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https://www.readbyqxmd.com/read/28635584/the-patient-dignity-inventory-just-another-evaluation-tool-experiences-with-advanced-cancer-patients
#1
María Rullán, María Arantzamendi, Ana Carvajal, Marina Martínez, Amaia Saenz de Ormijana, Carlos Centeno
OBJECTIVE: The Patient Dignity Inventory (PDI) evaluates sources of distress related to the feeling of loss of dignity and was designed for patients at the end of life. The aim of the present work was to generate a better understanding of the experiences of healthcare staff when using the PDI. METHOD: An exploratory qualitative study is presented about the experience of 4 professionals who applied the PDI to 124 advanced-cancer patients. Our study consisted of an analysis of their experiences, taken from information generated in a focus group...
June 21, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28631537/sustainability-in-care-through-an-ethical-practice-model
#2
Linda Nyholm, Susanne Salmela, Lisbet Nyström, Camilla Koskinen
BACKGROUND: While sustainability is a key concept in many different domains today, it has not yet been sufficiently emphasized in the healthcare sector. Earlier research shows that ethical values and evidence-based care models create sustainability in care practice. OBJECTIVE: The aim of this study was to gain further understanding of the ethical values central to the realization of sustainability in care and to create an ethical practice model whereby these basic values can be made perceptible and active in care practice...
January 1, 2017: Nursing Ethics
https://www.readbyqxmd.com/read/28622107/the-age-of-dignity-preparing-for-the-elder-boom-in-a-changing-america
#3
KyongWeon Lee
No abstract text is available yet for this article.
June 16, 2017: Journal of Gerontological Social Work
https://www.readbyqxmd.com/read/28621959/-surrogate-motherhood-and-woman-dignity
#4
Ángela Aparisi Miralles
Motherhood by subrogation is an issue that directly affects human rights and, ultimately, human dignity. Therefore, if we want to give an adequate response to this issue, it is essential to reflect on how this practice affects the dignity and rights of the people involved in it and, more specifically, the pregnant mother. This study tries to show how in relation to the latter, maternity by subrogation directly contradicts some basic requirements of human dignity, since it reifies, instrumentalizes, convert into an object of commerce, and disregards the personal uniqueness of pregnant women...
May 2017: Cuadernos de Bioética: Revista Oficial de la Asociación Española de Bioética y Ética Médica
https://www.readbyqxmd.com/read/28621958/-biomedical-perspective-of-the-surrogate-motherhood
#5
Nicolás Jouve de la Barreda
The subrogated motherhood takes place when an embryo created by in vitro fertilization (IVF) technology is implanted in a surrogate, sometimes called a gestational mother, by means a contract with her. It can imply to natural families (woman and man) with or without infertility problems, or to monoparental or biparental families of the same sex. Concerning the origin of the gametes used in the IVF emerges different implications on the genetic relationship of the resulting child with the surrogate and the future parents...
May 2017: Cuadernos de Bioética: Revista Oficial de la Asociación Española de Bioética y Ética Médica
https://www.readbyqxmd.com/read/28615954/response-to-lipuma-and-demarco-s-article-on-hastening-death
#6
REVIEW
Julia Zenz
The paper "Palliative care and patient autonomy: moving beyond prohibitions against hastening death" by LiPuma and DeMarco deals with an aspect of end of life care which is the source of considerable disagreement. It is important to emphasize that autonomy is not the unique feature for end of life care. There is always a medical and ethical commitment to care, i.e. beneficence and nonmaleficence. All of these aspects have to be taken into account when treating patients at the very end of life. There is considerable scientific proof indicating that most patients and families can experience a death in dignity when being cared for in palliative care or hospice units...
2017: Health Services Insights
https://www.readbyqxmd.com/read/28604453/management-of-primary-retroperitoneal-mucinous-tumors-a-retrospective-meta-analysis
#7
Benjamin Wolf, Christin Kunert, Lars-Christian Horn, Jens Einenkel
OBJECTIVE: Primary retroperitoneal mucinous tumors (PRMTs) are rare epithelial neoplasms arising in the retroperitoneal space whose pathogenesis is poorly understood. To date, only single-case reports and small case series on diagnosis and management of these tumors exist. The aim of this first-time meta-analysis was to provide more reliable data to inform the management of PRMTs. METHODS: Database searches were conducted to identify case reports and case series between the years of 1975 and 2015...
