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Cerebral palsy adolescent

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https://www.readbyqxmd.com/read/28177174/a-case-controlled-comparison-of-postoperative-analgesic-dosing-between-girls-with-rett-syndrome-and-girls-with-and-without-developmental-disability-undergoing-spinal-fusion-surgery
#1
Chantel C Barney, Alyssa M Merbler, Kelsey Quest, Breanne J Byiers, George L Wilcox, Scott Schwantes, Samuel A Roiko, Timothy Feyma, Arthur Beisang, Frank J Symons
BACKGROUND: Rett syndrome is associated with severe motor and communicative impairment making optimal postoperative pain management a challenge. There are case reports documenting reduced postoperative analgesic requirement in Rett syndrome. AIM: The goal of this preliminary investigation was to compare postoperative analgesic management among a sample of girls with Rett syndrome compared to girls with and without developmental disability undergoing spinal fusion surgery...
February 8, 2017: Paediatric Anaesthesia
https://www.readbyqxmd.com/read/28110883/predictors-of-parent-reported-quality-of-life-of-adolescents-with-cerebral-palsy-a-longitudinal-study
#2
Marion Rapp, Nora Eisemann, Catherine Arnaud, Virginie Ehlinger, Jérôme Fauconnier, Marco Marcelli, Susan I Michelsen, Malin Nystrand, Allan Colver, Ute Thyen
AIM: Parent-reporting is needed to examine Quality of Life (QoL) of children with cerebral palsy (CP) across all severities. This study examines whether QoL changes between childhood and adolescence, and what predicts adolescent QoL. METHOD: SPARCLE is a European cohort study of children with CP, randomly sampled from population databases. Of 818 8-12-year-olds joining the study, 594 (73%) were revisited as 13-17-year-olds. The subject of this report is the 551 (316 boys, 235 girls) where the same parent reported QoL on both occasions using KIDSCREEN-52 (transformed Rasch scale, mean 50, SD 10 per domain)...
January 19, 2017: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/28109566/effectiveness-of-virtual-reality-rehabilitation-for-children-and-adolescents-with-cerebral-palsy-an-updated-evidence-based-systematic-review
#3
REVIEW
D K Ravi, N Kumar, P Singhi
BACKGROUND: The use of virtual reality systems in the motor rehabilitation of children with cerebral palsy is new, and thus the scientific evidence for its effectiveness needs to be evaluated through a systematic review. OBJECTIVE: To provide updated evidence-based guidance for virtual reality rehabilitation in sensory and functional motor skills of children and adolescents with cerebral palsy. DATA SOURCES: PubMed, PEDro, Web of Science, OTseeker, PsycINFO and Cochrane Library were searched from their earliest records up to 1 June, 2016...
September 27, 2016: Physiotherapy
https://www.readbyqxmd.com/read/28108580/chronic-conditions-and-health-care-needs-of-adolescents-born-at-23-to-25-weeks-gestation
#4
Antti Holsti, Marie Adamsson, Bruno Hägglöf, Aijaz Farooqi, Fredrik Serenius
OBJECTIVE: We examined chronic conditions, functional limitations, and special health care needs in extremely preterm children (EPT; 23-25 weeks' gestation) born between 1992 and 1998 at 2 Swedish tertiary care centers that offered regional and active perinatal care to all live-born EPT infants. METHODS: Of 134 surviving EPT children, 132 (98%) were assessed at 10 to 15 years of age alongside 103 term-born controls. Identification of children with functional limitations and special health care needs was based on a questionnaire administered to parents...
January 20, 2017: Pediatrics
https://www.readbyqxmd.com/read/28097247/the-management-of-scoliosis-in-children-with-cerebral-palsy-a-review
#5
REVIEW
Thomas Cloake, Adrian Gardner
Children who suffer with cerebral palsy (CP) have a significant chance of developing scoliosis during their early years and adolescence. The behavior of this scoliosis is closely associated with the severity of the CP disability and unlike idiopathic scoliosis, it continues to progress beyond skeletal maturity. Conservative measures may slow the progression of the curve, however, surgery remains the only definitive management option. Advances in surgical technique over the last 50 years have provided methods to effectively treat the deformity while also reducing complication rates...
