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https://www.readbyqxmd.com/read/28420297/the-social-trajectory-of-brain-tumor-a-qualitative-metasynthesis
#1
Lee Cubis, Tamara Ownsworth, Mark B Pinkham, Suzanne Chambers
PURPOSE: Research indicates that strong social ties can buffer the adverse effects of chronic illness on psychological well-being. Brain tumor typically leads to serious functional impairments that affect relationships and reduce social participation. This metasynthesis aimed to identify, appraise and integrate the findings of qualitative studies that reveal the impact of brain tumor on social networks. METHODS: Four major databases (PubMed, CINAHL, Cochrane Library and PsycINFO) were systematically searched from inception to September 2016 for qualitative studies that reported findings on the impact of primary brain tumor on social networks during adulthood...
April 19, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28409625/privileged-structural-motif-detection-and-analysis-using-generative-topographic-maps
#2
Shilva Kayastha, Dragos Horvath, Erik Gilberg, Michael Gütschow, Jürgen Bajorath, Alexandre Varnek
Identification of "privileged structural motifs" associated with specific target families is of particular importance for designing novel bioactive compounds. Here, we demonstrate that they can be extracted from a data distribution represented on a two-dimensional map obtained by Generative Topographic Mapping (GTM) . In GTM, structurally related molecules are grouped together on the map. Zones of the map preferentially populated by target-specific compounds were delineated, which helped to capture common substructures on the basis of which these compounds were grouped together by the GTM...
April 14, 2017: Journal of Chemical Information and Modeling
https://www.readbyqxmd.com/read/28402393/metcirc-navigating-mass-spectral-similarity-in-high-resolution-ms-ms-metabolomics-data
#3
Thomas Naake, Emmanuel Gaquerel
Summary: Among the main challenges in metabolomics are the rapid dereplication of previously characterized metabolites across a range of biological samples and the structural prediction of unknowns from MS/MS data. Here, we developed MetCirc to comprehensively align and calculate pairwise similarity scores among MS/MS spectral data and visualize these across a range of biological samples. MetCirc comprises functionalities to interactively organize these data according to compound familial groupings and to accelerate the discovery of shared metabolites and hypothesis formulation for unknowns...
April 11, 2017: Bioinformatics
https://www.readbyqxmd.com/read/28402013/the-relevance-of-context-in-understanding-health-literacy-skills-findings-from-a-qualitative-study
#4
Verna B McKenna, Jane Sixsmith, Margaret M Barry
BACKGROUND: Conceptualizing health literacy as a relational concept, which involves how individuals interact with complex health and social systems, requires a greater understanding of the context of people's health experiences. OBJECTIVES: To describe individuals' experiences of accessing, understanding, appraising and applying health information; explore the barriers and facilitators to using these skills; and to describe the experience of information exchange in health consultations...
April 12, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28394721/hiv-related-syndemic-pathways-and-risk-subjectivities-among-gay-and-bisexual-men-a-qualitative-investigation
#5
Barry D Adam, Trevor A Hart, Jack Mohr, Todd Coleman, Julia Vernon
Life history interviews were conducted with 40 gay and bisexual men to identify modes of syndemic experience and risk practice. Out of the interview narratives emerged one major and two minor modes of developmental pathway whereby syndemic conditions are navigated and expressed: (1) a combination of adverse childhood events with later episodes of depression and/or substantial substance use; (2) personal disruption that led to periods of depression and anxiety associated with the stresses of migration; and (3) a disorientation and an unravelling of life trajectory in the transition from family of origin to college or work...
April 10, 2017: Culture, Health & Sexuality
https://www.readbyqxmd.com/read/28391881/transitioning-from-pediatric-to-adult-health-care-with-familial-hypercholesterolemia-listening-to-young-adult-and-parent-voices
#6
Samantha K Sliwinski, Holly Gooding, Sarah de Ferranti, Thomas I Mackie, Supriya Shah, Tully Saunders, Laurel K Leslie
BACKGROUND: Young adults with familial hypercholesterolemia (FH) are at a critical period for establishing behaviors to promote future cardiovascular health. OBJECTIVE: To examine challenges transitioning to adult care for young adults with FH and parents of FH-affected young adults in the context of 2 developmental tasks, transitioning from childhood to early adulthood and assuming responsibility for self-management of a chronic disorder. METHODS: Semistructured, qualitative interviews were conducted with 12 young adults with FH and 12 parents of affected young adults from a pediatric subspecialty preventive cardiology program in a northeastern academic medical center...
