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https://www.readbyqxmd.com/read/27909792/exploring-the-rationale-experience-and-impact-of-using-cancer-information-and-support-cis-services-an-international-qualitative-study
#1
Anna Boltong, Martin Ledwick, Kevin Babb, Clare Sutton, Anna Ugalde
PURPOSE: The aim of this study was to develop an in-depth understanding of the rationale, experiences, evaluation and outcomes of using Cancer Information and Support (CIS) services in Australia, the UK and USA. METHODS: Semi-structured interviews were used to gather data between November 2015 and January 2016. Telephone interviews were recorded, de-identified, transcribed and thematically analysed. Ten users from each of three international CIS services (n = 30 in total) were recruited...
December 1, 2016: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/27895577/fus1-ko-mouse-as-a-model-of-oxidative-stress-mediated-sporadic-alzheimer-s-disease-circadian-disruption-and-long-term-spatial-and-olfactory-memory-impairments
#2
Guillermo Coronas-Samano, Keeley L Baker, Winston J T Tan, Alla V Ivanova, Justus V Verhagen
Insufficient advances in the development of effective therapeutic treatments of sporadic Alzheimer's Disease (sAD) to date are largely due to the lack of sAD-relevant animal models. While the vast majority of models do recapitulate AD's hallmarks of plaques and tangles by virtue of tau and/or beta amyloid overexpression, these models do not reflect the fact that in sAD (unlike familial AD) these genes are not risk factors per se and that other mechanisms like oxidative stress, metabolic dysregulation and inflammation play key roles in AD etiology...
2016: Frontiers in Aging Neuroscience
https://www.readbyqxmd.com/read/27890124/clothing-related-barriers-experienced-by-people-with-mobility-disabilities-and-impairments
#3
Allison Kabel, Jessica Dimka, Kerri McBee-Black
Clothing-related issues can create barriers to social participation and other desired activities for people living with disabilities and their families. The purpose of this study was to identify clothing-related barriers people living with disabilities and their families are facing. An online survey was administered to people living with disabilities and parents/caregivers, resulting in a sample of 113 participants indicating mobility impairments. Survey results indicated that the clothing needs of people living with disabilities and impairments are not being met, the lack of appropriate clothing prevented individuals from fully engaging in social activities and relationships, employment or everyday life events...
March 2017: Applied Ergonomics
https://www.readbyqxmd.com/read/27881105/open-trusting-relationships-underpin-safety-in-rural-maternity-a-hermeneutic-phenomenology-study
#4
Susan Crowther, Elizabeth Smythe
BACKGROUND: There are interwoven personal, professional and organisational relationships to be navigated in maternity in all regions. In rural regions relationships are integral to safe maternity care. Yet there is a paucity of research on how relationships influence safety and nurture satisfying experiences for rural maternity care providers and mothers and families in these regions. This paper draws attention to how these relationships matter. METHODS: This research is informed by hermeneutic phenomenology drawing on Heidegger and Gadamer...
November 24, 2016: BMC Pregnancy and Childbirth
https://www.readbyqxmd.com/read/27876420/hereditary-bilateral-genu-recurvatum-case-report-of-a-family
#5
Peter Feczko, Pieter Emans
BACKGROUND: Genu recurvatum is a rare condition in children and adolescents. The origin can be osseous, ligamentous and mixed. METHODS: We describe for the first time a family inclusive two brothers and their mother with hereditary bilateral genu recurvatum of unknown etiology. The possible underlying pathology and treatment are discussed. RESULTS: The underlying pathology of the early closure of the apophysis of the tibial tuberosity remained unclear...
November 19, 2016: Knee
https://www.readbyqxmd.com/read/27868448/applying-an-ecological-framework-to-understand-transition-pathways-to-post-secondary-education-for-youth-with-physical-disabilities
#6
Sally Lindsay, Michelle Duncanson, Nadia Niles-Campbell, Carolyn McDougall, Sara Diederichs, Dolly Menna-Dack
PURPOSE: The purpose of this study was to explore the experiences of youth with physical disabilities and clinicians who support them in their transition to post-secondary education (PSE). Most research on transition to PSE has focused on youth with intellectual disabilities while there is a lack of research on youth with physical disabilities. METHODS: This study drew on 30 interviews with 20 youth with disabilities and 10 clinicians. We used Bronfrenbrenner's ecological framework to inform our analysis...
