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Bioethics

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https://www.readbyqxmd.com/read/28930705/how-we-become-who-we-are-ashley-carla-and-the-rest-of-us
#1
Jamie Lindemann Nelson
Lisa Freitag and Joan Liaschenko's thoughtful and important article goes directly to the under-examined heart of Ashley's case, namely to what sustains her in a habitable and intelligible identity. Though quite sympathetic with their conclusion and line of argument, I try to trouble their proceedings a bit, largely by wondering how having a specific such identity, out of several that may be in-principle available, matters to someone with Ashley's cognitive scope. I do this not simply to be contrary, but because their article also seems to me to raise issues in the ethics of bioethics-in particular, what I call the dilemma of ethical endeavor: How ought one publicly pursue deeply important and complex issues, the very raising of which may offend interlocutors who indeed have grounds for resentment...
2017: Journal of Clinical Ethics
https://www.readbyqxmd.com/read/28922904/the-body-as-gift-commodity-or-something-in-between-ethical-implications-of-advanced-kidney-donation
#2
Julian J Koplin
An innovative program recently initiated at the University of California, Los Angeles (UCLA) Medical Center allows people to donate a kidney in exchange for a voucher that a loved one can redeem for a kidney if and when needed. As a relatively new practice, the ethical implications of advanced kidney donation have not yet been widely discussed. This paper reflects on some of the bioethical issues at stake in this new donation program, as well as some broader philosophical issues related to the meaning and moral salience of commodification...
October 1, 2017: Journal of Medicine and Philosophy
https://www.readbyqxmd.com/read/28922586/rebuilding-patient-physician-trust-in-china-developing-a-trust-oriented-bioethics
#3
EDITORIAL
Jing-Bao Nie, Joseph D Tucker, Wei Zhu, Yu Cheng, Bonnie Wong, Arthur Kleinman
No abstract text is available yet for this article.
September 18, 2017: Developing World Bioethics
https://www.readbyqxmd.com/read/28922581/the-crisis-of-patient-physician-trust-and-bioethics-lessons-and-inspirations-from-china
#4
Jing-Bao Nie, Lun Li, Grant Gillett, Joseph D Tucker, Arthur Kleinman
Trust is indispensable not only for interpersonal relationships and social life, but for good quality healthcare. As manifested in the increasing violence and tension in patient-physician relationships, China has been experiencing a widespread and profound crisis of patient-physician trust. And globally, the crisis of trust is an issue that every society, either developing or developed, has to face in one way or another. Yet, in spite of some pioneering works, the subject of patient-physician trust and mistrust - a crucial matter in healthcare especially because there are numerous ethical implications - has largely been marginalized in bioethics as a global discourse...
September 18, 2017: Developing World Bioethics
https://www.readbyqxmd.com/read/28922561/reconciling-female-genital-circumcision-with-universal-human-rights
#5
John-Stewart Gordon
One of the most challenging issues in cross-cultural bioethics concerns the long-standing socio-cultural practice of female genital circumcision (FGC), which is prevalent in many African countries and the Middle East as well as in some Asian and Western countries. It is commonly assumed that FGC, in all its versions, constitutes a gross violation of the universal human rights of health, physical integrity, and individual autonomy and hence should be abolished. This article, however, suggests a mediating approach according to which one form of FGC, the removal of the clitoris foreskin, can be made compatible with the high demands of universal human rights...
September 18, 2017: Developing World Bioethics
https://www.readbyqxmd.com/read/28920726/the-human-subject-vulnerable-populations-and-medical-history-the-problem-of-presentism-and-the-discourse-of-bioethics
#6
J T H Connor
This discussion considers recent historical works of eugenics and sterilization in Canada, but it is not an historiographic review essay or critique per se of this literature. Rather, by focussing on the topic of historic diagnostic categories such as "feeble-minded," "idiot," and "moron," methodological issues such as historical presentism and its possible interactions with the discourse of modern bioethics are examined. The conclusions derived are meant only to be cautionary, and are neither prescriptive nor proscriptive...
