keyword
https://read.qxmd.com/read/38541060/opioids-in-treatment-of-refractory-dyspnea-in-chronic-obstructive-pulmonary-disease-yes-no-or-maybe
#1
REVIEW
Ruxandra-Mioara Rajnoveanu, Antonia Harangus, Doina Adina Todea, Milena Adina Man, Corina Eugenia Budin, Armand-Gabriel Rajnoveanu
Chronic Obstructive Pulmonary Disease (COPD) is a complex condition with significant impact on prognosis, especially in advanced stages where symptom burden becomes critical. Breathlessness affects patients' quality of life, and despite various therapeutic strategies, the role of opioids in palliative care for COPD remains under investigation. The acceptance of a therapeutic trial of different types of opioids is increasing not only in end-of-life situations but also for stable COPD patients experiencing intolerable refractory breathlessness despite optimal conventional therapy...
March 19, 2024: Journal of Personalized Medicine
https://read.qxmd.com/read/38539213/how-patients-experience-respect-in-healthcare-findings-from-a-qualitative-study-among-multicultural-women-living-with-hiv
#2
JOURNAL ARTICLE
Sofia B Fernandez, Alya Ahmad, Mary Catherine Beach, Melissa K Ward, Michele Jean-Gilles, Gladys Ibañez, Robert Ladner, Mary Jo Trepka
BACKGROUND: Respect is essential to providing high quality healthcare, particularly for groups that are historically marginalized and stigmatized. While ethical principles taught to health professionals focus on patient autonomy as the object of respect for persons, limited studies explore patients' views of respect. The purpose of this study was to explore the perspectives of a multiculturally diverse group of low-income women living with HIV (WLH) regarding their experience of respect from their medical physicians...
March 27, 2024: BMC Medical Ethics
https://read.qxmd.com/read/38530044/partnering-with-consumers-why-would-i-do-it-what-is-it-how-do-i-do-it
#3
EDITORIAL
Jodie Nixon
Health care and research are increasingly mandating consumer involvement in the planning, design and evaluation of services, quality projects and research. The editorial reviews the Australian progress with accreditation processes in research and provides practical direction in an area that is unfamiliar to many researchers and clinicians.
March 26, 2024: Journal of Medical Radiation Sciences
https://read.qxmd.com/read/38526922/an-update-of-a-clinical-practice-guideline-for-the-management-of-patients-with-acute-spinal-cord-injury-recommendations-on-the-role-and-timing-of-decompressive-surgery
#4
JOURNAL ARTICLE
Michael G Fehlings, Lindsay A Tetreault, Laureen Hachem, Nathan Evaniew, Mario Ganau, Stephen L McKenna, Chris J Neal, Narihito Nagoshi, Vafa Rahimi-Movaghar, Bizhan Aarabi, Christoph P Hofstetter, Valerie Ter Wengel, Hiroaki Nakashima, Allan R Martin, Steven Kirshblum, Ricardo Rodrigues Pinto, Rex A W Marco, Jefferson R Wilson, David E Kahn, Virginia F J Newcombe, Carl M Zipser, Sam Douglas, Shekar N Kurpad, Yi Lu, Rajiv Saigal, Uzma Samadani, Paul M Arnold, Gregory W J Hawryluk, Andrea C Skelly, Brian K Kwon
STUDY DESIGN: Clinical practice guideline development. OBJECTIVES: Acute spinal cord injury (SCI) can result in devastating motor, sensory, and autonomic impairment; loss of independence; and reduced quality of life. Preclinical evidence suggests that early decompression of the spinal cord may help to limit secondary injury, reduce damage to the neural tissue, and improve functional outcomes. Emerging evidence indicates that "early" surgical decompression completed within 24 hours of injury also improves neurological recovery in patients with acute SCI...
March 2024: Global Spine Journal
https://read.qxmd.com/read/38525832/readability-analysis-and-concept-mapping-of-proms-used-for-headache-disorders
#5
REVIEW
Merel H J Hazewinkel, Lisa Gfrerer, Sait Ashina, William G Austen, Anne F Klassen, Andrea Pusic, Manraj N Kaur
OBJECTIVE: To assess the readability and the comprehensiveness of patient-reported outcome measures (PROMs) utilized in primary headache disorders literature. BACKGROUND: As the health-care landscape has evolved toward a patient-centric model, numerous PROMs have been developed to capture treatment outcomes in patients with headache disorders. For these PROMs to advance our understanding of headache disorders and their treatment impact, they must be easy to understand (i...
