Atsushi Yao, Ryo Inuzuka, Atsushi Mizuno, Hiroyuki Iwano, Shunsuke Tatebe, Yasumasa Tsukamoto, Ichiro Sakamoto, Hiroyuki Watanabe, Nobuyuki Fukuda, Fumie Takechi, Shiro Adachi, Yusuke Akazawa, Koichiro Kuwahara, Kaoru Dohi, Tomoko Ishizu, Makoto Miyake, Norimichi Koitabashi, Saki Hasegawa-Tamba, Seiichi Sato, Takanari Fujii, Eiji Ehara, Tohru Minamino, Hirotsugu Yamada, Eiji Yamashita, Naoto Kawamatsu, Keita Masuda, Katsura Soma, Isao Shiraishi, Ryozo Nagai, Koichiro Niwa
BACKGROUND: The Japanese Network of Cardiovascular Departments for Adult Congenital Heart Disease (JNCVD-ACHD) was founded in 2011 for the lifelong care of adult patients with congenital heart disease (ACHD patients). This network maintains the first Japanese ACHD registry. METHODS AND RESULTS: From 2011 to 2019, the JNCVD-ACHD registered 54 institutions providing specialized care for ACHD patients in 32 of the 47 prefectures in Japan. The registry collected data on the disease profile for 24,048 patients from 50 institutions and the patient characteristics for 9743 patients from 24 institutions...
August 19, 2022: Journal of Cardiology