keyword
https://read.qxmd.com/read/38655455/effectiveness-of-multimodal-participant-recruitment-in-spark-a-large-online-longitudinal-research-study-of-autism
#1
JOURNAL ARTICLE
Amy M Daniels, J Kiely Law, LeeAnne Green Snyder, Katharine Diehl, Robin P Goin-Kochel, Pamela Feliciano, Wendy K Chung
BACKGROUND: SPARK launched in 2016 to build a US cohort of autistic individuals and their family members. Enrollment includes online consent to share data and optional consent to provide saliva for genomic analysis. SPARK's recruitment strategies include social media and support of a nation-wide network of clinical sites. This study evaluates SPARK's recruitment strategies to enroll a core study population. METHODS: Individuals who joined between January 31, 2018, and May 29, 2019 were included in the analysis...
2024: Journal of Clinical and Translational Science
https://read.qxmd.com/read/38655223/care-needs-of-caregivers-of-the-elderly-with-early-stage-dementia
#2
JOURNAL ARTICLE
Hiromi Kimura, Kayoko Koga, Midori Nishio
OBJECTIVE: This study aimed to identify the care needs of family caregivers of elderly patients with early-stage dementia and examine support measures. MATERIALS AND METHODS: We conducted a self-administered questionnaire survey with 115 primary caregivers of outpatients who visited A City Community General Support Center or B University Hospital Department of Neurology for memory loss consultation. The questionnaire content included demographic characteristics, the care needs scale for caregivers of the elderly with early-stage dementia (Care Needs Scale), and the Japanese short version of the Zarit Burden Interview...
April 2024: Journal of Rural Medicine: JRM
https://read.qxmd.com/read/38649910/comparison-of-the-market-share-of-public-and-private-hospitals-under-different-medical-alliances-an-interrupted-time-series-analysis-in-rural-china
#3
JOURNAL ARTICLE
Yingbei Xiong, Kunhe Lin, Yifan Yao, Zhengdong Zhong, Li Xiang
BACKGROUND: China initiated the Medical Alliances (MAs) reform to enhance resource allocation efficiency and ensure equitable healthcare. In response to challenges posed by the predominance of public hospitals, the reform explores public-private partnerships within the MAs. Notably, private hospitals can now participate as either leading or member institutions. This study aims to evaluate the dynamic shifts in market share between public and private hospitals across diverse MAs models...
April 22, 2024: BMC Health Services Research
https://read.qxmd.com/read/38649167/leaving-emergency-departments-without-completing-treatment-among-first-nations-and-non-first-nations-patients-in-alberta-a-mixed-methods-study
#4
JOURNAL ARTICLE
Patrick McLane, Lea Bill, Bonnie Healy, Cheryl Barnabe, Tessy Big Plume, Anne Bird, Amy Colquhoun, Brian R Holroyd, Kris Janvier, Eunice Louis, Katherine Rittenbach, Kimberley D Curtin, Kayla M Fitzpatrick, Leslee Mackey, Davis MacLean, Rhonda J Rosychuk
BACKGROUND: Our previous research showed that, in Alberta, Canada, a higher proportion of visits to emergency departments and urgent care centres by First Nations patients ended in the patient leaving without being seen or against medical advice, compared with visits by non-First Nations patients. We sought to analyze whether these differences persisted after controlling for patient demographic and visit characteristics, and to explore reasons for leaving care. METHODS: We conducted a mixed-methods study, including a population-based retrospective cohort study for the period of April 2012 to March 2017 using provincial administrative data...
April 21, 2024: Canadian Medical Association Journal: CMAJ
https://read.qxmd.com/read/38648295/-lowbackpain-on-tiktok-a-new-frontier-for-orthopaedic-medical-education
#5
JOURNAL ARTICLE
Sazid Hasan, Conner D Ahlgren, Matthew Lipphardt, Alexandria Chrumka, Razeen Zaman, Ridwana Khan, Muhammad Waheed, Devan O Higginbotham, Ehab Saleh, Scott A McCarty
INTRODUCTION: Low back pain has become a substantial health problem in all developed countries. Many healthcare professionals and content creators have begun sharing their treatment methods and opinions through social media, especially the video-based platform TikTok. TikTok has been downloaded more than 2.6 billion times with over a billion daily users. Its influence on public health makes it imperative that information be accurate and safe. This study aims to analyze TikTok's most popular content on lower back pain and how orthopaedic surgeons contribute on this growing platform...
