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https://www.readbyqxmd.com/read/28206805/facilitating-successful-reintegration-attending-to-the-needs-of-military-families
#1
Virginia Gil-Rivas, Ryan P Kilmer, Jacqueline C Larson, Laura Marie Armstrong
Subsequent to the wars in Afghanistan and Iraq, the experiences of military service members (MSVMs) and veterans have garnered increasing attention. A growing body of work has begun to shed light on their reintegration, a process that can bring with it transitions and challenges for service members and their families. Although many families adapt effectively, some have difficulty navigating this process, which can lead to a host of short- and long-term negative consequences for families. The literature to date is not well-developed regarding strategies for supporting successful reintegration of MSVMs and veterans in the context of military families...
2017: American Journal of Orthopsychiatry
https://www.readbyqxmd.com/read/28178971/building-social-capital-to-promote-adolescent-wellbeing-a-qualitative-study-with-teens-in-a-latino-agricultural-community
#2
Marissa Raymond-Flesch, Colette Auerswald, Linda McGlone, Megan Comfort, Alexandra Minnis
BACKGROUND: Latino youth, particularly in rural settings, experience significant disparities in rates of teen pregnancy and violence. Few data are available regarding social and structural influences on Latino youth's developmental trajectories, specifically on factors that promote wellbeing and protect them from engagement in high-risk sexual and violence-related behaviors. METHODS: Forty-two youth aged 13 to 19 years old were recruited from middle schools and youth leadership programs to participate in one of eight community-based focus groups in Salinas, a predominantly Latino, urban center in California's rural central coast...
February 8, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28170406/youth-as-contested-sites-of-culture-the-intergenerational-acculturation-gap-amongst-new-migrant-communities-parental-and-young-adult-perspectives
#3
Andre M N Renzaho, Nidhi Dhingra, Nichole Georgeou
BACKGROUND: Immigration often results in changes in family dynamics, and within this process of dynamic relational adjustment youth can be conceptualised as contested sites of culture and associated intergenerational conflicts. This paper considers the experiences of migrant youth in Greater Western Sydney, New South Wales, Australia using conflict as a useful lens through which to view issues of migrant youth identity and their sense of social connectedness, belonging, and agency. The aim of this study was twofold: 1) to explore how migrant youth cope with acculturative stress and intergenerational conflicts, and 2) to better understand the systemic and family-related factors that facilitate positive settlement experiences for migrant youth...
2017: PloS One
https://www.readbyqxmd.com/read/28166776/implementation-and-maintenance-of-patient-navigation-programs-linking-primary-care-with-community-based-health-and-social-services-a-scoping-literature-review
#4
Ruta K Valaitis, Nancy Carter, Annie Lam, Jennifer Nicholl, Janice Feather, Laura Cleghorn
BACKGROUND: Since the early 90s, patient navigation programs were introduced in the United States to address inequitable access to cancer care. Programs have since expanded internationally and in scope. The goals of patient navigation programs are to: a) link patients and families to primary care services, specialist care, and community-based health and social services (CBHSS); b) provide more holistic patient-centred care; and, c) identify and resolve patient barriers to care. This paper fills a gap in knowledge to reveal what is known about motivators and factors influencing implementation and maintenance of patient navigation programs in primary care that link patients to CBHSS...
February 6, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28164178/care-partnerships-toward-technology-to-support-teens-participation-in-their-health-care
#5
Matthew K Hong, Lauren Wilcox, Daniel Machado, Thomas A Olson, Stephen F Simoneaux
Adolescents with complex chronic illnesses, such as cancer and blood disorders, must partner with family and clinical caregivers to navigate risky procedures with life-altering implications, burdensome symptoms and lifelong treatments. Yet, there has been little investigation into how technology can support these partnerships. We conducted 38 in-depth interviews (15 with teenage adolescents with chronic forms of cancer and blood disorders, 15 with their parents, and eight with clinical caregivers) along with nine non-participant observations of clinical consultations to better understand common challenges and needs that could be supported through design...
