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https://www.readbyqxmd.com/read/28332410/the-parents-perspective-of-the-early-diagnostic-period-of-their-child-with-hearing-loss-information-and-support
#1
Nerina Scarinci, Ennur Erbasi, Emily Moore, Teresa Y C Ching, Vivienne Marnane
OBJECTIVE: This study aimed to explore the perspectives of caregivers regarding the information and support they received following diagnosis of their child's hearing loss. DESIGN: A mixed methods explanatory sequential design was conducted. STUDY SAMPLE: A total of 445 caregivers of children completed a written survey, and five parents participated in qualitative in-depth interviews. RESULTS: The most common sources of information for caregivers were discussion with an audiologist, written information, and discussion with a medical professional...
March 23, 2017: International Journal of Audiology
https://www.readbyqxmd.com/read/28323553/examining-pediatric-care-for-newly-immigrated-families-perspectives-of-health-care-providers
#2
David Nicholas, Bonnie Fleming-Carroll, Michele Durrant, Jonathan Hellmann
Respect for the ethnicity and cultural background of families are important components of health care delivery. However, the needs of new immigrants in pediatric care systems remain under-addressed in the literature. This study utilized a qualitative approach of interpretive description to elicit the pediatric health care experiences and needs of new immigrants to Canada, from the perspective of health care providers who worked extensively with newcomers. Two focus groups of multidisciplinary health care providers were conducted in a tertiary-level pediatric hospital...
March 21, 2017: Social Work in Health Care
https://www.readbyqxmd.com/read/28315896/responsive-feeding-strategies-to-promote-healthy-mealtime-interactions
#3
Maureen M Black, Kristen M Hurley
Responsive feeding is a derivative of responsive parenting that has been applied to infant and young child feeding. With a theoretical basis in the reciprocal interactions between parents and children, responsive feeding is particularly relevant during complementary feeding as young children progress from an exclusively milk-based liquid diet to the family diet and self-feeding. The period of complementary feeding includes multiple developmental changes that may threaten a successful transition and lead to growth and feeding problems...
2017: Nestlé Nutrition Institute Workshop Series
https://www.readbyqxmd.com/read/28315547/how-can-i-change-my-patients-treatment-decision-making-by-becoming-a-nurse-scientist-%C3%A2
#4
Tamryn F Gray
"What would you do?" I have heard this question numerous times throughout my nursing career by patients and families affected by cancer. As a pediatric blood and marrow transplantation nurse, I have often seen patients and their families wrestle with difficult treatment decisions. I have witnessed parents struggle between beginning end-of-life care for their child, or pursuing a risky but potentially life-saving clinical trial. With science driving advances in cancer treatments and patients playing more active roles in their care, uncertainty around cancer treatment decisions will only become more complicated...
April 1, 2017: Clinical Journal of Oncology Nursing
https://www.readbyqxmd.com/read/28314495/global-service-learning-and-student-athletes-a-model-for-enhanced-academic-inclusion-at-the-university-of-washington
#5
Holly M Barker
BACKGROUND: The University of Washington (UW) continues to create opportunities to engage all students in transformational undergraduate educational opportunities, such as study abroad. OBJECTIVE: This article describes specific efforts to increase inclusion for student-athletes in study abroad, particularly for first-generation students, including low-income students of color. Given the overrepresentation of students of color in sports vis-à-vis the larger student body at predominantly white institutions (PWIs), like UW, service-learning in communities beyond campus boundaries provides opportunities to apply international learning to a local context and to create a continuum of learning...
November 2016: Annals of Global Health
https://www.readbyqxmd.com/read/28297620/germline-genetic-predisposition-to-hematologic-malignancy
#6
Elissa Furutani, Akiko Shimamura
Development of hematologic malignancies is driven by mutations that may be somatic or germline. Availability of next-generation DNA sequencing technologies has facilitated the development of individualized diagnostic evaluations and tailored treatment strategies. Until now, such personalized medical approaches have largely centered on prognostic stratification and treatment strategies informed by acquired somatic mutations. The role of germline mutations in children and adults with hematologic malignancies was previously underappreciated...
March 20, 2017: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28291340/modulators-of-sphingosine-1-phosphate-pathway-biology-recent-advances-of-sphingosine-1-phosphate-receptor-1-s1p1-agonists-and-future-perspectives
#7
Alaric J Dyckman
The sphingoid base derived class of lipids (sphingolipids) is a family of interconverting molecules that play key roles in numerous structural and signaling processes. The biosynthetic pathway of the sphingolipids affords many opportunities for therapeutic intervention: targeting the ligands directly, targeting the various proteins involved in the interconversion of the ligands, or targeting the receptors that respond to the ligands. The focus of this article is on the most advanced of the sphingosine-related therapeutics, agonists of sphingosine-1-phosphate receptor 1 (S1P1)...
