keyword
https://read.qxmd.com/read/38657183/there-is-no-cure-for-caregiving-the-experience-of-women-caring-for-husbands-living-with-parkinson-s-disease
#1
JOURNAL ARTICLE
Dawn R White, Patrick A Palmieri
BACKGROUND: Parkinson's disease is a progressive neurodegenerative disorder. The majority of the nearly 9 million people living with Parkinson's disease are men. As such, caregiving is often assumed by wives as the disease progresses. However, there is little research about the lived experience of wives as they transition to caregivers. OBJECTIVE: To describe the lived experience of wife caregivers of male spouses living at home with Parkinson's disease. METHODS: A descriptive phenomenological study...
December 2024: International Journal of Qualitative Studies on Health and Well-being
https://read.qxmd.com/read/38656765/adolescent-cancer-survivors-and-their-parents-experiences-with-the-transition-off-treatment-to-survivorship-a-qualitative-interview-study
#2
JOURNAL ARTICLE
Elna Hamilton Larsen, Astrid Klopstad Wahl, Ellen Ruud, Anneli Viktoria Mellblom, Anette Ålykkja, Hanne Cathrine Lie
Background: Transitioning from active cancer treatment to survivorship represents a vulnerable yet underresearched phase for adolescents and their families. Knowledge of their support needs, the challenges they experience, and how they manage them are useful to inform tailored follow-up care. Thus, we aimed to explore their transition experiences. Method: We interviewed 15 adolescents (12-19 years) who had transitioned off of treatment 1 to 47 months prior at Oslo University Hospital's Department of Paediatric Haematology and Oncology and their biological parents ( n  = 16)...
April 24, 2024: J Pediatr Hematol Oncol Nurs
https://read.qxmd.com/read/38656685/circulating-tumor-dna-in-diffuse-large-b-cell-lymphoma-from-bench-to-bedside
#3
REVIEW
Hua-Jay J Cherng, Alex Herrera
Diffuse large B-cell lymphoma (DLBCL) is a curable disease with variable outcomes due to underlying heterogeneous clinical and molecular features-features that are insufficiently characterized with our current tools. Due to these limitations, treatment largely remains a "one-size-fits-all" approach. Circulating tumor DNA (ctDNA) is a novel biomarker in cancers that is increasingly utilized for risk stratification and response assessment. ctDNA is readily detectable from the plasma of patients with DLBCL but has not yet been incorporated into clinical care to guide treatment...
April 24, 2024: Current Treatment Options in Oncology
https://read.qxmd.com/read/38656333/adaptation-and-implementation-of-a-volunteer-delivered-telephone-based-social-support-program-how-r-u-during-the-covid-19-pandemic-a-pragmatic-study
#4
JOURNAL ARTICLE
Elizabeth Robinson, Marissa Dickins, Lina Lad, Deidre McGill, Sharryn Beard, Johanna Hayes, Anne Marie Fabri, Henni Wade, Claudia Meyer, Judy A Lowthian
BACKGROUND AND OBJECTIVES: Public health concerns surrounding social isolation and loneliness heightened during the COVID-19 pandemic, as infection prevention measures led to increased feelings of loneliness and depression.Our objective was to evaluate the implementation of the HOW-R-U? program, during the pandemic (March 2020-December 2021). HOW-R-U? is a weekly volunteer-delivered telephone program designed to facilitate social connection and ease feelings of social isolation, loneliness and depression in older people...
April 24, 2024: Gerontologist
https://read.qxmd.com/read/38656030/transition-from-an-in-person-to-a-telemedicine-diabetic-retinopathy-screening-program
#5
JOURNAL ARTICLE
Vanessa de O Almeida Barbieri, Luis Filipe Nakayama, Gabriel Almeida Barbieri, Suzane Eberhart Ribeiro da Silva, Daniel Cunha José Karmouche, Marcelle Naomi Oshiro Shinzato, Rodrigo Eiji Nakagawa, Caio Vinicius Regatieri, Fernando Korn Malerbi
PURPOSE: Timely screening and treatment are essential for preventing diabetic retinopathy blindness. Improving screening workflows can reduce waiting times for specialist evaluation and thus enhance patient outcomes. This study assessed different screening approaches in a Brazilian public healthcare setting. METHODS: This retrospective study evaluated a telemedicine-based diabetic retinopathy screening implemented during the COVID-19 pandemic and compared it with in-person strategies...
