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Self-perceived burden to others

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https://www.readbyqxmd.com/read/28642217/an-interactive-mobile-based-tool-for-personal-social-network-data-collection-and-visualization-among-a-geographically-isolated-and-socioeconomically-disadvantaged-population-early-stage-feasibility-study-with-qualitative-user-feedback
#1
Katherine S Eddens, Jesse M Fagan, Tom Collins
BACKGROUND: Personal social networks have a profound impact on our health, yet collecting personal network data for use in health communication, behavior change, or translation and dissemination interventions has proved challenging. Recent advances in social network data collection software have reduced the burden of network studies on researchers and respondents alike, yet little testing has occurred to discover whether these methods are: (1) acceptable to a variety of target populations, including those who may have limited experience with technology or limited literacy; and (2) practical in the field, specifically in areas that are geographically and technologically disconnected, such as rural Appalachian Kentucky...
June 22, 2017: JMIR Research Protocols
https://www.readbyqxmd.com/read/28618419/addictive-potential-of-internet-applications-and-differential-correlates-of-problematic-use-in-internet-gamers-versus-generalized-internet-users-in-a-representative-sample-of-adolescents
#2
Tabea Rosenkranz, Kai W Müller, Michael Dreier, Manfred E Beutel, Klaus Wölfling
AIMS: This paper examines the addictive potential of 8 different Internet applications, distinguishing male and female users. Moreover, differential correlates of problematic use are investigated in Internet gamers (IG) and generalized Internet users (GIU). METHOD: In a representative sample of 5,667 adolescents aged 12-19 years, use of Internet applications, problematic Internet use, psychopathologic symptoms (emotional problems, hyperactivity/inattention, and psychosomatic complaints), personality (conscientiousness and extraversion), psychosocial correlates (perceived stress and self-efficacy), and coping strategies were assessed...
June 16, 2017: European Addiction Research
https://www.readbyqxmd.com/read/28521595/caregiving-and-perceived-generativity-a-positive-and-protective-aspect-of-providing-care
#3
Molli R Grossman, Tara L Gruenewald
OBJECTIVES: Although a sizable body of research supports negative psychological consequences of caregiving, less is known about potential psychological benefits. This study aimed to examine whether caregiving was associated with enhanced generativity, or feeling like one makes important contributions to others. An additional aim was to examine the buffering potential of perceived generativity on adverse health outcomes associated with caregiving. METHODS: Analyses utilized a subsample of participants (n = 3,815, ages 30-84 years) from the second wave of the National Survey of Midlife Development in the United States (MIDUS)...
April 18, 2017: Clinical Gerontologist
https://www.readbyqxmd.com/read/28515801/effectiveness-and-usability-of-a-web-based-mindfulness-intervention-for-families-living-with-mental-illness
#4
Sigrid Stjernswärd, Lars Hansson
Families living with mental illness express needs of support and experiences of burden that may affect their own health detrimentally and hence also their ability to support the patient. Mindfulness-based interventions have shown beneficial health effects in both clinical and healthy populations. The aim of the current study was to explore the effectiveness and usability of a web-based mindfulness program for families living with mental illness, which was first tested in a feasibility study. The study was designed as a randomized controlled trial with an experiment group and a wait-list control group with assessments on primary and secondary outcomes at baseline, post-intervention, and at a 3-month follow-up...
2017: Mindfulness
https://www.readbyqxmd.com/read/28398843/treatment-satisfaction-and-adherence-to-oral-chemotherapy-in-patients-with-cancer
#5
Jamie M Jacobs, Nicole A Pensak, Nora J Sporn, James J MacDonald, Inga T Lennes, Steven A Safren, William F Pirl, Jennifer S Temel, Joseph A Greer
PURPOSE: Although patients with cancer overwhelming prefer oral to intravenous chemotherapy, little is known about adherence to oral agents. We aimed to identify the rates and correlates of adherence in patients with diverse malignancies. MATERIALS AND METHODS: Ninety patients with chronic myeloid leukemia or metastatic renal cell carcinoma, non-small-cell lung cancer, or breast cancer enrolled in this prospective, single-group, observational study of medication-taking behaviors...
