keyword
https://read.qxmd.com/read/38635131/where-does-hope-lie-the-dialectical-tensions-between-hopes-and-expectations-of-vocational-transition-planning-from-the-perspectives-of-autistic-young-adults-parents-and-practitioners
#1
JOURNAL ARTICLE
Jina Chun, Sarah L Curtiss, Constance Richard, Kaiqi Zhou, Yazmin Castruita Rios, Sara Park, Jaeyong Kim, Muharrem Koc
The post-secondary transition for autistic youth is a complex process, with hopes and expectations serving as malleable mediators often overlooked in research and practice. Career awareness, exploration, and counseling services play a critical role in facilitating vocational transition, but the vocational hopes and expectations of autistic youth and their parents are often disregarded. This study aims to explore these aspirations and their impact on the vocational transition process, seeking to harmonize elements to better align with the needs of autistic youth and their families...
April 18, 2024: Journal of Autism and Developmental Disorders
https://read.qxmd.com/read/38633351/navigating-the-unknown-assessing-anthropogenic-threats-to-beaked-whales-family-ziphiidae
#2
JOURNAL ARTICLE
Laura J Feyrer, Joy E Stanistreet, Hilary B Moors-Murphy
This review comprehensively evaluates the impacts of anthropogenic threats on beaked whales (Ziphiidae)-a taxonomic group characterized by cryptic biology, deep dives and remote offshore habitat, which have challenged direct scientific observation. By synthesizing information published in peer-reviewed studies and grey literature, we identified available evidence of impacts across 14 threats for each Ziphiidae species. Threats were assessed based on their pathways of effects on individuals, revealing many gaps in scientific understanding of the risks faced by beaked whales...
April 2024: Royal Society Open Science
https://read.qxmd.com/read/38632612/navigating-outpatient-care-of-patients-with-type-2-diabetes-after-hospital-discharge-a-qualitative-longitudinal-study
#3
JOURNAL ARTICLE
Léa Solh Dost, Giacomo Gastaldi, Marcelo Dos Santos Mamed, Marie P Schneider
BACKGROUND: The transition from hospital to outpatient care is a particularly vulnerable period for patients as they move from regular health monitoring to self-management. This study aimed to map and investigate the journey of patients with polymorbidities, including type 2 diabetes (T2D), in the 2 months following hospital discharge and examine patients' encounters with healthcare professionals (HCPs). METHODS: Patients discharged with T2D and at least two other comorbidities were recruited during hospitalization...
April 17, 2024: BMC Health Services Research
https://read.qxmd.com/read/38632588/the-impact-of-internet-use-on-health-among-older-adults-in-china-a-nationally-representative-study
#4
JOURNAL ARTICLE
Yanyan Zhou, Yang Bai, Jun Wang
BACKGROUND AND OBJECTIVES: Aging poses a significant challenge worldwide, with China's aging status becoming particularly severe. What is the impact of Internet use on the health of the elderly? Existing studies have drawn conflicting conclusions that Internet use improves or harms health. The purpose of this study was to explore how Internet use affects the health of older adults, and the mechanisms and heterogeneity of these effects. RESEARCH DESIGN AND METHODS: Based on Grossman's theory, this paper constructs a health production function model...
April 17, 2024: BMC Public Health
https://read.qxmd.com/read/38630531/development-of-web-based-education-modules-to-improve-carer-engagement-in-cancer-care-design-and-user-experience-evaluation-of-the-e-triadic-oncology-etrio-modules-for-clinicians-patients-and-carers
#5
JOURNAL ARTICLE
Rebekah Laidsaar-Powell, Sarah Giunta, Phyllis Butow, Rachael Keast, Bogda Koczwara, Judy Kay, Michael Jefford, Sandra Turner, Christobel Saunders, Penelope Schofield, Frances Boyle, Patsy Yates, Kate White, Annie Miller, Zoe Butt, Melanie Bonnaudet, Ilona Juraskova
BACKGROUND: Carers often assume key roles in cancer care. However, many carers report feeling disempowered and ill-equipped to support patients. Our group published evidence-based guidelines (the Triadic Oncology [TRIO] Guidelines) to improve oncology clinician engagement with carers and the management of challenging situations involving carers. OBJECTIVE: To facilitate implementation of the TRIO Guidelines in clinical practice, we aimed to develop, iteratively refine, and conduct user testing of a suite of evidence-based and interactive web-based education modules for oncology clinicians (e-Triadic Oncology [eTRIO]), patients with cancer, and carers (eTRIO for Patients and Carers [eTRIO-pc])...
