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children and youth with special health care needs

Lucy Barnard-Brak, David M Richman, Rosario Moreno
Elopement exhibited by school-aged children with special health care needs is a relatively low frequency problem behavior with the potential for severe negative consequences for the child and family. Using data from the Centers for Disease Control and Prevention (CDC) Survey of Pathways to Diagnosis and Services, our results represent one of the first empirical studies of variables that may be associated with children with special health care needs engaging in elopement. Using data from a nationally representative sample of children with special health care needs, our results revealed two variables that were statistically significant predictors of parent-reported elopement in the past year: (1) the child's chronological age, and (2) the presence of an autism spectrum disorder (ASD) diagnosis...
October 3, 2016: Journal of Primary Prevention
Joanna Brown, Jason Rafferty, Deborah Golding, Victoria Adewale, Lauren Chan, Christina Pastorello, Patricia Stebbins, Jodie Neukirch
Health reform strives to be patient-centered but often emphasizes institutional and financial well-being at the expense of patient responsiveness. Rhode Island is a pioneer, with innovative youth engagement programs in health care. The Youth Advisory Board of the Adolescent Patient-Centered Medical Home (PCMH) Initiative at Brown Family Medicine has brought together adolescents to gather feedback about participants' preferences for their health care and bring that feedback to health care providers. The Adolescent Leadership Council (TALC) of Hasbro Children's Hospital is comprised of adolescents with chronic medical illnesses and serves as an advisory group...
2016: Rhode Island Medical Journal
Toril Sørheim Nilsen, Bjørn Helge Handegård, Martin Eisemann, Siv Kvernmo
BACKGROUND: To examine demographic and clinical characteristics as potential predictors of change for children and youth with emotional disorders treated at two child and adolescent mental health outpatient services (CAMHS) in Norway. METHODS: The study was of naturalistic observational type with "treatment as usual" (TAU). The sample consisted of 84 children and youth with emotional disorders. The Health of the Nation Outcome Scale (HONOSCA), and the Children's Global Assessment Scale (CGAS) were administered at intake (T0), during the assessment (T1) and approximately six months after assessment (T2)...
2016: Child and Adolescent Psychiatry and Mental Health
Kathleen Myers, Jonathan S Comer
OBJECTIVE: Children's mental health problems collectively impose a staggering public health burden. However, the quality of regionally accessible children's mental healthcare varies greatly, with youth in rural and other remote communities particularly underserved. Promoting knowledge and skill in telemental health (TMH) is critical to meaningfully overcoming traditional geographic barriers to children's mental healthcare. METHODS: To introduce this special section, we review the increasing need for child and adolescent mental health services, the decreasing child mental health workforce, and the role that TMH can play in new models of care...
April 2016: Journal of Child and Adolescent Psychopharmacology
David de Voursney, Larke N Huang
The health home program established under the Affordable Care Act (2010) is derived from the medical home concept originated by the American Academy of Pediatrics in 1968 to provide a care delivery model for children with special health care needs. As applied to behavioral health, health homes or medical homes have become increasingly adult-focused models, with a primary goal of coordinating physical and behavioral health care. For children and youth with serious emotional disorders, health homes must go beyond physical and behavioral health care to connect with other child-focused sectors, such as education, child welfare, and juvenile justice...
February 2016: Psychological Services
Denise Liu, Chi Meng Chu, Lee Hong Neo, Rebecca P Ang, Michelle Yan Ling Tan, Jeanie Chu
OBJECTIVE: Children in out-of-home care are often exposed to chronic, interpersonal traumas such as abuse and domestic violence. Exposure to more than 1 interpersonal trauma is associated with functional impairments, mental health symptoms, and risk behaviors. Despite the importance of studying trauma in this vulnerable population, very few studies have investigated trauma exposure among children and youth in out-of-home care in Asia. This is the first study to examine the effects of multiple interpersonal trauma exposure in a large sample of children in out-of-home care in Singapore...
July 2016: Psychological Trauma: Theory, Research, Practice and Policy
Felissa Goldstein, Dehra Glueck
OBJECTIVE: The purpose of this study was to describe the special considerations for building rapport and establishing a therapeutic alliance when conducting mental health evaluations for children and adolescents via videoconferencing. METHODS: The authors review the literature and describe their experience in conducting mental health evaluations, developing rapport, and establishing a therapeutic alliance during telemental health practice. RESULTS: Clinical need and shortages of clinicians with expertise in evaluating mental conditions for children and adolescents in underserved communities have stimulated the rapid expansion of telemental health programs while the research base continues to develop...
