. STUDY DESIGN: Twenty-three postlingually deafened adults with CIs were assessed...
March 2016: Laryngoscope
Katarzyna Cieśla, Monika Lewandowska, Henryk Skarżyński
The aim of the study was to evaluate mental distress and health-related quality of life in patients with bilateral partial deafness (high-frequency sensorineural hearing loss) before cochlear implantation, with respect to their audiological performance and time of onset of the hearing impairment. Thirty-one patients and 31 normal-hearing individuals were administered the Beck Depression Inventory (BDI), the State-Trait-Anxiety-Inventory (STAI) and the World Health Organization Quality of Life-BREF questionnaire (WHOQOL-BREF)...
March 2016: European Archives of Oto-rhino-laryngology
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