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Caregiver burden

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https://www.readbyqxmd.com/read/29776002/the-chaos-of-hospitalisation-for-patients-with-critical-limb-ischaemia-approaching-major-amputation
#1
Susan Monaro, Sandra West, Jana Pinkova, Janice Gullick
AIMS AND OBJECTIVES: To illuminate the hospital experience for patients and families when major amputation has been advised for critical limb ischaemia (CLI). BACKGROUND: CLI creates significant burden to the health system and the family, particularly as the person with CLI approaches amputation. Major amputation is often offered as a late intervention for CLI in response to the marked deterioration of an ischaemic limb, and functional decline from reduced mobility, intractable pain, infection and/or toxaemia...
May 18, 2018: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29775139/burden-and-strain-among-familial-caregivers-of-patients-with-dementia-in-china
#2
Min Zhang, Yu-Ping Chang, Yu Jin Liu, Ling Gao, Davina Porock
BACKGROUND: Alzheimer's disease is one of a variety of progressive and ultimately fatal neurodegenerative diseases that are characterized by a number of nervous and mental symptoms and behavior disorders. These problems are likely to cause burden and strain on caregivers. In this study, we demonstrated the level and relationship of burden and strain among caregivers of dementia patients in China. METHODS: A total of 212 caregivers of family members with dementia responded to the survey...
May 2018: Issues in Mental Health Nursing
https://www.readbyqxmd.com/read/29771945/comparison-of-incidence-and-cost-of-influenza-between-healthy-and-high-risk-children-60-months-old-in-thailand-2011-2015
#3
Wanitchaya Kittikraisak, Piyarat Suntarattiwong, Wiboon Kanjanapattanakul, Darunee Ditsungnoen, Chonticha Klungthong, Kim A Lindblade, Stefan Fernandez, Fatimah S Dawood, Tawee Chotpitayasunondh, Sonja J Olsen
INTRODUCTION: Thailand recommends influenza vaccination for children aged 6 months to <36 months, but investment in vaccine purchase is limited. To inform policy decision with respect to influenza disease burden and associated cost in young children and to support the continued inclusion of children as the recommended group for influenza vaccination, we conducted a prospective cohort study of children in Bangkok hospital to estimate and compare influenza incidence and cost between healthy and high-risk children...
2018: PloS One
https://www.readbyqxmd.com/read/29769056/report-on-an-international-workshop-on-kangaroo-mother-care-lessons-learned-and-a-vision-for-the-future
#4
Adriano Cattaneo, Adidja Amani, Nathalie Charpak, Socorro De Leon-Mendoza, Sarah Moxon, Somashekhar Nimbalkar, Giorgio Tamburlini, Julieta Villegas, Anne-Marie Bergh
BACKGROUND: Globally, complications of prematurity are the leading cause of death in children under five. Preterm infants who survive their first month of life are at greater risk for various diseases and impairments in infancy, childhood and later life, representing a heavy social and economic burden for families, communities and health and social systems. Kangaroo mother care (KMC) is recommended as a beneficial and effective intervention for improving short- and long-term preterm birth outcomes in low- and high-income settings...
May 16, 2018: BMC Pregnancy and Childbirth
https://www.readbyqxmd.com/read/29761475/exhaled-breath-analysis-in-evaluation-of-psychological-stress-a-short-literature-review
#5
REVIEW
Alessandro Tonacci, Francesco Sansone, Anna Paola Pala, Raffaele Conte
Physiological stress is pervasive in today's society. Its detection is normally performed through several unobtrusive methods, driving both caregivers and patients to take measures to reduce the burden of this condition on human health. Among the methods for assessing stress, exhaled breath analysis represents a non-invasive, real-time alternative to classic laboratory tests. Therefore, a literature review was performed to assess the presence of altered parameters, related to psychological stress, in exhaled breath...
May 15, 2018: International Journal of Psychology: Journal International de Psychologie
https://www.readbyqxmd.com/read/29759306/level-of-understanding-of-alzheimer-disease-among-caregivers-and-the-general-population
#6
C Jorge, M Cetó, A Arias, E Blasco, M P Gil, R López, F Dakterzada, F Purroy, G Piñol-Ripoll
INTRODUCTION: Understanding of Alzheimer disease is fundamental for early diagnosis and to reduce caregiver burden. The objective of this study is to evaluate the degree of understanding of Alzheimer disease among informal caregivers and different segments of the general population through the Alzheimer's Disease Knowledge Scale. PATIENTS AND METHODS: We assessed the knowledge of caregivers in different follow-up periods (less than one year, between 1 and 5 years, and over 5 years since diagnosis) and individuals from the general population...
