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Self-perceived burden to others

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https://www.readbyqxmd.com/read/28807140/acute-psychological-trauma-in-the-critically-ill-patient-and-family-perspectives
#1
Volha Dziadzko, Mikhail A Dziadzko, Margaret M Johnson, Ognjen Gajic, Lioudmila V Karnatovskaia
OBJECTIVE: Post-intensive care syndrome (PICS), which encompasses profound psychological morbidity, affects many survivors of critical illness. We hypothesize that acute psychological stress during the intensive care unit (ICU) confinement likely contributes to PICS. In order to develop strategies that mitigate PICS associated psychological morbidity, it is paramount to first characterize acute ICU psychological stress and begin to understand its causative and protective factors. METHODS: A structured interview study was administered to adult critical illness survivors who received ≥48h of mechanical ventilation in medical and surgical ICUs of a tertiary care center, and their families...
July 2017: General Hospital Psychiatry
https://www.readbyqxmd.com/read/28806845/-effectivity-of-inpatient-psychosomatic-treatment-results-of-a-naturalistic-two-year-survey-in-a-psychosomatic-service-at-a-general-hospital
#2
Juan Valdés-Stauber, Alexander Fuchs, Sören Reiner, Susanne Bachthaler
Background Hospital psychosomatic treatment matches care expectations of a modern society. Evidence of its effectiveness through investigation in different settings is of importance because of prominent role of psychotherapy in German Healthcare System. Objective First, to explore whether clinical as well as personal resources could improve significantly due to a hospital psychosomatic treatment. Second, to assess possible associations between outcome variables and other variables from the multidimensional profile of the sample...
August 14, 2017: Psychotherapie, Psychosomatik, Medizinische Psychologie
https://www.readbyqxmd.com/read/28804867/sources-of-distress-for-physicians-and-nurses-working-in-swiss-neonatal-intensive-care-units
#3
Sabine D Klein, Hans Ulrich Bucher, Manya J Hendriks, Ruth Baumann-Hölzle, Jürg C Streuli, Thomas M Berger, Jean-Claude Fauchère, On Behalf Of The Swiss Neonatal End-Of-Life Study Group
BACKGROUND: Medical personnel working in intensive care often face difficult ethical dilemmas. These may represent important sources of distress and may lead to a diminished self-perceived quality of care and eventually to burnout. AIMS OF THE STUDY: The aim of this study was to identify work-related sources of distress and to assess symptoms of burnout among physicians and nurses working in Swiss neonatal intensive care units (NICUs). METHODS: In summer 2015, we conducted an anonymous online survey comprising 140 questions about difficult ethical decisions concerning extremely preterm infants...
August 14, 2017: Swiss Medical Weekly
https://www.readbyqxmd.com/read/28800789/indicators-of-poorly-controlled-asthma-and-health-related-quality-of-life-among-school-age-children-in-the-united-states
#4
(no author information available yet)
BACKGROUND: Poorly controlled asthma has far-reaching effects on school-age children and their parents, but little is knownabout the national impact on health-related quality of life (HRQoL). OBJECTIVE: To examine HRQoL associated with asthma and indicators of poorly controlled asthma in the United States. METHODS: This was a cross-sectional analysis of HRQoL among school-age children (age range, 6-17 years) with asthma in the nationally representative 2007-2013 Medical Expenditure Panel Survey (MEPS)...
August 11, 2017: Allergy and Asthma Proceedings:
https://www.readbyqxmd.com/read/28791887/anxiety-sensitivity-moderates-the-painful-effects-of-feeling-burdensome-to-others
#5
Angie S LeRoy, Qian Lu, Michael J Zvolensky, Jeffrey Ramirez, Christopher P Fagundes
Perceived burdensomeness (PB), the perception of being a burden to others, is associated with pain and physical symptoms. Anxiety sensitivity (AS), the fear of arousal-related sensations, arising from beliefs that the sensations may have adverse personal consequences (physical, cognitive, and social), may increase risk for pain responding, particularly in anxiety-provoking (e.g. socially threatening) contexts. Accordingly, individuals high in AS may have a stronger pain response when experiencing PB than those low in AS...
