Konrad M Szymanski, Cyrus M Adams, Mohammad Y Alkawaldeh, Paul F Austin, Robin M Bowman, Heidi Castillo, Jonathan Castillo, David I Chu, Carlos R Estrada, Michele Fascelli, Dominic C Frimberger, Patricio C Gargollo, Dawud G Hamdan, Sarah L Hecht, Betsy Hopson, Douglas A Husmann, Micah A Jacobs, Andrew E MacNeily, Daryl J McLeod, Peter D Metcalfe, Theresa Meyer, Rosalia Misseri, Joseph O'Neil, Adam J Rensing, Jonathan C Routh, Kyle O Rove, Kathleen J Sawin, Bruce J Schlomer, Isaac Shamblin, Rebecca L Sherlock, Gennady Slobodov, Jennifer Stout, Stacy T Tanaka, Dana A Weiss, John S Wiener, Hadley M Wood, Elizabeth B Yerkes, Jeffrey Blount
PURPOSE: This study aimed to analyze organ system-based causes and non-organ system-based mechanisms of death (COD, MOD) in people with myelomeningocele (MMC), comparing urological to other COD. METHODS: A retrospective review was performed of 16 institutions in Canada/United States of non-random convenience sample of people with MMC (born > = 1972) using non-parametric statistics. RESULTS: Of 293 deaths (89% shunted hydrocephalus), 12% occurred in infancy, 35% in childhood, and 53% in adulthood (documented COD: 74%)...
2023: Journal of Pediatric Rehabilitation Medicine