April 1, 2024: Journal of the American Academy of Orthopaedic Surgeons. Global Research & Reviews
https://read.qxmd.com/read/38643537/a-prospective-cohort-study-the-effects-of-preoperative-e-health-on-the-postoperative-course-of-tonsillectomy-patients
#6
JOURNAL ARTICLE
Oskari Hakanen, Paulus Torkki, Veera Luukkainen, Anniina Sakki, Anu Haaramo, Leena-Maija Aaltonen, Morag Tolvi
PURPOSE: At our clinic, a significant portion of tonsillectomy (TE) preoperative assessments are conducted remotely. The aim of our study was to examine the variation in TE complications, contact rates, and reasons for patient contact between those evaluated preoperatively at the outpatient clinic (OPC), or remotely through virtual visits (VV), or via a digital care pathway (DCP). This investigation is critical for optimizing patient flow through the volume-intensive process of TE. METHODS: We conducted a prospective cohort study involving 422 patients who underwent TE at Helsinki University Hospital ENT clinic to investigate their 30-day postoperative course...
April 16, 2024: American Journal of Otolaryngology
https://read.qxmd.com/read/38642364/incidence-and-outcomes-of-emergency-department-patients-requiring-emergency-general-surgery-a-5-year-retrospective-cohort-study
#7
JOURNAL ARTICLE
Christophe A Fehlmann, Monica Taljaard, Daniel I McIssac, Laurent Suppan, Elisabeth Andereggen, Arnaud Dupuis, Frederic Rouyer, Debra Eagles, Jeffrey J Perry
AIMS: Patients undergoing emergency general surgery are at high risk of complications and death. Our objectives were to estimate the incidence of emergency general surgery in a Swiss University Hospital, to describe the characteristics and outcomes of patients undergoing such procedures, and to study the impact of age on clinical outcomes. METHODS: This was a retrospective cohort study of adult patients who visited the emergency department (ED) of Geneva University Hospitals between January 2015 and December 2019...
April 1, 2024: Swiss Medical Weekly
https://read.qxmd.com/read/38640418/online-tools-to-decrease-out-of-pocket-prescription-costs-for-patients-a-practical-guide-for-urologists
#8
JOURNAL ARTICLE
Benjamin Pockros, Brian D Cortese, Katharine Michel, Taryn A Ellis, Ruchika Talwar
INTRODUCTION: Patients who seek urologic care have recently reported a high degree of financial toxicity from prescription medications, including management for nephrolithiasis, urinary incontinence, and urological oncology. Estimating out-of-pocket costs can be challenging for urologists in the US because of variable insurance coverage, local pharmacy distributions, and complicated prescription pricing schemes. This article discusses resources that urologists can adopt into their practice and share with patients to help lower out-of-pocket spending for prescription medications...
May 2024: Urology Practice
https://read.qxmd.com/read/38637952/the-getting-it-right-first-time-girft-programme-in-urology-rationale-and-methodology
#9
REVIEW
Joseph B John, William K Gray, Kieran O'Flynn, Tim W R Briggs, John S McGrath
The Getting It Right First Time (GIRFT) programme is a quality improvement initiative covering the National Health Service in England. The programme aims to standardise clinical practices and improve patient and system level outcomes by utilising data-driven insights and clinically-led recommendations. There are GIRFT workstreams for every medical and surgical specialty, including urology. Defining features of the GIRFT methodology are that it is clinically led by experienced clinicians, data-driven, and specialty specific...
April 18, 2024: BJU International
https://read.qxmd.com/read/38636509/genomic-answers-for-kids-toward-more-equitable-access-to-genomic-testing-for-rare-diseases-in-rural-populations
#10
REVIEW
Ana S A Cohen, Courtney D Berrios, Tricia N Zion, Cassandra M Barrett, Riley Moore, Emelia Boillat, Bradley Belden, Emily G Farrow, Isabelle Thiffault, Britton D Zuccarelli, Tomi Pastinen
Next-generation sequencing has revolutionized the speed of rare disease (RD) diagnoses. While clinical exome and genome sequencing represent an effective tool for many RD diagnoses, there is room to further improve the diagnostic odyssey of many RD patients. One recognizable intervention lies in increasing equitable access to genomic testing. Rural communities represent a significant portion of underserved and underrepresented individuals facing additional barriers to diagnosis and treatment. Primary care providers (PCPs) at local clinics, though sometimes suspicious of a potential benefit of genetic testing for their patients, have significant constraints in pursuing it themselves and rely on referrals to specialists...
