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https://www.readbyqxmd.com/read/29899281/integrative-approaches-in-pediatric-palliative-care
#1
Kate Shafto, Suzanne Gouda, Kris Catrine, Melanie L Brown
Pediatric palliative care is a field which focuses on caring for and treating the symptoms and distress typically associated with life-limiting illness. Integrative medicine is supported by evidence and aims to heal the whole person, including all aspects of one’s lifestyle. Therapies offered by integrative medicine often empower patients and families, allowing for a sense of control. This review addresses the merging of integrative medicine philosophy and modalities with the care given to children with life-limiting illness...
June 13, 2018: Children
https://www.readbyqxmd.com/read/29893627/practices-attitudes-and-beliefs-of-palliative-care-physicians-regarding-the-use-of-methadone-and-other-long-acting-opioids-in-children-with-advanced-cancer
#2
Kevin Madden, Minjeong Park, Diane Liu, Eduardo Bruera
BACKGROUND: Palliative care physicians often assist with pain management in children with cancer, but little is known about how they use long-acting opioids for chronic pain with these patients. OBJECTIVE: To determine the practices, attitudes, and beliefs of palliative care physicians toward the use of long-acting opioids in children with advanced cancer. DESIGN: An electronic survey was sent to all members of The American Academy of Pediatrics (AAP) Section of Hospice and Palliative Medicine (SOHPM) and those identified as physicians who provide palliative care to children on the AAP SOHPM LISTSERV® ...
June 12, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29886041/outcomes-after-acute-symptomatic-seizures-in-children-admitted-to-a-neonatal-neurocritical-care-service
#3
Hannah C Glass, Adam L Numis, Dawn Gano, Varun Bali, Elizabeth E Rogers
BACKGROUND: Neonatal seizures due to acute brain injury are associated with high rates of death, disability, and epilepsy. Our objective was to examine incidence of and risk factors for epilepsy among survivors of acute symptomatic neonatal seizures who were cared for by a neonatal neurocritical care service. METHODS: Neonates with acute symptomatic seizures who were admitted to UCSF Benioff Children's Hospital Neuro-Intensive Care Nursery from July 2008 to June 2014 were considered for inclusion...
April 20, 2018: Pediatric Neurology
https://www.readbyqxmd.com/read/29876915/-psychological-and-spiritual-needs-of-children-with-severe-encephalopathy-and-their-families
#4
C Del Rincon-Fernandez
In palliative care it is necessary to evaluate and respond to the psychological and spiritual needs of the participants in order to achieve the maximum possible well-being for both the patient and his/her family. Coping with one's own death, the loss of a loved one or the loss of some significant aspect in a person's life is one of the most difficult challenges that human beings have to face. Death, as the maximum expression of loss, is experienced as a threat, as one of the most difficult events to cope with and with the greatest psychological impact...
June 5, 2018: Revista de Neurologia
https://www.readbyqxmd.com/read/29876913/-accompaniment-and-follow-up-of-children-with-severe-neurological-diseases-care-by-a-specialised-paediatric-palliative-care-team
#5
J A Porras-Cantarero, C Gutierrez-Rada, M Palomares-Delgado, L Navarro-Marchena, S Navarro-Villarrubi
Paediatric palliative care is that given to children suffering from a disease that limits or threatens their life. It therefore covers a wide range of pathologies and clinical situations, among which neurological pathology occupies an especially prevalent and complex position that requires suitably coordinated, structured and multidisciplinary care. The aim of this article is to describe the specificities presented by patients with neurological diseases out of all the children who could benefit from palliative care, as well as the characteristics of the Paediatric Palliative Care Unit of the Sant Joan de Deu University Hospital and the model of specialised care it offers...
June 5, 2018: Revista de Neurologia
https://www.readbyqxmd.com/read/29869799/mu-opioid-antagonists-for-opioid-induced-bowel-dysfunction-in-people-with-cancer-and-people-receiving-palliative-care
#6
REVIEW
Bridget Candy, Louise Jones, Victoria Vickerstaff, Philip J Larkin, Patrick Stone
BACKGROUND: Opioid-induced bowel dysfunction (OIBD) is characterised by constipation, incomplete evacuation, bloating, and gastric reflux. It is one of the major adverse events of treatment for pain in cancer and in palliative care, resulting in increased morbidity and reduced quality of life.This is an update of two Cochrane reviews. One was published in 2011, Issue 1 on laxatives and methylnaltrexone for the management of constipation in people receiving palliative care; this was updated in 2015 and excluded methylnaltrexone...
June 5, 2018: Cochrane Database of Systematic Reviews
https://www.readbyqxmd.com/read/29860857/palliative-care-services-in-pediatric-oncology
#7
Jessica L Spruit, Maryjo Prince-Paul
Pediatric cancer has experienced significant improvement in overall survival rates over the past several decades. Despite this progress, however, it remains the leading cause of death from disease beyond infancy in children. Among the children and adolescents that survive their cancer diagnosis, significant symptom burden and toxicities of therapy are often experienced. The evidence presented affords great insight in to the current empirical support for pediatric palliative care involvement, current utilization of palliative care services in the care of children with cancer and their families, and barriers that have been identified to date...
