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https://www.readbyqxmd.com/read/29721744/students-with-autism-spectrum-disorder-and-their-parents-in-the-transition-into-higher-education-impact-on-dynamics-in-the-parent-child-relationship
#1
Valérie Van Hees, Herbert Roeyers, Jan De Mol
This study examined how 34 senior students and first-year college students with autism spectrum disorder, their mothers (n = 34) and fathers (n = 26) navigate the higher education transition, and how this context impacts on dynamics in the parent-child relationships. Semi-structured interviews were analyzed based on grounded theory and dyadic analysis principles. Both parties were confronted with an abundance of challenges and experienced strong feelings of ambivalence, stress and anxiety. Differences in perspectives occurred regarding the construction of adulthood, the acquisition of autonomy, disclosure and subscribing to support services...
May 2, 2018: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/29627932/brief-report-service-use-and-associated-expenditures-among-adolescents-with-autism-spectrum-disorder-transitioning-to-adulthood
#2
Lindsay L Shea, Ming Xie, Paul Turcotte, Steven Marcus, Robert Field, Craig Newschaffer, David Mandell
This study compared Medicaid service utilization and expenditures among adolescents with autism spectrum disorder (ASD) to adolescents with intellectual disability (ID) as they aged into adulthood. Medicaid Analytic eXtract (MAX) data was used to identify a national cohort. Winsorization was utilized to control for expenditure outliers. A greater proportion of adolescents with ASD utilized most services. Decreases in the use of key services, including psychiatric outpatient services, were observed for both groups...
April 7, 2018: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/29619645/parent-expectations-and-preparatory-activities-as-adolescents-with-asd-transition-to-adulthood
#3
Laura G Holmes, Anne V Kirby, Donald S Strassberg, Michael B Himle
Community stakeholders, researchers, and providers are increasingly focused on individual, family, and systemic factors that contribute to positive outcomes for adults on the autism spectrum. Parent expectations for their youth's future are associated with adult outcomes (e.g., employment, school success, independence), yet the mechanism for this effect remains unclear. This study investigated how expectations were related to parent transition-related activities in a sample of 298 parents of adolescents on the autism spectrum (48% female adolescents), stratified by parent-reported IQ (average or above, borderline, or below 70)...
April 4, 2018: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/29610417/a-national-research-agenda-for-the-transition-of-youth-with-autism
#4
Paul T Shattuck, Lynette Lau, Kristy A Anderson, Alice A Kuo
In this article, we outline a national research agenda to improve the transition to adulthood among youth with autism. We synthesized the results from 5 interconnected sets of activities: (1) a scoping review of published autism research and research priority statements, (2) a series of key informant interviews with stakeholders, (3) a 2-day National Research Agenda meeting, (4) a modified Delphi survey of stakeholders, and (5) 2 formal reviews of published literature on autism and transition. We identified 2 overarching priorities to advance research about autism and transition: (1) increased focus on community- and systems-level factors that influence outcomes with population-level approaches to measuring outcomes and (2) greater involvement of people with autism in establishing research priorities, designing research studies, and producing study findings and recommendations...
April 2018: Pediatrics
https://www.readbyqxmd.com/read/29610413/transition-of-individuals-with-autism-to-adulthood-a-review-of-qualitative-studies
#5
Kristy A Anderson, Collette Sosnowy, Alice A Kuo, Paul T Shattuck
Many young adults with autism spectrum disorder experience poor transition outcomes in key areas, including postsecondary employment, higher education, health care, social connectedness, and independent living, yet we lack a clear understanding of the specific factors that impact these outcomes. We reviewed qualitative research in which the perspectives of youth and young adults with autism spectrum disorder, parents, services providers, and other stakeholders were gathered to identify barriers and facilitators to optimal outcomes...
