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https://www.readbyqxmd.com/read/29143343/secrets-and-disclosure-in-donor-conception
#1
Lucy Frith, Eric Blyth, Marilyn Crawshaw, Olga van den Akker
This article considers the disclosure, sharing and exchange of information on being donor conceived within families, drawing on data from a study undertaken with donor-conceived adults registered with UK Donor Link (a voluntary DNA-linking register). This paper considers the narratives of how respondents found out they were donor-conceived and what events triggered disclosure of this information. This paper then goes on to examine the role secrecy played in their family life and uses the concept of 'display' to explore how secrecy affected their relationships with their immediate and extended family...
November 16, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29143267/hamstring-injury-prevention-practices-in-elite-sport-evidence-for-eccentric-strength-vs-lumbo-pelvic-training
#2
REVIEW
Anthony J Shield, Matthew N Bourne
Hamstring strain injuries are endemic in running-based sports. Given the economic and performance implications of these injuries, a significant body of research has emerged in recent years in an attempt to identify risk factors and develop or optimise injury prevention strategies. Surveys of injury prevention practices among medical and conditioning staff in elite sport suggest that many sporting clubs invest significant efforts in eccentric hamstring conditioning and lumbo-pelvic or trunk stability programmes...
November 15, 2017: Sports Medicine
https://www.readbyqxmd.com/read/29140436/-%C3%A2-what-god-and-the-angels-know-of-us-character-autonomy-and-best-interests-in-minimally-conscious-state
#3
Giles Birchley
Determining the best interests of incapacitated patients has been observed to be an opaque area of the law, and this is no less so in decisions about the (non-)treatment of patients in the minimally conscious state. A systematic examination of the way best interests are used in judgments relating to this population suggests that narratives involving the character of the patient frequently form an important plank of judicial reasoning. Since insights into the concept of best interests may be gained by an engagement with the philosophy of well-being, I identify the court's character-based approach with perfectionist theories of well-being...
November 13, 2017: Medical Law Review
https://www.readbyqxmd.com/read/29139190/a-man-before-his-time-russell-s-insights-into-nicotine-smoking-treatment-and-curbing-the-smoking-problem
#4
Ann McNeill, Debbie Robson
BACKGROUND AND AIMS: This narrative review aimed to provide a brief overview of five key research 'classics' produced by the innovative and radical thought leader, Professor Michael Anthony Hamilton Russell (1932-2009), drawing upon his other work wherever feasible. METHODS: Narrative review. From more than 250 publications, we selected papers we considered seminal texts, published in 1971, 1976, 1978, 1979 and 1991. RESULTS: Russell was among the first researchers to explain that smoking was a dependence disorder caused by the drug nicotine decades before this was recognized formally...
November 15, 2017: Addiction
https://www.readbyqxmd.com/read/29135386/timing-of-diagnosis-understanding-resilience-narratives-of-hiv-positive-older-adults-diagnosed-pre-and-post-haart
#5
Lesley M Harris, Charles A Emlet, Christina Pierpaoli Parker, Charles Furlotte
BACKGROUND: Despite the growing population of older adults living with HIV/AIDS, few studies have examined this population in terms of timing of HIV diagnosis. This study explores resilience and protective factors among HIV-positive older adults, 17 of whom were diagnosed prior to the development of highly active antiretroviral therapy (HAART), and 13 of whom were diagnosed after the development HAART. METHODS: We explored the concepts of resilience and protective factors in 30 older adults living with HIV in Ontario, Canada...
November 14, 2017: Journal of Gerontological Social Work
https://www.readbyqxmd.com/read/29135330/suffering-in-advanced-cancer-a-randomized-control-trial-of-a-narrative-intervention
#6
Meg Wise, Lucille R Marchand, Linda J Roberts, Ming-Yuan Chih
BACKGROUND: Advanced cancer can erode patients' wellbeing. Narrative interventions have improved patients' wellbeing, but might not be feasible for widespread implementation. OBJECTIVES: (1) Test the effects of miLivingStory, a telephone-based life review and illness narrative intervention with online resources and social networking, on community-dwelling advanced cancer patients' wellbeing. (2) Explore intervention use and satisfaction. PATIENTS AND SETTING: Stage III or IV cancer patients having completed initial therapy were randomized to miLivingStory or to an active control group, miOwnResources...
November 14, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29134851/perceptions-and-uses-of-public-and-private-health-care-in-a-brazilian-favela
#7
Débora Castiglione, Gina S Lovasi, Marilia S Carvalho
Since 1988, Brazil has reorganized and expanded its public health care system, defining access to health care as a right of every citizen. In parallel, the private health care sector grew rapidly to become one of the largest in the world. We explore the use of public and private health care by a low-income population living in a favela, Rio das Pedras, in Rio de Janeiro. At the time of data collection, only part of the community was covered by the primary health care program. We conducted semistructured interviews with 14 adults, both with and without access to the public primary care program...