April 10, 2024: American Journal of Human Genetics
https://read.qxmd.com/read/38624133/using-the-tasmanian-palliative-and-end-of-life-care-policy-framework-2022-to-assess-service-delivery-in-a-rural-general-practice
#11
JOURNAL ARTICLE
Andrew Ridge, Bastian Seidel
AIMS: This commentary uses the Tasmanian Palliative and End of Life Care Policy Framework (2022; the TPE Framework) to reflect upon palliative care services delivered by a rural Tasmanian general practice. CONTEXT: Rural populations have challenges in accessing many healthcare services, including palliative care. General practitioners (GPs) and other primary healthcare workers are frequently relied upon to deliver palliative care in rural Australia. Palliative care is often needed before the end-of-life phase and patients prefer this to be delivered in the community or at home...
April 16, 2024: Australian Journal of Rural Health
https://read.qxmd.com/read/38619154/complex-adhd-challenging-case-when-simple-becomes-complex-managing-clinician-bias-and-navigating-challenging-family-dynamics-in-a-6-year-old-girl-with-adhd-and-developmental-delays
#12
JOURNAL ARTICLE
Jennifer Cervantes, Jenna Wallace, Annie Kennelly Helms, Elizabeth A Diekroger, Jason Fogler
Layla is a 6.7-year-old girl diagnosed with attention-deficit/hyperactivity disorder (ADHD)-predominantly hyperactive/impulsive type-delayed adaptive skills, enuresis, unspecified malnutrition, and feeding difficulties. She presented to developmental-behavioral pediatrics (DBP) in January 2022 due to caregiver concerns for autism spectrum disorder (ASD).Layla lives in a polyamorous family with her biological mother and father, mother's partner whom Layla refers to as her uncle, and her 2 half-siblings. There is a maternal history of special education services, schizoaffective disorder, bipolar disorder, multiple sclerosis, Wolff-Parkinson-White syndrome, and ADHD...
March 2024: Journal of Developmental and Behavioral Pediatrics: JDBP
https://read.qxmd.com/read/38615168/clinical-characteristics-of-patients-with-migraine-accompanied-by-tremor
#13
JOURNAL ARTICLE
Zenghui Fu, Yan Jin, Zaihong Lin, Yan Jiang, Shu DU, Jing Liu, Guangping Zhang, Yang Liu, Huili Yu
OBJECTIVES: Migraine and tremor share some genetic mutation sites, and clinical studies have also confirmed their correlation. This study aims to explore the clinical and electrophysiological characteristics of migraine patients with concomitant tremor, and to analyze the relevant influential factors of tremor occurrence. METHODS: We retrospectively analyzed the clinical data of 217 migraine patients who visited the Third Affiliated Hospital of Qiqihar Medical University from June 2022 to October 2023...
January 28, 2024: Zhong Nan da Xue Xue Bao. Yi Xue Ban, Journal of Central South University. Medical Sciences
https://read.qxmd.com/read/38614667/nursing-roles-and-responsibilities-conducted-by-registered-nurse-bsn-student-dyads-across-ambulatory-clinical-sites-in-medically-underserved-communities
#14
JOURNAL ARTICLE
Belinda Aberle, Elizabeth McQuillen, Leon Hudson, Elizabeth Marentette, Keri Urquhart, Kristy Enoex, Ramona Benkert
BACKGROUND: Increasingly, registered nurses (RNs) are incorporated into ambulatory care teams. Yet, limited research exists on the roles of RNs across these settings. PURPOSE: The purpose of this study was to examine the roles performed by RNs (and their senior BSN students) in primary care and public health settings. METHODS: Working with nine RN preceptors, 15 students tracked all patient visits during a 150-h immersion experience using the Typhon™ clinical-tracking software...
2024: Journal of Professional Nursing: Official Journal of the American Association of Colleges of Nursing
https://read.qxmd.com/read/38600418/reflections-on-the-saudi-fda-regulatory-experience-with-smart-gxp-inspections
#15
JOURNAL ARTICLE
Ali M Alhomaidan, Nawaf G Al-Murikhi, Morae A Al-Qarni, Fahad A Al Fahaadi, Khalid S Al Otaibi, Radwan Hafiz, Ohoud A Almadani, Turki A Al Rafie, Mohammed A Al Ageel, Mohammed A Dahhas
Smart GxP inspections have gained increasing attention due to the COVID-19 pandemic, which, understandably, made it challenging for regulatory authorities to conduct on-site inspections. Smart GxP inspections are an oversight approach developed by the SFDA to enable remote compliance assessments of establishments. In this type of inspection, appropriate technical methods and tools (such as livestreaming video) are used without requiring the presence of inspectors onsite, ensuring efficient utilization of resources and the efficiency of inspection process...