May 2017: Journal of Oncology Practice
https://www.readbyqxmd.com/read/28387049/training-residents-in-depression-and-grief
#6
Angela Ghesquiere, Johanna Martinez, Cathy Jalali, Jo Anne Sirey, Susana Morales
BACKGROUND: About 20 per cent of Americans will experience depression in their lifetimes, and almost all will experience the death of a loved one. Both depression and grief have been associated with adverse health outcomes, including a decline in quality of life and excess mortality. Primary care physicians (PCPs) are the initial health care contact for most patients with depression and grief, yet often perceive that they lack the skills to adequately address these issues. Previous studies have investigated whether educational efforts improve PCP depression and grief knowledge or perceived skills, but few have focused on medical residents...
April 6, 2017: Clinical Teacher
https://www.readbyqxmd.com/read/28372581/perseverance-time-of-informal-caregivers-for-people-with-dementia-construct-validity-responsiveness-and-predictive-validity
#7
Anke Richters, René J F Melis, N Job van Exel, Marcel G M Olde Rikkert, Marjolein A van der Marck
BACKGROUND: Informal care is essential for many people with dementia (PwD), but it often results in a considerable burden for the caregiver. The perseverance time instrument integrates the aspect of perceived burden with the caregiver's capacity to cope with the burden, in contrast to most available instruments, which measure solely the burden of caregiving. The aim of this study was to extend insight into psychometric properties of the perseverance time instrument, specifically the construct validity, responsiveness, and predictive validity, within the population of informal caregivers for PwD...
April 4, 2017: Alzheimer's Research & Therapy
https://www.readbyqxmd.com/read/28325112/potential-of-personal-health-record-portals-in-the-care-of-individuals-with-spinal-cord-injuries-and-disorders-provider-perspectives
#8
Jennifer N Hill, Bridget M Smith, Frances M Weaver, Kim M Nazi, Florian P Thomas, Barry Goldstein, Timothy P Hogan
CONTEXT/OBJECTIVE: Although personal health record (PHR) portals are designed for patients, healthcare providers are a key influence in how patients use their features and realize benefits from them. A few studies have examined provider attitudes toward PHR portals, but none have focused on those who care for individuals with spinal cord injuries and disorders (SCI/D). We characterize SCI/D provider perspectives of PHR portals, including perceived advantages and disadvantages of PHR portal use in SCI/D care...
March 21, 2017: Journal of Spinal Cord Medicine
https://www.readbyqxmd.com/read/28283129/education-mitigates-the-relationship-of-stress-and-mental-disorders-among-rural-indian-women
#9
Nisha Fahey, Apurv Soni, Jeroan Allison, Jagdish Vankar, Anusha Prabhakaran, Tiffany A Moore Simas, Nancy Byatt, Ajay Phatak, Eileen O'Keefe, Somashekhar Nimbalkar
BACKGROUND: Common mental disorders (CMD) are a constellation of mental health conditions that include depression, anxiety, and other related nonpsychotic affective disorders. Qualitative explanatory models of mental health among reproductive-aged women in India reveal that distress is strongly associated with CMD. The relationship of perceived stress and CMD might be attenuated or exacerbated based on an individual's sociodemographic characteristics. OBJECTIVES: To screen for Common Mental Disorders (CMD) among reproductive-aged women from rural western India and explore how the relationship between perceived stress and CMD screening status varies by sociodemographic characteristics...
