Richard J Wood, Alejandra Vilanova-Sanchez, Yousef El-Gohary, Hira Ahmad, Devin R Halleran, Carlos A Reck-Burneo, Rebecca Rentea, Yuri Sebastiao, Onnalisa Nash, Kristina Booth, Casey Trimble, Pooja Zahora, Cheryl Baxter, Sarah Driesbach, Ihab Halaweish, Alessandra C Gasior, Marc A Levitt
BACKGROUND: Many patients with anorectal malformations (ARM) need a bowel management program (BMP) to manage lifelong problems of fecal incontinence or severe constipation. We aimed to evaluate the sustainability of the results in such a program. METHODS: A single-institution retrospective review was performed in children with ARM who attended our BMP (2015-2019). Standardized definitions and validated tools were used to assess fecal continence (Baylor Continence Scale), constipation (Cleveland Constipation Scoring System), urinary symptoms (Vancouver Symptoms Score), and the Pediatric Quality of Life (PedsQL) and health-related quality of life (HRQOL) at the start of BMP and 1-year after completion of the program...
October 2021: Journal of Pediatric Surgery