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Adolescent epilepsy psychosocial problems

Maria Arvio, Oili Sauna-Aho, Timo Nyrke, Nina Bjelogrlic-Laakso
We describe here the clinical outcome of four women with epilepsy with eyelid myoclonia (aged 21-53 years). All patients had an uneventful early history, normal physical growth and appearance and no comorbid sensory or motor disability and normal brain magnetic resonance imaging finding. Two women were moderately and one mildly intellectually disabled and one showed a low-average intelligence. The overall well-being of the patients was hampered by psychiatric or various somatic comorbidities and related psychosocial problems...
2018: SAGE Open Medical Case Reports
Seetha Rajendran, Anand Iyer
Adolescence is a period of rapid change, both physical and psychosocial for any young person. It can be challenging when they have ongoing health problems and when their care needs to be transitioned to the adult health care system. Transition should be a planned process of addressing the medical and associated comorbid conditions from pediatric to adult care in a coordinated manner. In most cases, the young person and their family are well known to the pediatrics services and have built a relationship based on trust and often friendship over many years...
2016: Adolescent Health, Medicine and Therapeutics
Francesca Letizia Rocca, Elena Finotti, Fabio Pizza, Francesca Ingravallo, Michela Gatta, Oliviero Bruni, Giuseppe Plazzi
STUDY OBJECTIVES: To investigate behavioral aspects and quality of life in children and adolescents with type 1 narcolepsy (NT1). METHODS: We performed a case-control study comparing 29 patients with NT1 versus sex- and age-matched patients with idiopathic epilepsy (n = 39) and healthy controls (n = 39). Behavior and quality of life were evaluated by self-administered questionnaires (Child Behavior Checklist, Pediatric Quality of Life Inventory). Patient groups were contrasted and scale results were correlated with clinical and polysomnographic parameters, and cerebrospinal fluid hypocretin-1 levels...
July 1, 2016: Sleep
Allison L Clarke, Christine Critchley
Both medical and psychological factors have an important impact upon the psychosocial functioning of young people with epilepsy. The purpose of this study was to identify factors that distinguish young people with epilepsy and high psychosocial functioning from those with lower levels. The participants were 114 young people (40 males, 74 females) with active epilepsy and a mean age of 17.92years (SD=3.90) who completed either a paper (60.5%) or a web-based survey (39.5%) comprising demographic, medical, and psychosocial measures...
June 2016: Epilepsy & Behavior: E&B
R P J Geerlings, A P Aldenkamp, L M C Gottmer-Welschen, P H N de With, S Zinger, A L van Staa, A J A de Louw
INTRODUCTION: Childhood-onset epilepsy during the years of transition to adulthood may affect normal social, physical, and mental development, frequently leading to psychosocial and health-related problems in the long term. OBJECTIVE: This study aimed to describe the main characteristics of patients in transition and to identify risk factors for poor psychosocial outcome in adolescents and young adults with epilepsy. METHODS: Patients with epilepsy, 15-25years of age, who visited the Kempenhaeghe Epilepsy Transition Clinic from March 2012 to December 2014 were included (n=138)...
October 2015: Epilepsy & Behavior: E&B
R P J Geerlings, A P Aldenkamp, P H N de With, S Zinger, L M C Gottmer-Welschen, A J A de Louw
INTRODUCTION: During transition to adult medical care, the adolescent with epilepsy is especially prone to emotional, mental, physical, and social developmental difficulties, leading to stigma and poor psychosocial and socioeconomic outcome in the long term. OBJECTIVES: The aim of this review is twofold: to describe the psychosocial and medical transition from adolescence to adulthood and to evaluate the most effective model for transitional services in adolescents with epilepsy...
March 2015: Epilepsy & Behavior: E&B
Michela Gatta, Laura Balottin, Ambra Salmaso, Manuela Stucchi, Debora DE Carlo, Elisa Guarneri, Stefania Mannarini, Marilena Vecchi, Clementina Boniver, Pier A Battistella
BACKGROUND: The aim of this study was to describe the distribution, timing, and risk factors for psychopathology and to further examine the quality of life (QoL) in an Italian sample of children with recent onset epilepsy. Sociodemographic and psychosocial variables, family factors, as well as illness-related factors themselves were examined in order to clarify the relationship among these variables, psychopathology and QoL. METHODS: For this purpose, 49 children and adolescents (4-18 years), consecutively referred to a Neurophysiology Service, were evaluated by a multidisciplinary team using dimensional as well as categorical instruments both self-administered (self-report and proxy-report) and interviewer administered...