September 2016: Annals of Global Health
https://www.readbyqxmd.com/read/28273759/validation-study-for-the-brief-measure-of-quality-of-life-and-quality-of-care
#10
Megumi Shimizu, Daisuke Fujisawa, Miho Kurihara, Kazuki Sato, Tatsuya Morita, Masashi Kato, Mitsunori Miyashita
BACKGROUND: To monitor quality of life (QOL) for patients with cancer in a large population-based survey, we developed a short QOL and quality-of-care (QOC) questionnaire. To determine the validity and reliability of this new questionnaire for evaluating QOL in patients with cancer. METHODS: Outpatients and inpatients at National Cancer Center Hospital East were administered a questionnaire, including the following items-the short QOL and QOC questionnaire (physical distress, pain, emotional distress, walk burden, and need for help with self-care; perceived general health status; and satisfaction with medical care and treatment by doctor, communication with doctor, support by health-care staff other than doctor, care for physical symptoms such as pain, and psychological care), the Functional Assessment of Cancer Therapy-General (FACT-G), the Cancer Care Evaluation Scale (CCES) for patients, and demographic and medical data...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/28257110/cancer-communication-and-family-caregiver-quality-of-life
#11
Elaine Wittenberg, Tami Borneman, Marianna Koczywas, Catherine Del Ferraro, Betty Ferrell
Family caregivers have enormous communication responsibilities tied to caregiving, such as sharing the patient's medical history with providers, relaying diagnosis and prognosis to other family members, and making decisions about care with the patient. While caregiver stress and burden has been widely documented in the caregiving literature, little is known about how communication burden, real or perceived communication challenges, impacts caregiver quality of life. In family caregiving, the City of Hope (COH) Quality of Life model proposes that the caregiving experience is reciprocal to the patient experience, impacting physical, social, psychological, and spiritual quality of life...
March 2, 2017: Behavioral Sciences
https://www.readbyqxmd.com/read/28236688/interventions-and-working-relationships-of-voluntary-organisations-for-diabetes-self-management-a-cross-national-study
#12
Mari Carmen Portillo, Anne Kennedy, Elka Todorova, Elena Regaira, Michel Wensing, Christina Foss, Christos Lionis, Ivaylo Vassilev, Valentin Goev, Anne Rogers
BACKGROUND: Diabetes has become a challenging health priority globally. Given the tensions of financially burdened health systems in Europe the mobilisation of community resources like voluntary organisations and community groups is seen as a health policy strategy to sustain the management of long-term conditions like diabetes. However, little is known about how this is happening in practice in Europe. OBJECTIVES: To explore diabetes self-management interventions undertaken or promoted by voluntary organisations and community groups in Europe; and describe the types of working relationships between these organisations, European health systems and users when implementing diabetes self-management programmes in different areas...
February 3, 2017: International Journal of Nursing Studies
https://www.readbyqxmd.com/read/28213659/profiles-of-mental-health-care-professionals-based-on-work-role-performance
#13
Marie-Pierre Markon, Jean-Marie Bamvita, François Chiocchio, Marie-Josée Fleury
The worldwide burden of mental disorders is considerable, and on the rise, putting pressure on health care systems. Current reforms aim to improve the efficiency of mental health care systems by increasing service integration in communities and strengthening primary mental health care. In this context, mental health care professionals (MHPs) are increasingly required to work on interdisciplinary teams in a variety of settings. Little is known, however, about the profiles of MHPs in relation to their perceived work role performance...
February 18, 2017: Psychiatric Quarterly
https://www.readbyqxmd.com/read/28185791/evolution-of-symptom-burden-of-advanced-lung-cancer-over-a-decade
#14
Mike R Sung, Milan V Patel, Sarvar Djalalov, Lisa W Le, Frances A Shepherd, Ronald L Burkes, Ronald Feld, Stephanie Lin, Roxana Tudor, Natasha B Leighl
INTRODUCTION: Lung cancer is associated with higher levels of symptom distress and unmet needs than other cancer types. We assessed changes in symptoms, function, understanding, and preferences of patients with advanced lung cancer over a 10-year period. MATERIALS AND METHODS: A 26-item self-administered questionnaire was used to assess symptom burden, functional impairment, knowledge of disease and treatment, and information preferences. The survey was administered to consecutive outpatients with advanced lung cancer first in 2002 and a second cohort in 2012...
January 5, 2017: Clinical Lung Cancer
https://www.readbyqxmd.com/read/28152864/use-of-an-automated-notification-tool-to-drive-real-time-patient-symptom-intervention
#15
Brandon Bosch, Diane Denny, Maurie Markman
160 Background: Cancer Treatment Centers of America, Inc. (CTCA) is a national network of hospitals that specialize in the treatment of patients fighting complex or advanced-stage cancer. The Symptom Inventory Tool (SIT) is an assessment tool that captures the patients' perceived symptom burden for real-time clinical intervention, from baseline and every 21 days thereafter. The SIT is comprised of questions utilizing the M.D. Anderson Symptom Inventory tool, a validated assessment instrument with questions added and a free text box by CTCA...