May 7, 2016: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems
https://www.readbyqxmd.com/read/28156646/results-from-a-train-the-trainer-communication-program-for-oncology-nurses
#6
Betty R Ferrell, Jo Hanson, Susan Eggly
: 26 Background: Oncology nurses working across the cancer continuum need communication tools in order to navigate between oncology and palliative care for the benefit of patients and their families. An evidence-based communication training course funded by the National Cancer Institute and identified by the acronym COMFORT was provided to 187 oncology nurses across the nation. Launched in 2015, it is the first train-the-trainer communication training course for nurses and addresses communication across the cancer continuum...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28156616/developing-an-ehealth-intervention-for-cancer-symptom-management-for-rural-residents
#7
Chi Yeung, Keri Nace Mercer, Dorota Bartoczszyk, Todd Papke
: 207 Background: A disproportionate number of late-stage cancer diagnoses occur in rural residents. Paradoxically this population, with an increased need for palliative care, has minimal access to these services. As smartphone and high-speed internet connectivity reaches near universal penetrance across the country, eHealth technologies have the potential to address this palliative care access gap. Oncology Associated Symptoms and Individualized Strategies (OASIS) web-app was developed to provide tailored cancer symptom self-management support and address this gap...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28156563/barriers-and-facilitators-of-navigator-led-advance-care-planning-conversations-in-older-patients-with-cancer
#8
Chao-Hui Huang, Soumya J Niranjan, J Nicholas Dionne-Odom, Kelly Kenzik, Kerri S Bevis, Gabrielle Betty Rocque
: 17 Background: National guidelines and most individuals endorse advance care planning (ACP) as essential; however, few individuals engage in such planning. Little is known about the role of lay navigators in supporting ACP. We sought to understand facilitators and barriers of successful implementation of ACP conducted by lay cancer navigators. METHODS: Semi-structured interviews were conducted with 26 lay navigators at 11 sites across the Southeast who were engaged in ACP implementation using Respecting Choices©...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28156535/the-availability-accessibility-gap-of-palliative-care-and-supportive-care-services-at-40-national-cancer-institute-designated-cancer-centers
#9
Geoffrey Hamlyn, Abby Johnston, Rishonda Thomas, James Tian, Arif Kamal
: 122 Background: All NCI-designated, comprehensive cancer centers report having consultative palliative care services alongside six other supportive care services. Inaccuracies in the understanding of these services among frontline office staff may undermine their accessibility to patients. We investigated how easily new patients could access these services when first contacting a major cancer center. METHODS: We used a 'mystery shopper' format to simulate calls made by a family member of a recently diagnosed patient...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28156488/new-primary-palliative-care-pc-model-for-community-cancer-clinics-ccc
#10
Deborah Gray, Stephanie Struve, Carol Huibregtse, Qiaofang Chen
: 159 Background: Our CCC serving a mixed rural/urban population is part of a large integrated healthcare system in Eastern WI. The closest PC specialist/team is 45 miles away at one of the tertiary care facilities. To fill this service gap we implemented a primary PC model. An initial outpatient palliative care family conference (OFC) and use of cancer nurse navigators (CNN)are hallmarks of this program. METHODS: The VLCC, housed in a standalone facility is staffed by two medical oncologists and one radiation oncologist and has an infusion center and a full-fledged radiation oncology unit with support staff, including cancer nurse navigators, research nurses, social workers, a clinical psychologist, a pharmacist, a nutritionist, a therapy dog and a chaplain...
October 9, 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28152854/the-availability-versus-accessibility-gap-in-supportive-care-services-at-40-nci-designated-cancer-centers
#11
Geoffrey Hamlyn, Abby Johnston, Rishonda Thomas, James Tian, Arif Kamal
: 283 Background: Many cancer centers have developed and fostered several supportive care services to ease the stress of a cancer diagnosis. The availability of such services is key to Commission on Cancer (CoC) for accreditation, which many cancer centers pursue and patients seek as a measure of quality. Despite the stated availability of supportive care services, we wondered how easily new patients could access these services when first contacting a major cancer center. METHODS: We used a 'mystery shopper' format to simulate calls made by a family member of a recently diagnosed patient to 40 NCI-designated cancer centers...
March 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28152772/learning-from-and-engaging-patients-families-during-the-implementation-of-a-new-medical-record-system
#12
Kathleen Horvath, Patricia Jahoda Stahl
: 66 Background: Dana-Farber Cancer Institute implemented a new medical record system to improve clinical and revenue cycle services. Through the formation of a Patient Experience (PX) committee we thoughtfully and methodically revised materials and processes putting patient and family perspectives first. METHODS: Formed PX committee with PFAC members, executive leadership, Patient/Family Relations (PFR), Volunteer Services, Management operations, and Quality/ Patient Safety representation...
March 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28152713/the-canadian-true-nth-initiative-a-multisite-intervention-to-improve-the-lives-of-men-with-prostate-cancer
#13
Matthew M George, Elilzabeth D Huggins, Maureen E Rowlands
: 118 Background: The True NTH Initiative aims to improve the lives and experiences of men with prostate cancer, as well as those of their partners, family and caregivers. In Canada, Prostate Cancer Canada selected ten teams to develop, implement and evaluate evidence-informed programs focusing on decision support, clinical support, lifestyle management, education, social support, navigation and treatment follow-up. Project teams were encouraged to align their local evaluations with a common evaluation framework and a national evaluation plan was developed...
March 2016: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28145266/the-pipeline-of-physiology-courses-in-community-colleges-to-university-medical-school-and-beyond
#14
REVIEW
Jenny McFarland, Pamela Pape-Lindstrom
Community colleges are significant in the landscape of undergraduate STEM (science technology, engineering, and mathematics) education (9), including biology, premedical, and other preprofessional education. Thirty percent of first-year medical school students in 2012 attended a community college. Students attend at different times in high school, their first 2 yr of college, and postbaccalaureate. The community college pathway is particularly important for traditionally underrepresented groups. Premedical students who first attend community college are more likely to practice in underserved communities (2)...
