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Children with special health care needs

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https://www.readbyqxmd.com/read/28422617/hidden-devices-in-the-school-setting-what-the-nurse-needs-to-know-about-shunts
#1
Barbara Obst, Megan Roesler
The role of school nurse today not only includes making a thorough assessment of the child but also the knowledge and skill to understand hidden medical devices. As of 2011, there were approximately 14.6 million children in the United States living with special health care needs. Many of these children could have hidden medical devices. The Specialized Health Needs Interagency Collaboration (SHNIC) program at the Kennedy Krieger Institute received requests for in-person training regarding ventriculoperitoneal (VP) shunts...
May 2017: NASN School Nurse
https://www.readbyqxmd.com/read/28411876/stakeholders-perceptions-of-care-coordination-a-participatory-process
#2
Annmarie A Lyles, Penny Morgan Overgaard, Grace L Caputo, Elizabeth Reifsnider
OBJECTIVE: Children with special health care needs or chronic conditions are more likely to have unmet health needs than other children. The purpose of this study was to use a community engagement research strategy to assess the essential elements of care coordination that can serve as the foundation for a system-wide care coordination model for children with special health care needs. STUDY DESIGN: As part of a summit designed to review the status of pediatric care coordination within the state of Arizona and a call to action, a qualitative descriptive study was conducted to solicit anonymous feedback from 104 stakeholders (family, health care provider, or community entity) on the strengths and areas of improvement in the current system that provides care to Arizona children with special health care needs...
April 12, 2017: Journal of Pediatric Health Care
https://www.readbyqxmd.com/read/28408828/access-to-diagnosis-treatment-and-supportive-services-among-pharmacotherapy-treated-children-adolescents-with-adhd-in-europe-data-from-the-caregiver-perspective-on-pediatric-adhd-survey
#3
Moshe Fridman, Tobias Banaschewski, Vanja Sikirica, Javier Quintero, Kristina S Chen
BACKGROUND: Attention-deficit/hyperactivity disorder (ADHD) is one of the most common childhood psychiatric disorders and negatively impacts caregivers' lives. Factors including barriers to accessing care, dissatisfaction with support services, and lack of caregiver resources may contribute to this. OBJECTIVES: To report caregivers' experiences of ADHD diagnosis, behavioral therapy (BT), and supportive care for children/adolescents with ADHD. METHODS: The Caregiver Perspective on Pediatric ADHD (CAPPA) survey included caregivers of children/adolescents (6-17 years) from ten European countries who were currently receiving/had received ADHD pharmacotherapy in the previous 6 months...
2017: Neuropsychiatric Disease and Treatment
https://www.readbyqxmd.com/read/28407156/enhancing-care-models-to-capture-psychological-trauma
#4
Mary Suzanne Balch, Jo Loomis
Toxic levels of stress in childhood are an ongoing threat to public health. Traumatized children have special needs for health care to address their developmental, mental health, and medical problems, and mitigate risk for long-term health problems. Developmental trauma leads to increased use of medical, social, correctional, and mental health services. Longitudinal and retrospective studies link childhood trauma and adversity to academic difficulties, poor health, and low economic productivity in adulthood...
April 1, 2017: Journal of Psychosocial Nursing and Mental Health Services
https://www.readbyqxmd.com/read/28389967/a-file-study-of-refugee-children-referred-to-specialized-mental-health-care-from-an-individual-diagnostic-to-an-ecological-perspective
#5
Julia Villanueva O'Driscoll, Geertrui Serneels, Lindita Imeraj
The past years have been characterized by a large refugee crisis across the globe. The exposure to preflight, flight, and resettlement stressors puts refugee children and their families at risk of developing emotional and behavioral disorders. A unique Western-based approach of mental health problems seems to be insufficient to address the complexity of interactions between individual vulnerabilities and more ecological surrounding systems. We looked into (1) the reasons for referral; and (2) the process diagnostic outcomes after ethnopsychiatric and psychological assessment...
