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Wee Loon Ong, Maartje G Schouwenburg, Annelotte C M van Bommel, Caleb Stowell, Kim H Allison, Karen E Benn, John P Browne, Rodney D Cooter, Geoff P Delaney, Francois P Duhoux, Patricia A Ganz, Patricia Hancock, Reshma Jagsi, Felicia M Knaul, Anne M Knip, Linetta B Koppert, Henry M Kuerer, Sarah McLaughin, Marc A M Mureau, Ann H Partridge, Dereesa Purtell Reid, Lisa Sheeran, Thomas J Smith, Mark J Stoutjesdijk, Marie Jeanne T F D Vrancken Peeters, Yvonne Wengström, Cheng-Har Yip, Christobel Saunders
A major challenge in value-based health care is the lack of standardized health outcomes measurements, hindering optimal monitoring and comparison of the quality of health care across different settings globally. The International Consortium for Health Outcomes Measurement (ICHOM) assembled a multidisciplinary international working group, comprised of 26 health care providers and patient advocates, to develop a standard set of value-based patient-centered outcomes for breast cancer (BC). The working group convened via 8 teleconferences and completed a follow-up survey after each meeting...
December 29, 2016: JAMA Oncology
C Groeben, A Ihrig, T Hölscher, T Krones, E Kessler, S Kliesch, C Wülfing, R Koch, M P Wirth, J Huber
BACKGROUND: The decision aid "Entscheidungshilfe Prostatakrebs" is available online free of charge since June 2016. It is designed to support patients with their treatment decision-making and to lighten the burden on their treating urologists. This study evaluates usage data from the first 3 months. MATERIALS AND METHODS: The ICHOM standard set was applied to allow a personalised presentation and to collect relevant data for subsequent counselling. Additionally, personal preferences and psychological burden were assessed amongst others...
December 2016: Der Urologe. Ausg. A
S J Frank, T J Pugh, U Mahmood, P Blanchard, R Kudchadker, W Graber, D A Kuban, S Choi, K E Hoffman, S E McGuire, H C Chen, X Wang, N G Thaker, T Bruno, T G Henry, M C Occena, R S Kaplan, T W Feeley, D Swanson
No abstract text is available yet for this article.
October 1, 2016: International Journal of Radiation Oncology, Biology, Physics
Kimberley S Mak, Annelotte C M van Bommel, Caleb Stowell, Janet L Abrahm, Matthew Baker, Clarissa S Baldotto, David R Baldwin, Diana Borthwick, David P Carbone, Aileen B Chen, Jesme Fox, Tom Haswell, Marianna Koczywas, Benjamin D Kozower, Reza J Mehran, Franz M Schramel, Suresh Senan, Robert G Stirling, Jan P van Meerbeeck, Michel W J M Wouters, Michael D Peake
In lung cancer, outcome measurement has been mostly limited to survival. Proper assessment of the value of lung cancer treatments, and the performance of institutions delivering care, requires more comprehensive measurement of standardised outcomes.The International Consortium for Health Outcomes Measurement convened an international, multidisciplinary working group of patient representatives, medical oncologists, surgeons, radiation oncologists, pulmonologists, palliative care specialists, registry experts and specialist nurses to review existing data and practices...
September 2016: European Respiratory Journal: Official Journal of the European Society for Clinical Respiratory Physiology
Ian A Rodrigues, Sara M Sprinkhuizen, Daniel Barthelmes, Mark Blumenkranz, Gemmy Cheung, Julia Haller, Robert Johnston, Ramasamy Kim, Caroline Klaver, Martin McKibbin, Nor Fariza Ngah, Suzann Pershing, Dato Shankar, Hiroshi Tamura, Adnan Tufail, Christina Y Weng, Inger Westborg, Catherine Yelf, Nagahisa Yoshimura, Mark C Gillies
PURPOSE: To define a minimum set of outcome measures for tracking, comparing, and improving macular degeneration care. DESIGN: Recommendations from a working group of international experts in macular degeneration outcomes registry development and patient advocates, facilitated by the International Consortium for Health Outcomes Measurement (ICHOM). METHODS: Modified Delphi technique, supported by structured teleconferences, followed by online surveys to drive consensus decisions...
August 2016: American Journal of Ophthalmology
B Beyer, H Huland, G Feick, M Graefen
The standardized collation of the quality of treatment is a subject of discussion both nationally and internationally. This article presents the work of the International Consortium for Health Outcomes Measurement (ICHOM) and the validated German translation of the expanded prostate cancer index composite (EPIC-26). This questionnaire allows a standardized interdisciplinary collation of the quality of treatment for all therapy modalities of localized prostate cancer. Use of the ICHOM standard set and the EPIC-26 achieves a possibility for comparison of each form of therapy with respect to the curative success and the effect on health and quality of life of patients...
November 2015: Der Urologe. Ausg. A
Robert L McNamara, Erica S Spatz, Thomas A Kelley, Caleb J Stowell, John Beltrame, Paul Heidenreich, Ricard Tresserras, Tomas Jernberg, Terrance Chua, Louise Morgan, Bishnu Panigrahi, Alba Rosas Ruiz, John S Rumsfeld, Lawrence Sadwin, Mark Schoeberl, David Shahian, Clive Weston, Robert Yeh, Jack Lewin
BACKGROUND: Coronary artery disease (CAD) outcomes consistently improve when they are routinely measured and provided back to physicians and hospitals. However, few centers around the world systematically track outcomes, and no global standards exist. Furthermore, patient-centered outcomes and longitudinal outcomes are under-represented in current assessments. METHODS AND RESULTS: The nonprofit International Consortium for Health Outcomes Measurement (ICHOM) convened an international Working Group to define a consensus standard set of outcome measures and risk factors for tracking, comparing, and improving the outcomes of CAD care...
May 2015: Journal of the American Heart Association
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