January 2017: Journal of Clinical Lipidology
https://www.readbyqxmd.com/read/28383822/preparing-childhood-cancer-survivors-for-transition-to-adult-care-the-young-adult-perspective
#7
Natasha N Frederick, Sharon L Bober, Lexie Berwick, Mary Tower, Lisa B Kenney
BACKGROUND: Childhood cancer survivors (CCSs) remain at risk for developing treatment-associated health conditions as they age; however, many do not obtain recommended follow-up, putting them at unnecessary risk for morbidity. Educational interventions targeted at providing survivors with the knowledge and skills necessary for healthcare independence might improve adherence and outcomes as they transition care to the adult medical system. OBJECTIVE: To identify informational needs, educational preferences, and support that young adult CCSs perceive as beneficial for transition from pediatric to adult medical care...
April 6, 2017: Pediatric Blood & Cancer
https://www.readbyqxmd.com/read/28381423/integrin-mediated-traction-force-enhances-paxillin-molecular-associations-and-adhesion-dynamics-that-increase-the-invasiveness-of-tumor-cells-into-a-three-dimensional-extracellular-matrix
#8
Armen H Mekhdjian, FuiBoon Kai, Matthew G Rubashkin, Louis S Prahl, Laralynne M Przybyla, Alexandra L McGregor, Emily S Bell, J Matthew Barnes, Christopher C DuFort, Guanqing Ou, Alice C Chang, Luke Cassereau, Steven J Tan, Michael W Pickup, Jonathan N Lakins, Xin Ye, Michael W Davidson, Jan Lammerding, David J Odde, Alexander R Dunn, Valerie M Weaver
Metastasis requires tumor cells to navigate through a stiff stroma, and to squeeze through confined microenvironments. Whether tumors exploit unique biophysical properties to metastasize remains unclear. Data showed that invading mammary tumor cells, when cultured in a stiffened three-dimensional extracellular matrix that recapitulates the primary tumor stroma, adopt a basal-like phenotype. Metastatic tumor cells and basal-like tumor cells exerted higher integrin-mediated traction forces at the bulk and molecular levels, consistent with a motor-clutch model where motors and clutches are both increased...
April 5, 2017: Molecular Biology of the Cell
https://www.readbyqxmd.com/read/28380723/social-workers-attempts-to-navigate-among-the-elderly-their-families-and-foreign-home-care-workers-in-the-haredi-community
#9
Anat Freund, Tova Band-Winterstein
BACKGROUND: The study's aim is to examine social workers' experience in facilitating the integration of foreign home care workers (FHCWs) into the ultraorthodox Jewish (UOJ) community for the purpose of treating older adults. METHOD: Using the qualitative-phenomenological approach, semistructured, in-depth interviews were conducted with 18 social workers in daily contact with UOJ older adult clients in the process of integrating FHCWs. RESULTS: Data analysis revealed three central themes-integrating FHCWs into the aging UOJ family: barriers and challenges in the interaction between the two worlds; "even the rabbi has a FHCW": changing trends in caring for older adults; and the social worker as mediator and facilitator of a successful relationship...
February 1, 2017: Journal of Applied Gerontology: the Official Journal of the Southern Gerontological Society
https://www.readbyqxmd.com/read/28375796/the-perceptions-of-professionals-toward-siblings-of-individuals-with-intellectual-and-developmental-disabilities
#10
Meghan M Burke, Chung Eun Lee, Catherine K Arnold, Aleksa Owen
Adult siblings of individuals with intellectual and developmental disabilities (IDD) report struggling to navigate the adult disability service delivery system and collaborate with professionals. To date, though, it is unclear how professionals encourage sibling involvement and, accordingly, the facilitators and challenges in working with siblings. For this study, 290 professionals participated in a national web-based survey; participants answered three open-ended questions about ways to involve siblings, positive experiences with siblings, and challenges in working with siblings...
