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https://www.readbyqxmd.com/read/27775428/initial-clinical-guidelines-for-co-occurring-autism-spectrum-disorder-and-gender-dysphoria-or-incongruence-in-adolescents
#1
John F Strang, Haley Meagher, Lauren Kenworthy, Annelou L C de Vries, Edgardo Menvielle, Scott Leibowitz, Aron Janssen, Peggy Cohen-Kettenis, Daniel E Shumer, Laura Edwards-Leeper, Richard R Pleak, Norman Spack, Dan H Karasic, Herbert Schreier, Anouk Balleur, Amy Tishelman, Diane Ehrensaft, Leslie Rodnan, Emily S Kuschner, Francie Mandel, Antonia Caretto, Hal C Lewis, Laura G Anthony
Evidence indicates an overrepresentation of youth with co-occurring autism spectrum disorders (ASD) and gender dysphoria (GD). The clinical assessment and treatment of adolescents with this co-occurrence is often complex, related to the developmental aspects of ASD. There are no guidelines for clinical care when ASD and GD co-occur; however, there are clinicians and researchers experienced in this co-occurrence. This study develops initial clinical consensus guidelines for the assessment and care of adolescents with co-occurring ASD and GD, from the best clinical practices of current experts in the field...
October 24, 2016: Journal of Clinical Child and Adolescent Psychology
https://www.readbyqxmd.com/read/27753278/research-needs-and-priorities-for-transition-and-employment-in-autism-considerations-reflected-in-a-special-interest-group-at-the-international-meeting-for-autism-research
#2
David B Nicholas, Sandra Hodgetts, Lonnie Zwaigenbaum, Leann E Smith, Paul Shattuck, Jeremy R Parr, Olivia Conlon, Tamara Germani, Wendy Mitchell, Lori Sacrey, Margot E Stothers
Research related to supports for adults with autism spectrum disorder (ASD) is under-developed. As an example, system and service development to support successful transition to adulthood and meaningful vocation for adults has received relatively little research scrutiny until recently, with practitioners and program developers lacking evidence-informed approaches guiding service delivery. A Special Interest Group (SIG) was convened at the International Meeting for Autism Research in May 2014 and May 2015, with a focus on transitional and vocational issues in ASD...
October 17, 2016: Autism Research: Official Journal of the International Society for Autism Research
https://www.readbyqxmd.com/read/27739234/social-participation-and-its-relation-to-internalizing-symptoms-among-youth-with-autism-spectrum-disorder-as-they-transition-from-high-school
#3
Julie Lounds Taylor, Ryan E Adams, Somer L Bishop
In this study, we examined how unstructured (e.g., spending time with friends or co-workers) and structured (e.g., attending social events at a place of workshop, sports teams) social participation changed from before to after high school for youth with autism spectrum disorders (ASD), as well as the longitudinal and concurrent relations between social participation and internalizing symptoms. Participants included 36 families of youth with ASD who were all in their last year of high school at the first time point of data collection, and who were out of high school for an average of 9 months at the second time point...
October 14, 2016: Autism Research: Official Journal of the International Society for Autism Research
https://www.readbyqxmd.com/read/27629802/changing-asd-adhd-symptom-co-occurrence-across-the-lifespan-with-adolescence-as-crucial-time-window-illustrating-the-need-to-go-beyond-childhood
#4
REVIEW
Catharina A Hartman, Hilde M Geurts, Barbara Franke, Jan K Buitelaar, Nanda N J Rommelse
Literature on the co-occurrence between Autism Spectrum Disorder (ASD) and Attention-Deficit/Hyperactivity Disorder (ADHD) is strongly biased by a focus on childhood age. A review of the adolescent and adult literature was made on core and related symptoms of ADHD and ASD. In addition, an empirical approach was used including 17,173 ASD-ADHD symptom ratings from participants aged 0 to 84 years. Results indicate that ASD/ADHD constellations peak during adolescence and are lower in early childhood and old age...