May 11, 2018: Neurología: Publicación Oficial de la Sociedad Española de Neurología
https://www.readbyqxmd.com/read/29755917/sharing-is-caring-minimizing-the-disruption-with-palliative-care
#7
EDITORIAL
Abd Moain Abu Dabrh, Robert P Shannon, Richard J Presutti
There is an upward trend incidence of multiple chronic life-limiting conditions with a well-documented associated impact on patients and their caregivers. When patients approach the end of life, they are often faced with a challenging multidimensional burden while navigating a complex health care system. Patients and families/caregivers are faced with daily decisions, often with little or no frame of reference or medical knowledge. The "what, how, when, and where" puzzle during this challenging time can be overwhelming for patients and their families, and when clinicians do not contemplate this associated workload's impact on patients and caregivers' capacity for self-care, patients and caregivers scramble to find compensatory solutions, often putting their health care at lower priority...
March 13, 2018: Curēus
https://www.readbyqxmd.com/read/29755713/a-mobile-multimedia-reminiscence-therapy-application-to-reduce-behavioral-and-psychological-symptoms-in-persons-with-alzheimer-s
#8
Danish Imtiaz, Arshia Khan, Adriana Seelye
The goal of this project is to develop a novel and innovative mobile solution to address behavioral and psychological symptoms of dementia (BPSD) that occur in individuals with Alzheimer's. BPSD can include agitation, restlessness, aggression, apathy, obsessive-compulsive and repetitive behaviors, hallucinations, delusions, paranoia, and wandering. Alzheimer's currently affects 5.4 million adults in the United States and that number is projected to increase to 14 million by 2050. Almost 90% of all affected with AD experience BPSD, resulting in increased healthcare costs, heavier burden on caregivers, poor patient outcomes, early nursing home placement, long-term hospitalizations, and misuse of medications...
2018: Journal of Healthcare Engineering
https://www.readbyqxmd.com/read/29755612/determination-of-care-burden-of-caregivers-of-patients-with-multiple-sclerosis-in-turkey
#9
Serpil Özmen, Afife Yurttaş
The aim of this study was to determine the care burden of caregivers of patients with multiple sclerosis in Turkey. This descriptive study was conducted with 92 caregivers. To collect data, information form and Zarit Caregiver Burden Interview (ZCBI) were used. Most of the caregivers (65.2%) were females and 71.7% of them were married. The average age of caregivers was 38 and above. The mean ZCBI score of caregivers was 25.44 ± 9.50. The ZCBI score was significantly higher in caregivers providing care for more than six years (28...
2018: Behavioural Neurology
https://www.readbyqxmd.com/read/29754433/unsung-heroes-flying-blind-a-metasynthesis-of-parents-experiences-of-caring-for-children-with-special-health-care-needs-at-home
#10
Carina Nygård, Anne Clancy
AIMS AND OBJECTIVES: To aggregate, synthesize and interpret qualitative research studies of parents' experiences of caring for a child with special health care needs at home. BACKGROUND: Advances in the field of medical and nursing science have ensured better survival rates for children with chronic illnesses. Many of these children have significant special health care needs. Today parents assume a caregiver role, undertaking tasks previously provided by nurses in hospitals...
May 13, 2018: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29753355/setting-the-boundaries-for-economic-evaluation-investigating-time-horizon-and-family-effects-in-the-case-of-postnatal-depression
#11
Jemimah Ride
OBJECTIVES: This study investigates the impact of varying the boundaries of economic evaluation: time horizon and inclusion of family effects. The context is postnatal mental health, where although advocates for investment often include longer-term and family problems in describing the burden of postnatal depression, economic evaluations are usually limited to mothers' effects with a relatively short time horizon. This discrepancy may lead to suboptimal allocation of healthcare resources...
May 2018: Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research
https://www.readbyqxmd.com/read/29752812/training-informal-caregivers-to-care-for-older-people-after-stroke-a-quasi-experimental-study
#12
Odete Araújo, Isabel Lage, José Cabrita, Laetitia Teixeira
AIMS: The present study aimed at evaluating whether training on practical skills involved in providing care reduces the burden experienced by informal caregivers and improves their general health condition. BACKGROUND: A substantial number of informal caregivers lack skills to deliver post-stroke assistance to older people after hospital discharge, which leads to burden situations as well as mental and physical health deterioration of the former. DESIGN: A quasi-experimental design...
May 12, 2018: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/29751218/coping-strategies-of-caregivers-towards-aggressive-behaviors-of-persons-with-severe-mental-illness
#13
Neethu Bhaskaran Madathumkovilakath, Sindhu Kizhakkeppattu, Saleem Thekekunnath, Firoz Kazhungil
Aggression is one of the chief determinants of caregiver burden in severe mental illnesses. Clinical and treatment implications of aggression in mental illness are predominantly studied in perspectives of mental health care professionals. Coping style of caregivers towards aggression of persons with mental illness is understudied. So we studied coping strategies used by caregivers of patients with severe mental illness towards aggressive behaviors of patients and relationship between aggressive behavior and coping strategies...
April 24, 2018: Asian Journal of Psychiatry
https://www.readbyqxmd.com/read/29749757/characteristics-associated-with-family-money-management-for-persons-with-psychiatric-disorders
#14
Travis Labrum
BACKGROUND: Persons with psychiatric disorders (PD) commonly have their money officially or unofficially managed by others, with money managers most commonly being family members. AIMS: (i) Identify characteristics of persons with PD, adult family members, and interactions with each other significantly associated with family money management (FMM). (ii) Identify significant differences in aforementioned characteristics between official versus unofficial FMM. METHODS: Five hundred and seventy-three adults residing in USA with an adult relative with PD completed a survey...
