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Children with special health care needs

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https://www.readbyqxmd.com/read/29773528/a-digital-app-to-aid-detection-monitoring-and-management-of-dyslexia-in-young-children-dimmand-protocol-for-a-digital-health-and-education-solution
#1
Mariam R Sood, Annet Toornstra, Martin I Sereno, Mark Boland, Daniele Filaretti, Anuj Sood
BACKGROUND: Dyslexia, a specific learning difficulty and a disability as defined in the Equality Act 2010, is a lifelong condition that affects a child from the start of education. Dyslexia is characterized by difficulties in language processing (reading, spelling, and writing) which do not correspond with the child's general intellectual abilities. Although dyslexia cannot be cured, there is a consensus that interventions are more effective and have greater impact the earlier they are administered...
May 17, 2018: JMIR Research Protocols
https://www.readbyqxmd.com/read/29761582/blended-diets-for-gastrostomy-fed-children-and-young-people-a-scoping-review
#2
REVIEW
Anne Breaks, Christina Smith, Steven Bloch, Sally Morgan
BACKGROUND: The present review aimed to identify what is known about the use of blended diets in gastrostomy fed children and young people (i.e. children and young people refers to those who are aged up to 25 years with special educational needs or a disability in accordance with Part 3 of the Children and Family Act 2014; within the review, the word children is used for simplicity but encompasses young people too) and to identify gaps in the literature on this topic to inform future research and policy...
May 15, 2018: Journal of Human Nutrition and Dietetics: the Official Journal of the British Dietetic Association
https://www.readbyqxmd.com/read/29760578/development-and-evaluation-of-the-promis-%C3%A2-pediatric-positive-affect-item-bank-child-report-and-parent-proxy-editions
#3
Christopher B Forrest, Ulrike Ravens-Sieberer, Janine Devine, Brandon D Becker, Rachel Teneralli, JeanHee Moon, Adam Carle, Carole A Tucker, Katherine B Bevans
Objective: The purpose of this study is to describe the psychometric evaluation and item response theory calibration of the PROMIS Pediatric Positive Affect item bank, child-report and parent-proxy editions. Methods: The initial item pool comprising 53 items, previously developed using qualitative methods, was administered to 1,874 children 8-17 years old and 909 parents of children 5-17 years old. Analyses included descriptive statistics, reliability, factor analysis, differential item functioning, and construct validity...
March 2018: Journal of Happiness Studies
https://www.readbyqxmd.com/read/29754433/unsung-heroes-flying-blind-a-metasynthesis-of-parents-experiences-of-caring-for-children-with-special-health-care-needs-at-home
#4
Carina Nygård, Anne Clancy
AIMS AND OBJECTIVES: To aggregate, synthesize and interpret qualitative research studies of parents' experiences of caring for a child with special health care needs at home. BACKGROUND: Advances in the field of medical and nursing science have ensured better survival rates for children with chronic illnesses. Many of these children have significant special health care needs. Today parents assume a caregiver role, undertaking tasks previously provided by nurses in hospitals...
May 13, 2018: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29752809/exploring-the-relationship-between-adverse-childhood-experiences-and-oral-health-related-quality-of-life
#5
Faizan Kabani, Kristine Lykens, Hyo Jung Tak
OBJECTIVES: Evidence indicates that adverse childhood experiences (ACEs) have destructive impacts on quality of life, health outcomes, and health-care expenditures. Studies further demonstrate a dose-response relationship between the number of ACEs and risk for experiencing chronic illness, such as oral diseases later in life. Research is scarce on the prioritization of contextualized public health interventions addressing this important threat. METHODS: Cross-sectional data from 2011 to 2012 National Survey of Children's Health (NSCH) provided a nationally representative sample of children in the United States, ages 1-17 for dentate status (n = 61,530)...
May 12, 2018: Journal of Public Health Dentistry
https://www.readbyqxmd.com/read/29750627/the-need-of-interdisciplinary-approach-for-the-treatment-of-children-with-down-syndrome-with-severe-caries-unintentionally-facilitated-by-hypotonia-therapy
#6
Enrique Bimstein, Camilla Miskovich
This manuscript describes a case of a 4-year-old child with Down syndrome involving hypotonia in which the use of sweets to induce oral muscular function contributed to the need to extract all the primary teeth due to extensive caries. The need for interdisciplinary education and practice targeted to the treatment of children with special health care needs is emphasized.
May 11, 2018: Journal of Clinical Pediatric Dentistry
https://www.readbyqxmd.com/read/29750625/trends-and-characteristics-of-pediatric-dentistry-patients-treated-under-general-anesthesia
#7
Maxwell N Rudie, Michael M Milano, Michael W Roberts, Kimon Divaris
PURPOSE: The aims of this study were to describe the demographic characteristics of pediatric dentistry patients undergoing dental rehabilitation under general anesthesia (DRGA) at UNC-Chapel Hill during the last 13 years and identify factors associated with multiple (1 versus 2 or more) DRGA visits during that timeframe. STUDY DESIGN: Administrative claims data were used to identify children and adolescents (age <18 years) who underwent DRGA between 1/1/2002 and 12/31/2014 at the UNC Hospitals system...