November 20, 2016: Disability and Rehabilitation
https://www.readbyqxmd.com/read/27863039/family-member-engagement-with-early-psychosis-specialty-care
#7
Alicia Lucksted, Jennifer Stevenson, Ilana Nossel, Amy Drapalski, Sarah Piscitelli, Lisa B Dixon
BACKGROUND: Family members of individuals with early psychosis (EP) play critical roles in their engagement with EP services, but family member experiences of those roles are insufficiently understood. METHODS: We conducted semi-structured interviews with 18 family members of individuals enrolled in EP services during the Recovery After an Initial Schizophrenia Episode-Implementation Evaluation Study (RAISE-IES study), to better understand their experiences engaging with EP specialty care and their roles in client engagement in services...
November 9, 2016: Early Intervention in Psychiatry
https://www.readbyqxmd.com/read/27858263/-it-was-like-walking-without-knowing-where-i-was-going-a-qualitative-study-of-autism-in-a-uk-somali-migrant-community
#8
Fiona Fox, Nura Aabe, Katrina Turner, Sabi Redwood, Dheeraj Rai
Increasing recognition of autism in Somali migrant communities means that appropriate support services are needed. Attitudes to autism and barriers related to help-seeking in these communities are poorly understood. We aimed to assess what families affected by autism need, and how health, education and social care services can support them. In partnership with the local Somali community the research team conducted 15 in-depth interviews with parents affected by autism. Two themes are reported; 'Perceptions of Autism' and 'Navigating the System'...
November 17, 2016: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/27843893/evaluating-the-efficacy-of-the-support-for-life-program-for-people-with-dementia-and-their-families-and-carers-to-enable-them-to-live-well-a-protocol-for-a-cluster-stepped-wedge-randomized-controlled-trial
#9
Dianne Goeman, Tracy Comans, Joanne C Enticott, Emma Renehan, Elizabeth Beattie, Susan Kurrle, Susan Koch
INTRODUCTION: Assistance provided to support people living with dementia and carers is highly valued by them. However, current support systems in Australia are disjointed, inaccessible to all, poorly coordinated, and focus on dysfunction rather than ability. Support workers for people with dementia are in short supply, and there is little consistency in their roles. To address this large service gap and unmet need, we have developed an evidence-based optimized model of holistic support for people with dementia and their carers and families...
2016: Frontiers in Public Health
https://www.readbyqxmd.com/read/27830394/analysis-of-nurse-navigators-activities-for-hospital-discharge-coordination-a-mixed-method-study-for-the-case-of-cancer-patients
#10
Fatima Yatim, Paula Cristofalo, Marie Ferrua, Anne Girault, Marilene Lacaze, Mario Di Palma, Etienne Minvielle
BACKGROUND: Modern cancer care requires the development of clinical pathways to enhance coordination, but there are few descriptive studies about the content of coordination activities. More specifically, little is known about hospital discharge coordination, although this is seen as a sensitive phase of clinical pathway. PURPOSE: The purpose of this study was to identify and quantify the categories of activities performed by nurse navigators for hospital discharge coordination...
November 9, 2016: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/27821679/the-double-parallel-curriculum-in-palliative-care-teaching-learners-to-teach-end-of-life-care-at-the-bedside
#11
Jennifer Healy, Phylliss Chappell, Shuko Lee, Jeanette Ross, Sandra Sanchez-Reilly
CONTEXT: Dying is a natural process, yet physicians are often uncomfortable caring for dying patients. Learners have limited exposure to curriculum on caring for dying patients and often navigate these encounters without appropriate skills and confidence. We developed and implemented the Double Parallel Curriculum in Palliative Care (DP-PC): End-of-Life (EOL) module. The DP-PC focuses on teaching third-year medical students (MS3) to not only take care of patients in their last hours of life but give learners the confidence to teach patient's families what to expect as they hold vigil at their loved one's bedside...
