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Seung Kyu Park, Dae Jung Yang, Jae Won Heo, Je Ho Kim, Sam Heon Park, Yo Han Uhm
[Purpose] This study aims to analyze the factors that affect the quality of life of children with cerebral palsy. [Subjects and Methods] The study subjects were 138 children, aged 7-12, who suffer from cerebral palsy. Factors affecting subjects' quality of life were evaluated using the ICF-CY; quality of life was evaluated using the KIDSCREEN 52 - Health-Related Quality of Life questionnaire. Multiple regression analysis was conducted. [Results] The factors related to physical functions that affect subjects' quality of life were mental function, sensory function and pain, genitourinary and reproductive function, as well as neuromusculoskeletal and movement-related functions...
November 2016: Journal of Physical Therapy Science
Johanna Norderyd, Gunilla Klingberg, Denise Faulks, Mats Granlund
PURPOSE: To describe and analyse dental care and treatment modalities for children with complex disabilities from a biopsychosocial perspective, with special focus on dental treatment under general anaesthesia (GA) and its relationship to child's functioning. METHOD: An ICF-CY Checklist for Oral Health was completed using structured interview, direct observations, and dental records for patients attending a specialist paediatric dentistry clinic. Descriptive and comparative data analysis was performed...
November 22, 2016: Disability and Rehabilitation
Chunping Du, Jiadan Yu, Jiaqi Zhang, Jiaojiao Jiang, Huabin Lai, Wei Liu, Yang Liu, Hao Li, Pu Wang
OBJECTIVE: To investigate relevant aspects of functioning and disability, and environmental factors in people with adolescent idiopathic scoliosis according to patients' self-reports based on the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY). DESIGN: Multicentre, empirical, cross-sectional study. SETTING: Four departments of orthopaedics in 4 hospitals, and 5 departments of rehabilitation medicine in 5 hospitals...
October 12, 2016: Journal of Rehabilitation Medicine
Rachel Sommer, Janika Blömeke, Michaela Dabs, Stefanie Witt, Monika Bullinger, Julia Quitmann
PURPOSE: Achondroplasia is the most common disproportionate short stature which impacts patients' well-being. Little is known about the burden of disease in terms of functioning of patients and few disease-specific patient-reported outcome (PRO) measures exist. To understand the consequences of achondroplasia, the objective of the study was to develop an achondroplasia-specific PRO tool. METHOD: Focus group discussions including 34 German patients (age 8-18 years) and 21 parents were conducted and qualitatively analyzed...
September 16, 2016: Disability and Rehabilitation
Tamara Germani, Lonnie Zwaigenbaum, Joyce Magill-Evans, Sandy Hodgetts, Geoff Ball
OBJECTIVE: To determine (a) the essential components of social participation for preschool children with Autism Spectrum Disorder (ASD) using stakeholders' perspectives and (b) the facilitators and barriers experienced in promoting social participation. METHODS: A mixed-methods, web-based survey utilizing the International Classification of Functioning, Disability and Health - Child and Youth version (ICF-CY) taxonomy was circulated across Canada through purposeful snowball sampling...
August 18, 2016: Developmental Neurorehabilitation
Marlene P Bagatto, Sheila T Moodie
Early hearing detection and intervention (EHDI) programs have been guided by principles from the Joint Committee on Infant Hearing and an international consensus of best practice principles for family-centered early intervention. Both resources provide a solid foundation from which to design, implement, and sustain a high-quality, family-centered EHDI program. As a result, infants born with permanent hearing loss and their families will have the support they need to develop communication skills. These families also will benefit from programs that align with the framework offered by the World Health Organization's International Classification of Functioning, Disability and Health: Children & Youth Version (ICF-CY)...
August 2016: Seminars in Hearing
Kris English, Emily Pajevic
In 2007, the World Health Organization published a set of International Classification of Functioning, Disability and Health (ICF) codes designed for children and youth (ICF-CY version). The ICF-CY considers typical developmental changes associated with childhood while describing health status and the effects of intervention. In this article we will describe how a specific intervention (transition planning for adolescents) can be documented with the ICF-CY. Transition planning in health care prepares adolescents and their families for the transfer from pediatric to adult health services and has been demonstrated to be an effective practice for adolescents with many types of chronic health conditions (e...