2024: Arquivos Brasileiros de Oftalmologia
https://read.qxmd.com/read/38655971/lesbian-and-bisexual-couples-experiencing-dual-motherhood-dis-encounters-in-the-provision-of-healthcare
#6
JOURNAL ARTICLE
Manoel Antônio Dos Santos, Amanda Brandane Minari, Érika Arantes de Oliveira-Cardoso
The bond with healthcare services is a crucial dimension in facilitating the maternal journey of lesbian and bisexual women couples. This study aimed to analyze the culturally constructed meanings regarding the bond with healthcare services and professionals by lesbian and bisexual women who experienced dual motherhood. It is a qualitative investigation grounded in interpretative anthropology. The research corpus was built based on in-depth interviews with 10 lesbian and bisexual women, aged 30 to 39 years...
April 2024: Ciência & Saúde Coletiva
https://read.qxmd.com/read/38655933/efficacy-of-a-hospital-discharge-transition-plan-in-the-care-competence-of-patients-with-chronic-conditions-and-their-family-caregivers-a-clinical-trial
#7
RANDOMIZED CONTROLLED TRIAL
Yuliana Valentina Rincón Estrada, Astrid Nathalia Páez Esteban, Maria Stella Campos de Aldana, Erika Yurley Durán Niño, Juan Sebastian Rincón Contreras, Maria Del Pilar Castillo Galvis, Valeria Arias Pinzón, Sergio Andrés García Arenas
OBJECTIVE: to assess the efficacy of a Hospital Discharge Transition Plan in the care competence and in adherence to the therapy of dyads comprised by patients with non-communicable chronic diseases and their caregivers. METHOD: a controlled and randomized clinical trial; the sample was comprised by 80 dyads of patients with chronic conditions and their caregivers, randomly allocated as follows: 40 to the control group and another 40 to the intervention group...
2024: Revista Latino-americana de Enfermagem
https://read.qxmd.com/read/38655436/periprocedural-management-of-patients-presenting-for-neurointerventional-procedures-using-flow-diverters-for-complex-intracranial-aneurysms-an-anesthetist-s-perspective-a-narrative-review
#8
REVIEW
Anjane Sree, Ajay Prasad Hrishi, Ranganatha Praveen, Manikandan Sethuraman
Complex intracranial aneurysms pose significant challenges in the realm of neurointervention, necessitating meticulous planning and execution. This article highlights the crucial roles played by anesthetists in these procedures, including patient assessment, anesthesia planning, and continuous monitoring and maintaining hemodynamic stability, which are pivotal in optimizing patient safety. Understanding these complex procedures and their complications will aid the anesthetist in delivering optimal care and in foreseeing and managing the potential associated complications...
2024: Brain Circulation
https://read.qxmd.com/read/38655311/bibliometric-analysis-of-the-pirfenidone-and-nintedanib-in-interstitial-lung-diseases
#9
JOURNAL ARTICLE
Jia Liu, Faping Wang, Yiwen Hong, Fengming Luo
BACKGROUND: At the beginning of 21st century, reclassification of fibrosing interstitial lung diseases (ILD) scored academic concerning, and then propelled development. Decade before, pifenidone and nintedanib were approved for idiopathic pulmonary fibrosis, but no more drugs are yet available. To evaluate the development traits of pirfenidone and nintedanib in fibrosing ILD, including the influential country, institution, authors, keywords, and the major problems or the priorities of the field emerge and evolve, bibliometric analysis was used to summarize and draw scientific knowledge maps...
April 30, 2024: Heliyon
https://read.qxmd.com/read/38655020/bridging-the-gap-opportunities-for-transitions-of-care-pharmacist-review-of-outpatient-parenteral-antimicrobial-therapy-prescriptions-prior-to-hospital-discharge
#10
JOURNAL ARTICLE
Sara Stashluk, Michelle Ramos, Tyla Carettini, James B Cutrell, Seana Mathew, Marguerite Monogue, Jennifer Nguyen, James M Sanders, Esther Y Golnabi
PURPOSE: Pharmacist-led initiatives providing optimization of medications during transitions of care (TOC) have shown to have a positive impact on prescribing practices and patient outcomes. This study aims to evaluate the role and impact of TOC pharmacist review of outpatient parenteral antimicrobial therapy (OPAT) prescriptions prior to hospital discharge. METHODS: In a retrospective chart review, patients with OPAT prescriptions between November 1, 2022 and January 31, 2023 were evaluated using prescription-specific and intervention-specific data points...