November 7, 2016: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/27807885/perceptions-of-survivorship-care-among-latina-women-with-breast-cancer-in-los-angeles-county
#12
Diana M Tisnado, Carolyn Mendez-Luck, Jenifer Metz, Katelynn Peirce, Brian Montaño
OBJECTIVES: Cancer "survivorship" is a distinct and important aspect of the cancer experience. More research is needed about survivorship care in underserved populations such as Latinas. This study examined issues of breast cancer survivorship care among Latinas to understand their experiences and needs, to inform the design of future programs. DESIGN AND SAMPLE: Six English- and six Spanish-language focus groups were conducted, with a nonprobability sample. About 74 Latinas who varied in terms of characteristics including stage, time since diagnosis, and English proficiency were recruited through support groups, health fairs, and promotoras...
November 2, 2016: Public Health Nursing
https://www.readbyqxmd.com/read/27802950/the-family-navigator-a-pilot-intervention-to-support-intensive-care-unit-family-surrogates
#13
Alexia M Torke, Lucia D Wocial, Shelley A Johns, Greg A Sachs, Christopher M Callahan, Gabriel T Bosslet, James E Slaven, Susan M Perkins, Susan E Hickman, Kianna Montz, Emily S Burke
BACKGROUND: Communication problems between family surrogates and intensive care unit (ICU) clinicians have been documented, but few interventions are effective. Nurses have the potential to play an expanded role in ICU communication and decision making. OBJECTIVES: To conduct a pilot randomized controlled trial of the family navigator (FN), a distinct nursing role to address family members' unmet communication needs early in an ICU stay. METHODS: An interprofessional team developed the FN protocol...
November 2016: American Journal of Critical Care: An Official Publication, American Association of Critical-Care Nurses
https://www.readbyqxmd.com/read/27788351/embedding-health-literacy-into-health-systems-a-case-study-of-a-regional-health-service
#14
Lucia Vellar, Fiorina Mastroianni, Kelly Lambert
Objective The aim of the present study was to describe how one regional health service the Illawarra Shoalhaven Local Health District embedded health literacy principles into health systems over a 3-year period.Methods Using a case study approach, this article describes the development of key programs and the manner in which clinical incidents were used to create a health environment that allows consumers the right to equitably access quality health services and to participate in their own health care.Results The key outcomes demonstrating successful embedding of health literacy into health systems in this regional health service include the creation of a governance structure and web-based platform for developing and testing plain English consumer health information, a clearly defined process to engage with consumers, development of the health literacy ambassador training program and integrating health literacy into clinical quality improvement processes via a formal program with consumers to guide processes such as improvements to access and navigation around hospital sites...
October 28, 2016: Australian Health Review: a Publication of the Australian Hospital Association
https://www.readbyqxmd.com/read/27770048/designated-specialized-units-how-ontario-s-long-term-care-homes-fill-a-gap-in-care
#15
Zsofia Orosz, Amy Porteous, Melissa Donskov, Tracy Luciani, Peter Walker
Ontario has eight designated Specialized Units (SUs) located in Long-Term Care (LTC) homes. Each unit serves a well-defined group of residents whose needs go beyond what regular LTC homes can offer but do not require the complexity and range of care provided in hospitals. An applied qualitative research project looked at the realities of designated SUs, explored their role in health system capacity planning, and created a tool kit to help stakeholders navigate the designation process. Results outline the benefits and challenges experienced by the existing SUs that provide care to clients with severe responsive behaviours or dialysis needs and the units' potential to address current and future healthcare system gaps...