May 21, 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29857504/pediatric-patients-receiving-specialized-palliative-home-care-according-to-german-law-a-prospective-multicenter-cohort-study
#8
Silke Nolte-Buchholtz, Boris Zernikow, Julia Wager
In Germany, every child with a life-limiting condition suffering from symptoms that cannot sufficiently be controlled is eligible by law for specialized pediatric palliative home care (SPPHC). It is the aim of this study to describe the demographic and clinical characteristics of children referred to SPPHC and to compare patients with cancer and non-cancer conditions. The prospective multicenter study includes data on 75 children (median age 7.7 years, 50.7% male). The majority had non-cancer conditions (72%)...
May 31, 2018: Children
https://www.readbyqxmd.com/read/29845954/early-neurodevelopmental-outcomes-after-corrective-cardiac-surgery-in-infants
#9
Ritchie Sharon Solomon, Tanuja Sasi, Abish Sudhakar, Raman Krishna Kumar, Balu Vaidyanathan
OBJECTIVE: To assess neurodevelopmental status in Indian infants undergoing corrective surgery for congenital heart disease (CHD) and to analyze factors associated with neurodevelopmental delay. DESIGN: Cross-sectional study. SETTING: Tertiary-care pediatric cardiology facility. PARTICIPANTS: Consecutive infants undergoing corrective surgery for CHD (January 2013 -December 2014). Palliative procedures, and patients with known genetic syndromes were excluded...
May 15, 2018: Indian Pediatrics
https://www.readbyqxmd.com/read/29845907/quality-of-living-and-dying-pediatric-palliative-care-and-end-of-life-decisions-in-the-netherlands
#10
Marije Brouwer, Els Maeckelberghe, Willemien DE Weerd, Eduard Verhagen
In 2002, The Netherlands continued its leadership in developing rules and jurisdiction regarding euthanasia and end-of-life decisions by implementing the Euthanasia Act, which allows euthanasia for patients 12 years of age and older. Subsequently, in 2005, the regulation on active ending of life for newborns was issued. However, more and more physicians and parents have stated that the age gap between these two regulations-children between 1 and 12 years old-is undesirable. These children should have the same right to end their suffering as adults and newborn infants...
July 2018: Cambridge Quarterly of Healthcare Ethics: CQ: the International Journal of Healthcare Ethics Committees
https://www.readbyqxmd.com/read/29808788/researching-children-s-perspectives-in-pediatric-palliative-care-a-systematic-review-and-meta-summary-of-qualitative-research
#11
Luca Ghirotto, Elena Busani, Michela Salvati, Valeria Di Marco, Valeria Caldarelli, Giovanna Artioli
OBJECTIVE: Qualitative research is pivotal in gaining understanding of individuals' experiences in pediatric palliative care. In the past few decades, the number of qualitative studies on pediatric palliative care has increased slightly, as has interest in qualitative research in this area. Nonetheless, a limited number of such studies have included the first-person perspective of children. The aim of this article is to understand the contribution of previous qualitative research on pediatric palliative care that included the voices of children...
May 29, 2018: Palliative & Supportive Care
https://www.readbyqxmd.com/read/29802691/pediatric-palliative-care-in-iran-applying-regionalization-of-health-care-systems
#12
Leila Khanali Mojen, Maryam Rassouli, Peyman Eshghi, Kazem Zendedel, Ali Akbari Sari, Majideh Heravi Karimooi, Mamak Tahmasebi, Azam Shirin Abadi Farahani
Background: Establishing palliative care services is a priority in the health system of Iran. Considering the necessity of integrating these services into the health system, this study aimed to explore the stakeholders’ perceptions about the provision of a conceptual framework for palliative care services for children with cancer according to the health system in of Iran. Methods: The present qualitative study was conducted through in-depth semi-structured interviews held with 29 participants including palliative care specialists, policy-makers, health care providers, the parents of children with cancer selected through purposive sampling, between August 2016 and February 2017...
May 26, 2018: Asian Pacific Journal of Cancer Prevention: APJCP
https://www.readbyqxmd.com/read/29788956/building-bridges-paediatric-palliative-care-in-belgium-a-secondary-data-analysis-of-annual-paediatric-liaison-team-reports-from-2010-to-2014
#13
Marie Friedel, Bénédicte Brichard, Christine Fonteyne, Marleen Renard, Jean-Paul Misson, Els Vandecruys, Corinne Tonon, Françoise Verfaillie, Georgette Hendrijckx, Nathalie Andersson, Ilse Ruysseveldt, Katrien Moens, Jean-Marie Degryse, Isabelle Aujoulat
BACKGROUND: Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it's implementation is challenging. In Belgium, five paediatric liaison teams (PLTs) deliver palliative care. A Royal Decree issued in 2010 provides the legal framework that defines the PLTs' missions, as ensuring continuity of curative and palliative care between the hospital and home for children diagnosed with life-limiting conditions. This national study describes how PLTs ensure continuity of care by describing their activities and the characteristics of the children they cared for from 2010 to 2014...
