keyword
https://read.qxmd.com/read/34293978/why-people-think-they-might-hasten-their-death-when-faced-with-irremediable-health-conditions-compared-to-why-they-actually-do-so
#21
JOURNAL ARTICLE
Robert R Blake, Charlie Blake
This study surveys the differences of relatively healthy proponents of end-of-life choices and people with irremediable health conditions having already made the decision to hasten their deaths on what each group considers important in influencing a desire to hasten death. Psychosocial factors were more important than physical ones for both groups; but those contemplating what might influence them to hasten their deaths in the future thought pain and feeling ill would be much bigger factors than they turned out to be for those deciding to do so...
July 23, 2021: Omega
https://read.qxmd.com/read/34289838/medical-assistance-in-dying-in-patients-with-advanced-cancer-and-their-caregivers-a-mixed-methods-longitudinal-study-protocol
#22
JOURNAL ARTICLE
Madeline Li, Gilla K Shapiro, Roberta Klein, Anne Barbeau, Anne Rydall, Jennifer A H Bell, Rinat Nissim, Sarah Hales, Camilla Zimmermann, Rebecca K S Wong, Gary Rodin
BACKGROUND: The legal criteria for medical assistance in dying (MAiD) for adults with a grievous and irremediable medical condition were established in Canada in 2016. There has been concern that potentially reversible states of depression or demoralization may contribute to the desire for death (DD) and requests for MAiD. However, little is known about the emergence of the DD in patients, its impact on caregivers, and to what extent supportive care interventions affect the DD and requests for MAiD...
July 21, 2021: BMC Palliative Care
https://read.qxmd.com/read/33878803/general-anaesthesia-in-end-of-life-care-extending-the-indications-for-anaesthesia-beyond-surgery
#23
REVIEW
A Takla, J Savulescu, D J C Wilkinson, J J Pandit
In this article, we describe an extension of general anaesthesia - beyond facilitating surgery - to the relief of suffering during dying. Some refractory symptoms at the end of life (pain, delirium, distress, dyspnoea) might be managed by analgesia, but in high doses, adverse effects (e.g. respiratory depression) can hasten death. Sedation may be needed for agitation or distress and can be administered as continuous deep sedation (also referred to as terminal or palliative sedation) generally using benzodiazepines...
October 2021: Anaesthesia
https://read.qxmd.com/read/33860185/acute-and-sustained-reductions-in-loss-of-meaning-and-suicidal-ideation-following-psilocybin-assisted-psychotherapy-for-psychiatric-and-existential-distress-in-life-threatening-cancer
#24
JOURNAL ARTICLE
Stephen Ross, Gabrielle Agin-Liebes, Sharon Lo, Richard J Zeifman, Leila Ghazal, Julia Benville, Silvia Franco Corso, Christian Bjerre Real, Jeffrey Guss, Anthony Bossis, Sarah E Mennenga
People with advanced cancer are at heightened risk of desire for hastened death (DHD), suicidal ideation (SI), and completed suicide. Loss of Meaning (LoM), a component of demoralization, can be elevated by a cancer diagnosis and predicts DHD and SI in this population. We completed a randomized controlled trial in which psilocybin-assisted psychotherapy (PAP) produced rapid and sustained improvements in depression, demoralization, and hopelessness in people with cancer. Converging epidemiologic and clinical trial findings suggests a potential antisuicidal effect of this treatment...
April 9, 2021: ACS Pharmacology & Translational Science
https://read.qxmd.com/read/33641697/complexity-of-desire-for-hastened-death-in-terminally-ill-cancer-patients-a-cluster-analysis
#25
JOURNAL ARTICLE
Yutaka Hatano, Tatsuya Morita, Masanori Mori, Isseki Maeda, Shunsuke Oyamada, Akemi Shirado Naito, Kiyofumi Oya, Akihiro Sakashita, Satoko Ito, Yusuke Hiratsuka, Satoru Tsuneto
OBJECTIVES: The present study aims were (1) to identify the proportion of terminally ill cancer patients with desire for hastened death (DHD) receiving specialized palliative care, (2) to identify the reasons for DHD, and (3) to classify patients with DHD into some interpretable subgroups. METHODS: Advanced cancer patients admitted to 23 inpatients hospices/palliative care units in 2017 were enrolled. Data were prospectively obtained by the primarily responsible physicians...