April 10, 2024: Therapeutic Innovation & Regulatory Science
https://read.qxmd.com/read/38600058/telephone-advice-lines-for-adults-with-advanced-illness-and-their-family-carers-a-qualitative-analysis-and-novel-practical-framework
#16
JOURNAL ARTICLE
Sophie Pask, Allen Omoruyi, Ahmed Mohamed, Rachel L Chambers, Phillippa G McFarlane, Therese Johansson, Rashmi Kumar, Andy Woodhead, Ikumi Okamoto, Stephen Barclay, Irene J Higginson, Katherine E Sleeman, Fliss Em Murtagh
BACKGROUND: Telephone advice lines have been recommended internationally to support around-the-clock care for people living at home with advanced illness. While they undoubtedly support care, there is little evidence about what elements are needed for success. A national picture is needed to understand, improve and standardise service delivery/care. AIM: To explore telephone advice lines for people living at home with advanced illness across the four UK nations, and to construct a practical framework to improve services...
April 10, 2024: Palliative Medicine
https://read.qxmd.com/read/38598905/predictive-analytics-support-for-complex-chronic-medical-conditions-an-experience-based-co-design-study-of-physician-managers-needs-and-preferences
#17
JOURNAL ARTICLE
Muhammad Rafiq, Pamela Mazzocato, Christian Guttmann, Jonas Spaak, Carl Savage
PURPOSE: The literature suggests predictive technology applications in health care would benefit from physician and manager input during design and development. The aim was to explore the needs and preferences of physician managers regarding the role of predictive analytics in decision support for patients with the highly complex yet common combination of multiple chronic conditions of cardiovascular (Heart) and kidney (Nephrology) diseases and diabetes (HND). METHODS: This qualitative study employed an experience-based co-design model comprised of three data gathering phases: 1...
April 7, 2024: International Journal of Medical Informatics
https://read.qxmd.com/read/38598752/impact-of-billing-reforms-on-academic-hospitalist-physician-and-advanced-practice-provider-collaboration-a-qualitative-study
#18
JOURNAL ARTICLE
Sara Westergaard, Kasey Bowden, Gopi J Astik, Greg Bowling, Angela Keniston, Anne Linker, Matthew Sakumoto, Natalie Schwatka, Andrew Auerbach, Marisha Burden
BACKGROUND: Medicare previously announced plans for new billing reforms for inpatient visits that are shared by physicians and advanced practice providers (APPs) whereby the clinician spending the most time on the patient visit would bill for the visit. OBJECTIVE: To understand how inpatient hospital medicine teams utilize APPs in patient care and how the proposed billing policies might impact future APP utilization. DESIGN, SETTING AND PARTICIPANTS: We conducted focus groups with hospitalist physicians, APPs, and other leaders from 21 academic hospitals across the United States...
April 10, 2024: Journal of Hospital Medicine: An Official Publication of the Society of Hospital Medicine
https://read.qxmd.com/read/38583147/clinical-impact-of-routine-assessment-of-patient-reported-health-status-in-heart-failure-clinic
#19
JOURNAL ARTICLE
Alexander T Sandhu, Jamie Calma, Megan Skye, Neil M Kalwani, Jimmy Zheng, Jessica Schirmer, Natasha Din, Cati Brown Johnson, Anshal Gupta, Roy Lan, Brian Yu, John A Spertus, Paul A Heidenreich
BACKGROUND: The impact of routine clinic use of patient-reported outcome (PRO) measures on clinical outcomes in patients with heart failure (HF) has not been well-characterized. We tested if clinic-based use of a disease-specific PRO improves patient-reported quality of life at 1 year. METHODS: PRO-HF was an open-label, parallel, patient-level randomized clinical trial of routine PRO assessment or usual care at an academic HF clinic between August 30, 2021, and June 30, 2022, with 1 year of follow-up...
April 7, 2024: Circulation
https://read.qxmd.com/read/38576892/reducing-rigid-immobilization-for-toddler-s-fractures-a-quality-improvement-initiative
#20
JOURNAL ARTICLE
Stephanie N Chen, Jessica B Holstine, Julie Balch Samora
BACKGROUND: Toddler's fractures are one of the most common orthopedic injuries in young walking-age children. They are defined as nondisplaced spiral-type metaphyseal fractures involving only the tibia without any injury to the fibula and are inherently stable. We aimed to use quality improvement methodology to increase the proportion of patients with toddler's fractures treated without cast immobilization at a large tertiary referral pediatric orthopedic center from a baseline of 45...
2024: Pediatric Quality & Safety
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