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https://www.readbyqxmd.com/read/28628586/building-a-pediatric-oral-health-training-curriculum-for-community-health-workers
#1
Molly Martin, William Frese, Christie Lumsden, Anna Sandoval
OBJECTIVES: Community health workers (CHWs) are a promising approach to oral health promotion in high-risk populations. This article describes the process of creating a pediatric oral health CHW training curriculum. DESIGN: Existing curricula were identified through outreach efforts to experts in the oral health and CHW fields, as well as PubMed and Google searches. After coding basic information, curricula were mapped to define oral health domains. Then group discussion was employed to determine final curriculum contents...
June 16, 2017: Journal of Public Health Management and Practice: JPHMP
https://www.readbyqxmd.com/read/28628395/evaluation-of-a-companion-robot-based-on-field-tests-with-single-older-adults-in-their-homes
#2
Katalin Zsiga, András Tóth, Tamás Pilissy, Orsolya Péter, Zoltán Dénes, Gábor Fazekas
The growing number of older adults places insurmountable load on family members and professional caregivers. Assistive technology with the aid of robots can present a possible solution. The goal of this article was to test a companion robot supporting older adults in their home environments. Eight senior volunteers were involved in the field test. They all lived alone and were self-supporting. The robot was capable of providing cognitive assistance to manage the user's daily routine. Each participant used the robot for 94...
June 19, 2017: Assistive Technology: the Official Journal of RESNA
https://www.readbyqxmd.com/read/28622940/feasibility-of-performing-non-contrast-magnetic-resonance-angiography-in-pregnant-subjects-with-familial-aortopathies
#3
William E Moody, Luke Pickup, Emma Plunkett, John Fryearson, Paul F Clift, R Katie Morris, Peter J Thompson, Sara Thorne, Lucy E Hudsmith
BACKGROUND: Pregnancy is associated with an increased risk of aortic pathology. We sought to assess the feasibility of performing non-contrast 3D steady-state free-precession (SSFP) magnetic resonance angiography (MRA) in pregnant subjects with inherited aortopathy. METHODS: Fifteen pregnant subjects (age 27±4yr) with positive genotyping for aortopathy (Marfan, Loeys-Dietz, Ehlers-Danlos) and/or a family history of aortic dissection underwent non-contrast 3D-SSFP MRA at 1...
June 2, 2017: International Journal of Cardiology
https://www.readbyqxmd.com/read/28619019/life-after-prostate-cancer-treatment-a-mixed-methods-study-of-the-experiences-of-men-with-sexual-dysfunction-and-their-partners
#4
Jeffrey A Albaugh, Nat Sufrin, Brittany R Lapin, Jacqueline Petkewicz, Sandi Tenfelde
BACKGROUND: Prostate cancer is the most common non-skin cancer in men and sexual dysfunction is the most frequently reported long-term side effect of prostate cancer surgery or radiation. The aim of this study was to examine the experiences of men with sexual dysfunction and their partners following prostate cancer treatment. METHODS: Men with sexual dysfunction from either surgical removal or radiation therapy 1-5 years after treatment were interviewed, as well as their partners...
June 15, 2017: BMC Urology
https://www.readbyqxmd.com/read/28583176/nurse-led-navigation-to-provide-early-palliative-care-in-rural-areas-a-pilot-study
#5
Barbara Pesut, Brenda Hooper, Marnie Jacobsen, Barbara Nielsen, Miranda Falk, Brian P O 'Connor
BACKGROUND: Few services are available to support rural older adults living at home with advancing chronic illness. The objective of this project was to pilot a nurse-led navigation service to provide early palliative support for rural older adults and their families living at home with advancing chronic illness. METHODS: Twenty-five older adults and 11 family members living with advancing chronic illness received bi-weekly home visits by a nurse navigator over a 2-year period...
