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Cerebral palsy quality of life palisano

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https://www.readbyqxmd.com/read/24127787/determinants-of-gross-motor-function-of-young-children-with-cerebral-palsy-a-prospective-cohort-study
#1
MULTICENTER STUDY
Doreen J Bartlett, Lisa A Chiarello, Sarah W McCoy, Robert J Palisano, Lynn Jeffries, Alyssa L Fiss, Peter Rosenbaum, Piotr Wilk
AIM: The aim of this study was to test a model of determinants of gross motor function of young children with cerebral palsy (CP). METHOD: Four hundred and twenty-nine children with CP (242 males, 187 females; mean age 3 y 2 mo, SD 11 mo) representing all levels of the Gross Motor Function Classification System (GMFCS) participated. Children in levels I to II and III to V were classified as Groups 1 and 2 respectively. Distribution of CP was quadriplegia, 44%; hemiplegia, 24%; diplegia, 23%; triplegia, 6%; and monoplegia, 2% (data not available for 1%)...
March 2014: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/19811516/development-and-validation-of-item-sets-to-improve-efficiency-of-administration-of-the-66-item-gross-motor-function-measure-in-children-with-cerebral-palsy
#2
Dianne J Russell, Lisa M Avery, Stephen D Walter, Steven E Hanna, Doreen J Bartlett, Peter L Rosenbaum, Robert J Palisano, Jan Willem Gorter
AIM: To develop an algorithmic approach to identify item sets of the 66-item version of the Gross Motor Function Measure (GMFM-66) to be administered to individual children, and to examine the validity of the algorithm for obtaining a GMFM-66 score. METHOD: An algorithmic approach was used to identify item sets of the GMFM-66 (GMFM-66-IS) using data from 95 males and 79 females with cerebral palsy (CP; mean age 14y 7mo, SD 1y 8mo, range 12y 7mo to 17y 8mo). The GMFM-66-IS scores were then validated using combined data from three Dutch studies involving 134 males and 92 females with CP (mean age 7y, SD 4y 6mo, range 1y 4mo to 13y 8mo), representing all levels of the Gross Motor Function Classification System...
February 2010: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/18318732/development-of-the-gross-motor-function-classification-system-for-cerebral-palsy
#3
Peter L Rosenbaum, Robert J Palisano, Doreen J Bartlett, Barbara E Galuppi, Dianne J Russell
The Gross Motor Function Classification System (GMFCS) for cerebral palsy has been widely used internationally for clinical, research, and administrative purposes. This paper recounts the ideas and work behind the creation of the GMFCS, reports on the lessons learned, and identifies some philosophical challenges inherent in trying to develop an ordered, valid, and consistent system to describe function in children and adolescents with developmental differences. It is hoped that these ideas will be useful to others who choose to expand the field with additional systems in other areas of childhood neurodisability...
April 2008: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/17593124/quality-of-life-and-health-related-quality-of-life-of-adolescents-with-cerebral-palsy
#4
Peter L Rosenbaum, Michael H Livingston, Robert J Palisano, Barbara E Galuppi, Dianne J Russell
This study assessed quality of life (QOL) and health-related quality of life (HRQOL) of 203 adolescents with cerebral palsy (111 males, 92 females; mean age 16y [SD 1y 9mo]). Participants were classified using the Gross Motor Function Classification System (GMFCS), as Level I (n=60), Level II (n=33), Level III (n=28), Level IV (n=50), or Level V (n=32). QOL was assessed by self (66.5%) or by proxy (33.5%) with the Quality of Life Instrument for People With Developmental Disabilities, which asks about the importance and satisfaction associated with the QOL domains of Being, Belonging, and Becoming; HRQOL was captured through proxy reports with the Health Utilities Index, Mark 3 (HUI3), which characterizes health in terms of eight attributes, each having five or six ordered levels of function...
July 2007: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/17355481/quality-of-life-among-adolescents-with-cerebral-palsy-what-does-the-literature-tell-us
#5
REVIEW
Michael H Livingston, Peter L Rosenbaum, Dianne J Russell, Robert J Palisano
This review describes trends in quality of life (QOL) and health-related quality of life (HRQOL) among adolescents with cerebral palsy (CP). Twenty original articles were identified by a structured search of multiple databases and grouped by design. Categories included descriptive cross-sectional studies (n=8), measurement validation studies (n=9), and exploratory qualitative studies (n=3). Several trends were apparent. First, individuals with CP are reported to have decreased QOL and HRQOL compared with a normative population in some but not all areas of well-being...
March 2007: Developmental Medicine and Child Neurology
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