November 1, 2017: Qualitative Health Research
https://www.readbyqxmd.com/read/29133493/an-autoethnographic-examination-of-postpartum-depression
#8
Tara Lynn Frankhouser, Nicole L Defenbaugh
PURPOSE: This article examines postpartum depression (PPD) using autoethnography to explore the stigmatization of depression and cultural expectations of motherhood. Because the personal experiences of living with PPD are often absent from primary care literature, this article uses first-person narrative and analysis of intensive mothering to explore the barriers to seeking PPD treatment, the need for increasing physician confidence and comfort using screening tools, and the impact PPD stigma has on patients and their health care...
November 2017: Annals of Family Medicine
https://www.readbyqxmd.com/read/29132284/love-matters-exploring-conceptions-of-love-in-rwanda-and-swaziland-and-relationship-to-hiv-and-intimate-partner-violence
#9
Allison Ruark, Erin Stern, Thandeka Dlamini-Simelane, Marie Fidele Kakuze
Health risks such as intimate partner violence (IPV) and HIV infection often occur within intimate sexual relationships, yet the study of love and intimacy is largely absent from health research on African populations. This study explores how women and men in Rwanda and Swaziland understand and represent love in their intimate sexual partnerships. In Rwanda, 58 in-depth interviews with 15 couples, 12 interviews with activists, and 24 focus group discussions were carried out during formative and evaluative research of the Indashyikirwa programme, which aims to reduce IPV and support healthy couple relationships...
December 2017: African Journal of AIDS Research: AJAR
https://www.readbyqxmd.com/read/29131345/pursuing-an-ethical-socially-just-classroom-searching-for-community-psychology-pedagogy
#10
Lauren F Lichty, Eylin Palamaro-Munsell
Discussions of community psychology (CP) ethics often examine how we might best uphold CP values in community-based practice. However, for many community psychologists in faculty positions, our main domain of practice is the undergraduate classroom. Teaching is essential to the growth and sustainability of our field as prospective students tend to discover CP during their undergraduate studies. University-based work is also a key site of CP practice. Universities are contested spaces where interlocking forms of oppression manifest in many ways, including teaching (e...
November 13, 2017: American Journal of Community Psychology
https://www.readbyqxmd.com/read/29130425/communication-about-palliative-care-a-phenomenological-study-exploring-patient-views-and-responses-to-its-discussion
#11
Anna Collins, Sue-Anne McLachlan, Jennifer Philip
BACKGROUND: Communication about palliative care is a complex task frequently delayed until otherwise unavoidable. There is a need for discussion of palliative care to be viewed as a distinct communication task that is guided by empirical data. However, little is known of patient views and responses to these encounters. AIM: To explore patient views surrounding communication about palliative care and their responses to its discussion. DESIGN: Cross-sectional, prospective, exploratory qualitative design, involving narrative-style interviews and underpinned by an interpretative phenomenological framework...
October 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/29130379/trauma-complexity-and-child-abuse-a-qualitative-study-of-attachment-narratives-in-adult-refugees-with-ptsd
#12
Karin Riber
The present study aimed to identify trauma types over the life course among adult refugees and to explore their accounts of childhood maltreatment. A sample of 43 Arabic-speaking refugees with posttraumatic stress disorder (PTSD) attending a treatment context in Denmark were interviewed. Using a "Trauma Coding Manual" developed for this study, trauma types were identified in interview transcripts. In both men and women with Iraqi and Palestinian-Lebanese backgrounds, high levels of trauma complexity and high rates of childhood maltreatment were found (63%, n = 27)...
January 1, 2017: Transcultural Psychiatry
https://www.readbyqxmd.com/read/29127584/-if-you-choose-to-abort-you-have-acted-as-an-instrument-of-satan-zimbabwean-health-service-providers-negative-constructions-of-women-presenting-for-post-abortion-care
#13
Malvern Chiweshe, Catriona Macleod
PURPOSE: Health service providers play a crucial role in providing post abortion care in countries where abortion legislation is restrictive and abortion is stigmatised. Research in countries where these factors apply has shown that health service providers can be barriers to women accessing post abortion services. Much of this research draws from attitude theory. In this paper, we utilise positioning theory to show how the ways in which Zimbabwean health service providers' position women and themselves are rooted in cultural and social power relations...
November 10, 2017: International Journal of Behavioral Medicine
https://www.readbyqxmd.com/read/29125935/going-viral-in-png-exploring-routes-and-circumstances-of-entry-of-a-rabies-infected-dog-into-papua-new-guinea
#14
Victoria J Brookes, Chris Degeling, Michael P Ward
In this qualitative study implemented in November 2016, we elicited narratives about fictional rabies incursions from key employees (n = 16) of the National Agriculture and Quarantine Inspection Authority in Papua New Guinea (PNG) to explore the potential circumstances and routes of entry of a rabies-infected dog, and direct rabies preparedness. Although PNG is rabies free, proximity to rabies-endemic Indonesia poses a risk of introduction and it is expected that an outbreak in PNG would have devastating human health impacts consistent with other countries with similarly low human development indices and abundant free-roaming dogs...
