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Legal rheumatology

N Junod Perron, M C Audetat, S Mazouri, M Schindler, D M Haller, J Sommer
BACKGROUND: Moving from postgraduate training into independent practice represents a major transition in physicians' professional life. Little is known about how Swiss primary care graduates experience such a transition. The aim of this study was to explore the extent to which primary care physicians who recently set up private practice felt prepared to work as independent practitioners. METHODS: We conducted 7 focus groups among recently established (≤ 5 years) primary care physicians in Switzerland...
April 4, 2018: BMC Medical Education
Jasmin B Kuemmerle-Deschner, Sandra Hansmann, Nico M Wulffraat, Sebastiaan J Vastert, Kristien Hens, Jordi Anton, Tadej Avcin, Alberto Martini, Isabelle Koné-Paut, Yosef Uziel, Angelo Ravelli, Carine Wouters, David Shaw, Seza Özen, Andreas Eikelberg, Berent J Prakken, Nicolino Ruperto, Gerd Horneff, Tamas Constantin, Michael W Beresford, Marijn Sikken, Helen E Foster, Iris Haug, Sabrina Schuller, Christine Jägle, Susanne M Benseler
Innovative research in childhood rheumatic diseases mandates international collaborations. However, researchers struggle with significant regulatory heterogeneity; an enabling European Union (EU)-wide framework is missing. The aims of the study were to systematically review the evidence for best practice and to establish recommendations for collaborative research. The Paediatric Rheumatology European Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) project enabled a scoping review and expert discussion, which then informed the systematic literature review...
October 11, 2017: Annals of the Rheumatic Diseases
Mary-Ann Fitzcharles, Winfried Häuser
The endocannabinoid system impacts pain and inflammation with potential for therapeutic effect on patients with rheumatic diseases. The current treatment options include the herbal product derived from the plant Cannabis sativa, as well as pharmaceutical preparations. The legalization of medicinal cannabis (marijuana) in many jurisdictions and widespread public advocacy has propelled an interest in use either by prescription or self-medication. In this review, we examine current evidence for efficacy and adverse effects of any cannabinoid product in rheumatic conditions...
December 2016: Current Rheumatology Reports
Jutta G Richter, Gamal Chehab, Matthias Schneider
Electronic health records are increasingly used and frequently required from various regulatory authorities. Apart from their day-to-day use by health care professionals for routine clinical practice and/or the improvement of quality of care processes, patients with chronic inflammatory disease may become increasingly involved in the data retrieval process by self-monitoring and providing patient-reported (outcome) data. Among key features of electronic health records are automated scoring, visualisation of validated measures, and long-term systematic patient-centered data collection in a structured and standardised manner...
September 2016: Clinical and Experimental Rheumatology
Mary-Ann Fitzcharles, Elizabeth M Hazel, Gregory Taylor, Lori B Tucker
No abstract text is available yet for this article.
April 2016: Journal of Rheumatology
Hélène Colineaux, Adeline Ruyssen-Witrand, Anne Cambon-Thomsen
INTRODUCTION: The use of genetic predictive markers in medical practice does not necessarily bear the same kind of medical and ethical consequences than that of genes directly involved in monogenic diseases. However, the French bioethics law framed in the same way the production and use of any genetic information. It seems therefore necessary to explore the practical and ethical context of the actual use of predictive markers in order to highlight their specific stakes. In this study, we document the uses of HLA-B(*)27, which are an interesting example of the multiple features of genetic predictive marker in general medical practice...
2015: Frontiers in Genetics
Miguel Ángel Abad Hernández, José Luis Andreu, Miguel Ángel Caracuel Ruiz, Miguel Ángel Belmonte Serrano, Federico Díaz-González, José Vicente Moreno Muelas
A biosimilar (BS) is a biological drug that contains a version of the active substance of an already authorized original biological product. The BSs are marketed after patent period of the original drug has ended and once it has been demonstrated that the differences regarding the innovative medicine have no relevant effect on its safety or clinical efficacy. The Spanish Society of Rheumatology, in line with the European Medicines Agency, considers that because of its nature and complexity of production, a BS cannot be considered to be the same as a generic drug...