June 5, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28562285/navigating-decisional-discord-the-pediatrician-s-role-when-child-and-parents-disagree
#6
Bryan A Sisk, James DuBois, Eric Kodish, Joanne Wolfe, Chris Feudtner
From the time when children enter the preteen years onward, pediatric medical decision-making can entail a complex interaction between child, parents, and pediatrician. When the child and parents disagree regarding medical decisions, the pediatrician has the challenging task of guiding the family to a final decision. Unresolved discord can affect family cohesiveness, patient adherence, and patient self-management. In this article, we outline 3 models for the pediatrician's role in the setting of decisional discord: deference, advocative, and arbitrative...
May 12, 2017: Pediatrics
https://www.readbyqxmd.com/read/28557014/a-narrative-evaluation-of-a-community-based-nurse-navigation-role-in-an-urban-at-risk-community
#7
Janice Feather, Nancy Carter, Ruta Valaitis, Helen Kirkpatrick
AIMS: To explore community members' stories of their experiences with a Nurse Navigator program serving an urban neighbourhood and primary care practice to address persistent health and social barriers adversely affecting health equity and well-being. BACKGROUND: In response to striking health and social inequalities existing across neighbourhoods in a large southern city in Ontario, Canada, a pilot program was designed to improve health and social outcomes in a specific 'at-risk' neighbourhood...
May 30, 2017: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/28554911/navigating-high-risk-surgery-protocol-for-a-multisite-stepped-wedge-cluster-randomised-trial-of-a-question-prompt-list-intervention-to-empower-older-adults-to-ask-questions-that-inform-treatment-decisions
#8
Lauren J Taylor, Paul J Rathouz, Ana Berlin, Karen J Brasel, Anne C Mosenthal, Emily Finlayson, Zara Cooper, Nicole M Steffens, Nora Jacobson, Anne Buffington, Jennifer L Tucholka, Qianqian Zhao, Margaret L Schwarze
INTRODUCTION: Older patients frequently undergo operations that carry high risk for postoperative complications and death. Poor preoperative communication between patients and surgeons can lead to uninformed decisions and result in unexpected outcomes, conflict between surgeons and patients, and treatment inconsistent with patient preferences. This article describes the protocol for a multisite, cluster-randomised trial that uses a stepped wedge design to test a patient-driven question prompt list (QPL) intervention aimed to improve preoperative decision making and inform postoperative expectations...
May 29, 2017: BMJ Open
https://www.readbyqxmd.com/read/28541834/siblings-voices-a-prospective-investigation-of-experiences-with-a-dying-child
#9
Ceilidh Eaton Russell, Kimberley Widger, Laura Beaune, Alexandra Neville, Susan Cadell, Rose Steele, Adam Rapoport, Maria Rugg, Maru Barrera
Sibling relationships reflect a unique childhood bond, thus the impact on a sibling when a child is seriously ill or dying is profound. We conducted a prospective, longitudinal qualitative study over two years using interpretive descriptive methodology to understand siblings' perspectives when a brother or sister was dying at home or in hospital. The insights from the 10 siblings revealed complex experiences, both personal and with the ill child, their families, and peers. These experiences were paradoxically sources of strain and of support, revealing the importance of validation and normalization in assisting siblings to successfully navigate the experience...
May 25, 2017: Death Studies
https://www.readbyqxmd.com/read/28540367/lived-lives-a-pavee-perspective-an-arts-science-community-intervention-around-suicide-in-an-indigenous-ethnic-minority
#10
Kevin M Malone, Seamus G McGuinness, Eimear Cleary, Janis Jefferies, Christabel Owens, Cecily C Kelleher
Background: Suicide is a significant public health concern, which impacts on health outcomes. Few suicide research studies have been interdisciplinary. We combined a psychobiographical autopsy with a visual arts autopsy, in which families donated stories, images and objects associated with the lived life of a loved one lost to suicide. From this interdisciplinary research platform, a mediated exhibition was created (Lived Lives) with artist, scientist and families, co-curated by communities, facilitating dialogue, response and public action around suicide prevention...