August 2016: Seminars in Hearing
Yueh-Ling Hsieh, Chen-Chia Yang, Shih-Heng Sun, Shu-Ya Chan, Tze-Hsuan Wang, Hong-Ji Luo
PURPOSE: To evaluate the effects of hippotherapy on body functions, activities, and participation in children with CP of various functional levels by using the International Classification of Functioning, Disability and Health-Children and Youth (ICF-CY) checklist. METHODS: Fourteen children with cerebral palsy (CP) (3-8 years of age) were recruited for a 36-week study composed of baseline, intervention, and withdrawal phases (12 weeks for each phase, ABA design)...
July 20, 2016: Disability and Rehabilitation
Ursula M Costa, Gernot Brauchle, Ann Kennedy-Behr
PURPOSE: This study explored collaborative goal setting with children, parents, and teachers, and children's reasons for their goals based on their perceived self-efficacy, using the Austrian-German Perceived Efficacy and Goal Setting System (AG-PEGS). METHOD: Thirty-eight children from age 5 to 10 years (referred to occupational therapists because of difficulties in performing everyday activities), their parents and teachers participated in this mixed methods study...
July 6, 2016: Disability and Rehabilitation
Camilla Fontana, Odoardo Picciolini, Monica Fumagalli, Fabio Mosca, Giuseppina Bernardelli, Matilde Leonardi, Paolo Meucci, Alberto Raggi, Ambra M Giovannetti
This paper aims to describe the longitudinal changes in disability, defined by the International Classification of Functioning, Disability, and Health - Children and Youth version (ICF-CY) biopsychosocial model, and developmental outcomes in a cohort of 56 very low birth weight children over 14-20 months. We used a neurofunctional assessment, the Griffiths Mental Development Scales-Revised: 2-8 years (Griffiths 2-8) to evaluate psychomotor development and the ICF-CY questionnaire for ages 0-3 and 3-6 to address children's disability...
December 2016: International Journal of Rehabilitation Research. Revue Internationale de Recherches de Réadaptation
Emily J Steel, Gunnel Janeslätt
PURPOSE: The International Organization for Standardization (ISO) is working on accessibility of products to support people with cognitive impairment. Working Group 10, within the technical committee 173 (assistive products for persons with disability) was formed in 2014 to draft standards for assistive products that support people with cognitive impairment. METHOD: This article explains the scope and purpose of the working group and the context for its formation, and describes the plans and process for drafting and publishing new international standards...
June 13, 2016: Disability and Rehabilitation. Assistive Technology
Niels Ove Illum, Mette Bonderup, Kim Oren Gradel
INTRODUCTION: The WHO has launched a common classification for disabilities in children, the International Classification of Functioning, Disability and Health, Child and Youth Version (ICF-CY). We wanted to determine whether cat-egories of the environmental (e) and the body functions (b) components of the classification could address environmental needs in children with different disorders and various disability severities. METHODS: A set of 16 e categories and 47 b categories were selected and worded to best enable parents to describe children's everyday support needs and environmental influences through interviews in their own homes...
June 2016: Danish Medical Journal
Aysu Kahraman, Kübra Seyhan, Ünal Değer, Seval Kutlutürk, Akmer Mutlu
AIM: The aim of this study was to determine the effects of repeat botulinum toxin A (BoNT-A) injections in children with spastic cerebral palsy (CP) on the basis of a best evidence synthesis. METHOD: This study included 13 original articles after searching the literature to retrieve information. We used the critical review form produced by McMaster University to determine the methodological quality of the studies, and then confirmed the levels of evidence from Sackett...
September 2016: Developmental Medicine and Child Neurology
Eleonora Bieber, Bouwien C M Smits-Engelsman, Giuseppina Sgandurra, Giovanni Cioni, Hilde Feys, Andrea Guzzetta, Katrijn Klingels
This study systematically reviewed the clinical and psychometric properties of manual function outcome measures for children with developmental coordination disorder (DCD) aged 3-18 years. Three electronic databases were searched to identify manual function tools at the ICF-CY body function, activity and participation level used in children with DCD. Study selection and data extraction was conducted by two blind assessors according to the CanChild Outcome Measures Rating Form. Nineteen clinical tests (seven fine hand use tools and 12 handwriting measures), three naturalistic observations and six questionnaires were identified...
