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Children with special health care needs

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https://www.readbyqxmd.com/read/28918094/post-acute-care-for-children-with-special-health-care-needs
#1
Charles D Phillips, Chau Truong, Hye-Chung Kum, Obioma Nwaiwu, Robert Ohsfeldt
BACKGROUND: Almost all studies of post-acute care (PAC) focus on older persons, frequently those suffering from chronic health problems. Some research is available on PAC for the pediatric population in general. However, very few studies focus on PAC services for children with special health care needs (SHCN). OBJECTIVE: To investigate factors affecting the provision of PAC to children with SHCN. METHODS: Pooled cross-sectional data from Texas Department of State Health Services hospital discharge database from 2011-2014 were analyzed...
September 8, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/28915817/cultural-adaptation-of-a-pediatric-functional-assessment-for-rehabilitation-outcomes-research
#2
Kristen E Arestad, David MacPhee, Chun Y Lim, Mary A Khetani
BACKGROUND: Significant racial and ethnic health care disparities experienced by Hispanic children with special health care needs (CSHCN) create barriers to enacting culturally competent rehabilitation services. One way to minimize the impact of disparities in rehabilitation is to equip practitioners with culturally relevant functional assessments to accurately determine service needs. Current approaches to culturally adapting assessments have three major limitations: use of inconsistent translation processes; current processes assess for some, but not all, elements of cultural equivalence; and limited evidence to guide decision making about whether to undertake cultural adaptation with and without language translation...
September 15, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28914249/visual-pedagogy-and-probiotics-for-hearing-impaired-children-a-pilot-study
#3
Amrita Sujlana, Ruchika Goyal, Parampreet Pannu, Shireen Opal, Palki Bansal
CONTEXT: Oral health care for children with special needs remains largely unmet. It is important that we should focus on preventive strategies for special children to help curtail and prevent oral diseases. AIM: This study aimed to assess the effect of visual pedagogy and probiotic mouth rinse on the periodontal health of hearing impaired children. MATERIALS AND METHODOLOGY: The study cohort consisted of twenty children with hearing impairment (HI) and 20 age-matched healthy children...
October 2017: Journal of the Indian Society of Pedodontics and Preventive Dentistry
https://www.readbyqxmd.com/read/28914238/assessment-of-dental-caries-oral-hygiene-status-traumatic-dental-injuries-and-provision-of-basic-oral-health-care-among-visually-impaired-children-of-eastern-odisha
#4
Vinay Suresan, Diptajit Das, Avinash Jnaneswar, Kunal Jha, Gunjan Kumar, Goutham Bala Subramaniam
CONTEXT: The magnitude and severity of oral health problems in visually impaired population are worse than in general population, and they tend to have more untreated dental diseases and more problems accessing dental care. AIMS: The aim of this study is to assess dentition status and treatment needs, oral hygiene status, and traumatic dental injuries among institutionalized children attending special schools for the visually impaired in eastern Odisha. SETTINGS AND DESIGN: A descriptive, cross-sectional study was conducted using a universal sampling protocol...
October 2017: Journal of the Indian Society of Pedodontics and Preventive Dentistry
https://www.readbyqxmd.com/read/28893267/is-the-role-of-health-extension-workers-in-the-delivery-of-maternal-and-child-health-care-services-a-significant-attribute-the-case-of-dale-district-southern-ethiopia
#5
Abel Negussie, Gedion Girma
BACKGROUND: The Health Extension Program (HEP) is one of the most innovative community based health program launched by the Ethiopian Federal Ministry of Health to make health services accessible to rural communities by setting-out women Health Extension Workers (HEWs) in rural Health Posts. The HEWs are premised to provide basic, largely preventive, primary health services to rural villages and the program gives special attention to children and mothers. The objective of the study was to assess the contribution made by the Health Extension Workers in maternal and child health care service delivery in Dale district, southern Ethiopia...
September 11, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28888492/physio-psychological-burdens-and-social-restrictions-on-parents-of-children-with-technology-dependency-are-associated-with-care-coordination-by-nurses
#6
Seigo Suzuki, Iori Sato, Shun Emoto, Kiyoko Kamibeppu
PURPOSE: To determine the association between parental care burdens and care coordination provided by nurses for children with technology dependency, specifically regarding physio-psychological burdens and social restrictions. DESIGN AND METHODS: A cross-sectional study was conducted between October and November 2015. Participants were recruited via home-visit nursing stations, social worker offices, and special-needs schools. A total of 246 parents of children with technology dependency completed anonymous self-report questionnaires...
September 2017: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/28865659/prioritizing-possibilities-for-child-and-family-health-an-agenda-to-address-adverse-childhood-experiences-and-foster-the-social-and-emotional-roots-of-well-being-in-pediatrics
#7
Christina D Bethell, Michele R Solloway, Stephanie Guinosso, Sandra Hassink, Aditi Srivastav, David Ford, Lisa A Simpson
OBJECTIVE: A convergence of theoretical and empirical evidence across many scientific disciplines reveals unprecedented possibilities to advance much needed improvements in child and family well-being by addressing adverse childhood experiences (ACEs), promoting resilience, and fostering nurturance and the social and emotional roots of healthy child development and lifelong health. In this article we synthesize recommendations from a structured, multiyear field-building and research, policy, and practice agenda setting process to address these issues in children's health services...
