Katharina Kovacs Burns, Zahra Bhatia, Benveet Gill, Dalique van der Nest, Jason Knox, Magda Mouneimne, Taryn Buck, Rebecca Charbonneau, Kasey Aiello, Adalberto Loyola Sanchez, Rija Kamran, Olaleye Olayinka, Chester Ho
Evaluating the experiences of persons with spinal cord injury (PwSCI) regarding their transitions in care and changes in health, function, and quality of life is complex, fragmented, and involves multiple tools and measures. A staged protocol was implemented with PwSCI and relevant expert stakeholders initially exploring and selecting existing measures or tools through a modified Delphi process, followed by choosing one of two options. The options were to either support the use of the 10 selected tools from the Delphi method or to co-develop one unique condensed tool with relevant measures to evaluate all four domains...
February 23, 2024: Healthcare (Basel, Switzerland)