September 11, 2016: Neuroscience and Biobehavioral Reviews
https://www.readbyqxmd.com/read/27554640/parent-perceptions-of-sexual-education-needs-for-their-children-with-autism
#5
Melissa Lehan Mackin, Nicole Loew, Alejandra Gonzalez, Hannah Tykol, Taylor Christensen
: Primary responsibility for sexual education for adolescents with autism spectrum disorder falls on parents who have reported a lack of professional and material support. The purpose of this study was to 1) describe parent perceptions of sexual education needs of their children aged 14-20 with an autism spectrum disorder diagnosis and 2) determine parent-preferred mechanisms of delivery for tailored educational intervention strategies. DESIGN AND METHODS: The study aims were accomplished by a qualitative research design using focus groups and telephone interviews assisted by a structured interview guide...
November 2016: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/27468315/cumulative-life-events-traumatic-experiences-and-psychiatric-symptomatology-in-transition-aged-youth-with-autism-spectrum-disorder
#6
Julie Lounds Taylor, Katherine O Gotham
BACKGROUND: Co-occurring mood and anxiety symptomatology is commonly observed among youth with autism spectrum disorders (ASD) during adolescence and adulthood. Yet, little is known about the factors that might predispose youth with ASD to mood and anxiety problems. In this study, we focus on the role of cumulative stressful life events and trauma in co-occurring psychopathology among youth with ASD who are preparing to exit high school. Specifically, we examined the distribution of cumulative life events and traumatic experiences and their relations with mood and anxiety symptomatology...
2016: Journal of Neurodevelopmental Disorders
https://www.readbyqxmd.com/read/27462160/autism-spectrum-disorder-in-adults-diagnosis-management-and-health-services-development
#7
REVIEW
Clodagh M Murphy, C Ellie Wilson, Dene M Robertson, Christine Ecker, Eileen M Daly, Neil Hammond, Anastasios Galanopoulos, Iulia Dud, Declan G Murphy, Grainne M McAlonan
Autism spectrum disorder (ASD) is a common neurodevelopmental disorder characterized by pervasive difficulties since early childhood across reciprocal social communication and restricted, repetitive interests and behaviors. Although early ASD research focused primarily on children, there is increasing recognition that ASD is a lifelong neurodevelopmental disorder. However, although health and education services for children with ASD are relatively well established, service provision for adults with ASD is in its infancy...
2016: Neuropsychiatric Disease and Treatment
https://www.readbyqxmd.com/read/27375502/transition-for-adolescents-with-autism-spectrum-disorder-south-african-parent-and-professional-perspectives
#8
Meagan Meiring, Joseph Seabi, Zaytoon Amod, Adri Vorster, Anwynne Kern
Adolescents with autism and their families experience a significant increase in the number of challenges encountered when leaving the structure of the formal education system. The purpose of this study was to gain an understanding of the factors parents and professionals regard as important in preparing for transition of adolescents with autism spectrum disorder (ASD) to adulthood, vocational, and residential arrangements. Semistructured interviews were conducted with 14 participants (i.e., 7 parents and 7 professionals) who were involved with adolescents with ASD in Johannesburg, South Africa...
2016: Frontiers in Psychiatry
https://www.readbyqxmd.com/read/27371138/sociomoral-reasoning-empathy-and-meeting-developmental-tasks-during-the-transition-to-adulthood-in-autism-spectrum-disorder
#9
Amie K Senland, Ann Higgins-D'Alessandro
This mixed methods study investigated sociomoral reasoning, empathy, and challenging and supportive factors during the transition to adulthood in emerging adults (18-27-years-old) with autism spectrum disorder (ASD) to better understand how these variables facilitated positive developmental outcomes. Same-aged ASD (n = 22) and typically developing (TD) (n = 22) groups completed quantitative and qualitative measures assessing these constructs. Compared to the TD group, the ASD group had significantly lower sociomoral reasoning and perspective-taking, significantly higher personal distress, but similar empathic concern...
