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https://www.readbyqxmd.com/read/26700930/communication-documentation-and-training-standards-in-pediatric-psychosocial-oncology
#1
REVIEW
Andrea Farkas Patenaude, Wendy Pelletier, Kristin Bingen
As part of a larger effort to create standards for psychosocial care of children with cancer, we document consensus and evidence-based data on interprofessional communication, documentation, and training for professionals providing psycho-oncology services. Six databases were searched. Sixty-five articles and six guidelines and consensus-based documents were identified; 35 met inclusion criteria. Data support strong recommendations for standards of care in communication/collaboration, documentation of patient information, and training in pediatric psycho-oncology...
December 2015: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/24906202/pediatric-psycho-oncology-care-standards-guidelines-and-consensus-reports
#2
REVIEW
Lori Wiener, Adrienne Viola, Julia Koretski, Emily Diana Perper, Andrea Farkas Patenaude
OBJECTIVE: The aim of this study was to identify existing guidelines, standards, or consensus-based reports for psychosocial care of children with cancer and their families. PURPOSE: Psychosocial standards of care for children with cancer can systematize the approach to care and create a replicable model that can be utilized in pediatric hospitals around the world. Determining gaps in existing standards in pediatric psycho-oncology can guide development of useful evidence-based and consensus-based standards...
February 2015: Psycho-oncology
https://www.readbyqxmd.com/read/24716501/updates-in-paediatric-psycho-oncology
#3
REVIEW
Nicole Mavrides, Maryland Pao
Childhood cancer accounts for less than 2% of all cancers diagnosed each year. About 12-14,000 children will be diagnosed in a given year with any type of cancer. Over the past fifty years, treatments and cure rates have improved from 10-20% five-year survival rates to between 80-85% five-year survival rates. Psychosocial support of children with cancer and their families has grown and has been more fully integrated into paediatric care over the past five decades. Increasing acceptance of the importance of addressing mental health has led to oncologists referring patients to specific resources and services...
February 2014: International Review of Psychiatry
https://www.readbyqxmd.com/read/24217634/-psycho-organic-diseases-in-children-and-adolescents-affected-by-pediatric-neoplasms
#4
REVIEW
C A Clerici, B Giacon, L Veneroni, A Ferrari, R Luksch, C Meazza, D Polastri, F Simonetti, M Massimino
At Pediatric Oncology Centers, psychological intervention and psychotherapy are generally offered to children and adolescents for supporting their adjustment to disease and treatment. The clinical practice, however, point out that cognitive and emotional symptoms, such as psychic distortions, fatigue, anxiety, irritability and depression, are sustained by biological mechanisms connected with disease and treatment and not respondent to psychological consultation and to other psychosocial resources. These manifestations could interfere with treatment or with the long-term adjustment and call for psychopharmacological treatments...
December 2013: Minerva Pediatrica
https://www.readbyqxmd.com/read/23439535/-adolescents-with-cancer-the-youth-project-at-the-istituto-nazionale-tumori-in-milan
#5
Andrea Ferrari, Laura Veneroni, Carlo Alfredo Clerici, Filippo Spreafico, Monica Terenziani, Maura Massimino, Roberto Luksch, Michela Casanova, Cristina Meazza, Daniela Polastri, Lorenza Gandola
Adolescents with cancer are a particular group of patients who are less likely to gain access to optimal cancer services at comprehensive cancer Centers: many studies suggest adolescents fare less well than children with the same disease. The paper describes the key issues of the "Youth Project" of the Pediatric Oncology Unit IRCCS Fondazione Istituto Nazionale Tumori in Milan, dedicated to adolescents (over 15 years old) and young adults (up to 25 years old) with solid tumors. This project is a possible clinical and organizational model to address the unique needs of patients in this age group and for bridge the gap in access to care and in recruitment in clinical trials, in clinical and psycho-social management and in curves of healing...
January 2013: Recenti Progressi in Medicina
https://www.readbyqxmd.com/read/23201346/-the-current-situation-of-adolescents-with-cancer-in-pediatric-hematology-oncology-units-in-spain-results-of-a-national-survey
#6
A Lassaletta, M Andión, C Garrido-Colino, I Gutierrez-Carrasco, A Echebarria-Barona, F Almazán, B López-Ibor, M J Ortega-Acosta
Little attention was paid to adolescents with Cancer in Spain up to 2010. In 2011 an "Adolescents with Cancer Committee" was established by the Spanish Society of Pediatric Hemato-Oncology (SEHOP) to care for the needs of these patients. The aim of this national survey was to outline the present situation of adolescents with cancer in Spanish Pediatric Hemato-Oncology units. A web based survey assessed institutional management of adolescents with cancer. The survey was personally sent to one member of the staff of each Pediatric Hemato-Oncology unit in Spain...
