Priya Narula, Marco Gasparetto, Charlotte Wong, Jacob Branchflower, Shaji Sebastian, John McLaughlin, Arati Rao, Ruth Wakeman, Rachel Ainley, Philip J Smith, Jochen Kammermeier, Lisa Younge, Sophie Randall, Seema Bukhari, Jess Manson, Patricia Ellis, Naila Arebi
OBJECTIVES: Priority Setting Partnerships (PSP's) using the James Lind Alliance (JLA) methodology, bring together health professionals, patients and parents/carers to identify and prioritise unanswered questions that can be addressed by future research projects. To identify and prioritise the top 10 unanswered research priorities in digital technology for adolescents and young people (AYP) with inflammatory bowel disease (IBD). METHODS: A steering group (SG) consisting of AYP with IBD, their parents/carers, representatives from two charities (Crohn's & Colitis UK, Crohn's in Childhood Research Association), patient information forum and paediatric and adult and primary care healthcare professionals was established in 2021...
March 2024: Journal of Pediatric Gastroenterology and Nutrition