December 2016: Journal of Spine Surgery (Hong Kong)
https://www.readbyqxmd.com/read/28087202/family-adaptation-to-cerebral-palsy-in-adolescents-a-european-multicenter-study
#6
Audrey Guyard, Susan I Michelsen, Catherine Arnaud, Jerome Fauconnier
BACKGROUND AND AIM: Factors promoting family adaptation to child's disability are poorly studied together. The aim of the study was to describe the family adaptation to disability and to identify determinants associated with using a global theoretical model. MATERIALS AND METHODS: 286 families of teenagers [13-17 years] with cerebral palsy (CP) from 4 European disability registers were included and visited at home. Face to face interviews were performed in order to measure parental distress, perceived impact in various dimensions of family life, family resources and stressors...
January 10, 2017: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/28068863/an-exploratory-study-investigating-the-multidimensional-factors-impacting-the-health-and-well-being-of-young-adults-with-cerebral-palsy
#7
Susan E Sienko
BACKGROUND: For young adults with cerebral palsy, changes in psychological and social development, in conjunction with the progression of musculoskeletal deformities and the onset of secondary conditions, make the transition to adulthood a difficult developmental phase. Preliminary evidence shows that many of the physical impairments reported in adults with cerebral palsy begin during late adolescence; however, there is little information about prevalence of impairments and the combined role impairments, psychological and social factors have on the health and well-being of young adults with cerebral palsy...
January 9, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28066530/play-hands-protective-gloves-technical-note-on-design-and-concept
#8
Michele Houston-Hicks, Derek J Lura, M Jason Highsmith
Cerebral Palsy (CP) is the leading cause of childhood motor disability, with a global incidence of 1.6 to 2.5/1,000 live births. Approximately 23% of children with CP are dependent upon assistive technologies. Some children with developmental disabilities have self-injurious behaviors such as finger biting but also have therapeutic needs. The purpose of this technical note is to describe design considerations for a protective glove and finger covering that maintains finger dexterity for children who exhibit finger and hand chewing (dermatophagia) and require therapeutic range of motion and may benefit from sensory stimulation resulting from constant contact between glove and skin...
September 2016: Technology and Innovation
https://www.readbyqxmd.com/read/28057016/the-effectiveness-of-robotic-assisted-gait-training-for-paediatric-gait-disorders-systematic-review
#9
Sophie Lefmann, Remo Russo, Susan Hillier
BACKGROUND: Robotic-assisted gait training (RAGT) affords an opportunity to increase walking practice with mechanical assistance from robotic devices, rather than therapists, where the child may not be able to generate a sufficient or correct motion with enough repetitions to promote improvement. However the devices are expensive and clinicians and families need to understand if the approach is worthwhile for their children, and how it may be best delivered. METHODS: The objective of this review was to identify and appraise the existing evidence for the effectiveness of RAGT for paediatric gait disorders, including modes of delivery and potential benefit...
January 5, 2017: Journal of Neuroengineering and Rehabilitation
https://www.readbyqxmd.com/read/27988239/contribution-of-clinical-gait-analysis-to-single-event-multi-level-surgery-in-children-with-cerebral-palsy
#10
REVIEW
N Khouri, E Desailly
Clinical gait analysis (CGA) has been proven useful in understanding the gait disturbances seen in children and adolescents with cerebral palsy. Another major benefit provided by CGA is a clinical and scientific evaluation of how orthopaedic surgical procedures modify gait. The information provided by instrumented CGA complements the clinical data, and the two must be interpreted jointly. Although there is some variability in the surgical details of therapeutic strategies, CGA undoubtedly influences the planning of surgery...
November 15, 2016: Orthopaedics & Traumatology, Surgery & Research: OTSR
https://www.readbyqxmd.com/read/27892801/stability-and-migration-across-femoral-varus-derotation-osteotomies-in-children-with-neuromuscular-disorders
#11
Peter Buxbom, Stig Sonne-Holm, Niels Ellitsgaard, Christian Wong
Background and purpose - Studies have indicated that one-third of children with cerebral palsy (CP) develop dislocation of the hip that needs surgical intervention. When hip dislocation occurs during childhood surgical treatment consists of tenotomies, femoral varus derotation osteotomy (VDRO), and acetabuloplasty. Relapse is observed in one-fifth of cases during adolescence. In this prospective cohort study, we performed a descriptive evaluation of translation and rotation across VDROs in children with neuromuscular disorders and syndromes by radiostereometric analysis (RSA)...
