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https://www.readbyqxmd.com/read/28557734/disparities-in-diagnosis-and-treatment-of-autism-in-latino-and-non-latino-white-families
#1
Katharine E Zuckerman, Olivia J Lindly, Nuri M Reyes, Alison E Chavez, Kristy Macias, Kathryn N Smith, Ann Reynolds
OBJECTIVES: To compare barriers to autism spectrum disorder (ASD) diagnosis and current ASD-related service use among non-Latino white (NLW) families and Latino families with English proficiency (L-EP) or limited English proficiency (L-LEP). METHODS: We conducted a mixed-mode survey of families of children with confirmed ASD seen at specialty clinics in 3 United States cities. Bivariate and multivariate analyses compared barriers to ASD diagnosis, current service use, and unmet therapy need among NLW, L-EP, and L-LEP families...
May 2017: Pediatrics
https://www.readbyqxmd.com/read/28395532/age-of-diagnosis-of-autism-spectrum-disorder-in-latino-children-the-case-of-venezuelan-children
#2
Cecilia Montiel-Nava, José A Chacín, Zoila González-Ávila
Latino children are diagnosed with autism spectrum disorder later in life, usually with more severe symptoms, and lower IQs, compared with non-Latino children. Possible reasons for such disparities could be due to lower levels of parent education, lower socioeconomic status, limited knowledge of parents about autism spectrum disorder, and diminished health-care knowledge. The goal of the study was to describe the age of parental concerns and at first autism spectrum disorder diagnosis, and factors associated with age at the first diagnosis in a sample of Venezuelan children...
April 1, 2017: Autism: the International Journal of Research and Practice
https://www.readbyqxmd.com/read/28176156/diagnostic-utility-of-the-adi-r-and-dsm-5-in-the-assessment-of-latino-children-and-adolescents
#3
Sandy Magaña, Sandra B Vanegas
Latino children in the US are systematically underdiagnosed with Autism Spectrum Disorder (ASD); therefore, it is important that recent changes to the diagnostic process do not exacerbate this pattern of under-identification. Previous research has found that the Autism Diagnostic Interview-Revised (ADI-R) algorithm, based on the Diagnostic and Statistical Manual of Mental Disorder, Fourth Edition, Text Revision (DSM-IV-TR), has limitations with Latino children of Spanish speaking parents. We evaluated whether an ADI-R algorithm based on the new DSM-5 classification for ASD would be more sensitive in identifying Latino children of Spanish speaking parents who have a clinical diagnosis of ASD...
May 2017: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/27956748/association-of-rare-missense-variants-in-the-second-intracellular-loop-of-nav1-7-sodium-channels-with-familial-autism
#4
M Rubinstein, A Patowary, I B Stanaway, E McCord, R R Nesbitt, M Archer, T Scheuer, D Nickerson, W H Raskind, E M Wijsman, R Bernier, W A Catterall, Z Brkanac
Autism spectrum disorder (ASD) is a complex neurodevelopmental disorder often accompanied by intellectual disability, language impairment and medical co-morbidities. The heritability of autism is high and multiple genes have been implicated as causal. However, most of these genes have been identified in de novo cases. To further the understanding of familial autism, we performed whole-exome sequencing on five families in which second- and third-degree relatives were affected. By focusing on novel and protein-altering variants, we identified a small set of candidate genes...
December 13, 2016: Molecular Psychiatry
https://www.readbyqxmd.com/read/27585604/latino-families-experiences-with-autism-services-disparities-capabilities-and-occupational-justice
#5
Amber M Angell, Gelya Frank, Olga Solomon
This article examines six cases of publicly funded Applied Behavior Analysis (ABA) therapy for Latino children with autism spectrum disorder (ASD) to contribute to thinking about occupational justice. In this ethnographic study of six Latino families of children with ASD in Los Angeles County, all families were offered ABA for their children, but five families experienced occupational challenges leading them to insist on modifications of ABA or to opt out of the service. We consider in each case (a) how the families' experiences can be understood occupationally, (b) how ABA affected the functionings and capabilities of the children and their families, and (c) how the parents' accounts relate to occupational justice...
September 1, 2016: OTJR: Occupation, Participation and Health
https://www.readbyqxmd.com/read/27313190/lessons-learned-engaging-culturally-diverse-families-in-neurodevelopmental-disorders-intervention-research
#6
Allison B Ratto, Bruno J Anthony, Cara Pugliese, Rocio Mendez, Jonathan Safer-Lichtenstein, Katerina M Dudley, Nicole F Kahn, Lauren Kenworthy, Matthew Biel, Jillian L Martucci, Laura G Anthony
Low-income and ethnic minority families continue to face critical disparities in access to diagnostic and treatment services for neurodevelopmental conditions, such as autism spectrum disorder and attention deficit hyperactivity disorder. Despite the growing cultural diversity of the United States, ethnic minority children and families continue to be substantially underrepresented across research on neurodevelopmental disorders, and there is a particularly concerning lack of research on the treatment of these conditions in low-income and ethnic minority communities...