March 14, 2017: Journal of Medicinal Chemistry
https://www.readbyqxmd.com/read/28289119/looking-within-intentions-of-practice-for-person-centered-care
#8
William B Ventres
In order to integrate the biological, psychological, social, and existential dimensions of care into my day-to-day clinical encounters with patients, I have worked to cultivate several intentions of practice. These intentions of practice-habits of mind that nurture my resolve to attend to patients as complex human beings- help me navigate my interactions with patients and families in ways that are simultaneously efficacious and therapeutic. When routinely recalled and adeptly implemented, they are what distinguish me as a competent and capable practitioner of person-centered care, when I am at my best, from when I am not...
March 2017: Annals of Family Medicine
https://www.readbyqxmd.com/read/28283207/perceptions-of-caring-for-adolescents-with-eating-disorders-hospitalized-on-a-general-pediatric-unit
#9
Whitney Harken, Joan Maxwell, Margaret Hainline, Lauren Pollack, Cristine Roberts
PURPOSE: To describe the perceptions of inpatient pediatric hospitalist physicians (HPs), registered nurses (RNs), and care assistants (CAs) at a tertiary pediatric hospital regarding caring for children with eating disorders (EDs) who are hospitalized for medical stabilization. DESIGN AND METHODS: A qualitative descriptive study was conducted using semi-structured individual interviews with aforementioned health care workers (HCWs) to explore their perspectives on caring for children/adolescents with EDs in relation to recent initiatives to transform their care...
March 7, 2017: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/28270034/inuit-interpreters-engaged-in-end-of-life-care-in-nunavik-northern-quebec
#10
Shawn Renee Hordyk, Mary Ellen Macdonald, Paul Brassard
BACKGROUND: Inuit interpreters are key players in end-of-life (EOL) care for Nunavik patients and families. This emotionally intensive work requires expertise in French, English and Inuit dialects to negotiate linguistic and cultural challenges. Cultural differences among medical institutions and Inuit communities can lead to value conflicts and moral dilemmas as interpreters navigate how best to transmit messages of care at EOL. OBJECTIVES: Our goal was to understand the experience of Inuit interpreters in the context of EOL care in Nunavik in order to identify training needs...
2017: International Journal of Circumpolar Health
https://www.readbyqxmd.com/read/28250139/healthcare-and-research-priorities-of-adolescents-and-young-adults-with-systemic-lupus-erythematosus-a-mixed-methods-study
#11
David J Tunnicliffe, Davinder Singh-Grewal, Jonathan C Craig, Martin Howell, Peter Tugwell, Fiona Mackie, Ming-Wei Lin, Sean G O'Neill, Angelique F Ralph, Allison Tong
OBJECTIVE: Managing juvenile-onset systemic lupus erythematosus (SLE) is particularly challenging. The disease may be severe, adolescent patients have complex medical and psychosocial needs, and patients must navigate the transition to adult services. To inform patient-centered care, we aimed to identify the healthcare and research priorities of young patients with SLE and describe the reasons underpinning their priorities. METHODS: Face-to-face, semistructured interviews and focus groups were conducted with patients with SLE, aged from 14 to 26 years, from 5 centers in Australia...
March 1, 2017: Journal of Rheumatology
https://www.readbyqxmd.com/read/28238498/legal-social-ethical-and-medical-perspectives-on-the-care-of-the-statutory-rape-adolescent-in-the-emergency-department
#12
Shiu-Lin Tsai, Elvira Acosta, Toni Cardenas, Jeremy K Sigall, Kevin Van Geem
Rapes involving adolescents who present to the emergency department (ED) are fraught with ethical and legal complexities and are often emotionally turbulent for patients, their families, and medical providers. Management requires a thoughtful approach from multiple standpoints, including legal, psychosocial, ethical, and medical ones. However, there is no standardized sexual assault education for emergency medicine residents, and management practices vary widely.(1,2) We present a hypothetical statutory rape case based on real cases that occurred in New York City and bring together the perspectives of an attorney on the legal parameters, two social workers on the psychosocial issues, an ethicist on the moral considerations, and a pediatric emergency physician-who is also a sexual assault forensic examiner-on the medical treatments...
February 24, 2017: Annals of Emergency Medicine
https://www.readbyqxmd.com/read/28216281/clinicians-perspectives-on-advance-care-planning-for-patients-with-ckd-in-australia-an-interview-study
#13
Marcus Sellars, Allison Tong, Tim Luckett, Rachael L Morton, Carol A Pollock, Lucy Spencer, William Silvester, Josephine M Clayton
BACKGROUND: Advance care planning (ACP) empowers patients to consider and communicate their current and future treatment goals. However, ACP is not widely implemented in chronic kidney disease (CKD) care settings. This study aims to describe clinicians' beliefs, challenges, and perspectives of ACP in patients with CKD. STUDY DESIGN: Qualitative study. SETTING & PARTICIPANTS: Nephrologists (n=20), nurses (n=7), and social workers (n=4) with a range of experience in facilitating ACP for patients with CKD across Australia...