April 2017: Intellectual and Developmental Disabilities
https://www.readbyqxmd.com/read/28372788/utilizing-technology-to-improve-intraoperative-family-communication
#11
M M Wieck, B Blake, C Sellick, D Kenron, D DeVries, S Terry, S Krishnaswami
PURPOSE: To create and assess satisfaction with an electronic-medical-record (EMR) integrated communication system designed to optimize perioperative communication with families. METHODS: We built a tool in the EMR's intraoperative nursing navigation screen for sending customized or standardized text pages to families in English or Spanish. Preoperatively, families were given text pagers with instructions and a hospital map to facilitate leaving the waiting area...
March 27, 2017: American Journal of Surgery
https://www.readbyqxmd.com/read/28372582/coping-with-kidney-disease-qualitative-findings-from-the-empowering-patients-on-choices-for-renal-replacement-therapy-epoch-rrt-study
#12
Lalita Subramanian, Martha Quinn, Junhui Zhao, Laurie Lachance, Jarcy Zee, Francesca Tentori
BACKGROUND: The highly burdensome effects of kidney failure and its management impose many life-altering changes on patients. Better understanding of successful coping strategies will inform patients and help health care providers support patients' needs as they navigate these changes together. METHODS: A qualitative, cross-sectional study involving semi-structured telephone interviews including open- and closed-ended questions, with 179 U.S. patients with advanced chronic kidney disease (CKD), either not yet on dialysis ([CKD-ND], n = 65), or on dialysis (hemodialysis [HD], n = 76; or peritoneal dialysis [PD], n = 38) recruited through social media and in-person contacts from June to December 2013...
April 3, 2017: BMC Nephrology
https://www.readbyqxmd.com/read/28371887/information-needs-of-physicians-care-coordinators-and-families-to-support-care-coordination-of-children-and-youth-with-special-health-care-needs-cyshcn
#13
Pallavi Ranade-Kharkar, Charlene Weir, Chuck Norlin, Sarah A Collins, Lou Ann Scarton, Gina B Baker, Damian Borbolla, Vanina Taliercio, Guilherme Del Fiol
Objectives: Identify and describe information needs and associated goals of physicians, care coordinators, and families related to coordinating care for medically complex children and youth with special health care needs (CYSHCN). Materials and Methods: We conducted 19 in-depth interviews with physicians, care coordinators, and parents of CYSHCN following the Critical Decision Method technique. We analyzed the interviews for information needs posed as questions using a systematic content analysis approach and categorized the questions into information need goal types and subtypes...
March 24, 2017: Journal of the American Medical Informatics Association: JAMIA
https://www.readbyqxmd.com/read/28352957/growing-from-dilemmas-developing-a-professional-identity-through-collaborative-reflections-on-relational-dilemmas
#14
Galy Binyamin
Health educators nurture future generations of professionals by helping them to navigate the complex transition from students to therapists. The purpose of this study was to illustrate how a pedagogical method of collaborative reflection (involving reflective writing, sharing, and discussion) on relational dilemmas with role partners can develop occupational therapists' professional identity. The course, in which this method was applied, implemented the supervision and peer learning frameworks as related to student's fieldwork experiences, and is based on the perception of growing from conflicts and exploration...
March 28, 2017: Advances in Health Sciences Education: Theory and Practice
https://www.readbyqxmd.com/read/28346067/horseback-riding-therapy-for-a-deafblind-individual-enabled-by-a-haptic-interface
#15
Matjaž Ogrinc Ms, Ildar Farkhatdinov PhD, Rich Walker Ms, Etienne Burdet
We present a haptic interface to help deafblind people to practice horseback riding as a recreational and therapeutic activity. Horseback riding is a form of therapy which can improve self-esteem and sensation of independence. It has been shown to benefit people with various medical conditions-including autism. However, in the case of deafblind riders, an interpreter must stand by at all times to communicate with the rider by touch. We developed a simple interface that enables deafblind people to enjoy horseback riding while the instructor is remotely providing cues, which improves their independence...