February 2017: Minerva Pediatrica
Loretta Carbone, Melissa Plegue, Ashley Barnes, Renée Shellhaas
The threat of unpredictable seizures makes epilepsy unique among childhood chronic illnesses. One consequence is that people who have childhood-onset epilepsy often have poor social adjustment and competence in adulthood. Better emotional and social functioning could improve long-term outcomes. Thirty-four adolescents with epilepsy participated in a group cognitive behavioral therapy program designed to enhance their level of psychosocial functioning. Baseline Strength and Difficulty Questionnaire scores suggested that many participants had difficulties with emotions, concentration, and social functioning, with parent-reported Impact scores significantly worse than adolescent-reported scores (p=0...
October 2014: Epilepsy & Behavior: E&B
Gokçe N Say, Haydar A Tasdemir, Seher Akbas, Murat Yüce, Koray Karabekiroglu
OBJECTIVE: Children and adolescents with psychogenic non-epileptic seizures (PNES) and epilepsy are known to have psychosocial problems. The aim of the present study was to compare the psychosocial difficulties, history of stressful life events/abuse, psychiatric diagnosis, and self-esteem of adolescents with PNES to the ones with epilepsy and healthy controls at a tertiary care center in Turkey. METHOD: Thirty-four adolescents with PNES diagnosed by video-EEG were compared with 23 adolescents that have epilepsy and 35 healthy volunteers...
2014: International Journal of Psychiatry in Medicine
Joan K Austin, Susan M Perkins, David W Dunn
OBJECTIVE: Perceptions of stigma in children and adolescents with epilepsy are associated with higher rates of mental health problems. The purpose of this study was to test relationships in a model that identified variables most strongly associated with perceptions of stigma in children and adolescents with epilepsy. Our ultimate goal is to develop a theoretical foundation for future intervention research by identifying variables associated with perceptions of stigma that are potentially amenable to psychosocial interventions...
July 2014: Epilepsy & Behavior: E&B
Gholamreza Zamani, Shadi Shiva, Mahmoud Mohammadi, Javad Mahmoudi Gharaie, Nima Rezaei
BACKGROUND: Psychosocial problems seem to be common in epilepsy, and they could negatively affect the social affairs and networking of adolescents with epilepsy. They could cause decreased self-esteem and social performance, leading to isolation and civil discrimination. This study was performed to assess the quality of life (QOL) of a group of adolescents with epilepsy in Iran. METHODS: An analytic cross-sectional study was performed in 197 young Iranian adolescents with epilepsy...
April 2014: Epilepsy & Behavior: E&B
Leila Valizadeh, Mohammad Barzegar, Masumeh Akbarbegloo, Vahid Zamanzadeh, Elahe Rahiminia, Caleb Ferguson
Epilepsy is a significant health problem in Iran and other countries. Previous epilepsy studies conducted in Iran have often focused on physiological aspects and pharmacological therapy, and little attention has been paid to the psychological and social aspects of care, particularly in adolescence. This paper aims to fill this gap by assessing the relationship between psychosocial care and attitudes toward illness in adolescents with epilepsy. A descriptive correlational design was adopted, and 74 adolescents who experienced generalized seizures and were treated at the neurology clinic affiliated with the Tabriz University of Medical Sciences in 2010 were examined...
April 2013: Epilepsy & Behavior: E&B
Daren C Jackson, Kevin Dabbs, Natalie M Walker, Jana E Jones, David A Hsu, Carl E Stafstrom, Michael Seidenberg, Bruce P Hermann
OBJECTIVE: To characterize neuropsychological and academic status in children, ages 8-18 years, with new-/recent-onset idiopathic generalized epilepsy (IGE) and idiopathic localization-related epilepsy (ILRE) compared with healthy controls. STUDY DESIGN: Participants underwent neuropsychological assessment, and parents were interviewed regarding their child's academic history. Cognitive scores for children with epilepsy were age- and sex-adjusted and compared with controls across both broad-band (IGE n = 41 and ILRE n = 53) and narrow-band (childhood/juvenile absence, juvenile myoclonic, benign epilepsy with centro-temporal spikes, and focal [temporal/frontal/not otherwise specified]) syndromes...