April 13, 2017: Wellcome Open Research
https://www.readbyqxmd.com/read/28539305/deconstructing-cancer-patient-information-seeking-in-a-consumer-health-library-toward-developing-a-virtual-information-consult-for-cancer-patients-and-their-caregivers-a-qualitative-instrumental-case-study
#11
Janet Papadakos, Aileen Trang, Alaina B Cyr, Nazek Abdelmutti, Meredith E Giuliani, Michelle Snow, Tara McCurdie, Menaka Pulandiran, Sara Urowitz, David Wiljer
BACKGROUND: Cancer patients and their caregivers want information about their disease and are interested in finding health information online. Despite the abundance of cancer information online, it is often fragmented, its quality is highly variable, and it can be difficult to navigate without expert-level knowledge of the cancer system. The Patient & Family Library at the Princess Margaret Cancer Centre offers a broad collection of high-quality cancer health information and staff are available to help patrons refine their questions and explore information needs that they may not have considered...
May 24, 2017: JMIR Cancer
https://www.readbyqxmd.com/read/28538233/enewborn-the-information-technology-revolution-and-challenges-for-neonatal-networks
#12
Dominique Haumont, Cuong NguyenBa, Neena Modi
Among preterm infants, 1-2% are born before 32 weeks of gestation or have a birth weight below 1,500 g. They contribute disproportionately to the burden of mortality and morbidity related to preterm birth, whether in the neonatal period or later in life. They are the target population studied in neonatal networks. Improving neonatal care and later outcome is a major issue in public health. Neonatologists, health care providers, public authorities, parents and families, industry, and all organizations dedicated to infant health must bring their efforts together and dedicate their actions in order to do so...
2017: Neonatology
https://www.readbyqxmd.com/read/28535822/social-determinants-of-traumatic-brain-injury-in-the-north-american-indigenous-population-a-review
#13
Kaitlin J Zeiler, Frederick A Zeiler
OBJECTIVE: Given the difficult to navigate literature on social determinants in Indigenous traumatic brain injury (TBI) we wished to identify all available literature on the social determinants of health linked to TBI in the North American Indigenous populations. METHODS: We performed a systematically conducted review. We searched MEDLINE, BIOSIS, EMBASE, Global Health, SCOPUS, and Cochrane Library from inception to January 2016. A two-step review process of the search results was performed, applying defined inclusion/exclusion criteria...
May 24, 2017: Canadian Journal of Neurological Sciences. le Journal Canadien des Sciences Neurologiques
https://www.readbyqxmd.com/read/28532482/-ensure-that-you-are-well-aware-of-the-risks-you-are-taking%C3%A2-actions-and-activities-medical-tourists-informal-caregivers-can-undertake-to-protect-their-health-and-safety
#14
Valorie A Crooks, Rebecca Whitmore, Jeremy Snyder, Leigh Turner
BACKGROUND: When seeking care at international hospitals and clinics, medical tourists are often accompanied by family members, friends, or other caregivers. Such caregiver-companions assume a variety of roles and responsibilities and typically offer physical assistance, provide emotional support, and aid in decision-making and record keeping as medical tourists navigate unfamiliar environments. While traveling abroad, medical tourists' caregiver-companions can find themselves confronted with challenging communication barriers, financial pressures, emotional strain, and unsafe environments...
May 22, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28515205/family-network-size-and-survival-across-the-lifespan-of-female-macaques
#15
L J N Brent, A Ruiz-Lambides, M L Platt
Two decades of research suggest social relationships have a common evolutionary basis in humans and other gregarious mammals. Critical to the support of this idea is growing evidence that mortality is influenced by social integration, but when these effects emerge and how long they last is mostly unknown. Here, we report in adult female macaques that the impact of number of close adult female relatives, a proxy for social integration, on survival is not experienced uniformly across the life course; prime-aged females with a greater number of relatives had better survival outcomes compared with prime-aged females with fewer relatives, whereas no such effect was found in older females...