March 1, 2021: Palliative & Supportive Care
https://read.qxmd.com/read/33631327/prevalence-and-factors-associated-with-will-to-live-in-patients-with-advanced-disease-results-from-a-portuguese-retrospective-study
#26
JOURNAL ARTICLE
Miguel Julião, Harvey Max Chochinov, Catarina Samorinha, Duarte da Silva Soares, Bárbara Antunes
CONTEXT: Will-to-live (WtL) is a complex and multifactorial dimension of end-of-life experience. Health care decisions on assisted suicide and euthanasia are rarely based on WtL evidence-based discussions. OBJECTIVES: To inform the debate, we aimed to evaluate the prevalence of WtL and its associations within a tertiary home-based palliative care unit. METHODS: Retrospective analysis of all WtL entries registered in our anonymized clinical registry, from October 2018 to September 2020...
February 22, 2021: Journal of Pain and Symptom Management
https://read.qxmd.com/read/33397660/the-wish-to-die-and-hastening-death-in-amyotrophic-lateral-sclerosis-a-scoping-review
#27
REVIEW
Anke Erdmann, Celia Spoden, Irene Hirschberg, Gerald Neitzke
BACKGROUND: Amyotrophic lateral sclerosis (ALS) develops into a life-threatening condition 2 to 4 years after the onset of symptoms. Although many people with the disease decide in favour of life-sustaining measures, thoughts about hastening death are not uncommon. OBJECTIVES: Our aim was to examine the scope of literature on the wish to die in ALS and provide an insight into determinants and motives for different end-of-life options. METHODS: We searched eight databases for English and German publications on death wishes in ALS for the period from 2008 to 2018 and updated the search up to May 2020...
January 4, 2021: BMJ Supportive & Palliative Care
https://read.qxmd.com/read/33331210/challenges-of-implementing-voluntary-assisted-dying-in-victoria-australia
#28
JOURNAL ARTICLE
Margaret O'Connor, Janet Philips
Staff working in community palliative care services are accustomed to the intimate conversations that a patient being at home can engender. Being at home can provide a safe space for a patient to express difficulties, including expressing a desire for hastened death. With the implementation of voluntary assisted dying in Victoria in mid-2019, palliative care services have needed to review and adapt policies and practices to incorporate this new procedure. While it was anticipated that a small percentage of people would request access to voluntary assisted dying, in the wake of such significant change, there were numerous implications for palliative care services to consider...
December 2, 2020: International Journal of Palliative Nursing
https://read.qxmd.com/read/32945714/screening-for-the-desire-to-die-in-the-first-palliative-care-encounter-a-proof-of-concept-study
#29
JOURNAL ARTICLE
Iris Crespo, Cristina Monforte-Royo, Albert Balaguer, Denise Pergolizzi, Claudia Cruz-Sequeiros, Ana Luque-Blanco, Josep Porta-Sales
Context: There is a lack of consensus about the appropriate moment to assess a potential wish to hasten death (WTHD) in patients with life-threatening illness, despite evidence of its positive appraisal among patients. Objectives: To evaluate the practical potential and acceptability of questions about the WTHD in the first palliative care (PC) clinical encounter. Design: A proof-of-concept single-arm unmasked trial. Subjects: We enrolled 30 advanced cancer patients, 16 inpatients and 14 outpatients in their first PC clinical encounter...
September 18, 2020: Journal of Palliative Medicine
https://read.qxmd.com/read/32312414/options-of-last-resort-palliative-sedation-physician-aid-in-dying-and-voluntary-cessation-of-eating-and-drinking
#30
REVIEW
David A Gruenewald, Gregg Vandekieft
Some patients with terminal and degenerative illnesses request assistance to hasten death when suffering is refractory to palliative care, or they strongly desire to maximize their autonomy and dignity and minimize suffering. Palliative sedation (PS), voluntarily stopping eating and drinking (VSED), and physician-assisted death (PAD) are possible options of last resort. A decision to choose PS can be made by an informed surrogate decision maker, whereas intact decision-making capacity is required to choose VSED or PAD...