February 16, 2017: American Journal of Kidney Diseases: the Official Journal of the National Kidney Foundation
https://www.readbyqxmd.com/read/28206805/facilitating-successful-reintegration-attending-to-the-needs-of-military-families
#14
Virginia Gil-Rivas, Ryan P Kilmer, Jacqueline C Larson, Laura Marie Armstrong
Subsequent to the wars in Afghanistan and Iraq, the experiences of military service members (MSVMs) and veterans have garnered increasing attention. A growing body of work has begun to shed light on their reintegration, a process that can bring with it transitions and challenges for service members and their families. Although many families adapt effectively, some have difficulty navigating this process, which can lead to a host of short- and long-term negative consequences for families. The literature to date is not well-developed regarding strategies for supporting successful reintegration of MSVMs and veterans in the context of military families...
2017: American Journal of Orthopsychiatry
https://www.readbyqxmd.com/read/28178971/building-social-capital-to-promote-adolescent-wellbeing-a-qualitative-study-with-teens-in-a-latino-agricultural-community
#15
Marissa Raymond-Flesch, Colette Auerswald, Linda McGlone, Megan Comfort, Alexandra Minnis
BACKGROUND: Latino youth, particularly in rural settings, experience significant disparities in rates of teen pregnancy and violence. Few data are available regarding social and structural influences on Latino youth's developmental trajectories, specifically on factors that promote wellbeing and protect them from engagement in high-risk sexual and violence-related behaviors. METHODS: Forty-two youth aged 13 to 19 years old were recruited from middle schools and youth leadership programs to participate in one of eight community-based focus groups in Salinas, a predominantly Latino, urban center in California's rural central coast...
February 8, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28170406/youth-as-contested-sites-of-culture-the-intergenerational-acculturation-gap-amongst-new-migrant-communities-parental-and-young-adult-perspectives
#16
Andre M N Renzaho, Nidhi Dhingra, Nichole Georgeou
BACKGROUND: Immigration often results in changes in family dynamics, and within this process of dynamic relational adjustment youth can be conceptualised as contested sites of culture and associated intergenerational conflicts. This paper considers the experiences of migrant youth in Greater Western Sydney, New South Wales, Australia using conflict as a useful lens through which to view issues of migrant youth identity and their sense of social connectedness, belonging, and agency. The aim of this study was twofold: 1) to explore how migrant youth cope with acculturative stress and intergenerational conflicts, and 2) to better understand the systemic and family-related factors that facilitate positive settlement experiences for migrant youth...
2017: PloS One
https://www.readbyqxmd.com/read/28166776/implementation-and-maintenance-of-patient-navigation-programs-linking-primary-care-with-community-based-health-and-social-services-a-scoping-literature-review
#17
Ruta K Valaitis, Nancy Carter, Annie Lam, Jennifer Nicholl, Janice Feather, Laura Cleghorn
BACKGROUND: Since the early 90s, patient navigation programs were introduced in the United States to address inequitable access to cancer care. Programs have since expanded internationally and in scope. The goals of patient navigation programs are to: a) link patients and families to primary care services, specialist care, and community-based health and social services (CBHSS); b) provide more holistic patient-centred care; and, c) identify and resolve patient barriers to care. This paper fills a gap in knowledge to reveal what is known about motivators and factors influencing implementation and maintenance of patient navigation programs in primary care that link patients to CBHSS...
February 6, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28164178/care-partnerships-toward-technology-to-support-teens-participation-in-their-health-care
#18
Matthew K Hong, Lauren Wilcox, Daniel Machado, Thomas A Olson, Stephen F Simoneaux
Adolescents with complex chronic illnesses, such as cancer and blood disorders, must partner with family and clinical caregivers to navigate risky procedures with life-altering implications, burdensome symptoms and lifelong treatments. Yet, there has been little investigation into how technology can support these partnerships. We conducted 38 in-depth interviews (15 with teenage adolescents with chronic forms of cancer and blood disorders, 15 with their parents, and eight with clinical caregivers) along with nine non-participant observations of clinical consultations to better understand common challenges and needs that could be supported through design...
May 7, 2016: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
https://www.readbyqxmd.com/read/28156646/results-from-a-train-the-trainer-communication-program-for-oncology-nurses
#19
Betty R Ferrell, Jo Hanson, Susan Eggly
26 Background: Oncology nurses working across the cancer continuum need communication tools in order to navigate between oncology and palliative care for the benefit of patients and their families. An evidence-based communication training course funded by the National Cancer Institute and identified by the acronym COMFORT was provided to 187 oncology nurses across the nation. Launched in 2015, it is the first train-the-trainer communication training course for nurses and addresses communication across the cancer continuum...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28156616/developing-an-ehealth-intervention-for-cancer-symptom-management-for-rural-residents
#20
Chi Yeung, Keri Nace Mercer, Dorota Bartoczszyk, Todd Papke
207 Background: A disproportionate number of late-stage cancer diagnoses occur in rural residents. Paradoxically this population, with an increased need for palliative care, has minimal access to these services. As smartphone and high-speed internet connectivity reaches near universal penetrance across the country, eHealth technologies have the potential to address this palliative care access gap. Oncology Associated Symptoms and Individualized Strategies (OASIS) web-app was developed to provide tailored cancer symptom self-management support and address this gap...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
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