March 25, 2024: Headache
https://read.qxmd.com/read/38524308/hollman-facilitations-a-user-friendly-tool-of-supporting-children-with-visual-impairment-and-their-families-in-daily-life
#6
JOURNAL ARTICLE
Tiziana Battistin, Silvia Trentin, Enrica Polato, Maria Eleonora Reffo
The Robert Hollman Foundation (RHF) designed "Hollman Facilitations" (HF), a user-friendly way of supporting children with visual impairment (VI) and their families on a daily basis. This tool consists of specifically designed pictures on simple A4 sheets, which highlight with images and captions the key aspects of these children's everyday lives. Professionals can easily modify Hollman Facilitations to customize them to the unique developmental needs of every single child with VI and to their individualized strengths and weaknesses...
June 2024: MethodsX
https://read.qxmd.com/read/38523064/physicians-know-thy-patient
#7
JOURNAL ARTICLE
Isaac Ks Ng
Person-centered care is presently the standard healthcare model, which emphases shared clinical decision-making, patient autonomy and empowerment. However, many aspects of the modern-day clinical practice such as the increased reliance on medical technologies, artificial intelligence, and teleconsultation have significantly altered the quality of patient-physician communications. Moreover, many countries are facing an aging population with longer life expectancies but increasingly complex medical comorbidities, which, coupled with medical subspecialization and competing health systems, often lead to fragmentation of clinical care...
March 24, 2024: Journal of the Royal College of Physicians of Edinburgh
https://read.qxmd.com/read/38519907/lyme-borreliosis-and-medical-wandering-what-do-patients-think-about-multidisciplinary-management-a-qualitative-study-in-the-context-of-scientific-and-social-controversy
#8
JOURNAL ARTICLE
Alice Raffetin, Costanza Puppo, Amal Chahour, Assia Belkasmi, Elisabeth Baux, Solène Patrat-Delon, Pauline Caraux-Paz, Julie Rivière, Sébastien Gallien
INTRODUCTION: To answer to patients' medical wandering, often due to "unexplained symptoms" of "unexplained diseases" and to misinformation, multidisciplinary care centers for suspected Lyme borreliosis (LB), such as the 5 Tick-Borne Diseases (TBDs) Reference Centers (TBD-RC), were created a few years ago in France, the Netherlands and Denmark. Our study consisted of a comprehensive analysis of the satisfaction of the patients managed at a TBD-RC for suspected LB in the context of scientific and social controversy...
March 22, 2024: BMC Infectious Diseases
https://read.qxmd.com/read/38509458/promoting-meaningful-activities-by-occupational-therapy-in-elderly-care-in-belgium-the-promote-intervention
#9
JOURNAL ARTICLE
Leen De Coninck, Anja Declercq, Leen Bouckaert, Carola Döpp, Maud J L Graff, Bert Aertgeerts
BACKGROUND: Older people want to age in place. Despite advancing functional limitations and their desire of aging in place, they are not always faithful to therapy that maintains independence and promotes safety. Occupational therapists can facilitate aging in place. Occupational therapy is defined as the therapeutic use of everyday life occupations with persons, groups, or populations for the purpose of enhancing or enabling participation. AIM: To describe the content a high-adherence-to-therapy and evidence-based occupational therapy intervention to optimize functional performance and social participation of home-based physically frail older adults and wellbeing of their informal caregiver, and the research activities undertaken to design this intervention...
March 20, 2024: BMC Geriatrics
https://read.qxmd.com/read/38502461/impact-of-a-university-teaching-of-integrative-medicine-on-the-social-representations-of-undergraduate-medical-students
#10
JOURNAL ARTICLE
Julien Poimboeuf, Éric Mener, Laure Fiquet, Pierric Renaut
Integrative medicine, need to be inoffensive, effective, and of quality (World Health Organization). In 2010, the American Society of Teachers of Family Medicine approved 19 competencies for teaching integrative medicine to residents. In 2018, the University of Rennes created a course: "Integrative Medicine and Complementary Therapies". Up until then, the only feedback from the courses was the students' opinions. We investigated the impact on medical students' social representation.We performed a sociological analysis of students' social representations before and after the course...
