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https://www.readbyqxmd.com/read/28182288/the-place-of-crowdfunding-in-the-discovery-of-scientific-and-social-value-of-medical-research
#1
Lorenzo Del Savio
Crowdfunding is increasingly common in medical research. Some critics are concerned that by adopting crowdfunding, some researchers may sidestep the established systems of review of the social and scientific value of studies (e.g. impact on disease burden, issues of justice), especially mechanisms of expert-based review. I argue firstly that such concerns are based on a misleading picture of how research value is assessed and secondly that crowdfunding may turn out to be an useful complement of extant funding systems...
February 9, 2017: Bioethics
https://www.readbyqxmd.com/read/28137998/appealing-to-the-crowd-ethical-justifications-in-canadian-medical-crowdfunding-campaigns
#2
Jeremy Snyder, Valorie A Crooks, Annalise Mathers, Peter Chow-White
Medical crowdfunding is growing in terms of the number of active campaigns, amount of funding raised and public visibility. Little is known about how campaigners appeal to potential donors outside of anecdotal evidence collected in news reports on specific medical crowdfunding campaigns. This paper offers a first step towards addressing this knowledge gap by examining medical crowdfunding campaigns for Canadian recipients. Using 80 medical crowdfunding campaigns for Canadian recipients, we analyse how Canadians justify to others that they ought to contribute to funding their health needs...
January 30, 2017: Journal of Medical Ethics
https://www.readbyqxmd.com/read/28008025/expand-innovation-finance-via-crowdfunding
#3
Olav Sorenson, Valentina Assenova, Guan-Cheng Li, Jason Boada, Lee Fleming
No abstract text is available yet for this article.
December 23, 2016: Science
https://www.readbyqxmd.com/read/27941038/globalizing-and-crowdsourcing-biomedical-research
#4
REVIEW
Ebrahim Afshinnekoo, Sofia Ahsanuddin, Christopher E Mason
INTRODUCTION OR BACKGROUND: Crowdfunding and crowdsourcing of medical research has emerged as a novel paradigm for many biomedical disciplines to rapidly collect, process and interpret data from high-throughput and high-dimensional experiments. The novelty and promise of these approaches have led to fundamental discoveries about RNA mechanisms, microbiome dynamics and even patient interpretation of test results. However, these methods require robust training protocols, uniform sampling methods and experimental rigor in order to be useful for subsequent research efforts...
December 2016: British Medical Bulletin
https://www.readbyqxmd.com/read/27875643/crowdfunding-for-medical-care-ethical-issues-in-an-emerging-health-care-funding-practice
#5
Jeremy Snyder
Crowdfunding websites allow users to post a public appeal for funding for a range of activities, including adoption, travel, research, participation in sports, and many others. One common form of crowdfunding is for expenses related to medical care. Medical crowdfunding appeals serve as a means of addressing gaps in medical and employment insurance, both in countries without universal health insurance, like the United States, and countries with universal coverage limited to essential medical needs, like Canada...
November 2016: Hastings Center Report
https://www.readbyqxmd.com/read/27875641/saving-science-by-doing-less-of-it
#6
Gregory E Kaebnick
In the current issue of The New Atlantis, Daniel Sarewitz, professor of science and society at Arizona State University, argues that science is broken because it is managed and judged by scientists themselves, operating under Vannevar Bush's famous 1945 declaration that scientific progress depends on the "free play of free intellects … dictated by their curiosity." With that scientific agenda, society ends up with a lot of unnecessary, uncoordinated, and unproductive research. To save science, holds Sarewitz, we need to put it in the hands of people who are looking for practical solutions to specific problems...
November 2016: Hastings Center Report
https://www.readbyqxmd.com/read/27665200/fund-my-treatment-a-call-for-ethics-focused-social-science-research-into-the-use-of-crowdfunding-for-medical-care
#7
Jeremy Snyder, Annalise Mathers, Valorie A Crooks
Crowdfunding involves raising money from large groups of individuals, often through the use of websites dedicated to this purpose. Crowdfunding campaigns aimed at raising money to pay for expenses related to receiving medical treatment are receiving increased media attention and there is evidence that medical crowdfunding websites are heavily used. Nonetheless, virtually no scholarly attention has been paid to these medical crowdfunding campaigns and there is no systematic evidence about how widely they are used and for what reasons, and what effects they have on the provision of medical care and individuals' relationships to their health systems...
