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https://www.readbyqxmd.com/read/28329466/healthcare-reform-literacy-among-academic-dermatologists-what-we-know-and-don-t-know-about-the-affordable-care-act
#1
Brian A Raphael, Suephy Chen, Benjamin Stoff
IMPORTANCE: There have been no attempts to determinethe understanding of the Affordable Care Act (ACA)among dermatologists. OBJECTIVE: Assess knowledgeof the ACA among academic dermatologists. DESIGN: A 21-item survey was administered to membersof the Association of Professors of Dermatology(APD). The items assessed knowledge and opinionsof the ACA, and demographics of the participants.Multivariate regressions were conducted todetermine associations between variables...
January 15, 2017: Dermatology Online Journal
https://www.readbyqxmd.com/read/28320476/developing-and-evaluating-rare-disease-educational-materials-co-created-by-expert-clinicians-and-patients-the-paradigm-of-congenital-hypogonadotropic-hypogonadism
#2
Corin Badiu, Marco Bonomi, Ivan Borshchevsky, Martine Cools, Margarita Craen, Cristina Ghervan, Michael Hauschild, Eli Hershkovitz, Erik Hrabovszky, Anders Juul, Soo-Hyun Kim, Phillip Kumanov, Beatriz Lecumberri, Manuel C Lemos, Vassos Neocleous, Marek Niedziela, Sandra Pekic Djurdjevic, Luca Persani, Franziska Phan-Hug, Duarte Pignatelli, Nelly Pitteloud, Vera Popovic, Richard Quinton, Nicos Skordis, Neil Smith, Magdalena Avbelj Stefanija, Cheng Xu, Jacques Young, Andrew A Dwyer
BACKGROUND: Patients with rare diseases face health disparities and are often challenged to find accurate information about their condition. We aimed to use the best available evidence and community partnerships to produce patient education materials for congenital hypogonadotropic hypogonadism (CHH) and the olfacto-genital (Kallmann) syndrome (i.e., CHH and defective sense of smell), and to evaluate end-user acceptability. Expert clinicians, researchers and patients co-created the materials in a multi-step process...
March 20, 2017: Orphanet Journal of Rare Diseases
https://www.readbyqxmd.com/read/28292571/health-literacy-and-quality-of-care-of-patients-with-diabetes-a-cross-sectional-analysis
#3
Emilie Zuercher, Ibrahima Dina Diatta, Bernard Burnand, Isabelle Peytremann-Bridevaux
BACKGROUND: Limited health literacy (HL) may lead to poor health outcomes and inappropriate healthcare use, particularly in patients with chronic diseases. We aimed to assess the association between functional HL (FHL) and quality of care, as measured by process- and outcome-of-care indicators, in patients with diabetes. METHODS: This cross-sectional study used data from the 2013 CoDiab-VD cohort follow-up, which included non-institutionalised adults with diabetes from canton of Vaud, Switzerland...
March 11, 2017: Primary Care Diabetes
https://www.readbyqxmd.com/read/28284203/factors-associated-with-cervical-cancer-screening-participation-among-immigrants-of-russian-somali-and-kurdish-origin-a-population-based-study-in-finland
#4
Esther E Idehen, Tellervo Korhonen, Anu Castaneda, Teppo Juntunen, Mari Kangasniemi, Anna-Maija Pietilä, Päivikki Koponen
BACKGROUND: Previous studies revealed low participation in cervical cancer screening among immigrants compared with non-immigrants. Only a few studies about factors associated with immigrants' lower participation rates have been conducted in European countries that have universal access for all eligible women. Our study aimed to explore factors associated with cervical screening participation among women of Russian, Somali, and Kurdish origin in Finland. METHODS: We used data from the Migrant Health and Well-being Survey, 2010-2012...
March 11, 2017: BMC Women's Health
https://www.readbyqxmd.com/read/28280057/discourses-of-prejudice-in-the-professions-the-case-of-sign-languages
#5
Tom Humphries, Poorna Kushalnagar, Gaurav Mathur, Donna Jo Napoli, Carol Padden, Christian Rathmann, Scott Smith
There is no evidence that learning a natural human language is cognitively harmful to children. To the contrary, multilingualism has been argued to be beneficial to all. Nevertheless, many professionals advise the parents of deaf children that their children should not learn a sign language during their early years, despite strong evidence across many research disciplines that sign languages are natural human languages. Their recommendations are based on a combination of misperceptions about (1) the difficulty of learning a sign language, (2) the effects of bilingualism, and particularly bimodalism, (3) the bona fide status of languages that lack a written form, (4) the effects of a sign language on acquiring literacy, (5) the ability of technologies to address the needs of deaf children and (6) the effects that use of a sign language will have on family cohesion...
