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Caregiver burden

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https://www.readbyqxmd.com/read/28210993/impact-of-caregiver-activities-and-social-supports-on-multidimensional-caregiver-burden-analyses-from-nationally-representative-surveys-of-cancer-patients-and-their-caregivers
#1
Michael T Halpern, Mallorie H Fiero, Melanie L Bell
PURPOSE: Informal caregivers of individuals with cancer may experience substantial burdens. To develop interventions to support these caregivers, it is crucial to quantify and understand the domains of burdens potentially experienced by caregivers and factors contributing to each domain. METHODS: Using data from two national surveys, the National Survey of Caregiving (NSOC) linked to the National Health and Aging Trends Survey (NHATS), we identified all participants in the NHATS diagnosed with cancer who had a caregiver participating in the NSOC...
February 16, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28206801/burden-and-mental-health-among-caregivers-of-veterans-with-traumatic-brain-injury-polytrauma
#2
Joan M Griffin, Minji K Lee, Lauren R Bangerter, Courtney Harold Van Houtven, Greta Friedemann-Sánchez, Sean M Phelan, Kathleen F Carlson, Laura A Meis
Veterans who survive multiple traumatic injuries, including traumatic brain injuries (TBI), must often rely on family caregivers for ongoing care and support with reintegration. Understanding factors associated with caregiving that help or harm caregivers' health is critical for identifying appropriate and effective interventions that support caregiver health and promote the provision of quality care to veterans. This study utilized cross-sectional data from the Family and Caregiver Experiences Study, a survey of 564 caregivers caring for veterans who served after September 11, 2001, survived TBI/polytrauma during service, and received inpatient rehabilitation care in a Veterans Affairs Polytrauma Rehabilitation Center...
2017: American Journal of Orthopsychiatry
https://www.readbyqxmd.com/read/28204993/needs-of-neuro-oncological-patients-and-their-caregivers-during-the-hospitalization-and-after-discharge-results-from-a-longitudinal-study
#3
C Scaratti, M Leonardi, A Saladino, E Anghileri, M Broggi, E Lamperti, L Fariselli, R Ayadi, G Tringali, S Schiavolin
PURPOSE: The aims of this study are to identify neuro-oncological patients' and their caregivers' needs during hospitalization (T0) and at 4 months after discharge (T1); to analyze the longitudinal changes in patients' and caregivers' needs and burden; to identify correlations between patients' needs and caregivers' burden and needs. METHODS: A pilot observational longitudinal study was conducted on 94 neuro-oncological patients and their caregivers using NEQ to evaluate patients' needs, CNA, and FSQ for caregivers' needs and burden at T0 and T1...
February 15, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/28204949/caregiver-burden-and-the-medical-ethos
#4
Karsten Witt, Johanne Stümpel, Christiane Woopen
Are physicians sometimes morally required to ease caregiver burden? In our paper we defend an affirmative answer to this question. First, we examine the well-established principle that medical care should be centered on the patient. We argue that although this principle seems to give physicians some leeway to lessen caregivers' suffering, it is very restrictive when spelled out precisely. Based on a critical analysis of existing cases for transcending patient-centeredness we then go on to argue that the medical ethos should indeed contain a rule requiring physicians to alleviate caregiver burden under certain circumstances...
February 15, 2017: Medicine, Health Care, and Philosophy
https://www.readbyqxmd.com/read/28203067/silent-strain-of-caregiving-exploring-the-best-predictors-of-distress-in-family-carers-of-geriatric-patients
#5
Katarzyna Bień-Barkowska, Halina Doroszkiewicz, Barbara Bień
OBJECTIVES: The aim of this article was to identify the best predictors of distress suffered by family carers (FCs) of geriatric patients. METHODS: A cross-sectional study of 100 FC-geriatric patient dyads was conducted. The negative impact of care (NIoC) subscale of the COPE index was dichotomized to identify lower stress (score of ≤15 on the scale) and higher stress (score of ≥16 on the scale) exerted on FCs by the process of providing care. The set of explanatory variables comprised a wide range of sociodemographic and care-related attributes, including patient-related results from comprehensive geriatric assessments and disease profiles...