May 2013: Journal of Pediatrics
Oh-Young Kwon, Sung-Pa Park
We investigated the frequency of affective symptoms in Korean adults with epilepsy who visited epilepsy clinics at two tertiary care hospitals and in healthy adults. We also examined the psychosocial impact of affective symptoms on people with epilepsy (PWE). Participants were asked to complete self-report questionnaires to assess depression and anxiety symptoms, felt stigma, suicidal ideation, and quality of life (QOL). Of 568 PWE, 30.5% exhibited affective symptoms. The frequencies of depression and anxiety symptoms were 27...
January 2013: Epilepsy & Behavior: E&B
K M Aaberg, A-S Eriksson, J Ramm-Pettersen, K O Nakken
AIM: The aim of this study was to evaluate the long-term results of resective surgery on children with difficult-to-treat epilepsy in Norway. METHODS: In the period 1995-2004, 64 surgical procedures (54 resections and 10 functional hemispherotomies) were performed in 54 children. The children's medical records were retrospectively reviewed at a minimum of 2 years after surgery. We sent a questionnaire regarding their epilepsy (seizures, usage of antiepileptic drugs) and general functioning (social situation, motor, language, cognition, behavioural or emotional problems, any remedial action) to the children/parents after a mean follow-up period of 7 years...
December 2012: Acta Paediatrica
D A J E Lambrechts, M J M Bovens, N M de la Parra, J G M Hendriksen, A P Aldenkamp, M J M Majoie
INTRODUCTION: The ketogenic diet (KD) is increasingly used for the treatment of refractory epilepsy. The aim of this study was to evaluate possible adverse effects of the diet on cognition, behavior, psychosocial adjustment, and quality of life in school-aged children and adolescents. METHOD: Fifteen subjects were assessed before diet initiation. After approximately 6 months, on diet treatment 11 patients (73%) were reassessed. We used a combination of individually administered psychological tests for the children and parent report questionnaires...
February 2013: Acta Neurologica Scandinavica
Harpal Singh, Satinder Aneja, K E S Unni, Anju Seth, Virendra Kumar
BACKGROUND: Epilepsy is a chronic disorder that significantly affects learning and behavior. Children with epilepsy are much more vulnerable for educational problems than with any other chronic illness. OBJECTIVES: The study was conducted to assess the extent of educational problems and factors associated with educational underachievement in Indian children with epilepsy. METHODS: It was a case control study and included 100 cases of 6-16 years age of epilepsy, 50 healthy children (control A) and 50 children with persistent asthma (control B)...
June 2012: Brain & Development
A E Aronu, S O Iloeje
BACKGROUND AND OBJECTIVE: The existence of a psychosocial dysfunction in the siblings of children with chronic illness has been documented. There are very few reports on siblings of children with epilepsy. The aim of this study is to investigate to what extent the children's epilepsy has affected their healthy siblings in our own center. MATERIALS AND METHODS: Epileptic patients who consecutively referred to the Pediatric Neurology Clinic of the University of Nigeria Teaching Hospital, Enugu, from October 1999 to September 2000 were recruited...
April 2011: Nigerian Journal of Clinical Practice
Roos Rodenburg, Janelle L Wagner, Joan K Austin, Michael Kerr, David W Dunn
Epilepsy is a pervasive disorder that consists not only of seizures, but of behavioral, academic, and social difficulties. Epilepsy has an impact on the entire family and may have a significant effect on the interrelationships between child and parent. Epilepsy also has a potentially deleterious effect on academic functioning that may be the result of central nervous system dysfunction, seizures, antiepileptic drugs, or child and family response to illness. Early assessment for psychosocial problems and appropriate interventions can be beneficial for the child and family...
September 2011: Epilepsy & Behavior: E&B
Michael Kerr, Gerhard Kluger, Sunny Philip
Although Lennox-Gastaut syndrome (LGS) typically begins during childhood, it frequently persists through adolescence and on into adulthood. It may also, rarely, have late onset during adolescence or adulthood. Longitudinal studies have highlighted that the "typical" features of LGS observed during childhood evolve and change over time, so that by adulthood it might be difficult to recognise LGS in previously undiagnosed patients. Approaches to treatment must therefore adapt to the changes in a patient's condition as they progress through life...
May 2011: Epileptic Disorders: International Epilepsy Journal with Videotape
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