March 9, 2017: Journal of Medical Ethics
https://www.readbyqxmd.com/read/28277275/association-between-health-literacy-and-30-day-healthcare-use-after-hospital-discharge-in-the-heart-failure-population
#6
Sarah R Cox, Michael G Liebl, Meghan N McComb, Jason Q Chau, Allison A Wilson, May Achi, Kevin W Garey, David Wallace
BACKGROUND: Low health literacy increases the risk for hospital readmissions. Despite this, the measurement and use of health literacy to guide discharge counseling and planning in heart failure patients is not commonly performed. A short 3-Question Brief Health Literacy Screen (BHLS) is available and takes less than three minutes to complete, but has never been evaluated to help determine whether health literacy affects healthcare use after discharge in patients with heart failure. OBJECTIVE: The purpose of this study was to assess 30-day readmissions and emergency department visits based on health literacy evaluated by the BHLS in an acute care heart failure population...
October 14, 2016: Research in Social & Administrative Pharmacy: RSAP
https://www.readbyqxmd.com/read/28277021/the-chinese-and-korean-american-immigrant-experience-a-mixed-methods-examination-of-facilitators-and-barriers-of-colorectal-cancer-screening
#7
Mary Y Jung, Cheryl L Holt, Diane Ng, Hwa J Sim, Xiaoxiao Lu, Daisy Le, Hee-Soon Juon, Jun Li, Sunmin Lee
OBJECTIVE: Among Asian Americans, colorectal cancer (CRC) is the second leading cause of cancer deaths. Despite strong evidence that screening can reduce CRC-related mortality, fewer Chinese and Koreans receive screening as compared to non-Hispanic whites and blacks. The objective of this study was to examine facilitators and barriers as well as strategies to promote CRC screening in this population. DESIGN: This study employed a mixed-methods design. We conducted 17 key informant interviews and 12 focus groups in the Washington, D...
February 25, 2017: Ethnicity & Health
https://www.readbyqxmd.com/read/28274601/producing-a-worthy-illness-personal-crowdfunding-amidst-financial-crisis
#8
Lauren S Berliner, Nora J Kenworthy
For Americans experiencing illnesses and disabilities, crowdfunding has become a popular strategy for addressing the extraordinary costs of health care. The political, social, and health consequences of austerity--along with fallout from the 2008 financial collapse and the shortcomings of the Affordable Care Act (ACA)--are made evident in websites like GoFundMe. Here, patients and caregivers create campaigns to solicit donations for medical care, hoping that they will spread widely through social networks. As competition increases among campaigns, patients and their loved ones are obliged to produce compelling and sophisticated appeals...
February 8, 2017: Social Science & Medicine
https://www.readbyqxmd.com/read/28270870/readability-of-healthcare-literature-for-gastroparesis-and-evaluation-of-medical-terminology-in-reading-difficulty
#9
Andrew Meillier, Shyam Patel
BACKGROUND: Gastroparesis is a chronic condition that can be further enhanced with patient understanding. Patients' education resources on the Internet have become increasingly important in improving healthcare literacy. We evaluated the readability of online resources for gastroparesis and the influence by medical terminology. METHODS: Google searches were performed for "gastroparesis", "gastroparesis patient education material" and "gastroparesis patient information"...
February 2017: Gastroenterology Research
https://www.readbyqxmd.com/read/28265579/the-next-frontier-in-communication-and-the-eclippse-study-bridging-the-linguistic-divide-in-secure-messaging
#10
REVIEW
Dean Schillinger, Danielle McNamara, Scott Crossley, Courtney Lyles, Howard H Moffet, Urmimala Sarkar, Nicholas Duran, Jill Allen, Jennifer Liu, Danielle Oryn, Neda Ratanawongsa, Andrew J Karter
Health systems are heavily promoting patient portals. However, limited health literacy (HL) can restrict online communication via secure messaging (SM) because patients' literacy skills must be sufficient to convey and comprehend content while clinicians must encourage and elicit communication from patients and match patients' literacy level. This paper describes the Employing Computational Linguistics to Improve Patient-Provider Secure Email (ECLIPPSE) study, an interdisciplinary effort bringing together scientists in communication, computational linguistics, and health services to employ computational linguistic methods to (1) create a novel Linguistic Complexity Profile (LCP) to characterize communications of patients and clinicians and demonstrate its validity and (2) examine whether providers accommodate communication needs of patients with limited HL by tailoring their SM responses...