September 2016: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/27355880/snapshots-of-growing-up-youth-with-autism-explore-adulthood-through-photovoice
#10
Nancy C Cheak-Zamora, Michelle Teti, Anna Maurer-Batjer, Donna Halloran
OBJECTIVE: Youth with autism spectrum disorder (ASD) experience significant challenges transitioning to adulthood. We utilized Photovoice to better understand youth's desires for and perspectives on becoming adults. METHOD: Youth with ASD (N = 11) photographed their life experiences, attended group and individual photo-sharing and discussion sessions, and exhibited their work publicly. Thematic analysis was used to identify salient recurring patterns in the data...
July 2016: Journal of Developmental and Behavioral Pediatrics: JDBP
https://www.readbyqxmd.com/read/27070418/becoming-a-mentor-the-impact-of-training-and-the-experience-of-mentoring-university-students-on-the-autism-spectrum
#11
Josette Hamilton, Gillian Stevens, Sonya Girdler
While it is widely recognised that the number of young adults diagnosed with Autism Spectrum Disoders (ASD) is increasing, there is currently limited understanding of effective support for the transition to adulthood. One approach gaining increasing attention in the university sector is specialised peer mentoring. The aim of this inductive study was to understand the impact of peer mentor training on seven student mentors working with university students with an ASD. Kirkpatrick's model framed a mixed methods evaluation of the mentors' training and description of their experience...
2016: PloS One
https://www.readbyqxmd.com/read/27064378/toward-developmental-connectomics-of-the-human-brain
#12
REVIEW
Miao Cao, Hao Huang, Yun Peng, Qi Dong, Yong He
Imaging connectomics based on graph theory has become an effective and unique methodological framework for studying structural and functional connectivity patterns of the developing brain. Normal brain development is characterized by continuous and significant network evolution throughout infancy, childhood, and adolescence, following specific maturational patterns. Disruption of these normal changes is associated with neuropsychiatric developmental disorders, such as autism spectrum disorders or attention-deficit hyperactivity disorder...
2016: Frontiers in Neuroanatomy
https://www.readbyqxmd.com/read/27061223/longitudinal-development-of-manual-motor-ability-in-autism-spectrum-disorder-from-childhood-to-mid-adulthood-relates-to-adaptive-daily-living-skills
#13
Brittany G Travers, Erin D Bigler, Tyler C Duffield, Molly D B Prigge, Alyson L Froehlich, Nicholas Lange, Andrew L Alexander, Janet E Lainhart
Many individuals with autism spectrum disorder (ASD) exhibit motor difficulties, but it is unknown whether manual motor skills improve, plateau, or decline in ASD in the transition from childhood into adulthood. Atypical development of manual motor skills could impact the ability to learn and perform daily activities across the life span. This study examined longitudinal grip strength and finger tapping development in individuals with ASD (n = 90) compared to individuals with typical development (n = 56), ages 5 to 40 years old...
April 7, 2016: Developmental Science
https://www.readbyqxmd.com/read/26808425/a-structured-assessment-of-motor-function-and-behavior-in-patients-with-kleefstra-syndrome
#14
Susanne Schmidt, Heidi E Nag, Bente S Hunn, Gunnar Houge, Lise B Hoxmark
The present study aimed to further our understanding of Kleefstra syndrome, especially regarding motor function and behavioral characteristics. In total, four males and four females between two and 27 years of age with a genetically confirmed diagnosis of Kleefstra syndrome and their parents participated in this study. Four patients had 9q34.3 deletions that caused Euchromatin Histone Methyl Transferase 1 (EHMT1) haplo-insufficiency, and four patients harbored EHMT1 mutations. The motor function was evaluated via systematic observation...
April 2016: European Journal of Medical Genetics
https://www.readbyqxmd.com/read/26762113/parent-expectations-mediate-outcomes-for-young-adults-with-autism-spectrum-disorder
#15
Anne V Kirby
Understanding the complex relationships among factors that may predict the outcomes of young adults with autism spectrum disorder (ASD) is of utmost importance given the increasing population undergoing and anticipating the transition to adulthood. With a sample of youth with ASD (n = 1170) from the National Longitudinal Transition Study-2, structural equation modeling techniques were used to test parent expectations as a mediator of young adult outcomes (i.e., employment, residential independence, social participation) in a longitudinal analysis...
