Nicola M Stock, Bruna Costa, Jade Parnell, Alexis L Johns, Canice E Crerand, Kristin Billaud Feragen, Laura P Stueckle, Angela Mills, Leanne Magee, Matthew Hotton, Melissa Tumblin, Amy Schefer, Amelia F Drake, Carrie L Heike
OBJECTIVE: Children with craniofacial microsomia (CFM) have complex healthcare needs, resulting in evaluations and interventions from infancy onward. Yet, little is understood about families' treatment experiences or the impact of CFM on caregivers' well-being. To address this gap, the NIH-funded 'Craniofacial microsomia: Accelerating Research and Education (CARE)' program sought to develop a conceptual thematic framework of caregiver adjustment to CFM. DESIGN: Caregivers reported on their child's medical and surgical history...
April 8, 2024: Cleft Palate-craniofacial Journal