2017: Clinical Interventions in Aging
https://www.readbyqxmd.com/read/28201932/turkish-adult-children-as-caregivers-of-parents-with-alzheimer-s-disease-perceptions-and-caregiving-experiences
#6
Yagmur Ar, A Nuray Karanci
There is substantial evidence suggesting that Western and non-Western caregivers of patients with Alzheimer's disease have different caregiving experiences depending on the cultural values they adopt. Although family-centered constructs such as familism and filial piety have taken some attention, there is still a paucity of research on how cultural values and norms shape caregiving appraisals, coping strategies, and formal service use specifically in Eastern-oriented contexts. The aim of this study was to investigate Turkish adult children caregivers' perceptions of Alzheimer's disease and caregiving experience...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/28197328/family-functioning-and-communication-in-spouses-of-patients-with-parkinsonism
#7
Seo Young Kang, Myung Hwa Yang, Jung Ah Lee, Wooyoung Jang, Chong Sik Lee, Young Sik Kim
BACKGROUND: Patients with parkinsonism exhibit motor symptoms, cognitive impairment, and neuropsychiatric changes, and these symptoms increase caregiver burden. Family dynamics can be influenced by the presence of comorbidities, which is especially important in diseases causing caregiver burden. We investigated the effects of spousal parkinsonism on family functioning and communication. METHODS: Couples without parkinsonism, who visited hospital-based family practices, were recruited by 28 family physicians from 22 hospitals between April 2009 and June 2011; patients with parkinsonism and their spouses were recruited from a single institution...
January 2017: Korean Journal of Family Medicine
https://www.readbyqxmd.com/read/28196939/roles-of-changing-physical-function-and-caregiver-burden-on-quality-of-life-in-stroke-a-longitudinal-dyadic-analysis
#8
Gianluca Pucciarelli, Ercole Vellone, Serenella Savini, Silvio Simeone, Davide Ausili, Rosaria Alvaro, Christopher S Lee, Karen S Lyons
BACKGROUND AND PURPOSE: The purpose of this study was to examine changes in stroke survivor and caregiver quality of life (QOL) and to determine whether changes in survivor physical functioning and caregiver burden (ie, the impact of the physical, psychological, and social demands of caregiving) influence changes in QOL. METHODS: Longitudinal design with 226 stroke survivor-caregiver dyads enrolled at survivor discharge from rehabilitation hospitals. Data collection was performed over 12 months...
February 14, 2017: Stroke; a Journal of Cerebral Circulation
https://www.readbyqxmd.com/read/28193369/-expressed-emotions-burden-and-family-functioning-in-schizophrenic-and-bipolar-i-patients-of-a-multimodal-intervention-program-prisma
#9
Alexandra Ramírez, Juan David Palacio, Cristian Vargas, Ana María Díaz-Zuluaga, Kelly Duica, Yuli Agudelo Berruecos, Sigifredo Ospina, Carlos López-Jaramillo
INTRODUCTION: Bipolar disorder and schizophrenia are causes of major suffering in patients. Nevertheless, they also affect family and caregiver functioning. This is important because the participation and involvement of families and caregivers is essential to achieve an optimal treatment. OBJECTIVE: To describe the level of expressed emotions, burden, and family functioning of bipolar and schizophrenic patients and, to evaluate the efficacy of the multimodal intervention (MI) versus traditional intervention (TI) in family functioning and its perception by patients and caregivers...
January 2017: Revista Colombiana de Psiquiatría
https://www.readbyqxmd.com/read/28188462/caring-for-the-caregiver-identifying-the-needs-of-those-called-to-care-through-partnerships-with-congregations
#10
Panagis Galiatsatos, Katie Nelson, W Daniel Hale
As the older adult population continues to grow, the prevalence of chronic diseases is also increasing, leading to the need for novel ways of managing this large population of patients. One solution is to focus on informal caregivers. These informal caregivers already make a substantial contribution to our nation's healthcare finances and patient health outcomes. Caregivers also derive benefits from caring for their family member or friend; however, it is not uncommon for these individuals to experience negative health consequences, or what is often called "burden of care...