March 19, 2024: Advances in Health Sciences Education
https://read.qxmd.com/read/38501126/remote-delivery-of-mindful-movement-within-healthcare-systems-lessons-learned-from-the-veterans-health-administration
#11
JOURNAL ARTICLE
Alison M Whitehead, Rashmi Mullur, Marlysa B Sullivan, Francesca M Nicosia
Mindful Movement approaches have been a growing part of the Veterans Health Administration (VA). Innovations in tele-health technology had been an important initiative before the public health emergency to meet the needs of rural veterans as well as challenges in getting to a physical location for care. The onset of the COVID-19 pandemic accelerated this transition to tele-delivery of many practices including mindful movement. This paper aims to share lessons learned from virtual delivery of mindful movement as part of clinical and well-being programs in VA...
2024: Glob Adv Integr Med Health
https://read.qxmd.com/read/38488173/an-age-friendly-approach-to-primary-care-in-an-academic-health-system
#12
JOURNAL ARTICLE
Andrea Wismann, Keith Kleszynski, Dawn Jelinek, Rachel Hand, Brian Lich, Elizabeth Wickersham, Lee A Jennings
BACKGROUND: Age-friendly care, addressing what matters most, medications, mentation, and mobility, is a successful model for improving older adult care. We describe the initial outcomes of age-friendly care implementation in five primary care clinics in an academic health system. METHODS: In partnership with a regional quality improvement (QI) organization, we used practice facilitation to implement age-friendly care from July 2020 to June 2023. Clinic workflows and electronic health record (EHR) templates were modified to capture six QI measures for patients ≥65 years: Documenting what matters most to patients Advance care planning (ACP) Annual cognitive screening Caregiver referral to dementia community resources Fall-risk screening Co-prescription of opioid and sedative-hypnotic drugs Providers were alerted if patients had positive screens and given support tools for clinical decision-making...
March 15, 2024: Journal of the American Geriatrics Society
https://read.qxmd.com/read/38486286/exploring-homecare-leaders-risk-perception-and-the-link-to-resilience-and-adaptive-capacity-a-multiple-case-study
#13
JOURNAL ARTICLE
Ingvild Idsøe-Jakobsen, Heidi Dombestein, Siri Wiig
BACKGROUND: Home-based healthcare is considered crucial for the sustainability of healthcare systems worldwide. In the homecare context, however, adverse events may occur due to error-prone medication management processes and prevalent healthcare-associated infections, falls, and pressure ulcers. When dealing with risks in any form, it is fundamental for leaders to build a shared situational awareness of what is going on and what is at stake to achieve a good outcome. The overall aim of this study was to gain empirical knowledge of leaders' risk perception and adaptive capacity in homecare services...
March 14, 2024: BMC Health Services Research
https://read.qxmd.com/read/38486203/breast-cancer-survivors-suffering-from-lymphedema-what-really-do-affect-to-corporeality-body-image-a-qualitative-study
#14
JOURNAL ARTICLE
Laura González-Fernández, Carlos Romero-Morales, Beatriz Martínez-Pascual, Angela Río-González, Ester Cerezo-Téllez, Inmaculada López-Martín
Breast cancer-related lymphedema is currently one of the most serious complications that most affect the quality of life of women undergoing breast cancer. The aim of this study was to explore in-depth the experience of women who suffer from lymphoedema after breast cancer and how does this condition affect corporeality, with no judgements. For this purpose, a qualitative methodology was followed. In-depth interviews, interviewer's field notes and participants' letters were used for data collection. The participants were twenty Spanish women with lymphoedema after overcome a breast cancer in the past...
March 14, 2024: Breast Cancer Research: BCR
https://read.qxmd.com/read/38483456/ai-as-a-medical-device-for-ophthalmic-imaging-in-europe-australia-and-the-united-states-protocol-for-a-systematic-scoping-review-of-regulated-devices
#15
JOURNAL ARTICLE
Ariel Yuhan Ong, Henry David Jeffry Hogg, Aditya U Kale, Priyal Taribagil, Ashley Kras, Eliot Dow, Trystan Macdonald, Xiaoxuan Liu, Pearse A Keane, Alastair K Denniston
BACKGROUND: Artificial intelligence as a medical device (AIaMD) has the potential to transform many aspects of ophthalmic care, such as improving accuracy and speed of diagnosis, addressing capacity issues in high-volume areas such as screening, and detecting novel biomarkers of systemic disease in the eye (oculomics). In order to ensure that such tools are safe for the target population and achieve their intended purpose, it is important that these AIaMD have adequate clinical evaluation to support any regulatory decision...
