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Cerebral palsy quality of life

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https://www.readbyqxmd.com/read/27903018/intrathecal-baclofen-therapy-for-the-treatment-of-spasticity-in-lithuania
#1
Robertas Kvascevicius, Ona Lapteva, Jurate Kesiene, Alfredas Vaitkus, Laima Mikulenaite, Ramunas Raugalas, Jurate Sipylaite, Saulius Rocka, Alvydas Juocevicius
Spasticity of cerebral or spinal origin severely impairs an individual's functional ability and quality of life. Intrathecal baclofen (ITB) therapy via an implantable pump is indicated for use in patients unresponsive to oral antispasmodics. ITB therapy improves the daily caring for and relief of painful spasms. In Lithuania, ITB therapy was introduced in clinical practice just recently. We share our experience of spasticity management with the ITB pump system in five patients at Vilnius University Hospital Santariskiu Klinikos...
November 30, 2016: Journal of Neurological Surgery. Part A, Central European Neurosurgery
https://www.readbyqxmd.com/read/27900177/high-intensity-interval-training-to-improve-fitness-in-children-with-cerebral-palsy
#2
Reidun Lauglo, Torstein Vik, Torarin Lamvik, Dorthe Stensvold, Ane-Kristine Finbråten, Trine Moholdt
AIM: To evaluate effects of high-intensity interval training (HIT) on aerobic exercise capacity, quality of life, and body composition in children with cerebral palsy (CP). METHODS: This was a baseline control trial. Children with CP, Gross Motor Function Classification System (GMFCS) levels I-IV, and age 10-17 years were included. The primary outcome, peak, and submaximum oxygen uptake (VO2peak, VO2submax) were measured at enrolment to the study (T0), after a pretraining period (T1), and after HIT (T2)...
2016: BMJ Open Sport & Exercise Medicine
https://www.readbyqxmd.com/read/27892753/severe-hip-displacement-reduces-health-related-quality-of-life-in-children-with-cerebral-palsy
#3
Kjersti Ramstad, Reidun B Jahnsen, Terje Terjesen
Background and purpose - Hip displacement is common in children with severe cerebral palsy (CP) and can cause problems such as pain, contractures, and nursing difficulties. Caregiver priorities and child health index of life with disabilities (CPCHILD) is a recently developed measure of health-related quality of life (HRQL) in children with severe CP. The associations between CPCHILD scores and hip displacement have not been investigated. We explored the effect of hip displacement on HRQL. Patients and methods - 67 children were recruited from the population-based Norwegian CP register...
November 28, 2016: Acta Orthopaedica
https://www.readbyqxmd.com/read/27843743/comparison-of-a-robotic-assisted-gait-training-program-with-a-program-of-functional-gait-training-for-children-with-cerebral-palsy-design-and-methods-of-a-two-group-randomized-controlled-cross-over-trial
#4
Alicia J Hilderley, Darcy Fehlings, Gloria W Lee, F Virginia Wright
BACKGROUND: Enhancement of functional ambulation is a key goal of rehabilitation for children with cerebral palsy (CP) who experience gross motor impairment. Physiotherapy (PT) approaches often involve overground and treadmill-based gait training to promote motor learning, typically as free walking or with body-weight support. Robotic-assisted gait training (RAGT), using a device such as the Lokomat(®)Pro, may permit longer training duration, faster and more variable gait speeds, and support walking pattern guidance more than overground/treadmill training to further capitalize on motor learning principles...
2016: SpringerPlus
https://www.readbyqxmd.com/read/27807115/subclassification-of-gmfcs-level-5-cerebral-palsy-as-a-predictor-of-complications-and-health-related-quality-of-life-after-spinal-arthrodesis
#5
Amit Jain, Paul D Sponseller, Suken A Shah, Amer Samdani, Patrick J Cahill, Burt Yaszay, Dolores B Njoku, Mark F Abel, Peter O Newton, Michelle C Marks, Unni G Narayanan
BACKGROUND: The Gross Motor Function Classification System (GMFCS) of cerebral palsy categorizes patients by mobility. Patients at GMFCS level 5 are considered the most disabled and at high risk of hip and spine problems, yet they represent a wide spectrum of function. Our aim was to subclassify patients at GMFCS level 5 who underwent spinal arthrodesis on the basis of central neuromotor impairments and to assess whether subclassification predicted postoperative complications and changes in health-related quality of life...