March 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28152730/addressing-patient-needs-through-compilation-of-self-reported-verbatim-comments
#16
Diane Denny, Sarah Hizon, Danielle Kendrick, Maurie Markman
111 Background: Cancer Treatment Centers of America, Inc. (CTCA) is a national network of five hospitals that specialize in the treatment of patients fighting complex or advanced-stage cancer. The Symptom Inventory Tool (SIT) is an assessment that captures the patients' perceived symptom burden, from baseline and every 21 days thereafter. The SIT is comprised of questions utilizing the M.D. Anderson Symptom Inventory tool, with eight questions and a free text box added by CTCA. Patient comments are provided in approximately 5% of all assessments (representing 3,700 comments) since initiation of the SIT...
March 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/27977877/effects-of-stress-appraisal-on-the-quality-of-life-of-adult-patients-with-multiple-myeloma-and-their-primary-family-caregivers-in-korea
#17
In Seo La, Eun Kyoung Yun
BACKGROUND: Modern treatment for multiple myeloma (MM) has improved disease control and prolonged survival; thus, maintenance of quality of life (QoL) is considered a great concern for MM patients and their caregivers. The purpose of this study was to identify dyadic associations between stress appraisal and the QoL of patients with MM and their caregivers in Korea. METHODS: A total of 102 MM patient-caregiver dyads participated in this study. They independently reported their stress appraisal and QoL...
December 14, 2016: Psycho-oncology
https://www.readbyqxmd.com/read/27896798/applicability-of-acceptance-and-commitment-therapy-based-mobile-app-in-depression-nursing
#18
Kirsikka Kaipainen, Pasi Välkkynen, Nina Kilkku
Due to the high burden of depression, new models and methods of mental healthcare need to be developed. Prior research has shown the potential benefits of using technology tools such as mobile apps as self-help or combined with psychological treatment. Therefore, professionals should acquaint themselves with evidence-based apps to be able to use them with clients and guide the clients in their use. The purpose of this study was to explore how an acceptance and commitment therapy-based mobile app was perceived as a self-management tool among nurses, and how it could be applied in the prevention and treatment of depression and other mental health issues...
November 28, 2016: Translational Behavioral Medicine
https://www.readbyqxmd.com/read/27732736/withdrawn-transcutaneous-electrical-stimulation-tes-for-treatment-of-constipation-in-children
#19
REVIEW
Ruey Terng Ng, Way Seah Lee, Hak Lee Ang, Kai Ming Teo, Yee Ian Yik, Nai Ming Lai
BACKGROUND: Childhood constipation is a common problem with substantial health, economic and emotional burdens. Existing therapeutic options, mainly pharmacological, are not consistently effective, and some are associated with adverse effects after prolonged use. Transcutaneous electrical stimulation (TES), a non-pharmacological approach, is postulated to facilitate bowel movement by modulating the nerves of the large bowel via the application of electrical current transmitted through the abdominal wall...
October 12, 2016: Cochrane Database of Systematic Reviews
https://www.readbyqxmd.com/read/27720024/changes-in-perceptions-and-motivators-that-influence-the-implementation-of-on-farm-salmonella-control-measures-by-pig-farmers-in-england
#20
Elizabeth Marier, Richard Piers Smith, Johanne Ellis-Iversen, Eamon Watson, Derek Armstrong, Henk Hogeveen, Alasdair J C Cook
This study presents British farmers' perception of, and barriers to, implementing Salmonella control on pig farms. Four farms that had implemented interventions and their 33 close contacts (known to the intervention farmers) took part in interviews before (phase 1) and after (phase 2) intervention trials to assess the difference in perception over time. Their results were compared against those from nine randomly selected control farms. The hypothesis was that farms implementing interventions whether or not successful, would influence their close contacts' opinion over time...
October 1, 2016: Preventive Veterinary Medicine
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