Amrita Minhas, Kerri Whitlock, Cory Rosenfelt, Julie Shatto, Brittany Finlay, Jennifer Zwicker, Sarah Lippe, Sebastien Jacquemont, Randi Hagerman, Kara Murias, Francois V Bolduc
The purpose of this paper was to examine the physical, emotional, social and school functioning domains of quality of life of individuals with Fragile X Syndrome, in relation to mental health and sleep patterns to gain a better understanding of how these aspects are affected by the disorder. This study included 119 individuals with Fragile X Syndrome who were given different cognitive examinations by a neuropsychologist or by parent-proxy questionnaires. This study focused on the Pediatric Quality of Life Inventory (PedsQoL), the Anxiety, Depression and Mood Scale (ADAMS), the Children's Sleep Habits Questionnaire (CSHQ), but did include other cognitive tests (Vineland Adaptive Behaviour Scales, Nonverbal IQ, Autism Diagnostic Observation Schedule)...
April 23, 2024: Journal of Autism and Developmental Disorders