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Healthcare literacy consent forms

Marilyn J Hammer, Patricia Eckardt, Margaret Barton-Burke
The primary goal of the thousands of registered trials in cancer research is to extend survival. With evaluation of efficacy, safety, and tolerability, healthcare providers must ensure that the principles described in the Belmont Report are upheld and that patients are truly informed when signing a consent form. In this article, two cases are highlighted, and reasons for participating in clinical trials are discussed. Challenges, such as healthcare literacy, patients' dedication to their healthcare providers, and choosing between multiple trials, are also explored...
November 1, 2016: Oncology Nursing Forum
Wanda Montalvo, Elaine Larson
PURPOSE: Evidence indicates that research participants often do not fully understand the studies for which they have volunteered. The aim of this systematic review was to examine the relationship between the process of obtaining informed consent for research and participant comprehension and satisfaction with the research. DESIGN: Systematic review of published research on informed consent and participant comprehension of research for which they volunteer using the Preferred Reporting Items for Systematic Review and Meta-Analysis (PRISMA) Statement as a guide...
November 2014: Journal of Nursing Scholarship
Linda Centore
Demographic changes in California require a multicultural paradigm shift in oral health care. The shift encompasses attention to health literacy in all forms of communication: signage, oral and written communication, consent forms, postop instructions, and patient education materials. California dentists may find it necessary to adapt their practices to reflect community demographics and health literacy needs. This article provides a toolbox of recommendations to address these needs.
April 2012: Journal of the California Dental Association
Deborah Skinner MacDougall, Ulla M Connor, Peter A S Johnstone
OBJECTIVE: The construct of Health Literacy (HL) deals with patients' capacity to understand their health-related instructions, consent forms, and other documents. A significant challenge of providing healthcare to patients with low HL is the complex nature of the disease process, and of requisite treatments. In radiation oncology specifically, the delivery of ionizing radiation is difficult enough to describe; describing radiation toxicity in terms of the underlying physics and biology is daunting...
June 2012: Gynecologic Oncology
Dharma E Cort├ęs, Mari-Lynn Drainoni, Lori E Henault, Michael K Paasche-Orlow
Investigators have the responsibility to ensure that prospective participants are fully informed about a research protocol prior to consenting to participate, yet many researchers face challenges when obtaining consent, since the majority of the general population has limited or no familiarity with research studies. These challenges are further magnified when obtaining consent from individuals with low literacy levels and who speak languages other than English. In this article we present findings from a qualitative study conducted with Spanish-speaking individuals with low-literacy designed to refine the Agency for Healthcare Research and Quality's Informed Consent and Authorization Toolkit for Minimal Risk Research...
2010: Journal of Health Communication
Linda Murphy-Knoll
No abstract text is available yet for this article.
July 2007: Journal of Nursing Care Quality
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