December 2016: Advances in Physiology Education
https://www.readbyqxmd.com/read/28129694/patient-perspectives-on-navigating-the-field-of-traumatic-brain-injury-rehabilitation-a-qualitative-thematic-analysis
#15
Heidi J Graff, Ulla Christensen, Ingrid Poulsen, Ingrid Egerod
PURPOSE: This study aimed to provide an understanding of the lived experience of rehabilitation in adults with traumatic brain injury (TBI) from hospital discharge up to four years post-injury. MATERIALS AND METHODS: We used a qualitative explorative design with semi-structured in-depth interviews. Twenty participants with TBI were included from a level I Trauma Center in Denmark at 1-4 years post-injury. Qualitative thematic analysis was applied for data analysis...
January 27, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28128771/stewarding-hope-the-evolving-landscape-of-huntington-s-disease-science-communications
#16
George J Yohrling, Louise A Vetter
For individuals faced with Huntington's disease (HD), there is no lack of access to information about the newest HD research topics and care trends thanks to social media and online news feeds. Unfortunately, making sense of this volume of information presents a modern challenge to families who are eager to follow every whisper of hope. Scientists with research news to share should be mindful of the dialog in which they are participating and of the hopes that they may be raising as they seek awareness for their work...
January 24, 2017: Journal of Huntington's Disease
https://www.readbyqxmd.com/read/28126729/putting-the-pieces-together-clinically-relevant-genetic-and-genomic-resources-for-hospitalists-and-neonatologists
#17
Rebecca Miller, Alina Khromykh, Holly Babcock, Callie Jenevein, Benjamin D Solomon
Genetic conditions are individually rare but are common in aggregate, and they often present in the neonatal and early pediatric periods. These conditions are often severe, can be difficult to diagnose and manage, and may heavily affect patients, families, health care systems, and society. Because of recent technological advances, the availability and uptake of genetic and genomic testing are increasing rapidly. However, there is a dearth of trained geneticists and genetic counselors to help guide and explain these conditions and relevant tests...
January 26, 2017: Hospital Pediatrics
https://www.readbyqxmd.com/read/28125983/fathers-views-and-experiences-of-their-own-mental-health-during-pregnancy-and-the-first-postnatal-year-a-qualitative-interview-study-of-men-participating-in-the-uk-born-and-bred-in-yorkshire-baby-cohort
#18
Z Darwin, P Galdas, S Hinchliff, E Littlewood, D McMillan, L McGowan, S Gilbody
BACKGROUND: The prevalence of fathers' depression and anxiety in the perinatal period (i.e. from conception to 1 year after birth) is approximately 5-10%, and 5-15%, respectively; their children face increased risk of adverse emotional and behavioural outcomes, independent of maternal mental health. Critically, fathers can be protective against the development of maternal perinatal mental health problems and their effects on child outcomes. Preventing and treating paternal mental health problems and promoting paternal psychological wellbeing may therefore benefit the family as a whole...
January 26, 2017: BMC Pregnancy and Childbirth
https://www.readbyqxmd.com/read/28124508/the-wayfinding-experience-of-family-carers-who-learn-to-manage-technical-health-procedures-at-home-a-grounded-theory-study
#19
Janet McDonald, Eileen McKinlay, Sally Keeling, William Levack
BACKGROUND: With more care taking place in the home, family carers play an important role in supporting patients. Some family carers undertake technical health procedures generally managed by health professionals in hospital settings (e.g. managing a tracheostomy or enteral feeding). AIM: To explore how family carers learn to manage technical health procedures in order to help health professionals better understand and support this process. DESIGN AND METHODS: A grounded theory study using data from interviews with 26 New Zealand family carers who managed technical health procedures including nasogastric or gastrostomy feeding, stoma care, urinary catheterisation, tracheostomy management, intravenous therapy, diabetes management and complex wound dressings...
January 25, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28110517/cultural-safety-and-belonging-for-refugee-background-women-attending-group-pregnancy-care-an-australian-qualitative-study
#20
Elisha Riggs, Sumaiya Muyeen, Stephanie Brown, Wendy Dawson, Pauline Petschel, Waan Tardiff, Fiona Norman, Dannielle Vanpraag, Jo Szwarc, Jane Yelland
BACKGROUND: Refugee women experience higher incidence of childbirth complications and poor pregnancy outcomes. Resettled refugee women often face multiple barriers accessing pregnancy care and navigating health systems in high income countries. METHODS: A community-based model of group pregnancy care for Karen women from Burma was co-designed by health services in consultation with Karen families in Melbourne, Australia. Focus groups were conducted with women who had participated to explore their experiences of using the program, and whether it had helped them feel prepared for childbirth and going home with a new baby...
January 22, 2017: Birth
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