Beatriz Lara, Ignacio Blanco, María Teresa Martínez, Esther Rodríguez, Ana Bustamante, Francisco Casas, Sergio Cadenas, José M Hernández, Lourdes Lázaro, María Torres, Sergio Curi, Cristina Esquinas, Francisco Dasí, Amparo Escribano, Inés Herrero, Beatriz Martínez-Delgado, Francisco Javier Michel, Francisco Rodríguez-Frías, Marc Miravitlles
INTRODUCTION AND OBJECTIVE: REDAAT, the Spanish Registry of Patients with Alpha-1 Antitrypsin Deficiency, was set up in order to improve knowledge of this disease. This study is an evaluation of the registry and an analysis of its patient population. METHODS: The registry has a database hosted on the website www.redaat.es. It collects clinical and functional data on patients with PiSZ, ZZ phenotypes and other rare variants. RESULTS: Thanks to the collaboration of 124 physicians, the registry currently contains information on 511 individuals from 103 healthcare centers...
January 2017: Archivos de Bronconeumología