April 17, 2024: JMIR Medical Education
https://read.qxmd.com/read/38629705/pregnancy-in-the-shadow-of-psychosis-navigating-first-time-motherhood-with-increased-likelihood-of-postpartum-psychosis-and-postnatal-depression
#6
JOURNAL ARTICLE
Alison Walsh
WHAT IS KNOWN ON THE SUBJECT?: New parents who have previously experienced psychosis outside and/or following childbirth have an increased likelihood of experiencing an episode during the postpartum period. The decision to try to conceive can be agonising. Receiving care from a specialist perinatal community mental health team can improve outcomes. WHAT DOES THIS PAPER ADD TO EXISTING KNOWLEDGE?: This article offers a first-person insight into the steps the author took to minimise the impact of an episode of postpartum psychosis and/or postnatal depression whilst navigating new motherhood...
April 17, 2024: Journal of Psychiatric and Mental Health Nursing
https://read.qxmd.com/read/38628821/the-need-to-appear-healthy-concealment-of-chronic-illness-privacy-and-self-sufficiency-among-chronically-ill-older-nigerians
#7
JOURNAL ARTICLE
Kafayat Mahmoud, Tamara A Baker, Darlingtina Esiaka, Saliu Balogun
BACKGROUND AND OBJECTIVES: Prior research has highlighted the beneficial impact of social networks and social support on older adults' physical and psychosocial well-being. However, the impact of the relationship between chronic illness and social networks on the psychosocial well-being of older Nigerians remains understudied. This study explored how older Nigerians with chronic illnesses navigate the physical, mental, and emotional changes due to their chronic disease diagnosis within their social contexts...
2024: Innovation in Aging
https://read.qxmd.com/read/38626415/family-caregiver-outcomes-after-participating-in-a-hospital-based-family-involvement-program-after-major-gastrointestinal-surgery-a-subgroup-analysis-of-a-patient-preferred-cohort-study
#8
JOURNAL ARTICLE
Selma Cw Musters, Sani Kreca, Susan van Dieren, Hanneke van der Wal-Huisman, Johannes A Romijn, Wendy Chaboyer, Els Jm Nieveen van Dijkum, Anne M Eskes
BACKGROUND: Engaging families in postsurgical care is potentially beneficial for improving cancer patient outcomes and quality of care. We developed a family involvement program (FIP) and in this study, we aim to evaluate the impact of the FIP on family caregiver burden and well-being. Moreover, we aim to assess the fidelity of the program. MATERIALS AND METHODS: This is a preplanned subgroup analysis of a patient-preferred prospective cohort study that included family caregivers of patients who underwent major oncological surgery for gastrointestinal tumors...
April 15, 2024: International Journal of Surgery
https://read.qxmd.com/read/38626216/double-duty-caregivers-enduring-covid-19-pandemic-to-endemic-it-s-just-wearing-me-down
#9
JOURNAL ARTICLE
Jasneet Parmar, Tanya L'Heureux, Michelle Lobchuk, Jamie Penner, Lesley Charles, Oona St Amant, Catherine Ward-Griffin, Sharon Anderson
The COVID-19 pandemic has considerably strained health care providers and family caregivers. Double-duty caregivers give unpaid care at home and are employed as care providers. This sequential mixed-method study, a survey followed by qualitative interviews, aimed to comprehensively understand the experiences of these Canadian double-duty caregivers amidst the pandemic and the transition to the endemic phase. The multi-section survey included standardized assessments such as the Double-duty Caregiver Scale and the State Anxiety Scale, along with demographic, employment-related, and care work questions...
2024: PloS One
https://read.qxmd.com/read/38625759/treatment-and-rehabilitation-for-esophageal-cancer-striving-to-meet-obstacles-and-long-term-impacts-a-qualitative-descriptive-study
#10
JOURNAL ARTICLE
Trine Kromann Andreasen, Ida Rübot Boje, Lærke Kjær Tolstrup, Malene Missel, Malene Kaas Larsen
BACKGROUND: Following esophagogastric cancer treatment, patients with esophageal cancer and their relatives struggle with adjusting to a new everyday life as they experience various challenges after treatment requiring rehabilitation. Health professionals must address long-term impacts on patients' health, everyday life, family functioning, and support needs. OBJECTIVE: This qualitative descriptive study aimed to explore patients', relatives', and health professionals' experience with long-term impacts and rehabilitation after treatment for esophageal cancer...
