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https://www.readbyqxmd.com/read/28728768/maintaining-integrity-how-nurses-navigate-boundaries-in-pediatric-palliative-care
#1
Alyssa Erikson, Betty Davies
PURPOSE: To explore how nurses manage personal and professional boundaries in caring for seriously ill children and their families. DESIGN AND METHODS: Using a constructivist grounded theory approach, a convenience sample of 18 registered nurses from four practice sites was interviewed using a semi-structured interview guide. RESULTS: Nurses across the sites engaged in a process of maintaining integrity whereby they integrated two competing, yet essential, aspects of their nursing role - behaving professionally and connecting personally...
July 2017: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/28728578/development-of-an-optimised-key-worker-framework-for-people-with-dementia-their-family-and-caring-unit-living-in-the-community
#2
Emma Renehan, Dianne Goeman, Susan Koch
BACKGROUND: In Australia, dementia is a national health priority. With the rising number of people living with dementia and shortage of formal and informal carers predicted in the near future, developing approaches to coordinating services in quality-focused ways is considered an urgent priority. Key worker support models are one approach that have been used to assist people living with dementia and their caring unit coordinate services and navigate service systems; however, there is limited literature outlining comprehensive frameworks for the implementation of community dementia key worker roles in practice...
July 20, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28722771/navigating-and-negotiating-information-and-support-experiences-of-first-time-mothers
#3
Megan Aston, Sheri Price, Joelle Monaghan, Meaghan Sim, Andrea Hunter, Victoria Little
AIM: To examine how first time mothers in Nova Scotia (NS) identified and prioritized their own postpartum needs and where they went for information and support, inclusive of informal or formal programs and services, social media, family and friends. BACKGROUND: The early postpartum period is an exciting, yet stressful life experience for first time mothers. Mothers have often turned to families, friends and health care professionals for support and information; however, these social networks look differently today due to changes in institutional policies and postpartum health care practices, as well as the emergence of online resources and networks...
July 19, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/28722760/patients-and-their-family-members-experiences-of-participation-in-care-following-an-acute-exacerbation-in-copd-a-phenomenological-hermeneutic-study
#4
Ingrid Charlotte Andersen, Thora Grothe Thomsen, Poul Bruun, Uffe Bodtger, Lise Hounsgaard
AIM AND OBJECTIVES: To explore the experiences of patients with chronic obstructive pulmonary disease (COPD) and their family members relating to both participation in care during hospitalization for an acute exacerbation in COPD, and to the subsequent day-to-day care at home. BACKGROUND: When recovering from an exacerbation, the challenges associated with an unpredictable health condition dominate everyday life for patients and can involve their family members...
July 19, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/28722310/capitalizing-on-scientific-advances-to-improve-access-to-and-quality-of-children-s-mental-health-care
#5
Ann F Garland, Florencia Lebensohn-Chialvo, Kristopher G Hall, Erika R N Cameron
The majority of mental health problems begin in childhood or adolescence. The potential benefits of early identification and treatment of such problems are well established, and models of effective mental health interventions for children have proliferated in recent decades. However, barriers in access to care and challenges in assuring delivery of high-quality care significantly limit the public health impact of services for children and families. Specifically, the majority of children who need mental health care do not receive it, and when children are in care, many do not receive interventions that are most likely to have the greatest positive impact...
July 19, 2017: Behavioral Sciences & the Law
https://www.readbyqxmd.com/read/28695166/ophthalmic-artery-chemosurgery-a-nursing-perspective
#6
REVIEW
Mary Elizabeth Davis, Edith Guarini, Lindsey Eibeler, Kimberly A Salvaggio
Retinoblastoma (RB) is the most common primary cancer to affect the eyes in children with approximately 350 cases/year in the United States and 8000 worldwide. Today, sadly, 50% of children with RB worldwide die from their disease. In our experience, utilization of ophthalmic artery chemosurgery (OAC) has transformed the treatment plan for patients; with over 1500 procedures performed, our survival rate exceeds 98%. It is now our standard first-line therapy for RB. OAC is a surgical outpatient procedure which delivers concentrated doses of chemotherapy directly to the tumor without the toxicities of systemic chemotherapy...
