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https://www.readbyqxmd.com/read/29777602/-suspension-of-respiratory-support-in-patients-with-amyotrophic-lateral-sclerosis
#1
Agustín A Silberberg, Josefina Robetto, Mora Achával
Decision making in advanced Amyotrophic Lateral Sclerosis (ALS) patients keeps on being a controversial issue. The aim of this work is to discuss ethical implications of withdrawing respiratory support treatment in patients with ALS. Through a bibliographic search on Pubmed database (2010-2016) we investigated whether or not the use of Non-Invasive Ventilation (NIV) and Mechanical Ventilation (MV) would increase survival and quality of life. We included 38 review articles. From these papers, results and ethical implications of initiating and mainly withdrawing respiratory support were analyzed...
May 2018: Cuadernos de Bioética: Revista Oficial de la Asociación Española de Bioética y Ética Médica
https://www.readbyqxmd.com/read/29771933/the-colours-and-contours-of-compassion-a-systematic-review-of-the-perspectives-of-compassion-among-ethnically-diverse-patients-and-healthcare-providers
#2
Pavneet Singh, Kathryn King-Shier, Shane Sinclair
OBJECTIVE: To identify and describe the perspectives, experiences, importance, and impact of compassionate care among ethnically diverse population groups. METHODS: A systematic search of peer-reviewed research focused on compassionate care in ethnically diverse populations published between 1946 and 2017 was conducted. RESULTS: A total of 2296 abstracts were retrieved, out of which 23 articles met the inclusion criteria. Synthesis of the literature identified the perspectives, facilitators and barriers of compassion in healthcare within ethnic groups...
2018: PloS One
https://www.readbyqxmd.com/read/29770893/the-biogenetical-revolution-of-the-council-of-europe-twenty-years-of-the-convention-on-human-rights-and-biomedicine-oviedo-convention
#3
REVIEW
Oktawian Nawrot
The Council of Europe's legal regulation concerning development of biology and medicine undoubtedly form the most interesting, but certainly not perfect, over-national system of protection of human beings in prenatal stages of development. The strength of the mentioned system is that it based on well-known and common acceptable values and rules such as human dignity and its protection. The aim of the paper is to present the reasons behind adopting such a system, as well as the consequences of the latter.The author argues that in such a way a revolution within the human rights system of the Council of Europe took place...
May 16, 2018: Life Sciences, Society and Policy
https://www.readbyqxmd.com/read/29766728/-euthanasia-legal-comparison-in-selected-european-countries
#4
Adam Doležal
This article deals with the subject of euthanasia (all its forms) and other end-of-life decisions, such as assisted suicide, withdrawing and whithholding life-sustaining treatments. Among other things, the article will also deal with the issue of the offense of Homicide by the Victims Request. Based on an empirical historical method, the article compares the various selected legal orders. From this analysis, it draws some conclusions that have an impact on ethical discourse. First of all, the terminology is defined in the article, which is very important in this area...
2018: Vnitr̆ní Lékar̆ství
https://www.readbyqxmd.com/read/29765962/value-of-eponyms-in-dermato-trichological-nomenclature
#5
REVIEW
Ralph M Trüeb
Traditionally, syndromes have been named after the physician who originally identified the condition. These are referred to as eponymous syndromes. Nevertheless, the term eponym is to be regarded in a broader sense, since - by definition - an eponym is a person, place, or thing after whom or which something is named. Accordingly, some eponymous syndromes do not refer to the physician who originally reported the condition, but alternatively to the indicator patient, a geographic location, or a historical, literary, or mythological context...
April 2018: Skin Appendage Disorders
https://www.readbyqxmd.com/read/29765211/usability-and-acceptability-of-technology-for-community-dwelling-older-adults-with-mild-cognitive-impairment-and-dementia-a-systematic-literature-review
#6
REVIEW
Torhild Holthe, Liv Halvorsrud, Dag Karterud, Kari-Anne Hoel, Anne Lund
Background: The objective of this review was to obtain an overview of the technologies that have been explored with older adults with mild cognitive impairment and dementia (MCI/D), current knowledge on the usability and acceptability of such technologies, and how people with MCI/D and their family carers (FCs) were involved in these studies. Materials and methods: Primary studies published between 2007 and 2017 that explored the use of technologies for community-dwelling people with MCI/D were identified through five databases: MEDLINE, PsycINFO, Embase, AMED, and CINAHL...
2018: Clinical Interventions in Aging
https://www.readbyqxmd.com/read/29764171/compassionate-communities-design-and-preliminary-results-of-the-experience-of-vic-barcelona-spain-caring-city
#7
Xavier Gómez-Batiste, Silvia Mateu, Susagna Serra-Jofre, Magda Molas, Sarah Mir-Roca, Jordi Amblàs, Xavier Costa, Cristina Lasmarías, Marta Serrarols, Alvar Solà-Serrabou, Candela Calle, Allan Kellehear
BACKGROUND: A program of Compassionate City or Community (CC) has been designed and developed in the City of Vic (43,964 habitants, Barcelona, Spain), based on The Compassionate City Charter and other public health literature and experiments, with the joint leadership of the City Council and the Chair of Palliative Care at the University of Vic, and as an expansion of a comprehensive and integrated system of palliative care. METHODS: The program started with an assessment of needs of the city as identified by 48 social organizations with a foundational workshop and a semi-structured survey...