April 12, 2024: Cancer Nursing
https://read.qxmd.com/read/38625735/in-home-respite-care-services-available-to-families-with-palliative-care-needs-in-quebec-novel-digital-environmental-scan
#11
JOURNAL ARTICLE
Aimee Castro, Gabrielle Lalonde-LeBlond, Zelda Freitas, Antonia Arnaert, Vasiliki Bitzas, John Kildea, Karyn Moffatt, Devon Phillips, Lorne Wiseblatt, Audrey-Jane Hall, Véronique Després, Argerie Tsimicalis
BACKGROUND: Caregiving dyads in palliative care are confronted with complex care needs. Respite care services can be highly beneficial in alleviating the caregiving burden, supporting survivorship and dying at home. Yet, respite care services are difficult to locate and access in the province of Quebec, Canada, particularly when navigating ubiquitous sources of online health information of varying quality. OBJECTIVE: This project aimed to (1) compile a list of at-home palliative respite care services in Quebec, Canada; (2) describe key accessibility features for each respite care service; (3) identify accessibility gaps and opportunities; and (4) describe a novel method for conducting environmental scans using internet search engines, internet-based community health databases, and member checking...
April 16, 2024: JMIR nursing
https://read.qxmd.com/read/38625489/correlates-of-impairment-and-growth-in-families-of-young-autistic-children
#12
JOURNAL ARTICLE
Kristen T MacKenzie, Mario J Crown, Jessie B Northrup, Elizabeth Rutenberg, Amy G Hartman, Carla A Mazefsky
The purpose of this project was to investigate potential correlates of family life impairment in families of young autistic children. This project incorporated measures of specific child and parent challenges in addition to a commonly used unidimensional measure of autism characteristics. In this way, we could assess whether such challenges explain variance in family life impairment, and whether their inclusion diminish associations between autism characteristics and family life impairment. Cross-sectional data were collected from 564 parents of autistic children aged 2 to 5 years who participated in a larger online study...
April 16, 2024: Journal of Autism and Developmental Disorders
https://read.qxmd.com/read/38623810/chronic-stress-social-support-and-symptoms-at-midlife-is-there-a-buffering-effect
#13
JOURNAL ARTICLE
Peteneinuo Rulu, Elizabeth R Bertone-Johnson, Jason Kamilar, Meenal Dhall, Lynnette Leidy Sievert
OBJECTIVES: This study was designed to examine associations among measures of stress, social support, and symptoms at midlife. Specifically, the study examined whether support buffered against the negative effects of stress on severity of symptoms grouped via factor analyses into emotional instability, vaso-somatic symptoms, mood disturbances, and aches and pains. METHODS: We used cross-sectional data from n = 119 women aged 40-55 in Nagaland, India...
April 16, 2024: American journal of biological anthropology
https://read.qxmd.com/read/38623721/examining-the-communication-work-of-women-who%C3%A2-have-tested-brca-positive-i-feel-this-responsibility-to-let%C3%A2-people%C3%A2-know
#14
JOURNAL ARTICLE
Summer C Martin, Allison M Scott, Anne M Stone
Inheriting a pathogenic variant in the BRCA1 or BRCA2 gene considerably increases a woman's risk levels for developing breast and ovarian cancer. In addition to serious physical health implications, women with a BRCA pathogenic variant may face psychosocial challenges, including those related to navigating the often demanding process of communicating about topics regarding BRCA with family and other social network members. Based on in-depth interviews with 24 women who tested BRCA-positive, we found that-consistent with the conceptualization of communication work articulated by Donovan-Kicken et al...
April 16, 2024: Journal of Genetic Counseling
https://read.qxmd.com/read/38619154/complex-adhd-challenging-case-when-simple-becomes-complex-managing-clinician-bias-and-navigating-challenging-family-dynamics-in-a-6-year-old-girl-with-adhd-and-developmental-delays
#15
JOURNAL ARTICLE
Jennifer Cervantes, Jenna Wallace, Annie Kennelly Helms, Elizabeth A Diekroger, Jason Fogler
Layla is a 6.7-year-old girl diagnosed with attention-deficit/hyperactivity disorder (ADHD)-predominantly hyperactive/impulsive type-delayed adaptive skills, enuresis, unspecified malnutrition, and feeding difficulties. She presented to developmental-behavioral pediatrics (DBP) in January 2022 due to caregiver concerns for autism spectrum disorder (ASD).Layla lives in a polyamorous family with her biological mother and father, mother's partner whom Layla refers to as her uncle, and her 2 half-siblings. There is a maternal history of special education services, schizoaffective disorder, bipolar disorder, multiple sclerosis, Wolff-Parkinson-White syndrome, and ADHD...
