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Caregiver burden

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https://www.readbyqxmd.com/read/29329266/relative-validity-of-a-24-h-recall-in-assessing-intake-of-key-nutrients-in-a-cohort-of-australian-toddlers
#1
Elizabeth Beaton, Janine Wright, Gemma Devenish, Loc Do, Jane Scott
There is limited information concerning the dietary intake of toddlers in Australia. Consequently, there is a need for studies investigating toddler intake that use dietary assessment measures that are valid and place a low participant burden on caregivers. The aim of this study was to determine the relative validity of a single 24-h dietary recall (24HR) in measuring the intake of five nutrients in a cohort of Australian toddlers compared to a combined 24HR and 2-day estimated food record (2DFR). A single 24HR and a 2DFR were collected from a cohort of Australian toddlers (n = 699) at approximately 12 months of age as part of the Study of Mothers' and Infants' Life Events affecting oral health (SMILE) project...
January 12, 2018: Nutrients
https://www.readbyqxmd.com/read/29328762/patients-experiences-with-at-home-preoperative-skin-disinfection-before-elective-hip-replacement-surgery
#2
Maria Qvistgaard, Sofia Almerud Österberg, Kristiina Heikkilä, Ann-Britt Thorén, Jenny Lovebo
The aim of the study was to describe patients' experiences with preoperative skin disinfection carried out in their home before elective hip replacement surgery with the aim of lowering the microbial burden and avoiding surgical site infections. The literature was reviewed for relevant studies. Optimal preparations before surgery depend on patients being able to assimilate preoperative information and instructions. The study was based on 14 interviews with patients who had undergone elective hip replacement surgery...
July 2017: Journal of Perioperative Practice
https://www.readbyqxmd.com/read/29327378/comparing-impact-on-the-family-and-insurance-coverage-in-children-with-cerebral-palsy-and-children-with-another-special-healthcare-need
#3
B Schaible, G Colquitt, M C Caciula, A Carnes, L Li, N Moreau
BACKGROUND: Families and caregivers of children with special healthcare needs (CSHCN) often experience financial difficulties, have unmet physical and mental health needs, and are at increased risk of marital problems due to the stress caused by carrying for their child. Within the larger population of CHSCN, young people with cerebral palsy (CP) have more unmet needs due to the complexity and potential severity of the disability. The purpose of this study was to identify factors associated with differences in insurance coverage and impact on the family of children with CP and other CHSCN...
January 12, 2018: Child: Care, Health and Development
https://www.readbyqxmd.com/read/29324562/effectiveness-of-interventions-to-prevent-pre-frailty-and-frailty-progression-in-older-adults-a-systematic-review
#4
João Apóstolo, Richard Cooke, Elzbieta Bobrowicz-Campos, Silvina Santana, Maura Marcucci, Antonio Cano, Miriam Vollenbroek-Hutten, Federico Germini, Barbara D'Avanzo, Holly Gwyther, Carol Holland
OBJECTIVE: To summarize the best available evidence regarding the effectiveness of interventions for preventing frailty progression in older adults. INTRODUCTION: Frailty is an age-related state of decreased physiological reserves characterized by an increased risk of poor clinical outcomes. Evidence supporting the malleability of frailty, its prevention and treatment, has been presented. INCLUSION CRITERIA: The review considered studies on older adults aged 65 and over, explicitly identified as pre-frail or frail, who had been undergoing interventions focusing on the prevention of frailty progression...
January 2018: JBI Database of Systematic Reviews and Implementation Reports
https://www.readbyqxmd.com/read/29322243/humanistic-burden-of-disease-for-patients-with-advanced-melanoma-in-canada
#5
Winson Y Cheung, Martha S Bayliss, Michelle K White, Angela Stroupe, Andrew Lovley, Bellinda L King-Kallimanis, Kathryn Lasch
BACKGROUND: Metastatic melanoma is a highly aggressive cancer, often striking in the prime of life. This study provides new information directly from advanced melanoma (stage III and IV) patients on how their disease impacts their health-related quality of life (HRQL). METHODS: Twenty-nine in-depth, qualitative interviews were conducted with adult patients with advanced melanoma in Canada. A semi-structured interview guide was used. Interviews were transcribed verbatim and key concepts were identified using a grounded theory analytic approach...