July 2017: Autism: the International Journal of Research and Practice
https://www.readbyqxmd.com/read/27120986/functional-severity-and-latino-ethnicity-in-specialty-services-for-children-with-autism-spectrum-disorder
#7
S Magaña, S L Parish, E Son
BACKGROUND: Children with autism spectrum disorder (ASD) experience a range of severity levels characterised as levels of support they need for everyday functioning. By this definition, greater levels of severity should warrant greater use of services and supports among children with ASD. In previous studies, Latino children with ASD in the USA have been shown to have lower access to diagnosis and treatment services than White children. However, none have examined service use in relation to severity...
May 2016: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/26966285/race-disability-and-grade-social-relationships-in-children-with-autism-spectrum-disorders
#8
Gazi F Azad, Jill Locke, Connie Kasari, David S Mandell
Race is associated with social relationships among typically developing children; however, studies rarely examine the impact of race on social outcomes for children with autism spectrum disorder. This study examined how race (African American, Latino, Asian, or White) in conjunction with disability status (autism spectrum disorders or typically developing) and grade (grades K-2 or 3-5) affects friendships and social networks. The sample comprises 85 children with autism spectrum disorders and 85 typically developing controls matched on race, gender, age/grade, and classroom (wherever possible)...
January 2017: Autism: the International Journal of Research and Practice
https://www.readbyqxmd.com/read/26944592/brief-report-the-feasibility-and-effectiveness-of-an-advocacy-program-for-latino-families-of-children-with-autism-spectrum-disorder
#9
Meghan M Burke, Sandra Magaña, Marlene Garcia, Maria P Mello
Latino, Spanish-speaking families of children with autism spectrum disorder (ASD) face unique barriers in special education advocacy. Although advocacy programs are becoming more common in the United States, none of these programs target Latino families. This is a pilot study to examine the feasibility and effectiveness of an advocacy program for Latino families of children with ASD. Using a quasi-experimental design, 40 Latino family members of children with ASD participated in this study. Results demonstrated consistent attendance, low attrition, and high participant satisfaction...
July 2016: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/26557975/the-autism-inpatient-collection-methods-and-preliminary-sample-description
#10
Matthew Siegel, Kahsi A Smith, Carla Mazefsky, Robin L Gabriels, Craig Erickson, Desmond Kaplan, Eric M Morrow, Logan Wink, Susan L Santangelo
BACKGROUND: Individuals severely affected by autism spectrum disorder (ASD), including those with intellectual disability, expressive language impairment, and/or self-injurious behavior (SIB), are underrepresented in the ASD literature and extant collections of phenotypic and biological data. An understanding of ASD's etiology and subtypes can only be as complete as the studied samples are representative. METHODS: The Autism Inpatient Collection (AIC) is a multi-site study enrolling children and adolescents with ASD aged 4-20 years admitted to six specialized inpatient psychiatry units...
2015: Molecular Autism
https://www.readbyqxmd.com/read/26527551/obesity-and-autism
#11
Alison Presmanes Hill, Katharine E Zuckerman, Eric Fombonne
OBJECTIVE: Overweight and obesity are increasingly prevalent in the general pediatric population. Evidence suggests that children with autism spectrum disorders (ASDs) may be at elevated risk for unhealthy weight. We identify the prevalence of overweight and obesity in a multisite clinical sample of children with ASDs and explore concurrent associations with variables identified as risk factors for unhealthy weight in the general population. METHODS: Participants were 5053 children with confirmed diagnosis of ASD in the Autism Speaks Autism Treatment Network...
December 2015: Pediatrics
https://www.readbyqxmd.com/read/26505871/have-racial-and-ethnic-disparities-in-the-quality-of-health-care-relationships-changed-for-children-with-developmental-disabilities-and-asd
#12
Sandra Magaña, Susan L Parish, Esther Son
The aim of this study was to determine if racial and ethnic disparities in the quality of provider interaction have changed between 2006 and 2010 for children with developmental disabilities and autism spectrum disorders (ASD). Data from the 2005/2006 and 2009/2010 National Survey of Children With Special Health Care Needs were analyzed. Results show that racial and ethnic disparities in the quality of provider interactions were substantial in both 2005/2006 and 2009/2010. Black and Latino parents were significantly less likely than White parents to report that their provider spent enough time with their child and was sensitive to the family's values...
November 2015: American Journal on Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/26404703/brief-report-recruitment-and-retention-of-minority-children-for-autism-research
#13
Irina Zamora, Marian E Williams, Marcia Higareda, Barbara Y Wheeler, Pat Levitt
Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1-17, 2002; Kelly et al. in J Nat Med Assoc 97:777-783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. http://orwh.od.nih.gov/research/inclusion/reports.asp , 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD)...
February 2016: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/26356658/caregiving-experiences-of-latino-families-with-children-with-autism-spectrum-disorder
#14
Erna Imperatore Blanche, Jesus Diaz, Tanya Barretto, Sharon A Cermak
OBJECTIVE: Prior research has documented caregiving difficulties in families of children with autism spectrum disorder (ASD). However, Latino families may encounter unique challenges. The purpose of this study was to understand the caregiving experiences of Latino families with children with ASD, including daily activities, coping strategies, and service utilization. METHOD: Fifteen Latino parents of children with ASD were interviewed. The interviews were transcribed for analysis to identify themes of experiences unique to this population...