2017: Canadian Bulletin of Medical History, Bulletin Canadien D'histoire de la Médecine
https://www.readbyqxmd.com/read/28905883/acceptable-applications-of-preimplantation-genetic-diagnosis-pgd-among-israeli-pgd-users
#7
Shachar Zuckerman, David A Zeevi, Sigal Gooldin, Gheona Altarescu
The use of PGD technology to select against genetic disorders and traits is increasing. Although PGD may eliminate some of the obstacles related to conservative options of prenatal diagnosis, it can raise personal, social and moral questions. Ethical issues concerning the justified uses of PGD are a subject of ongoing debate among medical and bioethical communities. Although attitudes toward the acceptable uses of PGD were evaluated among population groups worldwide, bioethics councils were criticized for ignoring public perspectives...
October 2017: European Journal of Human Genetics: EJHG
https://www.readbyqxmd.com/read/28905728/what-are-physicians-responsibilities-to-patients-whose-health-conditions-can-influence-their-legal-proceedings
#8
David Beckmann
Correctional populations are disproportionately affected by conditions that affect cognition, such as psychiatric illness and head trauma. Honoring bioethical principles in the care of such patients can be particularly difficult in the correctional setting. However, the approach should not change markedly because a patient is incarcerated. That is, the same standards of respecting patient autonomy and confidentiality should be maintained, and the fact that correctional populations are already marginalized makes it all the more important for clinicians to honor these principles...
September 1, 2017: AMA Journal of Ethics
https://www.readbyqxmd.com/read/28905725/ethics-students-go-to-the-jail
#9
Oliver Schirokauer, Thomas A Tallman, Leah Jeunnette, Despina Mavrakis, Monica L Gerrek
This article describes an educational initiative in which clinical ethics students, who were either in a bioethics master's degree program or in the fourth year of medical school, spent two days observing health care in an urban jail. Students submitted reflections about their experience, in which they drew attention to concerns about privacy, physical restriction, due care, drug addiction, mistrust, and the conflicting expectations that arise when incarcerated people become patients. The rotation was of great value to the students both because it exposed them to many of the ethical issues that arise in a correctional setting and because it deepened their understanding of various ethical concerns that are pervasive in health care...
September 1, 2017: AMA Journal of Ethics
https://www.readbyqxmd.com/read/28901599/balancing-bioethics-by-sensing-the-aesthetic
#10
Paul Macneill
This article is critical of "bioethics" as it is widely understood and taught, noting in particular an emphasis given to philosophical justification, reason and rationality. It is proposed that "balancing" bioethics be achieved by giving greater weight to practice and the aesthetic: Defined in terms of sensory perception, emotion and feeling. Each of those three elements is elaborated as a non-cognitive capacity and, when taken together, comprise aesthetic sensitivity and responsiveness. This is to recognise the aesthetic as a productive element in bioethics as practice...
October 2017: Bioethics
https://www.readbyqxmd.com/read/28901596/merging-arts-and-bioethics-an-interdisciplinary-experiment-in-cultural-and-scientific-mediation
#11
Vincent Couture, Jean-Christophe Bélisle-Pipon, Marianne Cloutier, Catherine Barnabé
How to engage the public in a reflection on the most pressing ethical issues of our time? What if part of the solution lies in adopting an interdisciplinary and collaborative strategy to shed light on critical issues in bioethics? An example is Art + Bioéthique, an innovative project that brought together bioethicists, art historians and artists with the aim of expressing bioethics through arts in order to convey the "sensitive" aspect of many health ethics issues. The aim of this project was threefold: 1) to identify and characterize mechanisms for the meeting of arts and bioethics; 2) to experiment with and co-construct a dialogue between arts and bioethics; and 3) to initiate a public discussion on bioethical issues through the blending of arts and bioethics...
October 2017: Bioethics
https://www.readbyqxmd.com/read/28895903/performable-case-studies-in-ethics-education
#12
Richard Robeson, Nancy M P King
Bioethics education often includes the study of short stories, novels, plays, and films, because such materials present case examples that can highlight relevant issues and questions especially vividly for a wide range of students. In addition, creative writing is widely used in the education of health professional students and in continuing education settings for health professionals. There are very few academic or professional disciplines that do not use case studies, but the case study in dialogic form has not been standard practice for thousands of years...
September 12, 2017: Healthcare (Basel, Switzerland)
https://www.readbyqxmd.com/read/28895055/maqasid-al-shariah-as-a-complementary-framework-for-conventional-bioethics-application-in-malaysian-assisted-reproductive-technology-art-fatwa
#13
Abdul Halim Ibrahim, Noor Naemah Abdul Rahman, Shaikh Mohd Saifuddeen
Rapid development in the area of assisted reproductive technology (ART), has benefited mankind by addressing reproductive problems. However, the emergence of new technologies and techniques raises various issues and discussions among physicians and the masses, especially on issues related to bioethics. Apart from solutions provided using conventional bioethics framework, solutions can also be derived via a complementary framework of bioethics based on the Higher Objectives of the Divine Law (Maqasid al-Shariah) in tackling these problems...