January 10, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/29319428/the-relationship-between-caregiver-burden-and-depressive-symptoms-in-ontario-home-care-clients
#6
Nicole Williams, Samantha Jamal, Dawn M Guthrie
OBJECTIVES: To examine risk factors for the development of depressive symptoms. DESIGN: Longitudinal analysis was completed for clients with 2+ assessments. Development of depressive symptoms was defined as a Depression Rating Scale score of 3+ on re-assessment. RESULTS: Overall, 10.7% of clients experienced new depressive symptoms and clients with a caregiver who was feeling distressed, angry or depressed were 45% more likely to develop symptoms...
January 10, 2018: Home Health Care Services Quarterly
https://www.readbyqxmd.com/read/29316811/the-adult-carer-quality-of-life-questionnaire-ac-qol-comparison-with-measures-of-burden-and-well-being-and-italian-validation
#7
Luca Negri, Gianna Piazza, Raffaela D G Sartori, Mario G Cocchi, Antonella Delle Fave
PURPOSE: Family caregivers are essential assets in the rehabilitation process, and their psychophysical health should represent a concern for healthcare services. This study aims to investigate the psychometric properties of the Adult Carer Quality of Life Questionnaire, Italian version, and its convergent-discriminant validity with measures of caring burden, resilience, health, and well-being. MATERIALS AND METHODS: Participants were 591 parents (89.2% females; aged 25-69) of children treated as outpatients in 14 centers of "Istituto Medea - La Nostra Famiglia", an Italian rehabilitation institution...
January 10, 2018: Disability and Rehabilitation
https://www.readbyqxmd.com/read/29316798/regulation-of-mitophagy-by-the-ubiquitin-pathway-in-neurodegenerative-diseases
#8
Shyamal Desai, Meredith Juncker, Catherine Kim
Mitophagy is a cellular process by which dysfunctional mitochondria are degraded via autophagy. Increasing empirical evidence proposes that this mitochondrial quality-control mechanism is defective in neurons of patients with various neurodegenerative diseases such as Ataxia Telangiectasia, Alzheimer's disease, Parkinson's disease, and Amyotrophic Lateral Sclerosis. Accumulation of defective mitochondria and the production of reactive oxygen species due to defective mitophagy have been identified as causes underlying neurodegenerative disease pathogenesis...
January 1, 2018: Experimental Biology and Medicine
https://www.readbyqxmd.com/read/29314470/needs-and-preferences-among-patients-with-high-grade-glioma-and-their-caregivers-a-longitudinal-mixed-methods-study
#9
K Piil, J Jakobsen, K B Christensen, M Juhler, T C Guetterman, M D Fetters, M Jarden
Previous reports on the patient perspective of daily life during a 1-year high-grade glioma (HGG) trajectory from the time of diagnosis are sparse. The aim of this longitudinal mixed methods study is to identify the specific needs and preferences for rehabilitation and supportive care and how it links with physical activity, psychological measures and health quality longitudinally over the first year after diagnosis among patients with HGG and their caregivers by integrating qualitative and quantitative findings...
January 4, 2018: European Journal of Cancer Care
https://www.readbyqxmd.com/read/29314219/pediatric-psoriasis-evolving-perspectives
#10
Lawrence F Eichenfield, Amy S Paller, Wynnis L Tom, Jeffrey Sugarman, Adelaide A Hebert, Sheila Fallon Friedlander, Elaine Siegfried, Nanette Silverberg, Kelly M Cordoro
BACKGROUND/OBJECTIVES: Childhood-onset psoriasis is a common skin disorder that has recently received increasing attention, particularly because of its significant medical, social, financial, and psychological burdens and its associated comorbidities. With limited data available and lack of standardized management guidelines for pediatric psoriasis, an expert panel desired to provide an updated critical overview and practical guidance for management of the affected population. METHODS: A panel of pediatric dermatologists with extensive experience in pediatric psoriasis defined and prioritized a core set of topics, performed an English-language literature review, prepared critical evaluations and presentations of topic areas, and carried out a consensus meeting and follow-up consensus manuscript...