November 2, 2016: Journal of Bone and Joint Surgery. American Volume
https://www.readbyqxmd.com/read/27798427/management-of-the-spastic-hip-in-cerebral-palsy
#6
Uri Givon
PURPOSE OF REVIEW: Spastic hip dysplasia (SHD) is a common finding in patients with cerebral palsy, with a higher incidence in more involved patients, causing disability and reducing quality of life in these patients. SHD is the most serious orthopedic problem seen in cerebral palsy patients, and requires special attention and tenacious evaluation of the patients. The aim of this article is to review the new developments in the treatment of SHD. RECENT FINDINGS: Patients with cerebral palsy were shown to have better hip joint morphology when they had access to hip surveillance programmes, with proactive search of patients with progressing hip subluxation and early intervention...
October 27, 2016: Current Opinion in Pediatrics
https://www.readbyqxmd.com/read/27798022/parenting-acceptance-and-commitment-therapy-a-randomised-controlled-trial-of-an-innovative-online-course-for-families-of-children-with-cerebral-palsy
#7
Koa Whittingham, Jeanie Sheffield, Roslyn N Boyd
INTRODUCTION: Cerebral palsy (CP) impacts on the entire family in a manner that is long-term, complex and multifactorial. In addition, the quality of the parent-child relationship impacts on many and varied child outcomes, making the provision of easily accessible and evidence-based support to parents of children with CP a priority. This paper reports the protocol of a randomised controlled trial of an innovative and translatable online intervention, parenting acceptance and commitment therapy (PACT), for families of children with CP...
October 19, 2016: BMJ Open
https://www.readbyqxmd.com/read/27793072/the-effects-of-connective-tissue-manipulation-and-kinesio-taping-on-chronic-constipation-in-children-with-cerebral-palsy-a-randomized-controlled-trial
#8
Ceren Orhan, Ozgun Kaya Kara, Serap Kaya, Turkan Akbayrak, Mintaze Kerem Gunel, Gül Baltaci
PURPOSE: The aim of this study was to investigate the effects of connective tissue manipulation (CTM) and Kinesio Taping(®) (KT) on constipation and quality of life in children with cerebral palsy (CP). METHOD: This study was designed as a randomized controlled trial. Forty children diagnosed with chronic constipation based on Rome III criteria were randomly assigned to CTM group [6 females, 7 males; 8 y 6 mo (SD = 3y 4 mo)], KT group [7 female, 7 male; 8y 7 mo (SD =3y 5 mo)] or control group [6 female, 7 male; 8y 3 mo (SD = 3y 6 mo)]...
October 28, 2016: Disability and Rehabilitation
https://www.readbyqxmd.com/read/27792122/health-related-quality-of-life-and-care-giver-burden-following-spinal-fusion-in-children-with-cerebral-palsy
#9
Rachel DiFazio, Patricia Miller, Judith A Vessey, Brian Snyder
STUDY DESIGN: Prospective longitudinal cohort OBJECTIVE.: Evaluate changes in caregivers' perceptions of health related quality of life (HRQOL) and caregiver burden in children with severe cerebral palsy (CP) following spinal fusion. SUMMARY OF BACKGROUND DATA: Progressive scoliosis is common in non-ambulatory children with CP; the utility of spine fusion has been long debated and prospective evaluations of patient reported outcomes are limited. METHODS: Children 3-21 years old, GMFCS IV-V CP, scheduled for spine fusion were enrolled consecutively from September 2011-March 2014...