April 7, 2017: European Child & Adolescent Psychiatry
https://www.readbyqxmd.com/read/28382052/comparative-investigation-of-indicators-of-growth-and-behavioral-disorders-in-children-with-normal-low-and-very-low-birth-weight-at-pre-school-age-in-isfahan-during-2015
#6
Marzieh Yousefi, Zahra Abdeyazdan, Soheila Ehsanpour
INTRODUCTION: Birth weight is one of the most important indicators of infant's health and could predict their health condition in future. This study was conducted to determine and compare indicators of growth [weight, height, and body mass index (BMI)] and behavioral disorders in children with normal, low, and very low birth weight at pre-school age. MATERIALS AND METHODS: In this descriptive analytical study, 236 children (126 with normal weight, 100 with low birth weight, and 10 with very low birth weight) at pre-school age were investigated in three groups...
January 2017: Iranian Journal of Nursing and Midwifery Research
https://www.readbyqxmd.com/read/28371887/information-needs-of-physicians-care-coordinators-and-families-to-support-care-coordination-of-children-and-youth-with-special-health-care-needs-cyshcn
#7
Pallavi Ranade-Kharkar, Charlene Weir, Chuck Norlin, Sarah A Collins, Lou Ann Scarton, Gina B Baker, Damian Borbolla, Vanina Taliercio, Guilherme Del Fiol
Objectives: Identify and describe information needs and associated goals of physicians, care coordinators, and families related to coordinating care for medically complex children and youth with special health care needs (CYSHCN). Materials and Methods: We conducted 19 in-depth interviews with physicians, care coordinators, and parents of CYSHCN following the Critical Decision Method technique. We analyzed the interviews for information needs posed as questions using a systematic content analysis approach and categorized the questions into information need goal types and subtypes...
March 24, 2017: Journal of the American Medical Informatics Association: JAMIA
https://www.readbyqxmd.com/read/28362061/chlorhexidine-mouthrinse-as-an-adjunctive-treatment-for-gingival-health
#8
REVIEW
Patrice James, Helen V Worthington, Carmel Parnell, Mairead Harding, Thomas Lamont, Andrea Cheung, Helen Whelton, Philip Riley
BACKGROUND: Dental plaque associated gingivitis is a reversible inflammatory condition caused by accumulation and persistence of microbial biofilms (dental plaque) on the teeth. It is characterised by redness and swelling of the gingivae (gums) and a tendency for the gingivae to bleed easily. In susceptible individuals, gingivitis may lead to periodontitis and loss of the soft tissue and bony support for the tooth. It is thought that chlorhexidine mouthrinse may reduce the build-up of plaque thereby reducing gingivitis...
March 31, 2017: Cochrane Database of Systematic Reviews
https://www.readbyqxmd.com/read/28358287/follow-up-of-children-s-oral-health-related-quality-of-life-after-dental-general-anaesthesia-treatment
#9
Biruté Jankauskiené, Jorma I Virtanen, Julija Narbutaité
OBJECTIVE: Our aim was to analyze longitudinally the impact of young children's dental general anaesthesia (DGA) treatment on their OHRQoL and to determine their post-operative oral health status at the six-month follow-up together with parental ratings of their children's oral health. MATERIAL AND METHODS: We conducted a prospective follow-up study of OHRQoL among Lithuanian child patients treated under general anaesthesia (n = 144). The study consisted of clinical dental examinations performed by two examiners at the time of DGA and at the six-month recall, along with OHRQoL surveys and data collected from the patients' files...
May 2017: Acta Odontologica Scandinavica
https://www.readbyqxmd.com/read/28342626/understanding-the-health-care-utilization-of-children-who-require-medical-technology-a-descriptive-study-of-children-who-require-tracheostomies
#10
Regena Spratling
Children who require medical technology have complex chronic illnesses. This medical technology, including ventilators, oximeters, tracheostomy tubes, and feeding tubes, allows children and their families to live at home; however, the management of the children's care by informal caregivers is complex with the need for intensive, specialized care. The purpose of this study was to examine the sociodemographic and clinical characteristics that affect health care utilization in a population of children who require medical technology...
