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https://www.readbyqxmd.com/read/29659994/resident-and-staff-satisfaction-of-pediatric-graduate-medical-education-training-on-transition-to-adult-care-of-medically-complex-patients
#1
Matthew Weeks, Brandon Cole, Eric Flake, Daniel Roy
Introduction: This study aims to describe the quantity and satisfaction current residents and experienced pediatricians have with graduate medical education on transitioning medically complex patients to adult care. There is an increasing need for transitioning medically complex adolescents to adult care. Over 90% now live into adulthood and require transition to adult healthcare providers. The 2010 National Survey of Children with Special Health Care Needs found that only 40% of youth 12-17 yr receive the necessary services to appropriately transition to adult care...
April 11, 2018: Military Medicine
https://www.readbyqxmd.com/read/29610414/the-medical-home-and-health-care-transition-for-youth-with-autism
#2
Jessica E Rast, Paul T Shattuck, Anne M Roux, Kristy A Anderson, Alice Kuo
BACKGROUND: Our objective in this study was to describe the association between the receipt of health care transition services (HCTS) and having a medical home in youth with autism spectrum disorder (ASD). Youth with ASD receive HCTS less often than other youth with special health care needs but are in particular need of continuous, comprehensive health care. METHODS: We used the National Survey of Children with Special Health Care Needs to describe the receipt of HCTS in youth with ASD and its association with presence of a medical home...
April 2018: Pediatrics
https://www.readbyqxmd.com/read/29525898/transition-of-children-with-neurological-disorders
#3
REVIEW
Ann H Tilton
PURPOSE OF THE REVIEW: The goal of the article is to describe a systematic approach through core principles and steps for the transition of the patient with a neurological disorder to the adult model of care, to provide steps and principles to help receiving providers successfully integrate the patient into their practice, and to discuss cultural, systemic, and discipline-based barriers to transition. RECENT FINDING: The literature has expanded rapidly. The recent publications help define the barriers to the process and are currently exploring the best methods to evaluate readiness, needs, barriers, and develop solutions for best practices...
March 10, 2018: Current Neurology and Neuroscience Reports
https://www.readbyqxmd.com/read/29496972/models-of-care-delivery-for-children-with-medical-complexity
#4
Elisabeth Pordes, John Gordon, Lee M Sanders, Eyal Cohen
Children with medical complexity (CMC) are a subset of children and youth with special health care needs with high resource use and health care costs. Novel care delivery models in which care coordination and other services to CMC are provided are a focus of national and local health care and policy initiatives. Current models of care for CMC can be grouped into 3 main categories: (1) primary care-centered models, (2) consultative- or comanagement-centered models, and (3) episode-based models. Each model has unique advantages and disadvantages...
March 2018: Pediatrics
https://www.readbyqxmd.com/read/29496971/status-complexicus-the-emergence-of-pediatric-complex-care
#5
Eyal Cohen, Jay G Berry, Lee Sanders, Edward L Schor, Paul H Wise
Discourse about childhood chronic conditions has transitioned in the last decade from focusing primarily on broad groups of children with special health care needs to concentrating in large part on smaller groups of children with medical complexity (CMC). Although a variety of definitions have been applied, the term CMC has most commonly been defined as children and youth with serious chronic conditions, substantial functional limitations, increased health and other service needs, and increased health care costs...
March 2018: Pediatrics
https://www.readbyqxmd.com/read/29479192/caring-for-children-and-youth-from-canadian-military-families-special-considerations
#6
Anne Rowan-Legg
Military families experience a number of life stressors, such as frequent geographical moves, long periods of separation within the family, geographic isolation from extended family support systems and deployments to high-risk areas of the world. While children and youth in military families experience all the same developmental and motivational trajectories as their civilian counterparts, they must also contend with more unusual developmental pressures and stressors placed on them by the unique demands of military life...
May 2017: Paediatrics & Child Health
https://www.readbyqxmd.com/read/29471702/children-with-adhd-symptoms-who-can-do-without-specialized-mental-health-care
#7
Birgit Levelink, Frans J M Feron, Edward Dompeling, Dorothea M C B van Zeben-van de Aa
OBJECTIVE: A new Dutch Child and Youth Act should reduce specialized mental health care for children with symptoms of ADHD. Characteristics of children referred to a specialized ADHD clinic are explored to give direction to this intention. METHOD: Data of 261 children who underwent a multidisciplinary best practice evaluation (including rating scales, and demographic, psychological, and somatic findings) were analyzed. Univariable and multivariable logistic regression models were used to find predictive variables for the need of specialized mental health care...