April 2016: Journal of Child and Adolescent Psychopharmacology
Nathalie Fleming, Teresa O'Driscoll, Gisela Becker, Rachel F Spitzer, Lisa Allen, Debra Millar, Philippa Brain, Nancy Dalziel, Elise Dubuc, Julie Hakim, Deanna Murphy, Rachel Spitzer
OBJECTIVE: To describe the needs and evidence-based practice specific to care of the pregnant adolescent in Canada, including special populations. OUTCOMES: Healthy pregnancies for adolescent women in Canada, with culturally sensitive and age-appropriate care to ensure the best possible outcomes for these young women and their infants and young families, and to reduce repeat pregnancy rates. EVIDENCE: Published literature was retrieved through searches of PubMed and The Cochrane Library on May 23, 2012 using appropriate controlled vocabulary (e...
August 2015: Journal of Obstetrics and Gynaecology Canada: JOGC, Journal D'obstétrique et Gynécologie du Canada: JOGC
(no author information available yet)
Children and adolescents who enter foster care often do so with complicated and serious medical, mental health, developmental, oral health, and psychosocial problems rooted in their history of childhood trauma. Ideally, health care for this population is provided in a pediatric medical home by physicians who are familiar with the sequelae of childhood trauma and adversity. As youth with special health care needs, children and adolescents in foster care require more frequent monitoring of their health status, and pediatricians have a critical role in ensuring the well-being of children in out-of-home care through the provision of high-quality pediatric health services, health care coordination, and advocacy on their behalves...
October 2015: Pediatrics
Albert C Hergenroeder, Constance M Wiemann, Valerie F Bowman
Advancements in medicine have increased the likelihood that children with chronic illnesses will survive childhood. The success in treatment for their conditions has not been matched by methods to effectively facilitate their transition to adult care. This short report describes lessons learned in building a hospital-wide health care transition (HCT) planning infrastructure that could help patients transition from pediatric to adult-based care regardless of disease/disability. A solid foundation on which to build a hospital-based HCT planning program includes the following: focusing on structure and processes needed to facilitate medical transition; conducting a baseline assessment of current transition policy/practice; building an understanding of the complexity and necessity of transition planning; identifying advocates for transition planning and adult providers who will accept youth with chronic medical conditions; and establishing methods to evaluate transition program building activities...
September 11, 2015: International Journal of Adolescent Medicine and Health
B Zernikow, C Hermann
AIM: Chronic and debilitating pediatric pain has a prevalence of 5% and as such constitutes a considerable health problem. The aim of this article is to provide an overview of current research activities on pediatric pain, available health care for children with chronic pain and education and training programs for health professionals. METHOD: This overview is based on the authors' personal experience, information available from medical, research and professional associations, as well as a PubMed literature search for the time period 2012-2015 using "children";"pain" and "Germany" as search terms...
October 2015: Der Schmerz
Andres F Camacho-Gonzalez, Marie-Huguette Kingbo, Ashley Boylan, Allison Ross Eckard, Ann Chahroudi, Rana Chakraborty
OBJECTIVE: To describe system failures potentially contributing to perinatal HIV transmission in the state of Georgia, United States, between 2005 and 2012. DESIGN: A retrospective chart review of antenatal and postnatal records of HIV-infected infants between 1 January 2005 and 31 December 2012. METHODS: Study participants included all HIV-infected infants referred for specialized management to the Ponce Family and Youth Clinic within Grady Health Systems in Atlanta...
July 31, 2015: AIDS
Megumi J Okumura, Mara Saunders, Roberta S Rehm
BACKGROUND: Youth and young adults with special healthcare needs (YASHCN) experience challenges during transition from pediatric to adult care. Prior studies have not examined how community and healthcare resources can work together to assist YASHCN in transitioning from child-focused care and services to adult-oriented providers. OBJECTIVE: The aim of this study was to develop a theoretical understanding of how family, healthcare providers and community supports can assist YASHCN during the transition from pediatric to adult healthcare and services...