January 4, 2018: Pediatric Dermatology
https://www.readbyqxmd.com/read/29313790/reframing-the-patient-s-best-interest-the-burden-of-the-caregiver
#11
Rebecca Lunstroth, Rhashedah Ekeoduru
No abstract text is available yet for this article.
January 2018: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/29311194/the-financial-cost-incurred-by-families-of-children-on-long-term-dialysis
#12
Abdulafeez Bello, Beauty Sangweni, Abdullah Mudi, Tholang Khumalo, Glenda Moonsamy, Cecil Levy
BACKGROUND: Costs of dialysis reported in countries where dialysis is government-funded are often those incurred by the state, and only a few take into account the financial burden to the family of the index patient. This study investigated the financial cost implication to families of pediatric patients on maintenance dialysis and how aid provided by the government alleviates their financial burden. METHODS: This descriptive cross-sectional study recruited 24 children on peritoneal dialysis (PD) and hemodialysis (HD), and a structured questionnaire was administered to the parents/caregivers of these patients to obtain information on their family size, total family income, cost of transportation, employment status of attending caregiver, and number of work days missed due to hospital visits...
January 2018: Peritoneal Dialysis International: Journal of the International Society for Peritoneal Dialysis
https://www.readbyqxmd.com/read/29310613/efficacy-of-a-telephone-outcall-program-to-reduce-caregiver-burden-among-caregivers-of-cancer-patients-protect-a-randomised-controlled-trial
#13
Leila Heckel, Kate M Fennell, John Reynolds, Anna Boltong, Mari Botti, Richard H Osborne, Cathrine Mihalopoulos, Jacquie Chirgwin, Melinda Williams, Cadeyrn J Gaskin, David M Ashley, Patricia M Livingston
BACKGROUND: Informal caregivers provide extended support to people with cancer but they receive little support from the health care system to assist them in their caring role. The aim of this single-blind, multi-centre, randomised controlled trial was to test the efficacy of a telephone outcall program to reduce caregiver burden and unmet needs, and improve psychological well-being among cancer caregivers, as well as evaluating the potential impact on patient outcomes. METHODS: Cancer patient/caregiver dyads (N = 216) were randomised to a telephone outcall program (n = 108) or attention control group (n = 108)...
January 8, 2018: BMC Cancer
https://www.readbyqxmd.com/read/29306605/online-training-and-support-programs-designed-to-improve-mental-health-and-reduce-burden-among-caregivers-of-people-with-dementia-a-systematic-review
#14
REVIEW
Kieren J Egan, Ángel C Pinto-Bruno, Irene Bighelli, Marla Berg-Weger, Annemieke van Straten, Emiliano Albanese, Anne-Margriet Pot
INTRODUCTION: Dementia poses a considerable socioeconomic burden to society. On a global scale, family and other unpaid care predominates. Supporting caregivers is crucial, but scalable interventions are currently lacking. Because a growing number of studies have suggested that online training and support programs hold considerable promise for scaling up, we reviewed existing literature. METHODS: We systematically searched 6 databases to identify studies of Internet-based interventions designed to train and support caregivers of people with dementia, and we formally assessed risk of bias...
January 3, 2018: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/29301449/feelings-of-burden-in-palliative-care-a-qualitative-analysis-of-medical-records
#15
Milenko Rakic, Monica Escher, Bernice S Elger, Sandra Eckstein, Nadia Pacurari, Susanne Zwahlen, Isabelle Wienand
BACKGROUND: Care for palliative care patients is often provided by unpaid caregivers (eg, family members) who take care of the patient's daily needs (eg, bathing, dressing). Family members of palliative care patients are involved in numerous ways. These tasks and responsibilities can make them feel burdened and even overburdened. AIM: We specifically looked at patients' medical records to determine what is being reported about burden and overburden and who seems to be mostly affected...