2024: Antimicrob Steward Healthc Epidemiol
https://read.qxmd.com/read/38654931/endocrine-auxological-and-metabolic-profile-in-children-and-adolescents-with-down-syndrome-from-infancy-to-the-first-steps-into-adult-life
#11
REVIEW
Silvia Molinari, Chiara Fossati, Maria Laura Nicolosi, Santo Di Marco, Martha Caterina Faraguna, Francesca Limido, Laura Ocello, Claudia Pellegrinelli, Martina Lattuada, Alessandra Gazzarri, Alessandra Lazzerotti, Debora Sala, Chiara Vimercati, Giulia Capitoli, Cecilia Daolio, Andrea Biondi, Adriana Balduzzi, Alessandro Cattoni
Down syndrome (DS) is the most common chromosomal disorder worldwide. Along with intellectual disability, endocrine disorders represent a remarkable share of the morbidities experienced by children, adolescents and young adults with DS. Auxological parameters are plotted on syndrome-specific charts, as growth rates are reduced compared to healthy age- and gender-matched peers. Furthermore, children with DS are at increased risk for thyroid dysfunctions, diabetes mellitus, osteopenia and obesity compared to general population...
2024: Frontiers in Endocrinology
https://read.qxmd.com/read/38654437/induced-aggregation-solvent-regulation-and-supracluster-assembly-of-aluminum-oxo-clusters
#12
JOURNAL ARTICLE
Wei-Hui Fang, Yu-Long Xie, San-Tai Wang, Ya-Jie Liu, Jian Zhang
ConspectusRecent years have witnessed the development of cluster materials as they are atomically precise molecules with uniform size and solution-processability, which are unattainable with traditional nanoparticles or framework materials. The motivation for studying Al(III) chemistry is not only to understand the aggregation process of aluminum in the environment but also to develop novel low-cost materials given its natural abundance. However, the Al-related clusters are underdeveloped compared to the coinage metals, lanthanides, and transition metals...
April 23, 2024: Accounts of Chemical Research
https://read.qxmd.com/read/38654329/improving-mental-health-in-chronic-care-in-general-practice-study-protocol-for-a-cluster-randomised-controlled-trial-of-the-healthy-mind-intervention
#13
JOURNAL ARTICLE
Anne Søjbjerg, Anna Mygind, Stinne Eika Rasmussen, Bo Christensen, Anette Fischer Pedersen, Helle Terkildsen Maindal, Viola Burau, Kaj Sparle Christensen
BACKGROUND: Mental health issues are common among patients with chronic physical conditions, affecting approximately one in five patients. Poor mental health is associated with worse disease outcomes and increased mortality. Problem-solving therapy (PST) may be a suitable treatment for targeting poor mental health in these patients. This study protocol describes a randomised controlled trial of the Healthy Mind intervention, a general practice-based intervention offering PST to patients with type 2 diabetes and/or ischaemic heart disease and poor mental well-being...
April 23, 2024: Trials
https://read.qxmd.com/read/38653614/evaluation-of-a-structured-review-process-for-emergency-department-return-visits-with-admission
#14
JOURNAL ARTICLE
Zoe Grabinski, Kar-Mun Woo, Olumide Akindutire, Cassidy Dahn, Lauren Nash, Inna Leybell, Yelan Wang, Danielle Bayer, Jordan Swartz, Catherine Jamin, Silas W Smith
BACKGROUND: Review of emergency department (ED) revisits with admission allows the identification of improvement opportunities. Applying a health equity lens to revisits may highlight potential disparities in care transitions. Universal definitions or practicable frameworks for these assessments are lacking. The authors aimed to develop a structured methodology for this quality assurance (QA) process, with a layered equity analysis. METHODS: The authors developed a classification instrument to identify potentially preventable 72-hour returns with admission (PPRA-72), accounting for directed, unrelated, unanticipated, or disease progression returns...
March 15, 2024: Joint Commission Journal on Quality and Patient Safety
https://read.qxmd.com/read/38653495/transitional-care-in-patients-with-hirschsprung-disease-those-left-behind
#15
JOURNAL ARTICLE
David S Thompson, Joseph R Davidson, Kathryne Ford, Stavros Loukogeorgakis, Simon Eaton, Simon Blackburn, Joseph Curry
BACKGROUND: The long term effects of Hirschsprung disease are clinically variable. Improved understanding of challenges patients may face as adults can help inform transitional care management. OBJECTIVE: To explore the outcomes and transitional care experiences in adult patients with Hirschsprung. DESIGN: Cohort study. SETTING: Single center. PATIENTS: All patients treated for Hirschsprung 1977-2001 (aged >18 at time of survey July 2018-2019)...