2017: Journal of Diabetes Research
https://www.readbyqxmd.com/read/28253883/systematic-development-and-implementation-of-interventions-to-optimise-health-literacy-and-access-ophelia
#11
Alison Beauchamp, Roy W Batterham, Sarity Dodson, Brad Astbury, Gerald R Elsworth, Crystal McPhee, Jeanine Jacobson, Rachelle Buchbinder, Richard H Osborne
BACKGROUND: The need for healthcare strengthening to enhance equity is critical, requiring systematic approaches that focus on those experiencing lesser access and outcomes. This project developed and tested the Ophelia (OPtimising HEalth LIteracy and Access) approach for co-design of interventions to improve health literacy and equity of access. Eight principles guided this development: Outcomes focused; Equity driven, Needs diagnosis, Co-design, Driven by local wisdom, Sustainable, Responsive and Systematically applied...
March 3, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28248747/intention-to-use-mhealth-in-older-adults-with-heart-failure
#12
Maan Isabella Cajita, Nancy A Hodgson, Chakra Budhathoki, Hae-Ra Han
BACKGROUND: mHealth, or the use of mobile technology in healthcare, is becoming increasingly common. In heart failure (HF), mHealth has been associated with improved self-management and quality of life. However, it is known that older adults continue to lag behind their younger counterparts when it comes to mobile technology adoption. OBJECTIVE: The primary aim of this study was to examine factors that influence intention to use mHealth among older adults with HF...
February 28, 2017: Journal of Cardiovascular Nursing
https://www.readbyqxmd.com/read/28248634/health-service-planning-and-sustainable-development-considering-what-where-and-how-care-is-delivered-through-a-pro-environmental-lens
#13
Sharon Desmond
The aim of the present paper was to review the opportunities currently available to health service planners to advance sustainable development in their future-facing roles within health service organisation. Critical challenges and enablers to facilitate health services planners in adopting a pro-environmental lens are discussed.What is known about the topic? Despite its harmful effect on the environment, health has been slower than other industries to embrace the sustainable development agenda. The attitudes and knowledge base of health service planners with regard to environmental sustainability has not been widely studied...
March 2, 2017: Australian Health Review: a Publication of the Australian Hospital Association
https://www.readbyqxmd.com/read/28221213/validation-of-the-european-health-literacy-survey-questionnaire-in-women-with-breast-cancer
#14
Yi-Jing Huang, Gong-Hong Lin, Wen-Shian Lu, Ka-Wai Tam, Chiehfeng Chen, Wen-Hsuan Hou, Ching-Lin Hsieh
BACKGROUND: Health literacy enables effective communication, participation, and cooperation with clinicians of patients with breast cancer in healthcare processes. The European Health Literacy Survey Questionnaire (HLS-EU-Q) comprehensively assesses multiple conceptual domains of health literacy in a diverse range of health contexts. However, the HLS-EU-Q has not been validated in women with breast cancer. OBJECTIVES: We examined the psychometric properties, particularly the factorial validity, of the HLS-EU-Q in women with breast cancer...
February 17, 2017: Cancer Nursing
https://www.readbyqxmd.com/read/28219334/assessing-the-predictive-power-of-psychological-empowerment-and-health-literacy-for-older-patients-participation-in-health-care-a-cross-sectional-population-based-study
#15
Gabriele Sak, Fabia Rothenfluh, Peter J Schulz
BACKGROUND: Research has confirmed a positive link between patient involvement in decision-making and improvements in health outcomes. The objective of this study was to examine the roles of psychological empowerment and health literacy on the elderly's willingness to engage in treatment decisions. METHODS: A self-administered questionnaire was completed by a randomly selected sample of Swiss adults aged 65-80 years old (N = 826). Multivariate logistic regression was applied to determine the contribution of health literacy, psychological empowerment, and trust in physician on participants' preference to be active, collaborative or passive in decision-making...