May 2020: Medical Clinics of North America
https://read.qxmd.com/read/32103705/health-related-quality-of-life-in-patients-with-advanced-cancer-who-express-a-wish-to-hasten-death-a-comparative-study
#31
JOURNAL ARTICLE
Iris Crespo, Andrea Rodríguez-Prat, Cristina Monforte-Royo, Keith G Wilson, Josep Porta-Sales, Albert Balaguer
BACKGROUND: Some evidence suggests the wish to hasten death is related to poor health-related quality of life. Deficits in perceived dignity and self-efficacy are risk factors for wish to hasten death that also impact health-related quality of life. AIM: To compare perceived health-related quality of life, dignity and self-efficacy in patients with advanced cancer who either do (case group) or do not (control group) express a wish to hasten death. Cases and controls were matched on sociodemographic and functional characteristics...
May 2020: Palliative Medicine
https://read.qxmd.com/read/31746703/psychotherapy-at-the-end-of-life
#32
JOURNAL ARTICLE
Rebecca M Saracino, Barry Rosenfeld, William Breitbart, Harvey Max Chochinov
Dr. Elisabeth Kübler-Ross is credited as one of the first clinicians to formalize recommendations for working with patients with advanced medical illnesses. In her seminal book, On Death and Dying , she identified a glaring gap in our understanding of how people cope with death, both on the part of the terminally ill patients that face death and as the clinicians who care for these patients. Now, 50 years later, a substantial and ever-growing body of research has identified "best practices" for end of life care and provides confirmation and support for many of the therapeutic practices originally recommended by Dr...
December 2019: American Journal of Bioethics: AJOB
https://read.qxmd.com/read/31592704/experience-and-attitudes-regarding-medical-aid-in-dying-act-39-among-vermont-specialty-practices
#33
JOURNAL ARTICLE
Kara K Landry, Janet Ely, Alissa A Thomas
Introduction: In 2013, the Vermont legislature passed Act 39: The Patient Choice and Control at End-of-Life Act, which legalized medical aid in dying (MAID) under specific circumstances for terminally ill Vermont residents. In the five years since the law was passed, 52 patients in Vermont have been prescribed medications to hasten death; however, important information regarding the experiences of the patient, caregiver, or physician involved in this process is lacking. Objective: To survey the subspecialty physicians with the greatest contact with these patient populations, to better understand the physicians' attitudes and experiences with Act 39, and to gather more data about the utilization of Act 39 in Vermont...
October 8, 2019: Journal of Palliative Medicine
https://read.qxmd.com/read/31566496/-i-don-t-want-to-go-on-living-this-way-desire-for-hastened-death-and-the-ethics-of-involuntary-hospitalization
#34
COMMENT
Kasia Tolwinski, Andrei Nemoianu, Andreea Bucaloiu, Joseph Venditto, F Daniel Davis, Jennifer K Wagner
No abstract text is available yet for this article.
October 2019: American Journal of Bioethics: AJOB
https://read.qxmd.com/read/31551106/refractory-psycho-existential-distress-and-continuous-deep-sedation-until-death-in-palliative-care-the-french-perspective
#35
JOURNAL ARTICLE
Michel Reich, Xavier Bondenet, Laurence Rambaud, Fazya Ait-Kaci, Anne-Laure Sedda, Arlette Da Silva, Stéphanie Villet, Vincent Gamblin
OBJECTIVE: Since February 2016, French Claeys-Leonetti law has recognized patients' right to confront incurable diseases with short-term prognosis and refractory physical or psychological or existential symptoms by requesting continuous deep sedation until death (CDSUD). Determining when psychological or existential distress is refractory and unbearable remains complex and controversial.This review provides a comprehensive thought on CDSUD for advanced incurable patients with refractory psychological and/or existential distress in palliative care settings...