February 10, 2017: Journal of Religion and Health
https://www.readbyqxmd.com/read/28188119/incidence-and-economic-burden-of-acute-otitis-media-in-children-aged-up-to-5years-in-three-middle-eastern-countries-and-pakistan-a-multinational-retrospective-observational-study
#11
Ghulam Mustafa, Amal Y Al Aidaroos, Idris S Al Abaidani, Kinga Meszaros, Kusuma Gopala, Mehmet Ceyhan, Mohamad Al-Tannir, Rodrigo DeAntonio, Shyam Bawikar, Johannes E Schmidt
Epidemiological data on acute otitis media (AOM), an infectious disease frequently affecting children, are lacking in some countries. This study was undertaken to assess the incidence of AOM in children ≤5years in Saudi Arabia, Oman, Pakistan, and Turkey, as well as the economic burden from a parent/caregiver perspective. Medical records of 4043 children (Saudi Arabia=1023, Oman=998, Pakistan=1022, Turkey=1000) were retrospectively reviewed and the incidence of AOM episodes calculated from suspected and confirmed cases...
February 7, 2017: Journal of Epidemiology and Global Health
https://www.readbyqxmd.com/read/28188064/the-impact-of-the-patient-post-intensive-care-syndrome-components-upon-caregiver-burden
#12
J Torres, D Carvalho, E Molinos, C Vales, A Ferreira, C C Dias, R Araújo, E Gomes
OBJECTIVE: To evaluate patient post-intensive care syndrome (PICS-P) and caregiver burden 3 months after discharge from the Intensive Care Unit (ICU) and determine the impact of different components of PICS-P upon caregiver burden. DESIGN: A prospective observational study was conducted over 26 months (January 2013-February 2015). SETTING: Medical-surgical ICU and follow-up consultation in Portugal. PATIENTS OR PARTICIPANTS: Patients discharged after a minimum of 2 days in the ICU...
February 7, 2017: Medicina Intensiva
https://www.readbyqxmd.com/read/28186833/the-use-of-a-brief-5-item-measure-of-family-satisfaction-as-a-critical-quality-indicator-in-advanced-cancer-care-a-multisite-comparison
#13
Katherine A Ornstein, Joan Penrod, Julie B Schnur, Cardinale B Smith, Jeanne A Teresi, Melissa M Garrido, Karen McKendrick, Albert L Siu, Diane E Meier, R Sean Morrison
BACKGROUND: Although family satisfaction is recognized as a critical indicator of quality for patients with advanced cancer, it is rarely assessed as part of routine clinical care. Measurement burden may be one barrier to widespread use of family satisfaction measures. OBJECTIVE: The goal of this study was to test the ability of a new, brief 5-item measure of family satisfaction with care to accurately capture differences across hospital settings. DESIGN: Using data from the Palliative Care for Cancer Patients study, a prospective study of 1979 patients and caregivers, we used multivariate regression analysis to detect significant differences across five sites...
February 10, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28186426/psychometric-characteristics-of-the-caregiver-burden-inventory-in-caregivers-of-adults-with-heart-failure
#14
Andrea Greco, Luca Pancani, Marta Sala, Anna Maria Annoni, Patrizia Steca, Marco Paturzo, Fabio D'Agostino, Rosaria Alvaro, Ercole Vellone
BACKGROUND: A better understanding of caregiver burden and its determinants is essential to support caregivers. Many instruments have been developed to measure caregiver burden in various illness contexts, but few have been psychometrically tested for caregivers of heart failure patients. AIMS: The aim of this study was to test the validity (factorial and concurrent validity) and reliability (internal consistency) of the caregiver burden inventory (CBI) in a cohort of caregivers of heart failure patients...
January 1, 2017: European Journal of Cardiovascular Nursing
https://www.readbyqxmd.com/read/28185994/motivational-interviewing-to-improve-self-care-in-heart-failure-patients-motivate-hf-study-protocol-of-a-three-arm-multicenter-randomized-controlled-trial
#15
Ercole Vellone, Marco Paturzo, Fabio D'Agostino, Antonio Petruzzo, Stefano Masci, Davide Ausili, Paola Rebora, Rosaria Alvaro, Barbara Riegel
AIMS: Heart Failure (HF) self-care improves patient outcomes but trials designed to improve HF self-care have shown inconsistent results. Interventions may be more effective in improving self-care if they mobilize support from providers, promote self-efficacy, increase understanding of HF, increase the family involvement, and are individualized. All of these elements are emphasized in motivational interviewing (MI); few trials have been conducted using MI in HF patients and rarely have caregivers been involved in MI interventions...