September 11, 2017: Science and Engineering Ethics
https://www.readbyqxmd.com/read/28890451/in-the-matter-of-stories
#14
Hilde Lindemann
This essay lays out some of the many resources that a background in literary studies has to offer bioethics. After identifying four useful characteristics of stories, it briefly discusses some kinds of moral work that stories can be put to, including countering ethically undesirable stories and modeling ethically troubling situations. Stories can be invoked in our moral reasoning, compared and parsed, and used to teach moral lessons. They can help us discern which moral concepts are operative in a specific instance...
2017: Perspectives in Biology and Medicine
https://www.readbyqxmd.com/read/28890450/regarding-bioethics-i-a-sociology-of-morality-i
#15
Raymond De Vries
C. Wright Mills said that when done well, sociology illuminates the intersection of biography and history. This essay examines how the author's vocational choices and career path were shaped by historical circumstance, leading him to a degree in sociology and to participation in the odd and interesting interdiscipline of bioethics. Drawing on a distinction between sociology in bioethics and sociology of bioethics, the essay considers the value of sociology to the bioethical project.
2017: Perspectives in Biology and Medicine
https://www.readbyqxmd.com/read/28890449/history-morals-and-medicine
#16
Jonathan D Moreno
This essay provides a rational reconstruction of the author's genetically inscribed inclination to do normative ethics with an historical bent and offers some reflections on the value of historical thinking for bioethics.
2017: Perspectives in Biology and Medicine
https://www.readbyqxmd.com/read/28890448/a-tale-of-two-disciplines-i-law-and-bioethics-i
#17
Rebecca Dresser
Fascination with In re Quinlan, the first high-profile right-to-die case in the United States, led the author to law school. By the time she received her law degree, bioethics was emerging as a field of study, and law and bioethics became her field. The mission of legal education is to teach students to "think like a lawyer," which can be a productive way to approach issues in many fields, including bioethics. Legal education can also teach individuals to respect people whose views on bioethics issues differ from their own...
2017: Perspectives in Biology and Medicine
https://www.readbyqxmd.com/read/28890447/what-nurse-bioethicists-bring-to-bioethics-i-the-journey-of-a-nurse-bioethicist-i
#18
Connie M Ulrich
Nurses, one of the most trusted professional groups in our society, work with patients and their families at all stages of the illness trajectory. Nurse bioethicists are a small but special subset of the nursing profession and bioethics community, focusing on the moral complexities that arise in clinical care, research, and health policy. This article examines the career trajectory of a nurse bioethicist and the clinical, educational, and research experiences that shaped her career goals. It also addresses the uniqueness of nursing and the ethical challenges that nurse's encounter in their day-today interactions with diverse patient populations and calls for distinct conceptual and empirical bioethics inquiry...
2017: Perspectives in Biology and Medicine
https://www.readbyqxmd.com/read/28890446/my-time-in-medicine
#19
Joseph J Fins
Through this autobiographical reflection on a life in medicine and bioethics, the author discovers that time is a unifying theme in his work. From his early writing on the regulation of house staff work hours and his abandonment of essentialism and the development of clinical pragmatism as a method of moral problem-solving to his scholarship on end-of-life care and disorders of consciousness, time has been a central heuristic in an effort to bridge ethical theory and clinical practice.
2017: Perspectives in Biology and Medicine
https://www.readbyqxmd.com/read/28890445/challenging-the-conventional-wisdom-i-from-philosophy-to-bioethics-i
#20
Franklin G Miller
Philosophy is a core discipline that has contributed importantly to bioethics. In this essay, the author traces his trajectory from philosophy to bioethics, oriented around the theme of challenging the conventional wisdom. Three topics are discussed to illustrate this theme: the ethics of randomized trials, determination of death and organ transplantation, and pragmatism as a method of bioethics. In addition, the author offers some general reflections on the relationship between philosophy and bioethics. Philosophy recovers itself when it ceases to be a device for dealing with the problems of philosophers and becomes a method, cultivated by philosophers, for dealing with the problems of men...
2017: Perspectives in Biology and Medicine
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