September 2015: Journal of Pediatric Nursing
Constance M Wiemann, Albert C Hergenroeder, Krystle A Bartley, Blanca Sanchez-Fournier, Marisa E Hilliard, Laura J Warren, Sarah C Graham
An electronic medical record (EMR)-based transition planning tool (TPT) designed to facilitate transition from pediatric to adult-based health care for youth (16-25 years) with special health care needs was introduced at a large children's hospital. Activities to increase provider use were implemented in five plan-do-study-act cycles. Overall, 22 of 25 (88%) consenting providers in four pediatric subspecialty services used the TPT during 303 patient encounters, with nurses and case-managers the top users and physicians the least likely users...
September 2015: Journal of Pediatric Nursing
Holly Longstaff, Vera Khramova, Elodie Portales-Casamar, Judy Illes
INTRODUCTION: Research on complex health conditions such as neurodevelopmental disorders increasingly relies on large-scale research and clinical studies that would benefit from data sharing initiatives. Organizations that share data stand to maximize the efficiency of invested research dollars, expedite research findings, minimize the burden on the patient community, and increase citation rates of publications associated with the data. OBJECTIVE: This study examined ethics and governance information on websites of databases involving neurodevelopmental disorders to determine the availability of information on key factors crucial for comprehension of, and trust and participation in such initiatives...
2015: PloS One
Mattana Angsupaisal, Carel G B Maathuis, Mijna Hadders-Algra
AIM: The aim of this study was to systematically review the effect of adaptive seating systems (AdSSs) in young people less than 19 years of age with severe cerebral palsy (CP), with particular focus on child-related outcomes across all components of the functioning and disability domains of the International Classification of Functioning, Disability, and Health for Children and Youth version (ICF-CY). METHOD: Literature searches of studies published from 1975 to October 2014 were performed...
October 2015: Developmental Medicine and Child Neurology
Nora Wells, Suzanne Bronheim, Stephen Zyzanski, Clarissa Hoover
The objective of this study was to create a psychometrically sound measure of family-centered care, the Family-Centered Care Assessment (FCCA), developed through a process led by families in collaboration with maternal and child health leaders. The items for the FCCA scale were initially developed by families of children and youth with special needs in partnership with pediatric providers and researchers. Using an Institutional Review Board-approved research protocol, the questions were revised based on input from focus groups of diverse parents in three states...
September 2015: Maternal and Child Health Journal
Lauren T Ptomey, Wendy Wittenbrook
It is the position of the Academy of Nutrition and Dietetics that nutrition services provided by registered dietitian nutritionists (RDNs) and nutrition and dietetics technicians, registered (NDTRs), who work under RDN supervision, are essential components of comprehensive care for adults with intellectual and developmental disabilities (IDD) and children and youth with special health care needs (CYSHCN). Nutrition services should be provided throughout life in a manner that is interdisciplinary, family-centered, community based, and culturally competent...
April 2015: Journal of the Academy of Nutrition and Dietetics
Rebekah S Huber, Tae-Suk Kim, Namkug Kim, M Danielle Kuykendall, Samantha N Sherwood, Perry F Renshaw, Douglas G Kondo
OBJECTIVE: The purpose of this study was to evaluate the effect of altitude on rates of ADHD. As decreased dopamine (DA) activity has been reported with ADHD and hypoxia has shown to be associated with increased DA, we hypothesized that states at higher altitudes would have lower rates of ADHD. METHOD: State estimates from the 2007 National Survey of Children's Health (NSCH) report and 2010 National Survey of Children with Special Health Care Needs (NS-CSHCN) report were used to extract the percentages of youth ages 4 to 17 diagnosed with ADHD...
March 25, 2015: Journal of Attention Disorders
L P Chicherin, R Ia Nagaev
The model of the subject of the Russian Federation is used to consider means of development of health protection and health promotion in adolescents including implementation of the National strategy of activities in interest of children for 2012-2017 approved by decree No761 of the President of Russia in June 1 2012. The analysis is carried out concerning organization of medical social care to this group of population in medical institutions and organizations of different type in the Republic of Bashkortostan...
November 2014: Problemy Sot︠s︡ialʹnoĭ Gigieny, Zdravookhranenii︠a︡ i Istorii Medit︠s︡iny
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