August 9, 2017: Cognitive Behaviour Therapy
https://www.readbyqxmd.com/read/28754083/associations-between-ectodermal-dysplasia-psychological-distress-and-quality-of-life-in-a-group-of-adults-with-oligodontia
#6
Solfrid Sørgjerd Saltnes, Janicke Liaaen Jensen, Rønnaug Sæves, Hilde Nordgarden, Amy Østertun Geirdal
OBJECTIVE: The aim of this study was to assess demographics, self-reported signs of ectodermal dysplasia (problems with hair, nails, skin and sweat glands), present teeth, previous dental treatment, psychological distress and QoL in individuals with oligodontia, and to explore the associations between these factors. We also aimed to compare the level of psychological distress and QoL between the study group and normative samples. METHODS: Forty-seven individuals with oligodontia registered at a resource centre in Norway were included in the study...
July 28, 2017: Acta Odontologica Scandinavica
https://www.readbyqxmd.com/read/28740375/clinical-and-economic-burden-of-dyspnea-and-other-copd-symptoms-in-a-managed-care-setting
#7
Judith J Stephenson, Debra Wertz, Tao Gu, Jeetvan Patel, Anand A Dalal
PURPOSE: The degree to which symptoms such as dyspnea affect patients with COPD is individualized. To address the gap between clinical symptom measures and self-perceived disease burden, we investigated the symptom status of adult patients with COPD and followed with an administrative claims analysis of health care resource utilization and costs. METHODS: This was a hybrid US observational study consisting of a cross-sectional patient survey followed by a retrospective analysis of administrative claims data...
2017: International Journal of Chronic Obstructive Pulmonary Disease
https://www.readbyqxmd.com/read/28714044/care-burden-and-its-predictive-factors-in-parents-of-newly-diagnosed-children-with-acute-lymphoblastic-leukemia-in-academic-hospitals-in-china
#8
Jingting Wang, Nanping Shen, Xiaoyan Zhang, Min Shen, Anwei Xie, Doris Howell, Changrong Yuan
PURPOSE: Caring for children with acute lymphoblastic leukemia (ALL) is a distressing experience for parents without medical training. The experience can lead to parents' care burden. This study explored care burden among parents of children with ALL and its related factors. METHODS: A total of 130 parents were surveyed with the Zarit Burden Inventory (ZBI), Perceived Social Support Scale (PSSS), Zung's Self-rating Anxiety Scale (SAS), Zung's Self-rating Depression Scale (SDS), Medical Outcome Study Short Form 36 (SF-36), and a study specific demographic information questionnaire...
July 16, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/28711415/the-experience-of-facilitators-and-participants-of-long-term-condition-self-management-group-programmes-a-qualitative-synthesis
#9
REVIEW
Stephen Hughes, Sophie Lewis, Karen Willis, Anne Rogers, Sally Wyke, Lorraine Smith
OBJECTIVE: Our aim was to systematically review the qualitative literature about the experiences of both facilitators and participants in a range of group-based programmes to support the self-management of long-term conditions. METHODS: We searched 7 databases using the terms 'self-management', 'group' and 'qualitative'. Full text articles meeting the inclusion criteria were retrieved for review. A thematic synthesis approach was used to analyse the studies. RESULTS: 2126 articles were identified and 24 were included for review...
July 1, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28685317/colon-cancer-worry-in-appalachia
#10
Omar F Attarabeen, Usha Sambamoorthi, Kevin T Larkin, Kimberly M Kelly
Appalachia has a higher incidence of and mortality from colon cancer (CC) than other regions of the United States; thus, it is important to know the potential impact of elevated risk on cancer worry. Guided by the Self-regulation model, we investigated the association of demographic, cultural (e.g., fatalism, religious commitment), and psychological factors (e.g., perceived risk, general mood) with CC worry among a sample of Appalachian women. A mixed method design was utilized. Appalachian women completed surveys in the quantitative section (n = 134) and semi-structured interviews in the qualitative section (n = 24)...
