Linda J Burns, Beatrice Abbetti, Stacie D Arnold, Jeffrey Bender, Susan Doughtie, Areej El-Jawahiri, Gloria Gee, Theresa Hahn, Mary M Horowitz, Shirley Johnson, Mark Juckett, Lakshmanan Krishnamurit, Susan Kullberg, C Fred LeMaistre, Alison Loren, Navneet S Majhail, Elizabeth A Murphy, Doug Rizzo, Alva Roche-Green, Wael Saber, Barry A Schatz, Kim Schmit-Pokorny, Bronwen E Shaw, Karen L Syrjala, D Kathryn Tierney, Christina Ullrich, David J Vanness, William A Wood, Ellen M Denzen
The goal of patient-centered outcomes research (PCOR) is to help patients and those who care for them make informed decisions about healthcare. However, the clinical research enterprise has not involved patients, caregivers, and other nonproviders routinely in the process of prioritizing, designing, and conducting research in hematopoietic cell transplantation (HCT). To address this need the National Marrow Donor Program/Be The Match engaged patients, caregivers, researchers, and other key stakeholders in a 2-year project with the goal of setting a PCOR agenda for the HCT community...
June 2018: Biology of Blood and Marrow Transplantation