September 16, 2016: Social Science & Medicine
https://www.readbyqxmd.com/read/27664546/raising-awareness-of-the-importance-of-funding-for-tuberculosis-small-molecule-research
#8
Giovanna Riccardi, Iain G Old, Sean Ekins
Tuberculosis (TB) drug discovery research is hampered by several factors, but as in many research areas, the available funding is insufficient to support the needs of research and development. Recent years have seen various large collaborative efforts involving public-private partnerships, mimicking the situation during the golden age of antibiotic drug discovery during the 1950s and 1960s. The large-scale collaborative efforts funded by the European Union (EU) are now subject to diminishing financial support...
September 21, 2016: Drug Discovery Today
https://www.readbyqxmd.com/read/27647666/selling-science-2-0-what-scientific-projects-receive-crowdfunding-online
#9
Mike S Schäfer, Julia Metag, Jessica Feustle, Livia Herzog
Crowdfunding has emerged as an additional source for financing research in recent years. The study at hand identifies and tests explanatory factors influencing the success of scientific crowdfunding projects by drawing on news value theory, the "reputation signaling" approach, and economic theories of online payment. A standardized content analysis of 371 projects on English- and German-language platforms reveals that each theory provides factors influencing crowdfunding success. It shows that projects presented on science-only crowdfunding platforms have a higher success rate...
September 19, 2016: Public Understanding of Science
https://www.readbyqxmd.com/read/27422268/what-will-the-crowd-fund-preferences-of-prospective-donors-for-drug-development-fundraising-campaigns
#10
Nick Dragojlovic, Larry D Lynd
Biomedical researchers are increasingly turning to project-based online fundraising (i.e., crowdfunding) as a complementary source of research funding. To help inform the fundraising strategies adopted by researchers who take this approach, we conducted an online survey of prospective donors in North America. Respondents indicated not only an overwhelming preference for donating to projects conducted by nonprofit research organizations, but also an openness to donating to companies that have a 'for-benefit' corporate structure...
December 2016: Drug Discovery Today
https://www.readbyqxmd.com/read/27106892/navigating-the-murky-waters-of-conflict-of-interest-searching-for-the-middle-path
#11
Susan C Zonia
On August 23, 2011, the U.S. Department of Health and Human Services issued the Final Rule on conflict of interest. The purpose of the rule was to provide a clear framework for federally funded studies to identify, reduce, avoid, and/or manage researchers' external commercial relationships that could appear to impact the design, conduct, or reporting of research. Since the issuance of the final rule, colleges and universities have been tasked with closely monitoring external commercial relations of faculty to ensure that potential biases in research are minimized...
February 2016: Journal of Empirical Research on Human Research Ethics: JERHRE
https://www.readbyqxmd.com/read/27077139/donor-retention-in-online-crowdfunding-communities-a-case-study-of-donorschoose-org
#12
Tim Althoff, Jure Leskovec
Online crowdfunding platforms like DonorsChoose.org and Kick-starter allow specific projects to get funded by targeted contributions from a large number of people. Critical for the success of crowdfunding communities is recruitment and continued engagement of donors. With donor attrition rates above 70%, a significant challenge for online crowdfunding platforms as well as traditional offline non-profit organizations is the problem of donor retention. We present a large-scale study of millions of donors and donations on DonorsChoose...
May 2015: Proceedings of the International World-Wide Web Conference
https://www.readbyqxmd.com/read/27055461/researchers-use-crowdfunding-site-to-raise-money-to-test-potential-paedophilia-treatment
#13
Nigel Hawkes
No abstract text is available yet for this article.