February 7, 2017: Contemporary Clinical Trials
https://www.readbyqxmd.com/read/28183323/the-tech-home-study-a-technological-intervention-to-reduce-caregiver-burden-for-informal-caregivers-of-people-with-dementia-study-protocol-for-a-randomized-controlled-trial
#16
Agneta Malmgren Fänge, Steven M Schmidt, Maria H Nilsson, Gunilla Carlsson, Anna Liwander, Caroline Dahlgren Bergström, Paolo Olivetti, Per Johansson, Carlos Chiatti
BACKGROUND: It is estimated that global dementia rates will more than triple by 2050 and result in a staggering economic burden on families and societies. Dementia carries significant physical, psychological and social challenges for individuals and caregivers. Informal caregiving is common and increasing as more people with dementia are being cared for at home instead of in nursing homes. Caregiver burden is associated with lower perceived health, lower social coherence, and increased risk of morbidity and mortality...
February 9, 2017: Trials
https://www.readbyqxmd.com/read/28182172/chronic-disease-self-management-support-for-persons-with-dementia-in-a-clinical-setting
#17
Joseph Elias Ibrahim, Laura J Anderson, Aleece MacPhail, Janaka Jonathan Lovell, Marie-Claire Davis, Margaret Winbolt
The burden of chronic disease is greater in individuals with dementia, a patient group that is growing as the population is aging. The cornerstone of optimal management of chronic disease requires effective patient self-management. However, this is particularly challenging in older persons with a comorbid diagnosis of dementia. The impact of dementia on a person's ability to self-manage his/her chronic disease (eg, diabetes mellitus or heart failure) varies according to the cognitive domain(s) affected, severity of impairment and complexity of self-care tasks...
2017: Journal of Multidisciplinary Healthcare
https://www.readbyqxmd.com/read/28182166/reducing-the-risk-of-stroke-in-elderly-patients-with-non-valvular-atrial-fibrillation-a-practical-guide-for-clinicians
#18
REVIEW
Joanne M Foody
Non-valvular atrial fibrillation (NVAF) significantly contributes to the burden of stroke, particularly in elderly patients. The challenge of optimizing anticoagulation therapy is balancing efficacy and bleeding risk, especially as the same patients at high risk of stroke also tend to be at high risk of bleeding. Treating the elderly patient with NVAF presents special challenges because of their heightened risk for both stroke and bleeding. Despite clinical trial data and evidence-based guidelines, surveys indicate that physicians underuse anticoagulation in older patients for reasons that include overemphasis of bleeding risk, particularly with the increased risk of falling, at the cost of thromboembolic risk...
2017: Clinical Interventions in Aging
https://www.readbyqxmd.com/read/28181696/consequences-of-clinical-case-management-for-caregivers-a-systematic-review
#19
REVIEW
Aline Corvol, Adina Dreier, Joachim Prudhomm, Jochen René Thyrian, Wolfgang Hoffmann, Dominique Somme
OBJECTIVE: Informal caregivers are deeply involved in the case management process. However, little is known about the consequences of such programs for informal caregivers. This systematic literature review, reported according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses statement, addressed the consequences of clinical case management programs, whether positive or negative, for caregivers of frail older persons or persons with dementia. METHODS: We systematically identified and analyzed published randomized trials and quasi-experimental studies comparing case management programs to usual care, which discussed outcomes concerning caregivers...
February 9, 2017: International Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/28178370/barriers-and-enablers-to-adherence-to-anticoagulation-in-heart-failure-with-atrial-fibrillation-patient-and-provider-perspectives
#20
Caleb Ferguson, Sally C Inglis, Phillip J Newton, Sandy Middleton, Peter S Macdonald, Patricia M Davidson
AIMS & OBJECTIVES: The purpose of this study was to elucidate the barriers and enablers to adherence to anticoagulation in individuals with chronic heart failure (CHF) with concomitant atrial fibrillation (AF) from the perspective of patients and providers. BACKGROUND: CHF and AF commonly coexist and are associated with increased stroke risk and mortality. Oral anticoagulation significantly reduces stroke risk and improves outcomes. Yet, in approximately 30% of cases anticoagulation is not commenced for a variety of reasons...
February 8, 2017: Journal of Clinical Nursing
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