May 2016: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/26423430/delivery-of-epilepsy-care-to-adults-with-intellectual-and-developmental-disabilities
#16
REVIEW
Orrin Devinsky, Miya Asato, Peter Camfield, Eric Geller, Andres M Kanner, Seth Keller, Michael Kerr, Eric H Kossoff, Heather Lau, Sanjeev Kothare, Baldev K Singh, Elaine Wirrell
Epilepsy is common in people with intellectual and developmental disabilities (IDD). In adulthood, patients with IDD and epilepsy (IDD-E) have neurologic, psychiatric, medical, and social challenges compounded by fragmented and limited care. With increasing neurologic disability, there is a higher frequency of epilepsy, especially symptomatic generalized and treatment-resistant epilepsies. The causes of IDD-E are increasingly recognized to be genetic based on chromosomal microarray analysis to identify copy number variants, gene panels (epilepsy, autism spectrum disorder, intellectual disability), and whole-exome sequencing...
October 27, 2015: Neurology
https://www.readbyqxmd.com/read/26322388/family-quality-of-life-during-the-transition-to-adulthood-for-individuals-with-intellectual-disability-and-or-autism-spectrum-disorders
#17
Thomas L Boehm, Erik W Carter, Julie Lounds Taylor
Recognizing the prominent role of parents in supporting their children with intellectual and developmental disabilities (IDD), improving quality of life for these families is an essential endeavor. While much attention has focused on the experiences of families with younger children with IDD, little is known about the family quality of life (FQOL) among families with transition-age youth and young adults. We examined the FQOL ratings of 425 parents with a child between 13-21 years of age with intellectual disability or autism to understand FQOL and the factors that may shape it...
September 2015: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/26039849/neurodevelopmental-behavioral-and-cognitive-disorders
#18
REVIEW
Shafali Spurling Jeste
PURPOSE OF REVIEW: Neurodevelopmental disorders are a group of heterogeneous conditions characterized by a delay or disturbance in the acquisition of skills in a variety of developmental domains, including motor, social, language, and cognition. This article reviews the most commonly diagnosed neurodevelopmental disorders, which include attention deficit hyperactivity disorder (ADHD), autism spectrum disorder, global developmental delay, and intellectual disability and also provides updates on diagnosis, neurobiology, treatment, and issues surrounding the transition to adulthood...
June 2015: Continuum: Lifelong Learning in Neurology
https://www.readbyqxmd.com/read/25989227/developmental-trajectories-in-22q11-2-deletion
#19
REVIEW
Ann Swillen, Donna McDonald-McGinn
Chromosome 22q11.2 deletion syndrome (22q11.2DS), a neurogenetic condition, is the most common microdeletion syndrome affecting 1 in 2,000-4,000 live births and involving haploinsufficiency of ∼50 genes resulting in a multisystem disorder. Phenotypic expression is highly variable and ranges from severe life-threatening conditions to only a few associated features. Most common medical problems include: congenital heart disease, in particular conotruncal anomalies; palatal abnormalities, most frequently velopharyngeal incompetence (VPI); immunodeficiency; hypocalcemia due to hypoparathyroidism; genitourinary anomalies; severe feeding/gastrointestinal differences; and subtle dysmorphic facial features...
June 2015: American Journal of Medical Genetics. Part C, Seminars in Medical Genetics
https://www.readbyqxmd.com/read/25957298/still-stressed-but-feeling-better-well-being-in-autism-spectrum-disorder-families-as-children-become-adults
#20
Pilar Pozo, Encarnación Sarriá
The transition to adulthood and adulthood itself have been identified as times of stress for parents of individuals with autism spectrum disorder. Longitudinal studies, however, show improvements in the well-being of mothers of adolescents and young adults with autism spectrum disorder. This article presents a cross-sectional study of 102 Spanish parents (51 mothers and 51 fathers) of 102 individuals with autism spectrum disorder. The aim was to examine parental well-being (evaluated based on stress, anxiety, depression and psychological well-being) in three groups of parents of adults, adolescents and young children with autism spectrum disorder...
October 2015: Autism: the International Journal of Research and Practice
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