November 28, 2016: Acta Orthopaedica
https://www.readbyqxmd.com/read/27882910/does-nintendo-wii-balance-board-improve-standing-balance-a-randomised-controlled-trial-in-children-with-cerebral-palsy
#12
Valeska Gatica-Rojas, Guillermo Méndez-Rebolledo, Eduardo Guzman-Muñoz, Alex Soto-Poblete, Ricardo Cartes-Velásquez, Edith Elgueta-Cancino, Eduardo Cofré Lizama
BACKGROUND: Evidence on the effect of systemic exercise programs to improve the standing balance with the Nintendo Wii system is very limited and its post- treatment effectiveness is unknown in cerebral palsy (CP) patients. AIM: Primary aim was to compare the effect of Nintendo Wii balance board (Wii- therapy) and standard physiotherapy (SPT), on the performance of standing balance in children and adolescents with CP. Secondary aim was to determine the post-treatment effectiveness of Wii-therapy and SPT...
November 24, 2016: European Journal of Physical and Rehabilitation Medicine
https://www.readbyqxmd.com/read/27852496/effect-of-preoperative-indications-conference-on-procedural-planning-for-treatment-of-scoliosis
#13
Charles M Chan, Hasani W Swindell, Hiroko Matsumoto, Howard Y Park, Joshua E Hyman, Michael G Vitale, David P Roye, Benjamin D Roye
STUDY DESIGN: This study determines the rate of change in the scoliosis surgery plan in cases presented in preoperative indications conference. OBJECTIVES: To determine the effect of preoperative indications conference on the plan of surgery and to identify characteristics that increased the likelihood of change. SUMMARY OF BACKGROUND DATA: Preoperative indications conferences are used as a teaching and planning tool. Levels of fusion, construct options, and necessity for osteotomies are often debated in the planning of scoliosis surgery...
January 2016: Spine Deformity
https://www.readbyqxmd.com/read/27821971/application-of-a-tri-axial-accelerometry-based-portable-motion-recorder-for-the-quantitative-assessment-of-hippotherapy-in-children-and-adolescents-with-cerebral-palsy
#14
Tomoko Mutoh, Tatsushi Mutoh, Makoto Takada, Misato Doumura, Masayo Ihara, Yasuyuki Taki, Hirokazu Tsubone, Masahiro Ihara
[Purpose] This case series aims to evaluate the effects of hippotherapy on gait and balance ability of children and adolescents with cerebral palsy using quantitative parameters for physical activity. [Subjects and Methods] Three patients with gait disability as a sequela of cerebral palsy (one female and two males; age 5, 12, and 25 years old) were recruited. Participants received hippotherapy for 30 min once a week for 2 years. Gait parameters (step rate, step length, gait speed, mean acceleration, and horizontal/vertical displacement ratio) were measured using a portable motion recorder equipped with a tri-axial accelerometer attached to the waist before and after a 10-m walking test...
October 2016: Journal of Physical Therapy Science
https://www.readbyqxmd.com/read/27783793/cerebral-palsy-how-the-child-s-age-and-severity-of-impairment-affect-the-mother-s-stress-and-coping-strategies
#15
Maysa Ferreira Martins Ribeiro, Luc Vandenberghe, Cejane Oliveira Martins Prudente, Vanessa da Silva Carvalho Vila, Celmo Celeno Porto
The aim of the study was to comprehend how the age group and the severity of the motor impairment of children with cerebral palsy modify the mothers' experiences of stress and to understand the coping strategies they use. A qualitative approach was used, with the method framed on Grounded Theory Analysis. Nineteen mothers of children and adolescents with different degrees of motor impairment participated in individual semi-structured interviews. A lack of support and increased time and effort invested in parenting, at the cost of other areas of life threaten participants' physical and emotional health...