March 14, 2024: JMIR Research Protocols
https://read.qxmd.com/read/38482660/learning-health-systems-a-paradigm-shift-in-what-we-can-do-about-digital-health-inequities
#16
JOURNAL ARTICLE
Sonya Cressman, Ibukun-Oluwa Omolade Abejirinde, Joan Assali, Mavis B Dennis, Alies Maybee, Michele Strom, Kendall Ho, Clare L Ardern, Ambreen Sayani, Ray Markham, Onil Bhattacharyya
Learning health systems (LHSs) embed social accountability into everyday workflows and can inform how governments build bridges across the digital health divide. They shape partnerships using rapid cycles of data-driven learning to respond to patients' calls to action for equity from digital health. Adopting the LHS approach involves re-distributing power, which is likely to be met with resistance. We use the LHS example of British Columbia's 811 services to highlight how infrastructure was created to provide care and answer questions about access to digital health, outcomes from it and the financial impact passed on to patients...
January 2024: HealthcarePapers
https://read.qxmd.com/read/38482659/trustworthy-evidence-to-support-quality-digital-healthcare-policy-for-underserved-communities-what-needs-to-happen-to-translate-evidence-into-policy
#17
JOURNAL ARTICLE
Clare L Ardern, Alex Haagaard, Megan MacPherson, Jessica Nadigel, Bahar Kasaai, Sonya Cressman, Jennifer Cordeiro, Kendall Ho
In this paper, we explore what is needed to generate quality research to guide evidence-informed digital health policy and call the Canadian community of patients, clinicians, policy (decision) makers and researchers to action in setting digital health research priorities for supporting underserved communities. Using specific examples, we describe how evidence is produced and implemented to guide digital health policy. We study how research environments must change to reflect and include the communities for whom the policy is intended...
January 2024: HealthcarePapers
https://read.qxmd.com/read/38479741/what-do-spouse-primary-caregivers-of-patients-with-glioblastoma-want-medical-providers-to-know-a-qualitative-thematic-reflexive-analysis-of-letters-written-by-primary-caregivers-from-a-secret-facebook-support-group
#18
JOURNAL ARTICLE
Diana L Coman, Megan P Chard, Lisa Desautels, Barbara J Lutz, Laurie A Minns
OBJECTIVES: To analyse the content of letters written by female spouse primary caregivers of patients with glioblastoma multiforme (GBM), a devastating and terminal primary brain cancer, and give voice to their experiences for medical providers of patients with GBM. DESIGN: A qualitative study using reflexive thematic analysis of letters written by female spouses/life partners and primary caregivers of patients with GBM. PARTICIPANTS: 101 current or former female spouse primary caregivers of patients with GBM wrote letters to share with the medical community between July 2019 and August 2019...
March 12, 2024: BMJ Open
https://read.qxmd.com/read/38479403/psychological-safety-in-medicine-what-is-it-and-who-cares
#19
JOURNAL ARTICLE
Mina Sarofim
No abstract text is available yet for this article.
March 13, 2024: Medical Journal of Australia
https://read.qxmd.com/read/38478852/applying-lessons-from-ars-moriendi-to-foster-dying-well-in-acute-care-settings
#20
JOURNAL ARTICLE
Kathy Forte, Danielle Larkin
Medical and technological advances have made it possible to keep people alive well beyond what was once possible, leading health care providers to focus on life-sustaining measures rather than questioning the futility of such measures and considering quality of life. In the midst of the struggle to foster dying well in a medicalized environment, acute care nurses may be challenged with shifting the focus to providing optimal end-of-life care because of lack of training, time, and resources. A remedy for the current western societal approach to medicalized dying is to look back in history to a time during the late Middle Ages, when death was an accepted part of medieval life...
March 13, 2024: Journal of Hospice and Palliative Nursing: JHPN
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