January 1, 2018: Journal of Palliative Care
https://www.readbyqxmd.com/read/29301414/helping-dementia-caregivers-manage-medical-problems-benefits-of-an-educational-resource
#16
Sheryl Zimmerman, Philip D Sloane, Kimberly Ward, Anna Beeber, David Reed, Christine Lathren, Bobbi Matchar, Lisa Gwyther
BACKGROUND/RATIONALE: Family caregivers of people with dementia must attend to medical care needs of their relative, yet few available resources address comorbidities in dementia. Consequently, caregivers feel ill-equipped when medical concerns arise. In response, an educational resource-Alzheimer's Medical Advisor ( AlzMed)-was developed in 2 forms (website and book) and evaluated. METHODS: Family caregivers (143 website and 51 book) used an educational resource that provides information on medical problems, vital signs, pain, dehydration, and the healthcare system...
January 1, 2018: American Journal of Alzheimer's Disease and Other Dementias
https://www.readbyqxmd.com/read/29298714/paediatric-palliative-care-improves-patient-outcomes-and-reduces-healthcare-costs-evaluation-of-a-home-based-program
#17
P H Chong, J A De Castro Molina, K Teo, W S Tan
BACKGROUND: Around the world, different models of paediatric palliative care have responded to the unique needs of children with life shortening conditions. However, research confirming their utility and impact is still lacking. This study compared patient-related outcomes and healthcare expenditures between those who received home-based paediatric palliative care and standard care. The quality of life and caregiver burden for patients receiving home-based paediatric palliative care were also tracked over the first year of enrolment to evaluate the service's longitudinal impact...
January 3, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29297900/-talking-about-unspeakable-insights-from-patient-centered-medicine-to-palliative-paternalism
#18
Silvia Maria Luisa Del Negro, Lidia Borghi, Daris Ferrari, Elena Vegni
The literature highlights the importance of involving the patient as a partner of care, using a patient-centered approach aimed at improving a process of share decision-making. However, there are clinical situations in which a shared decision-making process is difficult and its actual achievement is even more complex, as in the case of end-of-life decisions, in which a decision about death is a tremendous weight for both patients and their caregivers. In such situations, we wonder what kind of position physicians should assume in order to be patient-centered but also to reduce the patient suffering...
December 2017: Recenti Progressi in Medicina
https://www.readbyqxmd.com/read/29297790/burden-of-care-among-caregivers-of-persons-living-with-hiv-aids-in-rural-namibia-correlates-and-outcomes
#19
Eveline Ndinelao Kalomo, Minli Liao
This study examined the correlates of burden of caregivers providing care to people living with HIV/AIDS in rural northern Namibia and the consequences of caregivers' burden on their physical health and mental health. A purposive sampling method was used to recruit a total of 97 primary caregivers (N = 97) in rural Namibia. We found that hunger and HIV stigma were both positively associated with caregiver burden. Caregiver burden was positively related to depression and negatively related to quality of life...
2018: Social Work in Public Health
https://www.readbyqxmd.com/read/29289452/empathic-accuracy-deficits-in-patients-with-neurodegenerative-disease-association-with-caregiver-depression
#20
Casey L Brown, Sandy J Lwi, Madeleine S Goodkind, Katherine P Rankin, Jennifer Merrilees, Bruce L Miller, Robert W Levenson
OBJECTIVES: To investigate whether deficits in empathic accuracy (i.e., ability to recognize emotion in others) in patients with neurodegenerative disease are associated with greater depression in their caregivers. DESIGN: Two cross-sectional studies. SETTING: Academic medical center and research university. PARTICIPANTS: Two independent samples (N = 172, N = 63) of patients with a variety of neurodegenerative diseases and their caregivers; comparison group of healthy couples...
December 27, 2017: American Journal of Geriatric Psychiatry
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