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https://www.readbyqxmd.com/read/29776481/reflections-on-the-emotional-hazards-of-pediatric-oncology-nursing-four-decades-of-perspectives-and-potential
#1
REVIEW
Deborah A Boyle, Nancy Jo Bush
THEORETICAL PRINCIPLES: Pediatric oncology nurses are particularly vulnerable to emotional distress. Responsible for the oversight of a child's care, these nurses sustain close interactions with multiple patients and families over time, many of whom are coping with life-limiting diagnoses. The world of pediatric oncology nurses is one where tragedy is routinely witnessed thus demanding self-care and healing across a continuum. PHENOMENON ADDRESSED: The aim of this article is to outline and review the emotional sequelae of pediatric oncology nurses' work and to suggest interventions to support well-being in light of prolonged caregiving...
May 2018: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/29764176/scotland-s-public-health-palliative-care-alliance
#2
Mark A Hazelwood, Rebecca M Patterson
People's experiences of death, dying and bereavement are only partially determined by formal health and social care services. A broad-based alliance of organisations and individuals was established in Scotland in 2011 with the aim of influencing a wider range of social, cultural and other environmental factors which impact on people's experiences towards the end of life. Called Good Life, Good Death, Good Grief (GLGDGG) this alliance has grown and developed over the past 6 years, with a current diverse membership of over 1,100...
April 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29764173/developing-palliative-care-programs-in-indigenous-communities-using-participatory-action-research-a-canadian-application-of-the-public-health-approach-to-palliative-care
#3
Mary Lou Kelley, Holly Prince, Shevaun Nadin, Kevin Brazil, Maxine Crow, Gaye Hanson, Luanne Maki, Lori Monture, Christopher J Mushquash, Valerie O'Brien, Jeroline Smith
BACKGROUND: The Indigenous people of Canada include First Nations, Inuit and Metis. This research focused on four diverse First Nations communities located in Ontario and Manitoba. First Nations communities have well-established culturally-based social processes for supporting their community members experiencing dying, loss, grief and bereavement. However, communities do not have formalized local palliative care (PC) programs and have limited access to medical services, especially pain and symptom management...
April 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29763397/-memento-mori-and-photographic-perspective-of-roadside-trauma
#4
David B Nance, Sara Scarlet, Elizabeth B Dreesen
David Nance's photographs invite us to cross the liminal space between road and roadside and to consider the experience that trauma surgeons share with injured patients and the families of the injured and the dead. Just as trauma surgeons use the tools of science and surgery to make order out of the chaos of "the scene," so patients' families use art, found objects, and grief to transform anonymous roadsides into specific, personal remembrances. Bound together by the uncertainties of trauma, we can all stand at the side of the road bearing witness to both the inevitability and unpredictability of death...
May 1, 2018: AMA Journal of Ethics
https://www.readbyqxmd.com/read/29762315/effectiveness-of-psychosocial-interventions-on-the-psychological-health-and-emotional-well-being-of-family-carers-of-people-with-dementia-following-residential-care-placement-a-systematic-review
#5
Deborah Brooks, Elaine Fielding, Elizabeth Beattie, Helen Edwards, Sonia Hines
OBJECTIVE: To identify, appraise and synthesize existing evidence regarding the effectiveness of psychosocial interventions on the psychological health and emotional well-being of family carers of people with dementia who have moved into residential care. INTRODUCTION: Many carers experience stress, guilt, grief and depression following placement of a relative with dementia into residential care. Psychosocial interventions to support family carers may help to improve psychological health and emotional well-being; however, evidence for such interventions delivered to family carers following placement has yet to be appraised and synthesized...
May 2018: JBI Database of Systematic Reviews and Implementation Reports
https://www.readbyqxmd.com/read/29757122/dead-on-the-table-a-theoretical-expansion-of-the-vicarious-trauma-that-operating-room-clinicians-experience-when-their-patients-die
#6
Heather Hartley, David Kenneth Wright, Brandi Vanderspank-Wright, Pamela Grassau, Mary Ann Murray
The practice of operating room (OR) clinicians - nurses, surgeons, and anesthetists - is fundamentally about preserving life. Some patients, however, die in the OR. Clinicians are therefore vulnerable to moral and emotional trauma. In this paper, we discuss three forces that shape clinicians' moral and emotional experiences in OR care: biomedical values, normative death discourse, and socially (un)sanctioned grief. We suggest how each of these forces increases clinicians' vulnerability to feel traumatized when their patients die...