November 6, 2017: Social Science & Medicine
https://www.readbyqxmd.com/read/29125391/five-ways-to-wellbeing-holistic-narratives-of-public-health-programme-participants
#15
Alan Farrier, Mark Dooris, Lynn Froggett
This paper reports on a study which formed part of a qualitative process evaluation of a wellbeing programme in North West England. The study used the biographic narrative interpretive method (BNIM) to undertake and analyse data from interviews with six participants from diverse projects within the programme. This generated rich case studies and spotlighted cross-case commonalities, building understanding of how the programme achieved its effects. We present findings using the Five Ways to Wellbeing framework, presenting one abridged 'case' and summarising cross-cutting themes...
November 1, 2017: Global Health Promotion
https://www.readbyqxmd.com/read/29125091/how-children-learn-to-produce-appropriate-referring-expressions-in-narratives-the-role-of-clarification-requests-and-modeling
#16
Ana M Carmiol, Danielle Matthews, Odir A Rodríguez-Villagra
Asking children to clarify themselves promotes their ability to uniquely identify objects in referential communication tasks. However, little is known about whether parents ask preschoolers for clarification during interactions and, if so, how. Study 1 explored how mothers clarify their preschoolers' ambiguous descriptions of the characters in their narratives, and whether clarification requests affect children's repairs of their ambiguous descriptions. Mothers were found to use different strategies, including signaling misunderstanding and modeling appropriate descriptions...
November 10, 2017: Journal of Child Language
https://www.readbyqxmd.com/read/29125014/problematizing-official-narratives-of-hiv-and-aids-education-in-scotland-and-zimbabwe
#17
Tarsisio Nyatsanza, Lesley Wood
When human immunodeficiency virus (HIV) and acquired immune deficiency syndrome (AIDS) are framed within an intersectional approach, they have the potential to transform understandings of social justice within the curriculum and education policy and practice in general. Yet, this transformative potential is often hampered by official narratives that fail to position HIV and AIDS as an integral component of overlapping systems of oppression, domination and discrimination. This article explores how official HIV and AIDS narratives tend to promote systemic injustice and inequality within education policy and practice in both Scotland and Zimbabwe, despite their good intents...
December 2017: SAHARA J: Journal of Social Aspects of HIV/AIDS Research Alliance
https://www.readbyqxmd.com/read/29124490/nerve-blocks-in-pediatric-and-adolescent-headache-disorders
#18
REVIEW
Alexander Sasha Dubrovsky
PURPOSE OF REVIEW: Peripheral nerve blocks of the scalp, mainly greater occipital nerve blocks, have received a renewed interest amongst pediatric providers as they offer an alternate option to provide both acute and chronic relief from the suffering of children with difficult to treat headaches. This narrative review will provide an in-depth discussion of the published pediatric-specific studies exploring the utility of nerve blocks for pediatric headache disorders. RECENT FINDINGS: A total of seven pediatric publications have been reported to date and reveal excellent therapeutic effectiveness of bilateral greater occipital nerve blocks on primary chronic headaches and post-traumatic headaches...
November 9, 2017: Current Pain and Headache Reports
https://www.readbyqxmd.com/read/29120355/-to-work-just-like-anyone-else-a-narrative-from-a-man-aging-with-spinal-cord-injury
#19
Ulrica Lundström, Margareta Lilja, Gunilla Isaksson
People aging with spinal cord injury (SCI) develop medical problems commonly associated with the aging process at a younger age than the general population. However, research about how the life story changes and how meaning will be experienced in occupations is lacking. The aim was to describe and offer an explanation of how a man experienced meaning in everyday occupations while aging with an SCI. Four narrative interviews were performed over a four-year period, with a man in his fifties, who lived with SCI for 39 years...
November 9, 2017: Healthcare (Basel, Switzerland)
https://www.readbyqxmd.com/read/29120292/survival-and-negotiation-narratives-of-severe-near-miss-neonatal-complications-of-syrian-women-in-lebanon
#20
Livia Wick
The World Health Organization has elaborated a maternal and neonatal near-miss reporting, audit and feedback system designed to improve the quality of care during and after childbirth. As part of a four-hospital comparative study in the Middle East, this article discusses the experiences of mothers whose newborns suffered from severe complications at birth in the Rafik Hariri University Hospital, the only public hospital in Beirut. Based on in-depth home interviews several weeks after childbirth, it aims to explore the experience of neonatal near-miss events through the mothers' birth narratives...
October 2017: Reproductive Health Matters
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