October 20, 2016: Healthcare Management Forum
https://www.readbyqxmd.com/read/27768129/nursing-management-of-advanced-merkel-cell-carcinoma
#16
Pamela A Lowry, Morganna L Freeman, Jeffery S Russell
Merkel cell carcinoma (MCC) is a rare and lethal skin cancer with few known treatment options. Management of this disease is challenging, and oncology nurses must understand the medical, physical, and psychosocial burden that MCC places on the patient and family caregivers. Patients must navigate a complex medical and insurance network that often fails to support patients with rare cancers. Nurses must advocate for these patients to ensure quality comprehensive cancer care.
November 1, 2016: Oncology Nursing Forum
https://www.readbyqxmd.com/read/27759605/the-fetal-care-team-care-for-pregnant-women-carrying-a-fetus-with-a-serious-diagnosis
#17
Margaret Loyet, Amy McLean, Karen Graham, Cheryl Antoine, Kathy Fossick
BACKGROUND: Women carrying a fetus with a suspected or known fetal anomaly have complex needs such as emotional and informational support and help with the logistical aspects of arranging care and treatment from numerous specialists. IMPROVEMENT IN QUALITY OF CARE FOR WOMEN CARRYING A FETUS WITH A SUSPECTED OR KNOWN FETAL ANOMALY:: Our fetal care team was initiated in 2012 to meet the needs of this high-risk pregnant population. The fetal care team nurse coordinator supports the woman and her family through all aspects of care during the pregnancy and neonatal period including scheduling appointments with multiple specialists, being there with her as a support person, keeping her updated, making sure she has accurate information about the fetal diagnosis, and helping her to navigate the complex healthcare system...
November 2016: MCN. the American Journal of Maternal Child Nursing
https://www.readbyqxmd.com/read/27749945/ethics-emotions-and-the-skills-of-talking-about-progressing-disease-with-terminally-ill-adolescents-a-review
#18
Abby R Rosenberg, Joanne Wolfe, Lori Wiener, Maureen Lyon, Chris Feudtner
Importance: For clinicians caring for adolescent patients living with progressive, life-threatening illness, discussions regarding prognosis, goals of care, and treatment options can be extremely challenging. While clinicians should respect and help to facilitate adolescents' emerging autonomy, they often must also work with parents' wishes to protect patients from the emotional distress of hearing bad news. Observations: We reviewed the ethical justifications for and against truth-telling, and we considered the published ethical and practice guidance, as well as the perspectives of patients, parents, and clinicians involved in these cases...
October 17, 2016: JAMA Pediatrics
https://www.readbyqxmd.com/read/27733818/expression-patterns-of-extracellular-matrix-proteins-during-posterior-commissure-development
#19
Karen Stanic, Natalia Saldivia, Benjamín Förstera, Marcela Torrejón, Hernán Montecinos, Teresa Caprile
Extracellular matrix (ECM) molecules are pivotal for central nervous system (CNS) development, facilitating cell migration, axonal growth, myelination, dendritic spine formation, and synaptic plasticity, among other processes. During axon guidance, the ECM not only acts as a permissive or non-permissive substrate for navigating axons, but also modulates the effects of classical guidance cues, such as netrin or Eph/ephrin family members. Despite being highly important, little is known about the expression of ECM molecules during CNS development...
2016: Frontiers in Neuroanatomy
https://www.readbyqxmd.com/read/27733161/-i-want-to-save-my-life-conceptions-of-cervical-and-breast-cancer-screening-among-urban-immigrant-women-of-south-asian-and-chinese-origin
#20
Jennifer Hulme, Catherine Moravac, Farah Ahmad, Shelley Cleverly, Aisha Lofters, Ophira Ginsburg, Sheila Dunn
BACKGROUND: Breast and cervical cancer screening rates remain low among immigrant women and those of low socioeconomic status. The Cancer Awareness: Ready for Education and Screening (CARES) project ran a peer-led multi-lingual educational program between 2012 and 2014 to reach under and never-screened women in Central Toronto, where breast and cervical cancer screening rates remain low. The objective of this qualitative study was to better understand how Chinese and South Asian immigrants - the largest and most under-screened immigrant groups according to national and provincial statistics - conceive of breast and cervical cancer screening...
October 13, 2016: BMC Public Health
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