May 14, 2018: Death Studies
https://www.readbyqxmd.com/read/29757105/life-after-loss-parent-bereavement-and-coping-experiences-after-infant-death-in-the-neonatal-intensive-care-unit
#7
Erin R Currie, Becky J Christian, Pamela S Hinds, Samuel J Perna, Cheryl Robinson, Sara Day, Marie Bakitas, Karen Meneses
The death of an infant in the neonatal intensive care unit (NICU) is a profound and unexpected loss for parents that results in a complex process of coping with bereavement. A descriptive qualitative approach was used to explore parent bereavement and coping experiences after infant death in the NICU. The Dual Process Model of Coping with Bereavement was used as a conceptual framework to help understand how parents cope with grief after infant death. Living with infant death was a process that resulted in major life changes and a process of oscillating among various coping strategies...
May 14, 2018: Death Studies
https://www.readbyqxmd.com/read/29757102/how-religious-and-spiritual-beliefs-explain-prolonged-grief-disorder-symptoms
#8
Kim Christian, Samar M Aoun, Lauren J Breen
This study investigated the importance of religious and spiritual beliefs in daily life in explaining Prolonged Grief Disorder (PGD) symptomatology. Participants were 588 bereaved adults who completed a questionnaire. The importance of spiritual beliefs in daily life explained a small to medium, significant 3% of variance in PGD symptoms, but religious beliefs in daily life did not. Individuals who placed moderate importance on spiritual beliefs in their daily life may experience more intense grief.
May 14, 2018: Death Studies
https://www.readbyqxmd.com/read/29757098/a-phenomenological-study-of-siblings-bereaved-by-suicide-a-shared-experience
#9
Elizabeth Adams, Jacinta Hawgood, Anne Bundock, Kairi Kõlves
This interpretative phenomenological analysis explored the key issues in the grief experiences of seven young adults bereaved by the youth suicide of a sibling. We conducted semi-structured phone interviews from which we derived four themes describing the participants' experiences of: (a) the process of grief, (b) grief interactions (within families and outside), (c) continuing bonds, and (d) meaning making and growth through grief. The stories highlight the impact of family relationships on the grieving process in siblings and the need for support to help family members better communicate, understand, and respect each other's needs as they process their grief...
May 14, 2018: Death Studies
https://www.readbyqxmd.com/read/29757086/bereavement-hallucinations-after-the-loss-of-a-spouse-associations-with-psychopathological-measures-personality-and-coping-style
#10
Karina Elisabeth Jensen, Maja O'Connor, Helle Spindler, Andrew Moskowitz
Bereavement hallucinations (BHs) were assessed in 175 conjugally bereaved participants four years post loss, to explore whether BHs were: a) associated with psychological distress and b) predicted by sociodemographic variables, personality and/or coping style. Participants with BHs scored significantly higher than those without BHs on prolonged grief, post-traumatic stress, depression symptoms, and emotional loneliness. Hierarchical logistic regression analysis showed avoidant coping, openness to experience, and length of marriage to significantly predict BHs, while detached coping was negatively associated with BHs...
May 14, 2018: Death Studies
https://www.readbyqxmd.com/read/29756994/new-insights-into-complicated-grief-in-bereaved-family-members-approached-for-organ-donation
#11
James Downar
No abstract text is available yet for this article.
May 14, 2018: American Journal of Respiratory and Critical Care Medicine
https://www.readbyqxmd.com/read/29754684/-personal-care-and-support-after-death
#12
REVIEW
Idriss Farota-Romejko
As part of the palliative care provided to patients, personal care after death is a sign of the team's respect for the deceased person and marks the end of the care process. Beyond their professionalism, caregivers are confronted with their own humanity during this last act of care which marks the support for the deceased person and his or her family and friends in the first stages of their grief.
May 2018: Revue de L'infirmière
https://www.readbyqxmd.com/read/29751741/detecting-pre-death-grief-in-family-caregivers-of-persons-with-dementia-measurement-equivalence-of-the-mandarin-chinese-version-of-marwit-meuser-caregiver-grief-inventory
#13
Tau Ming Liew, Philip Yap, Nan Luo, Soo Boon Hia, Gerald Choon-Huat Koh, Bee Choo Tai
BACKGROUND: Pre-death grief (PDG) is a key challenge faced by caregivers of persons with dementia (PWD). Marwit-Meuser Caregiver Grief Inventory (MM-CGI) and its abbreviated MM-CGI-Short-Form (MM-CGI-SF) are among the few empirically-developed scales that detect PDG. However, they have not had a Mandarin-Chinese version even though Chinese-speaking populations have among the largest number of PWD. We produced a Mandarin-Chinese version of MM-CGI and evaluated whether it had equivalent scores and similar psychometric properties to the English version...