May 11, 2018: Journal of Clinical Pediatric Dentistry
https://www.readbyqxmd.com/read/29745481/-continuity-of-care-from-pediatrician-to-general-practitioner-in-switzerland-a-practical-approach
#8
Anne Meynard, Martine Bideau, Christophe Jacquier, Pierre Klauser
The transition from a pediatrician to a general practitioner builds on a strong relationship with the pediatrician. Informed consent and decision making in children and adolescents are greatly improved by a trustful relationship with healthcare providers. In Switzerland, minors can access their medical file without parental consent if considered competent. Electronic files can be helpful but may lead to breeches in confidentiality : transmission of data concerning the family or parent's health status not relevant for the adolescent's medical follow-up, parental access to the medical files...
May 9, 2018: Revue Médicale Suisse
https://www.readbyqxmd.com/read/29744710/the-design-and-implementation-of-the-2016-national-survey-of-children-s-health
#9
Reem M Ghandour, Jessica R Jones, Lydie A Lebrun-Harris, Jessica Minnaert, Stephen J Blumberg, Jason Fields, Christina Bethell, Michael D Kogan
Introduction Since 2001, the Health Resources and Services Administration's Maternal and Child Health Bureau (HRSA MCHB) has funded and directed the National Survey of Children's Health (NSCH) and the National Survey of Children with Special Health Care Needs (NS-CSHCN), unique sources of national and state-level data on child health and health care. Between 2012 and 2015, HRSA MCHB redesigned the surveys, combining content into a single survey, and shifting from a periodic interviewer-assisted telephone survey to an annual self-administered web/paper-based survey utilizing an address-based sampling frame...
May 9, 2018: Maternal and Child Health Journal
https://www.readbyqxmd.com/read/29728538/impact-of-dental-rehabilitation-on-oral-health-related-quality-of-life-in-healthy-children-and-those-with-special-health-care-needs
#10
Deema J Farsi, Nada J Farsi, Azza A El-Housseiny, Jihan M Turkistani, Najat M Farsi
Aim: The aim of this study is to compare the effect of dental rehabilitation on oral health-related quality-of-life (OHRQoL) in children with special health care needs (CSHCN) and healthy children. Materials and methods: The prospective study's sample consisted of 213 parents of caries-affected children, who were aged 6 years or younger and were scheduled for dental rehabilitation under general anesthesia (DRGA). The parent-child dyads were recruited from three public hospitals in Jeddah between October 2014 and May 2016...
April 1, 2018: Journal of Contemporary Dental Practice
https://www.readbyqxmd.com/read/29717072/assessing-dental-students-readiness-to-treat-populations-that-are-underserved-a-scoping-review
#11
REVIEW
Linda Furlini, Nioushah Noushi, Geneviève Castonguay, Paul Allison, Christophe Bedos, Raphael De Souza, Shahrokh Esfandiari, Richard Hovey, Mary Ellen Macdonald, Martin Morris, Belinda Nicolau, Frances Power, Jocelyne Feine
In North America, all dental schools have adopted some form of community-based dental education (CBDE) or service-learning, but little is known about the areas being researched and reported in published studies. The aim of this study was to conduct a scoping review to determine what areas of research had been conducted to determine the effects of CBDE on dental students' readiness to treat populations that are underserved. A systematic search of articles published in English or French since 2000 was performed on July 29, 2015, and combined quantitative and qualitative synthesis of data was conducted...
May 2018: Journal of Dental Education
https://www.readbyqxmd.com/read/29713812/undocumented-children-in-the-amsterdam-region-an-analysis-of-health-school-and-living-circumstances
#12
S Klok-Nentjes, G A Tramper-Stranders, E D M van Dam-Bakker, J Beldman
Undocumented migrants are people who do not have a valid residence permit. There are only estimates about how many undocumented migrants are living in the European Union; the number of children among them is unclear. Studies about undocumented children are scarce and little is known about their living situation and their access to health care. Therefore, we aimed to estimate the number of undocumented children in the population of visitors of our primary care clinic for undocumented patients. Moreover, we explored whether these children's rights with respect to health care, education, and living circumstances were met...
May 1, 2018: European Journal of Pediatrics
https://www.readbyqxmd.com/read/29712763/school-bus-transportation-of-children-with-special-health-care-needs
#13
Joseph O'Neil, Benjamin D Hoffman
School systems are responsible for ensuring that children with special needs are safely transported on all forms of federally approved transportation provided by the school system. A plan to provide the most current and proper support to children with special transportation needs should be developed by the Individualized Education Program team, including the parent, school transportation director, and school nurse, in conjunction with physician orders and recommendations. With this statement, we provide current guidance for the protection of child passengers with specific health care needs...