September 25, 2019: Palliative & Supportive Care
https://read.qxmd.com/read/31391175/restricting-conversations-about-voluntary-assisted-dying-implications-for-clinical-practice
#36
JOURNAL ARTICLE
Lindy Willmott, Ben White, Danielle Ko, James Downar, Luc Deliens
OBJECTIVES: On 19 June 2019, assisted dying became lawful in Victoria, the second most populous state in Australia. Section 8 of the Voluntary Assisted Dying Act is a legislative safeguard that is designed to ensure a patient's request for assistance to die is voluntary. This section prohibits health practitioners from initiating a conversation about assisted dying with the patient. This article explores the potential implications of this prohibition for effective communication between doctors and their patients, and the ability of doctors to provide high quality end-of-life (EOL) care in some cases...
March 2020: BMJ Supportive & Palliative Care
https://read.qxmd.com/read/30900054/depression-as-mediator-and-or-moderator-on-the-relationship-between-hopelessness-and-patients-desire-for-hastened-death
#37
JOURNAL ARTICLE
Efi Parpa, Eleni Tsilika, Antonis Galanos, Maria Nikoloudi, Kyriaki Mystakidou
PURPOSE: Previous findings have shown that depression in advanced stages of cancer is associated with hopelessness and frequently with wishes for hastened death. The current study tries to investigate the relationship between hopelessness and desire for hastened death and if depression may be a moderator and/or mediator role in patients with advanced cancer. METHOD: The participants were 102 patients with advanced cancer which they completed the Beck Hopelessness Scale (BHS), the Greek Schedule of Attitudes towards Hastened Death (G-SAHD), and the Greek Beck Depression Inventory (BDI)...
March 21, 2019: Supportive Care in Cancer
https://read.qxmd.com/read/30702373/rally-the-troops-interdisciplinary-response-to-a-veteran-who-attempted-suicide-on-a-veterans-affairs-hospice-unit
#38
JOURNAL ARTICLE
Jordana L Meyerson, Kelly J McKinell, Lara Michal Skarf, Susan N Nathan, Kate L M Hinrichs
Requests for hastened death and suicidal ideation may be more prevalent in populations approaching the end of life. Often these wishes and thoughts occur in the context of concurrent psychiatric disorders and emotional suffering. We discuss the case of a veteran with terminal lung cancer and comorbid psychiatric illness who attempted suicide while under the care of an inpatient interdisciplinary hospice team and describe our team's response to this suicide attempt. We review risk factors for suicidality at end of life, challenges of distinguishing desire for hastened death from suicidality, and the ethics of resuscitation of a dying patient after a suicide attempt...
January 31, 2019: Journal of Palliative Medicine
https://read.qxmd.com/read/30307088/existential-distress-in-cancer-alleviating-suffering-from-fundamental-loss-and-change
#39
EDITORIAL
Sigrun Vehling, David W Kissane
A severe life threatening illness can challenge fundamental expectations about security, interrelatedness with others, justness, controllability, certainty, and hope for a long and fruitful life. That distress and suffering but also growth and mastery may arise from confrontation with an existentially threatening stressor is a long-standing idea. But only recently have researchers studied existential distress more rigorously and begun to identify its distinct impact on health care outcomes. Operationalizations of existential distress have included fear of cancer recurrence, death anxiety, demoralization, hopelessness, dignity-related distress, and the desire for hastened death...
November 2018: Psycho-oncology
https://read.qxmd.com/read/30186039/voluntary-stopping-of-eating-and-drinking-vsed-as-an-unknown-challenge-in-a-long-term-care-institution-an-embedded-single-case-study
#40
JOURNAL ARTICLE
Nadine Saladin, Wilfried Schnepp, André Fringer
Background: Chronically ill persons experience conditions of life that can become unbearable, resulting in the wish to end their life prematurely. Relatives confronted with this wish experience ambivalence between loyalty to the person's desire to die and the fear of losing this person. Caring for a person during the premature dying process can be morally challenging for nurses. One way to end one's life prematurely is Voluntary Stopping of Eating and Drinking (VSED). Methods: This embedded single case study explored the experiences of registered nurses (embedded units of analysis: ward manager, nursing manager, nursing expert) and relatives who accompanied a 49-year-old woman suffering from multiple sclerosis during VSED in a Swiss long-term care institution (main unit of analysis)...
2018: BMC Nursing
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