July 2017: Asia-Pacific Journal of Oncology Nursing
https://www.readbyqxmd.com/read/28692522/reconstructive-operation-of-nonsyndromic-multiple-suture-craniosynostosis-based-on-precise-virtual-plan-and-prefabricated-template
#7
Jian Ni, Bin Yang, Binghang Li
This report presents a case of a 4-year-old girl suffering from multiple-suture nonsyndromic craniosynostosis. The patient is characterized with fronto-orbital malformation and poor visual acuity. The preoperational three-dimensional computed tomography scan showed premature closure of the sagittal suture, bilateral coronal, and lambdoidal suture. The virtual surgical planning was performed before operation for the reposition of bone segments and communication with the patient's family. The navigational plate for reshaping was made based on the surgical plan with three-dimensional printed model...
July 7, 2017: Journal of Craniofacial Surgery
https://www.readbyqxmd.com/read/28692447/communicating-the-benefits-and-risks-of-inflammatory-bowel-disease-therapy-to-patients-and-families
#8
Joseph A Picoraro, Joel R Rosh
PURPOSE OF REVIEW: Treatment options for inflammatory bowel disease (IBD) have rapidly expanded as the treatment paradigm has shifted from controlling symptoms to reducing lifetime inflammatory burden. Families are confronted with the actual and perceived risks of this ever-expanding array of choices. We aim to review the shared decision-making process in pediatric IBD to ensure an optimal therapeutic plan for the child and their family. RECENT FINDINGS: Mucosal healing is a critical treatment target in pediatric IBD but it may not coincide with clinical symptoms...
July 7, 2017: Current Opinion in Pediatrics
https://www.readbyqxmd.com/read/28690707/understanding-how-to-support-family-caregivers-of-seniors-with-complex-needs
#9
Lesley Charles, Suzette Brémault-Phillips, Jasneet Parmar, Melissa Johnson, Lori-Ann Sacrey
PURPOSE OF THE STUDY: The purpose of this study was to describe the experiences and challenges of supporting family caregivers of seniors with complex needs and to outline support strategies and research priorities aimed at supporting them. DESIGN AND METHODS: A CIHR-funded, two-day conference entitled "Supporting Family Caregivers of Seniors: Improving Care and Caregiver Outcomes" was held. An integrated knowledge translation approach guided this planning conference...
June 2017: Canadian Geriatrics Journal: CGJ
https://www.readbyqxmd.com/read/28684387/sharing-annotated-audio-recordings-of-clinic-visits-with-patients-development-of-the-open-recording-automated-logging-system-orals-study-protocol
#10
Paul J Barr, Michelle D Dannenberg, Craig H Ganoe, William Haslett, Rebecca Faill, Saeed Hassanpour, Amar Das, Roger Arend, Meredith C Masel, Sheryl Piper, Haley Reicher, James Ryan, Glyn Elwyn
BACKGROUND: Providing patients with recordings of their clinic visits enhances patient and family engagement, yet few organizations routinely offer recordings. Challenges exist for organizations and patients, including data safety and navigating lengthy recordings. A secure system that allows patients to easily navigate recordings may be a solution. OBJECTIVE: The aim of this project is to develop and test an interoperable system to facilitate routine recording, the Open Recording Automated Logging System (ORALS), with the aim of increasing patient and family engagement...