April 2013: Anales de Pediatría: Publicación Oficial de la Asociación Española de Pediatría (A.E.P.)
https://www.readbyqxmd.com/read/22617619/cultural-and-religious-considerations-in-pediatric-palliative-care
#7
REVIEW
Lori Wiener, Denice Grady McConnell, Lauren Latella, Erica Ludi
OBJECTIVE: A growing multicultural society presents healthcare providers with a difficult task of providing appropriate care for individuals who have different life experiences, beliefs, value systems, religions, languages, and notions of healthcare. This is especially vital when end-of-life care is needed during childhood. There is a dearth of literature addressing cultural considerations in the pediatric palliative care field. As members of a specific culture often do not ascribe to the same religious traditions, the purpose of this article was to explore and review how culture and religion informs and shapes pediatric palliative care...
February 2013: Palliative & Supportive Care
https://www.readbyqxmd.com/read/22461180/a-worldview-of-the-professional-experiences-and-training-needs-of-pediatric-psycho-oncologists
#8
Lori Wiener, Daniel Oppenheim, Joanna Breyer, Haven Battles, Sima Zadeh, Andrea Farkas Patenaude
BACKGROUND: Thirty years after the origin of the field of psycho-oncology, limited data exist about the work practices of professionals providing psychosocial care to children with cancer and their families. METHOD: A survey was designed to assess training, work environment, theoretical orientation, services provided, subspecialty areas or areas of special interest, satisfactions, challenges, and continuing education needs of pediatric psycho-oncologists. Members of national and international psycho-oncology organizations were invited to participate in the web-based survey...
September 2012: Psycho-oncology
https://www.readbyqxmd.com/read/21425235/pediatric-psycho-oncology-comes-of-age-siop-2010
#9
EDITORIAL
Andrea Farkas Patenaude, Martha Grootenhuis, Robert Noll
No abstract text is available yet for this article.
July 1, 2011: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/21290870/-being-the-sibling-of-a-child-suffering-from-cancer-a-support-group
#10
Françoise Santarelli-Menegon, Nicolas Von der Weid, Luc Michel, Nix Carole Muller
This paper offers a reflection on the family life and that of the siblings of a child with cancer. We will present our intervention model developed jointly by the pediatric oncology and the pediatric psychiatry units at the University Hospital CHUV in Lausanne. It is known that siblings show difficulties in dealing with the ambivalent emotions triggered by the sickness of a brother or sister. Their defence mechanisms can be heavy and may have consequences on the child's psycho-affective development and on the dynamics of the whole family...
December 8, 2010: Revue Médicale Suisse
https://www.readbyqxmd.com/read/18928661/psychosocial-support-of-the-pediatric-cancer-patient-lessons-learned-over-the-past-50-years
#11
REVIEW
Martha A Askins, Bartlett D Moore
Advances in pediatric cancer treatment over the past 50 years have dramatically improved survival rates. Once considered almost uniformly fatal, pediatric cancer's overall survival rates now approach 85%. Formerly, little psychosocial support existed for the child with cancer other than that provided by nurses and family. The prospect for long-term survival was so remote that plans for the future (eg, school, social relationships, late effects of treatment, and emotional adjustment) were abandoned. As the survival rate for children with cancer improved, so did the need for and quality of psychosocial care, largely because of hope for a cure...
November 2008: Current Oncology Reports
https://www.readbyqxmd.com/read/18050049/-position-paper-by-the-gesellschaft-f%C3%A3-r-p%C3%A3-diatrische-onkologie-und-h%C3%A3-matologie-gpoh-and-the-deutsche-leuk%C3%A3-mie-forschungshilfe-dlfh-on-psycho-social-care-for-pediatric-oncology-and-hematology-patients-in-hospital
#12
B Schreiber-Gollwitzer, A Di Gallo, S Maier, , et al.
Psychosocial Care has been an integral part of the overall treatment in pediatric oncology for 25 years. The need for it and its effectiveness are well documented in several reputable studies and psychosocial service has proved its worth in everyday clinical settings. In order to secure comparable quality standards and in consequence of reorganisations within the health-care system a position paper has been prepared and adopted by the Psychosoziale Arbeitsgemeinschaft in der Pädiatrischen Onkologie und Hämatologie (PSAPOH), the Gesellschaft für Pädiatrische Onkologie und Hämatologie (GPOH) and the Deutsche Leukämie-Forschungshilfe (DLFH)...
November 2007: Klinische Pädiatrie
https://www.readbyqxmd.com/read/17426044/brief-report-psychosocial-functioning-of-fathers-as-primary-caregivers-of-pediatric-oncology-patients
#13
Melanie J Bonner, Kristina K Hardy, Victoria W Willard, Katherine C Hutchinson
OBJECTIVE: To evaluate the psychosocial functioning of fathers as primary caregivers of pediatric oncology patients. METHODS: Fathers who identified themselves as the primary medical caregivers were given a packet of questionnaires, including the Brief Symptom Inventory (BSI), the Impact of Event Scale (IES), the Impact on Family Scale (IFS), the Caregiver Strain Questionnaire (CGSQ), and the Parent Experience of Child Illness (PECI) scale, to complete and return by mail...