February 20, 2017: BMC Geriatrics
https://www.readbyqxmd.com/read/28211981/first-report-of-factors-associated-with-satisfaction-in-patients-with-neurofibromatosis
#16
Eric Riklin, Mojtaba Talaei-Kheoi, Vanessa L Merker, Monica R Sheridan, Justin T Jordan, Scott R Plotkin, Ana-Maria Vranceanu
Patient satisfaction is an integral part of quality health care. We assessed whether health literacy and psychosocial factors are associated with patient satisfaction among adults with neurofibromatosis. Eighty adults (mean age = 44 years; 55% female, 87% white) with NF (50% NF1, 41% NF2, and 9% schwannomatosis) completed an adapted Functional, Communicative, and Critical Health Literacy Questionnaire (FCCHL), the Health Literacy Assessment, a series of Patient Reported Outcome Measures Information System (PROMIS) psychosocial tests, and demographics before the medical visit...
March 2017: American Journal of Medical Genetics. Part A
https://www.readbyqxmd.com/read/28209185/health-literacy-in-a-community-with-low-levels-of-education-findings-from-chakaria-a-rural-area-of-bangladesh
#17
Susmita Das, Mohammad Nahid Mia, Syed Manzoor Ahmed Hanifi, Shahidul Hoque, Abbas Bhuiya
BACKGROUND: Health literacy (HL) helps individuals to make effective use of available health services. In low-income countries such as Bangladesh, the less than optimum use of services could be due to low levels of HL. Bangladesh's health service delivery is pluralistic with a mix of public, private and informally trained healthcare providers. Emphasis on HL has been inadequate. Thus, it is important to assess the levels of HL and service utilization patterns. The findings from this study aim to bridge the knowledge gap...
February 16, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28197620/measuring-practicing-clinicians-information-literacy-an-exploratory-analysis-in-the-context-of-panel-management
#18
Brian E Dixon, Katherine Barboza, Ashley E Jensen, Katelyn J Bennett, Scott E Sherman, Mark D Schwartz
BACKGROUND: As healthcare moves towards technology-driven population health management, clinicians must adopt complex digital platforms to access health information and document care. OBJECTIVES: This study explored information literacy, a set of skills required to effectively navigate population health information systems, among primary care providers in one Veterans' Affairs (VA) medical center. METHODS: Information literacy was assessed during an 8-month randomized trial that tested a population health (panel) management intervention...
February 15, 2017: Applied Clinical Informatics
https://www.readbyqxmd.com/read/28197420/the-challenges-of-electronic-health-records-and-diabetes-electronic-prescribing-implications-for-safety-net-care-for-diverse-populations
#19
REVIEW
Neda Ratanawongsa, Lenny L S Chan, Michelle M Fouts, Elizabeth J Murphy
Widespread electronic health record (EHR) implementation creates new challenges in the diabetes care of complex and diverse populations, including safe medication prescribing for patients with limited health literacy and limited English proficiency. This review highlights how the EHR electronic prescribing transformation has affected diabetes care for vulnerable patients and offers recommendations for improving patient safety through EHR electronic prescribing design, implementation, policy, and research. Specifically, we present evidence for (1) the adoption of RxNorm; (2) standardized naming and picklist options for high alert medications such as insulin; (3) the widespread implementation of universal medication schedule and language-concordant labels, with the expansion of electronic prescription 140-character limit; (4) enhanced bidirectional communication with pharmacy partners; and (5) informatics and implementation research in safety net healthcare systems to examine how EHR tools and practices affect diverse vulnerable populations...
2017: Journal of Diabetes Research
https://www.readbyqxmd.com/read/28195649/validity-and-utility-of-the-patient-health-questionnaire-phq-2-and-phq-9-for-screening-and-diagnosis-of-depression-in-rural-chiapas-mexico-a-cross-sectional-study
#20
Jafet Arrieta, Mercedes Aguerrebere, Giuseppe Raviola, Hugo Flores, Patrick Elliott, Azucena Espinosa, Andrea Reyes, Eduardo Ortiz-Panozo, Elena G Rodriguez-Gutierrez, Joia Mukherjee, Daniel Palazuelos, Molly F Franke
BACKGROUND: Depressive disorders are frequently under diagnosed in resource-limited settings because of lack of access to mental health care or the inability of healthcare providers to recognize them. The Patient Health Questionnaire (PHQ)-2 and the PHQ-9 have been widely used for screening and diagnosis of depression in primary care settings; however, the validity of their use in rural, Spanish-speaking populations is unknown. METHOD: We used a cross-sectional design to assess the psychometric properties of the PHQ-9 for depression diagnosis and estimated the sensitivity and specificity of the PHQ-2 for depression screening...
February 13, 2017: Journal of Clinical Psychology
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