2016: BMJ: British Medical Journal
https://www.readbyqxmd.com/read/27047589/turning-participatory-microbiome-research-into-usable-data-lessons-from-the-american-gut-project
#14
Justine W Debelius, Yoshiki Vázquez-Baeza, Daniel McDonald, Zhenjiang Xu, Elaine Wolfe, Rob Knight
The role of the human microbiome is the subject of continued investigation resulting in increased understanding. However, current microbiome research has only scratched the surface of the variety of healthy microbiomes. Public participation in science through crowdsourcing and crowdfunding microbiome research provides a novel opportunity for both participants and investigators. However, turning participatory science into publishable data can be challenging. Clear communication with the participant base and among researchers can ameliorate some challenges...
March 2016: Journal of Microbiology & Biology Education: JMBE
https://www.readbyqxmd.com/read/27047586/crowdfunding-campaigns-help-researchers-launch-projects-and-generate-outreach
#15
Katherine Dahlhausen, Bethany L Krebs, Jason V Watters, Holly H Ganz
Organizers of participatory research (citizen science) projects can generate funds and outreach through crowdfunding. Here we provide insights from three successful science crowdfunding campaigns recently completed on Indiegogo, Experiment, and Kickstarter. Choosing a crowdfunding platform that fits the project is just the beginning; a successful campaign reflects its content, management, and marketing, and some researchers may need to acquire new skills. In addition, the growing trend of crowdfunding for science reinforces the importance of academic engagement with social media...
March 2016: Journal of Microbiology & Biology Education: JMBE
https://www.readbyqxmd.com/read/26886064/a-guide-to-scientific-crowdfunding
#16
Julien Vachelard, Thaise Gambarra-Soares, Gabriela Augustini, Pablo Riul, Vinicius Maracaja-Coutinho
Crowdfunding represents an attractive new option for funding research projects, especially for students and early-career scientists or in the absence of governmental aid in some countries. The number of successful science-related crowdfunding campaigns is growing, which demonstrates the public's willingness to support and participate in scientific projects. Putting together a crowdfunding campaign is not trivial, however, so here is a guide to help you make yours a success.
February 2016: PLoS Biology
https://www.readbyqxmd.com/read/26672542/clinical-trials-crowdfunded-trials-doubly-scrutinized
#17
LETTER
David Hawkes, Melanie Thomson
No abstract text is available yet for this article.
December 17, 2015: Nature
https://www.readbyqxmd.com/read/26661136/paying-for-forest-ecosystem-services-voluntary-versus-mandatory-payments
#18
Gabrielle E Roesch-McNally, Sergey S Rabotyagov
The emergence of new markets for forest ecosystem services can be a compelling opportunity for market diversification for private forest landowners, while increasing the provision of public goods from private lands. However, there is limited information available on the willingness-to-pay (WTP) for specific forest ecosystem services, particularly across different ecosystem market mechanisms. We utilize survey data from Oregon and Washington households to compare marginal WTP for forest ecosystem services and the total WTP for cost-effective bundles of forest ecosystem services obtained from a typical Pacific Northwest forest across two value elicitation formats representing two different ecosystem market mechanisms: an incentive-compatible choice experiment involving mandatory tax payments and a hypothetical private provision scenario modeled as eliciting contributions to the preferred forest management alternative via a provision point mechanism with a refund...
March 2016: Environmental Management
https://www.readbyqxmd.com/read/26607536/crowdfunding-not-fit-for-clinical-trials
#19
LETTER
Phaik Yeong Cheah
No abstract text is available yet for this article.
November 26, 2015: Nature
https://www.readbyqxmd.com/read/26604866/crowdfunding-for-personalized-medicine-research
#20
REVIEW
Danielle C Fumagalli, Arvin M Gouw
Given the current funding situation of the National Institutes of Health, getting funding for rare disease research is extremely difficult. In light of the enormous potential for research in the rare diseases and the scarcity of research funding, we provide a case study of a novel successful crowdfunding approach at a non-profit organization called Rare Genomics Institute. We partner with biotechnology companies willing to donate their products, such as mouse models, gene editing software, and sequencing services, for which researchers can apply...
December 2015: Yale Journal of Biology and Medicine
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