April 30, 2018: Pediatrics
https://www.readbyqxmd.com/read/29705118/multi-stakeholder-informed-guidelines-for-direct-admission-of-children-to-hospital
#14
JoAnna K Leyenaar, Megan Shevenell, Paul A Rizzo, Vanessa L Hill, Peter K Lindenauer
OBJECTIVES: To develop pediatric direct admission guidelines and prioritize outcomes to evaluate the safety and effectiveness of hospital admission processes. STUDY DESIGN: We conducted deliberative discussions at 1 children's hospital and 2 community hospitals, engaging parents of hospitalized children and inpatient, outpatient, and emergency department physicians and nurses to identify shared and dissenting perspectives regarding direct admission processes and outcomes...
April 25, 2018: Journal of Pediatrics
https://www.readbyqxmd.com/read/29704650/quality-of-care-for-children-with-medical-complexity-an-analysis-of-continuity-of-care-as-a-potential-quality-indicator
#15
Kimberly C Arthur, Rita Mangione-Smith, Q Burkhart, Layla Parast, Hangsheng Liu, Marc N Elliott, Elizabeth A McGlynn, Eric C Schneider
OBJECTIVE: To examine the relationship between continuity of care for children with medical complexity (CMC) and emergency department (ED) utilization, care coordination quality, and family impact related to care coordination. METHODS: We measured ED utilization and primary care continuity with the Bice-Boxerman continuity of care index for 1477 CMC using administrative data from Minnesota and Washington state Medicaid agencies. For a subset of 186 of these CMC a caregiver survey was used to measure care coordination quality (using items adapted from the Consumer Assessment of Healthcare Providers and System (CAHPS©) Adult Health Plan Survey) and family impact (using items adapted from the National Survey of Children with Special Health Care Needs)...
April 25, 2018: Academic Pediatrics
https://www.readbyqxmd.com/read/29701848/lessons-learned-providing-peer-support-to-culturally-diverse-families-of-children-with-disabilities-or-special-health-care-needs
#16
Robin L Dodds, Dana V Yarbrough, Nubia Quick
No abstract text is available yet for this article.
April 26, 2018: Social Work
https://www.readbyqxmd.com/read/29678400/predictors-of-social-relationships-for-children-with-special-health-care-needs
#17
Cara Sisk, George Chitiyo, Ashley Akenson
Children with special health care needs (CSHCN) experience various developmental challenges including difficulties in social relationships with peers. Using data from the Centers for Disease Control and Prevention's National Survey of Children with Special Health Care Needs 2009-2010, this correlational study examined predictors of difficulty making and keeping friends among CSHCN. Binary logistic regression was used to analyze the data. Findings indicate statistical significance for 12 out of 14 predictor variables...
April 17, 2018: Journal of Pediatric Nursing
https://www.readbyqxmd.com/read/29668210/care-coordination-for-children-with-special-needs-in-medicaid-lessons-from-medicare
#18
Kate A Stewart, Katharine W V Bradley, Joseph S Zickafoose, Rachel Hildrich, Henry T Ireys, Randall S Brown
OBJECTIVES: To provide actionable recommendations for improving care coordination programs for children with special healthcare needs (CSHCN) in Medicaid managed care. STUDY DESIGN:  Literature review and interviews with stakeholders and policy experts to adapt lessons learned from Medicare care coordination programs for CSHCN in Medicaid managed care. METHODS: We reviewed syntheses of research on Medicare care coordination programs to identify lessons learned from successful programs...
April 2018: American Journal of Managed Care
https://www.readbyqxmd.com/read/29659994/resident-and-staff-satisfaction-of-pediatric-graduate-medical-education-training-on-transition-to-adult-care-of-medically-complex-patients
#19
Matthew Weeks, Brandon Cole, Eric Flake, Daniel Roy
Introduction: This study aims to describe the quantity and satisfaction current residents and experienced pediatricians have with graduate medical education on transitioning medically complex patients to adult care. There is an increasing need for transitioning medically complex adolescents to adult care. Over 90% now live into adulthood and require transition to adult healthcare providers. The 2010 National Survey of Children with Special Health Care Needs found that only 40% of youth 12-17 yr receive the necessary services to appropriately transition to adult care...
April 11, 2018: Military Medicine
https://www.readbyqxmd.com/read/29659203/a-qualitative-study-to-assess-how-primary-care-versus-psychiatric-providers-evaluate-and-treat-pediatric-patients-with-irritability
#20
Anna L Scandinaro, Usman Hameed, Cheryl A Dellasega
Objective: To determine how primary care versus specialist practitioners assess and treat school-aged children with irritability. Methods: Seventeen providers from family medicine, pediatrics, and psychiatry participated in in-depth interviews from June to August 2016 about the process they use to evaluate irritability. Data on demographic traits and measures of confidence were also collected. Results: Primary care (family medicine and pediatrics) participants expressed frustration over the lack of time and specialized knowledge they had to accurately assess children with irritability, even though they were often the first clinician consulted when problems arose...
April 5, 2018: Primary Care Companion to CNS Disorders
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