February 1, 2018: Journal of Attention Disorders
https://www.readbyqxmd.com/read/29445982/care-coordination-empowering-families-a-promising-practice-to-facilitate-medical-home-use-among-children-and-youth-with-special-health-care-needs
#8
Lisa Gorman Ufer, Julie A Moore, Kristen Hawkins, Gina Gembel, David N Entwistle, David Hoffman
Introduction This paper describes the care coordination training program and results of an evaluation from its pilot in seven states. Despite the importance of practice-based care coordination, only 42.3% of children with special health care needs (CYSHCN) met all needed components of care coordination as defined by the Maternal Child Health Bureau. Recognizing that children with medically complex conditions often have lower rates of achieving care coordination within a medical home, the Region 4 Midwest Genetics Collaborative worked with families to develop a training to empower families in care coordination...
February 14, 2018: Maternal and Child Health Journal
https://www.readbyqxmd.com/read/29318920/family-centered-care-and-positive-developmental-outcomes-for-youth-with-special-health-care-needs-variations-across-family-structures
#9
Luke T Russell, Jonathon J Beckmeyer, Chang Su-Russell
Drawing on a social determinants of health framework, we evaluated associations between perceived family-centered care (FCC) and positive developmental outcomes for youth with special health care needs across six different family structures (married biological families, cohabiting biological families, married stepfamilies, cohabiting stepfamilies, divorced/separated single-mother families, and never-married single-mother families). Using data from the 2011-2012 National Survey of Children's Health, we found that married biological families perceive greater FCC than do other family structures...
February 2018: Journal of Family Nursing
https://www.readbyqxmd.com/read/29260379/perspectives-on-monitoring-youth-with-ongoing-mental-health-problems-in-primary-health-care-family-physicians-are-out-of-the-loop
#10
Kyleigh E Schraeder, Judith Belle Brown, Graham J Reid
Children's mental health (CMH) problems often recur. Following specialized mental health treatment, youth may require monitoring and follow-up. For these youth, primary health care is highly relevant, as family physicians (FPs) are the only professionals who follow patients across the lifespan. The current study gained multiple perspectives about (1) the role of FPs in caring for youth with ongoing/recurring CMH problems and (2) incorporating routine mental health monitoring into primary health care. A total of 33 interviews were conducted, including 10 youth (aged 12-15) receiving CMH care, 10 parents, 10 CMH providers, and 3 FPs...
April 2018: Journal of Behavioral Health Services & Research
https://www.readbyqxmd.com/read/29160158/-i-think-he-will-have-it-throughout-his-whole-life-parent-and-youth-perspectives-about-childhood-mental-health-problems
#11
Kyleigh E Schraeder, Graham J Reid, Judith Belle Brown
Children's mental health (CMH) problems can be long-lasting. Even among children and youth who receive specialized CMH treatment, recurrence of problems is common. It is unknown whether youth and their parents view the possibility of future mental health problems. This has important implications for how CMH services should be delivered. This grounded theory study gained perspectives from youth (aged 12-15 years) who received CMH treatment ( n = 10) and their parents ( n = 10) about the expected course of CMH problems...
November 1, 2017: Qualitative Health Research
https://www.readbyqxmd.com/read/29019633/behavioral-health-disparities-among-children-and-youth-with-special-health-care-needs
#12
Anne Elizabeth Glassgow, Benjamin Van Voorhees
The burden of mental health morbidity, disability, and mortality in children is not equally distributed across populations in the United States. The consequence is widespread differences in health status between certain groups of children that result in systematic behavioral health disparities. In the US, an estimated 12.8% of children (9.4 million) have a special health care need. Mental, emotional, and behavioral problems and disorders are widespread among children and youth with special health care needs (CYSHCN), but are often undetected and untreated despite the adverse consequences to children throughout the life course...
October 1, 2017: Pediatric Annals
https://www.readbyqxmd.com/read/28972049/child-abuse-in-children-and-youth-with-special-health-care-needs
#13
Nicola Brodie, Maria D McColgan, Nancy D Spector, Renee M Turchi
No abstract text is available yet for this article.
October 2017: Pediatrics in Review
https://www.readbyqxmd.com/read/28970742/exploring-integration-of-care-for-children-living-with-complex-care-needs-across-the-european-union-and-european-economic-area
#14
Maria Brenner, Miriam O'Shea, Philip J Larkin, Stine Lundstroem Kamionka, Jay Berry, Harriet Hiscock, Michael Rigby, Mitch Blair
INTRODUCTION: The aim of this paper is to report on the development of surveys to explore integration of care for children living with complex care needs across the European Union (EU) and European Economic Area (EEA). THEORY AND METHODS: Each survey consists of a vignette and questions adapted from the Standards for Systems of Care for Children and Youth with Special Health Care Needs and the Eurobarometer Survey. A Country Agent in each country, a local expert in child health services, will obtain data from indigenous sources...