July 6, 2017: JMIR Research Protocols
https://www.readbyqxmd.com/read/28673300/volunteer-navigation-partnerships-piloting-a-compassionate-community-approach-to-early-palliative-care
#11
Barbara Pesut, Wendy Duggleby, Grace Warner, Konrad Fassbender, Elisabeth Antifeau, Brenda Hooper, Madeleine Greig, Kelli Sullivan
BACKGROUND: A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which volunteers and a nurse partnered to provide navigation support beginning in the early palliative phase for adults living in community. The goal was to improve quality of life by developing independence, engagement, and community connections. METHODS: Volunteers received navigation training through a three-day workshop and then conducted in-home visits with clients living with advanced chronic illness over one year...
July 3, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28670769/co-production-of-community-mental-health-services-organising-the-interplay-between-public-services-and-civil-society-in-denmark
#12
Ulla Vaeggemose, Pia Vedel Ankersen, Jørgen Aagaard, Viola Burau
Co-production involves knowledge and skills based on both lived experiences of citizens and professionally training of staff. In Europe, co-production is viewed as an essential tool for meeting the demographic, political and economic challenges of welfare states. However, co-production is facing challenges because public services and civil society are rooted in two very different logics. These challenges are typically encountered by provider organisations and their staff who must convert policies and strategies into practice...
July 2, 2017: Health & Social Care in the Community
https://www.readbyqxmd.com/read/28669376/association-between-pancreatic-cancer-patients-perception-of-their-care-coordination-and-patient-reported-and-survival-outcomes
#13
Vanessa L Beesley, Monika Janda, Elizabeth A Burmeister, David Goldstein, Helen Gooden, Neil D Merrett, Dianne L O'Connell, David K Wyld, Raymond J Chan, Jane M Young, Rachel E Neale
OBJECTIVE: People with pancreatic cancer have poor survival, and management is challenging. Pancreatic cancer patients' perceptions of their care coordination and its association with their outcomes have not been well-studied. Our objective was to determine if perception of care coordination is associated with patient-reported outcomes or survival. METHODS: People with pancreatic cancer who were 1-8 months postdiagnosis (52 with completed resection and 58 with no resection) completed a patient-reported questionnaire that assessed their perceptions of care coordination, quality of life, anxiety, and depression using validated instruments...
July 3, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28667568/family-communication-risk-perception-and-cancer-knowledge-of-young-adults-from-brca1-2-families-a-systematic-review
#14
REVIEW
Alison L Young, Phyllis N Butow, Janine Vetsch, Veronica F Quinn, Andrea F Patenaude, Katherine M Tucker, Claire E Wakefield
Understanding challenges in familial communication of cancer risk has informed genetic service delivery. Parent-child interactions have received considerable attention, but few studies focus on young adulthood experiences within BRCA1/2 families. Young adults are approaching, or at a life stage where awareness of hereditary cancer risk is vital for informed choice of risk management options. This review assesses family communication, risk perception and cancer knowledge held by 18-40 year old individuals who have a parent with a BRCA1/2 gene mutation or carry the gene mutation themselves...
June 30, 2017: Journal of Genetic Counseling
https://www.readbyqxmd.com/read/28666447/how-female-community-health-workers-navigate-work-challenges-and-why-there-are-still-gaps-in-their-performance-a-look-at-female-community-health-workers-in-maternal-and-child-health-in-two-indian-districts-through-a-reciprocal-determinism-framework
#15
Enisha Sarin, Sarah Smith Lunsford
BACKGROUND: Accredited Social Health Activists (ASHAs) are community health workers tasked to deliver health prevention in communities and link them with the health care sector. This paper examines the social, cultural, and institutional influences that either facilitate or impede ASHAs' abilities to deliver services effectively through the lens of the reciprocal determinism framework of social cognitive theory. METHODS: We conducted 98 semi-structured, in-depth interviews with ASHAs (n = 49) and their family members (n = 49) in Gurdaspur and Mewat districts...