July 6, 2017: Journal of Community Health
https://www.readbyqxmd.com/read/28680414/multiple-group-membership-and-well-being-is-there-always-strength-in-numbers
#11
Anders L Sønderlund, Thomas A Morton, Michelle K Ryan
A growing body of research points to the value of multiple group memberships for individual well-being. However, much of this work considers group memberships very broadly and in terms of number alone. We conducted two correlational studies exploring how the relationship between multiple group membership and well-being is shaped by (a) the complexity of those groups within the overall self-concept (i.e., social identity complexity: SIC), and (b) the perceived value and visibility of individual group memberships to others (i...
2017: Frontiers in Psychology
https://www.readbyqxmd.com/read/28670583/quality-of-life-among-family-caregivers-of-patients-on-hemodialysis-and-its-relevant-factors-a-systematic-review
#12
REVIEW
Seyedeh Azam Sajadi, Abbas Ebadi, Seyed Tayeb Moradian
BACKGROUND: Family caregivers are considered as hidden patients experiencing physical and mental disorders. This affects the quality of not only their lives but also the health care provided to patients.This study aimed to investigate the quality of life (QOL) and its related factors among the caregivers of patients undergoing hemodialysis. METHODS: This systematic review was conducted based on the eight-step guidelines presented by the York University. The databases relevant to the medical field including Nursing and Allied Health, Web of Science, Scopus, Pubmed, Embase, PsycINFO and Psychology Library were used...
July 2017: International Journal of Community Based Nursing and Midwifery
https://www.readbyqxmd.com/read/28664241/the-epidemiology-of-current-depression-in-macau-china-towards-a-plan-for-mental-health-action
#13
Brian J Hall, Agnes Iok Fong Lam, Tat Leong Wu, Wai-Kai Hou, Carl Latkin, Sandro Galea
PURPOSE: Macau is a Special Administrative Region in China that has experienced tremendous development in its gambling industry during its post-colonial years. To inform mental health planning, this study presents the first population estimates and correlates of the current depression in Macau. METHODS: A population-representative sample of 1068 Macau Chinese citizens aged 18 or above responded to a household telephone survey in January, 2015. The Patient Health Questionnaire-9 measured the current depression...
June 29, 2017: Social Psychiatry and Psychiatric Epidemiology
https://www.readbyqxmd.com/read/28642217/an-interactive-mobile-based-tool-for-personal-social-network-data-collection-and-visualization-among-a-geographically-isolated-and-socioeconomically-disadvantaged-population-early-stage-feasibility-study-with-qualitative-user-feedback
#14
Katherine S Eddens, Jesse M Fagan, Tom Collins
BACKGROUND: Personal social networks have a profound impact on our health, yet collecting personal network data for use in health communication, behavior change, or translation and dissemination interventions has proved challenging. Recent advances in social network data collection software have reduced the burden of network studies on researchers and respondents alike, yet little testing has occurred to discover whether these methods are: (1) acceptable to a variety of target populations, including those who may have limited experience with technology or limited literacy; and (2) practical in the field, specifically in areas that are geographically and technologically disconnected, such as rural Appalachian Kentucky...
June 22, 2017: JMIR Research Protocols
https://www.readbyqxmd.com/read/28618419/addictive-potential-of-internet-applications-and-differential-correlates-of-problematic-use-in-internet-gamers-versus-generalized-internet-users-in-a-representative-sample-of-adolescents
#15
Tabea Rosenkranz, Kai W Müller, Michael Dreier, Manfred E Beutel, Klaus Wölfling
AIMS: This paper examines the addictive potential of 8 different Internet applications, distinguishing male and female users. Moreover, differential correlates of problematic use are investigated in Internet gamers (IG) and generalized Internet users (GIU). METHOD: In a representative sample of 5,667 adolescents aged 12-19 years, use of Internet applications, problematic Internet use, psychopathologic symptoms (emotional problems, hyperactivity/inattention, and psychosomatic complaints), personality (conscientiousness and extraversion), psychosocial correlates (perceived stress and self-efficacy), and coping strategies were assessed...
