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https://www.readbyqxmd.com/read/27876688/online-concerns-of-parents-suspecting-autism-spectrum-disorder-in-their-child-content-analysis-of-signs-and-automated-prediction-of-risk
#1
Ayelet Ben-Sasson, Elad Yom-Tov
BACKGROUND: Online communities are used as platforms by parents to verify developmental and health concerns related to their child. The increasing public awareness of autism spectrum disorders (ASD) leads more parents to suspect ASD in their child. Early identification of ASD is important for early intervention. OBJECTIVE: To characterize the symptoms mentioned in online queries posed by parents who suspect that their child might have ASD and determine whether they are age-specific...
November 22, 2016: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/26975669/attitudes-of-the-autism-community-to-early-autism-research
#2
Sue Fletcher-Watson, Fabio Apicella, Bonnie Auyeung, Stepanka Beranova, Frederique Bonnet-Brilhault, Ricardo Canal-Bedia, Tony Charman, Natasha Chericoni, Inês C Conceição, Kim Davies, Teresa Farroni, Marie Gomot, Emily Jones, Anett Kaale, Katarzyna Kapica, Rafal Kawa, Anneli Kylliäinen, Kenneth Larsen, Jeremy Lefort-Besnard, Joelle Malvy, Sara Manso de Dios, Silvana Markovska-Simoska, Inbal Millo, Natercia Miranda, Greg Pasco, Ewa Pisula, Marija Raleva, Bernadette Rogé, Erica Salomone, Synnve Schjolberg, Przemysław Tomalski, Astrid M Vicente, Nurit Yirmiya
Investigation into the earliest signs of autism in infants has become a significant sub-field of autism research. This work invokes specific ethical concerns such as use of 'at-risk' language, communicating study findings to parents and the future perspective of enrolled infants when they reach adulthood. This study aimed to ground this research field in an understanding of the perspectives of members of the autism community. Following focus groups to identify topics, an online survey was distributed to autistic adults, parents of children with autism and practitioners in health and education settings across 11 European countries...
March 14, 2016: Autism: the International Journal of Research and Practice
https://www.readbyqxmd.com/read/26635296/highlighting-consensus-among-medical-scientists-increases-public-support-for-vaccines-evidence-from-a-randomized-experiment
#3
RANDOMIZED CONTROLLED TRIAL
Sander L van der Linden, Chris E Clarke, Edward W Maibach
BACKGROUND: A substantial minority of American adults continue to hold influential misperceptions about childhood vaccine safety. Growing public concern and refusal to vaccinate poses a serious public health risk. Evaluations of recent pro-vaccine health communication interventions have revealed mixed results (at best). This study investigated whether highlighting consensus among medical scientists about childhood vaccine safety can lower public concern, reduce key misperceptions about the discredited autism-vaccine link and promote overall support for vaccines...
2015: BMC Public Health
https://www.readbyqxmd.com/read/25665960/greater-freedom-of-speech-on-web-2-0-correlates-with-dominance-of-views-linking-vaccines-to-autism
#4
Anand Venkatraman, Neetika Garg, Nilay Kumar
INTRODUCTION: It is suspected that Web 2.0 web sites, with a lot of user-generated content, often support viewpoints that link autism to vaccines. METHODS: We assessed the prevalence of the views supporting a link between vaccines and autism online by comparing YouTube, Google and Wikipedia with PubMed. Freedom of speech is highest on YouTube and progressively decreases for the others. RESULTS: Support for a link between vaccines and autism is most prominent on YouTube, followed by Google search results...
March 17, 2015: Vaccine
https://www.readbyqxmd.com/read/25312547/association-between-impairment-function-and-daily-life-task-management-in-children-and-adolescents-with-autism
#5
Ying-Chia Kao, Jessica M Kramer, Kendra Liljenquist, Wendy J Coster
AIM: This cross-sectional study examined whether impairments or functional skills are associated with the level of responsibility for life tasks for children and adolescents with autism spectrum disorders (ASDs). METHOD: Parents of 263 children and adolescents with ASDs (215 males; 48 females; mean age 12y 6mo [SD 4y 6mo], range 3-21y) completed an online survey that included the Pediatric Evaluation of Disability Inventory-Computer Adaptive Test - Autism Spectrum Disorders (PEDI-CAT-ASD) Daily Activities, Social/Cognitive, and Responsibility domains, a demographic questionnaire, and the Social Communication Questionnaire (SCQ) Current...
January 2015: Developmental Medicine and Child Neurology
https://www.readbyqxmd.com/read/23739773/-dsm-v-is-taking-away-our-identity-the-reaction-of-the-online-community-to-the-proposed-changes-in-the-diagnosis-of-asperger-s-disorder
#6
David C Giles
This article considers the fate of Asperger's disorder in the light of proposals for the Diagnostic and Statistical Manual of Mental Disorders (5th ed.) to collapse Asperger's disorder along with other pervasive developmental disorders into a general spectrum of autism. It is argued that a powerful lay and scientific culture has evolved around the concept of Asperger's disorder, which has found a particularly compelling voice over the last decade in the online Asperger community, with websites such as Wrong Planet recruiting tens of thousands of members...