April 2018: Pediatrics
https://www.readbyqxmd.com/read/29610412/social-ecological-correlates-in-adult-autism-outcome-studies-a-scoping-review
#6
Kristy A Anderson, Anne M Roux, Alice Kuo, Paul T Shattuck
The transition into adulthood is a critical period in the life course that shapes later outcomes. Many adults on the autism spectrum fare poorly across a wide range of quality of life indicators. Understanding the multilevel factors that influence transition outcomes is necessary to develop strategies that promote better outcomes. In this scoping review, we characterize the use of social-ecological factors in adult autism outcome studies, identify understudied areas of research, and provide recommendations for future research...
April 2018: Pediatrics
https://www.readbyqxmd.com/read/29610410/stakeholder-perspectives-on-research-and-practice-in-autism-and-transition
#7
Alice A Kuo, Tara Crapnell, Lynette Lau, Kristy A Anderson, Paul Shattuck
OBJECTIVES: Individuals with autism spectrum disorder (ASD) are reported to experience significant challenges during the transition to adulthood. Although recent evidence indicates that individuals with ASD experience poor outcomes in adulthood, little is understood about the contributing factors. In this qualitative study, we investigated the barriers to and needs in research and practice in the transition to adulthood among individuals with ASD. METHODS: Thirteen researchers, including service providers, family members, and an individual with ASD participated in 30- to 60-minute, semistructured, open-ended telephone interviews...
April 2018: Pediatrics
https://www.readbyqxmd.com/read/29610409/network-measures-of-collaborative-support-for-young-adults-with-autism
#8
Elizabeth McGhee Hassrick, Paul Shattuck, Kathleen Carley
OBJECTIVES: The treatment of autism requires complex, multimodal interventions, provided by parents and providers across settings. As young adults with autism spectrum disorder (ASD) transition into adulthood, new stakeholders are added to support planning for postsecondary employment. In this article, we investigate the use of dynamic social network measures that describe the resources of young adults throughout transition. METHODS: A longitudinal, dynamic social network survey (Social Dynamics of Intervention [SoDI]) was conceptualized, designed, and conducted as a feasibility test, measuring changes in collaboration among parents and school staff members who provided interventions for children with ASD in 2 urban public schools...
April 2018: Pediatrics
https://www.readbyqxmd.com/read/29579089/to-be-understood-transitioning-to-adult-life-for-people-with-autism-spectrum-disorder
#9
Craig Thompson, Sven Bölte, Torbjörn Falkmer, Sonya Girdler
INTRODUCTION: The purpose of this study was to explore the viewpoints of parents of young people with Autism Spectrum Disorder (ASD) in relation to their child's transition to adulthood. METHODS: Data were collected during four structured focus groups with 19 parents of young people with ASD with average to high intellectual capacities. Condensed meaning units were identified and checked during focus groups, and were subsequently linked to the International Classification of Functioning, Disability and Health (ICF)...
2018: PloS One
https://www.readbyqxmd.com/read/29439586/pulling-back-the-curtain-issues-in-conducting-an-intervention-study-with-transition-aged-youth-with-autism-spectrum-disorder-and-their-families
#10
Meghan M Burke, Sydney N Waitz-Kudla, Carol Rabideau, Julie Lounds Taylor, Robert M Hodapp
The transition from high school to adulthood is difficult for youth with autism spectrum disorder and their families. Recognizing these challenges, there is a small but emerging body of literature testing interventions to improve the transition process. But there are many challenges in performing intervention research that have yet to be fully addressed. We discuss issues that should be considered when conducting interventions with individuals with autism spectrum disorder to improve the transition to adulthood, drawing from our study of a parent training to facilitate access to adult services during the transition years...
February 1, 2018: Autism: the International Journal of Research and Practice
https://www.readbyqxmd.com/read/29020791/parents-and-young-adults-perspectives-on-transition-outcomes-for-young-adults-with-autism
#11
Collette Sosnowy, Chloe Silverman, Paul Shattuck
Existing research shows that young adults with autism spectrum disorder have poorer outcomes than their peers with other developmental disabilities in the key areas of independent living, postsecondary education, and employment. However, we understand little about how young adults with autism and their families understand and value outcomes and whether these indicators match their goals and aspirations. We interviewed parents (n = 21) and young adults with autism spectrum disorder (n = 20) about their experiences with the transition to adulthood to understand what they consider to be desirable outcomes and how they seek to achieve them...