June 10, 2017: International Journal of Gynecological Cancer
https://www.readbyqxmd.com/read/28604315/exploitation-of-the-vulnerable-in-research-responses-to-lessons-learnt-in-history
#8
Amaboo Dhai
The Nuremberg Trials raised insightful issues on how and why doctors who were trained in the Hippocratic tradition were able to commit such egregious and heinous medical crimes. The vulnerable were considered to be subhuman, of decreased intelligence, of no moral status and lacking human dignity. The reputation of the medical profession had been undermined, professionalism questioned and the doctor-patient relationship damaged as a result of the Nazi medical experiments. The World Medical Association's Declaration of Helsinki has been hailed as one of the most successful efforts in rescuing medical research from the darkness of the scandals and tragedies in health research...
May 24, 2017: South African Medical Journal, Suid-Afrikaanse Tydskrif Vir Geneeskunde
https://www.readbyqxmd.com/read/28601920/human-dignity-as-a-basis-for-providing-post-trial-access-to-healthcare-for-research-participants-a-south-african-perspective
#9
Pamela Andanda, Jane Wathuta
This paper discusses the need to focus on the dignity of human participants as a legal and ethical basis for providing post-trial access to healthcare. Debate about post-trial benefits has mostly focused on access to products or interventions proven to be effective in clinical trials. However, such access may be modelled on a broad fair benefits framework that emphasises both collateral benefits and interventional products of research, instead of prescribed post-trial access alone (Legal and ethical regulation of biomedical research in developing countries p...
June 10, 2017: Medicine, Health Care, and Philosophy
https://www.readbyqxmd.com/read/28597854/decentralizing-provision-of-mental-health-care-in-sri-lanka
#10
Neil Fernando, Thirupathy Suveendran, Chithramalee de Silva
In the past, mental health services in Sri Lanka were limited to tertiary-care institutions, resulting in a large treatment gap. Starting in 2000, significant efforts have been made to reconfigure service provision and to integrate mental health services with primary health care. This approach was supported by significant political commitment to establishing island-wide decentralized mental health care in the wake of the 2004 tsunami. Various initiatives were consolidated in The mental health policy of Sri Lanka 2005-2015, which called for implementation of a comprehensive community-based, decentralized service structure...
April 2017: WHO South-East Asia Journal of Public Health
https://www.readbyqxmd.com/read/28588424/the-use-of-life-stories-and-its-influence-on-persons-with-dementia-their-relatives-and-staff-a-systematic-mixed-studies-review
#11
Vigdis Abrahamsen Grøndahl, Mona Persenius, Carina Bååth, Ann Karin Helgesen
BACKGROUND: Dementia is an important predictor of nursing home admissions. Due to progressive dementia symptoms, over time it becomes difficult for persons with dementia to communicate their wishes and participate in decisions concerning their everyday lives. Their well-being, sense of dignity, integrity and personhood are at risk. The persons' life stories have been highlighted as particularly important in dementia care and are referred to as seeing the person beyond the dementia. The aim of this study was to explore and describe the use of life stories and its influence on persons with dementia living in nursing homes, their relatives and staff...
2017: BMC Nursing
https://www.readbyqxmd.com/read/28587502/ethical-values-in-nurse-education-perceived-by-students-and-educators
#12
Mahsa Boozaripour, Abbas Abbaszadeh, Mohsen Shahriari, Fariba Borhani
BACKGROUND: Education is considered the first function and mission of the university, and observing educational ethics guarantees the health of the teaching-learning process in the university. AIM: The aim of this study was to explore ethical values in nursing education from the perspective of Iranian nursing students and educators. RESEARCH DESIGN: This qualitative study was conducted using the Thematic Content Analyses method. The data were collected from seven semi-structured individual interviews and three focus group discussions from July to November 2015...
January 1, 2017: Nursing Ethics
https://www.readbyqxmd.com/read/28578833/life-values-of-elderly-people-suffering-from-incurable-cancer-a-literature-review
#13
REVIEW
Anne Ebenau, Jelle van Gurp, Jeroen Hasselaar
OBJECTIVE: Due to aging Western societies, older patients suffering from incurable cancer will present themselves more often to health care professionals. To be of service to these severely ill elderly patients, more knowledge is needed on which life values are guiding them through their last phases of life. This review aims to describe which life values play an important part in the lives of elderly people suffering from incurable cancer. METHODS: We conducted a literature review with a structured search to identify empirical studies (January 1950-February 2016) using six databases...
May 24, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28577266/reimagining-childhood-responding-to-the-challenge-presented-by-severe-developmental-disability
#14
Erica K Salter
Through an exploration of the experience of severe and profound intellectual disability, this essay will attempt to expose the predominant, yet usually obscured, medical anthropology of the child and examine its effects on pediatric bioethics. I will argue that both modern western society and modern western medicine do, actually, have a robust notion of the child, a notion which can find its roots in three influential thinkers: Aristotle, Immanuel Kant and Jean Piaget. Together, these philosophers offer us a compelling vision: the child is primarily a future rational, autonomous adult...