March 2014: Health (London)
https://www.readbyqxmd.com/read/23479076/brief-report-do-service-dog-providers-placing-dogs-with-children-with-developmental-disabilities-use-outcome-measures-and-if-so-what-are-they
#7
Felicity Butterly, Carol Percy, Gillian Ward
The aim of this study was to identify the outcomes expected and assessed by those providing service dogs to children with developmental disabilities. Seventeen registered service dog providers were invited to complete a mixed methods online survey. Five providers, who prepared dogs to work with a wide range of conditions and behaviours, mainly Asperger's syndrome, autism and communication disorders, completed the survey. All five participants reported that they expected to see positive changes as a consequence of the service dog placement, in both the recipient child and their family, including improvements in attention span and language skills, as well as increased familial cohesion...
November 2013: Journal of Autism and Developmental Disorders
https://www.readbyqxmd.com/read/23179969/comparison-of-healthcare-experiences-in-autistic-and-non-autistic-adults-a-cross-sectional-online-survey-facilitated-by-an-academic-community-partnership
#8
Christina Nicolaidis, Dora Raymaker, Katherine McDonald, Sebastian Dern, W Cody Boisclair, Elesia Ashkenazy, Amanda Baggs
BACKGROUND: Little is known about the healthcare experiences of adults on the autism spectrum. Moreover, autistic adults have rarely been included as partners in autism research. OBJECTIVE: To compare the healthcare experiences of autistic and non-autistic adults via an online survey. METHODS: We used a community-based participatory research (CBPR) approach to adapt survey instruments to be accessible to autistic adults and to conduct an online cross-sectional survey...
June 2013: Journal of General Internal Medicine
https://www.readbyqxmd.com/read/22967045/the-impact-of-workplace-factors-on-evidence-based-speech-language-pathology-practice-for-children-with-autism-spectrum-disorders
#9
Gladys Cheung, David Trembath, Joanne Arciuli, Leanne Togher
Although researchers have examined barriers to implementing evidence-based practice (EBP) at the level of the individual, little is known about the effects workplaces have on speech-language pathologists' implementation of EBP. The aim of this study was to examine the impact of workplace factors on the use of EBP amongst speech-language pathologists who work with children with Autism Spectrum Disorder (ASD). This study sought to (a) explore views about EBP amongst speech-language pathologists who work with children with ASD, (b) identify workplace factors which, in the participants' opinions, acted as barriers or enablers to their provision of evidence-based speech-language pathology services, and (c) examine whether or not speech-language pathologists' responses to workplace factors differed based on the type of workplace or their years of experience...
August 2013: International Journal of Speech-language Pathology
https://www.readbyqxmd.com/read/22233368/interprofessional-clinical-education-for-occupational-therapy-and-psychology-students-a-social-skills-training-program-for-children-with-autism-spectrum-disorders
#10
Dana M Howell, Peggy Wittman, Myra Beth Bundy
An interprofessional clinical learning experience was developed for pre-licensure occupational therapy (OT) and psychology graduate students. Students worked in interprofessional teams to plan and implement a social skills training program for children with autism spectrum disorders (ASD). The objectives were to provide a hands-on, student-led clinical experience; facilitate interprofessional collaborative learning through leadership partnerships and teach children with ASD to engage in appropriate social skill behaviors...
January 2012: Journal of Interprofessional Care
https://www.readbyqxmd.com/read/22063388/lessons-from-an-online-debate-about-measles-mumps-rubella-mmr-immunization
#11
Michelle S Nicholson, Julie Leask
OBJECTIVE: To provide strategies for immunization advocates on how best to participate in online discussion forums about immunization. METHODS: Content and thematic analysis of an online discussion forum held following the national screening of a documentary about the measles-mumps-rubella (MMR) vaccine and autism scare. A subsample of branches containing more than 20 posts was analysed. Each distinct message (a "post") was coded for the author's manifest position on immunization, author type, topic, and evidence presented or sought...
May 28, 2012: Vaccine
https://www.readbyqxmd.com/read/19626749/representations-of-autism-implications-for-community-healthcare-practice
#12
Charlotte Brownlow, Lindsay O'Dell
The work presented in this paper is part of a larger project in which online asynchronous discussion groups were employed to examine how a range of contributors--including people with autism, parents of people with autism, and professionals working within the field of autism--view and understand autism. In this paper, we focus on the voices of people with autism. The terminology used in the paper takes its lead from the writings of people with autism, who frequently use the term 'AS' to refer to autistic spectrum and Asperger syndrome and 'NT', which refers to neurologically typical people without autism...
July 2009: Community Practitioner: the Journal of the Community Practitioners' & Health Visitors' Association
https://www.readbyqxmd.com/read/18998843/an-online-community-for-teachers-of-children-with-autism-to-support-observe-and-evaluate-communication-enabled-with-smartphones
#13
Gianluca De Leo, Gondy Leroy
We are developing an online community for teachers of children diagnosed with autism spectrum disorder that will provide tools to share, analyze, and evaluate assisted communication. The data will be collected from software on smartphones that allows children to communicate with teachers using images. Since this is the first approach towards systematic data collection for children with ASD, we expect a significant impact on current teaching methods.
2008: AMIA ... Annual Symposium Proceedings
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