May 11, 2018: BMC Geriatrics
https://www.readbyqxmd.com/read/29747525/providing-care-for-a-person-with-late-stage-dementia-at-home-what-are-carers-experiences
#14
Laura Dempsey, Maura Dowling, Philip Larkin, Kathy Murphy
Background It is widely reported that carers who provide care for a family member with dementia endure physical and psychological burdens. Not only do they fulfil an important role for the person with dementia but also for the wider society. This study aims to explore the experiences of carers who provide end-of-life care for a person with late-stage dementia at home. Method Semi-structured interviews were conducted with 17 current carers and 6 past carers of a family member with late-stage dementia. Data was analysed using interpretative phenomenological analysis...
January 1, 2018: Dementia
https://www.readbyqxmd.com/read/29736124/burden-experience-of-caregivers-of-acute-lymphoblastic-leukemia-impact-of-coping-and-spirituality
#15
Usha Chivukula, Sirisha Kota, Durgesh Nandinee
Background: When a child is diagnosed with cancer the parents as caregivers experience severe anxiety, trauma, ambiguity, and grief. Caregivers of cancer patients thus deal with the management of their own psychological distress along with the child's illness. Aim: Coping plays a crucial role in improving the caregivers' physical and emotional well-being. Spirituality is an important means of consolation, strength, and emotional support during this phase. The present study aims to investigate the impact of coping and spirituality on caregiver burden...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29736112/still-hoping-for-a-miracle-parents-experiences-in-caring-for-their-child-with-cancer-under-palliative-care
#16
Mercy Nafratilova, Allenidekania Allenidekania, Dessie Wanda
Context: Parents' despair and feelings of grief, as well as communication and coordination that is less than adequate between the parents and the palliative team, can affect the provision of a qualified palliative care plan for children and their families. Aims: This study aims to explore the parents' experience in caring for children with cancer under palliative care condition. Setting and Design: The research applied descriptive qualitative phenomenology design...
April 2018: Indian Journal of Palliative Care
https://www.readbyqxmd.com/read/29733775/what-determines-low-satisfaction-with-life-in-individuals-with-spinal-cord-injury
#17
Sherri L LaVela, Bella Etingen, Scott Miskevics, Allen W Heinemann
OBJECTIVE: To examine variables associated with satisfaction with life (SWL) in individuals with a spinal cord injury (SCI). DESIGN: Cross-sectional, national survey to assess SWL, demographic and injury characteristics, health care utilization, chronic conditions (obesity, diabetes, heart problems, lung problems, hypertension, high cholesterol), symptoms (poor sleep, pain, depression), social support, grief/loss, and independence. SETTING/PARTICIPANTS: Community-dwelling Veterans with SCI...
May 7, 2018: Journal of Spinal Cord Medicine
https://www.readbyqxmd.com/read/29733763/invitation-to-grief-in-the-family-context
#18
Lauren J Breen, Regina Szylit, Kathleen R Gilbert, Catriona Macpherson, Irene Murphy, Janice Winchester Nadeau, Daniela Reis E Silva, Debra L Wiegand
Grief is a family affair, yet it is commonly viewed as an individual phenomenon. As an international, interdisciplinary team, we explore grief within a family context across theoretical, research, practice, and educational domains. Families are complex and working with this complexity is challenging but necessary for a holistic view of grief. We therefore encourage an increased focus on theorizing, researching, practicing, and educating using innovative approaches to address the complexities of grief within the context of families...
May 7, 2018: Death Studies
https://www.readbyqxmd.com/read/29723712/the-presence-of-your-absence-a-conditioning-theory-of-grief
#19
Yannick Boddez
I present a conditioning theory of grief. From conditioning research on appetitive disorders (e.g., addiction and binge eating), I borrow the concept cue-elicited craving. More precisely, the theory postulates that, throughout a life together, a variety of cues become associated with the presence of the loved one and that because of this these cues can trigger craving and (an action tendency for) searching for the deceased. Starting from this perspective, I additionally invoke extinction phenomena to explain the possible persistence of grief...
April 24, 2018: Behaviour Research and Therapy
https://www.readbyqxmd.com/read/29722596/cultural-health-literacy-the-experiences-of-m%C3%A4-ori-in-palliative-care
#20
Jacquie Kidd, Stella Black, Rawiri Blundell, Tamati Peni
Health literacy is a concept that is frequently applied to the patient's ability to find and comprehend health information. However, recent literature has included the skill of the health professional and the accessibility of health resources as important factors in the level of health literacy achieved by individuals and populations. In 2014 a qualitative study undertaken in Aotearoa New Zealand, investigated the context of health literacy for Māori in a palliative care setting (Māori are the indigenous people of Aotearoa New Zealand)...
May 1, 2018: Global Health Promotion
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