Jonathan Ducey, Nick Lansdale, Sarah Gorst, Lucy Bray, Nadine Teunissen, Paul Cullis, Julia Faulkner, Victoria Gray, Lucia Gutierrez Gammino, Graham Slater, Laura Baird, Alex Adams, Julia Brendel, Adam Donne, Eniola Folaranmi, Laura Hopwood, Anna-May Long, Paul D Losty, Dan Benscoter, Corné de Vos, Sebastian King, Tom Kovesi, Usha Krishnan, Shireen A Nah, Lin Yin Ong, Mike Rutter, Warwick J Teague, Aaron M Zorn, Nigel J Hall, Rebecca Thursfield
INTRODUCTION: Heterogeneity in reported outcomes of infants with oesophageal atresia (OA) with or without tracheo-oesophageal fistula (TOF) prevents effective data pooling. Core outcome sets (COS) have been developed for many conditions to standardise outcome reporting, facilitate meta-analysis and improve the relevance of research for patients and families. Our aim is to develop an internationally-agreed, comprehensive COS for OA-TOF, relevant from birth through to transition and adulthood...
February 5, 2024: BMJ Paediatrics Open