October 25, 2016: Spine
https://www.readbyqxmd.com/read/27766516/proxy-reported-quality-of-life-in-adolescents-and-adults-with-dyskinetic-cerebral-palsy-is-associated-with-executive-functions-and-cortical-thickness
#10
O Laporta-Hoyos, J Ballester-Plané, P Póo, A Macaya, M Meléndez-Plumed, E Vázquez, I Delgado, L Zubiaurre-Elorza, V L Botellero, A Narberhaus, E Toro-Tamargo, D Segarra, R Pueyo
PURPOSE: Quality of life (QOL) is a key outcome for people with cerebral palsy (CP), and executive functioning is an important predictor of QOL in other health-related conditions. Little is known about this association in CP or about its neural substrate. We aim to analyze the influence of executive functioning (including cognitive flexibility) as well as that of other psychological, motor, communication and socioeconomic variables on QOL and to identify neuroanatomical areas related to QOL in adolescents and adults with CP...
October 20, 2016: Quality of Life Research
https://www.readbyqxmd.com/read/27744459/dental-health-of-children-with-cerebral-palsy
#11
Basil M Jan, Mohammed M Jan
Cerebral palsy (CP) is a common chronic motor disorder with associated cognitive, communicative, and seizure disorders. Children with CP have a higher risk of dental problems creating significant morbidity that can further affect their wellbeing and negatively impact their quality of life. Screening for dental disease should be part of the initial assessment of any child with CP. The objective of this article is to present an updated overview of dental health issues in children with CP and outline important preventative and practical strategies to the management of this common comorbidity...
October 2016: Neurosciences: the Official Journal of the Pan Arab Union of Neurological Sciences
https://www.readbyqxmd.com/read/27707657/the-relationship-of-dystonia-and-choreoathetosis-with-activity-participation-and-quality-of-life-in-children-and-youth-with-dyskinetic-cerebral-palsy
#12
Elegast Monbaliu, Paul De Cock, Lisa Mailleux, Bernard Dan, Hilde Feys
AIM: To relate dystonia and choreoathetosis with activity, participation and quality of life (QOL) in children and youth with dyskinetic Cerebral Palsy (CP). METHODS: Fifty-four participants with dyskinetic CP (mean age 14y6m, SD 4y2m, range 6-22y) were included. The Dyskinesia Impairment Scale (DIS) was used to evaluate dystonia and choreoathetosis. Activity, participation and quality of life (QOL) were assessed with the Gross Motor Function Measure (GMFM), the Functional Mobility Scale (FMS), the Jebsen-Taylor Hand Function Test (JTT), the ABILHAND-Kids Questionnaire (ABIL-K), the Life Habits Kids (LIFE-H) and the Quality of Life Questionnaire for children with CP (CP-QOL)...
September 23, 2016: European Journal of Paediatric Neurology: EJPN
https://www.readbyqxmd.com/read/27703369/multidisciplinary-rehabilitation-for-patients-with-cerebral-palsy-improving-long-term-care
#13
Antonio Trabacca, Teresa Vespino, Antonella Di Liddo, Luigi Russo
Cerebral palsy (CP) is one of the most frequent causes of child disability in developed countries. Children with CP need lifelong assistance and care. The current prevalence of CP in industrialized countries ranges from 1.5 to 2.5 per 1,000 live births, with one new case every 500 live births. Children with CP have an almost normal life expectancy and mortality is very low. Despite the low mortality rate, 5%-10% of them die during childhood, especially when the severe motor disability is comorbid with epilepsy and severe intellectual disability...
2016: Journal of Multidisciplinary Healthcare
https://www.readbyqxmd.com/read/27676983/health-network-breizh-pc-impact-on-the-management-of-patients-with-cerebral-palsy-and-professional-practice
#14
Amelie Colin, Benoit Nicolas, Aurelie Durufle, Luc Lepape, Sophie Achille, Philippe Gallien
OBJECTIVE: For 10 years the Breizh PC network has developed a training policy for health professionals based on the analysis of the medical needs of patients with cerebral palsy and professional practices. Several studies have highlighted various health problems. We detail the main actions and their impact on the satisfaction of users and professionals. MATERIAL AND METHODS: Since the creation of the network regulatory triennial assessments led us to perform satisfaction surveys among users and professional members of the network...