September 2015: Reumatología Clinica
Mary-Ann Fitzcharles, Peter A Ste-Marie, Daniel J Clauw, Shahin Jamal, Jacob Karsh, Sharon LeClercq, Jason J McDougall, Yoram Shir, Kam Shojania, Zach Walsh
BACKGROUND: Arthritis pain is reported as one of the most common reasons for persons using medical herbal cannabis in North America. "Severe arthritis" is the condition justifying legal use of cannabis in over half of all authorizations in Canada, where cannabis remains a controlled substance. As champions for the care of persons with arthritis, rheumatologists must be knowledgeable of treatment modalities both traditional and non-traditional, used by their patients. As study of cannabinoid molecules in medicine is recent, we have examined the confidence in the knowledge of cannabinoids expressed by Canadian rheumatologists...
2014: BMC Musculoskeletal Disorders
R M Harden
Professor R. M. Harden, from the Centre for Medical Education in Dundee, has selected 8 articles which he thought might be of interest to readers of Medical Teacher. His personal comments appear at the end of each review. Medical Audit 'A trial of two strategies to modify the test-ordering behaviour of medical residents' Martin, A. R., Wolf, M. A., Thibodeau, L. A., Dzau, V. and Braunwald, E. New England Journal of Medicine, 1980, 303, 1330-1336. Patient Education in Critical Care 'A comparison of in-hospital education approaches for coronary bypass patients' Barbarowicz, P...
1982: Medical Teacher
Maria Carolina Ortube, Samuel P Strom, Stanley F Nelson, Steven Nusinowitz, Ariadna Martinez, Michael B Gorin
BACKGROUND: A pediatric patient presented with rapidly progressive vision loss, nyctalopia and retinal dystrophy. This is the first report of homozygosity for the p.Arg602Trp mutation in the ABCA4 gene. The child became legally blind within a period of 2 years. CASE PRESENTATION: An eight year-old Hispanic female presented with bilateral decreased vision following a febrile gastrointestinal illness with nausea and vomiting. Extensive workup involved pediatric infectious disease and rheumatology consultations...
January 20, 2014: BMC Medical Genetics
Frederick Wolfe, Brian Walitt
Fibromyalgia is a common but contested illness. Its definition and content have changed repeatedly in the 110 years of its existence. The most important change was the requirement for multiple tender points and extensive pain that arose in the 1980s, features that were not required previously. By 2010, a second shift occurred that excluded tender points, allowed less extensive pain, and placed reliance on patient-reported somatic symptoms and cognitive difficulties ('fibro fog') that had never been part of past definitions or content...
December 2013: Nature Reviews. Rheumatology
Arthur Kavanaugh, Roy Fleischmann, Martin Jan Bergman, Eric Ruderman, Orrin Troum, Alvin F Wells, George Martin, Leonard H Calabrese, Allan Gibofsky, Vibeke Strand, John J Cush
Advances in rheumatology occur at a rapid pace and staying abreast of important changes is a challenge for all. Both novel drug development and enhanced understanding of conventional or historic therapies have molded current day rheumatologic practice. Rheumatology has led the way in the use of outcome measures and imaging modalities in common disorders like rheumatoid arthritis, osteoarthritis, and gout. The expertise of the rheumatologist has widened such that knowledge of economics, legal issues, related disorders and extraarticular disease is essential...
June 2013: Seminars in Arthritis and Rheumatism
W Fiori, H-J Lakomek, K Buscham, H Lehmann, A-K Fuchs, F Bessler, N Roeder
Hospital financing is again subjected to a multitude of reforms that can be of relevance for rheumatology in 2013. Besides changes in the German diagnosis-related group (G-DRG) classification system and coding, modifications in the legislation and legal framework conditions have a growing impact on the economic situation and strategy of hospitals. The following article presents the major changes and discusses consequences for hospitals specialized in rheumatology.