January 2018: Autism: the International Journal of Research and Practice
https://www.readbyqxmd.com/read/28710532/the-gap-between-adaptive-behavior-and-intelligence-in-autism-persists-into-young-adulthood-and-is-linked-to-psychiatric-co-morbidities
#12
Catherine K Kraper, Lauren Kenworthy, Haroon Popal, Alex Martin, Gregory L Wallace
For individuals with autism spectrum disorder (ASD), long-term outcomes have been troubling, and intact IQ has not been shown to be protective. Nevertheless, relatively little research into adaptive functioning among adults with ASD has been completed to date. Therefore, both adaptive functioning and comorbid psychopathology were assessed among 52 adults with ASD without intellectual disability (ID). Adaptive functioning was found to substantially lag behind IQ, and socialization was a particular weakness. Comorbid psychopathology was significantly correlated with the size of IQ-adaptive functioning discrepancy...
October 2017: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/28599026/transition-issues-and-challenges-for-youth-with-autism-spectrum-disorders
#13
Fred R Volkmar, Scott L J Jackson, Logan Hart
Earlier detection and effective, evidence-based practices are gradually improving outcomes for people with autism spectrum disorder (ASD). Although some continue to need intensive support as adults, an increasing number are now going to college, becoming independent, and marrying. With the transition to adulthood, people with ASD will face a number of significant challenges. Health care providers who are knowledgeable about these challenges can help foster better outcomes and support those requiring higher levels of care...
June 1, 2017: Pediatric Annals
https://www.readbyqxmd.com/read/28506122/examining-transitions-from-youth-to-adult-services-for-young-persons-with-autism
#14
Mathew T Milen, David B Nicholas
Autism Spectrum Disorder (ASD) presents pervasive challenges for individuals throughout their lifetime. Although some financial, community, and individual supports are available for children, there are fewer resources available for adults with ASD, their families, and/or caregivers. It is important to understand the multidimensional shifts associated with the transition from adolescence to adulthood for individuals with ASD. To better understand the transitional process, a qualitative study comprised 11 semi-structured interviews with individuals with ASD and their families...
August 2017: Social Work in Health Care
https://www.readbyqxmd.com/read/28472510/exploration-and-comparison-of-adolescents-with-autism-spectrum-disorder-and-their-caregiver-s-perspectives-on-transitioning-to-adult-health-care-and-adulthood
#15
Nancy C Cheak-Zamora, Michelle Teti, Anna Maurer-Batjer, Erica Koegler
Background: Adolescents with autism spectrum disorder (ASD) experience challenges achieving independence. Few studies assess both adolescents and caregivers' needs as adolescents transition to adult health care. Objective/Methods: This study explored and compared the health-related independence experiences of 27 adolescents with ASD and their caregivers. Caregivers participated in focus groups and adolescents participated in semi-structured interviews. Results: Thematic analysis of dyads' responses highlighted three common themes: (a) efforts toward independence, (b) low self-efficacy for adolescents' independence, and (c) desire for independence...
October 1, 2017: Journal of Pediatric Psychology
https://www.readbyqxmd.com/read/28422625/characteristics-of-students-receiving-occupational-therapy-services-in-transition-and-factors-related-to-postsecondary-success
#16
Maria M Eismann, Rebecca Weisshaar, Cristina Capretta, Dennis S Cleary, Anne V Kirby, Andrew C Persch
OBJECTIVE: This study had a twofold purpose: (1) identify the characteristics of people with disabilities who received occupational therapy services during their transition to adulthood and (2) determine factors associated with their successful postsecondary transition. METHOD: This study was a secondary analysis of National Longitudinal Transition Study-2 data. Data analyses include descriptive statistics, binary logistic regression, and simple linear regression...