May 22, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29783228/awareness-of-pediatric-palliative-care-among-health-care-workers
#14
Oryna Z Detsyk, Zhanna M Zolotarova, Iryna V Stovban, Roman M Melnyk
OBJECTIVE: Introduction: In order to develop such a relatively new type of medical care in Ukraine, as pediatric palliative care, first of all, qualified medical workers are needed. The aim: to assess the awareness of pediatric palliative care among healthcare workers providing medical services to children. PATIENTS AND METHODS: Materials and methods: It was carried out a survey at health facilities of Ivano-Frankivsk region, which provided medical care for children...
2018: Wiadomości Lekarskie: Organ Polskiego Towarzystwa Lekarskiego
https://www.readbyqxmd.com/read/29782212/national-impact-of-the-epec-pediatrics-enhanced-train-the-trainer-model-for-delivering-education-on-pediatric-palliative-care
#15
Kimberley Widger, Joanne Wolfe, Stefan Friedrichsdorf, Jason D Pole, Sarah Brennenstuhl, Stephen Liben, Mark Greenberg, Eric Bouffet, Harold Siden, Amna Husain, James A Whitlock, Myra Leyden, Adam Rapoport
BACKGROUND: Lack of pediatric palliative care (PPC) training impedes successful integration of PPC principles into pediatric oncology. OBJECTIVES: We examined the impact of an enhanced implementation of the Education in Palliative and End-of-Life Care for Pediatrics (EPEC® -Pediatrics) curriculum on the following: (1) knowledge dissemination; (2) health professionals' knowledge; (3) practice change; and (4) quality of PPC. DESIGN: An integrated knowledge translation approach was used with pre-/posttest evaluation of care quality...
May 21, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29779802/feasibility-of-initiating-early-enteral-nutrition-after-congenital-heart-surgery-in-neonates-and-infants
#16
Rajat Kalra, Rohit Vohra, Malti Negi, Reena Joshi, Neeraj Aggarwal, Mridul Aggarwal, Raja Joshi
OBJECTIVE: To assess the feasibility of initiating enteral nutrition support with first 24 h of congenital heart repairs in neonates and Infants and its impact on outcomes following surgery. DESIGN: It is a prospective randomized control single blind study. SETTING: It is a single centre prospective study carried out in a tertiary care centre at Pediatric cardiac intensive care unit. PATIENTS: All patients with the cyanotic congenital heart disease with increase pulmonary blood flow, weighing less than 5 kg and undergoing congenital heart repair during the study period were included in the study...
June 2018: Clinical Nutrition ESPEN
https://www.readbyqxmd.com/read/29762072/healthcare-users-experiences-of-communicating-with-healthcare-professionals-about-children-who-have-life-limiting-conditions-a-qualitative-systematic-review
#17
Stuart Ekberg, Natalie K Bradford, Anthony Herbert, Susan Danby, Patsy Yates
BACKGROUND: Globally, an estimated eight million children could benefit from palliative care each year. Effective communication about children with life-limiting conditions is well recognized as a critical component of high-quality pediatric palliative care. OBJECTIVE: To synthesize existing qualitative research exploring healthcare users' experiences of communicating with healthcare professionals about children with life-limiting conditions. DESIGN: The results of a systematic literature search were screened independently by two reviewers...
May 15, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29751362/low-prevalence-of-palliative-care-and-ethics-consultations-for-children-with-chronic-critical-illness
#18
Renee D Boss, Alison Falck, Naomi Goloff, Nancy Hutton, Alison Miles, Miriam Shapiro, Elliott M Weiss, Pamela K Donohue
Medical advances over the past two decades have increased the numbers of children who survive serious conditions. Mortality from premature birth and genetic syndromes has improved such that more clinicians offer, and more families request, interventions to prolong their child's life. While some interventions promise cure, others result in chronic disease states that require ongoing medical care. This article is protected by copyright. All rights reserved.
May 11, 2018: Acta Paediatrica
https://www.readbyqxmd.com/read/29742038/personalize-the-patient-initiative-a-demedicalized-medical-chart-cover-page-for-children-receiving-palliative-care
#19
Meaghann S Weaver, Abby Wolfe, Nikki Walker, Christopher Wichman
No abstract text is available yet for this article.
May 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29739375/how-do-professionals-assess-the-quality-of-life-of-children-with-advanced-cancer-receiving-palliative-care-and-what-are-their-recommendations-for-improvement
#20
Josianne Avoine-Blondin, Véronique Parent, Léonor Fasse, Clémentine Lopez, Nago Humbert, Michel Duval, Serge Sultan
BACKGROUND: It is known that information regarding the quality of life of a patient is central to pediatric palliative care. This information allows professionals to adapt the care and support provided to children and their families. Previous studies have documented the major areas to be investigated in order to assess the quality of life, although it is not yet known what operational criteria or piece of information should be used in the context of pediatric palliative care. The present study aims to: 1) Identify signs of quality of life and evaluation methods currently used by professionals to assess the quality of life of children with cancer receiving palliative care...
May 8, 2018: BMC Palliative Care
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