October 2016: Ciência & Saúde Coletiva
https://www.readbyqxmd.com/read/27766516/proxy-reported-quality-of-life-in-adolescents-and-adults-with-dyskinetic-cerebral-palsy-is-associated-with-executive-functions-and-cortical-thickness
#16
O Laporta-Hoyos, J Ballester-Plané, P Póo, A Macaya, M Meléndez-Plumed, E Vázquez, I Delgado, L Zubiaurre-Elorza, V L Botellero, A Narberhaus, E Toro-Tamargo, D Segarra, R Pueyo
PURPOSE: Quality of life (QOL) is a key outcome for people with cerebral palsy (CP), and executive functioning is an important predictor of QOL in other health-related conditions. Little is known about this association in CP or about its neural substrate. We aim to analyze the influence of executive functioning (including cognitive flexibility) as well as that of other psychological, motor, communication and socioeconomic variables on QOL and to identify neuroanatomical areas related to QOL in adolescents and adults with CP...
October 20, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27756560/-thrust-into-adulthood-transition-experiences-of-young-adults-with-cerebral-palsy
#17
Nancy Bagatell, Dara Chan, Kimberly Karrat Rauch, Deborah Thorpe
BACKGROUND: The transition to adulthood, the gradual change in roles and responsibilities, is identified as a challenging time for adolescents and young adults with physical disabilities, including those with cerebral palsy. Health care, education, employment, independent living, and community engagement have been identified as areas of concern. However, relatively little research has been done to understand the experiences, perceptions, and needs of individuals with cerebral palsy as they transition toward adulthood...
January 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/27742529/association-of-gross-motor-function-classification-system-level-and-school-attendance-with-bone-mineral-density-in-patients-with-cerebral-palsy
#18
Ki Jin Jung, Soon-Sun Kwon, Chin Youb Chung, Kyoung Min Lee, Ki Hyuk Sung, Byung Chae Cho, Myoung Ki Chung, Seung Jun Moon, Jaeyoung Kim, Moon Seok Park
The present study aimed to evaluate bone mineral density (BMD) in children and adolescents with cerebral palsy (CP) and to critically analyze the effects of a variety of factors, particularly the Gross Motor Function Classification System (GMFCS) level, the Caregiver Priorities and Child Health Index of Life with Disabilities questionnaire, and the Pediatric Outcomes Data Collection Instrument (PODCI), on BMD. Fifty patients with CP who underwent dual-energy X-ray absorptiometry were included. Collected data included the extent of involvement, muscle tone, demographic data, factors determined through chart review, and laboratory results...
October 11, 2016: Journal of Clinical Densitometry
https://www.readbyqxmd.com/read/27707836/strength-training-for-adolescents-with-cerebral-palsy-star-study-protocol-of-a-randomised-controlled-trial-to-determine-the-feasibility-acceptability-and-efficacy-of-resistance-training-for-adolescents-with-cerebral-palsy
#19
Jennifer M Ryan, Nicola Theis, Cherry Kilbride, Vasilios Baltzopoulos, Charlie Waugh, Adam Shortland, Grace Lavelle, Marika Noorkoiv, Wendy Levin, Thomas Korff
INTRODUCTION: Gait is inefficient in children with cerebral palsy, particularly as they transition to adolescence. Gait inefficiency may be associated with declines in gross motor function and participation among adolescents with cerebral palsy. Resistance training may improve gait efficiency through a number of biomechanical and neural mechanisms. The aim of the Strength Training for Adolescents with cerebral palsy (STAR) trial is to evaluate the effect of resistance training on gait efficiency, activity and participation in adolescents with cerebral palsy...
October 4, 2016: BMJ Open
https://www.readbyqxmd.com/read/27697405/total-hip-replacement-in-young-non-ambulatory-cerebral-palsy-patients
#20
C Morin, C Ursu, C Delecourt
INTRODUCTION: The everyday life of a non-ambulatory adolescent or young adult with cerebral palsy can be severely impaired by a painful or stiff hip. The usual surgical solutions such as proximal femoral resection (PFR) are not entirely satisfactory for pain relief, and are mutilating. HYPOTHESIS: A retrospective study assessed the impact of total hip replacement (THR) on such impairment, on the hypothesis that it is more effective than PFR in relieving pain, without aggravating disability...
September 30, 2016: Orthopaedics & Traumatology, Surgery & Research: OTSR
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