August 2007: Journal of Pediatric Psychology
https://www.readbyqxmd.com/read/16316822/ethical-issues-in-pediatric-oncology-phase-i-ii-trials-based-on-a-mother-s-point-of-view
#14
D Oppenheim, B Geoerger, O Hartmann
Phase I-II trials are developing in Pediatrics and raise many complex relational, psychological and ethical issues. We present and discuss these based on an interview in a pediatric oncology setting, with a mother who accepted that her daughter be included in such trials and who expressed why she accepted with great sensitivity and profoundness. She explained that after many years of inefficient treatments she had lost all her landmarks and was ready to accept any proposition, even those she would have considered unacceptable earlier...
November 2005: Bulletin du Cancer
https://www.readbyqxmd.com/read/16006383/beginning-treatment-for-pediatric-acute-myeloid-leukemia-the-family-connection
#15
Pam McGrath, Mary Anne Paton, Nicole Huff
There is a loud silence on psycho-oncology research in relation to pediatric Acute Myeloid Leukemia (AML). This article is part of a series that begins to address the psycho-social hiatus. The present article documents the less obvious, often hidden, aspect of beginning treatment for pediatric AML--the "behind the scenes" experience of the home and family connection. The findings are from the first stage of a five year longitudinal study that examines through qualitative research the experience of childhood leukemia from the perspective of the child, siblings and parents...
April 2005: Issues in Comprehensive Pediatric Nursing
https://www.readbyqxmd.com/read/15610990/international-comparison-of-contributions-to-psychosocial-research-on-survivors-of-childhood-cancer-past-and-future-considerations
#16
COMPARATIVE STUDY
Bob F Last, Martha A Grootenhuis, Christine Eiser
OBJECTIVE: To compare the methods and designs, constructs, publication rate, and location of studies in the past 15 years of pediatric psycho-oncology research, across geographic areas and over time. METHODS: Three recently published reviews on psychological consequences of surviving childhood cancer were reanalyzed according to (1) inclusion of young or older survivors, (2) 5-year periods of publication, (3) country/area (North America, Europe, or Australia), (4) journal type, (5) number of survivors, (6) design of the study, (7) inclusion of a control group, (8) diagnosis, and (9) the use of standardized instruments on different domains...
January 2005: Journal of Pediatric Psychology
https://www.readbyqxmd.com/read/15610981/psychosocial-functioning-in-pediatric-cancer
#17
REVIEW
Andrea Farkas Patenaude, Mary Jo Kupst
OBJECTIVE: To describe the emergence of pediatric psycho-oncology and to summarize research on psychosocial aspects of childhood cancer and survivorship. METHODS: To review research into illness communication and informed consent, procedural pain, late effects, psychological distress, coping and adjustment, and special risk populations. Methodological challenges, appropriate methodology, and directions for future research are discussed. RESULTS: The past 30 years have seen change from avoidance of communication about cancer to an emphasis on straightforward discussion of diagnosis and prognosis...
January 2005: Journal of Pediatric Psychology
https://www.readbyqxmd.com/read/11462226/cancer-and-children-where-are-we-coming-from-where-are-we-going
#18
EDITORIAL
A F Patenaude, B Last
The past four decades have seen remarkable progress in the treatment of childhood cancer and changes in the social environment in which cancer in the family is experienced. Current research in pediatric psycho-oncology focuses on psychosocial consequences of the disease and on differentiating which factors predict problematic versus positive outcomes in adjustment of the child and the family. The papers in this Special Issue reflect much of the recent developments in childhood psycho-oncology as well as the challenges to come...
July 2001: Psycho-oncology
https://www.readbyqxmd.com/read/10752650/developing-psychosocial-aftercare-for-children-surviving-cancer-and-their-families
#19
J E Van Dongen-Melman
More children than ever are surviving childhood cancer. However, the medical and psychosocial consequences of their longer survival are becoming clear for former patients and their families, underlining the need for aftercare. Whereas the need for medical follow-up programs is widely recognized, psychosocial aftercare is still in its infancy. This paper presents a systematic approach to developing psychosocial aftercare based on evidence from research studies. First, the family member most in need of aftercare is identified...
2000: Acta Oncologica
https://www.readbyqxmd.com/read/10087895/-parental-assessment-of-a-psycho-oncologic-treatment-concept-in-pediatrics
#20
M A Landolt, B Dangel, P Twerenbold, U Schallberger, H Plüss, R Nüssli
Treatment-accompanied psychosocial care of pediatric cancer patients and their families is quite established nowadays. In this study a family-oriented psychosocial intervention program was evaluated. 76 parents filled out an questionnaire about the utilization and efficiency of different parts of the program. The results show that the efficiency of the intervention program is very high. Nationality of the families, socioeconomic status und the presence of a relapse of the cancer were the most important predictors of taking part in the different parts of the program...
January 1999: Praxis der Kinderpsychologie und Kinderpsychiatrie
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