April 2017: Applied Nursing Research: ANR
https://www.readbyqxmd.com/read/28340082/disparities-in-health-care-quality-among-asian-children-with-special-health-care-needs
#11
Esther Son, Susan L Parish, Leah Igdalsky
There is a dearth of information on the quality of health care for Asian American children and particularly Asian children with special health care needs (CSHCN). The goal of this article was to determine whether there were disparities in quality of health care for Asian CSHCN, whose experiences have not been studied. Data were derived from the 2009-2010 National Survey of Children with Special Health Care Needs (ns = 355 non-Hispanic Asian children and 4,343 non-Hispanic white CSHCN). Bivariate and multivariate logistic regression analyses were conducted to examine the relationship between racial identity (that is, non-Hispanic white and non-Hispanic Asian) and quality of health care...
March 2, 2017: Health & Social Work
https://www.readbyqxmd.com/read/28337081/a-comprehensive-list-of-items-to-be-included-on-a-pediatric-drug-monograph
#12
Lauren E Kelly, Shinya Ito, David Woods, Anthony J Nunn, Carol Taketomo, Matthijs de Hoog, Martin Offringa
OBJECTIVES: Children require special considerations for drug prescribing. Drug information summarized in a formulary containing drug monographs is essential for safe and effective prescribing. Currently, little is known about the information needs of those who prescribe and administer medicines to children. Our primary objective was to identify a list of important and relevant items to be included in a pediatric drug monograph. METHODS: Following the establishment of an expert steering committee and an environmental scan of adult and pediatric formulary monograph items, 46 participants from 25 countries were invited to complete a 2-round Delphi survey...
January 2017: Journal of Pediatric Pharmacology and Therapeutics: JPPT: the Official Journal of PPAG
https://www.readbyqxmd.com/read/28335875/age-at-first-identification-of-autism-spectrum-disorder-an-analysis-of-two-us-surveys
#13
R Christopher Sheldrick, Melissa P Maye, Alice S Carter
OBJECTIVE: Evidence regarding the age at which autism spectrum disorder (ASD) is identified is essential for improving early detection, yet many extant studies have not applied time-to-event analyses, which account for statistical biases that arise from sampling in cross-sectional surveys by adjusting for child age at time of parental report. Our objective was to estimate age distributions for first identification of ASD in national parent surveys using time-to-event analyses. METHOD: We conducted time-to-event analyses of responses to identical questions in the 2011 to 2012 National Survey of Children's Health (n = 95,677) and the 2009 to 2010 National Survey of Children with Special Health Care Needs (n = 371,617)...
April 2017: Journal of the American Academy of Child and Adolescent Psychiatry
https://www.readbyqxmd.com/read/28322650/parental-feeding-behaviors-and-weight-related-concerns-in-children-with-special-needs
#14
Michele Polfuss, Pippa Simpson, Rachel Neff Greenley, Liyun Zhang, Kathleen J Sawin
Parental feeding behaviors and concern about child weight are associated with obesity among youth who are typically developing. Little is known about this relationship among parents of youth with special needs, despite these children having higher obesity risk. This study used an online survey to explore associations among parental feeding behaviors, parent weight concerns, demographics, and child weight status in a sample of 356 parents of children diagnosed with autism spectrum disorder, spina bifida, and Down syndrome...
January 1, 2017: Western Journal of Nursing Research
https://www.readbyqxmd.com/read/28300654/the-cumulative-impact-of-health-adversities-on-children-s-later-academic-achievement
#15
Jon Quach, Cattram Nguyen, Meredith O'Connor, Melissa Wake
OBJECTIVE: We aimed to determine whether the accumulation of physical, psychosocial and combined health adversities measured at age 8-9 years predicts worsening of academic scores cross-sectionally at 8-9 and longitudinally at 10-11 years. METHODS: Design: Longitudinal data from Waves 3 and 4 in the Longitudinal Study of Australian Children (83% of 4983 retained). Exposures (8-9 years): Physical health adversities (yes/no; summed range 0-5): overweight, special health care needs, chronic illness, PedsQL Physical, global health...