May 11, 2018: Journal of Mental Health
https://www.readbyqxmd.com/read/29749754/predictors-of-mortality-during-hospitalization-and-3-months-after-discharge-in-elderly-people-with-and-without-dementia
#15
Josune Martín, Angel Padierna, Ane Anton-Ladislao, Inmaculada Moro, José M Quintana
OBJECTIVES: The aims of this study were to assess mortality during hospitalization and 3 months after discharge in elderly people with and without dementia, and to identify variables that might predict mortality. METHODS: A prospective matched cohort study was conducted involving 195 inpatients with dementia and 204 inpatients without dementia. Information on sociodemographic, and clinical data were gathered. Patients completed questionnaires on premorbid basic (Barthel, BI) and instrumental activities of daily living (Lawton and Brody), quality of life (EuroQoL5-D; Quality of Life in Alzheimer's Disease), burden of the caregiver (Zarit)...
May 11, 2018: Aging & Mental Health
https://www.readbyqxmd.com/read/29749317/exploring-the-associations-between-spiritual-well-being-burden-and-quality-of-life-in-family-caregivers-of-cancer-patients
#16
Roberta Spatuzzi, Maria Velia Giulietti, Marcello Ricciuti, Fabiana Merico, Paolo Fabbietti, Letizia Raucci, Domenico Bilancia, Claudia Cormio, Anna Vespa
OBJECTIVE: The spiritual dimension is important in the process of coping with stress and may be of special relevance for those caring for cancer patients in the various phases of caregivership, although current attention is most prevalent at the end of life. This study explores the associations among spiritual well-being (SWB), caregiver burden, and quality of life (QoL) in family caregivers of patients with cancer during the course of the disease. METHOD: This is a cross-sectional study...
May 11, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29747583/effect-of-the-wecareadvisor%C3%A2-on-family-caregiver-outcomes-in-dementia-a-pilot-randomized-controlled-trial
#17
Helen C Kales, Laura N Gitlin, Barbara Stanislawski, H Myra Kim, Katherine Marx, Molly Turnwald, Claire Chiang, Constantine G Lyketsos
BACKGROUND: Behavioral and psychological symptoms of dementia (BPSD) are universal and associated with multiple negative outcomes. This pilot randomized controlled trial (RCT) evaluated the effect of using the WeCareAdvisor, an innovative web-based tool developed to enable family caregivers to assess, manage, and track BPSD. METHODS: This RCT enrolled 57 dementia family caregivers from community and clinical settings in Ann Arbor, Michigan and Baltimore, Maryland...
May 10, 2018: BMC Geriatrics
https://www.readbyqxmd.com/read/29747136/psychological-interventions-for-caregivers-of-people-with-bipolar-disorder-a-systematic-review-and-meta-analysis
#18
REVIEW
Ella Baruch, Nancy Pistrang, Chris Barker
AIMS: Clinical guidelines recommend that psychological interventions be offered to caregivers of people with bipolar disorder. However, there is little clarity about the efficacy of such interventions. This review examined the efficacy of psychological interventions in improving caregiver-focused outcomes, including burden, psychological symptoms and knowledge. METHOD: A systematic search for controlled trials was conducted using a combination of electronic database searches (PsycINFO, MEDLINE, and CENTRAL), and hand searches...
April 16, 2018: Journal of Affective Disorders
https://www.readbyqxmd.com/read/29746694/delirium-burden-in-patients-and-family-caregivers-development-and-testing-of-new-instruments
#19
Annie M Racine, Madeline D'Aquila, Eva M Schmitt, Jacqueline Gallagher, Edward R Marcantonio, Richard N Jones, Sharon K Inouye, Dena Schulman-Green
Background and Objectives: Delirium creates distinct emotional distress in patients and family caregivers, yet there are limited tools to assess the experience. Our objective was to develop separate patient and family caregiver delirium burden instruments and to test their content and construct validity. Research Design and Methods: Two hundred forty-seven patients and 213 family caregivers were selected from an ongoing prospective cohort of medical-surgical admissions aged ≥70 years old...
May 8, 2018: Gerontologist
https://www.readbyqxmd.com/read/29745417/the-implementation-of-mindfulness-based-interventions-and-educational-interventions-to-support-family-caregivers-of-patients-with-cancer-a-systematic-review
#20
REVIEW
Laila I Al Daken, Muayyad M Ahmad
PURPOSE: This review aims to determine the effectiveness of mindfulness-based interventions (MBIs) and educational interventions (EIs) as supportive care for family caregivers (FCs) of patients with cancer. DESIGN AND METHODS: Review was conducted following PRISMA guidelines. The search protocol was performed using EBSCO, Google Scholar, and Science Direct for the studies published between 2007 and 2017. FINDINGS: Little evidence is available on the usefulness of MBIs among FCs of patients with cancer...
May 10, 2018: Perspectives in Psychiatric Care
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