April 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29757007/a-community-based-qualitative-assessment-of-knowledge-barriers-and-promoters-of-communicating-about-family-cancer-history-among-african-americans
#8
Anne F Rositch, Rebkha Atnafou, Melinda Krakow, Gypsyamber D'Souza
Family cancer history (FCH) can shape prevention and early detection behaviors to decrease cancer risk. However, many individuals are unaware of increased risk for cancers based on family patterns. For some African-American communities, communication about FCH is rare and barriers have not been well studied. To optimize the use of FCH, it is crucial to understand how patients gather and share FCH with relatives and healthcare providers. We conducted four focus groups (n = 40) and seven key informant interviews (n = 9) to investigate knowledge, experiences, and barriers/promoters of FCH in the East Baltimore African-American community...
May 14, 2018: Health Communication
https://www.readbyqxmd.com/read/29753647/translating-promising-strategies-for-bowel-and-bladder-management-in-spinal-cord-injury
#9
REVIEW
Tracey L Wheeler, William de Groat, Kymberly Eisner, Anton Emmanuel, Jennifer French, Warren Grill, Michael J Kennelly, Andrei Krassioukov, Bruno Gallo-Santacruz, Fin Biering-Sørensen, Naomi Kleitman
Loss of control over voiding following spinal cord injury (SCI) impacts autonomy, participation and dignity, and can cause life-threatening complications. The importance of SCI bowel and bladder dysfunction warrants significantly more attention from researchers in the field. To address this gap, key SCI clinicians, researchers, government and private funding organizations met to share knowledge and examine emerging approaches. This report reviews recommendations from this effort to identify and prioritize near-term treatment, investigational and translational approaches to addressing the pressing needs of people with SCI...
May 10, 2018: Experimental Neurology
https://www.readbyqxmd.com/read/29752838/making-best-use-of-patient-experience
#10
EDITORIAL
Miles Sibley, Ray Earwicker, Jörg W Huber
Everyone is familiar with words like respect, dignity and compassion. Thank you cards and boxes of chocolates are visible signs of appreciation from patients who feel well looked after by healthcare staff. And everyone recognises the importance of good communication. This article is protected by copyright. All rights reserved.
May 12, 2018: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29751805/predictors-of-person-centered-maternity-care-the-role-of-socioeconomic-status-empowerment-and-facility-type
#11
Patience A Afulani, Takudzwa S Sayi, Dominic Montagu
BACKGROUND: Low use of maternal health services, as well as poor quality care, contribute to the high maternal mortality in sub-Saharan Africa (SSA). In particular, poor person-centered maternity care (PCMC), which captures user experience, contributes both directly to pregnancy outcomes and indirectly through decreased demand for services. While many studies have examined disparities in use of maternal health services, few have examined disparities in quality of care, and none to our knowledge has empirically examined disparities in PCMC in SSA...
May 11, 2018: BMC Health Services Research
https://www.readbyqxmd.com/read/29748717/ethical-challenges-in-resuscitation
#12
REVIEW
Spyros D Mentzelopoulos, Anne-Marie Slowther, Zoe Fritz, Claudio Sandroni, Theodoros Xanthos, Clifton Callaway, Gavin D Perkins, Craig Newgard, Eleni Ischaki, Robert Greif, Erwin Kompanje, Leo Bossaert
PURPOSE: A rapidly evolving resuscitation science provides more effective treatments to an aging population with multiple comorbidites. Concurrently, emergency care has become patient-centered. This review aims to describe challenges associated with the application of key principles of bioethics in resuscitation and post-resuscitation care; propose actions to address these challenges; and highlight the need for evidence-based ethics and consensus on ethical principles interpretation. METHODS: Following agreement on the article's outline, subgroups of 2-3 authors provided narrative reviews of ethical issues concerning autonomy and honesty, beneficence/nonmaleficence and dignity, justice, specific practices/circumstances such as family presence during resuscitation, and emergency research...
May 10, 2018: Intensive Care Medicine
https://www.readbyqxmd.com/read/29747631/feasibility-acceptability-and-adaption-of-dignity-therapy-a-mixed-methods-study-achieving-360%C3%A2-feedback
#13
Sandra Stephanie Mai, Swantje Goebel, Elisabeth Jentschke, Birgitt van Oorschot, Karl-Heinz Renner, Martin Weber
BACKGROUND: Dignity Therapy (DT) is a short-term intervention to reduce psychological suffering in end-of-life care. Its strength lies in evidenced-based development and investigation. The aim of the present study is to investigate the feasibility of DT at German palliative care units (PCU), as well as the acceptability and adaption of a German version of the DT question protocol (DTQP). METHOD: A clinical multicentre mixed methods study, whereby patients and relatives provided quantitative (feedback questionnaires) and qualitative (cognitive interviews) data on the DT intervention...