2017: European Addiction Research
https://www.readbyqxmd.com/read/28521595/caregiving-and-perceived-generativity-a-positive-and-protective-aspect-of-providing-care
#16
Molli R Grossman, Tara L Gruenewald
OBJECTIVES: Although a sizable body of research supports negative psychological consequences of caregiving, less is known about potential psychological benefits. This study aimed to examine whether caregiving was associated with enhanced generativity, or feeling like one makes important contributions to others. An additional aim was to examine the buffering potential of perceived generativity on adverse health outcomes associated with caregiving. METHODS: Analyses utilized a subsample of participants (n = 3,815, ages 30-84 years) from the second wave of the National Survey of Midlife Development in the United States (MIDUS)...
April 18, 2017: Clinical Gerontologist
https://www.readbyqxmd.com/read/28515801/effectiveness-and-usability-of-a-web-based-mindfulness-intervention-for-families-living-with-mental-illness
#17
Sigrid Stjernswärd, Lars Hansson
Families living with mental illness express needs of support and experiences of burden that may affect their own health detrimentally and hence also their ability to support the patient. Mindfulness-based interventions have shown beneficial health effects in both clinical and healthy populations. The aim of the current study was to explore the effectiveness and usability of a web-based mindfulness program for families living with mental illness, which was first tested in a feasibility study. The study was designed as a randomized controlled trial with an experiment group and a wait-list control group with assessments on primary and secondary outcomes at baseline, post-intervention, and at a 3-month follow-up...
2017: Mindfulness
https://www.readbyqxmd.com/read/28398843/treatment-satisfaction-and-adherence-to-oral-chemotherapy-in-patients-with-cancer
#18
Jamie M Jacobs, Nicole A Pensak, Nora J Sporn, James J MacDonald, Inga T Lennes, Steven A Safren, William F Pirl, Jennifer S Temel, Joseph A Greer
PURPOSE: Although patients with cancer overwhelming prefer oral to intravenous chemotherapy, little is known about adherence to oral agents. We aimed to identify the rates and correlates of adherence in patients with diverse malignancies. MATERIALS AND METHODS: Ninety patients with chronic myeloid leukemia or metastatic renal cell carcinoma, non-small-cell lung cancer, or breast cancer enrolled in this prospective, single-group, observational study of medication-taking behaviors...
May 2017: Journal of Oncology Practice
https://www.readbyqxmd.com/read/28387049/training-residents-in-depression-and-grief
#19
Angela Ghesquiere, Johanna Martinez, Cathy Jalali, Jo Anne Sirey, Susana Morales
BACKGROUND: About 20 per cent of Americans will experience depression in their lifetimes, and almost all will experience the death of a loved one. Both depression and grief have been associated with adverse health outcomes, including a decline in quality of life and excess mortality. Primary care physicians (PCPs) are the initial health care contact for most patients with depression and grief, yet often perceive that they lack the skills to adequately address these issues. Previous studies have investigated whether educational efforts improve PCP depression and grief knowledge or perceived skills, but few have focused on medical residents...
April 6, 2017: Clinical Teacher
https://www.readbyqxmd.com/read/28372581/perseverance-time-of-informal-caregivers-for-people-with-dementia-construct-validity-responsiveness-and-predictive-validity
#20
Anke Richters, René J F Melis, N Job van Exel, Marcel G M Olde Rikkert, Marjolein A van der Marck
BACKGROUND: Informal care is essential for many people with dementia (PwD), but it often results in a considerable burden for the caregiver. The perseverance time instrument integrates the aspect of perceived burden with the caregiver's capacity to cope with the burden, in contrast to most available instruments, which measure solely the burden of caregiving. The aim of this study was to extend insight into psychometric properties of the perseverance time instrument, specifically the construct validity, responsiveness, and predictive validity, within the population of informal caregivers for PwD...
April 4, 2017: Alzheimer's Research & Therapy
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