September 2015: American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association
https://www.readbyqxmd.com/read/26269291/parents-taking-action-a-psycho-educational-intervention-for-latino-parents-of-children-with-autism-spectrum-disorder
#15
Sandra Magaña, Kristina Lopez, Wendy Machalicek
The increased prevalence of autism spectrum disorder (ASD) among Latino children, later diagnosis, limited access to bicultural specialist support, and worsened health outcomes when compared to non-Latinos points to the need for a culturally relevant parent education intervention. This pilot study examined the feasibility, acceptability, and preliminary outcomes of a culturally derived intervention, Parents Taking Action, for 19 Spanish-speaking mothers of children with ASD. This study introduces the Promotora de Salud Model of intervention delivery to the autism field...
March 2017: Family Process
https://www.readbyqxmd.com/read/25776105/exploratory-evaluation-and-initial-adaptation-of-a-parent-training-program-for-hispanic-families-of-children-with-autism
#16
Jay Buzhardt, Lisa Rusinko, Linda Heitzman-Powell, Sylvia Trevino-Maack, Ashley McGrath
The present paper takes a translational approach in applying the themes of the current special section to prevention and intervention science in Latino families. The paper reviews the current literature on cultural processes in prevention and intervention research with Latino families. Overall, many prevention and intervention programs have either been developed specifically for Latino families or have been modified for Latino families with great attention paid to the socio-cultural needs of these families...
March 2016: Family Process
https://www.readbyqxmd.com/read/25186120/conceptualization-of-autism-in-the-latino-community-and-its-relationship-with-early-diagnosis
#17
Katharine E Zuckerman, Brianna Sinche, Martiza Cobian, Marlene Cervantes, Angie Mejia, Thomas Becker, Christina Nicolaidis
OBJECTIVE: Early identification of autism spectrum disorders (ASD) has been linked to improved long-term developmental outcomes. However, Latino children are diagnosed later than white non-Latino children. We aimed to qualitatively assess the understanding and conceptualization of ASD in the Latino community to understand potential community barriers to early diagnosis. METHODS: We conducted 5 focus groups and 4 qualitative interviews with 30 parents of typically developing Latino children in Oregon...
October 2014: Journal of Developmental and Behavioral Pediatrics: JDBP
https://www.readbyqxmd.com/read/24767783/latino-parents-perspectives-on-barriers-to-autism-diagnosis
#18
Katharine E Zuckerman, Brianna Sinche, Angie Mejia, Martiza Cobian, Thomas Becker, Christina Nicolaidis
OBJECTIVE: Latino children are diagnosed with autism spectrum disorders (ASDs) at older ages and at the point of more severe symptoms. We sought to qualitatively describe community, family, and health care system barriers to ASD diagnosis in Latino children. METHODS: Five focus groups and 4 qualitative interviews were conducted with 33 parents of Latino children previously diagnosed with an ASD. Participants described Latino community perceptions of autism and barriers they experienced during the diagnostic process...
May 2014: Academic Pediatrics
https://www.readbyqxmd.com/read/24550559/performance-of-the-modified-checklist-for-autism-in-toddlers-in-spanish-speaking-patients
#19
COMPARATIVE STUDY
Kelly S Kimple, Erica A Bartelt, Karen L Wysocki, Michael J Steiner
OBJECTIVE: To compare abnormal screening rates of 2 different Spanish versions of the Modified Checklist for Autism in Toddlers (M-CHAT) in US Spanish-speaking patients. METHOD: Quasi-experimental design was used with historical and English language controls. Abnormal screening rates were compared between Spain and Western-hemisphere Spanish versions, as well as to English controls during the same time periods using chi square analysis. RESULTS: M-CHAT questionnaires were scored from 589 subjects (English n = 415, Spanish n = 174)...
June 2014: Clinical Pediatrics
https://www.readbyqxmd.com/read/23958770/pediatrician-identification-of-latino-children-at-risk-for-autism-spectrum-disorder
#20
COMPARATIVE STUDY
Katharine E Zuckerman, Kimber Mattox, Karen Donelan, Oyundari Batbayar, Anita Baghaee, Christina Bethell
BACKGROUND AND OBJECTIVES: Latino-white disparities in age at autism spectrum disorder (ASD) diagnosis may be modified by primary care pediatrician (PCP) practices and beliefs. The objectives of this study were to assess ASD and developmental screening practices, attitudes toward ASD identification in Latino children, and barriers to ASD identification for Latino children, in a sample of 267 California PCPs. METHODS: In mail-based PCP survey, we assessed rates of bilingual general developmental and ASD screening, perceptions of parent ASD knowledge in Latino and white families, reports of difficulty assessing for ASDs in Latino and white children, and perceptions of barriers to early ASD identification for Latinos...
September 2013: Pediatrics
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