May 17, 2017: Proceedings. Biological Sciences
https://www.readbyqxmd.com/read/28498175/experiences-of-healthcare-professionals-of-having-their-significant-other-admitted-to-an-acute-care-facility-a-qualitative-systematic-review
#16
Hussamaldeen Sabyani, Richard Wiechula, Judy Magarey, Frank Donnelly
BACKGROUND: Most healthcare professionals at some time will experience having a significant other admitted to an acute care hospital. The knowledge and understanding that these individuals possess because of their professional practice can potentially alter this experience. Expectations of staff and other family members (FMs) can potentially increase the burden on these health professionals. All FMs of patients should have their needs and expectations considered; however, this review specifically addresses what may be unique for healthcare professionals...
May 2017: JBI Database of Systematic Reviews and Implementation Reports
https://www.readbyqxmd.com/read/28481613/perceptions-of-masculinity-and-fatherhood-among-men-experiencing-homelessness
#17
Alexander Rice, Ji Youn Cindy Kim, Christopher Nguyen, William Ming Liu, Kevin Fall, Patrick Galligan
This study explored the perceptions of fatherhood held by 11 men living in a homeless shelter. Using consensual qualitative research methodology (CQR; Hill, 2012), we investigated perceptions of masculinity and fatherhood among fathers experiencing homelessness. Participants described (a) their perceptions of masculinity and fatherhood and changes resulting from homelessness, (b) physical and psychological challenges of being a father experiencing homelessness, and (c) expectations of homeless fathers. The fathers generally expressed feelings of low self-esteem related to their perceived difficulty fulfilling the role of providers for their family; however, they also adapted their view of fatherhood to include roles suited to their situation, such as that of guide, teacher, and role model...
May 2017: Psychological Services
https://www.readbyqxmd.com/read/28478857/a-qualitative-study-of-the-post-treatment-experiences-and-support-needs-of-survivors-of-lymphoma
#18
Leanne Monterosso, Karen Taylor, Violet Platt, Elizabeth Lobb, Meinir Krishnasamy, Toni Musiello, Caroline Bulsara, Kendall Stratton, David Joske
PURPOSE: To explore the post-treatment experiences and preferences for follow-up support of lymphoma survivors. METHODS: Two focus groups were conducted with 17 participants to explore informational, psychological, emotional, social, practical and physical needs, 6-30 months post-treatment for lymphoma. Perceptions regarding a potential model of survivorship care were also elicited. RESULTS: Thematic content analysis revealed five key themes: Information; Loss and uncertainty; Family, support and post-treatment experience; Transition, connectivity and normalcy, and Person-centred post-treatment care...
June 2017: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
https://www.readbyqxmd.com/read/28474413/alzheimer-s-disease-individuals-dyads-communities-and-costs
#19
Christopher M Callahan
Alzheimer's disease and related dementias (ADRD) affect over 5 million Americans. Over a typical disease course of 5-10 years, family caregivers provide the majority of the day-to-day hands-on on care for persons with dementia. Most caregivers enter this complex role with little training and inadequate household resources and they are tasked to navigate a fragmented health care system as well as a patchwork of community services. Our nation can and should do more to help family caregivers provide care in the home to their loved ones who suffer from dementia...
May 2017: Journal of the American Geriatrics Society
https://www.readbyqxmd.com/read/28474153/-we-would-never-forget-who-we-are-resettlement-cultural-negotiation-and-family-relationships-among-somali-bantu-refugees
#20
Rochelle L Frounfelker, Mehret T Assefa, Emily Smith, Aweis Hussein, Theresa S Betancourt
Somali refugees are resettling in large numbers in the US, but little is known about the Somali Bantu, an ethnic minority within this population. Refugee youth mental health is linked to the functioning of the larger family unit. Understanding how the process of culturally adjusting to life after resettlement relates to family functioning can help identify what kind of interventions might strengthen families and lead to better mental health outcomes for youth. This paper seeks to address the following research questions: (1) How do different groups of Somali Bantu refugees describe their experiences of culturally adapting to life in the US?; and (2) How, if at all, do processes of cultural adaptation in a new country affect Somali Bantu family functioning? We conducted 14 focus groups with a total of 81 Somali Bantu refugees in New England...
May 4, 2017: European Child & Adolescent Psychiatry
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