September 2017: Academic Pediatrics
https://www.readbyqxmd.com/read/28856133/pioneering-and-interprofessional-pediatric-dentistry-programs-aimed-at-reducing-oral-health-disparities
#8
Francisco Ramos-Gomez, Hamida Askaryar, Cambria Garell, Jennifer Ogren
Early Childhood Caries (ECC) is the most chronic childhood disease and more predominant in low-income and underserved children. Although easily transmitted, ECC is entirely preventable. Dr. Ramos-Gomez and his team at the University of California, Los Angeles put together an interprofessional curriculum where both medical and dental knowledge and practice is integrated to prepare dentists and primary care providers to more cost effectively address ECC and thereby reduce disparities in oral health. The curriculum, known as the Strategic Partnership for Interprofessional Collaborative Education in Pediatric Dentistry (SPICE-PD), consists of nine evidence-based training modules: applied statistics and research, community partners, interprofessional education/training, quality improvement, policy and advocacy, disease management/risk assessment, ethics/professionalism, cultural competency and children with special heath-care needs...
2017: Frontiers in Public Health
https://www.readbyqxmd.com/read/28852992/foster-and-adoptive-parent-perspectives-on-needs-and-services-a-mixed-methods-study
#9
Erin R Barnett, Mary K Jankowski, Rebecca L Butcher, Catherine Meister, Rebecca R Parton, Robert E Drake
Caring for children with complex needs severely stresses foster and adoptive parents, but few studies have examined their perspectives on needs and services. To examine parental views, the authors analyzed four focus groups (n = 27 participants) and one state-wide survey (n = 512 respondents, 42% of 1206 contacted) of foster and adoptive parents in one state. Results highlighted inadequate communication between providers and families, cultural and legal barriers, needs for parent training and preparation, the importance of several types of parent supports, and needs for specialized mental health treatment for the children...
August 29, 2017: Journal of Behavioral Health Services & Research
https://www.readbyqxmd.com/read/28839936/pre-surgery-evaluations-by-telephone-decrease-travel-and-cost-for-families-of-children-with-cerebral-palsy
#10
John D Robinson, John D Prochaska, David A Yngve
INTRODUCTION: Children with cerebral palsy need highly specialized care. This can be very burdensome for families, particularly in large rural states, due to the need for long-distance travel to appointments. In this study, children undergoing the selective percutaneous myofascial lengthening surgery utilized a telephone-based telemedicine evaluation to assess for surgical eligibility. The goal was to avoid a separate preoperative clinic visit weeks before the surgery. If possible, eligibility was determined by telephone, and then, the patient could be scheduled for a clinic visit and possible surgery the next day, saving the family a trip...
2017: SAGE Open Medicine
https://www.readbyqxmd.com/read/28835736/health-care-professionals-experiences-and-needs-when-delivering-end-of-life-care-to-children-a-qualitative-study
#11
Eva Bergsträsser, Eva Cignacco, Patricia Luck
Pediatric end-of-life care (EOL care) entails challenging tasks for health care professionals (HCPs). Little is known about HCPs' experiences and needs when providing pediatric EOL care in Switzerland. This study aimed to describe the experiences and needs of HCPs in pediatric EOL care in Switzerland and to develop recommendations for the health ministry. The key aspect in EOL care provision was identified as the capacity to establish a relationship with the dying child and the family. Barriers to this interaction were ethical dilemmas, problems in collaboration with the interprofessional team, and structural problems on the level of organizations...
2017: Palliative Care
https://www.readbyqxmd.com/read/28828568/development-and-psychometric-evaluation-of-the-promis-pediatric-life-satisfaction-item-banks-child-report-and-parent-proxy-editions
#12
Christopher B Forrest, Janine Devine, Katherine B Bevans, Brandon D Becker, Adam C Carle, Rachel E Teneralli, JeanHee Moon, Carole A Tucker, Ulrike Ravens-Sieberer
PURPOSE: To describe the psychometric evaluation and item response theory calibration of the PROMIS Pediatric Life Satisfaction item banks, child-report, and parent-proxy editions. METHODS: A pool of 55 life satisfaction items was administered to 1992 children 8-17 years old and 964 parents of children 5-17 years old. Analyses included descriptive statistics, reliability, factor analysis, differential item functioning, and assessment of construct validity. Thirteen items were deleted because of poor psychometric performance...
August 21, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28822673/the-financial-impact-of-a-hospital-based-care-coordination-program-for-children-with-special-health-care-needs
#13
Janine M Petitgout
Care coordination programs are important in caring for medically complex pediatric patients, particularly for children with special health care needs. This study is a retrospective financial analysis of a hospital-based care coordination program involving one procedural subgroup of children with special health care needs: those receiving pediatric tracheostomy. Hospital records were reviewed for patients who received a tracheostomy at a large Midwestern U.S. hospital from 1999 through 2015. The population was divided into two subgroups: patients who received a tracheostomy before the development of a care coordination program and patients who received a tracheostomy after enrollment in the care coordination program...