August 2016: Research in Developmental Disabilities
Deepa Jeevanantham, Doreen Bartlett
PURPOSE: Classifying children with heterogeneous health conditions is challenging. The purposes of this perspective are to explore the prevailing classifications in children with the three selected neurodisabilities using the underlying framework of ICF/ICF-CY, explore the utility of the identified classifications, and make recommendations aimed at improving classifications. METHODS: A literature search on six databases and Google was conducted. Articles published between the years 2000 and 2013 were included if they provided information on classification of cerebral palsy (CP), and/or developmental coordination disorder (DCD) and/or autism spectrum disorders (ASD)...
April 8, 2016: Developmental Neurorehabilitation
Roslyn Ward, Jess E Reynolds, Natasha Bear, Catherine Elliott, Jane Valentine
BACKGROUND AND OBJECTIVES: To conduct a systematic review of the evidence for the management of tone in infants 0-24 months of age, with or at risk of developing cerebral palsy. METHOD: This review was conducted and reported following the Preferred Reporting Items for Systematic Reviews and Meta-analyses Statement. The Cochrane Central Register of Controlled Trials, Embase, MEDLINE, CINAHL Plus and PsycINFO databases were systematically searched for relevant articles...
March 30, 2016: Disability and Rehabilitation
Patricia A M van Iersel, Annechien M Algra, Saskia C M Bakker, Arnold J H Jonker, Mijna Hadders-Algra
BACKGROUND: A difficult birth at term (DBAT) may manifest as fetal acidosis and low Apgar scores and is often referred to as "perinatal asphyxia," especially when infants show signs of neonatal encephalopathy (NE). In contrast to DBAT resulting in moderate-to-severe NE, which is associated with neurodevelopmental disorders, little is known about the prognosis of less severe forms of DBAT, with or without NE. OBJECTIVE: The purpose of this study was to evaluate the International Classification of Functioning, Disability and Health, Children & Youth Version activity "mobility" and other neurodevelopmental sequelae in infants with DBAT at age 6 years...
August 2016: Physical Therapy
Nina Klang, Charity Rowland, Melanie Fried-Oken, Sandra Steiner, Mats Granlund, Margareta Adolfsson
The aim of the study was to explore the contents of communication-related goals in individualized education programs (IEPs) for students with complex communication needs. Goals in 43 IEPs were linked to the International Classification of Functioning, Disability and Health, Children and Youth version (ICF-CY). The results show that the communication-related IEP goals contain information on multiple domains of functioning in the ICF-CY. However, judging by the amount of codes linked to ICF-CY chapters, the IEPs contain a relatively small proportion of goals that focus on interaction with others, or participation in classroom and leisure activities...
2016: Augmentative and Alternative Communication: AAC
Byoung-Hee Lee, Yu-Mi Kim, Goo-Churl Jeong
[Purpose] This study aimed to evaluate the mediating effect of gross motor function, measured using the Gross Motor Function Measure (GMFM) and of general function, measured using the International Classification of Functioning, Disability and Health-Child and Youth Check List (ICF-CY), on the ICF domains of activity and participation in children with cerebral palsy (CP). [Subjects] Ninety-five children with CP, from Seoul, Korea, participated in the study. [Methods] The GMFM was administered in its entirety to patients without orthoses or mobility aids...
October 2015: Journal of Physical Therapy Science
Natasha Yuan-Kim Liow, Hortensia Gimeno, Daniel Edward Lumsden, Jennifer Marianczak, Margaret Kaminska, Stephen Tomlin, Jean-Pierre Sao-Ming Lin
INTRODUCTION: Gabapentin has been used in the management of neuropathic pain, epilepsy and occasionally movement disorders. METHODS: A four-year retrospective, observational study analysed the use of gabapentin for severe dystonia in children at the Evelina London Children's Hospital. Motor severity was classified according to the Gross Motor Function Classification System (GMFCS), Dystonia Severity Assessment Plan (DSAP) and levels of impairment in activities of daily living were graded according to the WHO International Classification of Functioning, Disability and Health, Children & Youth version (ICF-CY) before and after gabapentin...
January 2016: European Journal of Paediatric Neurology: EJPN
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