April 24, 2017: International Journal of Integrated Care
https://www.readbyqxmd.com/read/28942565/relationship-of-adverse-family-experiences-to-resilience-and-school-engagement-among-vermont-youth
#15
Laurin Kasehagen, Laurel Omland, Melissa Bailey, Charlie Biss, Breena Holmes, Patsy Tassler Kelso
INTRODUCTION: Adverse childhood experiences (ACEs) are associated with a range of health outcomes and risk behaviors. In 2011-2012, the National Survey of Children's Health (NSCH) included questions about adverse family experiences (AFEs). AFE survey questions are similar to ACE questions, except there are no questions about emotional/physical/sexual trauma, and questions are asked of parents rather than children. Although the relationship between ACEs and work/school absenteeism has been studied, the relationships between AFEs of school-aged children, school performance, and buffering behaviors have not been explored in depth...
March 2018: Maternal and Child Health Journal
https://www.readbyqxmd.com/read/28828568/development-and-psychometric-evaluation-of-the-promis-pediatric-life-satisfaction-item-banks-child-report-and-parent-proxy-editions
#16
Christopher B Forrest, Janine Devine, Katherine B Bevans, Brandon D Becker, Adam C Carle, Rachel E Teneralli, JeanHee Moon, Carole A Tucker, Ulrike Ravens-Sieberer
PURPOSE: To describe the psychometric evaluation and item response theory calibration of the PROMIS Pediatric Life Satisfaction item banks, child-report, and parent-proxy editions. METHODS: A pool of 55 life satisfaction items was administered to 1992 children 8-17 years old and 964 parents of children 5-17 years old. Analyses included descriptive statistics, reliability, factor analysis, differential item functioning, and assessment of construct validity. Thirteen items were deleted because of poor psychometric performance...
January 2018: Quality of Life Research
https://www.readbyqxmd.com/read/28800802/special-considerations-in-the-pediatric-psychiatric-population
#17
REVIEW
Genevieve Santillanes, Ruth S Gerson
Youth with psychiatric and behavioral complaints commonly present to emergency departments (EDs), which often lack dedicated mental health staff. This article addresses techniques EDs can use to better care for children in need of psychiatric assessment and medical clearance, specifically addressing the evaluation of youth with suicidal ideation and coexisting medical and psychiatric needs. The evaluation and management of youth with agitation and aggression are also discussed. The article concludes with a discussion of systems changes needed to truly improve emergency care for psychiatrically ill youth...
September 2017: Psychiatric Clinics of North America
https://www.readbyqxmd.com/read/28667233/self-management-and-transition-to-adult-health-care-in-adolescents-and-young-adults-a-team-process
#18
John D Mahan, Cecily L Betz, Megumi J Okumura, Maria E Ferris
As health care continues to evolve, the need for more effective health care transition (HCT) for all youth, but particularly children with chronic conditions and special health care needs, becomes even more important. With more than 90% of adolescents with chronic medical conditions now surviving into adulthood, suboptimal transition can lead to poorer quality of life and less successful adulthood.Through a series of clinical vignettes, the challenges of HCT are presented herein and accompanied by comments that underscore how these adolescents can best be helped to transition to successful adulthood...
July 2017: Pediatrics in Review
https://www.readbyqxmd.com/read/28656806/baseline-characteristics-of-dependent-youth-who-have-been-commercially-sexually-exploited-findings-from-a-specialized-treatment-program
#19
Monica Landers, Kimberly McGrath, Melissa H Johnson, Mary I Armstrong, Norin Dollard
Commercial sexual exploitation of children has emerged as a critical issue within child welfare, but little is currently known about this population or effective treatment approaches to address their unique needs. Children in foster care and runaways are reported to be vulnerable to exploitation because they frequently have unmet needs for family relationships, and they have had inadequate supervision and histories of trauma of which traffickers take advantage. The current article presents data on the demographic characteristics, trauma history, mental and behavioral health needs, physical health needs, and strengths collected on a sample of 87 commercially sexually exploited youth...
June 28, 2017: Journal of Child Sexual Abuse
https://www.readbyqxmd.com/read/28562311/refining-our-understanding-of-value-based-insurance-design-and-high-cost-sharing-on-children
#20
Randall P Ellis, Sara S Bachman, Hui Ren Tan
BACKGROUND: There is significant concern about the financial burdens of new insurance plan designs on families, particularly families with children and youth with special health care needs (CYSHCN). With value-based insurance design (VBID) plans growing in popularity, this study examined the implications of selected VBID cost-sharing features on children. METHODS: We studied children's health care spending patterns in 2 data sets that include high deductible and narrow network plans among others...
May 2017: Pediatrics
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