May 10, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29742044/end-of-life-decision-making-in-palliative-care-and-recommendations-of-the-council-of-europe-qualitative-secondary-analysis-of-interviews-and-observation-field-notes
#14
Sandra Martins Pereira, Emília Fradique, Pablo Hernández-Marrero
BACKGROUND: End-of-life decisions (ELDs) are embedded in clinical, sociocultural, political, economic, and ethical concerns. In 2014, the Council of Europe (CoE) through its Committee on Bioethics launched the "Guide on the decision-making process regarding medical treatment in end-of-life situations," aiming at improving decision-making processes and empowering professionals in making ELDs. OBJECTIVE: To analyze if end-of-life decision making in palliative care (PC) is consistent with this Guide and to identify if disputed/controversial issues are part of current ELDs...
May 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29734921/on-dignity-and-psychiatry
#15
Meghan Caughey
No abstract text is available yet for this article.
May 8, 2018: Psychiatric Services: a Journal of the American Psychiatric Association
https://www.readbyqxmd.com/read/29734885/patients-perception-of-dignity-in-iranian-general-hospital-settings
#16
Fahimeh Alsadat Hosseini, Marzieh Momennasab, Shahrzad Yektatalab, Armin Zareiyan
BACKGROUND: Dignified care is one of the main objectives of holistic care. Furthermore, paying attention to dignity as one of the fundamental rights of patients is extremely important. However, in many cases, the dignity of hospitalized patients is not considered. Dignity is an abstract concept, and comprehensive studies of the dignity of Iranian patients hospitalized in general hospital settings are limited. OBJECTIVE: The aim of this study was to explore the concept of dignity from the perspective of patients hospitalized in general hospital settings in Iran...
January 1, 2018: Nursing Ethics
https://www.readbyqxmd.com/read/29728746/-contrast-enhanced-ultrasound-in-the-diagnostic-workup-of-lymph-nodes
#17
REVIEW
H-P Weskott
CLINICAL/METHODICAL ISSUE: Daily tasks in sonographic diagnostics include detection and characterization of peripheral and abdominal lymph nodes. STANDARD RADIOLOGICAL METHODS: In addition to the B‑mode methods, color-coded Doppler sonography (CCDS) plays an important role in the evaluation of lymph nodes. METHODICAL INNOVATIONS: Contrast-enhanced ultrasound (CEUS) has become a standard procedure in vascular and organ diagnostics. Tissue perfusion can be recorded visually and retrospectively in real time using time-dependent intensity analysis...
May 4, 2018: Der Radiologe
https://www.readbyqxmd.com/read/29724694/the-supreme-court-of-india-on-euthanasia-too-little-too-late
#18
Sunita Vs Bandewar, Leni Chaudhuri, Lubna Duggal, Sanjay Nagral
On Friday, March 9, 2018 the five-judge Constitution Bench (CB) of the Supreme Court of India (SCI) chaired by Dipak Misra, the Chief Justice of India, pronounced its judgment (1) (henceforth CC judgment) granting, for the first time in India, legal recognition to "advanced medical directives" or "living wills", ie, a person's decision communicated in advance on withdrawal of life-saving treatment under certain conditions, which should be respected by the treating doctor/s and the hospital...
April 2018: Indian Journal of Medical Ethics
https://www.readbyqxmd.com/read/29717962/the-problem-of-obesity-and-dietary-nudges
#19
Eliah J White
From a psychological perspective, Cass R. Sunstein's 2016 book The Ethics of Influence is an insightful examination of the ethics of using social and cognitive psychological principles to influence behavior and decision-making. The United States has been experiencing what can only be described as an obesity epidemic. Scientists know that this epidemic has been brought about in part by the prevailing choice architecture, which influences what we eat, how much we eat, and how little we exercise. From a public health perspective, the policy issue centers on how a democracy can employ a combination of bans, mandates, and nudges to reshape our dietary habits to combat obesity...
2018: Politics and the Life Sciences: the Journal of the Association for Politics and the Life Sciences
https://www.readbyqxmd.com/read/29717961/breast-cancer-screening
#20
David Vanderburgh
Cass R. Sunstein's 2016 book The Ethics of Influence: Government in the Age of Behavioral Science provides an extremely informative introduction to the science and ethics of the exercise of "influence" over others. As a longtime physician employed in both the public and private sectors, I now recognize that most of my formal training has been in the hard sciences, with little, if any, training in the appropriate influence of the decision-making processes of my patients and/or other health care professionals in institutional settings...
2018: Politics and the Life Sciences: the Journal of the Association for Politics and the Life Sciences
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