July 1, 2017: Human Resources for Health
https://www.readbyqxmd.com/read/28661778/culture-styles-of-institutional-interactions-and-inequalities-in-healthcare-experiences
#16
Elizabeth A Gage-Bouchard
In this study, I examine how parents' cultural knowledge shapes experiences navigating the healthcare system after a child is diagnosed with cancer and the extent to which differential styles of health-related advocacy contribute to inequalities in healthcare experiences. I combine data from parents' perspectives, physicians' perspectives, and direct observation of clinical interactions and find three overarching styles of health-related advocacy. Findings show that cultural dispositions and competencies shape parents' abilities to effectively navigate the healthcare system, and physicians differentially reward each style of health-related advocacy...
June 2017: Journal of Health and Social Behavior
https://www.readbyqxmd.com/read/28650255/patient-navigation-for-traumatic-brain-injury-promotes-community-re-integration-and-reduces-re-hospitalizations
#17
Emily R Rosario, Laura Espinoza, Stephanie Kaplan, Sepehr Khonsari, Earl Thurndyke, Melissa Bustos, Kayla Vickers, Brittney Navarro, Bonnie Scudder
OBJECTIVE: To determine the effectiveness of a Navigation programme for patients with traumatic brain injury. DESIGN: Prospective programme evaluation. SETTING: Inpatient rehabilitation facility and community settings. PARTICIPANTS: Eighteen individuals who suffered a traumatic brain injury (TBI), were between the ages of 16-70 years, and had a Rancho Score greater than IV. INTERVENTION: Patient navigation programme focused on identifying and addressing barriers to positive outcomes, including coordination of care and facilitating communication among the family and healthcare providers, psychosocial support, caregiver support, adherence to treatment, education, community resources and financial issues...
June 26, 2017: Brain Injury: [BI]
https://www.readbyqxmd.com/read/28647951/complexities-of-care-in-klinefelter-syndrome-an-aprn-perspective
#18
Sharron Close, Amy Talboy, Ilene Fennoy
47,XXY (Klinefelter Syndrome) is associated with a spectrum of complex clinical needs that are associated with variable physical, neurocognitive and psychosocial aspects. For patients and families affected by this sex chromosome trisomy, navigation of health care services is difficult due to lack of 47,XXY awareness among many health care providers and little evidence to support endocrine and additional treatment plans. While endocrine management of androgen deficiency has been the mainstay of treatment for patients from puberty through adulthood, testosterone replacement, alone, fails to mitigate many symptoms and issues...
June 2017: Pediatric Endocrinology Reviews: PER
https://www.readbyqxmd.com/read/28639158/development-of-a-survivorship-needs-assessment-planning-tool-for-head-and-neck-cancer-survivors-and-their-caregivers-a-preliminary-study
#19
K R Sterba, J Zapka, N LaPelle, T K Garris, A Buchanan, M Scallion, T Day
PURPOSE: The purpose of this study was to characterize primary end-of-treatment challenges in head and neck cancer (HNC) to drive the development of a survivorship needs assessment planning (SNAP) tool and evaluate its acceptability and feasibility. METHODS: Using qualitative methods (focus groups, interviews), we identified physical, emotional, and social post-treatment challenges from the perspectives of survivors (N = 17), caregivers (N = 14), and healthcare providers (N = 14) and pretested the SNAP tool...
June 21, 2017: Journal of Cancer Survivorship: Research and Practice
https://www.readbyqxmd.com/read/28628586/building-a-pediatric-oral-health-training-curriculum-for-community-health-workers
#20
Molly Martin, William Frese, Christie Lumsden, Anna Sandoval
OBJECTIVES: Community health workers (CHWs) are a promising approach to oral health promotion in high-risk populations. This article describes the process of creating a pediatric oral health CHW training curriculum. DESIGN: Existing curricula were identified through outreach efforts to experts in the oral health and CHW fields, as well as PubMed and Google searches. After coding basic information, curricula were mapped to define oral health domains. Then group discussion was employed to determine final curriculum contents...
June 16, 2017: Journal of Public Health Management and Practice: JPHMP
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