April 2013: Zeitschrift Für Rheumatologie
A Bönisch, M Dorn, I Ehlebracht-König
AIM OF THE STUDY: To analyze the short-term efficacy of the Vocational Perspective programme for patients identified as having extensive work-related problems during rheumatology or orthopaedic inpatient rehabilitation. The primary objectives of the programme on patient level are to convey information about the legal provisions regarding earning incapacity and occupational reintegration, to suggest strategies for dealing with one's own occupational situation, and to strengthen the motivation to stay employed...
January 2012: Die Rehabilitation
Zoe Price, Daniel Murphy, Kirsten Mackay
OBJECTIVE: To determine the current practice of UK rheumatologists regarding driving advice and intra-articular injection. A secondary objective was to clarify legal advice on driving after intra-articular injection. METHODS: A link to an online questionnaire was sent out via the British Society of Rheumatology (BSR) monthly e-newsletter to all BSR members in January 2010. In addition, we contacted the Medical Defence union (MDU), Medical Protection Society (MPS), Driving and Vehicle Licensing Agency (DVLA) and insurance companies for statements regarding legal advice...
December 2011: Musculoskeletal Care
Felipe Azevedo Moretti, Paola Zucchi
OBJECTIVE: To analyze organizational characteristics of support groups that represent rheumatic patients in the Brazilian states. METHODS: Initially a mapping of the desired universe was made. Contact was attempted with all organizations and they were asked to answer a structuralized electronic questionnaire with the purpose of understanding the profile of these organizations (developed initiatives, legal aspects, difficulties, strong points, among others). RESULTS: 45 organizations were identified...
September 2010: Revista Brasileira de Reumatologia
William G Dixon, Loreto Carmona, Axel Finckh, Merete Lund Hetland, Tore K Kvien, Robert Landewe, Joachim Listing, Paulo J Nicola, Ulrik Tarp, Angela Zink, Johan Askling
OBJECTIVES: The introduction of biological therapies for the treatment of rheumatic diseases has drawn attention to the limitations of traditional means of assessing drug safety. Consequently, a series of European academic biologics registers dedicated to this task have been established. Increasing reliance upon safety data generated from observational drug registers makes it important to convert the lessons learned from such registers into recommendations for rheumatologists embarking upon the establishment of future registers, or analysing and reporting from new and existing registers...
September 2010: Annals of the Rheumatic Diseases
Takahiro Higashi, Takeo Nakayama, Shunichi Fukuhara, Hisashi Yamanaka, Tsuneyo Mimori, Junnosuke Ryu, Kazuo Yonenobu, Norikazu Murata, Hiroaki Matsuno, Hajime Ishikawa, Takahiro Ochi
OBJECTIVE: To examine the views of rheumatology physicians concerning clinical practice guidelines in Japan, and changes to them following the dissemination of new guidelines for rheumatoid arthritis (RA) in 2004. DESIGN: Two cross-sectional questionnaire surveys, the first conducted before publication of new evidence-based RA clinical practice guidelines and the second conducted after implementation. SETTING: Rheumatology-focused practices in Japan...
April 2010: International Journal for Quality in Health Care
Yasser El Miedany, Deborah Palmer
Patient-reported outcome measures (PROMs) are an attractive option in standard clinical practice. However, they do need to be validated on a broader spectrum of disease activity. Another factor to consider is patient adherence to treatment programmes which is directly linked to their satisfaction with clinical outcome. A recently developed multidimensional health assessment questionnaire has proved to be valid, save time and provide permanent medical and medico-legal documentation of the patient status at a given time...
May 22, 2008: British Journal of Nursing: BJN
R Treves, D Coyral
Since 1997, legal judgments in France have revolutionized the concept of patient information. Medical information must now be clear and include all serious risks of investigations and therapies. We evaluated patients' opinions after their medical examination and scrutiny of information cards prepared by the French Society of Rheumatology. A questionnaire was used to assess the effectiveness and comprehension of the cards, and their potential to induce anxiety. Written informed consent was provided by the majority of patients...
2004: Bulletin de L'Académie Nationale de Médecine
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