September 2016: Annals of Physical and Rehabilitation Medicine
https://www.readbyqxmd.com/read/27676704/recommendations-for-clinical-practice-after-neonatal-arterial-ischemic-stroke-clinical-monitoring-and-early-rehabilitation-intervention
#15
Carole Vuillerot, Mickael Dinomais, Stephane Marret, Stephane Chabrier, Thierry Debillon
Neonatal arterial ischemic stroke (NAIS) affects one child in 6-17 100,000-birth term neonates, most of these children will keep long-term motor and cognitive impairment. In 2014, initiated by the French Center for Pediatric Stroke in association with the French Society of Neonatology, a steering committee was created to propose clinical guidelines after NAIS. From all the relevant questions, the importance is given to long-term outcomes after a NAIS with a need for a better description of motor and cognitive outcomes after a NAIS in order to propose a more consensual monitoring for these children to improve their management...
September 2016: Annals of Physical and Rehabilitation Medicine
https://www.readbyqxmd.com/read/27673221/poster-478-a-review-of-the-health-related-quality-of-life-in-pediatric-patients-with-cerebral-palsy-and-associated-spasticity
#16
Nicole M Clarke, George C Camba, Savreet Bains, Jennifer M Stephens, Sonia Pulgar, Dominic Marchese, Ann H Tilton
No abstract text is available yet for this article.
September 2016: PM & R: the Journal of Injury, Function, and Rehabilitation
https://www.readbyqxmd.com/read/27672747/impact-of-selective-percutaneous-myofascial-lengthening-spml-on-quality-of-life-in-children-with-cerebral-palsy
#17
Tracey Isidro, Laura Wu, David Yngve
No abstract text is available yet for this article.
September 2016: PM & R: the Journal of Injury, Function, and Rehabilitation
https://www.readbyqxmd.com/read/27672745/participation-in-daily-life-influence-on-quality-of-life-in-ambulatory-children-with-cerebral-palsy
#18
Jaclyn C Russell, Kristie Bjornson
No abstract text is available yet for this article.
September 2016: PM & R: the Journal of Injury, Function, and Rehabilitation
https://www.readbyqxmd.com/read/27634166/motor-trajectories-from-birth-to-5-years-of-children-born-at-less-than-30-weeks-gestation-early-predictors-and-functional-implications-protocol-for-a-prospective-cohort-study
#19
Alicia J Spittle, Jennifer L McGinley, Deanne Thompson, Ross Clark, Tara L FitzGerald, Benjamin F Mentiplay, Katherine J Lee, Joy E Olsen, Alice Burnett, Karli Treyvaud, Elisha Josev, Bonnie Alexander, Claire E Kelly, Lex W Doyle, Peter J Anderson, Jeanie Ly Cheong
INTRODUCTION: Motor impairments are one of the most frequently reported adverse neurodevelopmental consequences in children born < 30 weeks' gestation. Up to 15% of children born at < 30 weeks have cerebral palsy and an additional 50% have mild to severe motor impairment at school age. The first 5 years of life are critical for the development of fundamental motor skills. These skills form the basis for more complex skills that are required to competently and confidently participate in schooling, sporting and recreational activities...
October 2016: Journal of Physiotherapy
https://www.readbyqxmd.com/read/27617378/oral-health-quality-of-life-in-children-with-cerebral-palsy-parental-perceptions
#20
Eman A El Ashiry, Sumer M Alaki, Sumaya M Nouri
OBJECTIVE: To assess the parents' perception of the oral health-related quality of life (OHRQOL) in children with Cerebral Palsy (CP) and compare it with normally developing children. STUDY DESIGN: 63 children with CP were recruited from 8 disability centers, and 99 healthy controls were recruited from 5 elementary schools. The ages of the children in both groups were from 6-12 years. The Franciscan Hospital for Children Oral Health-Related Quality of Life (FHC-OHRQOL) was used to measure the OHRQOL and an oral examination was conducted in the schools/centers of the children to assess the teeth, gingival health, and oral hygiene...
2016: Journal of Clinical Pediatric Dentistry
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