May 2017: American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association
https://www.readbyqxmd.com/read/28314459/autism-spectrum-disorders-challenges-and-opportunities-for-transition-to-adulthood
#17
REVIEW
Gerrit I van Schalkwyk, Fred R Volkmar
Improved outcomes for individuals with autism spectrum disorder (ASD) have opened a range of potential pathways during the transition to adulthood. These include attending college, entering the labor force, and achieving a degree of independent living. Less cognitively able individuals may be eligible for state benefits and may enter supported employment programs. Those attending college require careful support and planning. Practitioners need to be familiar with the unique needs of young adults with ASD. Further research should attempt to define the priorities of individuals and families with ASD making this transition and clarify the value of existing supports and interventions...
April 2017: Child and Adolescent Psychiatric Clinics of North America
https://www.readbyqxmd.com/read/28256379/outcome-of-childhood-onset-epilepsy-from-adolescence-to-adulthood-transition-issues
#18
REVIEW
R Nabbout, D M Andrade, N Bahi-Buisson, H Cross, I Desquerre, O Dulac, T Granata, E Hirsch, V Navarro, L Ouss, P L Pearl, D Schmidt, E Thiele, P R Camfield, C S Camfield
This is the second of three papers that summarize the second symposium on Transition in Epilepsies held in Paris in June 2016. This paper addresses the outcome for some particularly challenging childhood-onset epileptic disorders with the goal of recommending the best approach to transition. We have grouped these disorders in five categories with a few examples for each. The first group includes disorders presenting in childhood that may have late- or adult-onset epilepsy (metabolic and mitochondrial disorders)...
April 2017: Epilepsy & Behavior: E&B
https://www.readbyqxmd.com/read/28140737/the-caregivers-perspectives-of-burden-before-and-after-an-internet-based-intervention-of-young-persons-with-adhd-or-autism-spectrum-disorder
#19
Helena Söderqvist, Eklund Kajsa, Britt Hedman Ahlström, Elisabet Wentz
BACKGROUND: Everyday life in a family with a young person with attention-deficit/hyperactivity disorder (ADHD) and/or autism spectrum disorder (ASD), is multifaceted and may be a burden to the caregivers. The aim was to explore experiences of the caregiver situation, and how they were affected when the young persons received Internet-Based Support and Coaching (IBSC). METHOD: A multiple descriptive case design was used. Ten caregivers of 10 young persons with ADHD and/or ASD participated, and completed a questionnaire, measuring caregiver burden...
September 2017: Scandinavian Journal of Occupational Therapy
https://www.readbyqxmd.com/read/27775428/initial-clinical-guidelines-for-co-occurring-autism-spectrum-disorder-and-gender-dysphoria-or-incongruence-in-adolescents
#20
John F Strang, Haley Meagher, Lauren Kenworthy, Annelou L C de Vries, Edgardo Menvielle, Scott Leibowitz, Aron Janssen, Peggy Cohen-Kettenis, Daniel E Shumer, Laura Edwards-Leeper, Richard R Pleak, Norman Spack, Dan H Karasic, Herbert Schreier, Anouk Balleur, Amy Tishelman, Diane Ehrensaft, Leslie Rodnan, Emily S Kuschner, Francie Mandel, Antonia Caretto, Hal C Lewis, Laura G Anthony
Evidence indicates an overrepresentation of youth with co-occurring autism spectrum disorders (ASD) and gender dysphoria (GD). The clinical assessment and treatment of adolescents with this co-occurrence is often complex, related to the developmental aspects of ASD. There are no guidelines for clinical care when ASD and GD co-occur; however, there are clinicians and researchers experienced in this co-occurrence. This study develops initial clinical consensus guidelines for the assessment and care of adolescents with co-occurring ASD and GD, from the best clinical practices of current experts in the field...
January 2018: Journal of Clinical Child and Adolescent Psychology
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