March 11, 2017: Academic Pediatrics
https://www.readbyqxmd.com/read/28292458/treating-youths-in-the-juvenile-justice-system
#16
REVIEW
Ann L Sattler
Adolescents involved with the juvenile justice system have higher rates of risky sexual behaviors, resulting in high rates of sexually transmitted infections and increased risk of human immunodeficiency virus, early or complicated pregnancy, and parenting issues. Comorbid substance abuse, gang association, mental health issues, and history of having been abused as children result in further elevated rates. Girls and lesbian, gay, bisexual, and transgender youths represent growing subpopulations with special risks...
April 2017: Pediatric Clinics of North America
https://www.readbyqxmd.com/read/28287871/partnering-with-parents-in-interprofessional-leadership-graduate-education-to-promote-family-professional-partnerships
#17
Lewis H Margolis, Kathryn Fahje Steber, Angela Rosenberg, Ann Palmer, Kathleen Rounds, Marlyn Wells
Evidence supports the benefits to families of relationships with professionals that build on the concept of partnership, but there are few studies in the literature of strategies involving joint education for parents and professionals to enhance the capacity of parents of children with special healthcare needs to be effective interprofessional partners. Since 2007, parents of children with special healthcare needs have participated alongside graduate students from five different profession-based training programmes in a structured interprofessional leadership programme...
March 13, 2017: Journal of Interprofessional Care
https://www.readbyqxmd.com/read/28286135/special-health-care-needs-across-the-school-and-family-contexts-implications-for-service-utilization
#18
Meredith O'Connor, Stefanie Rosema, Jon Quach, Amanda Kvalsvig, Sharon Goldfeld
OBJECTIVES: A fifth of children enter school with special health care needs (SHCN), many of whom have difficulties that are milder or not yet formally diagnosed (emerging SHCN). This study aimed to investigate how differing perceptions of children's emerging SHCN across the family and school contexts relates to service utilization. METHOD: Sample: The nationally-representative birth cohort of the Longitudinal Study of Australian Children (LSAC), which includes parent reports on the abbreviated Children with Special Health Care Needs Screener (CSHCNS)...
March 7, 2017: Academic Pediatrics
https://www.readbyqxmd.com/read/28282377/before-the-bombing-high-burden-of-traumatic-injuries-in-kunduz-trauma-center-kunduz-afghanistan
#19
Hamayoun Hemat, Safieh Shah, Petros Isaakidis, Mrinalini Das, Nang Thu Thu Kyaw, Sattar Zaheer, Abdul Qayeum Qasemy, Mutallib Zakir, Gbane Mahama, Catherine Van Overloop, Lynette Dominguez
BACKGROUND: Médecins Sans Frontières (MSF) has been providing healthcare in Afghanistan since 1981 including specialized health services for trauma patients in Kunduz Trauma Center (KTC) from 2011. On October 3rd, 2015, a US airstrike hit the KTC, killing 42 people including 14 MSF staff. This study aims to demonstrate the impact on healthcare provision, after hospital destruction, by assessing the extent of care provided for trauma and injuries by the MSF KTC and to report on treatment outcomes from January 2014 to June 2015, three months prior to the bombing...
2017: PloS One
https://www.readbyqxmd.com/read/28278352/mobile-phone-based-interactive-voice-response-as-a-tool-for-improving-access-to-healthcare-in-remote-areas-in-ghana-an-evaluation-of-user-experiences
#20
J Brinkel, J May, R Krumkamp, M Lamshöft, B Kreuels, E Owusu-Dabo, A Mohammed, A Bonacic Marinovic, P Dako-Gyeke, A Krämer, J N Fobil
OBJECTIVES: To investigate and determine the factors that enhanced or constituted barriers to the acceptance of an mHealth system which was piloted in Asante-Akim North District of Ghana to support healthcare of children. METHODS: Four semi-structured focus group discussions were conducted with a total of 37 mothers. Participants were selected from a study population of mothers who subscribed to a pilot mHealth system which used an interactive voice response for its operations...
March 9, 2017: Tropical Medicine & International Health: TM & IH
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