June 2, 2017: HEC Forum: An Interdisciplinary Journal on Hospitals' Ethical and Legal Issues
https://www.readbyqxmd.com/read/28569156/how-chinese-clinicians-face-ethical-and-social-challenges-in-fecal-microbiota-transplantation-a-questionnaire-study
#15
Yonghui Ma, Jinqiu Yang, Bota Cui, Hongzhi Xu, Chuanxing Xiao, Faming Zhang
BACKGROUND: Fecal microbiota transplantation (FMT) is reportedly the most effective therapy for relapsing Clostridium Difficile infection (CDI) and a potential therapeutic option for many diseases. It also poses important ethical concerns. This study is an attempt to assess clinicians' perception and attitudes towards ethical and social challenges raised by fecal microbiota transplantation. METHODS: A questionnaire was developed which consisted of 20 items: four items covered general aspects, nine were about ethical aspects such as informed consent and privacy issues, four concerned social and regulatory issues, and three were about an FMT bank...
May 31, 2017: BMC Medical Ethics
https://www.readbyqxmd.com/read/28560926/the-value-of-life-story-work-for-staff-people-with-dementia-and-family-members
#16
Aidín McKinney
Dementia is a term used to describe a collection of symptoms that include problems with memory, self-care, reasoning and communication. Care interventions that focus on preserving people's dignity and identity are therefore essential. Using Driscoll's reflective model to guide critical thinking, this article reflects on the use of one intervention, namely life story work, to promote person-centred care for people with dementia. It explores the value or effect of life story work for healthcare staff, the person with dementia and family members...
May 31, 2017: Nursing Older People
https://www.readbyqxmd.com/read/28559690/terminal-patients-and-the-right-to-refuse-medical-treatment-in-argentina
#17
Martín Hevia, Daniela Schnidrig
The right to health has many dimensions. On the one hand, it entails positive duties for states to protect the health of individuals. On the other, it encompasses patient decision making regarding personal health, an idea which is closely linked to the right to autonomy and the right to free development of the individual-that is, to dignity.(1) This is why the informed consent of the patient and her right to make a choice according to her own values should be honored, even when her decision may seem irrational or imprudent...
December 2016: Health and Human Rights
https://www.readbyqxmd.com/read/28558709/beneficiaries-perceptions-and-reported-use-of-unconditional-cash-transfers-intended-to-prevent-acute-malnutrition-in-children-in-poor-rural-communities-in-burkina-faso-qualitative-results-from-the-mam-out-randomized-controlled-trial
#18
Audrey Tonguet-Papucci, Freddy Houngbe, Palamanga Lompo, Wambi Maurice Evariste Yameogo, Jean-François Huneau, Myriam Ait Aissa, Patrick Kolsteren
BACKGROUND: Acute malnutrition is a public health issue worldwide, and particularly in the Eastern region of Burkina Faso. Following a needs assessment, unconditional seasonal, multiannual cash transfers were implemented as a safety net to prevent childhood undernutrition. The objectives of this study were to explore the types of purchases made by beneficiaries of this cash transfer program and to understand the perceived effects of and changes induced by regular cash transfers in the daily lives of women, and at the household and community level...
May 30, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28558489/ethical-dilemmas-during-cardiac-arrest-incidents-in-the-patient-s-home
#19
Mattias Karlsson, Niclas Karlsson, Yvonne Hilli
BACKGROUND: The majority (70%) of cardiac arrests in Sweden are experienced in the patient's home. In these situations, the ambulance nurses may encounter several ethical dilemmas. AIM: The aim was to investigate Swedish specialist ambulance nurses' experiences of ethical dilemmas associated with cardiac arrest situations in adult patients' homes. METHODS: Nine interviews were conducted with specialist ambulance nurses at four different ambulance stations in the southeast region of Sweden...
January 1, 2017: Nursing Ethics
https://www.readbyqxmd.com/read/28557586/qualitative-study-of-patients-and-caregivers-perceptions-and-information-preferences-about-hospice
#20
Areej El-Jawahri, Lara Traeger, Jennifer A Shin, Helen Knight, Kristina Mirabeau-Beale, Joel Fishbein, Harry H Vandusen, Vicki A Jackson, Angelo E Volandes, Jennifer S Temel
OBJECTIVE: The goal of this study is to assess perceptions about hospice among patients with metastatic cancer and their caregivers (i.e., family and/or friends). DESIGN AND SETTING: We conducted semi-structured interviews with 16 adult patients with a prognosis ≤12 months and 7 of their caregivers. The interviews focused on perceptions, knowledge, and information preferences about hospice. Two raters coded interviews independently (κ > 0.85). We used a framework approach for data analysis...
May 30, 2017: Journal of Palliative Medicine
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