August 16, 2017: Journal of Pediatric Health Care
https://www.readbyqxmd.com/read/28800997/temporary-removal-palliative-care-and-human-rights-a-decade-of-evolution-in-standards
#14
Tamar Ezer, Diederik Lohman, Gabriela B de Luca
The publisher regrets that this article has been temporarily removed. A replacement will appear as soon as possible in which the reason for the removal of the article will be specified, or the article will be reinstated. The full Elsevier Policy on Article Withdrawal can be found at https://www.elsevier.com/about/our-business/policies/article-withdrawal.
August 9, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28800802/special-considerations-in-the-pediatric-psychiatric-population
#15
REVIEW
Genevieve Santillanes, Ruth S Gerson
Youth with psychiatric and behavioral complaints commonly present to emergency departments (EDs), which often lack dedicated mental health staff. This article addresses techniques EDs can use to better care for children in need of psychiatric assessment and medical clearance, specifically addressing the evaluation of youth with suicidal ideation and coexisting medical and psychiatric needs. The evaluation and management of youth with agitation and aggression are also discussed. The article concludes with a discussion of systems changes needed to truly improve emergency care for psychiatrically ill youth...
September 2017: Psychiatric Clinics of North America
https://www.readbyqxmd.com/read/28800789/indicators-of-poorly-controlled-asthma-and-health-related-quality-of-life-among-school-age-children-in-the-united-states
#16
(no author information available yet)
BACKGROUND: Poorly controlled asthma has far-reaching effects on school-age children and their parents, but little is knownabout the national impact on health-related quality of life (HRQoL). OBJECTIVE: To examine HRQoL associated with asthma and indicators of poorly controlled asthma in the United States. METHODS: This was a cross-sectional analysis of HRQoL among school-age children (age range, 6-17 years) with asthma in the nationally representative 2007-2013 Medical Expenditure Panel Survey (MEPS)...
August 11, 2017: Allergy and Asthma Proceedings:
https://www.readbyqxmd.com/read/28800371/population-estimates-health-care-characteristics-and-material-hardship-experiences-of-u-s-children-with-parent-reported-speech-language-difficulties-evidence-from-three-nationally-representative-surveys
#17
Rajan A Sonik, Susan L Parish, Ilhom Akorbirshoev, Esther Son, Eliana Rosenthal
Purpose: To provide estimates for the prevalence of parent-reported speech-language difficulties in U.S. children, and to describe the levels of health care access and material hardship in this population. Method: We tabulated descriptive and bivariate statistics using cross-sectional data from the 2007 and 2011/2012 iterations of the National Survey of Children's Health, the 2005/2006 and 2009/2010 iterations of the National Survey of Children with Special Health Care Needs, and the 2004 and 2008 panels of the Survey of Income and Program Participation...
August 11, 2017: Language, Speech, and Hearing Services in Schools
https://www.readbyqxmd.com/read/28795895/facilitating-family-rich-outcomes-for-families-with-children-who-have-special-health-care-needs
#18
Susan Sullivan-Bolyai
No abstract text is available yet for this article.
May 2017: Journal of Family Nursing
https://www.readbyqxmd.com/read/28762347/barriers-to-dental-care-for-children-with-special-needs-general-dentists-perception-in-kerala-india
#19
Amith Adyanthaya, Natta Sreelakshmi, Sajeela Ismail, Marium Raheema
INTRODUCTION: Special children are among the underserved dental patient groups around the globe. Oral health care for disabled children remain an unmet challenge. One out of two persons with a significant disability cannot find a professional resource to provide appropriate dental care. Identification of barriers can be the first step in addressing the deficiencies in dental care for such patients. AIM: To investigate the perception of dental practitioners in Kerala, India regarding the hurdles faced by them in providing dental care to Special Needs Children including the challenges faced by them...
July 2017: Journal of the Indian Society of Pedodontics and Preventive Dentistry
https://www.readbyqxmd.com/read/28762342/assessment-of-malocclusion-severity-and-orthodontic-treatment-needs-in-12-15-year-old-school-children-of-namakkal-district-tamil-nadu-using-dental-aesthetic-index
#20
S Nagalakshmi, S James, C Rahila, K Balachandar, R Satish
OBJECTIVES: The present study was aimed to assess the severity of malocclusion and orthodontic treatment needs among 12-15-year-old schoolchildren in rural area of Namakkal district, Tamil Nadu, India, using the Dental Aesthetic Index (DAI). MATERIALS AND METHODS: A cross-sectional study was conducted among a sample of 1078 schoolchildren (12-15 years of age) who were selected by two-stage cluster sampling technique. Severity of malocclusion and orthodontic treatment needs were assessed according to the DAI using a specially designed survey pro forma with the aid of the WHO's Oral Health Survey: Basic Methods...
July 2017: Journal of the Indian Society of Pedodontics and Preventive Dentistry
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