April 23, 2024: Diseases of the Colon and Rectum
https://read.qxmd.com/read/38653481/fluctuations-in-adult-attachment-among-experienced-mothers-during-re-transitioning-to-motherhood
#16
JOURNAL ARTICLE
Miri Kestler-Peleg
Transition to motherhood encompasses intensive caring for another and thus may activate adult attachment. The current study aimed to examine the fluctuations in adult attachment among the rarely examined population of experienced mothers during their re-transition to motherhood. A sample of 186 Israeli women was followed at the third trimester of pregnancy (T1), 2 months (T2) and 5 months (T3) after giving birth. Participants completed questionnaires regarding their background variables and adult attachment...
April 23, 2024: International Journal of Psychology: Journal International de Psychologie
https://read.qxmd.com/read/38653386/the-impact-of-single-use-cystoscopes-on-clinical-time-workflow-in-an-outpatient-setting
#17
JOURNAL ARTICLE
Robert Medairos, Francois Soto-Palou, David L Barquin, Ezra J Margolin, Rachel Locascio, Jodi Antonelli, Glenn Preminger, Michael Lipkin
OBJECTIVE: To evaluate the change in overall clinical encounter time and clinical capacity after transitioning to single-use cystoscopes (Ambu A/S, Ballerup, Denmark) in an outpatient urology setting. METHODS: A single-institution prospective study in an outpatient urology procedure clinic was performed. Discrete categories for each portion of nursing care responsibilities were defined, and time spent during each category was recorded. Two separate clinic days were observed and analyzed: one where the clinic exclusively used reusable cystoscopes and the other after the transition to single-use cystoscopes occurred...
April 21, 2024: Urology
https://read.qxmd.com/read/38653142/advancing-human-genotyping-the-infinium-hts-iselect-custom-microarray-panel-rita-development-study
#18
JOURNAL ARTICLE
Sharlize Pedroza Matute, Kiera Turvey, Sasitaran Iyavoo
Single Nucleotide Polymorphisms (SNPs), as the most prevalent type of variation in the human genome, play a pivotal role in influencing human traits. They are extensively utilized in diverse fields such as population genetics, forensic science, and genetic medicine. This study focuses on the 'Rita' BeadChip, a custom SNP microarray panel developed using Illumina Infinium HTS technology. Designed for high-throughput genotyping, the panel facilitates the analysis of over 4000 markers efficiently and cost-effectively...
April 17, 2024: Forensic Science International. Genetics
https://read.qxmd.com/read/38652541/implementation-of-virtual-academic-detailing-in-north-america-a-qualitative-study
#19
JOURNAL ARTICLE
Jonathan L Nazari, Victoria Kulbokas, Mary H Smart, Tara R Hensle, Todd A Lee, A Simon Pickard
RATIONALE: The shift toward virtual academic detailing (AD) was accelerated by the COVID-19 pandemic. AIMS AND OBJECTIVES: We aimed to examine the role of external, contextual, and intrinsic programme-specific factors in virtual engagement of healthcare providers (HCPs) and delivery of AD. METHODS: AD groups throughout North America were contacted to participate in semistructured interviews. An interview guide was constructed by adapting the Consolidated Framework for Implementation Research (CFIR)...
April 23, 2024: Journal of Evaluation in Clinical Practice
https://read.qxmd.com/read/38651679/reclaiming-self-balancing-on-a-tightrope-across-time-a-grounded-theory-of-transition-to-survivorship-in-older-adult-blood-cancer-survivors
#20
JOURNAL ARTICLE
Sylvia K Wood
AIM: To develop a theoretical understanding of the transition to survivorship in older adult blood cancer survivors. DESIGN: Qualitative research employing Classic Glaserian Grounded Theory methods. METHODS: Purposive and theoretical sampling recruited 17 participants via Leukaemia & Lymphoma Society© Community webpages (65-83 years) from across the US and Canada. Data from individual semi-structured interviews using HIPPA-compliant Zoom© were analysed from September 2020 to March 2021...
April 23, 2024: Journal of Advanced Nursing
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