March 2024: Journal of Developmental and Behavioral Pediatrics: JDBP
https://read.qxmd.com/read/38613403/young-women-s-experiences-of-violence-and-homelessness
#16
JOURNAL ARTICLE
Sarah Wendt, Kristin Natalier, Sharyn Goudie
This article explores the lived experience of young women navigating and surviving domestic and family violence (DFV) and homelessness. Promoting the voices of young women through in-depth interviews, this article considers their story of violence, abuse, homelessness, and sense of safety. Such stories enable reflection on the ability of services to provide personal, material, emotional, and cultural safety in a way that recognizes the intersecting impact of trauma before, during, and after experiences of DFV...
April 13, 2024: Violence Against Women
https://read.qxmd.com/read/38606601/the-systemic-family-individual-approach-the-heritage-and-continuation-of-mara-selvini-palazzoli-s-work-in-integrative-psychotherapy
#17
JOURNAL ARTICLE
Luca Codecá, Jody Russon, Matteo Selvini
Since the birth of family therapy, the Milan approach has been known as a foundational systemic model. Nevertheless, following the dissolution of the Milan group, Mara Selvini, alongside Matteo Selvini, Stefano Cirillo, and Anna Maria Sorrentino, began a new trajectory of clinical development, insufficiently examined within the American panorama. After her death, in 1999, the Selvini group continued to adapt and refine her systemic approach which is known today as the systemic-family-individual (SFI) approach...
April 12, 2024: Journal of Marital and Family Therapy
https://read.qxmd.com/read/38605319/pregnant-and-postpartum-women-s-experiences-of-the-indirect-impacts-of-the-covid-19-pandemic-in-high-income-countries-a-qualitative-evidence-synthesis
#18
JOURNAL ARTICLE
Annie Tan, Amanda Blair, Caroline Se Homer, Robin Digby, Joshua P Vogel, Tracey Bucknall
BACKGROUND: Pregnant and postpartum women's experiences of the COVID-19 pandemic, as well as the emotional and psychosocial impact of COVID-19 on perinatal health, has been well-documented across high-income countries. Increased anxiety and fear, isolation, as well as a disrupted pregnancy and postnatal period are widely described in many studies. The aim of this study was to explore, describe and synthesise studies that addressed the experiences of pregnant and postpartum women in high-income countries during the first two years of the pandemic...
April 11, 2024: BMC Pregnancy and Childbirth
https://read.qxmd.com/read/38602783/facilitating-coordination-between-medical-and-educational-systems-to-improve-access-to-pediatric-therapies-for-preschool-children-with-developmental-delays-and-disabilities
#19
JOURNAL ARTICLE
Reshma Shah, Giovanna Elena Savastano, Monica Fehrenbach, Kruti Acharya
INTRODUCTION: A large portion of preschool-age children with developmental delays and disabilities (PCw/DD) do not receive recommended therapeutic services, including legally mandated school-based therapies. This study examines the feasibility of a community-clinical linkage using virtual patient navigation and a medical-educational care plan called Preschool and Me (PreM) to connect clinical settings serving historically marginalized communities with early childhood special education (ECSE) services...
April 11, 2024: Families, Systems & Health: the Journal of Collaborative Family Healthcare
https://read.qxmd.com/read/38602360/grandparent-caregivers-lived-experiences-and-resource-needs-use-during-the-covid-19-pandemic
#20
JOURNAL ARTICLE
Michele Kekeh, Cara Tonn, Kathy Dial, Loriena Yancura
This project examined the impacts of the COVID-19 pandemic on grandparent caregivers, grandchildren, family dynamics, and resources to mitigate and navigate crises. Phone interviews were conducted with 24 grandparent caregivers using a semi-structured interview guide. Caregivers explained that the pandemic had impacted them and their grandchildren by increasing emotional distress, social isolation, financial difficulties, and challenges with education. Helpful resources consisted of financial support, respite care, and support for grandchildren...
April 11, 2024: Journal of Gerontological Social Work
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