March 27, 2017: Assistive Technology: the Official Journal of RESNA
https://www.readbyqxmd.com/read/28344637/growth-curve-registration-for-evaluating-salinity-tolerance-in-barley
#16
Rui Meng, Stephanie Saade, Sebastian Kurtek, Bettina Berger, Chris Brien, Klaus Pillen, Mark Tester, Ying Sun
BACKGROUND: Smarthouses capable of non-destructive, high-throughput plant phenotyping collect large amounts of data that can be used to understand plant growth and productivity in extreme environments. The challenge is to apply the statistical tool that best analyzes the data to study plant traits, such as salinity tolerance, or plant-growth-related traits. RESULTS: We derive family-wise salinity sensitivity (FSS) growth curves and use registration techniques to summarize growth patterns of HEB-25 barley families and the commercial variety, Navigator...
2017: Plant Methods
https://www.readbyqxmd.com/read/28340610/the-importance-of-informational-clinical-and-personal-support-in-patient-experience-with-total-knee-replacement-a-qualitative-investigation
#17
Laurie J Goldsmith, Nitya Suryaprakash, Ellen Randall, Jessica Shum, Valerie MacDonald, Richard Sawatzky, Samar Hejazi, Jennifer C Davis, Patrick McAllister, Stirling Bryan
BACKGROUND: Total knee arthroplasty (TKA) is the most frequently performed joint replacement surgery in North America. Patient perspectives on TKA have been investigated in various ways, including finding as many as 20% of TKA patients are dissatisfied with their surgical outcomes. Understanding the patient experience with TKA broadly and in relation to patient satisfaction is a key gap in existing literature. METHODS: We report on the qualitative component of a mixed methods prospective cohort study examining patient experience and satisfaction post-TKA for adults in British Columbia, Canada...
March 24, 2017: BMC Musculoskeletal Disorders
https://www.readbyqxmd.com/read/28340546/a-qualitative-study-of-cognitive-behavioral-and-psychosocial-challenges-associated-with-pediatric-type-2-diabetes-in-ethnic-minority-parents-and-adolescents
#18
Sara M St George, Elizabeth R Pulgarón, Dina Ferranti, Yaray Agosto, Maria I Toro, Kevin C Ramseur, Alan M Delamater
Purpose The purpose of this descriptive qualitative study was to explore cognitive, behavioral, and psychosocial challenges associated with having and/or parenting an adolescent with pediatric type 2 diabetes (T2D) from the perspectives of ethnic minority parents and adolescents. Methods Ethnic minority (79.2% non-Hispanic black, 29.6% Hispanic) adolescents (n = 14, 78.6% female, 14.7 ± 1.9 years) and their parents (n = 13, 100% female) participated in either individual family interviews or multifamily focus group sessions...
April 2017: Diabetes Educator
https://www.readbyqxmd.com/read/28340544/understanding-challenges-strategies-and-the-role-of-support-networks-in-medication-self-management-among-patients-with-type-2-diabetes
#19
Gerda Bernhard, Dominik Ose, Ines Baudendistel, Hanna M Seidling, Marion Stützle, Joachim Szecsenyi, Michel Wensing, Cornelia Mahler
Purpose The purpose of this qualitative study was to investigate the challenges and strategies of patients with type 2 diabetes mellitus (T2DM) regarding daily management of their medication regimen focusing on the role of their support networks. Methods A purposeful sample of 25 patients with T2DM was recruited from local self-help groups, general practitioner practices, and a university hospital in southwestern Germany. Four semi-structured focus groups were conducted to identify the challenges patients experienced, the strategies they used, and their collaboration with support networks to assist them in self-managing their medication regimen...
April 2017: Diabetes Educator
https://www.readbyqxmd.com/read/28332410/the-parents-perspective-of-the-early-diagnostic-period-of-their-child-with-hearing-loss-information-and-support
#20
Nerina Scarinci, Ennur Erbasi, Emily Moore, Teresa Y C Ching, Vivienne Marnane
OBJECTIVE: This study aimed to explore the perspectives of caregivers regarding the information and support they received following diagnosis of their child's hearing loss. DESIGN: A mixed methods explanatory sequential design was conducted. STUDY SAMPLE: A total of 445 caregivers of children completed a written survey, and five parents participated in qualitative in-depth interviews. RESULTS: The most common sources of information for caregivers were discussion with an audiologist, written information, and discussion with a medical professional...
March 23, 2017: International Journal of Audiology
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